# data[].attributes.body
They would be in the hospital for months

# data[].attributes.headline
That if they fire a in home nurse, chances are they are not going to get a replacement. 

# data[].attributes.subject
That if they fire a in home nurse, chances are they are not going to get a replacement. 

# data[].attributes.headline
Having all necessary parties available at once. 

# data[].attributes.subject
Having all necessary parties available at once. 

# data[].attributes.headline
Time, work, other children in home and no support.

# data[].attributes.subject
Time, work, other children in home and no support.

# data[].attributes.headline
Working around parents busy schedules! They can't be at the hospital 24/7. 

# data[].attributes.subject
Working around parents busy schedules! They can't be at the hospital 24/7. 

# data[].attributes.headline
Wonderful Medical place, but not home.  

# data[].attributes.subject
Wonderful Medical place, but not home.  

# data[].attributes.body
More detail about transition to TCC

# data[].attributes.headline
More funding and more buy-in from hospital higher ups

# data[].attributes.subject
More funding and more buy-in from hospital higher ups

# data[].attributes.headline
build a respite care facility, and hire a large group of competent well paid home nurses 

# data[].attributes.subject
build a respite care facility, and hire a large group of competent well paid home nurses 

# data[].attributes.headline
social work, psychology - wish we could have more presence 

# data[].attributes.subject
social work, psychology - wish we could have more presence 

# data[].attributes.headline
What life would look like in terms of complexity of medical care, social life changes, impact on spousal relationships and siblings...

# data[].attributes.subject
What life would look like in terms of complexity of medical care, social life changes, impact on spousal relationships and siblings...

# data[].attributes.headline
how the tcc is different than the NICU/PICU

# data[].attributes.subject
how the tcc is different than the NICU/PICU

# data[].attributes.headline
So many individuals involved, it can confusing. 

# data[].attributes.subject
So many individuals involved, it can confusing. 

# data[].attributes.headline
to create a resource for more nursing in the home? 

# data[].attributes.subject
to create a resource for more nursing in the home? 

# data[].attributes.body
Handoff for transition should be more in care conference setting.

# data[].attributes.headline
having simulation and competency based evaluation

# data[].attributes.subject
having simulation and competency based evaluation

# data[].attributes.body
More resources for families and staff members .

# data[].attributes.headline
parent availability, fear factor i.e. "its too hard", "I can't do it"...

# data[].attributes.subject
parent availability, fear factor i.e. "its too hard", "I can't do it"...

# data[].attributes.headline
support families facing the decision to start long term ventilation and help them have a sense of what life with a child that requires a trach/vent looks like for the child and for the rest of the family.

# data[].attributes.subject
support families facing the decision to start long term ventilation and help them have a sense of what life with a child that requires a trach/vent looks like for the child and for the rest of the family.

# data[].attributes.headline
develop goals for the team to accomplish

# data[].attributes.subject
develop goals for the team to accomplish

# data[].attributes.headline
standardize certain components of care across providers

# data[].attributes.subject
standardize certain components of care across providers

# data[].attributes.headline
lack of interest from the hospital in expensive but needed resources

# data[].attributes.subject
lack of interest from the hospital in expensive but needed resources

# data[].attributes.body
Nurse practitioners

# data[].attributes.headline
support families currently admitted in the tcc through social groups

# data[].attributes.subject
support families currently admitted in the tcc through social groups

# data[].attributes.body
Lacking, due to short staffing

# data[].attributes.headline
...not enough developmental experts/ people ....

# data[].attributes.subject
...not enough developmental experts/ people ....

# data[].attributes.headline
hire a team of babysitters and other care providers to help TCC parents have time to take care of themselves, complete education/training, and take care of their other kids at home

# data[].attributes.subject
hire a team of babysitters and other care providers to help TCC parents have time to take care of themselves, complete education/training, and take care of their other kids at home

# data[].attributes.headline
babysitters, aides, etc. to help with everything except nursing care

# data[].attributes.subject
babysitters, aides, etc. to help with everything except nursing care

# data[].attributes.body
More mental health resources for staff and families.

# data[].attributes.headline
impact and stress levels of entire family

# data[].attributes.subject
impact and stress levels of entire family

# data[].attributes.body
Have a more homelike facility. With efficient space.

# data[].attributes.headline
other children in the family and their needs

# data[].attributes.subject
other children in the family and their needs

# data[].attributes.headline
using all available time when parents are at bedside, meaning more people educate than just "educators" 

# data[].attributes.subject
using all available time when parents are at bedside, meaning more people educate than just "educators" 

# data[].attributes.body
Resources

# data[].attributes.headline
political lobbying to somehow create incentives for nurses and other medical providers to go into home nursing programs and careers. 

# data[].attributes.subject
political lobbying to somehow create incentives for nurses and other medical providers to go into home nursing programs and careers. 

# data[].attributes.body
More educators

# data[].attributes.headline
more available nursing, support systems-care management, social work, other supportive resources. 

# data[].attributes.subject
more available nursing, support systems-care management, social work, other supportive resources. 

# data[].attributes.headline
adding more PT time and behavior medicine support

# data[].attributes.subject
adding more PT time and behavior medicine support

# data[].attributes.headline
their availability to thrive with the lack of services available. 

# data[].attributes.subject
their availability to thrive with the lack of services available. 

# data[].attributes.body
Absolutely, as a parent this would be so helpful especially for new parents.

# data[].attributes.headline
have someone interact and play with them all day/get rid of TVs in the rooms

# data[].attributes.subject
have someone interact and play with them all day/get rid of TVs in the rooms

# data[].attributes.body
Be patient, and understanding of the transition

# data[].attributes.headline
have concierge services for parents in the TCC like they do for staff

# data[].attributes.subject
have concierge services for parents in the TCC like they do for staff

# data[].attributes.headline
Having the availability to create more the resources needed. 

# data[].attributes.subject
Having the availability to create more the resources needed. 

# data[].attributes.headline
considering an expanded team of educators

# data[].attributes.subject
considering an expanded team of educators

# data[].attributes.body
It will be a short hospital course

# data[].attributes.body
Availability of parents and staff

# data[].attributes.headline
integrating formal Cerebral Palsy assessments into the inpatient settings

# data[].attributes.subject
integrating formal Cerebral Palsy assessments into the inpatient settings

# data[].attributes.body
Staffing issues and parent schedules

# data[].attributes.headline
lack of discharge options (locations, nursing.... etc)

# data[].attributes.subject
lack of discharge options (locations, nursing.... etc)

# data[].attributes.headline
Have a facility specializing in these patients that provides a one stop shop atmosphere. 

# data[].attributes.subject
Have a facility specializing in these patients that provides a one stop shop atmosphere. 

# data[].attributes.headline
having educators that go to the families instead of making the families come to the hospital for education

# data[].attributes.subject
having educators that go to the families instead of making the families come to the hospital for education

# data[].attributes.headline
"easy steps to home" - a lot of going home is out of their control

# data[].attributes.subject
"easy steps to home" - a lot of going home is out of their control

# data[].attributes.body
Stressed staff

# data[].attributes.headline
... other families navigate complex decisions...

# data[].attributes.subject
... other families navigate complex decisions...

# data[].attributes.headline
whether families have any regrets regarding medical decisions they have made for their children

# data[].attributes.subject
whether families have any regrets regarding medical decisions they have made for their children

# data[].attributes.body
quality of life

# data[].attributes.headline
the delay in getting their kids home is their fault

# data[].attributes.subject
the delay in getting their kids home is their fault