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What is Cystic Fibrosis by Cystic Fibrosis Canada.

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What is Cystic Fibrosis by Cystic Fibrosis Canada.

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Cystic Fibrosis Canada / Fibrose kystique Canada

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Cystic Fibrosis is a hereditary disorder that is formed by the makeup of genes. Cystic Fibrosis causes the mucus in the patient's lungs to become sticker and thicker. There are many ways that CF patients can be treated, but there is no cure. Some of these treatments include particular medicine, including vitamins, enzymes, and antibiotics. Physiotherapy helps clear out the lungs as well as being massaged. Lastly, a nebulizer helps keep the harmful germs out of the patient's lungs. These harmful germs live and grow in the thick mucus, which causes CF patients to cough more than the average person. When a CF patient coughs, others are unharmed by the germs because CF is not contagious.

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Meet Addy, Cystic Fibrosis Patient by VCU Health.

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Meet Addy, Cystic Fibrosis Patient by VCU Health.

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Cystic Fibrosis is a chronic lung disease that affects the digestive system, pancreatic, etc. Treatments are needed to be done every day, twice a day, to help with the build up of mucus in those areas. Addy has to perform breathing treatments as-well-as, taking chest pt's to help her live and feel her best and most healthy self.  The Children's Hospital of Richmond has almost found a cure for Addy's specific form of CF through intensive research.

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Raising A Child With Cystic Fibrosis by Sanford Health. 

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Raising A Child With Cystic Fibrosis by Sanford Health. 

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(24 minutes)

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Cystic Fibrosis is caused by  an abnormal protein that doesn't let salt in and out of cells normally, which leads to the thick mucus in the lungs lining. It also affects the chloride channel of a cell. This gene is located on chromosome 7 and is the 3rd leading genetic condition that affects live borns. Also, it is the most common in caucasians. To conclude, cystic fibrosis affects sinus, sweat glands, lungs, liver, pancreas, intestines, male reproductive tract, as well as female fertility.

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A Parents Journey: Cystic Fibrosis by Marshfield Clinic Health System

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A Parents Journey: Cystic Fibrosis by Marshfield Clinic Health System

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The cells in the body do not manage salt correctly, with affects the mucus membranes.  A lot of medication and preventive care is required to treat CF/manage the salt correctly. On the bright side, a child with CF can have a normal life with medication. (going to school, playing sports, going to college, etc.)

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Pediatric Playbook- Cystic Fibrosis by Boston Children's Hospital

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Pediatric Playbook- Cystic Fibrosis by Boston Children's Hospital

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A cystic fibrosis patient's airway in the lungs has bacterial growth that crates the thick sticky mucus. This closes in the airway and makes it smaller. This causes 90% of CF patients to have pancreatic deficiency. Pancreatic deficiency can harm a patients growth. But, the brain is not affected by CF. Children's brains  will be able to grow and think just like a healthy individual. Ultimately, 38 years of age is the average predicted life span for someone with CF.

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What is Cystic Fibrosis by Demystifying Medicine 

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What is Cystic Fibrosis by Demystifying Medicine 

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Cystic Fibrosis is caused by a mutation in the cystic fibrosis transmembrane conductance regulatory gene.  This mutation is on Chromosome 7. CF patients have high sweat levels, pancreatic insufficiencies,  and lung infection. But, the severity of the disease ranges with every case.

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What is Cystic Fibrosis Exactly? by Cystic Fibrosis Trust 

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What is Cystic Fibrosis Exactly? by Cystic Fibrosis Trust 

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If both parents have the CF gene, there is a 1 in 4 chance that you would be born with the condition, and about 1 in 25 people carry the gene. When a child with CF is waiting for a diagnosis, some symptoms include:
- Frequent Chest Infections
- Prolonged Coughs
- Shortness of Breath
- Abnormal Bowel Movements
- Difficulty Gaining Weight
- More common in men is Infertility.
Three ways to help a CF patient from a medical standpoint are physiotherapy, which helps shifts the mucus, enzyme capsules that are needed to be taken with food, and lastly a special high fat diet is needed for a patient with CF to make sure that they are getting all the nutrients that they need.
To conclude, an interesting fact is every week in the UK 2 people die of CF and 5 more babies are born with it.

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Cystic Fibrosis Newborn Screening by Cincinnati Children's 

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Cystic Fibrosis Newborn Screening by Cincinnati Children's 

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Cystic Fibrosis Newborn Screening | Cincinnati Children's

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By detecting Cf early, it can help the babies health in the long run. CF can be detected by screenings. If the screening shows one CF mutation- it is most likely that the baby is just a carrier. Less than 10% that the baby will have a second mutation and have cystic fibrosis. A sweat test is used to have the baby sweat so that they can test and measure the salt content.  If the sweat test shows that the salt levels are high then there is a good chance that the baby has cystic fibrosis. They use a device to collect the sweat, this last for about 30 minutes.  If they don't get enough sweat for the test to be valid, they wait a couple of weeks for the baby to get bigger and re test. They measure the salt content in a lab. And, the results are usually given in the same day.

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What is Cystic Fibrosis by Fuse School- Global Addition 

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What is Cystic Fibrosis by Fuse School- Global Addition 

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What Is Cystic Fibrosis | Health | Biology | FuseSchool

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CF causes chest pain as-well as access mucus in the pancreas on top of the thick sticky mucus located in the lungs. This disease is most prominent in North America, Europe, and Australasia.  Treatments slow some of the lung changes down, so that death comes later. Lastly, gene therapy holds a great promise in treating cystic fibrosis.

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Cystic Fibrosis Symptoms in Children — AMITA Health Medical Group by AMITA Health

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Cystic Fibrosis Symptoms in Children — AMITA Health Medical Group by AMITA Health

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Cystic Fibrosis Symptoms in Children — AMITA Health Medical Group

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Many years ago CF was a childhood disease because patients did not have a high life expectancy. Now, the average life expectancy now in the United States is 43 years. This disease is still prominent, the respiratory symptoms include
- Frequent coughing
- Frequent wheezing
- Frequent lung and sinus infections
- Poor digestion of food results in
- frequent diarrhea
- poor weight gain

Sadly, Cystic Fibrosis can lead to liver disease and diabetes.

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I chose to study cystic fibrosis because it is a widespread disease that was only slightly familiar to me. I knew that cystic fibrosis had some relationship with mucus in the lungs, but that was all of my prior knowledge. This project helped me understand this disease better and what living with CF is like. An interesting fact that I wanted to share that was shocking to me is that CF is not limited to just the lungs. It affects male reproductive organs, the intestines, the nervous system, the pancreas, and many more body parts. There have been very significant steps in finding a cure for CF. Many treatments have been found through extensive research to help CF patients feel their healthiest! CF patients are not limited to their disease; they can live a happy and fulfilling life!