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Thank you for all you have done for not only the TSC community, but our whole epilepsy community. You have helped so many other orgs develop with your generosity of time and talent. -Julie Walters

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Thank you so much for everything you do! Jean Leonard & Ben & Bill 💕

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Thank you so much for everything you do! Jean Leonard & Ben & Bill 💕

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Congratulations on this milestone Kari! I so appreciate your wise counsel and your calm steady leadership. The work that you and the TSC Alliance are doing is leading the way to cures - thank you! Brandy

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Kari,
Many congratulations on your monumental milestone. You are amazing and your leadership of the TSC Alliance is truly exemplary. It has been an absolute pleasure to have been able to work with you and I look forward to many more collaborative projects over the next 20 years!
Go Pack Go!
Nishant Gupta

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1. Create your post by clicking the pink plus button (+) in the bottom right corner. 2. Type your personal message. 3. To upload a picture, click the upload icon. To add other media (record a video or voice recording) select the three dots. 4. Sign your name and your location at the end of your message. WHAT TO POST: Messages of gratitude • Memories • Funny stories • Impactful experiences

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Happy Anniversary Kari! Thank you for your incredible leadership! I've learned so much from you over the past 15 years, and am so grateful for your mentorship and friendship. You've made a difference to so many people all over the world. I can't wait to see what the future holds for the chapter! xo

Katie

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Nothing Can Mask your Compassionate Heart and Collaborative Spirit Kari - Congratulations from The LAM Foundation!

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Nothing Can Mask your Compassionate Heart and Collaborative Spirit Kari - Congratulations from The LAM Foundation!

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On behalf of The LAM Foundation and our entire LAM community, I congratulate you on 20 years of accomplishment and immeasurable impact. For two decades, your leadership of the TSC Alliance has pushed dramatic scientific progress and improved the lives of patients and families. You engender a spirit of collaboration and excellence that inspires everyone around you to achieve more. Thank you my friend!
Sue Sherman
CEO, The LAM Foundation

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Happy 20 years, Kari! You are a true inspiration. Thank you for all you’ve done for TSC and the entire epilepsy community. It is an honor to know you. I hope we cross paths in real life this year!
Best,
Julie Milder

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I’m forever grateful for your heart and soul dedication to our organization we started almost 50 years ago .. thank you for your inspired leadership and commitment to making our original vision a continued reality , helping thousands every day .
Sending you much love and gratitude .
Susan McBrine

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Congratulations Kari on 20 years!!! Not enough words to describe how amazing you are, thank you so much for your time, love and dedication to the TSC Alliance and all the families of this great organization
Carol ann White

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Thank you for your amazing leadership skills and your dedication to the TSC community! Cheers to 20 more!

The Johnston Family (NC)

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Congratulations
And Thank You from the bottom of my heart for all you have done for my family. Many many years ago in a coffee shop in Philadelphia Shelly and I met you and started our chapter of the TS Alliance. You changed our world and gave us hope. Fast forward 20 years and you continue to lead us on this journey. Thank you again and again!

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Congratulations to you on 20 years, wow! We are so lucky to have you leading our community, not only as the CEO but as an advocate, educator and friend. You mean so much to so many. To me you mean smiles, laughter, support, understanding and the best darn name spelling ever - no matter how you pronounce it 😜 Thank you for being a constant in this crazy journey that we are on, for fighting so hard for William and so many others and for sticking with us for 20 years. We LOVE you!
Kari, Justin, William, Peyton & Grace
Minneapolis MN

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If anyone was going to take my parents away from St. Louis, I'm glad it ended up being you! Anytime I see you it is always smiles and fun and happy (I probably only get you at the best times, clearly because I'm there.. 😘). Thank you for putting up with my Wonder Woman outfits and all of my selfies over the last few years! Congratulations on 20 years, and cheers to many more! 🥂🌟💙

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Kari, we have been incredibly lucky to have you at the helm of TSC Alliance. You are a fantastic leader - passionate, strategic, and fair. You have brought the organization to being a role model among patient advocacy groups and have made crucial contributions to TSC community and to those affected with rare diseases everywhere. Here is to another 20 years!
Mustafa Sahin
Boston Children's

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Thank you for your extraordinary leadership. You have led with compassion, understanding and with the urgency the TSC community needs to find better treatments, while building a community of love, support and resources. I can't wait to see where you take us for the next 20 years. Congratulations on two decades of life changing and ground breaking work. You are amazing and I love you!!!

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I never wanted to like you or the organization, but from the beginning until 10 years later, we are the best accidental friends!  Here's many more adventures! 🥂  I love you to pieces! 💜💜💜 Mary

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I can't seem to find a picture to post, but you have been in our lives for many years as the TSC champion, friend and cheerleader for our cause!  We SOOO appreciate everything you do for our community and guiding the organization to help our "kids"!  You're a wonderful person but also a great President for the TS Alliance - keep it up for another 20 years!  Happy Anniversary and we look forward to seeing you again in person!
Love, Kathi & Tim Dills
Leesburg, VA

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Kari,
Cheers to you on your 20th Anniversary!  I will guess that being a transformational CEO of a rare disease nonprofit advocacy organization was not on your short list of dream jobs coming out of college.  Yet here you are. You chose among the dreams which warmed your soul the most. Finding strength in imperfection; repairing cracks with compassion and allowing the friction of life's challenges to polish you into a gem.  Thank you for sharing yourself with the TSCAlliance.
Love you kiddo,
Debora Moritz
Scottsdale, AZ

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Kari,
You are an amazing leader and inspiration. You are always friendly, welcoming, encouraging and a positive example. I am very grateful for your dedication to TSC. It’s because of you, TSC has seen so many successes. I can’t wait to see what the future holds. Love you sweet friend!
Margaret

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Kari,
Thank you for your many years of work at the TSC alliance fighting for our children who suffer from TSC. I’ve never met you personally but I look forward to at the world congress next year. My family thanks you on behalf of my warrior Wesley (2). Thank you for continuing to fight for a cure for everyone with TSC!!!

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Kari - 29 years with the TSC Alliance!  What an amazing accomplishment!!!  You are the heart of the team and have been the standard with which I compare all other leaders of patient organizations. Words are not enough to describe the impact you have brought for the  care of people living with, caring for and treating TSC. It has been a privilege and honor to have been able to work with you for the past decade plus!!

Congratulations again

Matthew Simonian

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First time i met Kari she was cheerleading us at San Diego Conference 2001. She definitely has made it to Quarterback. She has made a huge difference and I hope to see her find the Cure for all is. Treasa

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Happy 20th Congrats and Best Wishes as you continue to Steer the Ship! 

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Happy 20th Congrats and Best Wishes as you continue to Steer the Ship! 

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Kari Luther Rosbeck, President and CEO of the TS Alliance since 2007, has masterfully steered the ship from the early days where “all we could do was hold the hands of parents as they went thru the struggle to today where we have drugs that shrink TSC tumors and are starting our first trial aimed at preventing epilepsy from ever developing in infants with TSC.” ....Thanks for your groundbreaking work on behalf of all the families within and without our community who are connected in some way to an individual with this challenging condition. You've built quite a safe haven of love and connection that was, is and will be desperately needed for infinity and beyond. :) All the best~Jill Woodworth, Rutland, MA

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TSC Talks; Steering the Ship with Passion & Purpose; TS Alliance President & CEO, Kari Luther Rosbeck - TSC Talks!

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Kari Luther Rosbeck, President and CEO of the TS Alliance since 2007, has masterfully steered the ship from the early days where "all we could do was hold the hands of parents as they went thru the st

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Congratulations my friend. Your dedication to our mission is often a lifeline for family struggling with life-changing news. You give me hope and inspiration to fight for a cure. Thank you for being our world changer!

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Thank you for making a difference in our lives every day through your hard work and dedication to the TSC community. We are beyond grateful! You give us Hope!
Best wishes for many more years with the TSC Alliance!!
Much love to you,
Jackie & Evie
St. Louis, MO

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Congratulations Kari!
On behalf of our family, we are so grateful for all you do for TSC. The Alliance is an amazing organization due to your incredible leadership. Thank you for the difference you are always making!
Best always,
Geri & Michael Greenberg

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Here's to 20 more!!!

Congratulations!
-Justin Martucci

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Kari, we can't thank you enough for all your hard work and dedication to improving life for our TSC warriors! You are an amazing leader and a friend to all. Happy 20th anniversary with the TSC Alliance!

Love,
Super Chloe and family
Bluffton, SC

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Happy 20th Anniversary with the TSC Alliance, Kari!

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Happy 20th Anniversary with the TSC Alliance, Kari!

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Kari, we are so grateful for all you do for the TSC Alliance and our community as a whole. Your leadership and optimism give families like ours many reasons to hope for a bright future for our warriors. Congratulations on 20 years and here's to many, many more!

All our best,
The Holmes Family - Alex, Lesley, Seraphina and Alexander
Los Angeles, California

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Congratulations Kari for 2 Decades and many more to go!

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Congratulations Kari for 2 Decades and many more to go!

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Thank you for being an outstanding leader of our TSC Alliance organization! Your passion to find a cure and warm welcome to all is truly inspirational! We have been fortunate to laugh and smile with you through many times...DC walks, MD advocacy efforts, World TSC Conferences, annual membership meeting, DC auctions, etc.!
Special TSC hugs and love,
Frank, Jocelyn and Gus
Maryland

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How can it be 20 years that we have known each other! I remember seeing you at the San Diego Conference being the best cheerleader, little did we know that you would still be the best cheerleader to so many of us.
You have been there when we had our first conference in Denver and the one and only Step Forward to Cure TSC Walk in the snow!  You and your family went out of your way to help us when Emily had her 2 brain surgeries in Minnesota.  We were also together to celebrate your birthday in Colorado and grieve that same day when Dee passed. I have so many amazing memories of our friendship throughout the years and look forward to many more!
Love the Holinka Family from Colorado

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Congratulations on 20 years of making the world a better place! Thank you for giving so much of yourself to the TSC community, challenging the status quo and striving to change the course of TSC through research. Thank you for being my mentor, colleague and friend.

Love you lady!
Lisa Moss
Annandale, Virginia

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Congrats from the TSC Alliance MD Community Chapter! We are TSC Strong and so grateful that you are our fearless leader!

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From the minute we met you at the TSC Alliance headquarters you welcomed us with open arms! We cherish this memory and felt so special that you were our first “mentor” the first time we participated in the MOH in DC. We are forever grateful to you for unlocking the advocates inside of us. We are in awe of your 20 years of inspiring work and service for our TSC community and family! It’s an honor to know you and be along your side as we continue the journey to finding a cure for TSC. Congrats on this amazing milestone and achievement! All our love and best wishes as you celebrate 20 years, Sean, Lauren, Brynleigh and Kaelyn Shillinger

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Thank you for giving us HOPE no matter how complex!

Love,
Brynleigh & Kaelyn Shillinger

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Thank you for setting an example of powerful leadership based on empathy and compassion! The TSC community is as strong as it is because of your vision, drive and utmost dedication to finding a cure. Congratulations on your 20 years of building up this community and improving so many lives.

With much love, gratitude and awe,
Laura Marks
New York

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Thank you for all the amazing work you do for the TSC community. You are loved!

Kristy and June Nunley, Eldersburg MD

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You are a model example of a leader and team player. Thank you for always making people feel welcome and special in your life. I am so thankful to have you and hope that you will come back to Nashville very soon!

All the best,

Gabrielle Rushing

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Congratulations for an outstanding 20 years of service Anniversary  with exemplary leadership.  Wish you 20 more 

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Congratulations for an outstanding 20 years of service Anniversary  with exemplary leadership.  Wish you 20 more 

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Emebet G/Micheal
Silver Spring, MD

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Congrats on your first 20 years at the TS Alliance!

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Congrats on your first 20 years at the TS Alliance!

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You set an inspiring example day-in day-out. I love to see you and the rest of the team bring in those big bucks to bring about some really impactful research!

Rich Gollub
Silver Spring, Maryland

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Congratulations on 20 Years at the TS Alliance!

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Congratulations on 20 Years at the TS Alliance!

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Nearly a decade ago you took a chance on a kid fresh out of college (probably in the top 10 of decisions you've made at the TSC Alliance :P) and gave me the space to find my calling. It's been truly inspiring getting to be on the team you've built and see how the organization has grown and changed under your leadership since I've been here, and I'm sure the earlier half of your tenure was equally as impactful for everyone affected by TSC. Your compassion, commitment to the mission and vision makes the TSC Alliance the amazing place it is. You once said "It will be time for me to retire when I no longer have new ideas to move our mission forward," which I think has doomed you to a lifelong commitment, because innovation and collaboration are at your core. Happy anniversary!

-Dan Klein

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Congratulations on Your Amazing 20-Year Commitment to the TSC Community!

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Congratulations on Your Amazing 20-Year Commitment to the TSC Community!

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Kari,
Happy 20th Anniversary!  You have made innumerable contributions to the TSC community and our organization, as well as people worldwide.  While I value our friendship first and foremost, I also want to salute your incredible leadership skills as well as your uncanny ability to rally anyone around our shared cause.  I hope you enjoy a well-deserved celebration!

Much love,
Jaye Isham
Rio Rancho NM

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Kari,

You’ve been there, every step of our families journey.  Your passion and commitment have changed the landscape of our organization, our community, and our collective future.  All along you’ve somehow managed to always make time for others.  You’ll never know how much those efforts mean to others.  This photo was one of those times and it meant the world to me, as do you.  Congratulations to you, and to all of us on this milestone anniversary!

Love,
Julie Scroggins,
Community Programs Manager, West

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Happy 20th Anniversary! Let’s raise a toast to celebrate you today. Thank you for your generosity, your constant enthusiasm, and for all the support you have given me over the past 15 years. Have an amazing work anniversary because you deserve it!

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Happy 20th Anniversary! Let’s raise a toast to celebrate you today. Thank you for your generosity, your constant enthusiasm, and for all the support you have given me over the past 15 years. Have an amazing work anniversary because you deserve it!

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Gail Saunders, Senior Associate Director, Community Programs. (Silver Spring, MD)

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Congrats, Kari.  Thank you for all you've done for the past 20 years for our community.  We love you. 

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Congrats, Kari.  Thank you for all you've done for the past 20 years for our community.  We love you. 

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You are an amazing friend, mentor and advocate for everyone living with tsc.