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Organizations Supporting Sickle Cell Anemia

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Organizations Supporting Sickle Cell Anemia

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One organization supporting this disease is The National Sickle Cell Advocacy Network (NSCAN). This organization is a national network for families who want to help people who live and are affected with this disease

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Sickle Cell Disease Association of America Inc.

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The National Sickle Cell Advocacy Network (NSCAN) is a national network of patients and families looking to advocate, educate and help people living with or who are affected by sickle cell disease. We know that there is immeasurable strength in numbers. Collectively, our goal is to ensure that those affected by sickle cell disease know that they are not alone.

With the help from our community-based organizations, we have created a strong network that includes caregivers, clinicians, stakeholders and experts. Sickle Cell Disease Association of America, Inc. (SCDAA) seeks to increase its network to include more individuals that have the energy and drive to recruit others and increase advocacy and awareness within the sickle cell community!
Click here to learn more about our advocacy efforts and campaigns.
The role of NSCAN members include the following:
Promote Awareness for the importance of finding an affordable cure to those suffering with Sickle Cell Disease
Inspire community support by keeping the public informed of SCDAA programs, news and events
Offer assistance in strengthening the community.
Navigate valuable information to other networks dedicated to continuous medical, program, advocacy and research
Educate other Advocates, patients and families on the importance of understanding the effects of Sickle CellDisease
Encourage legislative, community and corporate advocacy for those consumers and families affected by Sickle Cell Disease and;
R aise funds and/or awareness to further the mission of SCDAA's national programs and efforts

For more information about how you can join NSCAN, please contact SCDAA's Government Relations Manager, John Otsuki, at jotsuki@sicklecelldisease.org.

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National Sickle Cell Advocacy Network - Sickle Cell Disease Association of America Inc.

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The National Sickle Cell Advocacy Network (NSCAN) is a national network of patients and families looking to advocate, educate and help people living with or who are affected by sickle cell disease. We know that there is immeasurable strength in numbers. Collectively, our goal is to ensure that those affected by sickle cell disease know [...]

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A blood and bone marrow transplant is currently the only cure for some patients who have sickle cell disease. Medicines to treat sickle cell disease include voxelotor, hydroxyurea, crizanlizumab-tmca, L-glutamine, ibuprofen, and penicillin. Blood transfusions can also help. Researchers are studying…

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Who is affected by Sickle Cell Disease? — Sickle Cell Disease Foundation

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Scientists are currently researching how gene therapy and blood and bone marrow transplants can help to find a treatment options for the disease

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The NHLBI leads and supports research on sickle cell disease to develop new treatments and ways to improve quality of life.

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In order to be cured from Sickle Cell Anemia you need to receive a blood or bone marrow transplant. During early stages you can receive medicine or transfusions.

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In order to be cured from Sickle Cell Anemia you need to receive a blood or bone marrow transplant. During early stages you can receive medicine or transfusions.

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Episodes of pain, Swelling of hands and feet, Frequent infections, Delayed growth/puberty, Vision problems, Headaches, Dizziness, Jaundice

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Sickle Cell Anemia affects approximately 250 million people in the world. Every year about 300,000 children are born with a hemoglobin disease throughout the world.

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Sickle Cell Anemia affects approximately 250 million people in the world. Every year about 300,000 children are born with a hemoglobin disease throughout the world.

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The child has to inherit the disorder from both parents to get the disease