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Watch our short video guides about using your inhaler correctly. The right technique will ensure you’re getting the right dose, so you can better manage your symptoms.

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TLCO Children's Community Nursing (CCN) and Childrens Learning Disability Nursing Team (CLDN)

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TLCO Children's Community Nursing (CCN) and Childrens Learning Disability Nursing Team (CLDN)

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We have structured our padlet so that you are able to scroll down to find supporting information. Children's Learning Disability Nursing is at the top and moves onto Children's Community Nursing Services. This padlet will be monitored and updated frequently. If you are unable to find a service or support please contact:

mft.traffordccntparentmail@nhs.net

Thank you from the team.

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The Impact of the environment on behaviour

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The Impact of the environment on behaviour

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There is a strong link between a child's environment and a child displaying behaviours, here is some information from bild (British Institute for Learning Disabilities)

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Susie Tinsley Our Learning Disability Nurse and Team Leader

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Trafford Parents Forum - Our mission is to support, empower and inform parent carers and families of children and young people with SEND so they can develop their skills and knowledge to become the best advocate for their children and young people.

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We will be returning to work on Monday 8th January 2024 with the term time drop in's restarting on Tuesday 9th January 2024 at St Matthew's Church Hall in Stretford. Tuesday 16th January 2024 sees SENDIASS coming along to our drop in. Our evening drop in's will be restarting too - please keep an eye on our website and social media for news on dates and locations.

We have an exciting Wellbeing Programme being prepared just now that is due to start in the New Year - please keep an eye out for more information on our website and social media.
STEP and Support Sessions covering Disability Living Allowance and Personal Independent Payments
STEP will be opening DLA/PIP support sessions once per half term in the New Year - keep an eye on our website and social media for further updates with dates and location.

To make a self-referral to STEP, please use their referral form here.

Mental Health Support Over Christmas
Christmas isn't always the best time and our mental health can suffer for many reasons. If over Christmas you or someone you know needs any support with their mental health, please don't suffer in silence, there is help out there.

Trafford Council has their own support page with lots of help and links where you can get support.
Trafford Directory and the Local Offer
If you need any general help, Trafford Directory offers free, impartial advice and guidance service connecting Trafford families, young people and caregivers with local support services. Under this service, you will find the SEND Local Offer - if you haven't visited yet, it's a tool to keep always as it's Trafford offer of support for families with children with SEND
Posts to the Closed Facebook Group won't be approved as quickly as normal, please bear with us. During holiday periods for urgent support, please contact Trafford Children's First Response on 0161 912 5125 during office hours Mon-Fri 8.30-4.30pm or 0161 912 2020 out of hours - Emergency Duty Team. This leaves us to say that we wish you all a very Merry Christmas and a Happy New Year. We hope the holidays are kind to you all and look forward to seeing you in the New Year. The TPF Team

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Lets make the SEND world, everyone's world

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Making SEND a better place. For everyone.

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Special Needs School Nursing Service (SEN) - Trafford LCO

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The Special Needs School Nursing Service (SEN) is part of the Children’s Community Nursing Team (CCNT) and is a nurse led service for children entering reception up until the young person’s 19th birthday, which aims to provide guidance to schools for pupils with special needs, including profound disabilities and complex health needs.

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We are an independent registered Charity supporting unpaid carers looking after someone who live in the Trafford area. We support adult carers (aged 25+), young adult carers (aged 16-25) and young carers ( Aged 5-15)

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Government guidance for unpaid carers
For the latest Government guidance (last updated 13th April) please visit https://www.gov.uk/government/publications/coronavirus-covid-19-providing-unpaid-care/guidance-for-those-who-provide-unpaid-care-to-friends-or-family
Vacancies
Please see our vacancies for available roles that we are currently accepting applications for.
Carers Week
Carer's Week will be taking place from 7th - 13th June. Although we will still have restrictions in place that will effect our ability to run large scale activities we are pleased to announce that we will be running a mixture of small group activities and our main afternoon tea event will be held online.

Monday 7th June - Carer's Walk (no pet's)

Tuesday 8th June - Carer Awareness sessions for professionals

Wednesday 9th June - Wellbeing Wednesday

Thursday 10th June - Carers Afternoon Tea, bingo & quiz (with live entertainment)

Friday 11th June - Carer's and your pets walk

More information will be added over the next few weeks and we advise to book early as places will be strictly limited.

Our current service offer

We would like to assure you that our support for carers continues.

Our team is available Monday to Friday between 9am until 4:30pm to take your calls. Please call the helpline on 0161 848 2400 and press option 1.

Trafford Carers has launched a number of projects over the last couple of months to support carers during these difficult times and we continue to offer the majority of services either over the phone, via digital (zoom or MS Teams) and in some circumstances face to face (please note that this is fully risk assessed ahead of making any appointments to minimise infection risks)

Services carers can access include:

Helpline - Operating Monday to Friday

Counselling - operating either over the phone or via a video call

Therapies - this service is currently suspended

Befriending (New Service funded by The National Lottery Community Fund) - Please contact the helpline for more information

Benefit advice - accessed through the casework team

Art group - Every Wednesday at 10am on Zoom (call the helpline for information)

Wellbeing Wednesday - Every Wednesday at 10am on Zoom (call the helpline for information)

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CORONAVIRUS (COVID-19) GUIDANCE - Trafford Carers

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Government guidance for unpaid carers For the latest Government guidance (last updated 13th April) please visit https://www.gov.uk/government/publications/coronavirus-covid-19-providing-unpaid-care/guidance-for-those-who-provide-unpaid-care-to-friends-or-family Vacancies Please see our vacancies for available roles that we are currently accepting applications for. Carers Week Carer's Week will be taking place from 7th - 13th June.

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As part of the Trafford Children’s Community Nursing Team (CCNT), the service offers palliative care support to babies, children and young people who reside in the Trafford area. The Children’s Palliative Care Nurse, supports children and young people living with a life limiting or threatening condition and their families.

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Children’s Palliative Care Nurse - Trafford LCO

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The Specialist Nurse, Children’s Palliative Care provides assessment, care and support to children, young people and their families living with a life limiting or life threatening condition.

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TLCO Children's Community Nursing Services Info

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Leaflet with who we are and what services we offer. Please get in touch if any queries.

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TLCO Children's Community Nursing Services Info on Page (003)

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Link to the the TLCO website with information about CCNT and contact details.

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Children’s Community Nursing Team - Trafford LCO

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The Children’s Community Nursing Team (CCNT) provides home nursing services for children and young people (CYP) in Trafford who have mild, short term, acute illness or chronic/long term, complex and additional needs.

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The Little Orange Book contains advice and tips on how to manage common illnesses and problems that babies and young children often experience in the first 5 years of their lives. It also has information on more serious conditions, what to look out for and how to get help.

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Guidance and advice from NHS Health supporting parents and carers.

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What to do if your child needs medical help and vaccination guidance.

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ERIC - The Children's Bowel and Bladder Charity

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ERIC - The Children's Bowel and Bladder Charity

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ERIC is the national charity dedicated to improving children’s bowel and bladder health. Our mission is to reduce the impact of continence problems on children and their families.

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Support groups

HealthUnlocked
Social network for health with over 500 communities covering a wide range of health issues. Visit ERIC's message board to chat to others experiencing a childhood bowel or bladder problem.
Child Continence Support Group (CCSG) - Facebook Movicol Mummies (Facebook)
Encopresis Support UK - Facebook page

Daytime Wetting in Children and Teens Facebook page
LIBBI UK - Leaks, incontinence, bladder and bowel issues (Facebook) Encopresis Support Worldwide (Facebook) Children's Continence Support (Facebook)
Mitrofanoff Support Group - Facebook page

Bowel and bladder health information

Mitrofanoff Support - www.mitrofanoffsupport.co.uk
Provides emotional support, reassurance, information and networking opportunities for those who have had the Mitrofanoff procedure.

CHAMPS Appeal - https://www.facebook.com/champsappeal/
Supports children living with Hirschsprung's Disease and their families during diagnosis and surgery. Also provide post-operative support and activity days.

Colostomy Association - www.colostomyassociation.org.uk
The Junior Ostomy Support Helpline (JOSH) for parents and carers of children who have had bladder or bowel surgery resulting in a stoma or bladder augmentation.

National Institute for Health and Care Excellence (NICE) guidelines

Constipation in children and young people: diagnosis and management - www.nice.org.uk/guidance/cg99
Guidance to support the early identification, positive diagnosis and timely, effective management of constipation in children and young people.

Urinary tract infection in under 16s: diagnosis and management - www.nice.org.uk/guidance/cg54
Guidance on the care and treatment of babies, children and young people under 16 with a urinary tract infection ( UTI).

eLearning for health professionals

Coloplast online training portal - https://coloplast.e3learning.co.uk
Management of Bladder & Bowel - Paediatrics course (you will need to register an account to access the course).

Support for children and teenagers

Help with bullying

Support for parents and carers

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Links to support groups and organisations that provide information about bladder and bowel challenges.

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We campaign for children’s rights. We deliver health services and research that improve diagnosis and treatments. We support children and young people throughout school, college, and university. We provide information, friendly advice, and practical help for living everyday life.

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Join the #UnderstandMyEpilepsy campaign and help ensure young people with epilepsy get the support they need to be safe and included at school.

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Whether you're at school, college, or university, there are a few things you can do to stop asthma from getting in the way of your studies.

Tell your school, college, or university that you have asthma. Go through your asthma action plan with them so they know what medicines you take and what to do if you have an asthma attack.

Who to talk to will depend on where you're studying:

At school and college: your head of year, form tutor, or school nurse.

At university: university welfare support, student support services or your personal tutor.

Missing classes or deadlines

If you're missing classes or deadlines because of your asthma, speak to your teacher or tutor as soon as possible. They may be able to extend your deadlines and offer you more support.

Disability Rights UK has suggestions for support you could ask for. Even if you do not consider your asthma to be a disability, you may need support or special arrangements.

Speak to your GP or asthma nurse if stress or anxiety is triggering your asthma. The school nurse or welfare officer at your school, college or university may also be able to help you.

If you feel like you're not getting the support you need, you could make a formal complaint about your school or university.

Asthma during exams

If you have exams coming up, it's important to make sure your asthma is under control. Take your preventer inhaler every day as prescribed, and always have your reliever inhaler with you.

Exams often happen during pollen season. If your asthma is triggered by pollen, remember to take a daily antihistamine when pollen levels are high. Make sure you choose one that is non-drowsy.

Stress can be an asthma trigger. If you're feeling overwhelmed by your exams, let your friends and family know, so they can support you. You can also talk to your GP or asthma nurse. YoungMinds has advice for dealing with exam stress.

If you've been unwell with asthma and it's affected your studies or your exam performance, speak to your exams officer at school, college, or university. It may be possible for your mark to be changed, to resit the exam, or to get a coursework extension.

Support for severe asthma at university

If you're going to university and you have severe asthma which makes it hard for you to do day-to-day activities, even if it's just some of the time, you can apply for Disabled Students' Allowance.

Most universities and colleges have disability support teams who will be able to tell you what support you can get and answer your questions. UCAS has more information about applying to university with a physical condition.

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Find out how to manage your asthma during puberty, when you're studying, and when you leave home.

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TLCO Children's Leaning Disability Nursing Team Information

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TLCO Children's Leaning Disability Nursing Team Information

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Here is information about the team and how to make a referral.

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Who we are:

The Children's Learning Disability Nursing Team provide support services for Children and Young People up to the age of 18 who have a severe learning disability and/or additional and complex needs such as behaviour which is challenging to manage.

The team support children and young people and their families within their own homes and provide a range of interventions dependent on individual need.

We are a small team consisting of Community Learning Disability Nurses and a Community Support Worker. We work in conjunction with Clinical Psychologists in the Learning Disability CAMHS service and often complete joint assessments and intervention plans.

What we assess:

Assessments are completed in relation to behaviour, sleep, continence or other health needs. Programmes of intervention are offered to promote positive outcomes and to support children and their families from both a practical and emotional perspective.

During an Initial Assessment, staff will discuss the different ways in which support can be offered and a plan is made in partnership with parents/carers.

The team regularly work in partnership with colleagues in other agencies and promote a multi-agency approach to working.

As part of the assessment process, the team regularly complete visits to nurseries/schools to assess children in different environments and to promote a consistent approach to strategies employed.

What support we offer:

Where appropriate we offer individual 1:1 support to young people to promote their understanding of emotions and their ability to self-regulate. These sessions can take place either in home or school environments depending on individual need.

The Team offer Group Interventions to parents/carers. These are a positive way to learn new strategies whilst sharing ideas with others within a group format. The 'Incredible Years' is an evidence-based Positive Parenting Course which has been adapted to meet the needs of children with additional needs.

'Riding the Rapids: Living with Autism or Disability' is an eleven session parent-training course for parents and carers of children and young people with a diagnosis of Autism or other complex needs.

Where referrals to the team include working with young people of 14 years or year 9 at school, we will liaise with other relevant professionals regarding transition planning.

Continence Support:

The Team aim to support and improve the health of children and young people by promoting independence with continence where possible.

If it is agreed that a child/young person is ready to follow a toileting programme, this will be designed by Community Learning Disability Nurses in conjunction with the child and their parents/carers. An individualised approach is adopted and each step designed to meet the developmental needs at that time.

Following assessment, if it is agreed that the child/young person is not ready to develop and promote Continence, a referral is made to the Bladder and Bowel service. This will be for the child/young person to be placed on the self-care model to receive a regular delivery of Continence products (Pads).

A further referral to the team would be welcome if the child/young person begins to show continence awareness and additional support is required.

Who to contact

Contact Name

Susie Tinsley

Contact Position

Team Leader

Telephone

0161 912 3372 0161 912 3372

Notes

Our main office working hours are between 9am and 5pm Monday to Friday however we regularly work outside of these hours in order to respond to the individual needs of children and families within their home environment.

Please telephone the office number above if you would like further details about any of the services offered. If no one is available to take your call, please leave a message on the answer phone and a member of staff will return your call.

Time / Date Details

When is it on

Monday to Friday, 8.30am to 4.30pm

Time of day

Afternoon
Morning

Who is it for?

Ages

Supporting People With

Learning disability

Challenging Behaviour

Profound or Multiple Needs

Eligibility Details

In order to meet the criteria for referral, a child or young person will;

Be under the age of 18 years

Be resident in Trafford or be registered with a Trafford GP

Have a severe learning disability

Referral Required?

Yes

Referral Details

Referrals can be made by any professional within Health, Education or Social Care agencies. Self-referrals are also welcome.
Referral form

Related Services

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Trafford Directory | Children's Learning Disability Nursing Team (CLDNT)

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Who we are: The Children's Learning Disability Nursing Team provide support services for Children and Young People up to the age of 18 who have a severe learning disability and/or additional and complex needs such as behaviour which is challenging to manage.

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A blank Hospital Passport.

Anyone can complete one on behalf of a child/adult who may require reasonable adjustments when in hospital. Once completed, this can be sent to The Focus Support Team who will upload the document onto the individuals HIVE (hospital medical records)

About Me Templates - Manchester Local Care Organisation

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Information and Application form fro Short Breaks

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What is a Short Break? Local authorities provide short breaks for families with disabled children to support them to continue to care for their children at home and to allow them to do so more effectively. Short Breaks can be provided by Universal services,...

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Trafford's Local Offer page is a dedicated space with all the services and organisations which are part of the support on offer in Trafford.

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Lynn Davies Our Learning Disability Nurse

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Keirra Wood Our Learning Disability Nurse

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Things I love · My family · My Cats – Harley and Quinn · Fajitas · Listening to Music · Animals · Going on Holiday (6)

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Trafford Autism and social communication Hub

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Trafford Autism and social communication Hub

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Here you will find information advice and local support service for autistic individuals, parent/carers of autistic children or young people and those who work with them.

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Here you will find information advice and local support service for people with autism, parent carers of children or young people with autism and those who work with them.

In addition to the services listed below you can find many more services, activities, things to do and a wide range of SEND advice and guidance on Trafford's SEND Local Offer.

Diagnosis

Autism is a lifelong developmental condition, which affects people in different ways. Autism is not always picked up in childhood; people can be diagnosed at any age.

There are different services available for diagnosis and support depending on how old you are.

School based support is the first stage of the current TASC pathway. When a parent/carer or teacher thinks that a child may be showing signs of autism/social communication difficulties the Graduated Approach is started. The school based support part of the pathway will usually be for 2 terms.

Find out more about Trafford's Graduated Approach for:

Find out more about the Trafford Autism and Social Communication Pathway (TASC) for children and young people
TASC Pathway waiting list FAQ
Post Diagnostic Support

If your child or young person has an autism diagnosis there are lots of organisations that offer support. You might need different types of support at different times in your life.

Getting Advice - for those who need advice and signposting

Support available via the Local Authority
SEN consultant, Autism and Social Communication: SEN Advisory Service SENAS)

Respond to referral by any Trafford school for child or young person with social communication concerns with or without a diagnosis of autism, whether family wish to seek a diagnosis or not. Observation, offer advice (including written advice), meetings with school staff and parents/carers etc.

Training for whole staff/staff groups in schools in a variety of areas that are autism related

Regular autism friendly email updates shared with SENCos including material to be shared with families (including social events such as relaxed performances and museum early openings) as well as material to use in the school.

Signpost schools to the free Greater Manchester Autism Consortium webinars for parents/carers. Autism seminars for families | gmac (autismgm.org.uk)

Autism in Schools

Aims to reduce inappropriate educational exclusions and hospital admissions for children and young people with learning disabilities, autism spectrum conditions (ASCs) and/or challenging behaviour.

This is a transformation programme which is being co-produced with Trafford Parent Carer Forums and support parent groups in schools which provides modules and learning to school staff to help them understand the needs of autistic students and, where possible, make reasonable adjustments within the school environment.

AiS also promotes the voice of autistic children through 'Understanding Me' helping young people and their families understand the young person autism.

In Trafford, this is being developed with Trafford Parents Forum and will be rolled out in 3 Schools:

Moorlands Junior School

Lostock High School

Wellington High School

Direct parent support
Trafford Parent Carer Forum
Trafford Parent Carer Forum provide peer support, advice and information to parents and carers of children and young people.
Trafford Directory | Trafford Parents Forum Stronger Together Empowering Parents (STEP)
STEP are a support service within Trafford Parents Forum. They provide emotional and practical support and advice for parent/carers of children and young people with SEND in Trafford. They also have a team of trained volunteers who can act as mentors for parent carers. They pair mentors up according to the skills and experience they have and match them accordingly with parent/carers who could benefit the most from their support.
Trafford Directory | Stronger Together Empowering Parents (STEP) Trafford Special Educational Needs and Disability Information, Advice and Support Service (Trafford SENDIASS)
Provides impartial information, advice and support to children and young people aged 0-25 with SEND, as well as their parents and carers.

They can also support with:

The law around SEND

Education health care plans (EHCP)

Resolving any disagreements

Health and social care in relation to special educational needs provision

Transition post 16 - Preparing for adulthood

Personal budgets

Information on the Local Offer (Services and provision available for those with SEND)
Trafford Directory | Trafford SEND Information Advice and Support Service (SENDIASS) Trafford SEND Parent Carers Chatty Café
Supporting Trafford parents who have children and young people with SEN, disability and/or additional needs. They are a source of help, advice and support for parents, offering anything from a cup of coffee to the opportunity to meet other parents, leaflets and information to invitations to training events and conferences.

Families with a child or young person 0 to 25 years.

Telephone - 0161 912 1053

E-mail - sarah.bradley@trafford.gov.uk
Pacts Stockport
A collection of webinars on a range of subjects, which have been shared by Stockport and are be accessed by families.
https://pactstockport.co.uk/webinars/
Getting Help - for those who need focused and specific help

Direct parent support
Special Educational Needs Advisory Service (SENAS)

provide school parent/carer group support- one Primary as a trial, moving on to wider online offering soon.

Co-delivering sensory workshops with OT colleagues to parents/carers on the waiting list for sensory referral

Informal discussions with parents/carers about support for children- signposting, sharing material etc.

Deliver training for groups of parents/carers e.g., on Zones of Regulation.

Special Educational Needs Advisory Service (SENAS) / Portage Service | Trafford Directory
Greater Manchester Autism Consortium
Post diagnostic workshops for parent carers - free webinars designed for parent/carers of children diagnosed with Autism Spectrum Condition (ASC).
HOME | gmac (autismgm.org.uk) Education Psychology
The service offers slots via their Facebook page for parents/carers to chat with them about any concerns they may have, including autism and social communication difficulties
Educational Psychology | Trafford Services for Education (traffordeducation.co.uk)
Support for Families, Children & Young People - Non-Commissioned Services
Spectrum Gaming
Spectrum Gaming is an online community for autistic young people which has three main intended outcomes, building friendships, increasing self-acceptance and advocacy.

Website - About Us | Spectrum Gaming
Autism Understood
A WEBSITE ABOUT AUTISM, FOR AUTISTIC YOUNG PEOPLE

Spectrum Gaming have made a website so that everyone can gain a better understanding of what autism is, since most people they meet seem a little confused about what autism actually is.
I AM Celebrating Autism in Greater Manchester
Offer a range of groups for different age groups (10+, 16+, 18+) including Information and Family Support, Roleplay Gaming Group, Life Coaching, and Aspirations Project which includes leisure and social activities.

Telephone - 0161 866 8483

E-mail - admin@i-am-autism.org.uk

Website - https://i-am-autism.org.uk/

Facebook https://www.facebook.com/IAMCelebratingAutisminGreaterManchester/

Twitter - https://twitter.com/ASGMAManchester
Ambitious Youth Network
Offer an online space to meet other autistic young people, take on paid opportunities, and join group panels. Ages 16 - 25 years

E-mail - participation@ambitiousaboutautism.org.uk

Website - Ambitious About Autism

Facebook - https://www.facebook.com/ambitiousaboutautism

Twitter - https://twitter.com/ambitiousautism
Disability Support Network - South Asian Family Health
Network for South Asian families offering parent/carer workshops to offer support and hare experiences and skills.

Telephone - 0161 870 2322, 07455 990719

E-mail - safh.group@gmail.com

Website - Disability Support Network - South Asian Family Health | Trafford Directory
KIDS SEND Mediation Service
Helps parents and young people resolve disputes about Education, Health and Care (EHC) needs assessments and Plans, as well as other SEND related issues. Ages 0-25 years.

Telephone - 03330 062 835

E-mail - senmediation@kids.org.uk

Website - https://www.kids.org.uk/send-mediation

Facebook - https://www.facebook.com/KIDScharity

Twitter - https://twitter.com/kidscharity
National Autistic Society North
Parent to parent emotional support service, includes the NAS Helpline which can provide parents with information and advice.

Telephone - 01254 888535

NAS helpline - 0808 800 4104

Parent to Parent Service - 0808 800 4106

E-mail - north.services@nas.org.uk

Website - https://www.autism.org.uk/
National Sleep Helpline
Free help line to support parents and CYP with sleep problems, have specialist who work within SEND.

Telephone - 0330 353 0541

E-mail - helpline@thesleepcharity.org.uk

Facebook - https://www.facebook.com/TheSleepCharity

Twitter - https://twitter.com/thesleepcharity
Navigate (Scope)
Six-week programme that aims to put parents in touch with a personal advisor, helping them to talk about their feelings and concerns.

Telephone - 0808 801 0510

E-mail - navigate@scope.org.uk

Website - https://www.scope.org.uk/navigate
Parents Connect
6-week support programme for parents and carers of young disabled people. Ages 0-18 years.

Telephone - helpline 0808 800 3333

E-mail - parentsconnect@scope.org.uk

Website - https://www.scope.org.uk/family-services/parents-connect/

Facebook - https://www.facebook.com/Scope/

Twitter - https://twitter.com/scope

Getting More Help - for those who need more extensive and specialist help
Riding the Rapids (RTR)
Professionals across Trafford including Early Help and clinicians are trained in RTR as well as staff in a small number of schools.

RTR is a ten week group intervention aimed at helping parents/carers of children with additional needs to positively understand and manage their child's behaviour, improving quality of life and equipping families with skills to take on their journey with them. Designed for parents/carers of children with learning disabilities and/or autism the group materials can be adapted to support parents/carers of children in specialist or in mainstream provision. The course is divided into different modules including:

understanding the function of behaviour that challenges

making environmental changes to support positive behaviour

developing strategies to promote positive behaviour based on this understanding

promoting positive attachments through better communication and play

supporting parents/carers self-care and promoting parental coping and wellbeing.

Based on well researched principles of functional analysis, the course aims to give parents/carers strategies to help them in that moment in time, as well as skills they can apply to future challenges.

Email - Emma.bamlett@trafford.gov.uk

Jag.Vickers@trafford.gov.uk

Janette.Crump@trafford.gov.uk

Telephone - 0161 912 5020 Stretford Early Help Hub

0161 912 2122 Partington Early Help Hub

Website - Parenting Courses
Sleep support
The Together Trust are commissioned to provide a Sleep Tight Trafford offer one-to-one sleep clinics for local parents and carers of children aged 2-18 years in Trafford. There are trained practitioners available to support children who have an autism or an ADHD diagnosis. Children without a diagnosis are able to access this service between the age of 2-18.

Telephone - 0161 286 4201

Website - Sleep Tight Trafford | Together Trust
Get Out There - Trafford Holiday Club - Short Breaks by SENSE
Group supporting children with a diagnosis of autism, run in school holidays. The group helps children with socialisation with a range of activities so children can choose individually or join a group activity.

Telephone - 07402 017242

E-mail - Judith.Archer@sense.org.uk

Website - Get Out There (GOT) Trafford Holiday Club - Short Break by SENSE | Trafford Directory
Sense | For people with complex disabilities
Facebook - http://www.facebook.com/senseuk

Twitter - http://www.twitter.com/sensecharity
Sport Works and Gorse Hill Studios Inclusive Saturday Challenge - Short Breaks
Supported by Trafford Council and delivered in partnership with Gorse Hill Studios. These are fun, relaxed and totally inclusive sessions designed to increase social skills, healthy habits and give children new experiences.

Sport Works provides engaging and stimulating sessions of mixed activities some developing skills in leadership, group working, communication and organisation, examples of activities are; target hoops, basketball, boccia, dodgeball, tag rugby, hockey, cricket, gymnastics, Danish cricket, tag rounders, street dance, cheerleading, non-contact martial arts, rock climbing, volleyball, new age Curling, bean bag ball and many more.

At the same sessions Gorse Hill Studios provides mixed sessions based around creative arts and expressions, as such young people have a complete choice of which to do at each visit.

Gorse Hill Studios implements a rolling programme of innovative arts (Drama, Dance, Media, Visual Arts and Music) and youth work techniques to create and provide opportunities, empower participants, increase wellbeing and potential. The group explores and identifies a theme for each session that culminates in a series of skills sharing and show back events.

At the end of the day it is about 2 things; making children enjoy themselves and to offer parents/carers a short break!

These sessions also run during the school holidays throughout the week.

Telephone - 07539 851326

E-mail - jon@sportworksltd.co.uk

Website - Sportworks website

Facebook - https://www.facebook.com/swmcrandcheshire/

Getting Risk Support through Transforming Care Agenda
Dynamic Support Database

Dynamic Support Database (DSD) used to identify children and young people with Autism (diagnosed) and/or Learning Disabilities who present with an increase in challenging behaviour and significant risk of admission to a Tier 4 hospital and/or residential placement - Parents / Carer, professionals from health, social care or education can put a child or young person's name on this database (consent needed).

The DSD is used by clinicians and commissioners to monitoring risk and offer support to children, young people and their families to prevent admission to hospital and 52 week residential care and to remain in the community.

Other useful sources of support

Trafford Independent Travel Training - offer training to young people on how to get to and from school by themselves, as well as preparing them for other journeys they will want to make as they get older.

Trafford Carers Centre - provides information and support to carers, completes carers assessments and carer health checks. The autism carers group meets on a regular basis.

Talkshop - specialist advice and information service for young people aged between 13 and 19 years old.

Connexions Trafford Connexions is a service for young people in Trafford aged 13-19 (or 25 if they have disability). They offer support in relation to education and employment. They provide support from qualified Careers Advisors.
Social Care
Adult Social Care (Complex Care), to support smooth transitions, assessment and reassessment.

Community Care Assessments If you are an adult and have a diagnosis of autism you are legally entitled to an assessment under the Care Act (2014).

Children's Complex Needs Team (CAN), can carry out social care assessments and provide access to specialist support for eligible children

Trafford Early Development Service, supports children and their families through Portage developmental play sessions.
Health
Learning Disability Health and Wellbeing - a section of the Local Offer dedicated to Learning Disability Health Checks

Health Passports - It can be helpful to provide a Health Passport for hospital staff to avoid repeated questions and queries on how best to support you during your stay in Hospital.

Community Learning Disability Team - Children, support services for Children and Young People up to the age of 18 who have significant and enduring learning disabilities with additional and complex needs

Community Learning Disabiity Team - Adults, health support for people over the age of 18 who have a learning disability

Community Paediatric Team - specialist children's doctors with training and expertise in developmental paediatrics and disability

Community Therapy Service - includes Physiotherapy and Occupational Therapy

CAMHS - service for children and young people who are experiencing mental health difficulties

Speech and Language Therapy Service for children and young people - a team of Speech and Language Therapists and Speech and Speech and Language Therapy assistants who assess, diagnose and treat people who have speech, language and communications needs and feeding difficulties.
Education
Education, Health and Care (EHC) Assessment Team - manage the EHC assessment process
Employment
Job Centre Plus - Disability Employment Advisor, Stretford

Job Centre Plus - Disability Employment Advisor, Alexandra Park

Job Centre Plus - Disability Employment Advisor, Altrincham

Pure Innovations - provide formal autism/disability training in the workplace and supported internships

United Response - support for adults with Learning Disabilities and Autism to gain employment
Housing Support
Greater Manchester Autism Consortium Housing Resources provides guidance for autistic and learning disabled people who need help with renting a home or due to threat of eviction. There are also guides for private landlords, housing support organisations and housing association landlords to supporting autistic and learning disabled people.
Information
The National Autistic Society has produced information for parent carers after a diagnosis has been reached:

Support for adults with autism

Trafford Extended Service post diagnosis group for Adults - autism diagnosis service, with focussed post-diagnostic and group support

CEA Cinema Card - if you are claiming certain benefits you may be eligible for a CEA card which allows you to obtain one free ticket for the person who is accompanying you to enable you to visit the cinema.

Empower You! - exercise sessions for people with learning difficulties and autism

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Trafford Directory | Autism Hub Trafford

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Here you will find information advice and local support service for people with autism, parent carers of children or young people with autism and those who work with them. In addition to the services listed below you can find many more services, activities, things to...

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The focused support team are a team that specialise in offering reasonable adjustments and hospital support for children and there families across all Manchester hospitals.

Contact the team if your child has an upcoming hospital appointment that you need support for.

Contact Information:

Contact Number: 0161 701 5504

Email address: FSTLDA@mft.nhs.uk.

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Trafford Sleep Services offer a sleep webinar that parents or professionals can refer to, as well as guidance sheets for sleep support

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Sleep is something that we all take for granted, it is only when we don't get a good night's sleep that we realise how important it is for our health and wellbeing.

Sleep problems are very common in children, especially children with SEND. For some families the sleep problems are short lived but for others their child's sleep problems can last for years and they can have a devastating impact on the whole family - leaving parents feeling exhausted and unable to function properly during the day.

Every child is different, and each family has its own needs and preferred parenting styles, but if you want to make changes to how your child sleeps, we are here to help.

Sleep is a highly complex process which is affected by many aspects of our daily life, such as what we eat and drink.

Parents can join one of our webinars to find out how to make simple changes that can have a big impact on how your child sleeps.
Parent carer webinars
We provide parent webinars tailored to the age of their child and a webinar specifically for parents of children with additional needs:
Trafford Contact Us - Sleep and Therapy Services 1:1 clinic appointment for Children with EHCP or a named worker
To access this service your child's named case worker or other professional can make a refer by sending an Early Help Assessment or a Trafford Team Together form to Trafford@sleepandtherapyservices.co.uk

A specialist sleep practitioner will contact you to arrange an appointment.

The appointments will be for the parent or carer and will be on Teams.

Appointments will usually last about 1 1/2 hours.

The specialist sleep practitioner will ask you about your child and the types of sleep problems that they have.

As every child is different and you will be provided with a personalised sleep plan, tailored to meet the needs of your child.

Who to contact

Who is it for?

Ages

Eligibility Details

If you live in Trafford and are a parent or carer of a child aged 2 to 18 years who has sleep problems you can join a webinar to access free help and support.

To access a 1:1 clinic children have to have an EHCP or a named worker.

Details

Trafford Sleep Services is a commissioned service provided by Trafford Council and is free for residents of the borough whose children have sleep difficulties.

Referral Required?

Yes

Referral Details

No referral is required to access the webinars.

To access a 1:1 clinic, your child's named case worker or other professional can make a refer by sending an Early Help Assessment or a Trafford Team Together form to Trafford@sleepandtherapyservices.co.uk

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Trafford Directory | * Trafford Sleep Services

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Sleep is something that we all take for granted, it is only when we don't get a good night's sleep that we realise how important it is for our health and wellbeing. Sleep problems are very common in children, especially children with SEND.

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Support and Advice from The Children's Bowel and Bladder charity, specific for children with additional needs.

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Support and advice for children who may have toilet fear or anxiety

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Many people, of all ages, find toilets unpleasant and sometimes worrying. It is particularly common in children and can impact on their bowel and bladder control and function.

It is important to recognise toilet anxiety or toilet phobia in children and the effect it can have on them, so that they can be supported to overcome their fear. This can avoid further problems developing and focuses on the underlying cause.

What is anxiety?

Anxiety is the emotional response to an unfamiliar or alarming situation, and is linked with physical changes in the body. It is a normal response which can help us learn and adapt - you may have heard it described as 'flight or fight'.

It can sometimes be fun and exciting, such as in stories like 'Going on a Bear Hunt' or whilst watching films, like Star Wars. New situations can often make children anxious, but this feeling usually reduces quickly and they start to feel better.

What is toilet anxiety?

Toilet anxiety, toilet phobia or paruresis may be triggered by an unpleasant experience, such as a noisy or smelly toilet. Children might remember this each time they go - leading to an association of anxiety with going to the toilet. They may also start to hold in wee or poo to avoid using the toilet.

This can lead to constipation as the poo is not let go and this can result in a large uncomfortable poo, causing even more increased anxiety. Memories of an unpleasant or painful poo, following constipation can last for a long time, even if the poo has returned to normal so the anxiety may continue.

Anxiety following an unpleasant experience can be hard to forget and overcome. It can also continue to affect children's confidence and behaviour.

Fear of toilets is often about the unknown, and may be linked to imagined monsters and scary things, snakes in the toilet, and dangerous germs (Toilet cleaners 'kill all known germs' after all!).

Physical effects of anxiety

These may include:

Nausea and stomach ache

Rapid shallow pulse

Rapid shallow breathing (even triggering an asthma attack if children have this).

Headaches

Wee and poo accidents

Faints

Emotional effects of anxiety

These might include:

Panic attacks

Tantrums and meltdowns

Withdrawal

Freezing

Sleep problems and nightmares

Irritability

Clinging

Distress and exhaustion

Denial and resistance to engage with the problem

Possible causes of toilet anxiety

New, unfamiliar toilets

Constipation and/or a painful poo

Soreness and skin inflammation round the anus or round the urine outlet

Different clothes e.g. pants which may be different and feel strange

The sensation of wee and poo coming out and losing part of yourself

Splash back from the toilet

Will it stop?

Feeling that they could fall into the loo

Background factors

Individual personality

Family changes and stress e.g. new baby, moving house

Potty training (this is the first time a child needs to actually engage with their wee or poo)

Starting school and/or nursery
Being denied access to the toilet at school

Being called names or bullied

Inability to cope with new situations

Trauma

Health issues

Developmental conditions e.g. autism (ASD)

Children with concentration difficulties (ADHD,ADD)

Sensory factors

Many children may be upset by too much sensory stimulation including:

Visual - bright lights, reflections, glare

Hearing - echoes, sounds of toilet filling and/or flushing, hand driers

Touch - the feeling of the toilet seat, toilet paper, clothes being down round the legs

Smell - highly perfumed bathroom products and cleaners, the smell of poo

Balance - feeling of unsteadiness especially on a strange or different toilet

Proprioception - understanding where your body is in space and in relation to the toilet

Interoception - understanding and feeling the sensations from inside the body, including sensations from bowel and bladder activity

Responding to sensory factors

Analyse the toilet environment

Reduce the amount and impact of unpleasant sensations

Make the bathroom familiar and friendly, with games music and pictures

Provide distractions and more stimulation for those who need it

Our sensory factsheet has lot more information on supporting children with sensory needs.

How to stop toilet anxiety in children

Accept and recognise the child's anxiety and analyse the factors contributing to this.

Check bowel and bladder function. Many children are constipated too and that will need treatment before progress can be made. See our advice for children with constipation for more information.

Build confidence with other activities and skills e.g. washing hands, putting on socks, being helpful

Break up the task into small, easy steps that can be gradually built on

Use predictable routines

Distraction

Try to make toileting fun

Talk to the child about anxiety

Some things to try

Music and songs

Videos which explain how toilets work

Tactile activities e.g. fiddle toys, putty, play dough

Joke book - laughter is a great way to relax children

Visuals e.g. kaleidoscopes, spinning danglers

Gentle massage, tummy, feet or hands

Sounds e.g. waves, music, bird song

Slow, deep breathing

Thinking about a favourite place or activity

Using rewards

Reward effort as much as success

Keep rewards small and fun

A lucky dip box

Activities and targets for older children

Peace and quiet may be preferred by some children.

Things to avoid

Giving unrealistic targets

Asking too many questions- use "I wonder what..."?

Getting cross - but you can be cross with the wee and poo coming out in the wrong place! Talk about how annoying it is that the wee/poo is misbehaving again, and how you and the child will have to teach it how to behave.

Other things to consider and try

It's always important to consider and assess anxiety

Try to see the situation from the child's perspective

Toilet anxiety may be linked only to toileting activities

Anxiety improves with experience and familiarity

Parents and carers need support too, it is stressful dealing with an upset child

Consider and discuss school toilets

Make sure children get used to other toilets (these can be scored out of 10).

Remember: Anxiety usually improves with experience, support and growing up.

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Toilet anxiety and toilet phobia in children - ERIC

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Why the bathroom is frightening place for some children and how we can help them overcome their fears.

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Supporting Children who experience constipation. A 4minuite video with support and advice.

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A link for the Adult Learning Disability Team in Trafford should your child becoming older and needing a referral to Adult services.

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Adult Community Learning Disability Team - Trafford :: Cheshire and Wirral Partnership NHS Foundation Trust

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Our Community Learning Disability Team are a multidisciplinary health and social care team who support adults who have a diagnosis of a learning disability.

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A child with a learning disability should be having an annual health check from the age of 14.

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People with a learning disability often have poorer physical and mental health than other people. This does not need to be the case.
Annual health checks are for adults and young people aged 14 or over with a learning disability.

An annual health check helps you stay well by talking about your health and finding any problems early, so you get the right care.

You do not have to be ill to have a health check - in fact, most people have their annual health check when they're feeling well.

If you're worried about seeing a doctor, or there's anything they can do to make your visit better, let the doctor or nurse know. They'll help make sure it goes well for you.

Watch this film about annual health checks for people with a learning disability.

Who's eligible?

Anyone aged 14 or over who's on their GP's learning disability register can have a free annual health check once a year.

You can ask to go on this register if you think you have a learning disability.

The learning disability register is different from the register of social care needs managed by local councils.

Check with your GP practice if you or the person you care for is on the register.

How will it help?

You'll get to know your GP better, which will help if you ever do get ill.

Most health problems are simple to treat once you know about them.

Your GP can help stop you getting a serious health condition. This is better than waiting until you're ill.

You can ask your GP questions about your health, how you're feeling, your care or any medicines you take.

Your GP can give you information you need in a way that will help you.

How do you get an appointment?

Adults and young people aged 14 or over with a learning disability who are on the GP practice learning disability register should be invited by their GP practice to come for an annual health check.

What if my GP doesn't offer the annual health check?

Most GP surgeries offer annual health checks to people with a learning disability. However, GP surgeries don't have to offer this service.

If your GP surgery hasn't offered you an annual health check, you can ask them if they could provide one. If they say no, ask your local community learning disability team for advice. They should be able to help you access an annual health check.

Find local learning disability services.

What happens during the annual health check?

During the health check the GP or practice nurse will:

do a physical check-up, including weight, heart rate, blood pressure and taking blood and urine samples

talk to you about staying well and if you need any help with this

ask about things that are more common if you have a learning disability, such as epilepsy, constipation or problems with swallowing (dysphagia)

talk to you about your medicines

check to see if your vaccinations are up to date

if you have a health problem such as asthma or diabetes, the GP or nurse will check how it's going

check to see if you have any other health appointments, such as physiotherapy or speech therapy

ask if family and/or carers are getting the support they need

help make sure that things go well when children move to adult services at the age of 18

If your learning disability has a specific cause, the GP or practice nurse will often do extra tests if there are any other health risks.

For people with Down's syndrome, for example, they may do a test to see if the thyroid gland is working properly.

You'll be asked for your consent (permission) to share information with other services that provide your care. This will help you get the right support if you go to a hospital, for example.

The GP or practice nurse will also give you health information, such as advice on healthy eating, exercise, contraception or stopping smoking.

Making reasonable adjustments for you

A reasonable adjustment is when somebody changes how they do things to make it better for you.

People with a learning disability have a legal right for reasonable adjustments to be made so they can get the same benefits from healthcare services as everyone else.

Ask your GP if you need any reasonable adjustments, such as:

using pictures, large print or simpler words to say what's happening

booking longer appointments

putting an appointment at the beginning or end of the day, if you find it hard to be in a busy waiting room

The reasonable adjustments you need should be written down in a health profile or health action plan that the GP or nurse can use.

Do you have to have an annual health check?

No. All parts of the health check are voluntary.

Anyone who's having the health check, or their carer, can ask the GP or practice nurse for more information about the process.

The person can then give their consent before any tests or procedures are done.

Is it the same as the NHS Health Check?

No. The NHS Health Check programme is for all adults aged 40 to 74.

It assesses their risk of heart disease, stroke, kidney disease, diabetes and dementia every 5 years.

Find out more about the NHS Health Check.

How many people have the annual health check?

From 2016 to 2017, about 53% of people with a learning disability who are on their GP's learning disability register had a health check. This means just under half of people who are on the register did not have a health check.

However, not everyone with a learning disability is on their GP register, so even more people who could benefit from the free annual health check are missing out.

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Learning disabilities - Annual health checks

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People with a learning disability often have poorer physical and mental health than other people. This does not need to be the case. Annual health checks are for adults and young people aged 14 or over with a learning disability.

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A easy read booklet about what a Annual Health check is

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Often people are unsure of the difference between a learning disability and a learning difficulty.

Here is a definition explained by people with a Learning Disability

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A learning disability is a reduced intellectual ability and difficulty with everyday activities. There are three different types mild, moderate and severe.

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There is a strong link between communication difficulties and a child showing behaviours of concern, here is some information from bild (British Institute for Learning Disabilities) regarding effective communication,

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Transitioning to Adult Learning Disability Health information booklet

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Trafford -  LD Health transitions info -pdf

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A blank Health Action Plan document

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A Library of Easy Read guides created by Mencap.

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Guidance on how to use a child's sleeping space effectively.

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Advice on the difference between what asthma can look like and how this is different to a panic attack.

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Useful resource for your child to raise awareness about their triggers and asthma management plan.

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Trafford Thrive - Mental Health and Emotional Wellbeing

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Trafford Thrive - Mental Health and Emotional Wellbeing

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The TLCO homepage has links to all services offered by Trafford Local Care Organisation

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Providing your NHS Community Health Care & Adult Social Care Services in Trafford

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SENDIASS provide free, confidential, impartial advice and support to parent carers, children and young people aged 0 - 25 in relation to Special Educational Needs and Disability (SEND) who live in Trafford

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Coronavirus (Covid-19) update

Trafford SENDIASS is still open during the coronavirus outbreak. Our staff is working remotely, and you can call us on 0161 912 3150 or email sendiass@trafford.gov.uk and we will get back to you.

Why not follow us on social media?

You can find the latest updates and information on our Facebook and Twitter pages.
Trafford Special Educational Needs and Disability Information, Advice and Support Service (Trafford SENDIASS) provides impartial information, advice and support to children and young people with SEND, as well as their parents and carers.
We provide free, confidential, impartial advice and support to parent carers, children and young people age 0-25 in relation to Special Educational Needs and Disability (SEND) who live in Trafford.

We can also support you with:

The law around SEND

Education health care plans (EHCP)

Resolving any disagreements

Health and social care in relation to special educational needs provision

Transition post 16 - Preparing for adulthood

Personal budgets

Information on the Local Offer (Services and provision available for those with SEND)

The work we do is underpinned by The Children and Families Act 2014 and the SEND code of practice, which are intended to strengthen the participation of parents, children and young people.

Trafford SENDIASS is available all year-round on 0161 912 3150, our helpline is open from 9am to 12 noon, Monday to Friday. We also have a 24-hour answer machine, and if you leave us a message we will aim to get back to you within three working days.

You can also contact us using our online referral form.

If you need to speak to somebody outside our office opening hours, you can also call the national helpline run by Contact on 0808 808 3555 which is open from 9:30am to 5pm, Monday to Friday.

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Trafford SENDIASS is still open during the coronavirus outbreak. Our staff is working remotely, and you can call us on 0161 912 3150 or email sendiass@trafford.gov.uk and we will get back to you. Why not follow us on social media? You can find the latest updates and information on our Facebook and Twitter pages.

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Children’s palliative care is about promoting the best possible quality of life and care for every child with a life-limiting or life-threatening condition and their family. Giving families real choice has been key to this approach: a choice of place of care; a choice of place of death; and a choice of emotional and bereavement support.

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Children's palliative care is about promoting the best possible quality of life and care for every child with a life-limiting or life-threatening condition and their family. Giving families real choice has been key to this approach: a choice of place of care; a choice of place of death; and a choice of emotional and bereavement support.

What is children's palliative care?

Palliative care for children and young people is an active and total approach to care, from the point of diagnosis, throughout the child's life, death and beyond. It embraces physical, emotional, social and spiritual elements and focuses on the enhancement of quality of life for the child or young person and support for the whole family. It includes the management of distressing symptoms, provision of short breaks, care at the end of life and bereavement support.

Palliative care can be introduced at any point throughout a child's life; it is completely individual. Some children may require palliative care from birth; others only as their condition deteriorates. Families may also vary as to whether they wish to pursue treatments aimed to cure or significantly prolong life. In practice, palliative care should be offered from diagnosis of a life-shortening condition or from recognition that curative treatment for a life-threatening condition is not an option. However, each situation is different and care should be tailored to the child.

The Together for Short Lives Charter  was developed with families and sets out 10 key things that children and families should expect from their local children's palliative care services. Based on the underlying principles of dignity and respect the Charter is a key reference to help understand what children's palliative care should strive to look like: trying to ensure that all children and families receive appropriate palliative care underpins all the work that Together for Short Lives undertakes.

Supporting better care

Together for Short Lives is committed to ensuring that children with life-limiting or life-threatening conditions receive the best palliative care and support they can. Children's palliative care is provided by a wide range of professionals and services, and we provide information and resources to both families and professionals to help them navigate the system and achieve the best outcomes for children they can. Our website contains a host of information, and you can also contact our helpline for information.

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What is Children's Palliative Care - Together for Short Lives

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Children's palliative care is about promoting the best possible quality of life and care for every child with a life-limiting or life-threatening condition and their family. Giving families real choice has been key to this approach: a choice of place of care; a choice of place of death; and a choice of emotional and bereavement support.

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We provide respite and end-of-life care to more than 400 babies, children and young people across the North West.

We do this 24 hours a day, seven days a week, We never close to those who need us.

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Derian House Childrens Hospice - Providing respite and end-of-life care

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We care for more than 400 seriously ill babies, children and young people across the North West. We do this 24 hours a day, seven days a week. We never close to those who need us.

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Francis House supports approximately 2,000 people at any one time with respite care, homecare, sibling support, end of life care and emotional and bereavement support.

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Francis House Children’s Hospice provides a home from home where families receive professional care, support and friendship.

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When your child is diagnosed with epilepsy, education is likely to be one of your first concerns.

Many children, especially once their epilepsy is controlled by medicine, are unlikely to need any extra support. But some children will continue to have seizures and need medical or other support.

This information covers the ways in which the school should be supporting your child, and the laws behind that. If your child is moving on from school, we have information about the support they could get at college or university.

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Education and epilepsy - Epilepsy Action

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This information covers the ways in which the school should be supporting your child, and the laws behind that. If your child is moving on from school, we have information about the support they could get at college or university.

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Welcome

This guide is for people who work in schools or other educational settings. It provides wide-ranging information, guidance and educational strategies for supporting young people with epilepsy to ensure they are safe and included in all aspects of school life.

Schools should ensure each young person with epilepsy has an Individual Healthcare Plan (IHP) and that the school has a policy on supporting pupils with medical conditions.

Good communication between the school, parents and the young person plays a key role in ensuring the right support is in place.

All staff working with a young person with epilepsy should also be trained to understand the young person's condition and its impact on their life at school.

If you're a parent or young person, please share this guide with your school. We also have lots of useful information for parents onour website and for young people here.

About the Guide for Schools

This guide outlines the key elements of support.

You'll also find useful information on seizure types, triggers, treatments and first aid, keeping accurate seizure records, and emergency medication.

The guide has information on how epilepsy can impact on young people's learning, emotions and behaviour.

The guide also includes an overview on the different legal framework and guidance for each UK nation relating to medical conditions, disability and education, and special educational needs.

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This guide is for people who work in schools or other educational settings.

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We provide practical information for families and professionals about understanding and supporting children, young people and adults whose behaviour challenges.

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Claire

Malachy

Laura

The 2022 Learning from Lives and Deaths (LeDeR) report, which looks at the deaths of people with a learning disability and autistic people and aims to improve health and care, has been published. We send our condolences to everyone who has lost a loved one.

The government has published the final report by Baroness Hollins on the Independent Care, Education and Treatment Reviews programme, which aimed to move people with a learning disability and autistic people out of long-term segregation, alongside its response to this report

Charities and organisations have written to the Prime Minister about the omission of the Draft Mental Health Bill from the King's Speech

Do you support someone with severe learning disabilities and behaviours that challenge? We can help.

If you are involved in supporting people with severe learning disabilities and behaviours that challenge, we can help.

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Homepage for the Challenging Behaviour Foundation

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The CBF aims to improve the life opportunities and quality of life for people with severe learning disabilities and their families.

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Information provided by bild (British Institute for Learning Disabilities)

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Information leaflet for Riding the Rapids

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Advance Care Plans can be a really useful tool for families and the multidisciplinary team. This leaflet explains what they are used for.

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Understanding childhood constipation information booklet

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Support the whole family including parents, carers, the unwell child, brothers, sisters and grandparents. Support is hugely varied and depends on the needs of the family.

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Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

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Understanding childhood eczema information booklet

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Home toothbrushing

Even if your child has joined a supervised toothbrushing programme at their nursery/school, it is still important for your child to brush their teeth at home. Here are helpful tips on how to brush your child’s teeth at home:

Children with SEND (Special Educational Needs and/or Disability) may need opportunities to play and explore with a toothbrush to encourage them to use it as described. Allow your child to touch their face with it, use different tasting toothpaste to try and find one your child like.

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This page provide resources for early year settings for for delivering a supervised toothbrushing club.

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If your child's just been measured at school, the results can sometimes be surprising, but they're just a snapshot of your child's weight at that moment in time.

If you are worried, speak to your GP or school nurse for advice and support. You can also call the number on the results letter for advice and support.

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This is entirely up to you. The letter is sent to you, and the school will not tell your child the result.

Some parents decide to tell their children and talk about the changes they need to make together. Others decide not to, as younger children may be less able to understand, and it might be simpler to make lifestyle changes without talking to them.

If you decide to speak to your child, talking openly about weight can help to build trust and reassure your child that it is not something to feel ashamed about.

Here are some tips that can help you talk about weight:

avoid blame - focus instead on the healthy things you and your family can do

talk about weight in a kind and supportive way

talk about how weight is important for health, energy and what the body can do

teach your child that everyone deserves respect - whatever their body size, shape or ability

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Find out more about school height and weight checks, and how to check your child is a healthy weight. Plus tips and advice on easy ways to help your child move more and eat well.

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This is jointly provided by Community Paediatricians and Healthy Young Minds who provide Child and Adolescent Mental Health Services (CAMHS).

The pathway encourages schools to identify children with behaviour difficulties, address any learning and training needs, and put the appropriate behaviour strategies in place based on your child’s needs and without waiting for a formal diagnosis.

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There is a new ADHD pathway primarily for children aged between 6 and 18 years old. It includes a new service called Trafford Combined ADHD Service (TCAS).

This is jointly provided by Community Paediatricians and Healthy Young Minds who provide Child and Adolescent Mental Health Services (CAMHS).

The pathway encourages schools to identify children with behaviour difficulties, address any learning and training needs, and put the appropriate behaviour strategies in place based on your child's needs and without waiting for a formal diagnosis.
What to do initially
If you have initial concerns around your child's behaviour or learning, you should first speak to your child's school. A support plan will be developed and you will get help with behaviour strategies.

You may also be offered a parenting course.

If your child is home-schooled then you should speak to your GP.
Referral and Assessment Process
If your child does not progress as expected after receiving support through school, a referral should be made by the school's Special Educational Needs Co-ordinator (SENCO).

They will send the relevant information to support the assessment which will help to speed up the process.

Based on the referral information, the TCAS team will make an appointment with a Paediatrician, ADHD Nurse or with Healthy Young Minds, as appropriate.

For more information please see: Trafford Combined ADHD Service: TCAS
How can I explain to my child the reason for the assessment?
It would be useful for you to have a discussion with your child ahead of the assessment.

You should ask them to think about their strengths and difficulties and explain that all of us are good at some things and find other things more difficult, such as paying attention.

Explain that the doctor or nurse can help with the things that they struggle with.
What to expect from the assessment for ADHD?

A discussion with the doctor/nurse for information to be gathered, allowing you to express your concerns as well as exploring any additional difficulties, such as social communication and motor skills.

Information gathering from the school. This may have already been done if the school has completed the relevant forms. It will include questionnaires completed by the parent carer and teacher.

An appointment letter will be sent to you for your child to have a Qb Test. This is an ADHD assessment tool.

How long will the assessment take?
If all the information is complete and received in good time, the outcome of the assessment can be given at the first or second appointment.

This is usually within 18 weeks but it can take longer if the information gathered requires further investigation or the case is more complex.
Pathway Timeline Diagnosis and post diagnosis
If your child receives an ADHD diagnosis, treatment options will be discussed and agreed:

You will be invited to the ADHD parent workshop as behaviour modification strategies are the first line of treatment for children who have mild to moderate impairment. This will include learning how to teach your child to understand and self-manage their difficulties.

Notifying your child's school of the diagnosis so support can be given.

National guidelines recommend that medication for ADHD is reserved for children with severe impairment. Severe ADHD has an impact on learning, home life, social life or friendships. Behaviour modification strategies will also be used for those with a severe impairment.

If your child does not receive a diagnosis of ADHD:

This does not mean that your concerns are not valid but other conditions or causes of your child's behaviour difficulties will be considered.
This may require referral to other specialists, therapies or agencies for either assessment or general support and advice. TCAS will co-ordinate post-diagnostic support.
Children younger than 6 years

Although children can present at a young age with ADHD like symptoms, many are related to immaturity/delayed control of attention and impulsivity and this improves with age rather than having a disorder. It is therefore recommended to wait until they are older.

Diagnostic tools are not reliable for children under 6 years of age, and medication is not licenced. Side effects are also more common for this age group.

For young children, the focus of treatment and support is parent training courses and school based support.
More information can be accessed via a Health Visitor, although support will also be available from the School Nurse, SENCO, Early Help Hubs or the Trafford Directory.

Trafford SEND local offer
You will find details of all the help and support available locally on the Special Educational Needs and Disability (SEND) local offer.
Some local sources of support:

Trafford Talkshop - Advice, information and health services for young people aged between 13 and 19 years old.

Stretford & Partington Early Help Hubs - Children's Centres that provide support for children aged 0-11 and their parents/carers.

42nd Street - Support young people aged 13-25 years with their emotional wellbeing through counselling, 1:1 support or groups.

Trafford Sunrise - Support for children aged 5-12 years in coping with stress and promoting emotional wellbeing.

Short Breaks - these range from going to local groups through to having specially trained carers coming to your home.

If you do not have access to the internet or need this information in a different format,
please contact Trafford Family Information Service on 0161 912 1053 or email fis@trafford.gov.uk
Useful websites

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Trafford Directory | Trafford Combined ADHD Service: TCAS

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About our Service There is a new ADHD pathway primarily for children aged between 6 and 18 years old. It includes a new service called Trafford Combined ADHD Service (TCAS). This is jointly provided by Community Paediatricians and Healthy Young Minds who provide Child and Adolescent…

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ADHD Educational Slides for Parents/Carers of Newly Diagnosed Children 

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ADHD Educational Slides for Parents/Carers of Newly Diagnosed Children 

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Slides as used in the parent workshop.

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Video that is referenced by the ND Nurses in the ADHD educational slides.

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Information and links offering advice and support.

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What we do

Trafford children and young people can now benefit from a Children and Young People’s Interim Mental Health offer delivered by the Barnardo’s MyTime Trafford service. The offer is open to children aged 5 to 13 years with mild to moderate emotional difficulties.
Barnardo’s provide services that will support children and young people who live in Trafford to grow up with healthy minds, feel confident and resilient and fulfil their potential.
Support will be provided through small therapeutic groups delivered across the borough with access to individual counselling available in exceptional circumstances.

MyTime Trafford | Barnardo's

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MyTime Trafford Info - Professionals PDF