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why not - not sure how to engage with the patients (confidentiality)

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why not - not sure how to engage with the patients (confidentiality)

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In a service evaluation I held a family feedback forum and worked with a parent and child in designing how that should run. Also did a questionnaire for hospital staff.
Have done a lot of PPI consultation in design of my PhD

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I have done some co-production. Developing logic model of a problem and logic model of change. Planning to involve people from the same group in SR

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I have done some co-production. Developing logic model of a problem and logic model of change. Planning to involve people from the same group in SR

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Yes but find it harder with professional stakeholders - the logistics of getting everyone together

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Yes but find it harder with professional stakeholders - the logistics of getting everyone together

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Not yet - it is difficult to distribute roles and tasks, work out power balance, and also work out suitable deadlines for all

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Not yet - it is difficult to distribute roles and tasks, work out power balance, and also work out suitable deadlines for all

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not sure how to pay people for their time 

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not sure how to pay people for their time 

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Since beginning of the project - e.g. planning to engage service users in protocol development

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Since beginning of the project - e.g. planning to engage service users in protocol development

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designing the implementation strategy - ToC workshop

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designing the implementation strategy - ToC workshop

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helped to engage with wider population

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how to involve people early (in the proposal) when you don't have the funds secured yet to pay them 

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how to involve people early (in the proposal) when you don't have the funds secured yet to pay them 

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Want to re-engage after finished data collection - separate patient/carers group and separate professional group or try to combine?

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Want to re-engage after finished data collection - separate patient/carers group and separate professional group or try to combine?

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I'd clearly delineate in which tasks the parties can work autonomously (ie take decisions themselves), and what needs to be discussed collegially

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I'd clearly delineate in which tasks the parties can work autonomously (ie take decisions themselves), and what needs to be discussed collegially

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run written documents through reading level software

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run written documents through reading level software

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Sometimes there  might be a group of stakeholders that "rely" on others 

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Sometimes there  might be a group of stakeholders that "rely" on others 

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I have children aged 5-18 with different cognitive challenges in my study which adds complexity to any communication

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I have children aged 5-18 with different cognitive challenges in my study which adds complexity to any communication

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PPI members who need carers or support workers - having enough capacity either in terms of staff or funding to be able to support them

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PPI members who need carers or support workers - having enough capacity either in terms of staff or funding to be able to support them

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Current ethics framework is not fit for co-production

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As a frontline clinician we are very used to speaking to and working with our patients but it makes it hard when I am working as a researcher with the same group to separate out my roles

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As a frontline clinician we are very used to speaking to and working with our patients but it makes it hard when I am working as a researcher with the same group to separate out my roles

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don't have any experience but... can imagine the inclusive language being an issue. I was thinking of having someone with lived experience on the academic team. Also to avoid stigmatising language

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don't have any experience but... can imagine the inclusive language being an issue. I was thinking of having someone with lived experience on the academic team. Also to avoid stigmatising language

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understanding where the line between PPI and co-production - do you need ethical approval etc?

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understanding where the line between PPI and co-production - do you need ethical approval etc?

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Practitioners might want to prove their expertise has more weight. Co-production might turn to competition

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Practitioners might want to prove their expertise has more weight. Co-production might turn to competition

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With the design of the family feedback forum I asked the young person to formulate the questions - she came up with the same format as they use at school - 'what went well' and 'even better if'  - it worked really well  for gathering feedback about their experience of the service 

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With the design of the family feedback forum I asked the young person to formulate the questions - she came up with the same format as they use at school - 'what went well' and 'even better if'  - it worked really well  for gathering feedback about their experience of the service 

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In some contexts co-production is impossible. 

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In some contexts co-production is impossible. 

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organisational / institutional priorities - extend ARCS to the 4 nations 

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organisational / institutional priorities - extend ARCS to the 4 nations 

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Funders being tokenistic as well. Asking for co-production but wonting details of what the end result could look like.

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when the group you want to reach is really 'hard to reach' - if you can only get a few, is that enough or is that tokenistic?

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when the group you want to reach is really 'hard to reach' - if you can only get a few, is that enough or is that tokenistic?

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Organisations underestimating co-production costs