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I chose this book because I have a child in my class who is hearing impaired and wears hearing aids. This is new for me this year and she has been having a lot of struggles with class volume, anxiety, and other students not understanding why she has to wear them.

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Hearing Loss Organizations and Associations (asha.org)
Links to Other Resources on Hearing Loss | CDC

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Academy of Doctors of Audiology (ADA)

ADA is a membership organization dedicated to the advancement of practitioner excellence, high ethical standards, professional autonomy and sound business practices in the provision of quality audiologic care.

Academy of Doctors of Audiology
3446 E High Street, #10
Lexington, KY 40507

Phone: 866-493-5544
Email: info@audiologist.org

Academy of Rehabilitative Audiology (ARA)

ARA is a multidisciplinary organization composed of individuals whose professional work is dedicated to fostering and stimulating education, research, and interest in audiologic habilitative and rehabilitative components of hearing care.

Academy of Rehabilitative Audiology
P.O. Box 2323
Albany, NY 12220-0323
888-552-7441 (Fax)

Email: ARA@audrehab.org

Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)

AG Bell is a membership-based organization that works globally to ensure that people who are deaf or hard of hearing can hear and speak. AG Bell provides ongoing support, information, and resources for families.

Phone: 202-337-5220 (Voice) or 202-337-5221 (TTY)
Email: info@agbell.org

American Academy of Audiology (AAA)

AAA is a professional organization of audiologists that provides professional development, education, research, and public awareness of hearing and balance disorders.

American Academy of Audiology
11480 Commerce Park Drive, Suite 220
Reston, VA 20191

Phone: 703-226-1062
Email: infoaud@audiology.org

American Academy of Otolaryngology-Head and Neck Surgery (AAO-HNS)

AAO-HNS is the world's largest organization representing specialists who treat the ear, nose, throat, and related structures of the head and neck.

American Academy of Otolaryngology-Head and Neck Surgery
1650 Diagonal Road
Alexandria, VA 22314-2857

Phone: 703-836-4444 (Voice) or 703-519-1585 (TTY)

American Auditory Society (AAS)

The mission of AAS is to promote the translation of scientific discovery to clinical practice in hearing and balance disorders through multi-disciplinary interaction among members in clinical care, research, engineering and industry.

American Auditory Society
P.O. Box 779
Pennsville, NJ 08070

Phone: 877-746-8315
Email: amaudsoc@comcast.net

American Balance Society (ABS)

ABS is a professional organization of clinicians, technicians, researchers, students, and other professionals who have an interest in vestibular and balance sciences and the assessment, diagnosis, and management of patients with vertigo, dizziness and impaired balance.

Email: americanbalsociety@gmail.com

American Cochlear Implant (ACI) Alliance

The ACI Alliance is a not-for-profit organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness, and advocating for improved access to cochlear implants for patients of all ages across the United States.

ACI Alliance
P.O. Box 103
McLean, VA 22101-0103

Phone: 703-534-6146 (Voice)
Email: info@acialliance.org

American Society for Deaf Children (ASDC)

ASDC is a national organization of families and professionals committed to educating, empowering, and supporting parents and families of children who are deaf or hard of hearing. The ASDC helps families find meaningful communication options.

Phone: 1-800-942-2732 (ASDC)
Email: info@deafchildren.org

American Speech-Language-Hearing Association (ASHA)

ASHA is the national professional, scientific, and credentialing association for members and affiliates who are audiologists; speech-language pathologists; speech, language, and hearing scientists; audiology and speech-language pathology support personnel; and students.

Members: 800-498-2071 (Voice)
Nonmembers: 800-638-8255 (Voice)
301-296-5650 (TTY)
301-296-8580 (FAX)
Email: actioncenter@asha.org

American Tinnitus Association (ATA)

The mission of ATA is to find cures for tinnitus and hyperacusis. This nonprofit organization funds targeted research, provides education support for the tinnitus community, advocates for public policies that advance science toward cures, and collaborates with others to promote awareness and encourage prevention.

American Tinnitus Association
P.O. Box 424049
Washington, DC 20042-4049

Phone: 800-634-8978

Association of Adult Musicians with Hearing Loss (AAMHL)

AAMHL's mission is to create opportunities for adult musicians with hearing loss to discuss the challenges they face in making and listening to music; create opportunities for public performance; provide ongoing feedback to hearing health professionals; and provide educational opportunities.

AAMHL, Inc.
P.O. Box 522
Rockville, MD 20848

Phone: 301-838-0443
Email: info@aamhl.org

Association of Late-Deafened Adults, Inc. (ALDA)

ALDA serves as a resource center providing information and referrals, self-help, and support groups for people deafened as adults. ALDA works to increase public awareness of the special needs of deafened adults.

Phone: 815-332-1515 (Voice/TTY)
Email: info@alda.org

Association of Medical Professionals With Hearing Losses (AMPHL)

AMPHL aims to assist health care professionals with hearing loss by providing information, promoting advocacy and mentorship, and creating a network for individuals with hearing loss interested in or working in health care.

Boys Town National Research Hospital

Boys Town National Research Hospital's mission is to help heal America's children and operate the nation's leading clinical research center for childhood hearing loss and related disorders. Their website offers information on the causes of hearing loss in children as well as information on hearing testing.

The website babyhearing.org was created by the Boys Town National Research Hospital to answer parents' questions about infant hearing screening and follow-up testing, steps to take after diagnosis of hearing loss, hearing loss and hearing aids, language and speech, and parenting issues.

Boys Town National Research Hospital
555 N. 30th Street
Omaha, NE 68131

Phone: 531-355-1234 (Voice)

Center for Hearing and Communication (CHC)

The CHC provides high-quality, comprehensive services to empower people affected by hearing loss, deafness, or hearing challenges.

Phone: 917-305-7700 (Voice)
Email: info@chchearing.org

Coalition for Global Hearing Health

The purpose of the Coalition for Global Hearing Health is to improve ear and hearing health and the lives of people who are deaf or hard of hearing, especially those in low- and middle- income communities.

See Coalition for Global Hearing Health's Contact Us form.

Deafness and Family Communication Center (DFCC) at the Children's Hospital of Philadelphia

The DFCC is an organization dedicated to helping parents make better decisions for their deaf and hard of hearing children. Their website has information and resources on hearing loss in children from birth to teens.

Children's Hospital of Philadelphia
Deafness and Family Communication Center
3440 Market Street, 4th Floor
Philadelphia, PA 19104

Phone: 215-590-7440 (Voice) or 215-590-6817 (TTY)
Email: info@raisingdeafkids.org

Department of Health and Human Services, Centers for Disease Control and Prevention (CDC)

Educational Audiology Association (EAA)

EAA is an international organization of audiologists and related professionals who deliver a full spectrum of hearing services to all children, particularly those in educational settings.

Educational Audiology Association
700 McKnight Park Drive, Suite 708
Pittsburgh, PA 15237

Phone: 800-460-7EAA (7322) (Voice)
Email: admin@edaud.org

Hearing Health Foundation

Hearing Health Foundation's mission is "to prevent and cure hearing loss and tinnitus through groundbreaking research and to promote hearing health."

Hearing Health Foundation
575 Eighth Avenue, Suite 1201
New York, NY 10018

Phone: 212-257-6140 (Voice)

Hearing Loss Association of America (HLAA)

HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. Its national support network includes an office in the Washington, DC, area as well as 14 state organizations and 200 local chapters.

Phone: 301-657-2248 (Voice/TTY)

Ida Institute

The Ida Institute is an independent, non-profit organization working to integrate person-centered care in hearing rehabilitation.

Ida Institute
Egebækvej 98, 2850 Nærum
Denmark

Phone: +45 70227217 (Voice)
Email: contact@idainstitute.dk

International Federation of Hard of Hearing People (IFHOH)

IFHOH has charitable and benevolent aims and is an international, non-governmental organization. It helps hard of hearing or deaf people of all ages and their families. IFHOH also assists people who suffer from tinnitus, Meniere's disease, hyperacusis, and auditory processing disorders.

See IFHOH's Contact Us form.

Laurent Clerc National Deaf Education Center at Gallaudet University

The Clerc Center provides information, training, and technical assistance for parents and professionals to meet the needs of children who are deaf or hard of hearing. Its mission is to improve the quality of education afforded to deaf and hard of hearing students from birth to age 21 throughout the United States.

Gallaudet University
800 Florida Avenue, NE
Washington DC 20002

Phone: 202-651-5855 (TTY/Voice)
Email: clerc.center@gallaudet.edu

National Association of the Deaf (NAD)

Established in 1880, the NAD is the nation's premier civil rights organization of, by, and for deaf and hard of hearing individuals in the United States. The organization focuses on impacting future generations in the areas of education, employment, health care, technology, telecommunications, youth leadership, and more--improving the lives of millions of deaf and hard of hearing Americans.

National Association of the Deaf
8630 Fenton Street, Suite 820
Silver Spring, MD 20910

Phone: 301-587-1788 (ZVRS) or 301-587-1789 (TTY)

National Black Association for Speech-Language and Hearing (NBASLH)

NBASLH was incorporated in Washington D.C., June 30, 1978. The organization was established to provide a viable mechanism through which the professional needs of the Black professionals, students, and the communicatively handicapped community could be met.

National Black Association for Speech-Language and Hearing
191 Clarksville Road
Princeton Junction, NJ 08550

Phone: 609-799-4900 (Voice)
Email: nbaslh@nbaslh.org

National Black Deaf Advocates (NBDA)

NBDA is the oldest and largest consumer organization of deaf and hard of hearing black people in the United States. Black deaf leaders were concerned that deaf and hard of hearing African Americans were not adequately represented in leadership and policy-making activities affecting their lives, so they established NBDA in 1982.

National Black Deaf Advocates
P.O. Box 11032
Carson, CA 90746

See NBDA's Contact Us form.

National Center for Hearing Assessment and Management (NCHAM)

NCHAM serves as the National Technical Resource Center for the implementation and improvement of comprehensive and effective Early Hearing Detection and Intervention (EHDI) systems.

National Center for Hearing Assessment and Management
Utah State University, 2615 Old Main Hill
Logan, UT 84322

Phone: 435-797-3584
See NCHAM's contact information webpage.

National Cued Speech Association (NCSA)

NCSA supports effective communication, language development (international languages), and literacy in families with deaf, hard of hearing, or learning disabled infants, children, and youth through the use of Cued Speech.

National Cued Speech Association
1300 Pennsylvania Avenue, NW, Suite 190-713
Washington, DC 20004

Phone: 800-459-3529
See NCSA's Contact Us form.

National Hearing Conservation Association (NHCA)

NHCA is an organization representing audiologists, engineers, industrial hygienists, safety professional, physicians, nurses, and others who are who are dedicated to preventing hearing loss due to noise and other environmental factors in all sectors of society.

National Hearing Conservation Association
P.O. Box 3406
Englewood, CO 80155

Phone: 303-224-9022
See NHCA's Contact Us webpage.

National Institute on Deafness and Other Communication Disorders (NIDCD)

NIDCD is one of the institutes and centers that comprise the National Institutes of Health. NIDCD supports and conducts research and distributes information to improve the lives of millions of individuals with communication impairments or disorders.

National Institute on Deafness and Other Communication Disorders
National Institutes of Health
31 Center Drive, MSC 2320
Bethesda, MD 20892-2320

Email: nidcdinfo@nidcd.nih.gov

NIDCD Information Clearinghouse

The NIDCD Information Clearinghouse provides information and resources for health professionals, patients, people in industry, and the public. The NIDCD Clearinghouse collects, disseminates, and coordinates information and materials related to hearing, balance, smell, taste, voice, or language.

Phone: 800-241-1044 (Voice) or 800-241-1055 (TTY)
Email: nidcdinfo@nidcd.nih.gov

TDI Online (TDI)

TDI (formerly Telecommunications for the Deaf and Hard of Hearing, Inc.) is a national advocacy organization focused on addressing equal access issues in telecommunications and media for people who are deaf, hard of hearing, late-deafened, and deaf-blind.

See TDI Online's Contact Us form.

Vestibular Disorders Association (VeDA)

VeDA's mission is to inform, support, and advocate for the vestibular community.

Vestibular Disorders Association
5018 NE 15th Ave
Portland, OR 97211

Phone: 800-837-8428 (800-VESTIBU)
Email: info@vestibular.org

World Hearing Forum

The World Hearing Forum, part of the World Health Organization, is a global network of stakeholders promoting ear and hearing care worldwide.

World Hearing Forum
Avenue Appia 20
1211 Geneva
Switzerland

Phone: +41-22-7912111 (Voice)
Email: info@wchh.com

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Hearing Loss Organizations and Associations

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A list of organizations that focus on hearing loss including their contact information

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Will your teaching change when having a hearing-impaired student after reading this story?

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Have you ever felt like Cece like you were different, not understood, or didn't belong? How did you overcome it? Did someone help you get through it?

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How does Cece use pictures to show her experience?

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What can you do to help your class understand why this student needs these and ways we can help her not feel different without making that student feel embarrassed or ashamed?

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Do you think Cece was just being overly sensitive when it came to her friends or do you think it was her friends not understanding what is helpful and how to handle her hearing impairment?

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El Deafo is an autobiography. What are some of the risks when you are writing about yourself? What are some of the challenges when you are writing about other real people?

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If you were deaf, would you rather go to a school with only other children who are deaf, like Cece does in chapter three when she first starts school, or to a public school like Cece does later in the book?

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If you were the teacher in this book, how would you help Cece and how would you help her being in a setting like a public school? How would you address students who were upsetting Cece whether they were meaning to or not?

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At first, Cece didn't know that she was deaf. Do you think her parents should have told her? Do you think you should protect children with special needs or disabilities and not explain it to them? Why or why not?