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What is the hardest part of daily life with TSC?

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What is the hardest part of daily life with TSC?

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How does TSC affect your family, work, or emotional well-being?

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How does TSC affect your family, work, or emotional well-being?

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What do you wish doctors or researchers better understood about your experience?

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What do you wish doctors or researchers better understood about your experience?

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If researchers could focus on one thing, what would you choose? Why?

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If researchers could focus on one thing, what would you choose? Why?

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Start here and listen to the message from our research team. You can get in touch with us at: research@tuberous-sclerosis.org or comment any questions below

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Start here and listen to the message from our research team. You can get in touch with us at: research@tuberous-sclerosis.org or comment any questions below

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My family member/friend/colleague has TSC

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Please comment below whether you live in:

England

Wales

Scotland

Northern Ireland or

Outside of the UK

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What are the most important unanswered questions in TSC?

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What are the most important unanswered questions in TSC?

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Are there questions you’ve asked your doctor that didn’t have a clear answer?

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Are there questions you’ve asked your doctor that didn’t have a clear answer?

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Include any other comments you would like to make here

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Include any other comments you would like to make here

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Include any other comments you would like to make here

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Include any other comments you would like to make here