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This booklet explains the issues that young people with immunodeficiencies face in managing their condition during adolescence.

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Read the booklet here!

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Watch the webinar here!

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All IDFA members are welcome to join this Facebook group! It's a great place to ask for answers or insights. 

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IDFA Connect - for all members!

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Our self-advocacy tools are designed to help you communicate effectively with healthcare providers and understand your diagnosis and treatment options.

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Self Advocacy Tools                                   

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Self Advocacy Tools                                   

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Find the toolkit here!

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Watch the webinar here!

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Making changes to manage your fatigue is not giving in to being a ‘sick person’, it is finding ways to make things easier for yourself!

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Lifestyle series:                   Fatigue                  

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Lifestyle series:                   Fatigue                  

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Read more here!

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Watch the webinar here!

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Watch the webinar here!

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Hayley’s journey with immunodeficiency started as a teen when she became unwell with respiratory infections. Diagnosed with CVID at 24, Hayley now receives treatment for her immunodeficiency, sits on the IDFA board and National Patient Advisory Panel, and helps raise awareness through Australian Red Cross Lifeblood.

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Luke, diagnosed with CVID at 3, has managed to keep a relatively balanced lifestyle compared to many who have several co-morbidities and suffer regularly from fatigue and infections. Luke raised awareness and over $2,000 for IDFA through a fundraising when he completed the Perth Marathon. 

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IDFA's Deep Dives is our new digital content series designed to inform, inspire, and connect the immunodeficiency community. 

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IDFA Deep Dives                                    

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IDFA Deep Dives                                    

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Find out more!

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Vanessa was a relatively healthy child, but she began getting sick more frequently. When she took weeks or months to recover, even with antibiotics, Vanessa and her family knew something wasn’t right. 

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Read Vanessa's story here!

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Zoe (24) lives in a small country town in central Victoria, works as a registered nurse and is passionate about playing and coaching netball. Zoe was diagnosed with CVID at age 4 when her parents knew something wasn’t quite right as she spent her time in and out of hospital.

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Member-led Community Catchups? In-person Coffee Club? IDFA-led State Meetups or workshops? There's lots of ways to connect with other members. 

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Find upcoming events here!

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The IDFA Discord is a chill, low-sensory spot to chat life, health, or whatever’s on your mind. 

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Join our Discord Server!

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A WhatsApp group for our members to stay up to date and connected – super easy to use, right from your phone!

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Join our WhatsApp group!

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Circle of Support offers peer mentoring for members facing a new diagnosis or other significant challenges. 

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Find out more here!

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IDFA's Member Stories help us raise awareness of immunodeficiencies across Australia. If you're interested in sharing please reach out!

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Share your story                               

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Share your story                               

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Click here to email IDFA

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Getting IDFA resources into healthcare settings is an important part of raising awareness about immunodeficiencies and building our community!

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Find out more here!

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By becoming a Peer Mentor, you can make a meaningful impact while building connections within the IDFA community.

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Find out more here!