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Review of Caregiver (CG) Support

Intent of CG Support

- To mitigate caregiving stress, allowing sustainable caregiving journey

- Emotional, financial, mental, physical stress

- Use of mental well-being skill

Framework

2024's Outcome

- total of 81 caregivers in 2024.

- Objective of CG, to provide safe and therapeutic space for caregiver to share their exp and build an organic community of support

Feedback gathered from Caregivers:

- I got to learn new way for caregiver challenges

- Safe space for cg to interact and learn

- Learnt helpful strategies

- Enhance caregiver skills

- Make friend, draw support.

Survey finding:

- 17 participants, survey administered

CG Profile:

Age range 40-64 (avg), Mostly children caring for their parents, mostly CA dx

- Tertiary education lvl

- Caregivers are more educated

- more aware of pt condition thru research

- more curiosity about pt trajectory

Challenges faced by cg:

needing help with changing and draining stoma (practical caregiver needs)

Unable to communicate and understand pt's needs,

Frustration over non-medical compliance

Low awareness on resources

Feeling of burnt-out, anxiety, hopelessness

spirituality issues

feeling helpless

unaware of what to do for last rites

how to talk to patient about religion and spirituality matter

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Website

Use of chatbot on portal

FAQ on what most caregivers would ask

Simple checklist to filter needs

Pictorial form - more palatable

Resources

Last rites

Equipment rental

Means-test (?)

Caregiver videos for guide

Financial schemes

Community resource mapping

Private nursing & MET

QR code to be pasted around DPH vicinity

Tabs on website by broad category of framework

Self-care

Financial Support

Education & Training

Suggest for use of pictorial / video form to cater to Kinesthetic / Visual people

Spiritual

Artificial Intelligence

Use of chatbot to assess psychological distress (pick up nuances of "hopelessness")

Red flag triggered for survey to find out more

helpline provided as a first-aid

Providing caregiving resources

Voice to text input

Multiple language packs to tailor to different demography

"AI DPH"

How to refine info churned out by AI (Possible threats that needs to be mitigated)

Test out common questions asked

See if responses can be succinct

Accuracy of information

Form-filling (?) - Potential threat may be capturing sensitive info ??

"Log-in" idea

Interim bill idea ?