# data[].attributes.headline
There is no support - just left to our own devices to manage in extremely challenging circumstances

# data[].attributes.subject
There is no support - just left to our own devices to manage in extremely challenging circumstances

# data[].attributes.headline
There are no breaks from caring - it is 24/7 365 days a year

# data[].attributes.subject
There are no breaks from caring - it is 24/7 365 days a year

# data[].attributes.headline
GP's should provide advice about support available.  My GP is well aware of my caring responsibilities but has never offered any support or advice

# data[].attributes.subject
GP's should provide advice about support available.  My GP is well aware of my caring responsibilities but has never offered any support or advice

# data[].attributes.headline
Carers allowance needs to be increased to a reasonable amount to show the value of the service provided by the carer - it should be paid regardless of other income.

# data[].attributes.subject
Carers allowance needs to be increased to a reasonable amount to show the value of the service provided by the carer - it should be paid regardless of other income.

# data[].attributes.headline
Have a proper understanding of the impact of caring for a loved one 

# data[].attributes.subject
Have a proper understanding of the impact of caring for a loved one 

# data[].attributes.headline
I don't know anything about the support available

# data[].attributes.subject
I don't know anything about the support available

# data[].attributes.body
I have recently completed sixth form and unfortunately my secondary school were made aware that I am a Young Carer but offered no support- and some of my teachers were not even forwarded this information. The school preferred to comment on my lower attendance record than to offer me assistance. From my own experiences, carers don't get enough support in educational settings.

# data[].attributes.body
No, the burden on carers is huge. Not enough support - financial, emotional or practical help is there. Just lip service once a year in patronising messages from Izzi Seccombe and Monica Foggarty. Like a cup of tea is really going to cut it when you’re a full time family carer. Honestly! Wake up!

# data[].attributes.body
Ask me what I need, what would make a difference and deliver it without conditions. Do not undermine me or disempower me from making my choices. Do not remove my dignity by offering meaningless tidbits of ‘support’. Help me with paperwork when I can’t think straight. Understand I don’t want the burden or stress of managing hiring help. I need respite, support, understanding. I need to feel seen and accepted as I am.

# data[].attributes.body
Don’t have enough time. It’s exhausting. I can’t even imagine what I’d do with free time. It’s too overwhelming.

# data[].attributes.body
Carers allowance is ridiculous. Parent carers assessment is awful. And you have to keep going back to go through it again. Horrendous.

# data[].attributes.headline
Do Carers get enough support - no.  It's minimal - I only have experience of caring for someone with mental health problems but support has dwindled.  My son has a long term illness which mean he and I need long term support which at times has been sadly lacking and it has been a fight to get support for him when needed. Obviously this impacts on me and my wellbeing

# data[].attributes.subject
Do Carers get enough support - no.  It's minimal - I only have experience of caring for someone with mental health problems but support has dwindled.  My son has a long term illness which mean he and I need long term support which at times has been sadly lacking and it has been a fight to get support for him when needed. Obviously this impacts on me and my wellbeing

# data[].attributes.headline
Quality of life improvement - for me just someone to talk to who knows my situation can tell me what I am doing is ok - or not.  Financial help for one off needs. The fact I have been doing this for a long time doesn't make it easier 

# data[].attributes.subject
Quality of life improvement - for me just someone to talk to who knows my situation can tell me what I am doing is ok - or not.  Financial help for one off needs. The fact I have been doing this for a long time doesn't make it easier 

# data[].attributes.headline
Breaks - I am able to get away from time to time as my youngest son also lives with us.  A double edged sword as he has MS

# data[].attributes.subject
Breaks - I am able to get away from time to time as my youngest son also lives with us.  A double edged sword as he has MS

# data[].attributes.headline
Support - just something as simple as an email that says hello how are you doing.  From a person who knows me not an app would be really helpful.  I feel very isolated at times

# data[].attributes.subject
Support - just something as simple as an email that says hello how are you doing.  From a person who knows me not an app would be really helpful.  I feel very isolated at times

# data[].attributes.headline
Acknowledge that I'm here - what I do and listen to my concerns

# data[].attributes.subject
Acknowledge that I'm here - what I do and listen to my concerns

# data[].attributes.body
I do not think that there is enough help for carers - it is difficult to find out required information. I had a bad experience at Carers Trust - they wanted a key to obtain access to my property from a woman who only spoke broken english and she was very insistent about having a key. Our personal details were circulated after this conversation and we extremely worried about our bank details, personal medical records being circulated to all and sundry. It was a very worrying and upsetting time!

# data[].attributes.body
I have been trying for 4 month to obtain a chair to go over the bath and then lower the disabled person into the bath but without success. We are having to manage with a strip down wash so the patient gets chilled by the end of the session. This is not a good idea!

# data[].attributes.body
G.P surgeries does not seem to know how or where to get information to assist. The district nurse knows more and points in the right direction but with covid no further action has been obtained.

# data[].attributes.body
Why can't all the relevant services communicate with one another - instead of having to repeat oneself every time? This would not happen in private practice!

# data[].attributes.body
GPS & their reception & admin staff should recognise young carers & not be so dismissive because we are young. I was accused of just "doing a bit of shopping" when I tried to get my Covid jab when I am the primary carer for someone with stage 2 respiratory failure which is a 24/7 job.

# data[].attributes.body
Young carers need a card or something to prove they are the main carer for someone. We shouldn't be battling with hospital staff to get all the information we need to continue care at home after a stay in hospital & I shouldn't have to take my support worker from Young Carers with me to meetings with hospital social workers just so they'll take me seriously & treat me like I'm important in meeting my dad's care needs.

# data[].attributes.body
If I had a break it would be good if it was for more than a couple of hours. Sit in carers usually only come for 2 hours max & by the time I get to where I want to go I'm there a few minutes before my mum's texting me the carer's going & I'm rushing back.

# data[].attributes.body
I've struggled loads to get professionals to listen. It's a shame we have to go through our worker at WYC to get anyone to listen & take us seriously. If I didn't have them I think I'd be in prison now or something because it's so frustrating & I think I'd have flipped!

# data[].attributes.body
I would really like there to be more mental health support that you can get quickly because caring when you have mental health problems can mean the stress of caring makes your MH problems worse & we sometimes need immediate support from someone who understands the pressure on us.

# data[].attributes.headline
Good support in some schools, WYC support excellent wider support can be better...

# data[].attributes.subject
Good support in some schools, WYC support excellent wider support can be better...

# data[].attributes.headline
Assembly sessions about young carers would be useful to share the information on support. Posters are available but to talk about it would be good.

# data[].attributes.subject
Assembly sessions about young carers would be useful to share the information on support. Posters are available but to talk about it would be good.

# data[].attributes.headline
More publicity to reduce stigma, using different marketing, social media, ,bus adverts, regular campaigns through out the year for awareness raising...

# data[].attributes.subject
More publicity to reduce stigma, using different marketing, social media, ,bus adverts, regular campaigns through out the year for awareness raising...

# data[].attributes.headline
WYC Enhanced support for young carers accessing services, card discounts etc... would help

# data[].attributes.subject
WYC Enhanced support for young carers accessing services, card discounts etc... would help

# data[].attributes.headline
Mental health support is needed for young people with caring esp during covid...

# data[].attributes.subject
Mental health support is needed for young people with caring esp during covid...

# data[].attributes.headline
recognition of caring role for young carers in school and services, training for teachers to be more sensitive 

# data[].attributes.subject
recognition of caring role for young carers in school and services, training for teachers to be more sensitive 

# data[].attributes.headline
pastoral care in high school would good or having a go to person 

# data[].attributes.subject
pastoral care in high school would good or having a go to person 

# data[].attributes.headline
YC Share information  so not have to repeat myself to professionals and practitioners can be bit more approachable

# data[].attributes.subject
YC Share information  so not have to repeat myself to professionals and practitioners can be bit more approachable

# data[].attributes.headline
Having a named to go to that will advocate for me

# data[].attributes.subject
Having a named to go to that will advocate for me

# data[].attributes.headline
YC having a break I can be myself and act my age and hang out with friends or just a sleep in

# data[].attributes.subject
YC having a break I can be myself and act my age and hang out with friends or just a sleep in

# data[].attributes.headline
Before I start college I a exhausted as had to plan the whole day and not forget anything...

# data[].attributes.subject
Before I start college I a exhausted as had to plan the whole day and not forget anything...

# data[].attributes.headline
YP GPs can do better to understand young carers

# data[].attributes.subject
YP GPs can do better to understand young carers

# data[].attributes.headline
Pharmacies need more awareness, some professional distrust young people

# data[].attributes.subject
Pharmacies need more awareness, some professional distrust young people

# data[].attributes.headline
YC sometimes where you are from can be treated differently... want to be respected

# data[].attributes.subject
YC sometimes where you are from can be treated differently... want to be respected

# data[].attributes.headline
Having an award to work to by schools like the Gold Award for carers is really good

# data[].attributes.subject
Having an award to work to by schools like the Gold Award for carers is really good

# data[].attributes.headline
YC there is an expectation that we should be looking after family members lack of understanding of caring

# data[].attributes.subject
YC there is an expectation that we should be looking after family members lack of understanding of caring

# data[].attributes.body
From my perspective, as the carer to my 88yr old mother, no, there isn’t enough support. There’s certainly a lot of lip service from GP practices and various organisations, but no action to help people like me.

# data[].attributes.body
I’ve never had a break from caring in over 10yrs. It would be nice to go away for a weekend or a week, but that is impossible. My real break is when my mum goes to bed and I can watch some tv for an hour or so, after I’ve completed the cleaning.

# data[].attributes.body
I’m not recognised by the authorities as a carer who could get carers allowance because I work full time and get paid a certain salary.  Carers allowance should be paid to ALL carers, irrespective of their employment status.

# data[].attributes.body
No - there is never enough support at work.  You're stuck between having to take unpaid time off, or using up annual leave. What happens if we become ill and need time off?

# data[].attributes.body
Having someone to guide you through everything, especially during and after emergencies.

# data[].attributes.body
At the moment, I do have breaks but I know things will change in the future as my mum's health deteriorates. Already I can see that when family help out, all I want to do is sleep. Even making plans to go anywhere such as a holiday, take too much energy.

# data[].attributes.body
A central point, desk, contact number where you can call 24/7 and speak to a real person.

# data[].attributes.body
Not having to use up annual leave for appts etc, and then having no annual leave left for ourselves. It is a vicious circle.

# data[].attributes.body
Having an advocate, who can fight our corner when professionals just fob us off.

# data[].attributes.body
I agree with all of the above. Services working together so that we do not have to repeat ourselves would be a start.