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Here's How America Should Actually Be Treating People with Dementia

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Here's How America Should Actually Be Treating People with Dementia

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Article by Danielle DeCourcey. |  ATTN:

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Millions of people in the U.S. have a form of dementia, and that number is increasing rapidly. And that means more Americans will need facilities to care for them.

The Netherlands has a program that could provide a model for care: a dementia village.

We should help dementia patients the way the Dutch do.
Posted by ATTN: on Sunday, December 4, 2016

Dementia is an umbrella term for multiple diseases and conditions - including Alzheimer's disease - with symptoms that include memory loss and difficulty thinking or problem solving, according to the U.K. Alzheimer's Society.

There were 46 million people with dementia across the globe in 2015, and the number is expected to double by 2030.

What is a dementia village?

A dementia village, simply put, is a small town dedicated to the treatment of the dementia patients who live there. Other people in the village - the barber, the chef in the restaurant - are trained in specialized health care. Everything in the village is designed to ensure the safety of the inhabitants and to preserve their dignity and humane treatment.

The first dementia village started in the Amsterdam area in 2009 after two Dutch nurses decided they did not want to put their aging parents in extended care facilities, according to CNN. They built a community called Hogeway exclusively for people with severe dementia, which now houses about 160 such people.

Inhabitants can wander around at will: There's only one way in and out, and it's secured 24 hours a day. Residents are free to perform everyday tasks: grocery shopping, getting a haircut. They are continually supervised. Music and singing are encouraged (it has a calming effect).

CNN's Sanjay Gupta visited Hogeway in 2013 and approved:

"As things stand now, people with dementia are largely ignored. They live in nondescript buildings and anonymous wards with lots of white coats, nonstop blaring television, and superfluous sedation. But what if more of those wards could look like the picturesque village of Hogewey?"

The idea is spreading.

Dementia Village Advisors opened a community in Rome this year and another in Denmark last month: Svendborg converted an existing care center into a dementia village for up to 225 residents, according to the Danish news outlet The Local DK.

Canada created its own version of a dementia village last year.

Americans should pay attention.

Alzheimer's disease is the most common type of dementia. There is currently no cure for it, and as it progresses, people will need more daily care.

About 5.2 million people in the U.S. have Alzheimer's disease. Every state is expected to see at least a a 14 percent increase in cases by 2025, according to a report this year by the Alzheimer's Association.

But there are obstacles to developing dementia villages in the U.S.

Denmark, the Netherlands, and to a lesser degree Canada have much higher tax rates than the U.S. and offer residents much broader social benefits and health care services.

The U.S. doesn't. The Affordable Care Act, commonly called Obamacare, expanded health care coverage for more Americans, but many Republicans - including President-elect Donald Trump - would like to dismantle it.

My friend and fellow physician @RepTomPrice is a great pick for Secretary of HHS. Let's repeal Obamacare & fix our broken healthcare system
- Dr. Rand Paul (@RandPaul) November 29, 2016

Without some kind of government support, it's unlikely that dementia villages would gain much traction in the U.S.

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Here's How America Should Actually Be Treating People With Dementia

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Millions of people in the U.S. have a form of dementia, and that number is increasing rapidly. And that means more Americans will need facilities to care for them.

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An Essential Agenda for Americaʼs Young People - by the National Collaboration for Youth. | National Human Services Assembly

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A toolkit for local governments - by M. Scott Ball. | Community Housing Resource Center (CHRC) & Atlanta Regional Commission (ARC)

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Aging in Place - A toolkit for local governments

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Sustainable places for health and well-being - Research by Alexi Marmot Associates. | CABE (Commission for Architecture and the Built Environment)

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Designing and Building for Health, Well-being, and Sustainability - by Andrew L. Dannenberg, Howard Frumkin, & Richard J. Jackson.

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Making Healthy Places: Designing and Building for Health, Well-being, and Sustainability

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Making Healthy Places: Designing and Building for Health, Well-being, and Sustainability
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Architecture and Dementia - by Eckhard Feddersen & Insa Lüdtke.

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lost in space
~ Insa Lüdtke (author) More about this product

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A 'home from home’ in the Netherlands | Journal of Dementia Care

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Hogewey - 'a home from home’ in the Netherlands

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Dementia Village

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The Hogeweyk (part of Hogewey care centre. A weyk or wijk being a group of houses, similar to a village) is a specially designed village with 23 houses for 152 dementia-suffering seniors. The elderly all need nursing home facilities and live in houses differentiated by lifestyle. Hogeweyk offers 7 different lifestyles: Goois (upper class), homey, Christian, artisan, Indonesian and cultural. The residents manage their own households together with a constant team of staff members. Washing, cooking and so on is done every day in all of the houses. Daily groceries are done in the Hogeweyk supermarket . Hogeweyk offers its dementia-suffering inhabitants maximum privacy and autonomy. The village has streets, squares, gardens and a park where the residents can safely roam free. Just like any other village Hogeweyk offers a selection of facilities, like a restaurant, a bar and a theatre. These facilities can be used by Hogeweyk residents AND residents of the surrounding neighbourhoods. Everybody is welcome to come in!

Hogewey's view on care

Indonesian living room

Hogewey's view on care is founded in day to day life in society. In normal society living means having your own space to live and managing your own household. People live together with other people sharing the same ideas and values in life. This makes the place where one lives a home. Hogeweyk residents have already lived a life where they shaped their own life, where they made choices about their own household and standards. The fact that a resident cannot function "normally" in certain areas, being handicapped by dementia, does not mean that they no longer have a valid opinion on their day to day life and surroundings. The residents opinion on life, housing, values and standards determine their "lifestyle". There are 7 lifestyles defined in Hogeweyk: urban, artisan, Indonesian, homey, Goois, cultural and Christian. Every Hogeweyk home houses six to eight people with the same lifestyle. This lifestyle can be seen in the decor and layout of the house, the interaction in the group and with the members of staff, day to day activity and the way these activities are carried out. Every house manages its own household with a permanent staff. Another aspect of normal living is being able to move freely inside the house AND outside. A normal house in a normal village in a safe environment gives the residents of Hogeweyk this freedom in safety.

Awards

Hogewey was awarded several national and international prizes for the way care is organised at Hogeweyk.

The most prestegious awards for Hogewey:

* Winnaar van de Gastvrijheidszorg Award 2010 ("Hospitality Care" Award 2010)

* Nominatie voor Hedy d'Anconaprijs 2010, excellente zorgarchitectuur) (Nominated for the Hedy d'Ancona Award 2010, Excellence in Health care architecture)

* Gouden Kwaliteitskeurmerk van Perspect 2006 (Golden label for Quality by Perspect 2006)

* Project of the World, Expo 2000 Hannover

* International Hospital Federation Award 1995, for innovative management

* Dien Cornelissenprijs 1993 voor privacy in de verpleeghuiszorg (Dien Cornelissenprijs 1993 for privacy in nursinghomes)

Nomination Hedy d'Ancona Award

Nomination Hedy d'Ancona Award 2010

Molenaar&Bol&VanDillen are proud to inform the World that the Hogeweyk project is nominated for the Hedy d'Ancona Award <more on the Hedy D'Ancona Award>. A jury has nominated six projects for the Hedy d'Ancona Award for excellent health care archicture. The jury, headed by Ton Venhoeven, has selected six projects from the hundred and twelve submissions. The selection is very diverse: a small-scale work and housing project for people with mental disabilities in Noord-Holland, a conversion at the Brouwersgracht for the elderly, a large nursing home with an innovative care-concept, a care home in a building from the post-war reconstruction era, a multifunctional centre for rehabilitation in Arnhem and a nursing home in Weesp, designed as a self-contained village.

Ton Venhoeven, chairman, architect (VenhoevenCS), Government advisor on infrastructure

Frans Jaspers, boardmember UMCG

Durk Kooistra boardmember 's Heeren Loo

Jaap Roëll, former management director Cordaan

Dana Ponec, architect (Dana Ponec Architecten)

Elma van Boxel & Kristian Koreman, bureau ZUS (Zones Urbaines Sensibles)

Dorien de Vos, interior designer

The Hedy d'Ancona Award is a new prize in Dutch architecture and health care. The prize is awarded to health care buildings where urban design, landscape design, architecture or interior design support a care-concept. The Hedy d'Ancona Award is a joint project between the Stimuleringsfonds voor Architectuur (SfA) and the Centrum Zorg en Bouw of TNO. The Government Advisor on Building studio and the Health Department support the initiative

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The Hogeweyk (part of Hogewey care centre. A weyk or wijk being a group of houses, similar to a village) is a specially designed village with 23 houses for 152 dementia-suffering seniors. The elderly all need nursing home facilities and live in houses differentiated by lifestyle.

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Dementia Village

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This Dutch village was built for people with dementia

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A Public Health Priority. | World Health Organization (WHO)

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The Art and Science of Loving the Place You Live.

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this is where you belong: the art and science of loving the place you live

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place attachment - psychological aspects

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This Is Where You Belong: The Art and Science of Loving the Place You Live

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In the spirit of Gretchen Rubin's megaseller The Happiness Project and Eric Weiner's The Geography of Bliss, a journalist embarks on a project to discover what it takes to love where you liveThe average restless American will move 11.7 times in a lifetime. For Melody Warnick, it was m...

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This Is Where You Belong: The Art and Science of Loving the Place You Live
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Chapter Eleven: We Need To Support Every Child ― And We Need To Improve Our Health Together.

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Ending Racial, Ethnic, and Cultural Disparities in American Health Care

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Ending Racial, Ethnic, and Cultural Disparities in American Health Care

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How Childhood Trauma Affects Health Across A Lifetime

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How Childhood Trauma Affects Health Across A Lifetime

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By Nadine Burke Harris.

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How childhood trauma affects health across a lifetime | Nadine Burke Harris | TED

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The "Resilience Scale" and how environmental experiences influence health and learning.

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Center on the Developing Child at Harvard University

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