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Cancer Council Queensland

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Standard IPEPA placements involve a participant spending time in a specialist palliative care service.

Reverse IPEPA placements, where a specialist palliative care provider comes to the participants’ workplace to provide an individualised learning experience for a small group of staff.

Endorsed by NAATSIHWP for CPD

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Palliative Care Toolkit for First Nations Health Professionals

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Palliative Care Toolkit for First Nations Health Professionals

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Five self-directed education modules that are available online and in printed workbook format, covering key palliative care content areas for Aboriginal and Torres Strait Islander Health Professionals.

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PalliBytes Module: Culturally-responsive palliative care for Aboriginal and Torres Strait Islander peoples

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PalliBytes Module: Culturally-responsive palliative care for Aboriginal and Torres Strait Islander peoples

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Create your free account to learn with us! This and other PalliBytes modules are available for health professional CPD.

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Is this your first time here?

For full access to this site, you first need to create an account.

Education on this site is provided by the Palliative Care Education and Training Collaborative and is funded by the Australian Government Department of Health. Access and use of the education and training within this learning management system is intended for clinical, teaching and academic staff for education and training purposes only.

Registering to access the eLearning on this site is free and should only take a few minutes of your time. Register by clicking the button below and completing the online form. You will receive a confirmation email once your registration form is complete. Once you receive this information, click on the link provided in order to activate your account. If you do not receive this email, check your junk email box.

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Skip to create new account For full access to this site, you first need to create an account. Education on this site is provided by the Palliative Care Education and Training Collaborative and is funded by the Australian Government Department of Health.

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The term palliative care refers to person and family-centred care provided for someone with an active, progressive, advanced disease, who has little to no prospect of cure and who is expected to pass on, and for whom the primary goal is to optimise the quality of life [35540]. Palliative care identifies and treats symptoms which may be physical, emotional, spiritual or social. Due to a person's individual needs, the services offered can be diverse. The term end-of-life care refers to the last few weeks of life in which a patient with a life-limiting illness is rapidly approaching passing. Of note, sometimes these terms can be used interchangeably or have different definitions.

When providing person-centred care to Aboriginal and Torres Strait Islander people, it is important to ask the person who they would like involved in discussions about their health care as they may have decision makers or spokespersons who should be involved in all discussions and decisions regarding that person's care. If this is the case, it should be clearly documented in the person's records [29818].

The time surrounding the end of someone's life is precious and needs to be respected and approached in a safe, responsive and culturally appropriate manner [21898]. Aboriginal and Torres Strait Islander people often have a number of customary practices before, during and after passing. These practices may be sacred and may not be widely discussed outside of the community. It is also important that a person has the option to decide where they will pass, if possible. This may include a choice to be on Country, at home or in a hospital at the time of passing [40671].

The Palliative Care and End-of-Life Care portal is designed to assist the health workforce who provide care for Aboriginal and Torres Strait Islander people, their families and communities. It seeks to support both clinicians and policy-makers in accessing resources, research and projects on palliative and end-of-life care for Aboriginal and Torres Strait Islander people.

The Palliative Care and End-of-Life Care project is a collaboration between Palliative Care Australia and the Australian Indigenous Health InfoNet with funding from the Australian Government.

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Palliative Care and End-of-Life Care - Health System - Australian Indigenous HealthInfoNet

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This section provides information on end of life care of Aboriginal and Torres Strait Islander people, including culturally appropriate palliative care, cultural perspectives on dying, death, grief in Aboriginal and Torres Strait Islander communities.

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The Western Australian Centre for Rural Health would like to acknowledge the Traditional Owners of the land where we work. We pay our respects to Elders past, present and emerging and we celebrate their stories and culture.

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'Finding your way' is a shared decision making model created with mob, for mob. It is a holistic, two-way process where Aboriginal people and their healthcare professionals make decisions together. #SDM4Mob

A guide to the shared decision making model for the mob

This is a culturally adapted model so mob can feel safe and trusted to make informed decisions based on their values and beliefs. The eight inner circles represent the core elements of shared decision making, opening doors to finding your way to health and wellbeing. The question prompt offers yarning ideas about COVID-19 vaccines.

Finding your way

A shared decision making model for mob

Feedback About the artwork

Resources

Downloadable PDF question prompt

More information about the model

Downloadable PDF posters

The model can be downloaded as a PDF for printing with 3 heading alternatives, and also a customisable option.

Videos

Videos from clinicians discussing the model and question prompt.

Please use these social media posts, tiles, video and web text to share the Finding your way resources. Use the hashtag #SDM4Mob when posting to social media.

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Shared decision making is about Aboriginal people connecting with health workers in a holistic and meaningful way where mob feel safe and trusted to make informed decisions based on their values and beliefs. The process helps mob and health workers to make health decisions together.

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National Palliative Care – Supporting Palliative Care for Aboriginal and Torres Strait Islander Communities

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A series of engaging eLearning modules to support frontline staff to deliver culturally responsive palliative care.

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Healing Foundation: Working with Stolen Generations

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Healing Foundation: Working with Stolen Generations

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Resources for GP, dental and aged care services to better support Stolen Generations survivors.

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New resources for GP, dental and aged care services

GPs, dentists and aged care staff will be better placed to support Stolen Generations survivors following the launch of new resources by The Healing Foundation. The resources were launched recently by the Minister for Indigenous Australians, The Hon Ken Wyatt AM MP at Parliament House in Canberra.

The Stolen Generations Factsheets were developed in collaboration with Stolen Generations survivors and peak bodies including the Royal Australian College of General Practitioners, the Australian Dental Association, Aged & Community Services Australia and the Aged Care Industry Association.

Interacting with aged care staff, GPs, dentists and other services is often difficult for Stolen Generations survivors, as everyday events can trigger the original trauma of forced removal, particularly if a situation brings back the lack of control Stolen Generations survivors experienced when they were taken from their families.

These Factsheets provide practical tips, tailored for GPs, dentists and aged care workers in providing support to Stolen Generations survivors.

Fact sheets for hospitals, allied health professionals and disability services are in development.

Read the media release here

"The fact sheets mean that we do not have to repeatedly tell our stories, or have to explain ourselves or be questioned why to be able to get the care we need."

- Ian Hamm, Stolen Generations Reference Group member

Download the fact sheets here

Trauma-aware, healing-informed practice

Trauma-aware, healing-informed practice is a strength-based approach to healing that is guided by a shared understanding of, and responsiveness to, the impacts of trauma. It prioritises cultural, spiritual, physical, psychological, and emotional safety but does not avoid addressing issues of high importance that are likely to be sensitive and triggering of trauma responses. Service providers need to be highly skilled in managing the likely effects of potentially triggering conversations and in working towards empowering people who access their services through upskilling and increasing understanding. Working in ways that there is no risk for 'no further harm'.

Download the snapshots here

"This new resource provides essential context and useful tools to assist GPs to identify and understand the impacts of trauma for their patients. These are principles of good clinical practice, which is beneficial for all patients."

- Associate Professor Peter O'Mara, The Royal Australian College of General Practitioners

READ: This new report outlines key findings from the Kerriri Healing Forum. We acknowledge the representatives from... https://t.co/jLbVz0u6no

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Message: Aboriginal and Torres Strait Islander people should be aware that this website may contain images, voices and names of people who have passed away.

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The Healing Foundation is currently updating this website with new data from the Make Healing Happen report. Please see the
full report for the most up-to-date data.

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Working with Stolen Generations | Healing Foundation

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GPs, dentists and aged care staff will be better placed to support Stolen Generations survivors following the launch of new resources by The Healing Foundation. The resources were launched recently by the Minister for Indigenous Australians, The Hon Ken Wyatt AM MP at Parliament House in Canberra.

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A series of educational films designed for our deadly mob, featuring our hero Sean, embarking on ten journeys of palliative care understanding.

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Featuring the voice of multi-talented Sean Choolburra, the IPEPA animated series is five short films starring our hero, Sean. Sean embarks on five journeys o…

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Animations: on Vimeo (for advertisement-free viewing)

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Animations: on Vimeo (for advertisement-free viewing)

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A series of educational films designed for our deadly mob, featuring our hero Sean, embarking on ten journeys of palliative care understanding.

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Join the web’s most supportive community of creators and get high-quality tools for hosting, sharing, and streaming videos in gorgeous HD with no ads.

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A series of videos capturing the generous storytelling of Uncle Greg Chatfield and his family about their experiences of palliative care.

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These resources tell the true story of Uncle Greg ‘Chatty’ Chatfield, a proud Aboriginal man with strong connections to Kamilaroi and Ngunnawal Country. It was his goal to share his story to educate people about motor neurone disease and palliative care, and to help improve palliative care for Aboriginal and Torres Strait Islander families and communities. Uncle Chatty returned to the Dreaming in June 2019.
In July 2021, PEPA/IPEPA Australian Capital Territory (ACT) received approval from the United Ngunnawal Elders Council as the representative body of the Ngunnawal community - the Traditional Owners of the ACT and region, for the Uncle Chatty’s Story videos to be viewed on Ngunnawal land. Uncle Chatty’s family supported his need to share his palliative care and end-of-life care journey story, and were the first people who were vital to approval of the videos created. On the experience of palliative care, Uncle Chatty’s family stated, that ‘staff had cared for him with dignity and showed us as family their kindness, compassion and respect in our saddest moments’. Uncle Chatty’s story is an incredible journey story which has much to teach families and communities, as well as all those across the healthcare workforce.

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What do people with serious illness need?

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What do people with serious illness need?

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Ways to support our people to change a harmful experience of serious illness to a healing experience, that is grounded in sovereignty, dignity and self-determination.

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Workshop: Palliative approach to care for Aboriginal and Torres Strait Islander health professionals

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Workshop: Palliative approach to care for Aboriginal and Torres Strait Islander health professionals

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Endorsed by NAATSIHWP for CPD

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Workshop: Culturally-responsive palliative care for Aboriginal and Torres Strait Islander peoples

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Workshop: Culturally-responsive palliative care for Aboriginal and Torres Strait Islander peoples

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The focus of this education is to enhance the capacity of the non-Indigenous health workforce to provide quality, holistic and culturally-responsive palliative care for Aboriginal and Torres Strait Islander peoples.

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Aboriginal and Torres Strait Islander families resources

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New resources for Aboriginal and Torres Strait Islander families

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This Discussion Starter and card pack has been developed for Aboriginal and/or Torres Strait Islander peoples and their community, and those working with them. It was made in partnership by Palliative Care Australia (PCA) and the Congress of Aboriginal and Torres Strait Islander Nurses and Midwives, Australian Indigenous Doctor's Association and Indigenous Allied Health Australia and others.

If you become so sick that you couldn't talk, your family and health worker may need to make decisions for you. Talking about how this would make you feel and what you want in advance will make their decisions easier and less stressful. The workbook and card pack helps you think about what is right for you and what is not right for you, as your journey moves on. It includes items for thinking about you and your family and community; your health care; preparing for discussion; and reviewing your discussion. There is also information about identifying your decision makers, making a legal will, Advance Care Plan, funeral preparation and more.

Disclaimer:
It is important to know that this is not a legal document or an Advance Care Plan / Directive. For additional information relating to advance care planning, please speak to your health professional, visit the Advance Care Planning Australia website or call the Advance Care Planning Advisory Service on 1300 208 582, 9am - 5pm (AEST) Monday to Friday. You should always consult your healthcare or legal professionals for advice about any specific circumstances, including the legislative requirements in your state or territory.
Aboriginal and Torres Strait Islander Discussion Starter Aboriginal and Torres Strait Islander Discussion Cards
If you would like to order copies of these resources then you will find them available in our shop below.

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Aboriginal and Torres Strait Islander Discussion Starter - Working Out What's Right For You

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This Discussion Starter and card pack has been developed for Aboriginal and/or Torres Strait Islander peoples and their community, and those working with them. It was made in partnership by Palliative Care Australia (PCA) and the Congress of Aboriginal and Torres Strait Islander Nurses and Midwives, Australian Indigenous Doctor's Association and Indigenous Allied Health Australia and others.

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https://palliativecareeducation.com.au/

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Are you an educator?

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University student, RTO student or clinician

Overview of PCC4U Resources

Have you ever found it difficult to find the PCC4U resources you're looking for? With some resources here on the website and others available through our learning management system, it can be easy to miss something. Have a look at our new infographic which provides an overview of all PCC4U learning and teaching resources with clickable links directly to the resources you're looking for.

NEW! Focus Topic 2

Caring for Australian Indigenous peoples affected by life-limiting illness
"Resources are often written about us, without us which means our voice is lacking along with true knowledge and education. The toolkit has been decolonised and built again from the ground up on foundations of the sovereign spirit of our people."
Nicole Hewlett, National Indigenous Manager IPEPA

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The PCC4U Project Team hosts interactive webinars to provide opportunities for Educators who are implementing PCC4U learning resources, to network, share information, participate in a variety of learning and teaching strategies, and hear others talk about their implementation experience.

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University, Registered Training Organisation, Health Service University student, RTO student or clinician Overview of PCC4U Resources Have you ever found it difficult to find the PCC4U resources you're looking for? With some resources here on the website and others available through our learning management system, it can be easy to miss something.

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Resources - Promote and practice - Australian Indigenous HealthInfoNet

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This page provides a comprehensive, searchable database of health promotion and health practice resources about Aboriginal and Torres Strait Islander health.