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(1-2 months)

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(dosing not correct)

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There are a lot of potential side effects, so what will happen to my spouse? Will there be mood swings? Possibility of adverse effects?

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Depression perceived negatively in society, caregiver doesn't have people to talk to

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Anonymous ways to engage with a virtual community - cultural considerations re: interacting with AI / chat (e.g., wechat for depression)

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(via physician / support network, etc)

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what is happening related to the medication / chemistry?

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does it work?

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(action)

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Calibration cycle

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Safety aspect of treatment / side effects

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Safety aspect of treatment / side effects

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What are available to the patient & caregiver?

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Caregiver role is also helping to ensure medication is taken

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Feeling concerned, given, generous, but also feeling anger, desperation, despair, hopelessness, guilt, and fear (should the marriage be over?)

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Could we create virtual connections for support networks?

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Support networks, who can caregiver talk to?

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Support networks, who can caregiver talk to?

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I don't know who to talk to, who to speak to, where do I get support? (cultural considerations in Japan)

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Keeping close eye on if the treatment is working?

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Keeping close eye on if the treatment is working?

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Not having answers to what will happen, the impact on life.

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At least 1/3 of patients do NOT respond, at least one month to see any signs of improvement.

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Learned more about the disease, a lot of hope attached to the treatment

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(have already been going through treatment)

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35 year old
Male
Urban
Working
No kids

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Caregiver (spouse) x Treatment

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(feeling on top of things)

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(feeling overwhelmed)

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Emotional burden, could isolate caregiver