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Identifying people with learning disablities

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Identifying people with learning disablities

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with key stakeholders incl primary care
working on strategy with legal services
adding requirement to annual health checks to report on learning disabilities

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Opportunities to speak to people to test ideas

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Opportunities to speak to people to test ideas

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awareness of screening staff to give opportunity to people with learning disabilities/their carers to make screening decision

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awareness of screening staff to give opportunity to people with learning disabilities/their carers to make screening decision

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risk factors change over course of life

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Practical adjustments of screening procedures need to be looked at

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Practical adjustments of screening procedures need to be looked at

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need for sedation/ general anaesthetic increases risk of screening

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Need for increased awareness of cancer screening

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Need for increased awareness of cancer screening

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among people with LD and families
using videos, campaigns, etc.
needed currently, because people required to ask for support

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reaching people through service providers

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reaching people through service providers

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to provide easy read information

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sensory stories for people with profound learning disabilities

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sensory stories for people with profound learning disabilities

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approach to prepare people for difficuld doctors/dentist appointments
possibility to develop for cancer screening

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able to provide effective support

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Screening programmes work in different ways

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Screening programmes work in different ways

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need to find ways to slot in support measures for each programme individually
e.g. 12 o'clock appointment for breast screening

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Need for clinical record keeping of learning disabilities

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Need for clinical record keeping of learning disabilities

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structural barrier to improving access
need to know who needs support we can make available
need to be able to idenify who needs to be sent easy read information

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Steering group members with medical background

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Steering group members with medical background

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to input on how to implement change

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In the world of social care personal and intimate care policies and procedures would be central as they guide staff on what is acceptable or otherwise and necessary safeguards....

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How do we bring together intersectionality?

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How do we bring together intersectionality?

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ethnicity and socioeconomic inequalities, for example

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How do we prepare health services (incl screening programmes, PC) for implementing the findings of this study?

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How do we prepare health services (incl screening programmes, PC) for implementing the findings of this study?

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How to make easy read information more accessible?

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How to make easy read information more accessible?

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How do we embed informed decision making about screening into routine practice?

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How do we embed informed decision making about screening into routine practice?

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How to heighten awareness in care sector about need to check for cancer/screening?

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How to heighten awareness in care sector about need to check for cancer/screening?

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How to ensure access to screening for people with learning disabilities given the lack of data?

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How to ensure access to screening for people with learning disabilities given the lack of data?

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Are we able to involve participants who lack capacity in this research?

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Are we able to involve participants who lack capacity in this research?

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How do we empower NHS medical staff to support/arrange support that patients with learning disabilities need using the NHS?

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How do we empower NHS medical staff to support/arrange support that patients with learning disabilities need using the NHS?

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e.g. arranging double appointments

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How can we support people with learning disabilities to access breast screening and reduce anxiety?

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How can we support people with learning disabilities to access breast screening and reduce anxiety?

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How can we make the project even better?

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How can we make the project even better?

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How do we ensure that we include people with profound and complex learning disabilities?

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How do we ensure that we include people with profound and complex learning disabilities?

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How will the project report on differences in access between different groups of people with learning disabilities?

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How will the project report on differences in access between different groups of people with learning disabilities?

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e.g. different needs for people with mild and with severe learning disabilities

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More formal education on what happens during cancer screening

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More formal education on what happens during cancer screening

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e.g. mock tests

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Easy read materials and advising on need for cervical screening

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Easy read materials and advising on need for cervical screening

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Add a note of anything we must remember after the meeting

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Add a note of anything we must remember after the meeting

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