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Sickle Cell Disease: The Power of Data. Michigan Department of Health and Human Services (YouTube). https://youtu.be/FDRdyseo9vU

Target Audience: Healthcare professionals, policymakers and community members.

Evidence-Based: The content is evidence-based as it draws on surveillance data and research from the health dept and CDC. Research supports the importance of data in improving outcomes for people with SCD (Piel et al., 2017, New England Journal of Medicine).

Application: Demonstrates how accurate data collection informs decision-making, funding, and targeted interventions.

DEI: Recognizes that SCD disproportionately affects African American and Hispanic populations and how data can assist in reducing health disparities.

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Podcast episode from BloodStream Media featuring patient stories, health disparities and more.

Target Audience: Patients, families, and healthcare providers

Evidence-Based: While anecdotal, aligns with research on quality of life issues in SCD (Yawn et al., 2014, JAMA).

Application: Highlights real-world struggles with pain management, improving empathy, and informing clinical practice.

DEI: Elevates patient voices, particularly from marginalized communities.

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BloodStream Podcast: World Sickle Cell Day & Sing Me A Story

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A blog post and a poem from a mother describing her experience with her child with SCD.

Target audience: Parents, Caregivers, Healthcare workers

Evidence-Based: Though it is a personal experience, it reflects research findings on frequent hospitalizations in pediatric SCD (Kanter et al.,2020).

Application: Builds community support and validates patient experiences.

DEI: Highlights disparities in pediatric pain management.

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A World Without Sickle Cell - Sickle Cell Warriors Inc

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A poem written by Vicki Glarum, a mother of a child with sickle cell disease. Envisioning a world without sickle cell…

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Tik Tok video raising awareness of SCD.

Target Audience: Teens, Young adults, General Public

Evidence-Based: While not scholarly, it aligns with awareness goals supported by the CDC.

Application: Engages younger audiences and spreads awareness through viral content.

DEI: Provides a platform for minority youth to engage with health messaging.

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Happy World Sickle Cell Day! Each year I’m seeing more and more being done in the name of sickle cell awareness, and to say I’m proud is an understatement!!! Knowing that more people are starting to understand the challenges that those of us with sickle cell face is refreshing.  But even with this, I am aware of so many people with sickle cell still living very isolated lives, and I hope that society continues to turn into a place where everyone with sickle cell feels safe and accepted. This world sickle cell day check up on a loved one with sickle cell & see how they’re doing 🫶🏽 #HerSickledJourney #SickleCell #WorldSickleCellDay2024 #SIckleCellAwareness 

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@hersickledjourney
Happy World Sickle Cell Day! Each year I’m seeing more and more being done in the name of sickle cell awareness, and to say I’m proud is an understatement!!! Knowing that more people are starting to understand the challenges that those of us with sickle cell face is refreshing. But even with this, I am aware of so many people with sickle cell still living very isolated lives, and I hope that society continues to turn into a place where everyone with sickle cell feels safe and accepted. This world sickle cell day check up on a loved one with sickle cell & see how they’re doing 🫶🏽 #HerSickledJourney #SickleCell #WorldSickleCellDay2024 #SIckleCellAwareness
♬ Brazil Lofi - Rodrigo Flores (Don)

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CDC Sickle Cell Disease page.

Target Audience: General public and healthcare providers.

Evidence-Based: Maintained by CDC with peer-reviewed medical references.

Application: Comprehensive accessible info on SCD diagnosis, treatment, and management.

DEI: Addresses disparities in care and encourages equitable health access.

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Sickle cell disease is a group of inherited red blood cell disorders.

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NPR Health Article (2023) covering FDA approval of new gene therapy for sickle cell disease.

Target Audience: Patients and families exploring treatment advances.

Evidence-Based: Based on peer-reviewed clinical trials and FDA announcements.

Application: Informs decision-making about future treatment options.

DEI: Discusses access to gene therapy and equity in availability.

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FDA approves first gene-editing treatment for human illness

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The Food and Drug Administration approved two genetic treatments for sickle cell disease, including one that uses gene-editing. The approvals offer hope for patients and signal a new medical era.

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Infographic from the NIH website titled "What Happens in Sickle Cell Disease?"

Target Audience: Patients, students, and caregivers seeking simple explanations.

Evidence-Based: NIH resources are peer-reviewed and accurate.

Application: Visualizes how red blood cells change shape, improving understanding for non-medical audiences.

DEI: Accessible design benefits diverse literacy levels.

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Sickle cell disease is an inherited disease. People with sickle cell disease have red blood cells that are sickle- or crescent-shaped, which block blood flow through the body and can cause serious problems such as pain, infections, and stroke.

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IG Post from @sicklecell101 during SCD awareness month.

Target Audience: Young adults and caregivers active on social media.

Evidence-Based: Sickle Cell 101 is a nonprofit organization that shares content supported by CDC and NIH guidelines.

Application: Raises awareness of the importance of newborn screening and preventative care.

DEI: Uses culturally relevant language and imagery to reach minority communities most affected.