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MANUAL DE POLÍTICAS  E ESTRATÉGIAS PARA A QUALIDADE DOS CUIDADOS DE SAÚDE

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MANUAL DE POLÍTICAS  E ESTRATÉGIAS PARA A QUALIDADE DOS CUIDADOS DE SAÚDE

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cofen  parecer norrmativo 01/2024 navegação 

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cofen  parecer norrmativo 01/2024 navegação 

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Wales

Last Days of Life Guidance 2021

The Leadership Alliance for the Care of Dying People is a collaboration with NHS England, but the same priorities apply in Wales as they have informed the All Wales Care Decisions Last Days of Life Guidance . A Welsh language version is also available.

This evidence-based good practice is regulary reviewed by experts in Wales and provides care decisions guidance for health boards and trusts. In 2021, Marie Curie was able to contribute to a new appendix which offers best practice advice for ensuring diversity and inclusion is respected at the end of life.

NICE guideline 2015 and NICE quality standard 2017

The Welsh Government has also endorsed the NICE guideline Care of Adults in the Last Days of Life and the NICE quality standard QS144 .

Northern Ireland
Living Matters, Dying Matters: A Palliative and End of Life Care Strategy for Adults in Northern Ireland 2010.
This report published in 2010 includes eight principles for quality palliative care. These state that good palliative care, which may be applicable from diagnosis:

affirms life and regards dying as a normal process

intends to neither hasten nor to postpone death

provides relief from pain and other distressing symptoms

integrates the psychological, emotional and spiritual aspects of patient care

offers a support system to help patients live as actively as possible until death

offers a support system to help the family cope during the patient's illness illness and into bereavement

uses a team approach to address the needs of patients and their families, including bereavement counselling if indicated

will enhance quality of ife and may also positively influence the course of illness.

NICE guideline 2015 and NICE quality standard 2017

The Department for Health in Northern Ireland has endorsed the NICE guideline, Care of dying adults in the last days of life and quality standard QS144 .

Guidance on managing symptoms in the last days of life (updated 2018)
It has also produced clinical guidance on managing symptoms in the last days of life.
Guidelines for palliative and end of life care in nursing homes and residential care homes 2013

In 2013 the Guidelines and Audit Implementation Network published Guidelines for Palliative and End of Life Care in Nursing Homes and Residential Care Homes in Northern Ireland. The guidelines cover the following areas in relation to the provision of palliative and end of life care for patients in these settings:

identification of the stage of the illness

palliative care holistic assessment

advance care planning and co-ordination of care across are boundaries

end of life care

care after death and bereavement

staff support, training and development.

Scotland

Caring for people in the last days and hours of life guidance 2014

NHS Scotland published their guideline Caring for people in the last day and hours of life in December 2014 . It advises professionals to follow four key principles of care:

1. Informative, timely and sensitive communication is an essential component of each individual person's care.

2. Significant decisions about a person's care, including diagnosing dying, are made on the basis of multi-disciplinary discussion.

3. Each individual person's physical, psychological, social and spiritual needs are recognised and addressed as far as possible.

4. Consideration is given to the wellbeing of relatives or carers attending the person.

We have more information on caring for someone in their last days and hours of life.

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National guidelines for end of life care | For professionals

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The Leadership Alliance for the Care of Dying People is a collaboration with NHS England, but the same priorities apply in Wales as they have informed the All Wales Care Decisions Last Days of Life Guidance . A Welsh language version is also available.

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History of the National Consensus Project's Guidelines

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National Coalition for Hospice and Palliative Care

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Clinical Practice Guidelines for Quality Palliative Care, 4th edition

Create a blueprint for excellence by establishing a comprehensive foundation for gold-standard palliative care, including evidence-based processes and practices for providing safe and reliable high-quality care for all people living with serious illness, regardless of their diagnosis, prognosis, age or where they live or receive care.

Permission to Use or Reprint

National Consensus Project's Clinical Practice Guidelines for Quality Palliative Care, 4th edition (NCP Guidelines)

Thank you for your inquiry about permission to use or to reprint content from the NCP Guidelines. All of the information found in the NCP Guidelines is copyrighted to the National Coalition for Hospice and Palliative Care.
Definition
Copyright is a legal device that provides the owner the right to control how a creative work is used. A copyright is comprised of a number of exclusive rights, including the right to make copies, authorize others to make copies, make derivative works, sell and market the work and perform the work. Any one of these rights can be sold separately through transfers of copyright ownership.

Permission is a license granting an author and his/her publisher certain nonexclusive rights to the material/content concerned. Typically, publishers will require that authors seek permission for content they have used in their works. What is being licensed in a permissions agreement is the re-use of copyrighted expression, not the ideas or data concerned.

Permission must be obtained for any re-use of copyrighted material that appears in the Guidelines. Certain users always require permission. These included (but are not limited to):

Inclusion of any substantial portion of work (i.e., one or more chapters of a book) for a college course

Re-use of a table, box, or figure from the Guidelines in another work.

Adapting a table, box, or figure from the Guidelines for use in another work.

Suggested Citation
National Consensus Project for Quality Palliative Care. Clinical Practice Guidelines for Quality Palliative Care, 4th edition. Richmond, VA: National Coalition for Hospice and Palliative Care; 2018. https://www.nationalcoalitionhpc.org/ncp.
Permission To Reprint Request Procedures

1. Please direct permission requests and any questions related to 'Permissions to Reprint' to info@nationalcoalitionhpc.org.

2. A response to your permission request will be sent within 5 - 7 business days. We thank you in advance for your patience.

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NCP Guidelines - National Coalition for Hospice and Palliative Care

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Permission to Use or Reprint National Consensus Project's Clinical Practice Guidelines for Quality Palliative Care, 4th...

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clinical practice guidelines; supportive care; prevention of chemotherapy and radiotherapy-induced nausea; delirium in adult cancer patients

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erythropoiesis-stimulating agents in the treatment of anaemia in cancer patients; management of cancer pain; management of oral and gastrointestinal mucositis; cancer

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fertility and pregnancy; management of venous thromboembolism (vte) in cancer patients; cardiovascular toxicity induced by chemotherapy

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targeted agents and radiotherapy; management of chemotherapy extravasation

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ESMO Clinical Practice Guidelines: Supportive and Palliative Care

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Supportive care is an area of high importance in oncology and ESMO published Clinical Practice Guidelines on the management of a variety of issues

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plano de ação de cuidados  paliativos NHS 2021- 2026

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plano de ação de cuidados  paliativos NHS 2021- 2026

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Latest News Here you'll find the latest developments, updates, events, and articles regarding Advance Care Planning and the Speak Up initiative. View All News The Five Steps of Advance Care Planning Advance Care Planning is an easily accessible and essential program. The Five Steps of Advance Care Planning teaches you the simple steps that you...

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Thank you Palliative Care Qld for the National Pailliative Care Week resources to host our event! Palmwoods Sundale hosted a palliative care education day for all the clinical staff with invited speakers to deliver the palliative care knowledge.

Our Palliative Care team at GCHHS has been doing fantastic work for National Palliative Care Week using some of the recourses supplied by PCQ.

Chloe Robinson

Gold Coast University Hospital

I know that our Wishes on the Sunshine Coast team is excited to be involved and to help create magical moments that are priceless for wish recipients and those that they love and share those special moments with.

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Thank you Palliative Care Qld for the National Pailliative Care Week resources to host our event! Palmwoods Sundale hosted a palliative care education day for all the clinical staff with invited speakers to deliver the palliative care knowledge. Our Palliative Care team at GCHHS has been doing fantastic work for National Palliative Care Week using some of the recourses supplied by PCQ.

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The Palliative Care Education Directory

PaCE is a resource directory for educators and health and aged care providers. Access relevant palliative care education resources direct to your device.

Palliative Care Workforce Development

Hear from Project Lead Distinguished Professor Patsy Yates AM on the development of the PaCE App.

Features

PaCE has been built to link learning resources to palliative care capabilities for the following groups:

How to use PaCE

To find out more about how to use the PaCE Directory App, watch this short video.

The PaCE Directory App includes resources from all the National Palliative Care Projects.

The Palliative Care Education and Training Collaborative acknowledges and pays our deepest respect to the past, present and future Traditional Custodians and Elders of the many lands on which we work and live, and the continuation of cultural, spiritual and educational practices of Aboriginal and Torres Strait Islander peoples.

We respectfully acknowledge the cultural sensitivities surrounding Sorry Business, Sad News and 'finishing up'.

Aboriginal and Torres Strait Islander peoples are advised that this website and resources linked may contain images, videos and voices of people who have passed away.

Create a shortcut

Once you have opened PaCE on your device, you can add a shortcut to the app.

Follow the instructions below for your preferred internet browser:
* Chrome: Tap the menu icon (three dots in the upper right-hand corner) and tap Add to homescreen.
* Safari: Tap the Share button on the menu bar, then tap on Add to Home Screen
* Edge: Tap on the horizontal three dots icon for the options menu, select the option Add to homescreen
* Firefox: Tap the menu button (either below the screen on some devices or in the upper right of the browser), then tap on page. Tap Add Page Shortcut.

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PaCE is a resource directory for educators and health and aged care providers. Access relevant palliative care education resources direct to your device. Hear from Project Lead Distinguished Professor Patsy Yates AM on the development of the PaCE App.

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educação e trenamento Este componente refere-se à disponibilidade de recursos de ensino de graduação (integrados em

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educação e trenamento Este componente refere-se à disponibilidade de recursos de ensino de graduação (integrados em

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currículos) nas escolas de medicina e enfermagem, a existência de uma especialização em medicina paliativa e

a existência de programas de educação continuada para o desenvolvimento de competências básicas e avançadas em

o cuidado e tratamento de pessoas com necessidades paliativas.

Investigação Esta componente está relacionada com o desenvolvimento de investigação orientada para cuidados paliativos.

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https://www.australiancancerplan.gov.au/welcome

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Downloadable Resources - Australian Cancer Plan

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AUTO AVALIAÇÃO CUIDADO CENTRADO NA PESSOA 

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AUTO AVALIAÇÃO CUIDADO CENTRADO NA PESSOA 

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Australian Government Department of Health and Aged Care

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Implementation Plan for the National Palliative Care Strategy 2018

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Our Implementation Plan for the National Palliative Care Strategy will help us improve palliative care services for all Australians.

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Observatório de Oncologia - Dados abertos para transformação social - Iniciativa: TJCC

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Plataforma online e dinâmica de monitoramento de dados abertos e compartilhamento de informações relevantes da área de oncologia no Brasil

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Person-centred care is widely recognised as a foundation to safe, high-quality healthcare. It is care that is respectful of, and responsive to, the preferences, needs and values of the individual patient.

It involves seeking out, and understanding what is important to the patient, fostering trust, establishing mutual respect and working together to share decisions and plan care.

Key dimensions of person-centred care include respect, emotional support, physical comfort, information and communication, continuity and transition, care coordination, involvement of carers and family, and access to care.

There is good evidence that person-centred approaches to care can lead to improvements in safety, quality and cost effectiveness, as well as improvements in patient and staff satisfaction. More information about the evidence for person-centred approaches to care can be found in Patient-centred care: Improving quality and safety through partnerships with patients and consumers.

To achieve person-centred care healthcare providers, organisations and policy-makers need to work in partnership with consumers.

Partnering with consumers recognises the value of the consumer voice, and the need for consumer experience and expertise to help shape decisions about health care at the level of the system, service and individual.

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Person-centred care is widely recognised as a foundation to safe, high-quality healthcare. It is care that is respectful of, and responsive to, the preferences, needs and values of the individual patient. It involves seeking out, and understanding what is important to the patient, fostering trust, establishing mutual respect and working together to share decisions and plan care.

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World-class cancer outcomes and experiences for all Australians

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OMS divulga recursos para lidar com flagrante escassez de serviços de cuidados paliativos de qualidade

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Genebra, 5 de outubro de 2021 (OMS) – Em todo o mundo, estima-se que apenas uma em cada 10 pessoas que precisam de cuidados paliativos estão recebendo o serviço e que a demanda global por cuidados para pessoas com doenças terminais continuará crescendo à medida que a população envelhece e a carga de doenças crônicas não transmissíveis aumenta. Em 2060, a necessidade de cuidados paliativos deverá quase dobrar.

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Segundo a Organização Mundial da Saúde (OMS), em conceito definido em 1990 e atualizado em 2002, "Cuidados Paliativos consistem na assistência promovida por uma equipe multidisciplinar, que objetiva a melhoria da qualidade de vida do paciente e seus familiares, diante de uma doença que ameace a vida, por meio da prevenção e alívio do sofrimento, por meio de identificação precoce, avaliação impecável e tratamento de dor e demais sintomas físicos, sociais, psicológicos e espirituais" (WHO, 2002).

Os cuidados paliativos devem incluir as investigações necessárias para o melhor entendimento e manejo de complicações e sintomas estressantes tanto relacionados ao tratamento quanto à evolução da doença. Apesar da conotação negativa ou passiva do termo, a abordagem e o tratamento paliativo devem ser eminentemente ativos, principalmente em pacientes portadores de câncer em fase avançada, onde algumas modalidades de tratamento cirúrgico e radioterápico são essenciais para alcance do controle de sintomas. Considerando a carga devastadora de sintomas físicos, emocionais e psicológicos que se avolumam no paciente com doença terminal, faz-se necessária a adoção precoce de condutas terapêuticas dinâmicas e ativas, respeitando-se os limites do próprio paciente frente a sua situação de incurabilidade.

A abordagem dos Cuidados Paliativos para o câncer do colo do útero segue os princípios gerais dos Cuidados Paliativos, que são:

Fornecer alívio para dor e outros sintomas estressantes como astenia, anorexia, dispnéia e outras emergências oncológicas.

Reafirmar vida e a morte como processos naturais.

Integrar os aspectos psicológicos, sociais e espirituais ao aspecto clínico de cuidado do paciente.

Não apressar ou adiar a morte.

Oferecer um sistema de apoio para ajudar a família a lidar com a doença do paciente, em seu próprio ambiente.

Oferecer um sistema de suporte para ajudar os pacientes a viverem o mais ativamente possível até sua morte.

Usar uma abordagem interdisciplinar para acessar necessidades clínicas e psicossociais dos pacientes e suas famílias, incluindo aconselhamento e suporte ao luto.

O INCA oferece Cuidados Paliativos aos pacientes oncológicos atendidos em suas Unidades Hospitalares no Rio de Janeiro, por meio de Unidade Especializada denominada Hospital do Câncer IV. O HC IV é também espaço de ensino e pesquisa sobre Cuidados Paliativos e promove debates e articulação em rede para expansão desta área na política de saúde do Brasil.

Referência

WORLD HEALTH ORGANIZATION (WHO). National cancer control programmes: policies and managerial guidelines. 2.ed. Geneva: WHO, 2002.

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Conheça a abordagem dos Cuidados Paliativos para o câncer do colo do útero

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Avaliação da qualidade em saúde fiocruz  margareth portel a

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Quality health services and palliative care: practical approaches and resources to support policy OMS 2021

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Quality health services and palliative care: practical approaches and resources to support policy OMS 2021

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strategy and practice

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Learn about advance care training available including events, education webinars and online courses.

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This website is not compatible with your current web browser. Consider using Google Chrome, Microsoft Edge or FireFox instead.

This website is not supported for Safari on iOS version 10 or below. If you would like to view the Community Section you can navigate to www.palliaged.com.au. To view the CareSearch website please consider using a different browser or upgrade to a new version of your iOS.

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Workforce Development - Health Practitioner Education - Health Professionals

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A national palliative care strategy and workforce framework The delivery of nationally consistent palliative care education and training must reflect the core values within national standards and generalist or specialist capabilities and best practice teaching and learning strategies.

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Advance care planning involves planning for your future health care. It enables you to make some decisions now about the health care you would or would not like to receive if you were to become seriously ill and unable to communicate your preferences or make treatment decisions.

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modelos recursos comunicação  provincia victoria AU 

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modelos recursos comunicação  provincia victoria AU 

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Living, Dying & Grieving Well: A Guide to Palliative Care

Information about what palliative care involves, who it helps and how to access it. Stories illustrate how it helps people of all ages with a life limiting illness and their families.

Individuals may request a free copy of this guide here. Bulk purchase requests within Victoria can be made here.
Bulk orders outside of Victoria should be requested to info@pallcarevic.asn.au

Supporting a Person Who Needs Palliative Care: A Guide for Families & Friends

A comprehensive and practical resource for family carers of a person with a life limiting illness who needs palliative care. Peter Hudson and Rosalie Hudson, 3rd edition, 2017

Individuals may request a free copy of this guide here. Bulk purchase requests within Victoria can be made here. Bulk orders outside of Victoria should be requested to info@pallcarevic.asn.au

Palliative Caring (Victoria)

Useful information and resources for families and carers who are caring for a person with a life-limiting illness or condition.

Individuals may request a free copy of this guide here. Bulk orders should be requested to info@pallcarevic.asn.au

Understanding Palliative Care - Cancer Council Australia 2021

This booklet has been prepared to help you understand more about palliative care (sometimes called supportive care). Although palliative care is for anyone with a life-limiting illness, this booklet has been written specifically for people affected by advanced cancer.

The Manual for Living and Dying in style

To die well requires thought and planning. Preparing well in advance for this inevitable time of life is the key. This manual presents ideas and ways to make dying, and death easier for yourself and your family.

Information sessions for community groups

Free information sessions are available for community groups who wish to learn more about the benefits of palliative care.

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Living, Dying & Grieving Well: A Guide to Palliative Care Information about what palliative care involves, who it helps and how to access it. Stories illustrate how it helps people of all ages with a life limiting illness and their families. Individuals may request a free copy of this guide here.

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resumos de abordagem de cursos nacionais de  cp 

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resumos de abordagem de cursos nacionais de  cp 

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O Centro de Prática pALLAIGED  fornece links e informações sobre ferramentas e recursos baseados em evidências que você pode usar em sua prática. Cada um dos tópicos abordados no Centro de Evidências possui uma página complementar que ajuda você a aplicar evidências em sua prática.

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O Centro de Prática pALLAIGED  fornece links e informações sobre ferramentas e recursos baseados em evidências que você pode usar em sua prática. Cada um dos tópicos abordados no Centro de Evidências possui uma página complementar que ajuda você a aplicar evidências em sua prática.

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The Practice Centre provides links to, and information about, evidence based tools and resources you can use in your practice. Each of the topics covered in the Evidence Centre has a companion page helping you apply evidence in your practice.

There are also suggestions about how services and organisations can help improve care and outcomes.

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palliAGED makes it easy to find and use palliative care evidence and practice resources in aged care. Older Australians, their families and friends are also welcome to use these trustworthy resources.

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PALLIAGED  RECURSSO CUIDADOS PALIATIVOS AUSTRALIA 

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PALLIAGED  RECURSSO CUIDADOS PALIATIVOS AUSTRALIA 

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palliative care aged care; australia; advance care planning; assessment tools

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palliaged is your source of evidence-based palliative care practice information, tools, & resources for aged care in Australia.

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SITE PARA PROFISISONAI S PROV AUSTRALIA VITORIA 

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SITE PARA PROFISISONAI S PROV AUSTRALIA VITORIA 

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Useful Resources

There are a range of useful resources available which can be downloaded or ordered to provide to patients that you care for.

PalliAGED

This website provides aged care staff, GPs, nurses and families with palliative care and end-of-life guidance, including practice tools and resources.

Paediatric Palliative Care Resources

This website provides practical information about paediatric palliative care to families who have a child with a life-limiting illness, as well as the people who support them.

Information is also available for health professionals to better support families and provide quality paediatric palliative care.

Introduction about palliative care for health professionals

An introduction to palliative care for health professionals by Associate Professor Brian Le, a Palliative Care Physician and Medical Oncologist. He is Director of Palliative Care at the Royal Melbourne Hospital.

Duration 13:32 minutes

The role of the specialist palliative care team

This podcast aims to provide health professionals with a good understanding of the role of the specialist palliative care team.

Dr Jane Fischer is a palliative care specialist with more than 25 years experience in palliative care. She is the former CEO and Medical Director at Calvary Health Care Bethlehem in Melbourne.

Duration 9 mins

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Useful Resources There are a range of useful resources available which can be downloaded or ordered to provide to patients that you care for. PalliAGED This website provides aged care staff, GPs, nurses and families with palliative care and end-of-life guidance, including practice tools and resources.

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I am a Health Care Professional

Palliative Care Australia is the national peak body for palliative care.

What is Palliative Care?

National Palliative Care Service Directory

The term 'health care professional' covers a wide range of professions, including doctors, nurses, physiotherapists, pharmacists, occupational therapists and dietitians. There are many people who provide palliative care services. Some specialise in palliative care as a full-time role and others will have palliative care as a part of their daily work.

Palliative care adopts a team-based, multi-disciplinary approach to providing end-of-life care to a person and their primary carers. A palliative care team may include a number of different health care professionals. The involvement of these professionals will be based on the needs of the person receiving care.

Health care professional's role in palliative care

Quality palliative care and end-of-life support is beneficial for people with a life-limiting illness of all ages across all aspects of care. In practice, health care professionals provide services for people at different stages of their respective conditions, depending on their specialty and practice setting. Palliative care is centred on the patient and their primary carers. Therefore, health care professionals are required to have the appropriate skills and knowledge needed to provide quality end-of-life care.

Professional development in palliative care is a key factor in ensuring that health care professionals have the skills they need to deliver high quality care.

In order to ensure that the patient's physical, emotional, spiritual and practical needs are met, a health care professional must take the time to become familiar with their values and end-of-life wishes.

Health care professionals work towards providing support that improves the quality of life for the person and those closest to them. This is achieved by providing patients and carers access to information and the support services they need. Open communication between health care professionals, patients and carers is essential in facilitating this. Health care professionals must be aware of what palliative care can offer and inform patients and carers on what information and services are available to them.

Training and Education in Palliative Care

There are a number of courses and training programs to help build your skills in palliative care. These include:

The Palliative Care Education (PaCE) Directory app is a resource directory for educators, health and aged care providers in the form of a mobile-responsive web-based app. It can help you find learning resources that support the development of palliative care capabilities for a variety of professions and practice contexts. The directory includes information about learning approaches and modes of delivery for each resource. It is free to use, and all learning resources are free to access.  For more information visit PaCE.

Self-care for health professionals

Caring for people as they near the end of life is demanding and challenging. Palliative Care Australia (PCA) has developed a suite of self-care resources that have been designed to me et the needs of health and aged care professionals, knowing that you have limited time and need resources that you can use as and when you need them.

Resources

For more information about palliative care for a health professional, click on the links below. These pages are also available to download.

For more information about paediatric palliative care, click here.

The  CareSearch website and the  palliAGED website  have useful information for health and aged care professionals, people needing palliative care and their families, and for the general community.

Advance Care Planning Australia provides information, National advance care planning support service 1300 208 582, and ACPA learning modules.

Links to Professional bodies

Disclaimer: PCA provides these links for information purpose only. It is not responsible for the content of these websites.

If you notice any of the links are broken or would like to suggest additional information resources to be added, please contact us.

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Promoting quality palliative care since 1991

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Promoting quality palliative care since 1991

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Search Results for “PALLIATIVE CARE” – Optimal Care Pathways

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IHI KIT FARRAMENTAS MELHORIA DA QUALIDADE 

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IHI KIT FARRAMENTAS MELHORIA DA QUALIDADE 

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ferramenta lista medicamentos essenciais da oms 

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ferramenta lista medicamentos essenciais da oms 

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eEML - Electronic Essential Medicines List

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Periapical abscess without sinus Acute malnutrition in infants, children or adolescents (uncomplicated) [children] Acute malnutrition in infants, children or adolescents (complicated) [children] Bacterial pneumonia (Community-acquired pneumonia - mild to moderate) Chronic obstructive pulmonary disease with acute exacerbation gentamicin gentamicin Sepsis without septic shock Bacterial pneumonia (Community-acquired pneumonia - severe) [children]

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Patient-centred care informs and involves patients in their care and respects and responds to the preferences, needs and values of patients, families and carers.

A patient-centred focus increases the experience and satisfaction of patients, their families and carers, and staff, as well as safety and cost-effectiveness (ACSQHC 2019a).

Patient-centred care means:

patients are informed and involved in decisions about their cancer and the treatment, post-treatment and recovery program ahead

patients, their families and carers are provided with access to appropriate and accessible health information

respect for the cultural and religious beliefs of patients and their families is demonstrated when discussing the diagnosis of cancer

active communication is used to engage patients, their families and carers in the care process - an essential step for children, adolescents, young adult and adult patients to be informed and have an age appropriate understanding.

care processes are mutually beneficial for patients and providers

special needs are addressed - for example, the needs of people with disabilities or mental health issues.

Informed choice and consent
An informed patient has greater confidence and competence to manage their cancer journey.

Health professionals are responsible for enabling patients to make informed choices according to their preferences, needs and values. Patients should be provided with:

individualised and timely information and guidance about their treatment

details of their care, including the advantages and disadvantages of each treatment, the associated potential side effects, the likely outcomes on their performance status (how well a patient is able to carry out activities of daily life) and subsequently their quality of life and any financial implications, at each stage of the pathway (ACSQHC 2020).

Health professionals have a legal responsibility to obtain consent for all procedures from either the patient or their substitute decision-maker if they are not deemed competent.
Referral choices and informed financial consent
Patients have the right to receive the information they need to be able to make an informed decision on where to be referred for treatment. Treating specialists and practitioners should clearly explain the costs or how to find out the costs of services, tests and treatment options upfront to avoid consumers experiencing 'bill shock'.

At the time of referral, the patient's general practitioner or other referring doctor should discuss the different options for referral, waiting periods, expertise, if there are likely to be out-of-pocket costs and the range of services available. This will enable patients to make an informed choice of specialist and health service. Referral decisions influence the care patients receive along the pathway and the direct and indirect costs they and their carers may incur. Different referrals have different costs:

referral to a public hospital, which may involve some costs

initial referral to a private specialist with associated costs, with the option of ongoing treatment in a public hospital at any time

referral to a patient's choice of practitioner for immediate and ongoing private hospital management with associated costs.

Patients should be made aware that even though public hospital health care is 'free' to all Australian citizens and most permanent residents of Australia, there are still associated direct costs such as:

over-the-counter medication and prescriptions

wound dressings

travel costs

parking fees

tests that are not covered by Medicare.

A cancer diagnosis and treatment may affect a patient's or carer's income. This is an indirect cost associated with cancer. Social work support is essential to help patients and their families deal with this issue. Patients should be advised not to undergo private care with significant out-of-pocket expenses if financially constrained. Specialists in private practice need to explain costs at the start of each new treatment to acknowledge the cumulative out-of-pocket expenses that patients can incur.

For more information on informed financial consent see Cancer Council's ' Standard for informed financial consent '.

Financial counselling services can provide advice on dealing with financial difficulties. These services can be accessed publicly (via social workers at hospitals, financial counsellors at neighbourhood houses or rural financial aid), privately or through cancer support services such as local charity groups or social work services.

For practical and financial assistance, patients may consider Cancer Council's financial services.

Patients and carers should be made aware of other forms of potential financial support that may be available, including whether the diagnosis or treatment triggers any insurance or access to superannuation, patient-assisted travel schemes, Centrelink, or other forms of social security.
Shared care
Shared care between a cancer specialist and primary care health professional is delivered in two or more settings by two or more professionals. The primary care provider is usually a general practitioner but can include nurses and allied health practitioners. Shared care can be delivered throughout the care pathway including during treatment, follow-up care, survivorship care and end-of-life care.

Shared care offers several advantages to patients, including the potential for treatment closer to home and more efficient care with less duplication and greater coordination. Evidence comparing shared care and specialised care indicates equivalence in outcomes including recurrence rate, cancer survival and quality of life (Cancer Research in Primary Care 2016).

Telehealth can enable efficient shared care and should be explored for all patients. Patients in some rural or remote locations may access specialists via Medicare Benefit Scheme funded telehealth consultations. General practitioners working in rural or remote locations should be aware of specialist multidisciplinary teams with facilities to reduce the travel burden and costs for patients.

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Patient-centred care informs and involves patients in their care and respects and responds to the preferences, needs and values of patients, families and carers. A patient-centred focus increases the experience and satisfaction of patients, their families and carers, and staff, as well as safety and cost-effectiveness (ACSQHC 2019a).

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PRINCIPIOS DE UMA LINHA DE CUIDADO DE CANCER OTIMIZADA 

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PRINCIPIOS DE UMA LINHA DE CUIDADO DE CANCER OTIMIZADA 

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OFERTAR CUIDADO 1-  MELHORANDO A EXPERIÊNCIA DO PACIENTE NAS AÇÕES   CUIDADO 2-  MELHORANDO A SAÚDE DA POPULAÇÃO  3- MELHORANDO A EXPERIENCIA DO PROFISSIONAL QUE OFERTA O CUIDADO (CAPACITANDO , ENGAJANDO,  CONDIÇÕES DE OFERTAR)  4- AUMENTANDO O RESULTADO  DOS MODELOS CUIDADO : DIMINUIR CUSTOS, MAIOR EFICÁCIA , MEDIR CICLICAMENTE  5- DIMINUIR A INIQUIDADE: TRATAR DIFERENTE OS DIFERENTES - COMEÇANDO MAIS VULNERÁVEIS 

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OFERTAR CUIDADO 1-  MELHORANDO A EXPERIÊNCIA DO PACIENTE NAS AÇÕES   CUIDADO 2-  MELHORANDO A SAÚDE DA POPULAÇÃO  3- MELHORANDO A EXPERIENCIA DO PROFISSIONAL QUE OFERTA O CUIDADO (CAPACITANDO , ENGAJANDO,  CONDIÇÕES DE OFERTAR)  4- AUMENTANDO O RESULTADO  DOS MODELOS CUIDADO : DIMINUIR CUSTOS, MAIOR EFICÁCIA , MEDIR CICLICAMENTE  5- DIMINUIR A INIQUIDADE: TRATAR DIFERENTE OS DIFERENTES - COMEÇANDO MAIS VULNERÁVEIS 

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portaria SAES HABILITAÇÃO CACON UNACON 2023

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portaria SAES HABILITAÇÃO CACON UNACON 2023

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Cofen – Conselho Federal de Enfermagem » RESOLUÇÃO COFEN Nº 569_2018 » Print (1)

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Essential oncology nursing care along the cancer continuum

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Essential oncology nursing care along the cancer continuum