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"The sensory processing difficulties of the child with autism not only affect the child and his parents, but also the siblings". I connected with part of the article when our guest speaker started talking about her daughter, who is  neurotypical. She discussed about how her daughter is aware that her brother is autistic and that she will always have to take care of her brother. When her and her husband are not longer alive or able to care for their son, her daughter will have to step up to the plate. She later talked how this is a "burden" her daughter will have to live with for the rest of her life.

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"I cried for three days when dell was diagnosed with autism"

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"Family had to be flexible at all times to accommodate the child's sensory needs in order to participate successfully in family activities. One participant stated:'Flexibility is my mantra.'

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The idea of familiar vs. unfamiliar spaces and how it impacts ease/difficulty of routine - it's something that even neurotypical people can relate to.

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"I don’t have a good sense of where I start and end and where the things around me have boundaries. I am always a living part of a living world. I inhabit this living world with everything feeling like an extension of myself, and with myself as an extension of all around me."

Common attitudes shared across a broad community of individuals with autism - how does a parent that doesn't see the world that way learn to understand?

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In the article "  The everyday routines of families of children with autism: examining the impact of sensory processing difficulties on the family. " the finding of how flexibility is key when it comes to the family and the caregiver of a child with autism is something that is very understandable when it comes with dealing with kids. But this article then goes on and gives specific example like taking separate cars really helped me understand as to what flexibility actually looks like.

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Establishing a family routine can be a unique challenge for an individual with sensory challenges. These are often little things that people may overlook in daily life like not using the coffee grinder unexpectedly, putting away certain textured rugs, or and being cautious about the setting of the living room lights. I’m glad that this article bring awareness to these small challenges, however I like to think how these “challenges” end up being a norm for families with autistic children and I admire their adaptability to their child’s needs as they continue to progress through life.

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The study identified the theme of ‘flexibility’, where caregivers described feeling that the family had to be flexible at all times to accommodate the child’s sensory needs in order to participate successfully in family activi- ties. One participant stated: ‘Flexibility is my mantra’. 

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The study identified the theme of ‘flexibility’, where caregivers described feeling that the family had to be flexible at all times to accommodate the child’s sensory needs in order to participate successfully in family activi- ties. One participant stated: ‘Flexibility is my mantra’. 

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"I knew from my earliest years that I lived in a culture that trains disconnectedness"

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I noticed how much of an effect sensory difficulties had on families, significantly limiting opportunities to engage with the community outside the home because of unfamiliarity and unpredictability. I wonder if it would be more helpful for strangers to we aware or helpful and public places accommodating (ie sensory friendly movie) or therapy with individual to help them process sensory input better.

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How flexible families have to be to accommodate for the child's needs----scheduling and planning are such a big part of my everyday life and it's the only way I can be productive; it must challenging it is for families to be so flexible all the time

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"family routines, including school and work, can be troublesome when the children are not flexible and will not deviate from their own routines"

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"Having autism is the worst fate parents can imagine befalling their children and they dread its impact on their families." It's interesting to hear this quote come from a person with ASD because they feel a sense of not being wanted and can recognize this as being a burden to their families.

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Her relationship with the gorillas reminded me a lot of a favorite book of mine when I was in middle school about a young deaf girl who felt more connected to and comfort communicating with a rescued chimpanzee. The thread of finding more comfort in interacting with animals rather than other humans across different communication challenges was very interesting to me

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"I knew that when I had a child, like Congo, I wanted to weave a creation myth for him; a
creation myth about how my faults had become gifts, and how the world’s faults had become
gifts in turn, a myth that would help him remember who he was if he was like me, when his
living seemed hard or when he wondered about the world, as all born children do."

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having a unique perspective is a strength 

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having a unique perspective is a strength 

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"There is joy in his way of looking at things...He believes that because whales are several times greater than us that their thoughts are several times greater as well. He thinks that imaginary friends are just people from the past that other poeple forgot to play with" (64).

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"There is no doubt in my mind that if he had stayed so deeply embedded in the current culture that surrounds us he would have been diagnosed and would have gone on to lose his way, just as I had"

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"There is no doubt in my mind that if he had stayed so deeply embedded in the current culture that surrounds us he would have been diagnosed and would have gone on to lose his way, just as I had"

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our current culture doesn't allow people that are neurodiverse to thrive and explore what makes them unique.