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Girls in particular are being missed and falling through the cracks still in 2025.

Our daughter 4 times has been refused diagnosis because she is a high masker, so school either don’t see her needs or see them and don’t communicate this effectively on paper. We now have a school refuser because the environment is too much for her. Statements like she has traits of autism. but not enough for diagnosis on her 1st NDP report haven’t been helpful. Traits indicate more diagnostics are needed as she is somewhere on the very wide, not linear spectrum. I suspect we aren’t the only ones with a female who can’t get any help/ support until MH hits rock bottom.

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This is nonsensical. Neurodiversity refers to the natural variation in neurological development across the entire human population - it is a philosophical framework and social concept. It is concerning when an organisation gets this wrong showing a lack of knowledge - disguised as expertise

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How do you currently access support for neurodiversity and how would you like to access support?

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What has your experience been of these Pathways in St Helens and how do you think we could improve?

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Integrated offer for children and young people already open to CAMHS that would prevent the need to cross-refer between services and ensure the child’s most pressing needs are met in a timely way

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For children and young people who are prescribed medication for ADHD we want to provide an option for ongoing management of this via the child's GP.

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In St Helens we aim to have a more joined up pathway for neurodiversity, in particular for autism and ADHD.

We also aim to have a more child centred approach with assessment and decision processes based on the individual child.

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A tool has been developed to help assessment providers to identify risk factors in children and young people referred and to prioritise assessments based on level of need.

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We understand it isn't always clear where to go for help, including for neurodiversity queries.

We want to try to change that and introduce a local team that you can contact for all matters related to the profile tool, neurodiversity and local support offer.

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We would also develop a resource that can be downloaded that provides ideas and practical support available within each of the categories of the Profile Tool.

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SEND Information Hub and Neurodiversity Zone

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SEND Information Hub and Neurodiversity Zone

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Information would be available within these online resources aligned to the Profile Tool categories described under Change 1 i.e. Sensory, Communication, Energy Levels etc.

This would include help to understand neurodiversity and each category; access to local and national websites for further information and support; details of local support available; practical things to help that parent carers, children and young people and professionals can try together.

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Parent Carers will be able to access a briefing session to learn more about neurodiversity and the Profile Tool - 1 hour online session.

Professionals will be able to use the tool after attending an online training session.

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A strategies and support resource will be available in St Helens for use by parent carers, children and young people and professionals.

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Parent Carer or Professional identifies need for support. Bring together necessary people to complete the profile. Co-produce a support plan, inclusive of graduated approach, and review after 12 weeks.

At review can discuss a need for NDP referral - if there is a need the profile will form main part of this meaning no more paperwork to complete.

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Early Help Tool designed to capture a holistic understanding of a CYP, completed by professionals (minimum education rep) and parent carer and CYP (if appropriate).

A C&M Tool is still being developed but could include gaining an understanding of a child or young person's needs against categories such as sensory, communication, energy levels, emotion regulation, motor skills, social skills etc.