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Motor neurone disease - a family affair 

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Motor neurone disease - a family affair 

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Author - dr David Oliver
1995
Sheldon press - London

( chapters 1 and 2 = notes made in black book
Chapter 7 = pictures on I pad )

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All NICE products on end of life care. Includes any guidance, NICE Pathways and quality standards.

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All NICE products on motor neurone disease. Includes any guidance, advice, NICE Pathways and quality standards.

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Palliative care for children represents a special, albeit closely related field to adult palliative care. WHO's definition of palliative care appropriate for children and their families is as follows; the principles apply to other paediatric chronic disorders (WHO; 1998a):

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Very medical model definition and explanation of MND

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What is MND and symptoms
Page 7 variants of MND
Page 8 types of MND
How OT should work with someone who has MND

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Page 4 - Spectrum of rehabilative goals
Page 5 - interface between rehabilitation and palliative care
Page 6 - rehabilitative palliative care links to occupational justice

Cortell study - page 7 need for independence in palliative care