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Carers Australia works to improve the health, wellbeing, resilience and financial security of carers.

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Check out more here!

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Tools to help advocate to early diagnosis and treatment for people with immunodeficiencies.

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Find the toolkit here!

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Carer Gateway is an Australian government program providing free services and support for carers. 

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Learn more about here!

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Ben was introduced to the immunodeficiency community more than 15 years ago, when he met his wife, Lisa. This is where his journey as a carer began.

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Read Ben's story!

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Alison is a mum from SA who cares for her two daughters, Lauren and Beccy. Primary immunodeficiency affects nearly every part of their daily lives—from managing medications and food supplies to arranging medical care and spending much of their time at home. 

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Olivia is the mother of 5 year-old Jude who was diagnosed with IRAK-4 deficiency at 14 months old. Jude is 1 of 75 people worldwide who have been diagnosed with this condition. In early 2024, Jude completed his 200th immunoglobulin therapy!

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NDIS and Primary Immunodeficiencies               

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NDIS and Primary Immunodeficiencies               

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Watch the webinar here!

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Watch the webinar here

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Carers' Health and Wellbeing                             

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Carers' Health and Wellbeing                             

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Watch the webinar here!

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All IDFA members are welcome to join this Facebook group! It's a great place to ask for answers or insights. 

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IDFA Connect - for all members

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Based in QLD, Louise's daughter Isabelle was diagnosed with Severe Combined Immune Deficiency (SCID) at 4 months of age. Isabelle spent 94 days in hospital, survived a Stem Cell Transplant and was able to isolate at home with her family while her immune system slowly reconstituted. 

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Member-led Community Catchups? In-person Coffee Club? IDFA-led State Meetups or workshops? There's lots of ways to connect with other members. 

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Find upcoming events here!

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IDFA's Member Stories help us raise awareness of immunodeficiencies across Australia. If you're interested in sharing please reach out!

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Share Your Story                                          

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Share Your Story                                          

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Click here to email the IDFA!

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Getting IDFA resources into healthcare settings is an important part of raising awareness about immunodeficiencies and building our community!

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Find out more here!

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By becoming a Peer Mentor, you can make a meaningful impact while building connections within the IDFA community.

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Find out more here!

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These are carer-specific IDFA groups on Facebook.

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IDFA Carers Connect

IDFA SCID Connect

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The Carer Network News (CNN) provides updates to carers via a fortnightly bulletin. 

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Sign up here!

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A WhatsApp group for our members to stay up to date and connected – super easy to use, right from your phone!

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Join our WhatsApp group!

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Circle of Support offers peer mentoring for members facing a new diagnosis or other significant challenges. 

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Find out more here!

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YCN directs younger carers (up to age 25) to supports around the country.

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Young Carers Network website

Young Carer Bursary now open