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Hemophilia is a rare disorder in which your blood doesn't clot normally because it lacks sufficient blood-clotting proteins clotting factors. In Kenya, one in ten thousand people are born with hemophilia, though some of us in developed countries have easy access to treatment that grants us to still live normal lives, unfortunately in Kenya it is not that easy for more than half a million people in low and middle-class income countries. For individuals in these countries, hemophilia can be their worst nightmare, most likely leading to death.

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One in every ten thousand people in Kenya’s population are born with or struggle with Hemophilia. Hemophilia is a medical condition in which the ability of the blood to clot is severely reduced, causing the sufferer to bleed severely from even a slight injury. The condition is typically caused by a hereditary lack of a coagulation factor, most often factor VIII. Hemophilia is hard to handle due to the lack of resources, low awareness across the medical profession and lack of proper health care infrastructure and human resources suitable for hemophilia care. Kenya has put Treatments, clinics such as Kenyatta National Hospital, and services such as coaching’s over the phone to help patients through the process of injecting. Also, resources can
be sent to patients who cannot reach the hospital. Factors have been put in place to help maintain the disease and take on a race to treat Hemophilia in Kenya.

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Health workers are educated beyond the four public hospitals with hemophilia clinics which saves people the financial and emotional stress of travelling extreme distances. Hospital staff can send factors and resources by bus or motorbike taxi to patients’ local health facilities or even their homes. People can be coached over the phone through the process of injecting or infusing factor. Even in Nairobi, doctors send factor to patients who cannot reach the hospital when there are chronic traffic jams or when they have no one to accompany them.

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Kenyatta National Hospital in Kenya, is a comprehensive hemophilia care clinic which has been established to serve hemophilia patients from around the country. There are registered nurses at facilities who are trained to administer an intravenous clotting factor to stop and prevent bleeding in patients with hemophilia. The medications needed stop bleeding in hemophilia patients are called factor concentrate. Moreover, a clinic was opened with the help of the Novo Nordisk Hemophilia Foundation, which invests in effective training and facilities for hemophilia patients in countries like Kenya, where services are limited.

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Hemophilia disease is treated by injecting a clotting factor concentrate into a vein. It costs about $150,000 in Kenya dollars to provide the treatment to a baby for three days, for an adult, it depends on weight but treatment can be three times more than that amount.

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Challenges in Managing Hemophilia in Kenya

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Challenges in Managing Hemophilia in Kenya

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There are major challenges in managing hemophilia patients in developing countries. These challenges are lack of proper health care infrastructure and human resources suitable for hemophilia care, competing health care priorities of the government, and lack of penetrate of medical insurance in the population. Other challenges faced are low awareness across the medical profession, population and the policy makers about the condition, which causes ignorance to manage the disease, causing inadequate pain relief and Inadequate utilization of knowledge for reducing factor concentrate use.

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Most health care facilities in Kenya are below international standards with limited resources, and limited capabilities. Public hospitals are understaffed, poorly equipped and lack supplies. On the other hand, Basic primary care is provided at primary healthcare centers and dispensaries.