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Person living with Dysarthria – Dr. Bob Segalman

Bob Segalman was born on December 4, 1942. He was born with cerebral palsy (dysarthria) at a time when inclusion, mainstreaming, and special education didn’t exist. Due to this, he has to suffer a lot in his whole life. There were no medication and treatment available at that time. He was often segregated in public places. It was very difficult for him to communicate with others due to his slurred speech. People used to mock him. On the polite request of his father he was permitted to pursue his studies in the nearby school named kindergarten. Later, a social worker discovered a teacher named Alice Erskine at Irving School who was interested in working with children who had dysarthria. In the early days of schooling, Bob was accompanied by his mother who stayed just to translate his speech. Later on, teachers were able to recognize Bob’s words and mother attendance became less necessary.

Bob was a curious student. Teachers were highly impressed by him. They had never seen a child with a disorder who wanted to learn how to read as much as Bob did. With the help of plucky parents and an unsinkable attitude, he not only stayed out of an institution, but also attended public school and eventually graduated with a Ph.D. in social welfare/sociology. His family was very supportive. Due to their supportive nature and with speech therapy he was able to overcome the hurdles of life. He shared a healthy relationship with his siblings who were not having speech disorder. His brother often helped him in communicating with other.

He was accompanied by several helpers who were there to help him. For fulfilling basic requirement such as eating or even drinking water, he had to depend on the helper. He faced lots of difficulties in public places. At first, people do not realize the pain he was

undergoing with the disorder. He was often being humiliated in public places and even in

schools and colleges. People around him used to mock over his slurred speech. Whenever he met with new people. He had to fight for his fundamental rights.

His marriage life was not simple as it to be. He had to depend on his wife. He was having tough times with her wife. He always thought that he was not able to make his wife happy and hence left her.

He always wanted to work for people suffering from disorder He was one of the first people with a significant disability to work full-time for the State of California for 30 years. During those years, he made numerous contribution in the field of speech disorder, he was amongst the few people with severe cerebral palsy who got privileged to enjoy a long-time career in a professional capacity. He was firstly employed as a social worker, then as a crime statistician, and finally as a rehabilitation researcher. His magnum opus was the founding of Speech to Speech, a federally mandated telephone service for people with speech disabilities.

Speech-to-Speech telephone service uses trained communication assistants (revoicers) for people who have trouble being understood on the telephone. Dr. Bob Segalman's efforts have benefited all people with speech disabilities, giving them telephone access like never before.

2.1  Observations

It is very important for people with disabilities to cope well with the reactions of others to our conditions. In many ways, their success in life depends on our ability to motivate them to respond to their disabilities in a positive manner. A Person with the disorder should be given special attention.  The patient often feels depressed. So we should not make fun of them. We should help them in improving their communication skills.

a)Education:

From the studies, we found that educational reforms should be done for their education. There be should be special training for teachers as Bob introduced in case of speech to speech. They should provide regular speech therapy to improve their communication skills. They should gain as much as education as they can so that they could become independent.

.b) Assistance:

Various groups and organization should come together to provide assistance to people with the disorder. We can provide speech assistant to them so that they can express their thoughts. We should talk patiently while communicating with them.

c)Handling stress

Depression and frustration are commonly seen in patients. They should find different recreational activities to release stress. They should have an annual mental health checkup with a mental health professional.

d)Dysarthria in children

Parents should be supportive if their child is having a disorder. Family support acts like a therapy. Some children with disabilities express their rivalry by subconsciously making their medical condition worse to gain parental attention. So, parents should look after the needs of children.

e) Marriage

They should be cautious while marrying a girl. They should be aware of their disability can lead to destructive and/or codependent relationships. If they want to marry they should choose their partner wisely. One who can understand their feelings . They should wisely take decision whether they should have children or not.

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can,could,(be )able to

Practicing can,could and(be) able to

1.George has travelled a lot.he can speak four languages.

2.I haven’t been able to sleep very recently.

3.Sandra can Drive but she hasn’t got a car.

4.I can’t understand martin.i’ve never been able to  Understand him.

5.I used to …………. stand on my head but I can’t do it  now.

6.I can’t see you on Friday but I  could meet you on Saturday morning.

7.Ask Catherine about your problem. She might able to help you.

Write sentences about yourself using the ideas in brackets

1.(something you used to be able to do) I used to be able to sing well.

2.(something you used to be able to do)I used  to be able to innovate.

3.(something you would like  to be able to do)

I’d ……………………………………………………………………….

4.(something you used have never been able to do)I’ve never been able to improve my speaking skills.

Can can’t could couldn’t+one of these verbs:

Eat hear run sleep wait

1.I am afraid I can’t come to your party next week.

2.When tim was 16,he was a fast runner.He can run 100 metres in 11

Seconds.

3.‘Are you in a hurry?’.’No, I have got plenty of time.I couldn’t wait’

4.I was feeling sick yesterday.I couldn’t eat anything.

5.Can you speak up a bit? I can’t hear you very well.

6.‘You look tired.’ ‘Yes,I couldn’t sleep last night.

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The demonetization
The story kicked off from the money which I borrowed from my friend.
since I was not having money to book my journey tickets so I
borrowed money to book tickets for upcoming holidays.later, he asked me to repay the money back.
I was a bit reluctant to give off the money because I was having exam stress on my head.But, he asked to repay the money back after the exams and I also agree for the same. after, the exams were over, we head towards the atm nearby the hostel.
I switched my atm card in and finally got a 2000 rupees note. I was delighted and thought that I will finally repay him the money back.
But, it proved to be the beginning of a new problem.

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Ruskin Bond
Narayan
amish tripathi
chetan bhagath
kiran desai

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What a crazy day it was. I was not believing i myself that i have accepted that old currency.I blamed my friend for all the incident.He was responsible for
all that happened tht day and so i forced him to take the old currency to clear debt. First,he showed reluctance but i kept convincing him.I put many reasons
so that he can understand my circumstances and i can get away from the old currency note.I told him that i have to go home and so i won't be able to exchange the
note. I also suggested him that he was having a private bank nearby where he can get the currency exchanged. But, he refused to do so.I made another attempt,i held him responsible for all this
and i forced him to take the old currency.I also told him that if he won't be able to get it exchanged then i will pay him back.And at last he took that old currency
and this is how i get out of the problem.   If he gets the currency exchanged..................

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Due to demonetization, there was a rush in the atm. And getting money out of the atm was a tedious work in these demonetization
days.So,I was finding alternative ways to get the change. I somehow managed to convince my friend that I will repay the money after the exams.
After the end semester was over, we planned to have lunch outside so that we can get the change in return.So, we moved to the nearby hotel
.I was little cautious about the money so i suggested my friend that he should  first ask about the change of Rs.2000.
But the owner clearly rejected to give change of Rs.2000 and so plan failed.We came out of the hotel and cancelled lunch.
Though, we were little dissapointed we headed towards the next restaurant but this we didn't ask about the change of Rs.2000 before the
the lunch rather we planned to ask for it after the lunch.we had a great lunch there better than the mess. We also ordered
desert too so that the bill raise. Now finally it was the time for getting the change of 2000.Firstly, the owner asked for payment through
debit card but we denied and told him that we were not having debit card. so the owner agreed for cash payment. i forwarded the
big note that i was carrying.He was cleaver too and gave us the old 500 currency note. i was not taking the currency note but
my friend insisted me to take the note.he explained that after all he is giving us the change. I also agreed to him and took
that note as i was not able to shop anything with the pinky Rs.2000 note.

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The demonitization
It all atarts from a debt which i had taken from a my friend.I was not having money to book my tickets for the holiday
so just called one of my friend and took money to book tickets.As it was a  debt so my friend aksed me to return the money
it was our end sem so i was bit reluctant to give off the money hence i decided to hi back after the xam.But, he forced me to clear his debt
and i was being convinced by him to clear  his debt so i headed towards the atm nearby the hostel and switched my debit card in and finally got
a 2000 rupee note i thought that i might be able to clear his debt and the story will get over.but this incidence marked the beginning of ht e story
which was getting change of 2000 rupees note.
to be contiued.........

Don't use terms like debt
repay the money, return the money.

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So, i was really dissapointed after the cricket selection. After a while,i was being called for football selection.Every player was asked to hit a goal and so was i.And i was being asked to hit a goal by a sir. I just focused and hit the the goal.I was amazed by my shot and rest were suprised too. Samiran complimented me 'what a shot sattu'.By sir was not anot at all happy. He asked me to hit the ball one more time, i again hit the ball the right in to goal. Now, sir asked me to me the ball once more time but this time without the shoes,it was really difficult and i opted for a grounded shot.But, sir was not interested in the shot and told me that i lack sports spirit. Then,a senior came to me and asked him to teach me how to deliverthe ball. He told me the way i should hit the ball. I mummered 'bad day'.I was sure that i won't get selected.So,dissapointment again.A senior came there and announced that eleven players are selected and six has to be selected next day. I was in the six member slot.A ray of hope!

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 The selections                                                                      on saturday, selections were to be done for iiitg sports meet. I was quite excited for the selection as i was also going for the football selection as well as the cricket selections. There were two buses which were carrying the players from hostel to the oil india’ s playground the weather was harsh that day. It was a sunny day. first the football players were directed to take three rounds of the playground. I also ran three rounds. It was very difficult to run three rounds consecutively three rounds. I got tired but i motivated myself to sustain in the field.Since,i was not feeling well,i ran out of the playground to have some refreshment. When,i came back,cricket coach asked me to ball.i ball the first but it was not bowled correctly as i used my wrist power to ball. So, coach told me to ball the next ball and to deliver the power from the shoulder but i was unable to ball correctly and hence i was not selected for the cricket team.

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 The selections                                                                      on saturday, selections were to be done for iiitg sports meet. I was quite excited for the selection as i was also going for the football selection as well as the cricket selections. There were two buses which were carrying the players from hostel to the oil india’ s playground the weather was harsh that day. It was a sunny day. first the football players were directed to take three rounds of the playground. I also ran three rounds. It was very difficult to run three rounds consecutively three rounds. I got tired but i motivated myself to sustain in the field.Since,i was not feeling well,i ran out of the playground to have some refreshment. When,i came back,cricket coach asked me to ball.i ball the first but it was not bowled correctly as i used my wrist power to ball. So, coach told me to ball the next ball and to deliver the power from the shoulder but i was unable to ball correctly and hence i was not selected for the cricket team.