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Meaningful participation of disabled person in decision making of all nations. Persons with disabilities often face numerous barriers when exercising their right to participate in and make decisions that affect their basic rights. These barriers include insufficient supportive services, limited access to services and information, discriminatory practices, and challenging economic and social conditions. 

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Meaningful participation of disabled person in decision making of all nations. Persons with disabilities often face numerous barriers when exercising their right to participate in and make decisions that affect their basic rights. These barriers include insufficient supportive services, limited access to services and information, discriminatory practices, and challenging economic and social conditions. 

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Through the project those with direct lived experience of the issues and solutions in their communities and the right to advocate - disabled people themselves - are able to act as agents of their own change, with decision-making power to spend funding according to their own priorities.

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Through the project those with direct lived experience of the issues and solutions in their communities and the right to advocate - disabled people themselves - are able to act as agents of their own change, with decision-making power to spend funding according to their own priorities.

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Focus on people with disabilities facing multiple intersecting forms of oppression as they are left furthest behind

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Focus on people with disabilities facing multiple intersecting forms of oppression as they are left furthest behind

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Emerging Research Agendas for Disability and Inclusion in the Global Southmore in this dock file

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Emerging Research Agendas for Disability and Inclusion in the Global South:

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Emerging Research Agendas for Disability and Inclusion in the Global South:

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1.      Decolonizing Disability Studies:

·         Shifting the narrative towards understanding disability within the context of social inequalities prevalent in the global south.

·         Prioritizing the voices and perspectives of disabled individuals and communities in the south, challenging dominant narratives and promoting self-representation.

·         Examining how disability intersects with other forms of marginalization like race, class, gender, and sexuality, creating a nuanced understanding of lived experiences.

2.      Rethinking Disability and Development:

·         Disability and the Sustainable Development Goals (sdgs): Exploring how the sdgs can be made truly inclusive for disabled people, addressing specific challenges and promoting their participation in development processes.

·         Investigate the disproportionate impact of climate change on disabled communities in the south, advocating for inclusive solutions.

·         Analyze the barriers faced by disabled individuals in accessing employment and livelihoods, promoting inclusive economic policies and initiatives.

·         Analyze how development projects can unintentionally exclude or harm people with disabilities.

·         Develop relevant strategies for integrating disability into all development goals.

·         Focus on community-driven solutions: Empower communities with disabilities to lead and participate in development initiatives.

3.      Arts and Humanities as Tools for Inclusion:

·         Utilize storytelling, performance, and other artistic expressions in Amplifying the voices and experiences of people with disabilities in the global south.

·         Analyze the role of art in disability activism and social change.

·         Examine how art forms in the south portray disability,.

·         Accessible arts and cultural practices: Developing and promoting accessible arts and cultural experiences for disabled people, fostering participation and creative expression.

·         Disability and storytelling: Utilizing storytelling and narrative forms to share the experiences of disabled people in the south, raising awareness and promoting empathy.

4.      Accessible Technologies & Communication:

·         Develop appropriate assistive technologies: Consider language, affordability, and accessibility in designing technologies for diverse needs.

·         Promote digital inclusion for people with disabilities: Address the digital divide and ensure equitable access to information and communication technologies.

·         Accessibility of technology and information: Researching and advocating for accessible digital technologies and information for disabled people in the south, addressing infrastructure challenges and promoting digital literacy.

·         Disability and social media: Investigating the role of social media in empowering disabled communities in the south, promoting online activism and advocacy.

·         Digital storytelling and disability: Exploring how digital platforms can be used by disabled people in the south to share their stories and experiences, fostering connection and community building.

Gaps in Research:

i.            Limited data and research on disability in the global south: More research is needed to understand the specific needs and experiences of disabled people in different regions and contexts.

ii.            Lack of funding and resources for disability research: Increased funding and support are needed to attract and retain researchers and build research capacity in the south.

iii.            Limited collaboration and knowledge exchange: There is a need for stronger collaboration between researchers, disabled communities, and policymakers to ensure research is relevant and impactful.

iv.            Lack of accessible research methodologies: Develop inclusive research methods that are culturally appropriate and accessible for people with disabilities.

v.            Weak data and knowledge gaps: Address the lack of data on disability in many countries and the need for culturally relevant research tools.

vi.            Disconnect between research and policy: Ensure that research findings inform policy decisions and lead to meaningful change.

From a process perspective, several key elements need to be considered when crafting future research agendas in the global south, particularly in the area of disability and inclusion:

1.      Inclusivity and Participation:

·         Ensure meaningful participation of disabled communities, researchers, policymakers, and practitioners throughout the entire research process, from agenda setting to dissemination of findings.

·         Prioritize research topics and methodologies that are driven by the needs and priorities of disabled communities themselves.

·         Involve researchers from diverse backgrounds and disciplines to create a more comprehensive and nuanced understanding of disability and inclusion.

2.      Capacity Building and Collaboration:

·         Develop and strengthen research capacity in the global south by providing funding, training, and resources to researchers and institutions.

·         Encourage collaboration between researchers, practitioners, and communities from different disciplines and sectors to address complex challenges.

·         Facilitate the sharing of research findings and best practices through open access platforms, regional networks, and South-South knowledge exchange initiatives.

3.      Ethical Considerations:

·         Ensure that research is conducted ethically and respectfully, following relevant guidelines and principles, and with the informed consent of participants.

·         Pay particular attention to the ethical considerations of research involving marginalized groups within the disabled community, such as children, women, and people with intellectual disabilities.

·         Ensure that disabled communities have control over their data and how it is used, promoting data sovereignty and preventing exploitation.

4.      Sustainability and Impact:

·         Focus on research that is solution-oriented and informs policies, programs, and interventions that can improve the lives of disabled people in the global south.

·         Effectively communicate research findings to policymakers, practitioners, and the wider public to raise awareness and advocate for change.

·         Implement mechanisms to monitor and evaluate the impact of research and ensure that it is making a positive difference on the ground.

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Emerging Research Agendas for Disability and Inclusion in the Global South

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When engaging in emerging arts and humanities research agendas in the disability and inclusion arena, a consideration of the long-term impact on the disabled community is imperative. This extends beyond the immediate findings of the research and delves into the broader implications for positive change, policy development, and societal attitudes.

This carefully involves recognizing the multifaceted nature of the disability and understanding that the impact of research may vary across different subgroups within the disabled community. It requires sensitivity to the historical, cultural, and socio-economic contexts that shape the experiences of individuals with disabilities.

As researchers, we must learn to go beyond a simplistic evaluation of outcomes and delve into the nitty-gritty of how our work contributes to the larger narrative of disability inclusion. Assessing long-term impact also demands an awareness of the potential unintended consequences of the research.

We must consider how our findings might be interpreted, applied, or misused in different contexts. This perspective ensures that the research contributes positively to the lives of individuals with disabilities without reinforcing stereotypes, stigmas, or marginalization.

Impact assessments serve as a tool for accountability. We could transparently demonstrate how the research has contributed to positive change, informed policy development, or shifted societal attitudes. This accountability is crucial for maintaining the integrity of the research process and ensuring that the goals of promoting emerging arts and humanities research agendas in disability and inclusion are met. - Racheal Inegbedion.

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The thematic emphasis on Policy and Advocacy within the disability and inclusion research agenda depicts the relationship between socio-political dimensions and the lived experiences of individuals with disabilities across continents. This theme reflects a commitment to understanding, critiquing, and advancing policies that directly shape the inclusivity and well-being of disabled communities. This involves going beyond the textual analysis of policies to explore how they are implemented, interpreted, and experienced on the ground. As researchers, we need to systematically analyze the contextual factors that influence various disability policy outcomes that affect persons with disabilities, providing insights into how policies can be tailored for maximum inclusivity. We need to authentically explore how various disability policies intersect with other social constructs, such as race, gender, and socioeconomic status. Our authenticity in policy and advocacy research involves employing robust methodologies that capture the complexity of socio-political dynamics. This implies that we could navigate the challenges of data collection, ensuring that the voices of individuals with disabilities are prioritized; which in turn will enable us to draw reliable conclusions and offer evidence-based recommendations for policy improvements - Racheal Inegbedion

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Another thing to consider for future disability research is to investigate and scale up the proven innovation for enhancing inclusive education for people/students with disability.

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As a network we are really struggling with due diligence and timesheets. The admin burden to community collaborators is too great and I have lost one partner due to the burden of the process. The process does not seem to have any accessible options. It creates a barrier to participation and makes research collaboration a burden

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As a network we are really struggling with due diligence and timesheets. The admin burden to community collaborators is too great and I have lost one partner due to the burden of the process. The process does not seem to have any accessible options. It creates a barrier to participation and makes research collaboration a burden

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Civic education materials and tools (in-person or online) for young people with disabilities. Games and apps to learn about democracy, advocacy, etc.

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Civic education materials and tools (in-person or online) for young people with disabilities. Games and apps to learn about democracy, advocacy, etc.

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Action-research testing tools and methods and evaluating impacts.

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Action-research testing tools and methods and evaluating impacts.

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Methods, tools and processes to increase participation of persons with disabilities to humanitarian response programme cycle: Prefered low cost methods of communication usable by mainstream organisations to allow feedbacks, complaints and proposition to improve service delivery.

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Methods, tools and processes to increase participation of persons with disabilities to humanitarian response programme cycle: Prefered low cost methods of communication usable by mainstream organisations to allow feedbacks, complaints and proposition to improve service delivery.

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leadership capacity building in media production/training (e.g. disabled people training peers in the use of social media)

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leadership capacity building in media production/training (e.g. disabled people training peers in the use of social media)

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media engagement for physical/psychological/economic wellbeing in the disability community

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media engagement for physical/psychological/economic wellbeing in the disability community

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Funding to collect personal stories of road crash victims to compel governments to implement evidence based solutions

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Funding to collect personal stories of road crash victims to compel governments to implement evidence based solutions

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social media participation and inclusion (e.g. fostering opportunities for blind YouTube vloggers)

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social media participation and inclusion (e.g. fostering opportunities for blind YouTube vloggers)

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media literacy skills for media makers, activists, charities, etc. to represent disability in inclusive, diverse and non-stigmatising ways

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media literacy skills for media makers, activists, charities, etc. to represent disability in inclusive, diverse and non-stigmatising ways

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inclusion of disabled people in mainstream media (off-screen and on-screen) - this includes inclusive media making initiatives

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inclusion of disabled people in mainstream media (off-screen and on-screen) - this includes inclusive media making initiatives

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The mediation of disability in the public sphere

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The mediation of disability in the public sphere

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Including both (self)representation and impacts on public attitudes/ social change

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Funding to research with young people who use assistive technologies to communicate

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Funding to research with young people who use assistive technologies to communicate

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Collaborative research with disabled children and youth that starts from their lived experience. Funding to pay for young people's real time on involvement and to develop accessible outputs from the research using creative media.

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Collaborative research with disabled children and youth that starts from their lived experience. Funding to pay for young people's real time on involvement and to develop accessible outputs from the research using creative media.

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Specific funding to focus on the participation rights of disabled children as per UNCRC

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Specific funding to focus on the participation rights of disabled children as per UNCRC

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funding to focus on experiences of disabled people in education

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funding to focus on experiences of disabled people in education

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Methodology and improving data collection 

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Methodology and improving data collection 

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Disability in the global south : decolonising disability 

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Disability in the global south : decolonising disability 

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More funding for disability focused networks!

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More funding for disability focused networks!

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Application process that allows funding for bid development to include non-academic partners in a just way. E.g. expressions of interest and small funding pots to develop the bid with partners. 

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Application process that allows funding for bid development to include non-academic partners in a just way. E.g. expressions of interest and small funding pots to develop the bid with partners. 

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How do we capacity build with partners (often unfamiliar with research) to develop them as research leaders?

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How do we capacity build with partners (often unfamiliar with research) to develop them as research leaders?

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Challenges of working with partners from some countries. 

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Challenges of working with partners from some countries. 

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E.G. Cuba due to the US embargo, culture, social structures, poor internet

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Specific funding for researching the history of disability in different contexts

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Specific funding for researching the history of disability in different contexts

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More research focused on working with 'hard to reach' countries and context.

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More research focused on working with 'hard to reach' countries and context.

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Partners working without getting paid, or asking them to pay up front

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Addressing power imbalances rather than reinforcing them.

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More research needed on sex/sexual health and disability

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More research needed on sex/sexual health and disability

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Research gap on attitudinal barriers to disability and stigma

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Research gap on attitudinal barriers to disability and stigma

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Challenges with regards to due diligence 

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Challenges with regards to due diligence 

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Particularly working with OPDs/grass roots organisations

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More funding specifically to focus on people with learning disabilities

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More funding specifically to focus on people with learning disabilities

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E.G. in South Africa