# data[].attributes.headline
A. Environment scans and surveys - solutions that exist  - (document this scan)

# data[].attributes.subject
A. Environment scans and surveys - solutions that exist  - (document this scan)

# data[].attributes.body
1. Survey of at least 10 products (physical/digital) and/or services (programs) that currently exist to solve the Parkinson problem you have identified

# data[].attributes.body
All of these examples have one thing in common, which is an attempt at educating / supporting women with PD.

Many have gaps in information, like not looking at pregnancy or hormones. Other examples work more as a gathering place or examples of real-life experiences. All are great information for me to gather.

# data[].attributes.body
Digital service/resource

Gives basic information on women living with Parkinson's

https://www.parkinson.org/sites/default/files/documents/women-and-parkinsons-research-and-care-agenda.pdf

# data[].attributes.attachment_link.readable_text
Sex and gender differences can drastically impact health and are important to consider when it comes to Parkinson's disease (PD). With information and awareness of the key issues women with Parkinson's face, our hope is to help you feel empowered to advocate for the care and quality of life you deserve.

Sex and Gender

Sex is a biological identifier generally determined at birth (male or female).

Gender is how a person identifies.

There are differences in the way men and women experience Parkinson's. While women are not adequately represented when it comes to Parkinson's research, studies have shown that women with Parkinson's:

Are less often diagnosed and encounter greater hurdles to get an accurate diagnosis

Report different symptoms compared to men with PD - such as more side effects and changes in symptoms throughout the day

Are more likely to downplay symptoms

Receive lower-quality healthcare than men

Are less likely to seek treatment from a PD specialist, such as a neurologist or movement disorder specialist

More information and further research studying the differences between men and women with Parkinson's are needed to ensure that women are receiving equal treatment and care.

Stories from Women with PD

Risk

Women have a lower risk of developing Parkinson's, but the underlying reason for this has not yet been determined. Likely, the cause is due to several factors such as biology, environmental exposures and behaviors.

Treatment

Men and women take similar medications to combat PD symptoms. However, women are more likely to experience medication-related dyskinesias (involuntary, erratic movements), motor fluctuations and "wearing off" of medication.

Deep brain stimulation (DBS) is a treatment option that can help manage motor symptoms. Despite women having greater reported improvements to quality of life compared to men following DBS, women are less likely to receive the surgery.

Women also experience more non-movement symptoms than men with PD and are more likely to be prescribed antidepressants and benzodiazepines for anxiety. Pain management is similar for men and women living with PD.

Research

Women have been and continue to be underrepresented in Parkinson's research. Research on women's experience with PD underscores the need to focus on this important population of focus in the PD community.

Sex and gender differences are often not considered in both PD research and clinical care metrics but need to be, moving forward. Research has shown that:

Women and men with PD report different symptoms and severity to their care team, but researchers have yet to identify women-specific symptoms.

Small changes in medications or schedule can cause women to experience big changes in symptoms, with dyskinesias being the most frequently reported side effect.

Women with PD are more likely than men with the disease to live and attend medical appointments alone.

Additional PD research should be conducted to understand how biological differences between men and women manifest in PD and how this affects treatment options.

The Parkinson's Foundation believes that all Parkinson's research needs to examine the effect of biological sex, including sex hormones, on PD risk, progression and response to treatments.

The biological reasons for the differences between the sexes are largely unknown and unexplored but nonetheless very important because understanding these differences could ultimately lead to personalized and more effective treatments that are targeted to males or females.

Estrogen Research

The relationship between estrogen and Parkinson's is complicated and needs more research. Of the limited studies on estrogen and Parkinson's, there is some data to support these theories:

Hormones, namely estrogen, may be a factor in reducing PD risk in women.

Estrogen may also be neuroprotective, possibly accounting for later PD onset in women.

Longer duration on hormone replacement therapy (HRT) was associated with reduced risk of PD, although there has been conflicting data on this topic. We do not know if HRT can help treat fluctuations in PD symptoms.

Care

Since women are more likely to attend PD appointments alone and live alone, Parkinson's care must be made more accessible and available to women.

Parkinson's Foundation research has found that PD programs should target health, wellness and management of PD, and should be designed to be more welcoming to women. PD care programs must also focus on helping women feel comfortable and included.

Women with PD experience a greater quality of life when medical professionals work alongside them to manage care, identify treatment goals and minimize miscommunication. Medical professionals should focus on transparency, shared decision-making, and empathy to enhance communication between patient and clinician.

Mental Health

Women with PD have significantly less social support, more psychological distress, and worse self-reported health-related quality-of-life at initial PD care visits, compared to men.

Women with Parkinson's can choose to prioritize their mental health through any treatment that they find beneficial - including finding a counselor, joining a support group or any other outlet that brings relief.

Mental Health & Parkinson's

Maintaining mental health is essential to living well with Parkinson's, and can help manage movement symptoms.

Pregnancy

Research on pregnancy and Parkinson's is sparse. Parkinson's does not appear to increase the risk of birth complications or birth defects. About half of women with Parkinson's who become pregnant experience worsening of their PD movement symptoms during pregnancy, according to a review of the existing research.

Limited evidence suggests that levodopa can safely be taken during pregnancy. Breastfeeding while taking PD medications is typically not advised, because so little is known about their absorption into breast milk.

About 400 women under the age of 50 are diagnosed with PD in the U.S. each year. It is unknown how many become pregnant. There have been no formal clinical trials on pregnancy and Parkinson's. PD researchers are working to collect data on women with PD who become pregnant, which would help develop guidelines for providing better care.
Learn More About Female Sexual Health
Tips for Women with Parkinson's

These tips can help women living with Parkinson's navigate this disease:

Seek expert care. Find a specialist who can provide a diagnosis and manage symptoms. It's never too late to find a PD specialist you trust.

Join a Parkinson's research study. Help bridge the gender and sex research gap in the PD field.

Work alongside your care team and PD doctor to identify goals for treatment.

Report all symptoms and medication side to your care team.

Find a support system that works for you. Women are more likely to go to doctors' appointments alone, and not have a care partner. Find a support group, mental health professional, or group of friends that offer support.

Making an Impact

The Parkinson's Foundation brings awareness to women-specific issues to help improve the health and well-being of women with PD. Women and Parkinson's: Closing the Gender Gap in Research and Care is the first national research and care agenda specific to women with PD to address the disparities that they experience. Read the agenda now.

The Parkinson's Foundation believes in inclusivity when it comes to women in PD research. We fund women-specific Parkinson's research grants and enroll women and men in our genetics study, PD GENEration: Mapping the Future of Parkinson's disease.

Resources

Utilize these Parkinson's Foundation tools at any time:
Page reviewed by Dr. Mara Seier, Assistant Professor in the Department of Neurological Sciences at the Nebraska Medicine Movement Disorders Center.

Related Materials

Related Blog Posts

Connect with Others

Explore our PD Conversations discussion groups to find answers or talk to others going through similar experiences.

Sex and gender differences can drastically impact health and are important to consider when it comes to Parkinson's disease (PD). With information and awareness of the key issues women with Parkinson's face, our hope is to help you feel empowered to advocate for the care and quality of life you deserve.

Sex and Gender

Sex is a biological identifier generally determined at birth (male or female).

Gender is how a person identifies.

There are differences in the way men and women experience Parkinson's. While women are not adequately represented when it comes to Parkinson's research, studies have shown that women with Parkinson's:

Are less often diagnosed and encounter greater hurdles to get an accurate diagnosis

Report different symptoms compared to men with PD - such as more side effects and changes in symptoms throughout the day

Are more likely to downplay symptoms

Receive lower-quality healthcare than men

Are less likely to seek treatment from a PD specialist, such as a neurologist or movement disorder specialist

More information and further research studying the differences between men and women with Parkinson's are needed to ensure that women are receiving equal treatment and care.

Stories from Women with PD

Risk

Women have a lower risk of developing Parkinson's, but the underlying reason for this has not yet been determined. Likely, the cause is due to several factors such as biology, environmental exposures and behaviors.

Treatment

Men and women take similar medications to combat PD symptoms. However, women are more likely to experience medication-related dyskinesias (involuntary, erratic movements), motor fluctuations and "wearing off" of medication.

Deep brain stimulation (DBS) is a treatment option that can help manage motor symptoms. Despite women having greater reported improvements to quality of life compared to men following DBS, women are less likely to receive the surgery.

Women also experience more non-movement symptoms than men with PD and are more likely to be prescribed antidepressants and benzodiazepines for anxiety. Pain management is similar for men and women living with PD.

Research

Women have been and continue to be underrepresented in Parkinson's research. Research on women's experience with PD underscores the need to focus on this important population of focus in the PD community.

Sex and gender differences are often not considered in both PD research and clinical care metrics but need to be, moving forward. Research has shown that:

Women and men with PD report different symptoms and severity to their care team, but researchers have yet to identify women-specific symptoms.

Small changes in medications or schedule can cause women to experience big changes in symptoms, with dyskinesias being the most frequently reported side effect.

Women with PD are more likely than men with the disease to live and attend medical appointments alone.

Additional PD research should be conducted to understand how biological differences between men and women manifest in PD and how this affects treatment options.

The Parkinson's Foundation believes that all Parkinson's research needs to examine the effect of biological sex, including sex hormones, on PD risk, progression and response to treatments.

The biological reasons for the differences between the sexes are largely unknown and unexplored but nonetheless very important because understanding these differences could ultimately lead to personalized and more effective treatments that are targeted to males or females.

Estrogen Research

The relationship between estrogen and Parkinson's is complicated and needs more research. Of the limited studies on estrogen and Parkinson's, there is some data to support these theories:

Hormones, namely estrogen, may be a factor in reducing PD risk in women.

Estrogen may also be neuroprotective, possibly accounting for later PD onset in women.

Longer duration on hormone replacement therapy (HRT) was associated with reduced risk of PD, although there has been conflicting data on this topic. We do not know if HRT can help treat fluctuations in PD symptoms.

Care

Since women are more likely to attend PD appointments alone and live alone, Parkinson's care must be made more accessible and available to women.

Parkinson's Foundation research has found that PD programs should target health, wellness and management of PD, and should be designed to be more welcoming to women. PD care programs must also focus on helping women feel comfortable and included.

Women with PD experience a greater quality of life when medical professionals work alongside them to manage care, identify treatment goals and minimize miscommunication. Medical professionals should focus on transparency, shared decision-making, and empathy to enhance communication between patient and clinician.

Mental Health

Women with PD have significantly less social support, more psychological distress, and worse self-reported health-related quality-of-life at initial PD care visits, compared to men.

Women with Parkinson's can choose to prioritize their mental health through any treatment that they find beneficial - including finding a counselor, joining a support group or any other outlet that brings relief.

Mental Health & Parkinson's

Maintaining mental health is essential to living well with Parkinson's, and can help manage movement symptoms.

Pregnancy

Research on pregnancy and Parkinson's is sparse. Parkinson's does not appear to increase the risk of birth complications or birth defects. About half of women with Parkinson's who become pregnant experience worsening of their PD movement symptoms during pregnancy, according to a review of the existing research.

Limited evidence suggests that levodopa can safely be taken during pregnancy. Breastfeeding while taking PD medications is typically not advised, because so little is known about their absorption into breast milk.

About 400 women under the age of 50 are diagnosed with PD in the U.S. each year. It is unknown how many become pregnant. There have been no formal clinical trials on pregnancy and Parkinson's. PD researchers are working to collect data on women with PD who become pregnant, which would help develop guidelines for providing better care.
Learn More About Female Sexual Health
Tips for Women with Parkinson's

These tips can help women living with Parkinson's navigate this disease:

Seek expert care. Find a specialist who can provide a diagnosis and manage symptoms. It's never too late to find a PD specialist you trust.

Join a Parkinson's research study. Help bridge the gender and sex research gap in the PD field.

Work alongside your care team and PD doctor to identify goals for treatment.

Report all symptoms and medication side to your care team.

Find a support system that works for you. Women are more likely to go to doctors' appointments alone, and not have a care partner. Find a support group, mental health professional, or group of friends that offer support.

Making an Impact

The Parkinson's Foundation brings awareness to women-specific issues to help improve the health and well-being of women with PD. Women and Parkinson's: Closing the Gender Gap in Research and Care is the first national research and care agenda specific to women with PD to address the disparities that they experience. Read the agenda now.

The Parkinson's Foundation believes in inclusivity when it comes to women in PD research. We fund women-specific Parkinson's research grants and enroll women and men in our genetics study, PD GENEration: Mapping the Future of Parkinson's disease.

Resources

Utilize these Parkinson's Foundation tools at any time:
Page reviewed by Dr. Mara Seier, Assistant Professor in the Department of Neurological Sciences at the Nebraska Medicine Movement Disorders Center.

Related Materials

Related Blog Posts

Connect with Others

Explore our PD Conversations discussion groups to find answers or talk to others going through similar experiences.

Are less often diagnosed and encounter greater hurdles to get an accurate diagnosis

Report different symptoms compared to men with PD - such as more side effects and changes in symptoms throughout the day

Are more likely to downplay symptoms

Receive lower-quality healthcare than men

Are less likely to seek treatment from a PD specialist, such as a neurologist or movement disorder specialist

Stories from Women with PD

Women and men with PD report different symptoms and severity to their care team, but researchers have yet to identify women-specific symptoms.

Small changes in medications or schedule can cause women to experience big changes in symptoms, with dyskinesias being the most frequently reported side effect.

Women with PD are more likely than men with the disease to live and attend medical appointments alone.

The biological reasons for the differences between the sexes are largely unknown and unexplored but nonetheless very important because understanding these differences could ultimately lead to personalized and more effective treatments that are targeted to males or females.

Hormones, namely estrogen, may be a factor in reducing PD risk in women.

Estrogen may also be neuroprotective, possibly accounting for later PD onset in women.

Longer duration on hormone replacement therapy (HRT) was associated with reduced risk of PD, although there has been conflicting data on this topic. We do not know if HRT can help treat fluctuations in PD symptoms.

Seek expert care. Find a specialist who can provide a diagnosis and manage symptoms. It's never too late to find a PD specialist you trust.

Join a Parkinson's research study. Help bridge the gender and sex research gap in the PD field.

Work alongside your care team and PD doctor to identify goals for treatment.

Report all symptoms and medication side to your care team.

Find a support system that works for you. Women are more likely to go to doctors' appointments alone, and not have a care partner. Find a support group, mental health professional, or group of friends that offer support.

Related Materials

Related Blog Posts

# data[].attributes.attachment_link.description
Sex and gender differences can drastically impact health and are important to consider when it comes to Parkinson's disease (PD). With information and awareness of the key issues women with Parkinson's face, our hope is to help you feel empowered to advocate for the care and quality of life you deserve.

# data[].attributes.body
Online resource

Gives in depth information on side effects and goes into estrogens effects

# data[].attributes.attachment_link.readable_text
Parkinson's disease (PD) is a condition that affects the nervous system. In PD, nerve cells in the brain that make the neurotransmitter dopamine become damaged or die. When this happens, it leads to symptoms such as tremors, muscle stiffness, and slowed movement.

Your biological sex is an important risk factor for developing PD. When compared to women, 1.5 times as many men have PD.

Usually there's a physiological reason for a difference in disease between sexes. How does being female protect against PD? And do women and men experience PD symptoms differently? Continue reading to learn more.

The risk of developing PD increases with age. According to the National Institute of Neurological Disorders and Stroke (NINDS), the average age of onset for PD is about 70 years old.

There's evidence to suggest that PD may develop later in women than in men.

A 2007 study investigated the effect of biological sex on various characteristics of PD. The researchers evaluated 253 people living with PD. They found that, compared to men with PD, the age of disease onset was 2.1 years later in women.

However, a found no difference in the age of onset between men and women.

According to a 2017 review, more research is needed.

PD is a progressive disease, which means that symptoms get worse over time. The main symptoms of PD are:

The symptoms of PD can vary greatly between individuals regardless of sex, and women may have different symptoms than men.

When women are first diagnosed, tremor is usually the dominant symptom. This form of PD is associated with a slower deterioration of motor functions, according to a .

In contrast, the initial symptom in men is usually changes in balance or posture, which can include freezing of the gait and falling.

Differences in non-motor symptoms

While motor symptoms make up the primary symptoms of PD, people living with PD can experience other potential symptoms as well. These may include:

A 2012 study of non-motor symptoms in 951 people with PD found that women were more likely to experience:

Meanwhile, researchers found that men were more likely to have non-motor symptoms such as:

Women also often report less satisfaction with their quality of life. A surveyed quality of life in men and women with PD. Women with PD reported reduced quality of life due to pain and depression.

There's currently no cure for PD. However, medications can help improve symptoms associated with the condition.

Levodopa, also called L-DOPA, is a drug that nerve cells can use to make dopamine. Levodopa is often given with carbidopa, which helps to prevent the medication from being converted to dopamine before it reaches the brain. Carbidopa-levodopa is available under the brand names Sinemet, Duopa, and Rytary.

Other types of drugs that may be given for PD include:

Amantadine: Amantadine (Gocovri, Osmolex ER) is an antiviral drug that may help treat the symptoms of PD as well as the side effects of PD treatments such as levodopa.

Dopamine agonists: Dopamine agonists can mimic the role of dopamine in the brain.

Monoamine oxidase inhibitor B (MAO-B) inhibitors: MAO-B inhibitors work to block the activity of monoamine oxidase inhibitor B, a brain enzyme responsible for breaking down dopamine.

Catechol-O-methyltransferase (COMT) inhibitors: COMT inhibitors are similar to MAO-B inhibitors in that they work to block a brain enzyme that breaks down dopamine.

Anticholinergics: Anticholinergics work to reduce the activity of the neurotransmitter acetylcholine and may help ease tremors.

When medications aren't effective at managing PD symptoms, other treatment options may be recommended. These include deep brain stimulation (DBS) and brain surgery.

Treatment challenges in women

Women with PD may encounter more problems during treatment than men, and often take longer to seek treatment. A 2011 study found that the time between symptom onset and seeing a movement disorder specialist was 61 percent longer for women.

Women are also exposed to higher doses of PD medications such as levodopa. A examined the levels of levodopa in the blood of 128 people with PD over 3 hours. It found that levodopa concentrations were significantly higher in women than in men during this time.

Higher exposure to levodopa can lead to an increased rate of negative side effects such as dyskinesia (abnormal involuntary movements).

Women also receive DBS or surgery less often than men do. A small found that at the time of surgery, women had a longer duration of disease than men (15 years vs. 10 years). They also had more severe symptoms. However, after surgery they experienced more improved quality of life.

A 2014 study found that although DBS was equally effective for men and women, women were less likely to be treated due to more severe dyskinesia. Additionally, a found that women were less likely to undergo DBS due to personal preference.

Why are there differences in PD between men and women? It seems likely that the hormone estrogen has a protective effect for women.

A 2020 cohort study found that a later age of menopause and longer duration of fertility were associated with a lower risk of PD. These are both markers of estrogen exposure over the course of a woman's lifetime.

What's not yet fully explained is why estrogen has this effect.

A 2019 review notes that that estrogen can promote the production, release, and turnover of dopamine. Additionally, the biological effects of estrogen may help protect women from damage due to inflammation or oxidative stress in the brain that can contribute to PD.

There's evidence that cognitive issues affect men and women differently.

A compared the cognitive function of 84 people with PD to 59 participants without PD. Researchers found that men with PD had reduced processing speed and reduced executive function, despite having no significant differences in disease severity.

Processing speed refers to the amount of time that it takes you to perform a specific task. It may take longer for you to process and respond to information in order to get something done.

Executive function is important for a variety of things, including, but not limited to:

sustaining focus or attention

remembering details or instructions

making plans

managing time

switching from one task to another or multitasking

maintaining self-control

Additionally, a 2019 review notes that women with PD also retain more verbal fluency. Verbal fluency is a function that helps you retrieve specific bits of information from your memory.

PD rigidity can cause facial muscles to "freeze," leading to a mask-like expression. As a result, people with PD have difficulty expressing emotion with their faces. This can result in others misinterpreting their emotions or mood.

A identified emotional cues that could give insight into the emotional states of people with PD. However, the researchers noted that smiling and laughing needed to be interpreted with caution, as women experiencing negative emotions or depression appeared to smile or laugh frequently.

People with PD can also have difficulty interpreting the facial expressions of others, but this topic can be controversial.

For example, a 2015 study found that people with PD recognized facial expressions with less accuracy than individuals without PD.

On the other hand, a 2019 study found no difference in facial expression processing between people with and without PD. However, when compared to younger individuals, older age was associated with poor facial expression processing, regardless of whether the study participant had PD or not.

Rapid eye movement behavior disorder (RBD) is a sleep disorder that occurs during the rapid eye movement (REM) sleep cycle. Normally, a sleeping person doesn't move during sleep. In RBD, a person can move their limbs and seems to act out their dreams.

RBD is rare, but occurs more often in people with neurodegenerative diseases. A 2017 review of studies found that RBD is more common in people with PD who:

are male

are of an older age

have had a longer disease duration

have more severe symptoms or a higher level of functional disability

A compared women with PD to women with PD and RBD. Researchers found that women with PD and RBD were more likely to:

be older in age

have had a shorter duration of PD symptoms

have fewer tremors

experience insomnia, poor sleep quality, and daytime sleepiness

have depression or anxiety

Men and women often have different responses to the experience of living with PD. For example, women with PD tend to experience a higher rate of depression than men with PD do. As a result, they may receive medications for these conditions more often.

A 2020 study evaluated 64 people with PD for anxiety and depression. Depression was more common in women, individuals with a lower socioeconomic status, or those with a history of depression. Anxiety was more common in younger individuals or those with a history of anxiety.

A 2018 study assessed anxiety in 311 people with PD. Women with PD experienced more persistent and episodic anxiety.

Men with PD are more likely to exhibit behavioral problems and aggression, such as inappropriate or abusive behavior. Some research has reported that antipsychotic medications are prescribed at higher rates in men and in people with PD, specifically if they're experiencing dementia.

Social support can be a vital tool for coping with PD. A 2016 study found that good-quality social care greatly benefits both the physical and mental health of individuals with PD.

If you have PD and are seeking support, talk to your care team. They can advise you on various support resources, including support groups, in your area.

Additionally, you can explore the resources below:

# data[].attributes.attachment_link.description
Parkinson's disease (PD) is a condition that affects the nervous system. In PD, nerve cells in the brain that make the neurotransmitter dopamine become damaged or die. When this happens, it leads to symptoms such as tremors, muscle stiffness, and slowed movement. Your biological sex is an important risk factor for developing PD.

# data[].attributes.body
Online resource

Short amount of information, similar to others

# data[].attributes.attachment_link.description
Parkinson’s in women is less common than in men. Additionally, on average, women develop the disease 2.1 years later than men.

# data[].attributes.body
Online resource

Briefly mentions pregnancy

# data[].attributes.attachment_link.title
Parkinson’s Disease In Women | American Parkinson Disease Association

# data[].attributes.attachment_link.description
Parkinson’s Disease In Women Until recently, little has been written regarding the effect that gender has on the development and management of Parkinson’s disease. Current research has focused mainly on the impact that sex hormones have on the development of Parkinson’s disease. Less has been writte…

# data[].attributes.body
"Finding your Balance - Women with Parkinsons"

Support group for women in Atlantic Canada on Facebook, only has 5 members

# data[].attributes.body
https://pdprogram.org/wp-content/uploads/2021/03/WOMEN-PARKINSONS-DISEASE.pdf

Physical condensed resource, good digestible amount

# data[].attributes.body
Physical resource

# data[].attributes.attachment_link.description
Parkinson's disease affects all sides of you: your inside, your outside, and your "right" side-that is, the side where you feel positive, balanced, and beautiful. How do you find that edge when you're not feeling very sharp at all?

# data[].attributes.body
Online resource

General to do, seems like a good starting place for resources

# data[].attributes.attachment_link.title
10 Things Women With Parkinson’s Disease Can Do to Get Good Care

# data[].attributes.attachment_link.description
Research suggests women with Parkinson’s often go without proper diagnosis and treatment. Here’s how to make sure this doesn’t happen to you.

# data[].attributes.body
Online resource

webinar information, video, personal

# data[].attributes.attachment_link.readable_text
Your Instructor for the Webinar

Dr. Michelle Fullard works in the Movement Disorders section of the University of Colorado Department of Neurology as an Assistant Professor. She completed her undergraduate and medical education at Vanderbilt University. She completed Neurology residency at the University of Virginia where she served as Chief Resident in her final year.

Following residency, Dr. Fullard completed a Movement Disorders fellowship at the University of Pennsylvania, during which time she also pursued a Masters of Science in Clinical Epidemiology. Prior to joining the Neurology department at the University of Colorado, she spent a year as an Instructor at the University of Pennsylvania and Philadelphia VA PADRECC (Parkinson's Disease Research, Education, and Clinical Centers). Her research interests include health care utilization and health outcomes in Parkinson's.

# data[].attributes.attachment_link.description
Your Instructor for the Webinar Dr. Michelle Fullard works in the Movement Disorders section of the University of Colorado Department of Neurology as an Assistant Professor. She completed her undergraduate and medical education at Vanderbilt University. She completed Neurology residency at the University of Virginia where she served as Chief Resident in her final year.

# data[].attributes.body
Physical Resource

A book more on a comparison between two womens experience with PD

# data[].attributes.attachment_link.title
Mary and Me: Two Women With Parkinson's Disease Two Hundred Years Apart

# data[].attributes.attachment_link.description
Mary and Me: Two Women With Parkinson's Disease Two Hundred Years Apart [Cotton, Robyn] on Amazon.com. *FREE* shipping on qualifying offers. Mary and Me: Two Women With Parkinson's Disease Two Hundred Years Apart

# data[].attributes.body
2. Survey and identify at least  10 products (physical/digital) and/or services (programs)  that currently exist to solve similar problems in other areas (i.e. healthcare, recreation, education, government, etc).

# data[].attributes.body
For this survey, I made sure they all had the same goal / follow the similar premise that they are a resource/space for women to be educated or gain experience through a support group.

I tried to get a completely different example for everyone. I think the sites that are dedicated to a singular cause are the most effective.

# data[].attributes.body
Online Resource

A good starting place, general education/sources

# data[].attributes.attachment_link.readable_text
" I had never done a breast self exam before I came to the NBCF tent and I wouldn't have found the lump that sent me to the doctor. Thank you for being here and providing resources and training. "

Sheila Ross Event Attendee

# data[].attributes.attachment_link.title
Breast Health Education - National Breast Cancer Foundation

# data[].attributes.attachment_link.description
" I had never done a breast self exam before I came to the NBCF tent and I wouldn't have found the lump that sent me to the doctor. Thank you for being here and providing resources and training. " Sheila Ross Event Attendee

# data[].attributes.body
Online service

A general tool/resource people can call when they have questions on a specific healthcare illness.

Good for looking for the next steps

# data[].attributes.body
Online Resource

Educating women with ADHD, not a huge resource

# data[].attributes.attachment_link.readable_text
Knowledge of ADHD in women at this time is extremely limited as few studies have been conducted on this population. Women have only recently begun to be diagnosed and treated for ADHD, and today, most of what we know about this population is based on the clinical experience of mental health professionals who have specialized in treating women.
Impact of ADHD in women
ADHD in young girls is often overlooked, the reasons for which remain unclear, and many females are not diagnosed until they are adults. Frequently, a woman comes to recognize her own ADHD after one of her children has received a diagnosis. As she learns more about ADHD, she begins to see many similar patterns in herself.

Some women seek treatment for ADHD because their lives are out of control―their finances may be in chaos; their paperwork and record-keeping are often poorly managed; they may struggle unsuccessfully to keep up with the demands of their jobs; and they may feel even less able to keep up with the daily tasks of meals, laundry and life management. Other women are more successful in hiding their ADHD, struggling valiantly to keep up with increasingly difficult demands by working into the night and spending their free time trying to "get organized." But whether a woman's life is clearly in chaos or whether she is able to hide her struggles, she often describes herself as feeling overwhelmed and exhausted.

While research of ADHD in women continues to lag behind that in adult males, many clinicians are finding significant concerns and co-existing conditions in women with ADHD. Compulsive overeating, alcohol abuse and chronic sleep deprivation may be present in women with ADHD.

Women with ADHD often experience dysphoria (unpleasant mood), major depression and anxiety disorders, with rates of depressive and anxiety disorders similar to those in men with ADHD. However, women with ADHD appear to experience more psychological distress and have lower self-image than men with ADHD.

Compared to women without ADHD, women diagnosed with ADHD in adulthood are more likely to have depressive symptoms, are more stressed and anxious, have more external locus of control (tendency to attribute success and difficulties to external factors such as chance), have lower self-esteem and are engaged more in coping strategies that are emotion-oriented (use self-protective measures to reduce stress) than task-oriented (take action to solve problems).

Studies show that ADHD in a family member causes stress for the entire family. However, stress levels may be higher for women than men because they bear more responsibility for home and children. In addition, recent research suggests that husbands of women with ADHD are less tolerant of their spouse's ADHD patterns than wives of men with ADHD. Chronic stress takes its toll on women with ADHD, affecting them both physically and psychologically. Women who suffer chronic stress like that associated with ADHD are more at risk for diseases related to chronic stress such as fibromyalgia.

Thus, it is becoming increasingly clear that the lack of appropriate identification and treatment of ADHD in women is a significant public health concern.
The challenge of receiving appropriate treatment
ADHD is a condition that affects multiple aspects of mood, cognitive abilities, behaviors, and daily life. Effective treatment for ADHD in adult women may involve a multimodal approach that includes medication, psychotherapy, stress management, as well as ADHD coaching and/or professional organizing.

Even those women fortunate enough to receive an accurate ADHD diagnosis often face the subsequent challenge of finding a professional who can provide appropriate treatment. There are very few clinicians experienced in treating adult ADHD and even fewer who are familiar with the unique issues faced by women with ADHD. As a result, most clinicians use standard psychotherapeutic approaches. Although these approaches can be helpful in providing insight into emotional and interpersonal issues, they do not help a woman with ADHD learn to better manage her ADHD on a daily basis or learn strategies to lead a more productive and satisfying life.

ADHD-focused therapies are being developed to address a broad range of issues including self-esteem, interpersonal and family issues, daily health habits, daily stress level, and life management skills. Such interventions are often referred to as "neurocognitive psychotherapy," which combines cognitive behavior therapy with cognitive rehabilitation techniques. Cognitive behavior therapy focuses on the psychological issues of ADHD (for example, self-esteem, self-acceptance, self-blame) while the cognitive rehabilitation approach focuses on life management skills for improving cognitive functions (remembering, reasoning, understanding, problem solving, evaluating, and using judgment), learning compensatory strategies, and restructuring the environment.
Medication management in women with ADHD
Medication issues are often more complicated for women with ADHD than for men. Any medication approach needs to take into consideration all aspects of the woman's life, including the treatment of coexisting conditions. Women with ADHD are more likely to suffer from coexisting anxiety and/or depression as well as a range of other conditions including learning disabilities. Since alcohol and drug use disorders are common in women with ADHD and may be present at an early age, a careful history of substance use is important.

Medication may be further complicated by hormone fluctuations across the menstrual cycle and across the lifespan (e.g., puberty, perimenopause, and menopause) with an increase in ADHD symptoms whenever estrogen levels fall. In some cases, hormone replacement may need to be integrated into the medication regimen used to treat ADHD.

For more information on medication management in adults with ADHD, see Medication Management.
Other treatment approaches
Women with ADHD may benefit from one or more of the following treatment approaches:

1. Parent training. In most families, the primary parent is the mother. Mothers are expected to be the household and family manager-roles that require focus, organization and planning, as well as the ability to juggle multiple responsibilities. ADHD, however, typically interferes with these abilities, making the job of mother much more difficult for women with ADHD.

Furthermore, because ADHD is hereditary, a woman with ADHD is more likely than a woman without the disorder to have a child with ADHD, further increasing her parenting challenges. Women may need training in parenting and household management geared toward adults with ADHD. The evidence-based parent management programs found to be effective in children with ADHD are also recommended for parents with ADHD. However, research on these parent training approaches has indicated that parent training may be less effective if the mother has high levels of ADHD symptoms. Thus, it may be necessary to incorporate adult ADHD life management strategies into parent training programs for mothers with ADHD.

2. Group therapy. Social problems for females with ADHD develop early and appear to increase with age. Women with ADHD have greater self-esteem problems than men with ADHD, and often feel shame when comparing themselves to women without ADHD. Because many women with ADHD feel shame and rejection, psychotherapy groups specifically designed for women with ADHD may provide a therapeutic experience―a place where they can feel understood and accepted by other women and a safe place to begin their journey toward accepting themselves more and learning to better manage their lives.

3. ADHD coaching. ADHD coaching, a new profession, has developed in response to the need among some adults with ADHD for structure, support and focus. Coaching often takes place by telephone or e-mail. For more information on coaching, see Coaching.

4. Professional organizing. As contemporary lives have become increasingly complicated, the organizer profession has grown to meet the demand. Women with ADHD typically struggle with very high levels of disorganization in many areas of their lives. Some women are able to maintain organization at work, but at the expense of an organized home. For others, disorganization is widespread, which increases the challenges and difficulties of ADHD. A professional organizer can provide hands-on assistance in sorting, discarding, filing, and storing items in a home or office, helping to set up systems that are easier to maintain. For more information on organization, see Organizing and Time Management.

5. Career guidance. Just as women with ADHD may need specific guidance as a parent with ADHD, they may also greatly benefit from career guidance, which can help them take advantage of their strengths and minimize the impact of ADHD on workplace performance. Many professional and office jobs involve the very tasks and responsibilities that are most challenging for a person with ADHD, including paying attention to detail, scheduling, paperwork, and maintaining an organized workspace. Sometimes a career or job change is necessary to reduce the intense daily stress often experienced in the workplace by most individuals with ADHD. A career counselor who is familiar with ADHD can provide very valuable guidance. For more information, see Workplace Issues.
Ways that women with ADHD can help themselves
It is helpful for a women with ADHD to work initially with a professional to develop better life and stress management strategies. However, the following strategies can be used at home, without the guidance of a therapist, coach or organizer to reduce the impact of ADHD:

Understand and accept your ADHD challenges instead of judging and blaming yourself.

Identify the sources of stress in your daily life and systematically make life changes to lower your stress level.

Simplify your life.

Seek structure and support from family and friends.

Get expert parenting advice.

Create an ADHD-friendly family that cooperates and supports one another.

Schedule daily time outs for yourself.

Develop healthy self-care habits, such as getting adequate sleep and exercise and having good nutrition.

Focus on the things you love.

Individuals with ADHD have different needs and challenges, depending on their gender, age and environment. Unrecognized and untreated, ADHD may have substantial mental health and education implications. It is important that women with ADHD receive an accurate diagnosis that addresses both symptoms and other important issues with functioning and impairment, which will help determine appropriate treatment and strategies for the individual woman with ADHD.

# data[].attributes.attachment_link.description
Knowledge of ADHD in women at this time is extremely limited as few studies have been conducted on this population. Women have only recently begun to be diagnosed and treated for ADHD, and today, most of what we know about this population is based on the clinical experience of mental health professionals who have specialized in...

# data[].attributes.body
Online / In person Resource

Information on educating / helping women's health

# data[].attributes.attachment_link.readable_text
They are competent, versatile and successful - dynamic at work, and doting at home! They are the glue that hold many pieces of life together. Any tribute will fall short of the place women hold in our hearts and societies. But women are also stretched and stressed. While they look after everyone around them, who looks after them? The answer lies in Yoga - the balance that today's 'beauty with brains' needs!
"Above all, be the heroine of your life, not the victim." ― Nora Ephron

Many experts have recommended yoga for women to help them successfully cater to the multiple demands on their time. Women have always had it tough if they dare to dream big. They are expected to multi-task all the time, living like Superman - regular office worker by day and superhero by night. Women must, not only, take care of their domestic duties with efficiency and grace, but also work outside the four walls justifying their education and intellectual capabilities, at par with men.

Women, across the globe, need to be able to keep many balls up in the air at the same time ensuring that not a single one of them falls at any time. This is why yoga will seem like a blessing for women. Yoga is a means to achieving sanity and serenity in their trying and taxing world. Simple breathing techniques will help women calm down and handle their multiple responsibilities with proficiency and poise.

Yoga does more for women than just make their bodies supple. It lends balance to the mind and nourishment to the soul. That is why women should not consider yoga as another chore on their overloaded schedule but as a necessary activity that will help them handle their other obligations optimally. The logical question that arises in relation to yoga is when to start. This is the icing on the cake as far as women are concerned because yoga is suitable for all ages. Read on to see how women can make the most of the numerous benefits of yoga.

Join a Free workshop on Yoga, Meditation and Breath

Yoga - Blessing for women in those beginning years

Yoga is highly recommended for women in their adolescence. This tumultuous period shapes the entire lifetime of young girls as they undergo major changes in their body and mind. Various asanas of yoga are designed for women at this stage to ensure they adapt to these multiple changes easily and painlessly. For instance, the practice of Pranayama and meditation help calm the restless, fearful and confused teenage mind. The wandering and wavering mind is a result of the physical changes the adolescent body goes through. Asanas such as Dhanurasana and Vajrasana are among those yogasanas that are ideal for women to help them develop a regular and healthy menstrual cycle. Practising these asanas regularly will ensure that women develop muscular strength, avoid obesity and develop healthy reproductive organs by keeping their hormones in balance.

Yoga - Perfect for women's peak productive period

Women go through various physical changes during the years of conception and motherhood. Yoga helps optimise productivity for women. Women experience various 'alien' feelings during their pregnancy time; it is important that they achieve and maintain good physical and mental health. It is a difficult task given the various hormonal changes that are sometimes not under their control. Experts have recommended some of the asanas of yoga for women to keep them in peak shape physically and emotionally. Yoga also keeps women flexible and fit to be able to deliver normally. It ensures that they give themselves an optimal chance to tide over any complications that may occur during pregnancy or delivery.

Pre-natal yoga has many benefits that can be tailored to suit the body's changing needs and capabilities. It also helps to strengthen women's uterine muscles and support the spine, enabling the back to cope with additional pressure. Post-natal yoga in the form of pranayama and Yogic breathing will help women recover quickly post-delivery, restore firmness in their muscle fibres and increase lactation.

Yoga in the transitional period

This is one of the toughest ages for either sex but for women the complications are singular. Women experience menopause, weight gain, thyroid problems and other such conditions and ailments. The benefits of yoga for women during this time are substantial. Yoga has great healing powers and can help balance hormones, keep weight in check, help menopause pass smoothly and maintain a healthy digestive system. Pranayama and meditation will help women immeasurably in this difficult and rather tumultous time in their lives.

Sri Sri Yoga - A lifetime companion for women

The Sri Sri Yoga has important elements for these phases of women's lives. Right from adolescence to motherhood, menopause and old age, women undergo many life changes. Yoga will offer relief for women from major mood swings that lead to disharmony and imbalance in their lives. A daily routine can be customised for women according to their age and needs. The asanas in yoga may be designed for women in such a way that it keeps them fulfilled. With this, they can achieve bodily poise and mental peace.

A Sri Sri Yoga course teaches a variety of yoga routines, which can be practiced anywhere - in the comfort of your home or even at your workplace. The Yogasana, Pranayama, and meditation techniques are taught in the Sri Sri Yoga course and can help a woman in the various, challenging stages of her life.

Yoga for the glow in women's golden years

"Regular practice of my Sri Sri Yoga routine has provided me with both obvious and unexpected benefits for the body, mind and spirit. It has offered me solace, reflection, joy, acceptance and ease in my body. It has helped me connect with my inner radiance and strength in the most demanding times making me aware of my strengths and weaknesses while exploring the new horizons in my fast paced life", Anamika adds.

The golden years of women's lives brings with it more unique challenges for women. Yoga for women, in this phase, would incorporate their reduced physical activities and hence include less complex asanas. These asanas aim at improving blood circulation. A healthy nervous system will help the body stretch and, eventually, completely relax. As, in all stages, yoga, at this stage, is meant to bring about both physical and mental health, thereby promoting balance and harmony.

The secret for women is to make yoga a part of their life - as much as breathing. With repetition and regularity, the practice of yoga will be ideal for women at any age.
The Sri Sri Yoga is a relaxing experience for women and carries with it an overall sense of well-being. Your Sri Sri Yoga routine is exclusively time for you. Take a break from the demands of being a career woman, wife and mother and be yourself !

# data[].attributes.attachment_link.keywords[]
yoga for the glow in women’s golden years

# data[].attributes.attachment_link.keywords[]
sri sri yoga a lifetime companion for women

# data[].attributes.attachment_link.title
Yoga for Women | Yoga Exercise for Women's Health

# data[].attributes.attachment_link.description
They are competent, versatile and successful - dynamic at work, and doting at home! They are the glue that hold many pieces of life together. Any tribute will fall short of the place women hold in our hearts and societies. But women are also stretched and stressed.

# data[].attributes.body
Online Resource

Good starting spot for different ways to go to get support

# data[].attributes.attachment_link.readable_text
The role of the Breast Cancer Society of Canada

Breast cancer remains the most common form of cancer in Canada despite of the declining mortality rates.

Over the years, the number of breast cancer incidents in Canada has stabilized. Yet, it is the most common form of cancer that the population is diagnosed with 26% of all women cancer patients have breast cancer, while 1 out of 30 women are likely to die from it. In 2016, around 25,700 women in Canada had breast cancer, while only 230 males suffered from it.

The drop in mortality rates and success of treatment are direct contributions of organizations involved in research and healthcare. Due to their research, innovative and successful diagnosis and treatment procedures have been developed while the public has become more aware.

The Breast Cancer Society of Canada is a significant contributor for investing in breast cancer research for close to three decades. Let's explore its activities and contributions in the field of breast cancer.

Origins of the Breast Cancer Society of Canada (BCSC)

But instead of giving up, the two families made it a mission of their lives to fight the disease and do everything in their power to help, prevent and treat it.

As a result, the BCSC was established as a non-profit organization that devoted itself to breast cancer research. They try to raise money so that more research can be conducted in the field of breast cancer. The organization doesn't receive any government funding and depends solely on the contribution of its donors.

BCSC has the vision to bring an end to breast cancer and a mission to save lives by conducting breast cancer research.

Breast cancer remains a concern the world over, and organizations like the BCSC helps to bring in awareness.

Activities of BCSC: what does it do?

The primary activity of BCSC is to improve the diagnosis of breast cancer and come up with effective treatments. The Pan-Canadian Virtual Research Laboratory of BCSC gives people access to clinical trials where innovative treatments for breast cancer are carried out.

One of the main priorities is to improve patients outcome. New technology and advancement in the scientific and medical community have produced improved methods of breast cancer diagnosis and treatment. Using funding from donors, BCSC engages in facilitating research and deliver measurable and practical solutions to patients in Canada.

The organization works explicitly on a patient's molecular testing so that they can be effectively screened for the disease. The agency is a strong force bringing disruption in breast cancer research delivering the results from the lab directly to the clinics; they are less concerned about its academic value.

The contributions of the Canadian Breast Cancer Support Fund

Today, 1 out of 8 Canadian women have breast cancer and each hour 3 people (including males and females) are diagnosed with the disease.

Many institutions are fighting against the disease and investing in research to come up with effective clinical treatments. The Bras Family Foundation (BRAS) is one such name that has contributed a lot in creating a humanitarian environment for patients who suffer from cancer. It provides different beneficial services to cancer patients and also facilitates the operation of drug development programs at Princess Margaret Cancer Centre in Toronto.

BRAS invests in grants for important purposes to create a difference in the community. Apart from working on health issues, they also concentrate on women's and children's issues. They also have a specific grant for patients with breast cancer, which we are going to talk about.

The Canadian Breast Cancer Support Fund

With breast cancer continuing to throw in the lives of women around the world in a daze, many sufferers look at money for treatment and to lead a normal life.

BRAS has set up a grant that offers patients the funds they need to treat their disease in the near future. Many patients in Canada are still not educated or aware of the money involved that comes with a diagnosis. As a result, patients find it difficult to withstand the burden of breast cancer treatment makes matters worse.

Many of the patients also don't have workplace health-care coverage, which it difficult to access treatment. Under certain conditions, they may also be ineligible for assistance or benefits provided by the government. Lost wages and paying for treatment is almost impossible for such people.

How does it help?

The patients covered by the Canadian Breast Cancer Support Fund mostly live below the poverty line and have very low incomes. For these reasons, the fund comes helpful for breast cancer patients in Canada. They can use the fund to pay for food, and shelter and the organization reimburses them for any expense on different things such as medication, childcare, prosthetics and restorative procedures.

The patients covered under the fund include both men and women from all walks of life - some of them are married or single, divorced, widowed, young mothers, working women, unemployed, self-employed, students- the list is endless. Common among all patients is that they don't have any support for extended family are mostly living alone in poor conditions. Clinically, the patients include both women with early stages of breast cancer and those who have breast cancer with metastasis.

The Canadian Breast Cancer Support Fund under BRAS has made a significant contribution by investing generously for the health and survival of the patients with poor breast cancer. The efforts of such organizations are the cause of the stabilization of breast cancer cases in Canada.

Meetings of breast cancer support groups in Nova Scotia

Breast Cancer is one of the most common forms of cancer detected in women, including Nova Scotia. Around 780 women were diagnosed with the disease in 2015, while it caused 150 deaths in the same year.

Patients undergoing treatment for breast cancer need emotional support and backup so that they can retain hope and recover successfully. To be able to do that successfully, we have some breast cancer support groups - and we would be taking a look at a few of them in Nova Scotia.
The top breast cancer support groups you would find in Nova Scotia.

Several groups conduct support meetings for breast cancer patients and survivors in Nova Scotia. Some of them you will find below.

Pink Panthers

The retreat allowed them to meet Executive Director of Breast Cancer Action Nova Scotia and Chair of the Board, who also liked the idea. Thus the foundation of the Pink Panthers was created.

The Pink Panthers has created a support group with numerous breast cancer patients and breast cancer survivors from Nova Scotia. They meet once a month and allow the participants to talk and connect with others who have experienced the same fate.

The meetings are held every third Monday of each month from 6:30 pm. to 8:30 pm at Mill Cove Sobeys in the Community Room near 955 Bedford Hwy.

Hope Chest Breast Cancer Support Group

The group is formed by breast cancer survivors of Nova Scotia and provides support to current patients. They conduct support meetings every month, which benefits the patients and gives them hope for fighting the disease.

The support meetings sometimes have guest speakers who can inspire those in distress. The members also arrange different activities like crafts, movie watching, lunch programs, walking programs and so on. The group is open to anyone who wishes to join it, and they invite new ideas and suggestions.

The support group meeting is held every 3rd Thursday of each month at 7 pm. The location is at Prince Street at the Truro Police Station Community Room.

Bosom Buddies of Nova Scotia

The origins of the group can be traced to the first dragon boat paddling team comprising Canadian breast cancer survivors. The idea for such a group, that will cater to the physical fitness of cancer survivors and patients came to a former social worker called Sharon Driscoll in 1998 who was also a breast cancer survivor.

Together with Margo Kleiker, she created the first Nova Scotia's dragon boat team, which includes only breast cancer survivors. They arrange different activities including support meetings and regular paddle boating for the members. The weekly meetings give them a chance to meet each other and provide emotional support while getting a solid workout!

# data[].attributes.attachment_link.description
Breast cancer remains the most common form of cancer in Canada despite of the declining mortality rates. Over the years, the number of breast cancer incidents in Canada has stabilized. Yet, it is the most common form of cancer that the population is diagnosed with 26% of all women cancer patients have breast cancer, while 1 out of 30 women are likely to die from it.

# data[].attributes.body
Online Resource

Women lead resource on ALS information

# data[].attributes.attachment_link.readable_text
Author: Healthwise Staff

Medical Review: Anne C. Poinier MD - Internal Medicine & E. Gregory Thompson MD - Internal Medicine & Adam Husney MD - Family Medicine & Martin J. Gabica MD - Family Medicine & Kathleen Romito MD - Family Medicine & Barrie J. Hurwitz MD - Neurology

# data[].attributes.attachment_link.description
What is amyotrophic lateral sclerosis? Amyotrophic lateral sclerosis (ALS) is a gradual wasting away of nerve cells (motor neurons) in the brain and spinal cord. These nerve cells control the muscles that allow movement. As ALS gets worse, it often becomes harder to walk, speak, eat, swallow, and breathe. But some...

# data[].attributes.headline
7. Government Initiative - women.novascotia

# data[].attributes.subject
7. Government Initiative - women.novascotia

# data[].attributes.body
Online Resource

Dedicated committee to addressing women's rights and issues in Nova Scotia

# data[].attributes.attachment_link.readable_text
The Nova Scotia Advisory Council on the Status of Women was established in 1977 under the Advisory Council on the Status of Women Act. Our mandate is to bring issues affecting the lives of women and girls in Nova Scotia to the attention of the Minister.

The Advisory Council is composed of citizen leaders who reflect the diversity of women across Nova Scotia and who have demonstrated interest and involvement in women's issues.

The Status of Women office provides research, policy advice, and information services in pursuit of equality, fairness, and dignity for all women in Nova Scotia.
Watch: 40th Years: Nova Scotia Advisory Council on the Status of Women (2017)
Follow Status of Women on Facebook and Twitter.

# data[].attributes.attachment_link.description
The Nova Scotia Advisory Council on the Status of Women was established in 1977 under the Advisory Council on the Status of Women Act. Our mandate is to bring issues affecting the lives of women and girls in Nova Scotia to the attention of the Minister.

# data[].attributes.body
Online Resource / Service

Dedicated committee and service to help women entrepreneurs and business education

# data[].attributes.attachment_link.title
Womens Business Initiative International Home - Women's Business Initiative International

# data[].attributes.attachment_link.description
The Women's Business Initiative International (WBII) is a leading and dynamic association, whose participants believe in the impact of empowering women entrepreneurs, and actively support them to develop flourishing and sustainable businesses.

# data[].attributes.body
In person Service / Resource

Initiative that connects and enables women / girls to get into sports and exercise

# data[].attributes.attachment_link.readable_text
SIGN UP FOR OUR NEWSLETTER

We're building a future where every girl and woman can play, be active, and realize her full potential. We're building a movement of movement. Through Research. Advocacy. Community impact. And Partnerships. It's time to transform the game so that every girl and woman can realize her power.

# data[].attributes.attachment_link.description
Founded in 1974 by tennis legend, Billie Jean King, the Women's Sports Foundation is dedicated to creating leaders by providing girls access to sports.

# data[].attributes.body
Online Community

Tiktok, Instagram, etc. all have different algorithms and communities dedicated to specific topics for women. On social media people can use hashtags to find these communities, for example, #womeninstem

# data[].attributes.body
Looking at existing campaigns for parkinsons

# data[].attributes.body
https://www.womensparkinsonsproject.com/

# data[].attributes.attachment_link.readable_text
Interested in joining our team? Have questions on Women and Parkinson's Disease? Looking to collaborate? Or maybe you just want to connect? Reach out!

You can send us a message through the form below. You can also follow us and reach out to us on social media. Those links are on the bottom. We'd love to hear from you!

# data[].attributes.attachment_link.description
Interested in joining our team? Have questions on Women and Parkinson's Disease? Looking to collaborate? Or maybe you just want to connect? Reach out! You can send us a message through the form below. You can also follow us and reach out to us on social media. Those links are on the bottom.

# data[].attributes.attachment_link.description
Over 8,000 supporters help our campaigns to make change happen. Together, we're fighting for better support for the Parkinson's community.

# data[].attributes.attachment_link.readable_text
We plan to establish the world's first protein sequencing centre for Parkinson's disease. Proteins are the building blocks of our cells and tissues and are critical for all cell activities. Parkinson's is likely to be caused by some of the proteins in our cells behaving abnormally. To understand how this happens we need to create a map of all the proteins and create a clear picture of how these proteins communicate with each other. Dundee is a world leading centre for using mass spectrometry to generate protein maps. However, to make rapid progress in Parkinson's our projects urgently need a mass spectrometer which is dedicated fulltime to understanding Parkinson's disease.

A mass spectrometer that is exclusively for our Parkinson's projects would be transformational. With your help we will purchase the very latest high sensitivity mass spectrometer, allowing us to generate highly detailed protein maps and to quickly and accurately profile patient samples, including samples from active clinical trials into new treatments for Parkinson's.

You can support the Dundee Parkinson's Campaign to buy a mass spectrometer by making a donation online. You can also extend your support by setting up a monthly, quarterly or annual Direct Debit online (ensuring you select "Parkinson's Campaign" from the drop-down menu).

# data[].attributes.attachment_link.description
We plan to establish the world's first protein sequencing centre for Parkinson's disease. Proteins are the building blocks of our cells and tissues and are critical for all cell activities. Parkinson's is likely to be caused by some of the proteins in our cells behaving abnormally.

# data[].attributes.attachment_link.readable_text
Building upon previous efforts, Parkinson's UK has opened a monthlong marketing campaign aiming for a better understanding of Parkinson's disease - particularly among young adults - and of the daily challenges facing patients, caregivers, and family members.

Specifically, the group wants to help people more deeply understand and care about this disease, realize the organization's role in advancing research, and support the Parkinson's community as well as Parkinson's U.K. - a disease research and support organization in the United Kingdom. An additional advertisement push is planned for later this year.

"People with Parkinson's have told us that a lack of public understanding affects their everyday lives," Parkinson's UK states in its campaign announcement. "It makes living with the condition harder, whether it's being mistaken for being drunk or having to fight for fair benefits.

Recommended Reading

"People affected can feel like the system is against them, or fear being judged when they go out in public," it continues. "Together, we can change that.

To enhance understanding of both Parkinson's and Parkinson's UK, advertisements will run on social media channels and web search engines across the United Kingdom. Posters, digital billboards, and the like will also target young adults in train stations, shopping centers, and gas stations across England and Scotland. Future campaigns could encompass more of the U.K., the organization said.

"We've chosen this group [young adults] as our research shows they are ready to deepen their understanding and are great potential supporters of our movement to transform life with Parkinson's and find a cure - if we can make them care," the organization said of its targeted demographic. "We also know they talk to and share messages with their friends, family, and colleagues about causes they care about, which helps us spread understanding of Parkinson's."

The effort uses themes from Parkinson's UK's 2020 " Time for Can" television ad campaign, which described the neurodegenerative disease and how supporters could help. That effort brought a better understanding of the disease to about 210,000 more people, and nearly 2,000 new members and donors to the organization.

The current campaign, which offers new opportunities to tell Parkinson's stories, draws on insights from patients and caregivers, including results from the what symptoms matter most Parkinson's UK survey, and a recent survey about what people wish the public knew about Parkinson's. Two in-depth focus groups involving patients will help to shape future efforts.

"I've been stuck on the tube while commuting in London, because I knew I'd fall if I let go of the handrail," said David, a patient who worked on the previous campaign. "I've been helped by kind strangers. But I've also been ignored, given a wide berth. People are more aware of disability now. But I believe we're just scratching the surface.

"We've got so much further to go to get Parkinson's not just seen, or heard, but understood. Parkinson's isn't 'just' the shakes. There are over 40 symptoms to deal with," David added. "That's why I'm so proud to be working on the Time for Can campaign. By sharing real stories by real people, some of the things we have to deal with everyday, in our homes, no gimmicks or filters - just people like me telling it like it is - we can all learn something about Parkinson's, whether we have the condition or not."

This year's use of various marketing mediums will allow the organization's campaign to tell more stories in different ways.

"Limited understanding among the public also limits our potential to grow support and ensure we're there for people with Parkinson's and their carers and loved ones," Parkinson's UK stated. "We know that Parkinson's is complex and it's hard to know the reality if you don't know someone with the condition.

"That's why we're committed to getting Parkinson's better understood amongst the wider population."

# data[].attributes.attachment_link.title
Parkinson's UK Opens Campaign to Raise Awareness, Public Empathy

# data[].attributes.attachment_link.description
Building upon previous efforts, Parkinson's UK has opened a monthlong marketing campaign aiming for a better understanding of Parkinson's disease - particularly among young adults - and of the daily challenges facing patients, caregivers, and family members.

# data[].attributes.attachment_link.readable_text
TORONTO, March 31, 2021 /CNW/ - Parkinson Canada, a non-profit that supports all aspects in helping combat the impacts of the disease, is calling for better awareness and support of those affected by the neurological disorder in light of Parkinson's Awareness Month starting April 1. The month of April is dedicated to bringing awareness to the disease while supporting organizations within the community that are committed to improving the lives of those impacted by this brain disorder. COVID-19 has taken the focus as an acute world crisis, overshadowing various life-threatening illnesses, postponing treatment, and essential support. Those within the Parkinson's community will be hit particularly hard because of lockdown restrictions, creating a potential wave of health consequences that will have a devastating blow on this community.

Parkinson Canada: No Matter What Brand Spot. Stories of resilience.

"Parkinson's disease is on the rise globally with Canada experiencing among the highest rates of prevalence with approximately 100,000 individuals diagnosed with Parkinson's," says Dr. Karen Lee, Parkinson Canada President and CEO. "Researchers have been calling Parkinson's a "pandemic" due to its growing prevalence around the world, with the impact of COVID-19 only accelerating this health issue."

Despite the misconception that it only affects those older than 60, it is a complex brain disease that can impact adults of all ages with varying symptoms. A few notable facts of Parkinson's disease:

It's on the rise in Canada. More than 25 people are diagnosed with Parkinson's in Canada every day. By 2031 that number is expected to double.

Difficult to detect. Parkinson's disease is notoriously difficult to detect often resulting in people going years, sometimes even decades, before getting diagnosed.

Cost of care. Parkinson's has the third-highest direct healthcare costs annually and people with the disease have the second-highest annual out-of-pocket expense for medications at $1,100, next to those with spinal cord injuries.

COVID-19 has only made it worse. The pandemic has severely backlogged our healthcare system. Canadians in some regions were already facing wait times upwards of two years before they can see a specialist to determine if they have Parkinson's, and the current public health context has only made matters worse.

Parkinson Canada's newest campaign, No Matter What, inspires hope and resilience for Canadians living with Parkinson's and their families, further communicating the commitment to overcome obstacles and support those living with the disease, while working together on the path to a cure. The organization also brings together the best in Parkinson's research as a founding partner of the Canadian Open Parkinson Network (C-OPN). This network gives researchers in the field the platform to make new connections and share findings leading to innovative advancements for Parkinson's disease.

During Parkinson's Awareness Month, and throughout the year, stay connected with Parkinson Canada by visiting www.parkinson.ca or calling 1 800 565 3000. Subscribe to eParkinsonPost, a monthly newsletter at https://www.parkinson.ca/resources/newsletters/.

About Parkinson Canada
Parkinson Canada provides services and education to people living with Parkinson's disease, their families, and the healthcare professionals who treat them. Since 1965, the organization advocates with federal, territorial and provincial governments on issues that concern the Parkinson's community in Canada. The Parkinson Canada Research Program funds innovative research for better treatments and a cure. Parkinson Canada is a founding partner of the Canadian Open Parkinson Network. C-OPN will increase collaboration across institutions and scientists to accelerate discoveries through a shared databank and biorepository. A national registered charity, Parkinson Canada operates through the generosity of donors and is an accredited organization under the Imagine Canada Standards Program since 2013. Parkinson Canada participates in numerous coalitions and partnerships to fulfil its mission. For information on Parkinson Canada COVID-19 Action Plan and resources, visit https://www.parkinson.ca/parkinson-canadas-action-plan-for-covid-19/

SOURCE Parkinson Canada

For further information: Jon Collins, VP Marketing and Fundraising Parkinson Canada, 416-227-3370, [email protected]

Related Links

# data[].attributes.attachment_link.title
Parkinson Canada advocates for more awareness and support during awareness month in light of COVID-19 pandemic

# data[].attributes.attachment_link.description
TORONTO, March 31, 2021 /CNW/ - Parkinson Canada, a non-profit that supports all aspects in helping combat the impacts of the disease, is calling for better awareness and support of those affected by the neurological disorder in light of Parkinson's Awareness Month starting April 1.

# data[].attributes.attachment_link.provider_name
The Michael J. Fox Foundation for Parkinson's Research | Parkinson's Disease

# data[].attributes.attachment_link.readable_text
The Michael J. Fox Foundation's research strategy - projects and activities we fund and prioritize for scientific attention and problem-solving - evolves rapidly in concert with advances made in Parkinson's disease (PD) research. The past two decades have brought substantial growth in understanding PD, in particular the role of genetics and the disease mechanisms that are influenced by genetic changes. This has led to the development and testing of several experimental therapies that have the potential to slow or stop progression - patients' greatest unmet need.

While we have made progress, much remains to be discovered. Our relentless pursuit of a cure requires a dedicated and significant supply of human and financial capital. MJFF has funded over $1 billion in research programs to date, setting priorities in our portfolio that build on the field's unprecedented momentum.

Given our knowledge to date and the continued unknowns around the causes and contributors to Parkinson's disease and related parkinsonisms, we have set the following areas of focus:

Leverage improved knowledge of diseases of the brain to advance precision medicine approaches that can support the development of disease-modifying treatments (those that could slow or stop progression of disease)

Use an integrated ("roadmap") approach to understanding Parkinson's disease, drug development and the measurement of therapeutic activity/outcome in order to translate complex disease understanding into new treatments faster

Facilitate late-stage development and approvals of therapies by advancing patients' role in research and addressing policy, regulator and payer considerations related to new therapies

Continue investment in developing, participating and/or leading multistakeholder collaborations and consortia to increase knowledge-sharing, learning and impact

Engage the patient community regionally/nationally, online, at community events and in all relevant settings to educate and inform them of their vital role in helping us achieve our mission by participating in clinical trials and advocacy and grassroots activities

# data[].attributes.attachment_link.description
The Michael J. Fox Foundation's (MJFF) agenda is focused on building improved knowledge about the lived experience of Parkinson's disease, finding an objective test for Parkinson's, engaging patients in research and supporting the development of new treatments and a cure.

# data[].attributes.headline
shakeitup.org Australian awareness campaign 

# data[].attributes.subject
shakeitup.org Australian awareness campaign 

# data[].attributes.attachment_link.readable_text
Help raise awareness and funds for research into better treatments and ultimately a cure for Parkinson's as part of our 2022 Pause 4 Parkinson's campaign.

Pledge 4 Parkinson's

100% of your donation goes towards funding research to cure Parkinson's

Participate 4 Parkinson's

Select one of our ideas that can help raise awareness and funds for research into better treatments and ultimately a cure for Parkinson's

Be part of a new research project we are funding called the Australian Parkinson's Genetics Study to gather genomic data from 10,000 Australians with Parkinson's and contribute to the largest global study of Parkinson's ever undertaken.

How can I participate?

Select one of our ideas that can raise awareness and funds for research
into better treatments and ultimately a cure for Parkinson's

Make your
event a success

Once you have registered for Pause 4 Parkinson's, we have all you need to get your event underway! Download logos, posters, invites, videos and more...

We can't all be brain scientists, but all of us can get involved.

Sign up for email updates

Get Parkinson's research news, foundation and clinical
trial publications updates and more

# data[].attributes.attachment_link.title
Shake It Up Australia - Funding Parkinson's Research

# data[].attributes.attachment_link.description
Help raise awareness and funds for research into better treatments and ultimately a cure for Parkinson's as part of our 2022 Pause 4 Parkinson's campaign.

# data[].attributes.attachment_link.readable_text
"There has been progress, and everything is changing - but we still have some way to go"

Marina Picillo

If you have a story to tell about being a woman with Parkinson's - or some information about the impact of the condition on women for us to share with the global Parkinson's community - please get in touch.

Women and Parkinson's: Our campaign

It is estimated that three million women worldwide are living with Parkinson's - yet their specific needs and experiences are often ignored, leading to disparities in diagnosis, treatment and medication. Our campaign shares the little-heard stories of women with the condition to find out how their lives are being affected by a
shocking data gap when it comes to women and Parkinson's. This is just the start.

We want to raise awareness of women's experience of the condition within the medical profession, so that women's symptoms are taken seriously.

We think more research is needed into the impact of Parkinson's on women, so that they can benefit from tailored medication and treatment.

We want to explore ways to offer better support for those women managing the condition alongside caring responsibilities.

Join us - #WomenAndParkinsons.

For more information on women and Parkinson's please visit the Parkinson's Europe website.

"There has been progress, and everything is changing - but we still have some way to go"

Marina Picillo

"We are not just variants of men"

Our new campaign centres the experiences of women with Parkinson's
READ MORE

7 famous women with Parkinson's

Can you name a well-known woman with Parkinson's disease?
READ MORE

Is it time for a new image of Parkinson's disease?

Two experts share why we need new pictures depicting the condition
READ MORE

6 tips to stay active while living with Parkinson's disease

Mobility, mindfulness and mood: exploring the potential benefits of yoga

What you need to know about apomorphine pump treatment for Parkinson's disease

"Getting it right was important" - the new TV drama portraying Parkinson's disease on-screen

Investigating the science behind exercise and Parkinson's disease

6 days ago

New research into Parkinson's disease and neuropsychiatric symptoms

A review from the 'British Medical Journal' has found that neuropsychiatric symptoms - which encompass neurological and psychiatric conditions - may be more common in people with Parkinson's than previously thought. The researchers analysed data across 100 articles on neuropsychiatric conditions, such as dementia, anxiety, psychosis and impulse control-related disorders, along with data from randomised controlled trials and meta-analyses. According to the researchers, the analysis showed that many neuropsychiatric conditions have a cumulative frequency of over 50% in people with Parkinson's. Among these conditions is dementia, which was found to impact 80% of people with Parkinson's in the long term. The study made several recommendations for further research, including measures to improve diagnosis and screening. In their conclusion, the authors wrote: "The biggest unmet need is the availability of efficacious treatments; therefore, future research efforts need to focus on the development and testing of novel treatments."

Read more

2 weeks ago

Scientists uncover how 50 genes may be linked to Parkinson's disease

Despite the progress made in recent years, scientists are still uncertain about which genes are associated with Parkinson's. Now, researchers at the Jan and Dan Duncan Neurological Research Institute and Baylor College of Medicine in Texas, US, have identified 50 genes that have been associated with the onset of Parkinson's. First, the team nominated 160 potential genes linked to Parkinson's, which were then further analysed for their role in the onset of the condition. Then, using a fruit fly model, scientists examined 85 of the human genes that had counterparts in fruit flies. Regulating gene activity showed that 50 of the genes either improved or worsened dysfunction induced by the alpha-synuclein - a protein that can cause brain cells to die and leads to the onset of Parkinson's. Reflecting on the results, the scientists wrote in 'Human Molecular Genetics': "These findings deepen our understanding of Parkinson's, and support applying our...

Read more

3 weeks ago

How does Parkinson's disease progress in "brain-first" versus "body-first" subtypes?

Researchers in South Korea have found that people with "body-first" Parkinson's may experience faster symptom progression than those with "brain-first" Parkinson's. According to the researchers, in "body-first" or body-involvement Parkinson's, cells throughout the body are impacted early in the condition's course, whereas in "brain-first" or brain-predominant subtypes of the condition, the impact is primarily limited to cells in the brain. As part of their study, the team examined data from 132 people with the condition. An imaging technique was used to differentiate the cohort into brain- versus body-first categories, and symptoms were measured based on the Unified Parkinson's Disease Rating Scale. The results suggested that symptoms such as sleep problems and attention difficulties were more severe in the body-first group. Reflecting on the findings, the researchers concluded that "the body-involvement subtype is [a] more aggressive phenotype than the brain-predominant subtype".

Read more

# data[].attributes.attachment_link.title
Campaign roundup | Women and Parkinson's | Parkinson's Life

# data[].attributes.attachment_link.description
"There has been progress, and everything is changing - but we still have some way to go" If you have a story to tell about being a woman with Parkinson's - or some information about the impact of the condition on women for us to share with the global Parkinson's community - please get in touch.

# data[].attributes.headline
Unite for Parkinson's - global initiative

# data[].attributes.subject
Unite for Parkinson's - global initiative

# data[].attributes.attachment_link.readable_text
#UniteForParkinsons is a global Parkinson's campaign - launched on 11 April 2017 by Parkinson's Europe (formerly the EPDA) and Parkinson's UK. The campaign aims to raise unprecedented awareness of Parkinson's around the world and to grow an active global Parkinson's community.

In 2017, our aim was to engage the international Parkinson's community in sharing a simple social media hashtag (#UniteForParkinsons). We wanted to prove there was an appetite to work together on a common cause, and when 9,000 people from 89 countries used the #UniteForParkinsons hashtag on 11 April 2017, we knew we had created something significant, and that there was potential to develop it into something bigger.

In 2018, we built on the 2017 foundations and created a bigger and better campaign. Parkinson's Europe and Parkinson's UK teamed up with Parkinson's organisations in Africa, Australia, India and the US, including the Michael J Fox Foundation and the World Parkinson Coalition to broaden the #UniteForParkinsons campaign scope and ambition. This time, we wanted to reach the general public and turn #UniteForParkinsons into an impactful campaign to show the world what Parkinson's truly is. We did this by creating an official #UniteForParkinsons promotional film using emotive video footage from people all over the globe. The #UniteForParkinsons film - which you can watch below - was seen 18,000 times, and we created a staggering 880,000 social media engagements.

You can read more and download two concise reports outlining the results of the 2017 and 2018 campaigns via the Parkinson's Europe website.

# data[].attributes.attachment_link.description
UniteForParkinsons is a global Parkinson's campaign - launched on 11 April 2017 by Parkinson's Europe (formerly the EPDA) and Parkinson's UK. The campaign aims to raise unprecedented awareness of Parkinson's around the world and to grow an active global Parkinson's community.

# data[].attributes.attachment_link.readable_text
The campaign launches alongside two new public services announcements, encouraging everyone to join the urgent mission to create a future without Parkinson's disease

NEW YORK & MIAMI (April 1, 2022) - Marking the beginning of Parkinson's Awareness Month, the Parkinson's Foundation has announced the new #FutureofPD campaign. The multifaceted initiative aims to raise awareness of Parkinson's disease (PD) while highlighting steps the entire community can take to create a future without PD.

"Parkinson's disease affects nearly one million Americans and that is expected to rise as the population ages," said Parkinson's Foundation President and CEO John L. Lehr. "This campaign highlights the role we all play in solving this complex disease, whether participating in research, finding expert care and resources, or tapping into the broader PD community."

Efforts to raise awareness and funds during April are part of the Foundation's nationwide movement to make lives better for people with PD. Whether learning to navigate one's future with PD or helping create a world without it, the effort aims to impact research, care and lives. The campaign spotlights three ways to get involved: By participating in PD GENEration: Mapping the Future of Parkinson's Disease, building an expert care team to live better with PD, and connecting with PD information specialists by calling the Foundation's free bilingual Helpline at 1-800-4PD-INFO (1-800-473-4636).

The Foundation also unveiled two new public service announcements (PSA) airing across the U.S. to highlight how it supports the PD community. Kicking off the Spring 2022 season, the Moving Day, A Walk for Parkinson's PSA embodies the lively energy of the nationwide walk program and highlights activities to expect at local events. The Better Lives.Together. PSA is an awareness-raising video featuring people with PD and their loved ones, using visual storytelling to demonstrate that PD does not just affect the diagnosed - it affects everyone who supports them.

Those featured include: Susan Brister, diagnosed with Young-onset Parkinson's disease (YOPD) at 34, and her husband and two daughters; Donald Miller, diagnosed with PD at 60, and his wife and care partner Marie Head; Tyaisha Blount-Dillon, diagnosed with YOPD at 35, alongside her husband and son; and Susan Brown, diagnosed with YOPD at 34 and care partner to her father, who also lives with PD.

"Before my son was born, I was at a low point facing the possibility of being in a wheelchair, but now keeping up with him is my motivation to stay active," said Tyaisha Blount-Dillon, 43. "For my PD future, it's all about sustainability for my physical health."

This campaign is supported by sponsorship from Sunovion. Those looking to help spread the word, raise awareness and funds can visit Parkinson.org/Awareness or call 1-800-4PD-INFO (1-800-473-4636).

###

About the Parkinson's Foundation
The Parkinson's Foundation makes life better for people with Parkinson's disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson's community. Since 1957, the Parkinson's Foundation has invested more than $400 million in Parkinson's research and clinical care. Connect with us on Parkinson.org, Facebook, Twitter, Instagram or call (800) 4PD-INFO (473-4636).

About Parkinson's Disease
Affecting an estimated one million Americans and 10 million worldwide, Parkinson's disease is the second-most common neurodegenerative disease after Alzheimer's and is the 14th-leading cause of death in the U.S. It is associated with a progressive loss of motor control (e.g., shaking or tremor at rest and lack of facial expression), as well as non-motor symptoms (e.g., depression and anxiety). There is no cure for Parkinson's and 60,000 new cases are diagnosed each year in the U.S. alone.

Help Us Reach Further

Join us in our initiatives to accelerate Parkinson's research, improve care and increase access to quality-of-life programs.

The campaign launches alongside two new public services announcements, encouraging everyone to join the urgent mission to create a future without Parkinson's disease

NEW YORK & MIAMI (April 1, 2022) - Marking the beginning of Parkinson's Awareness Month, the Parkinson's Foundation has announced the new #FutureofPD campaign. The multifaceted initiative aims to raise awareness of Parkinson's disease (PD) while highlighting steps the entire community can take to create a future without PD.

"Parkinson's disease affects nearly one million Americans and that is expected to rise as the population ages," said Parkinson's Foundation President and CEO John L. Lehr. "This campaign highlights the role we all play in solving this complex disease, whether participating in research, finding expert care and resources, or tapping into the broader PD community."

Efforts to raise awareness and funds during April are part of the Foundation's nationwide movement to make lives better for people with PD. Whether learning to navigate one's future with PD or helping create a world without it, the effort aims to impact research, care and lives. The campaign spotlights three ways to get involved: By participating in PD GENEration: Mapping the Future of Parkinson's Disease, building an expert care team to live better with PD, and connecting with PD information specialists by calling the Foundation's free bilingual Helpline at 1-800-4PD-INFO (1-800-473-4636).

The Foundation also unveiled two new public service announcements (PSA) airing across the U.S. to highlight how it supports the PD community. Kicking off the Spring 2022 season, the Moving Day, A Walk for Parkinson's PSA embodies the lively energy of the nationwide walk program and highlights activities to expect at local events. The Better Lives.Together. PSA is an awareness-raising video featuring people with PD and their loved ones, using visual storytelling to demonstrate that PD does not just affect the diagnosed - it affects everyone who supports them.

Those featured include: Susan Brister, diagnosed with Young-onset Parkinson's disease (YOPD) at 34, and her husband and two daughters; Donald Miller, diagnosed with PD at 60, and his wife and care partner Marie Head; Tyaisha Blount-Dillon, diagnosed with YOPD at 35, alongside her husband and son; and Susan Brown, diagnosed with YOPD at 34 and care partner to her father, who also lives with PD.

"Before my son was born, I was at a low point facing the possibility of being in a wheelchair, but now keeping up with him is my motivation to stay active," said Tyaisha Blount-Dillon, 43. "For my PD future, it's all about sustainability for my physical health."

This campaign is supported by sponsorship from Sunovion. Those looking to help spread the word, raise awareness and funds can visit Parkinson.org/Awareness or call 1-800-4PD-INFO (1-800-473-4636).

###

About the Parkinson's Foundation
The Parkinson's Foundation makes life better for people with Parkinson's disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson's community. Since 1957, the Parkinson's Foundation has invested more than $400 million in Parkinson's research and clinical care. Connect with us on Parkinson.org, Facebook, Twitter, Instagram or call (800) 4PD-INFO (473-4636).

About Parkinson's Disease
Affecting an estimated one million Americans and 10 million worldwide, Parkinson's disease is the second-most common neurodegenerative disease after Alzheimer's and is the 14th-leading cause of death in the U.S. It is associated with a progressive loss of motor control (e.g., shaking or tremor at rest and lack of facial expression), as well as non-motor symptoms (e.g., depression and anxiety). There is no cure for Parkinson's and 60,000 new cases are diagnosed each year in the U.S. alone.

Help Us Reach Further

Join us in our initiatives to accelerate Parkinson's research, improve care and increase access to quality-of-life programs.

###

# data[].attributes.attachment_link.title
Parkinson's Foundation Launches #FutureofPD Campaign for Parkinson's Awareness Month

# data[].attributes.attachment_link.description
NEW YORK & MIAMI (April 1, 2022) - Marking the beginning of Parkinson's Awareness Month, the Parkinson's Foundation has announced the new #FutureofPD campaign. The multifaceted initiative aims to raise awareness of Parkinson's disease (PD) while highlighting steps the entire community can take to create a future without PD.

# data[].attributes.attachment_link.readable_text
A group of young onset Parkinson's disease (YOPD) patients from around the world are launching a yearlong Facebook fundraiser to help others with the disorder attend the 6th World Parkinson Congress (WPC) in 2022.

Representing 11 countries, the 26 participants, including an advocate who doesn't have the disease, hope to raise at least $50,000 to cover travel for up to 50 individuals to the international forum, to be held June 7-10 in Barcelona, Spain. Every dollar raised will go toward these travel grants.

Beginning this month, participants will host back-to-back two-week fundraisers through Facebook, covering all 52 weeks in 2022.

Most Parkinson's patients are diagnosed in their 60s. Those diagnosed before age 50 are considered to have YOPD, also called early onset Parkinson's. These patients, half of whom are diagnosed before they turn 40, make up between 10% and 20% of all Parkinson's cases. Individuals who have both YOPD and a family history of Parkinson's are more likely to carry mutations in certain genes associated with the disease.

In many cases, YOPD diagnoses come as individuals are navigating a career or raising children. That can be isolating, lonely, and overwhelming, which is why the YOPD advocates, most of whom have attended a past conference, want others to go.

"I am constantly frustrated by people telling me 'you don't look sick' or 'you're too young to have Parkinson's,' " said fundraising participant Heather Kennedy in a press release. "At the WPC, I never have to explain myself or feel embarrassed by my symptoms because I am surrounded by people who understand what I am going through. That sense of being a part of a larger community changed my perspective on living well with Parkinson's. I want to share that experience with others who have not had the chance to attend a WPC yet. I want others with YOPD to be inspired to live better lives the way the WPC inspired me."

Another participant, Rebecca Miller, was diagnosed with YOPD at 39. Two months later, the U.S. resident attended WPC 2013, which she said inspired her to live a full, rich life despite the disease.

"The conference is truly one of a kind - people with Parkinson's, family, doctors and researchers all together sharing information, inspiring hope, and ultimately, working toward a cure for this devastating disease," Miller states in her bio on the participant webpage. "I'm raising money for the World Parkinson Congress to give others with Young Onset the opportunity to attend. For a person with Parkinson's, this is a life-changing opportunity."

The idea for the fundraiser came about during the last WPC when Miller and Canada resident Larry Gifford, in an impromptu meeting with other patients, decided to do something to help more people experience the conference.

Drawing more than 4,500 patients, neurologists, scientists, clinicians, and care partners, the triennial WPC will include research and care updates as well as stories from patients. The format promotes topic discussion and interaction among attendees about real issues faced by those living with Parkinson's.

Elizabeth Pollard, executive director of the World Parkinson Coalition, which hosts the WPC, called the congress the premier meeting for international discourse on Parkinson's research, treatment and management.

"By providing a totally immersive Parkinson's forum for researchers, healthcare providers and people with Parkinson's, WPC 2022 enables a range and depth of conversations unlike any other Parkinson's meeting," she said.

"This fundraiser is an incredible initiative that was designed and led by people living with [Parkinson's]. It shows how valuable and impactful the WPC experience is for delegates, so impactful that they want others with YOPD to experience the WPC themselves. It's the ultimate pay-it-forward campaign and I am honored to be part of this innovative fundraiser and generous community."

Those interested in joining the fundraiser may contact the WPC here.

# data[].attributes.attachment_link.title
YOPD Advocates Raising Funds for 2022 World Parkinson Congress

# data[].attributes.attachment_link.description
A group of young onset Parkinson's disease (YOPD) patients from around the world are launching a yearlong Facebook fundraiser to help others with the disorder attend the 6th World Parkinson Congress (WPC) in 2022.

# data[].attributes.body
Campaigns done for other goals and founations

# data[].attributes.body
General resource for campaigning

# data[].attributes.attachment_link.readable_text
Marketing is an essential part of any business, especially in the healthcare sphere. Here are 10 successful healthcare marketing campaigns.

How can you set your brand apart from competitors when in the cutthroat healthcare sector?

In today's world, when people have so many options, it may seem difficult to reach out to your target audience. However, simple internet marketing techniques can make your small business profitable. As with the organic traffic from search engines, digital medical marketing is expanding and developing.

This post is going to cover the top healthcare marketing campaign strategies to grow your healthcare business.

The Healthcare Industry and Marketing

It may not seem like it, but Healthcare Marketing Campaigns and strategies frequently resemble those used in other industries. The suggestions below condense what is effective in other digital advertising fields and put it to use in ways that can significantly benefit your healthcare business.

Finding out how other medical practitioners differentiate their practices online might be helpful. Ensure that your office, clinic, or hospital's contact information is prominently shown in search results and included in Yelp, Yahoo, and Google directories.

Health apps and telemedicine are driving the healthcare technology revolution. There are chances that your competitors might be providing such services to their audience. By leveraging these technologies, you can be a leader in the eyes of patients and doctors.

Market research and analysis allow healthcare marketing professionals can gain a deep understanding of their target market and identify the key competitors.

2. Content creation

People use technology and social media to keep up with news about different aspects of their lives. You can capitalize on their interests by producing material addressing potential patients' issues. Some engaging healthcare content ideas are:

Visual media: Videos dominate social media and can help with healthcare marketing. Not only can they help you rank higher on Google, but they can boost your social media marketing and increase interaction. Some websites you can use for this purpose are Facebook, TikTok, Instagram, and Youtube.

Blogs & Articles: Written articles can generate interest, especially if they share information about different medical conditions. 82% of marketers actively use content marketing. Content marketing can position you as an authority in the industry. This, in turn, can draw medical professionals to your office. Having your website published on another website also encourages backlinks, which may help with SEO.

3. Active participation in social media

Social is a big part of healthcare marketing campaigns. For example, patient reviews are important as they can influence opinions and help attract potential customers. Someone's experience does not end with medical treatment or doctor-patient encounters. It also includes how your office handles patient concerns, monetary matters like invoicing, and a setting that encourages open conversation.

Healthcare marketing campaigns utilize common practices like asking for online reviews and collecting patient survey responses are essential. Alternatively, frequenting online forums where patients hold discussions is essential for maintaining communication.

4. Localization of SEO

Local advertising has benefits but is an often disregarded aspect of healthcare marketing campaigns, but it shouldn't be. Most patients want to avoid traveling outside their areas for examinations and medical treatments, which is why localized SEO is important.

Securing your ranking on Google isn't as simple as being at the top of the search engine results. Building citations, maintaining continuous profile updates, and obtaining many highly sought-after five-star ratings are also necessary.

5. Build trust with patients

While many medical offices emphasize bringing in new patients, your current and former patients are essential. Rewarding devoted patients can raise satisfaction levels, and they may react more positively to your marketing efforts.

Reaching out to this demographic is critical to your hospital's marketing plans because they are an excellent referral source.

6. Prioritize branding

Your digital marketing materials should be consistent and high-quality. Medical terminology can be confusing and overwhelming. Remember who your audience is and make sure that you communicate your message accordingly.

A great way to do this is to follow industry leaders and influencers on social media and pay attention to how they communicate with others within their community. It's one thing to be confident in your abilities, but it's a completely different thing to instill that same confidence in someone who's unsure about medical services. Think of your patient:

Do people ever bring up questions or doubts?

What style of communication works best for them?

Are you able to identify any trends in the way different successful professionals respond when faced with situations like yours?

7. Optimize your website content

Although you're attempting to sell your services, website users are usually just seeking to get the information they need swiftly. A satisfied customer on your website creates the impression that you're a provider who values patient care and client satisfaction. Imagine your webpage as the reception area for your business.

According to 38% of users will stop interacting with a website if the layout is unattractive. By optimizing your website you'll be able to create a good online experience for your users.

8. Use an open house strategy

Online and offline open houses may help your clinic become more well-known. Even if the residents haven't been patients, you want your office to come to mind whenever anyone asks for a recommendation.

Consider ways to engage local leaders and harness existing ties to promote involvement.

9. Make use of a physician consultant

Choose a member of your pharmaceutical marketing team to focus on building connections with doctors and enhancing your referral program. Putting more effort into these connections might significantly impact the number of patients you see.

Consider whether pursuing one or more medical marketing concepts could be your practice's best course of action. This can be done after assessing the financial return you presently receive from healthcare advertising. Traditional medical marketing strategies may require an update in today's fast-paced, social media-focused atmosphere.

10. Use leads and email marketing

Email marketing automation is one of the most cutting-edge digital marketing available and offers the best return on investment. A way to inform potential consumers about what's happening at your business is through web forms and newsletter updates.

When someone sends you their email address, you can tell they are interested. The daily or weekly newsletter may include details about your business or basic medical information.

Pay attention to healthcare email marketing strategies that can drive traffic from your email account to your website

The takeaway

Medical marketing might be challenging in a world of giant healthcare corporations, but several healthcare marketing methods can help your clinic stand out. Connecting with potential patients and advertising your business need not be expensive endeavors, notwithstanding some of the substantial marketing costs for medical phrases in the online marketing sector.

The marketing and advertising suggestions above will assist you in going beyond conventional healthcare advertising to connect with new patients. Grow your practice and secure your success in a cutthroat market.

# data[].attributes.attachment_link.title
10 Successful Healthcare Marketing Campaign Strategies To Boost Your Business

# data[].attributes.attachment_link.description
In today's world, when people have so many options, it may seem difficult to reach out to your target audience. However, simple internet marketing techniques can make your small business profitable. As with the organic traffic from search engines, digital medical marketing is expanding and developing.

# data[].attributes.headline
UN - Pause Campaign, anti - misinformation

# data[].attributes.subject
UN - Pause Campaign, anti - misinformation

# data[].attributes.attachment_link.title
Misinformation spreads faster when we’re upset. Pause, #takecarebeforeyoushare

# data[].attributes.body
https://cnduk.org/campaigns/climate-not-trident/

# data[].attributes.attachment_link.title
Our fight against climate change and global warming

# data[].attributes.attachment_link.description
Our planet is facing one of the biggest and most complex environmental challenges, which could have severe implications.

# data[].attributes.headline
Lets #ChatMenopause - Awareness Campaign

# data[].attributes.subject
Lets #ChatMenopause - Awareness Campaign

# data[].attributes.attachment_link.title
Let’s #ChatMenopause - Let’s #ChatMenopause

# data[].attributes.attachment_link.description
Help us make menopause part of everyday conversation

# data[].attributes.attachment_link.description
The Estée Lauder Companies’ Breast Cancer Campaign’s mission is to create a breast cancer-free world by supporting global research, education and medical services. Founded in 1992 by the late Evelyn H. Lauder with the launch of the iconic Pink Ribbon, The Breast Cancer Campaign is The Estée Lauder C…

# data[].attributes.attachment_link.title
10 of the Top Social Media Campaigns of 2022

# data[].attributes.attachment_link.description
What does a successful social media campaign look like? Learn from some of the best-in-class brands with these 10 campaign examples.