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Information for parents about all NNUs in London.
Added by Martina

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This section includes information for each neonatal unit in the London Neonatal Operational Delivery Network (ODN), a jargon buster for terminology and links to external websites which provide support to parents and their families throughout their time in neonatal care.

As babies are sometimes transferred between units, the information provided for each unit includes details on transfers, facilities and services.

The terminology sometimes referred to during this time can be difficult to understand, please refer to our Jargon Buster for a list of frequently used terms and definitions to make understanding your baby's care a little easier.

FURTHER INFORMATION:

As there is some great information out there already for parents to utilise, we have collated a small selection below on what you may find useful.

Safe Baby Care
SIDs @ Lullaby Trust Safer Sleep for Parents Baby Choking Baby CPR (not breathing)
Vaccinations remember to check with your doctor what immunisations your baby needs as they may have already received some on the neonatal unit. You can also opt for an electronic 'Red Book' at eRed Book and plan ahead with reminders.
Sepsis in children Meningitis & Septicaemia
Nutrition
La Leche League
Looking after Yourself

Trying to look after your own heath whilst your baby is on a neonatal unit can be challenging; try the Eatwell guide for advice on eating right. Eatwell
Mental Health
APNI (association for post natal illness)

More Information

NHS (access the 'Newborn' tab)

BLISS (National Charity for babies born too soon)
Cambridge NNU
BabyBuddy from Best Beginnings, supplying advice and an app!

Charities and Support
Cleft Lip & Palate Association Contact A Family Cystic Fibrosis Trust Downs Syndrome Association National Childbirth Trust (NCT) SANDS (Stillbirth And Neonatal Death Society) Twin And Multiple Birth Association (TAMBA)
Tommy's (Tommy's free app for parents)

If you have any further suggestions to make this page more useful please contact the Network Management Team.

Data Collection:

When your baby is on the neonatal unit important information about their care will be recorded. for more information on how this data is used please download the poster below.
NDAU poster
Map of the London Neonatal ODN and Hospitals

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This section includes information for each neonatal unit in the London Neonatal Operational Delivery Network (ODN), a jargon buster for terminology and links to external websites which provide support to parents and their families throughout their time in neonatal care. As babies are sometimes transferred between units, the information provided for each unit includes details on ...

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A website for and by parents of premature babies.
Added by Martina

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premature babies, 24 weeks, premature babies, premature babies, 24 weeks plus online

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premature babies, 24 weeks, premature babies, 24 weeks plus online, neonatal units,

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Instructions on how to use it for practicing KMC with full term babies

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Tamba Guide: Multiple Births - a Parents' Guide to Neonatal Care 

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Tamba Guide: Multiple Births - a Parents' Guide to Neonatal Care 

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TAMBA - Twins and Multiple Births Association

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TAMBA - Twins and Multiple Births Association

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Various resources, e.g. Bereavement support

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Nicky - Positive touch and massage in the Neonatal unit - a British approach

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Nicky - Positive touch and massage in the Neonatal unit - a British approach

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https://www.researchgate.net/publication/10875198_Positive_Touch_and_massage_in_the_neonatal_unit_a_British_approach

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http://www.lovingtouch.com/infant-massage-nicu-preterm

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Benefits of baby massage, and lots more info...
https://babylink.scot.nhs.uk/FamilyCentredCare/CaringForYourBaby/BabyMassage/Pages/default.aspx

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Benefits of Baby massage for babies in Neonatal Units
http://www.swneonatalnetwork.co.uk/media/28779/benefits_of_infant_massage.pdf

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Edmond K, Bahl R (2007) Optimal feeding of low-birth-weight infants:
technical review. WHO
http://www.who.int/maternal_child_adolescent/documents/9241595094/en/

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Non-nutritive sucking an NHS Trust guide, includes a long reference list

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Non-nutritive sucking an NHS Trust guide, includes a long reference list

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https://www.networks.nhs.uk/nhs-networks/thames-valley-wessex-neonatal-network/documents/guidelines/6.6.1 NNS guideline 0512.pdf

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Kate - Non-nutritive sucking Cochrane report

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Kate - Non-nutritive sucking Cochrane report

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https://www.nichd.nih.gov/cochrane_data/pinellij_01/pinellij_01.html

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Cath - Super resource for parents of sick or newborn babies - includes lots of short films

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Cath - Super resource for parents of sick or newborn babies - includes lots of short films

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https://www.bestbeginnings.org.uk/small-wonders

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Support for parents with babies in a neonatal unit

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(GH

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First Steps Nutrition: useful resource about breastfeeding and formula milks

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First Steps Nutrition: useful resource about breastfeeding and formula milks

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http://www.firststepsnutrition.org/newpages/Infant_Milks/infant_milks.html

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Link to Bliss, the website for babies born premature or sick:

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Link to Bliss, the website for babies born premature or sick:

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lots of useful info
https://www.bliss.org.uk/

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Well being Plan - this can be for anyone but particularly for parents dealing with loss of expectations - (GH)

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Well being Plan - this can be for anyone but particularly for parents dealing with loss of expectations - (GH)

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Tommy's premature Baby App for parents- (submitted by GH)

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Tommy's premature Baby App for parents- (submitted by GH)

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https://www.tommys.org/pregnancy-information/pregnancy-complications/premature-birth/free-app-parents-premature-babies

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Tips on maximising production and effectiveness of pumping sessions (AH)

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This material was developed by Jane Morton, MD and produced for educational purposes only. Reproduction for commercial purposes is prohibited. Utilization of the materials to improve care of pregnant women and their newborns is encouraged with proper citation of source.

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This material was developed by Jane Morton, MD and produced for educational purposes only. Reproduction for commercial purposes is prohibited. Utilization of the materials to improve care of pregnant women and their newborns is encouraged with proper citation of source.