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CCLG eLearning modules on the cclg website

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CCLG eLearning modules on the cclg website

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What is spoon theory?

Spoon Theory was written and created by Christine Miserando. This theory has been adapted here (Spoonie Kids) for the use of children, young people and their families, and an interactive worksheet is freely available to download.

A spoon is a metaphor or code word for an amount of energy. It's like a currency which can be saved or spent on different tasks. Using the language of spoons provides a simple measurable way of explaining to others the limited amount of energy available each day.

It can be used to support children and young people with chronic illness/other activity limiting conditions such as difficulties with sensory regulation, fatigue and pain management. It offers a powerful analogy that can help people understand the impact of highly variable levels of energy.

The main aim of the Spoon Theory is to simplify something that due to its complex and ever-changing nature is often misunderstood. It offers a straight forward way for a child to explain their specific needs for or limitations of, that day/activity/task so that they feel heard and understood.

It potentially not only enables the parent/carer/other adult to support the child to manage their energy levels and to not feel "overloaded". It could also prevent both child and adult becoming very frustrated because everyone understands that it's not that the child "won't" but that they "can't". As an example, the child could quite simply say to their parent who has asked them why they won't play out with their friend today when they enjoyed playing out yesterday "I was happy when I played out yesterday but I don't have enough spoons today".

It varies from day to day. One day a child may wake up and feel that it's a good day for them and get out of bed, have breakfast, clean their teeth and still feel they've got enough spoons to go to their appointment with the dentist. The next day it could feel like just getting out of bed could take the only spoons they had. Each day is different.

Everything !!

It's important to acknowledge however, that as individuals, the number of spoons each activity takes may be different from one child to another. For example, four basic morning tasks - getting out of bed, eating breakfast, getting dressed and cleaning teeth - for one child, each of those tasks may take one spoon and for another, it may take 4- dependant on how the body feels that day. If a child starts the day with say 8 spoons, the first child has used half of their spoons just getting ready, the second all of them. As everything else including things like walking to school, completing the multiple tasks of learning once there, socialising, eating and playing all use spoons. The first child has only half of their spoons left for that day's other activities and the second has none.

The environment can have a big impact on the cost of spoons too, noisy, busy areas may take more and leave less for the task in hand they are trying to complete. They will need support to "budget" their spoons.

When a child runs out of spoons life can feel overwhelming. They may need to take some time out, perhaps by having sensory downtime which can help to start replenishing their spoons. This will again be different for each child and learning what helps you as an individual is an important step.

Talk together.
Think about what sort of things costs a child spoons and also what helps them to increase their spoons. For example, quiet time in a favourite place.
You can download the free resource to help with this.

The hope is that with a shared language that is accepted and understood by children and the adults around them, the difficulties that can arise if a child feels they are not believed or listened to such as anger, frustration and low self-esteem may be significantly reduced. The value of considerate, understanding caregivers to maintain the well-being of the child cannot be underestimated.

Email spooniekids@yahoo.com for more information or with questions.

This tool has been created by Joanna Hunt, an Occupational Therapist. She is registered with the Health and Care Professions Council (HCPC), is a member of the Royal College of Occupational Therapists (RCOT) and the Specialist Section Children, Young People and Families.

What should I do next?

Contact us

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What is spoon theory? Spoon Theory was written and created by Christine Miserando. This theory has been adapted here (Spoonie Kids) for the use of children, young people and their families, and an interactive worksheet is freely available to download. A spoon is a metaphor or code word for an amount of energy.

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The mysterious workings of the adolescent brain - ted talk

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The mysterious workings of the adolescent brain - ted talk

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The mysterious workings of the adolescent brain

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Why do teenagers seem so much more impulsive, so much less self-aware than grown-ups? Cognitive neuroscientist Sarah-Jayne Blakemore compares the prefrontal cortex in adolescents to that of adults, to show us how typically “teenage” behavior is caused by the growing and developing brain.

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prescribing exercise for patients

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Moving Medicine will ensure that all health care professionals have up to date information on physical activity presented in a useable, easy to understand format, enabling them to inform their patients and motivate them to become more active.

Dr Paul Jackson, FSEM UK Immediate Past President

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Marina Konopleva, MD, PhD
Leader of the Leukemia Program; Professor of Hematology-Oncology and Co-Director, Translational Blood Cancer Institute
Albert Einstein College of Medicine and Professor of Medicine, University of Texas MD Anderson Cancer Center

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Targeting Bcl-2 Family Proteins in Leukemia

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Marina Konopleva, MD, PhD Leader of the Leukemia Program; Professor of Hematology-Oncology and Co-Director, Translational Blood Cancer Institute Albert Einstein College of Medicine and Professor of Medicine, University of Texas MD Anderson Cancer Center

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Photobiomodulation for mucositis management 

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Photobiomodulation for mucositis management 

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Looking for education materials to share with your patients? Browse below for some of the resources developed by the MASCC Study Groups Antiemetics Cancer Therapy and Nausea Download PDF Version July 2022 Design Credit: Tom Little https://vimeo.com/743508529 Mucositis Mucositis Management Information Sheets Mucositis Management for Patients Treated with Chemotherapy Developed by: Emma Bateman (Section Liaison), [...]

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iPOG Network | Supportive Care Guidance Library

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Disseminating supportive care guidance to the pediatric oncology and bone marrow transplant community

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Engineered T Cells for Cancer Therapy Talk

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Engineered T Cells for Cancer Therapy Talk

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Carl H. June, MD

Director, Center for Cellular Immunotherapies
Professor of Pathology and Laboratory Medicine
Director, Parker Institute for Cancer Immunotherapy
Perelman School of Medicine at the University of Pennsylvania

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Director, Center for Cellular Immunotherapies Professor of Pathology and Laboratory Medicine Director, Parker Institute for Cancer Immunotherapy Perelman School of Medicine at the University of Pennsylvania

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Designing and Developing Paediatric Cancer-Specific Immunotherapies Talk

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Designing and Developing Paediatric Cancer-Specific Immunotherapies Talk

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Speaker, Lecture title, Science of Childhood Cancer Lecture Series

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Helen House - palliative care education series

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Helen House - palliative care education series

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Share your videos with friends, family, and the world

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A Familial Experience of CAR T Cell Therapy

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Compassion Fatigue FINAL.mp3 - Roche HCP Video

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Whole Genome Sequencing: My Family's Journey

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Whole Genome Sequencing: My Family's Journey

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Whole genome sequencing is a powerful and fairly new type of genome sequencing test. One of its most important uses is in trying to find a diagnosis for children who are living without one; children whose condition is believed to be genomic/ genetic but haven't yet had a precise cause identified.

In this film, Claudia Beard tells us about her son, Trent, who has health complications that point towards a genetic cause, but doctors and scientists have so far been unable to find a precise diagnosis. The hope is that whole genome sequencing might help them find it.

This film was developed as part of the programme's free, open-access online course, ' Whole Genome Sequencing: Decoding the Language of Life and Health '.

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Whole Genome Sequencing: My Family's Journey - Genomics Education Programme

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Whole genome sequencing is a powerful and fairly new type of genome sequencing test. One of its most important uses is in trying to find a diagnosis for children who are living without one; children whose condition is believed to be genomic/genetic but haven't yet had a precise cause identified.

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While all nurses will encounter genomics at some point in their practice, there are particular roles where genomics is highly relevant. As new applications for genomics are developed, the number of these roles is likely to increase.

Rare disease

Rare disease nurses support families affected by rare conditions and help them through the health and social care system. Roles in rare disease are often charity funded. For example, Cambridge Rare Disease Network has rare disease nurses, and Birmingham's Women's and Children's Rare Disease Centre has two specialist rare disease nurses funded by Roald Dahl's Marvellous Children's Charity.

There are also nurses who specialise in a particular rare condition, such as:

Familial hypercholesterolemia: These roles usually involve identifying and supporting affected families. You can read more about this work in the North East and Cumbria and the West Midlands.

Monogenic diabetes: Specialist genetic diabetes nurses support patients with this rare form of diabetes and their families, as well as increase recognition and diagnosis of monogenic diabetes among healthcare professionals. More information can be found here.

Clinical nurse specialist / Advanced nurse practitioner

Nurses working as experts within a particular clinical area, for example oncology, cardiology or ohthalmology, will increasingly be trained in the specific management of inherited genetic conditions and targeted treatment within their area. Keeping abreast of rapid developments in genomics is a key part of the role in many specialisms. Here is an example of the work that a clinical nurse specialist may do, taken from the field of renal medicine.

As new initiatives are developed, it is often appropriate for specialist nurses to become involved with service development to help meet patient needs and address patient demands, with the overall aim of improving patient outcomes. The contact that specialist nurses have with patients means they are uniquely placed to take part in such work.

Research

Although advances in genomics have been rapid and impressive, we still have a long way to go. Ongoing research is vital if we are to ensure that all patients can benefit. There are many opportunities to be involved with research projects as a nurse, and you may choose to specialise in this area. The work may involve developing hypotheses, recruiting patients to research projects, training other members of staff, collecting and analysing data, and caring for and communicating with those patients who are involved.

Board representation

Nurses are valued members on many boards and in collaborations between different organisations and charities. You can hear from Dr Christine Patch about her work with the Global Genomics Nursing Alliance and how to get involved in our podcast.

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Genomics in Nursing - Genomics Education Programme

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Explore educational opportunities and useful resources on genomics, created specially for the nursing profession

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Education - Genomics Education Programme

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We also use different external services like Google Webfonts, Google Maps and external Video providers. Since these providers may collect personal data like your IP address we allow you to block them here. Please be aware that this might heavily reduce the functionality and appearance of our site.

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Together for Short Lives 2022 document

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Discovering and Targeting Neuroblastoma Vulnerabilities: ALK Inhibition as a paradigm

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Discovering and Targeting Neuroblastoma Vulnerabilities: ALK Inhibition as a paradigm

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Finding cures. Saving children. ®

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Discovering and Targeting Neuroblastoma Vulnerabilities: ALK Inhibition as a Paradigm

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View the lecture by Dr. Mignon Loh of Benioff Children's Hospital, UCSF on What Will it Take To Cure Every Child with Acute Lymphoblastic Leukemia? Original lecture date: October 21, 2021.

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Mapping childhood brain tumor profiles onto normal development identifies novel therapeutic vulnerabilities

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Mapping childhood brain tumor profiles onto normal development identifies novel therapeutic vulnerabilities

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St Jude Children's research Hospital, pre recorded session

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The Science of Childhood Cancer

A 15-week virtual lecture series

Original lecture date: March 17, 2022

Prof. Dr. Stefan M. Pfister

Director Preclinical Program, Hopp Children's Cancer Center Heidelberg (KiTZ)
Head, Division of Pediatric Neurooncology, DKFZ
Deputy Head, KiTZ Clinical Trial Unit (ZIPO) and Pediatric Brain Tumors, Heidelberg University Hospital

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Mapping Childhood Brain Tumor Profiles Onto Normal Development Identifies Novel Therapeutic Vulnerabilities

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Prof. Dr. Stefan Pfister speaks on Mapping Childhood Brain Tumor Profiles Onto Normal Development Identifies Novel Therapeutic Vulnerabilities. Part of the Science of Childhood Cancer Lecture Series

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You will need to set up a free account to access this e learning module

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elearning

Register for free and gain unlimited access to our extensive elearning library

Earn CME points and track your learning activity with hundreds of hours of continuing medical education.

Category

Sub-category

Profession

Language

Keyword

This e-learning course is comprised of 15 modules providing an up-to-date resource for medical professionals who seek to understand the latest research, advances in technology and future directions of immuno-oncology. Developed by ecancer in collaboration with King’s College London aimed at medical professionals interested in the field of immuno-oncology.

As a introduction to the course, the first module provides an overview of the immune mechanisms relevant to cancer and the relationship between the immune system and cancer.

Published February 2019.

Target audience

This module is aimed at medical professionals interested in the field of immuno-oncology.

Learning objectives

By the end of this module you will be able to:

Describe the role of the immune system in fighting cancer

Define the terms innate immunity and acquired immunity

Describe what T-cells are and their role in the immune system

Understand the process of immune elimination, editing and escape

IT Requirements

This module requires the learner to have a good, stable internet connection and can run on Internet Explorer 7 and above, Mozilla Firefox, Google Chrome and Opera on either Windows or MacOS. Flash Add-on is also required to run this module.

If you are viewing this module on an iPad (through a browser), please download the free Articulate Mobile Player beforehand. Other tablet devices may not be compatible - please check for Flash compatibility.

If you are experiencing technical difficulties, please contact education@ecancer.org and we will get back to you as soon as possible.

Disclosure policy

ecancer and everyone involved in the development of this module has no actual or potential conflict of interest whatsoever which impinges on the making, peer reviewing and dissemination of this e-learning module which was made possible through an unrestricted educational grant from the Bristol-Myers Squibb Foundation and AbbVie Inc.

Both the BMS Foundation and AbbVie Inc. have had no input in the creation of the e-learning materials including the process of selecting speakers.

For more information, please email education@ecancer.org

Support

Production of this module was funded by an unrestricted grant from The Bristol-Myers Squibb Foundation and AbbVie Inc.

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Basis of immune mechanisms relevant to cancer - ecancer

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This e-learning course is comprised of 15 modules providing an up-to-date resource for medical professionals who seek to understand the latest research, adva

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You will need to set up a free account to access the modules.
There are 2 modules available;
paediatric cancer staging: solid tumours Paediatric Cancer Staging: Solid Tumours - ecancer
paediatric cancer staging: bone and soft tissue sarcoma

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elearning

Register for free and gain unlimited access to our extensive elearning library

Earn CME points and track your learning activity with hundreds of hours of continuing medical education.

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Profession

Language

Keyword

These modules on TNM Staging have been developed through an exciting collaboration between ecancer and UICC (Union for International Cancer Control) for the purpose of educating and informing the global cancer community on the globally accepted classification of malignant tumours in paediatric cancer.

Published September 2021.

Target audience

This module has been developed for oncologists interested in learning about the core principles of cancer staging for paediatric tumours.

Learning objectives

By the end of this module, you should be able to:

Know the general principles of the paediatric cancer stage and its Tiered classification.

Understand the paediatric cancer stage and its applications for bone and soft tissue sarcoma.

Apply the Toronto paediatric staging guidelines to real cancer cases.

IT Requirements

This module requires the learner to have a good, stable internet connection and can run on Internet Explorer 7 and above, Mozilla Firefox, Google Chrome and Opera on either Windows or MacOS. Flash Add-on is also required to run this module.

If you are viewing this module on an iPad (through a browser), please download the free Articulate Mobile Player beforehand. Other tablet devices may not be compatible - please check for Flash compatibility.

If you are experiencing technical difficulties, please contact education@ecancer.org and we will get back to you as soon as possible.

Disclosure policy

ecancer and everyone involved in the making of this module have no actual or potential conflict of interest whatsoever which impinges on the making, peer reviewing and dissemination of this e-learning module.

For more information please contact education@ecancer.org.

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Paediatric Cancer Staging: Bone and Soft Tissue Sarcoma - ecancer

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These modules on TNM Staging have been developed through an exciting collaboration between ecancer and UICC (Union for International Cancer Control) for the pur

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You will need to set up a free account to be able to access the module

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Pain Management in Children: Mechanisms of Pain

This module was produced by American Cancer Society for clinicians practising paediatric oncology.

Learning objectives

By the end of the module, you should be able to:

Classify pain by duration, mechanism, and situation

Define and identify the cause, signs and symptoms, and common examples of different types of pain

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Pain Management in Children: Mechanisms of Pain - ecancer

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This module was produced by American Cancer Society for clinicians practising paediatric oncology. By the end of the module, you should be able to: Classify pain by duration, mechanism, and situation Define and identify the cause, signs and symptoms, and common examples of different types of pain

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This free elearning module is aimed specifically at nurses new to the field of paediatric oncology.

You will have to create an account if you are not a member of the CCLG

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Welcome to CCLG's e-learning site

Welcome to our e-learning site. You can select from available courses below.

If you have any questions, please contact us on 0116 252 5858 or email info@cclg.org.uk

Skip available courses

Available courses

Our induction training course for volunteers at CCLG

THIS COURSE IS CURRENTLY BEING REVISED. We do not have a date as yet for when it will be completed. Please note the content is still accurate but we are unable to offer any technical support or award certificates related to this course.

Cancer is a key priority, locally, nationally and internationally and caring for children and young people with cancer requires a range of specific knowledge, skills and experience to deliver complex care regimes both within the hospital or community environment.

The CCLG/RCN have designed and developed e-learning resources for health professionals caring for children and young people with cancer across the globe.

This course builds upon the original modules which were developed and delivered through the Paediatric Oncology Nurses Forum (PONF), RCN (Nurse Educators) and Warwick University, however this has now ceased to run.

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Welcome to our e-learning site. You can select from available courses below.

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e-ESO online platform of the European school of Oncology

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e-ESO online platform of the European school of Oncology

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Take advantage of e-ESO's offers!

Send us a brief video about how e-ESO has made a difference in your life!

Send it to: e-eso@eso.net

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Germ cell tumours in adolescents and young people

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Paediatric Central Venous Access Devices (CVAD) Training resource July2020 Nov 20

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SIOPE cytokine release syndrome pre recorded session

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SIOPE cytokine release syndrome pre recorded session

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You can view the view videos without a login. Choose 'continue without authentication

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The European School of Oncology is an independently funded non-profit organisation dedicated to quality education and training, because we believe all patients deserve equal access to competent cancer care.

Contact us

European School of Oncology
Via Turati, 29, IT-20121 Milano, Italy
e-ESO@eso.net

Subscribe to our newsletter

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SIOPE - oncological emergencies pre recorded sessions

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SIOPE - oncological emergencies pre recorded sessions

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Topics include:
neurological emergencies
TLS
febrile neutropenia
Thromboembolism

You can view the view videos without a login. Choose 'continue without authentication

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Pathways

ESO and SIOP Europe have developed four e-Learning pathways covering topics in paediatric oncology. Each 45-minute e-Session is presented by leading oncology experts. Recordings remain freely available on demand for further visits.
This joint educational activity provides medical students, residents, fellows and junior faculty members in Europe and beyond support and electronically available resources needed to advance their training, by deepening their knowledge in paediatric oncology. By completing the 4 pathways, participants will receive valuable training and education, which they will use to effect change in cancer care in their home countries and institutions.
Once a pathway has been completed, participants will be awarded an e-ESO Certificate of Participation and will get 2 ESCO credits.

In collaboration with

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Topics include:
pain management
transfusion medicine
nutritional support

You can view the view videos without a login. Choose 'continue without authentication

# data[].attributes.attachment_link.readable_text
Pathways

ESO and SIOP Europe have developed four e-Learning pathways covering topics in paediatric oncology. Each 45-minute e-Session is presented by leading oncology experts. Recordings remain freely available on demand for further visits.
This joint educational activity provides medical students, residents, fellows and junior faculty members in Europe and beyond support and electronically available resources needed to advance their training, by deepening their knowledge in paediatric oncology. By completing the 4 pathways, participants will receive valuable training and education, which they will use to effect change in cancer care in their home countries and institutions.
Once a pathway has been completed, participants will be awarded an e-ESO Certificate of Participation and will get 2 ESCO credits.

In collaboration with

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SIOPE pre-recorded session on late effects

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SIOPE pre-recorded session on late effects

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You can view the view videos without a login. Choose 'continue without authentication

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The European School of Oncology is an independently funded non-profit organisation dedicated to quality education and training, because we believe all patients deserve equal access to competent cancer care.

Contact us

European School of Oncology
Via Turati, 29, IT-20121 Milano, Italy
e-ESO@eso.net

Subscribe to our newsletter

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Most challenging late effects in paediatric oncology

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Expert: Katrin Scheinemann, Kantonsspital Aarau AG, Switzerland, Discussant: Heleen van der Pal, Prinses Maxima Centrum, The Netherlands

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SIOPE  - CAR T cell therapies in paediatric solid cancers pre - recorded session

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SIOPE  - CAR T cell therapies in paediatric solid cancers pre - recorded session

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You can view the view videos without a login. Choose 'continue without authentication

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E-session 586 / CME accredited

Expert

IRCCS Ospedale Pediatrico Bambino Gesù
Rome, Italy

Discussant

Pediatric Oncologist
Young SIOPE Educational Group member, Sant Joan de Deu Hospital
Barcelona, Spain

Discussant

Princess Máxima Center for Pediatric Oncology
Utrecht, The Netherlands

This e-Session is part of the following pathway(s):

In collaboration with

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CAR-T-cell therapies in pediatric solid cancers

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Expert: Franco Locatelli, IRCCS Ospedale Pediatrico Bambino Gesù, Italy, Discussant: Roelof van Ewijk, Princess Máxima Center for Pediatric Oncology, The Netherlands, Discussant: Paula Perez Albert, Young SIOPE Educational Group member, Sant Joan de Deu Hospital, Spain

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SIOPE brain tumour pre-recorded sessions

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SIOPE brain tumour pre-recorded sessions

# data[].attributes.body
Sessions aimed at medics and nurses.

You can view the videos without a login. Choose 'continue without authentication'

# data[].attributes.attachment_link.readable_text
Pathways

ESO and SIOP Europe have developed four e-Learning pathways covering topics in paediatric oncology. Each 45-minute e-Session is presented by leading oncology experts. Recordings remain freely available on demand for further visits.
This joint educational activity provides medical students, residents, fellows and junior faculty members in Europe and beyond support and electronically available resources needed to advance their training, by deepening their knowledge in paediatric oncology. By completing the 4 pathways, participants will receive valuable training and education, which they will use to effect change in cancer care in their home countries and institutions.
Once a pathway has been completed, participants will be awarded an e-ESO Certificate of Participation and will get 2 ESCO credits.

In collaboration with

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SIOPE solid tumours pre-recorded sessions

# data[].attributes.subject
SIOPE solid tumours pre-recorded sessions

# data[].attributes.body
Sessions aimed at medics and nurses.

You can view the videos without a login. Choose ' continue without authentication'

# data[].attributes.attachment_link.readable_text
Pathways

ESO and SIOP Europe have developed four e-Learning pathways covering topics in paediatric oncology. Each 45-minute e-Session is presented by leading oncology experts. Recordings remain freely available on demand for further visits.
This joint educational activity provides medical students, residents, fellows and junior faculty members in Europe and beyond support and electronically available resources needed to advance their training, by deepening their knowledge in paediatric oncology. By completing the 4 pathways, participants will receive valuable training and education, which they will use to effect change in cancer care in their home countries and institutions.
Once a pathway has been completed, participants will be awarded an e-ESO Certificate of Participation and will get 2 ESCO credits.

In collaboration with

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SIOPE malignant Haematology pre - recorded sessions 

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SIOPE malignant Haematology pre - recorded sessions 

# data[].attributes.body
Sessions aimed at medics and nurses. Topics include;
ALL in childhood and adolescence
AML in childhood
myelodysplastic syndrome/ JMML in childhood
Immumotherapy in childhood ALL

You can view the videos without a login. Choose 'continue without authentication'

# data[].attributes.attachment_link.readable_text
Pathways

ESO and SIOP Europe have developed four e-Learning pathways covering topics in paediatric oncology. Each 45-minute e-Session is presented by leading oncology experts. Recordings remain freely available on demand for further visits.
This joint educational activity provides medical students, residents, fellows and junior faculty members in Europe and beyond support and electronically available resources needed to advance their training, by deepening their knowledge in paediatric oncology. By completing the 4 pathways, participants will receive valuable training and education, which they will use to effect change in cancer care in their home countries and institutions.
Once a pathway has been completed, participants will be awarded an e-ESO Certificate of Participation and will get 2 ESCO credits.

In collaboration with

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CCLG Family information sheet

St Judes - Information

Posterior Fossa Syndrome - Together (stjude.org)

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Introduction to Palliative Care

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Children's palliative care is about promoting the best possible quality of life and care for every child with a life-limiting or life-threatening condition and their family. Giving families real choice has been key to this approach: a choice of place of care; a choice of place of death; and a choice of emotional and bereavement support.

What is children's palliative care?

Palliative care for children and young people is an active and total approach to care, from the point of diagnosis, throughout the child's life, death and beyond. It embraces physical, emotional, social and spiritual elements and focuses on the enhancement of quality of life for the child or young person and support for the whole family. It includes the management of distressing symptoms, provision of short breaks, care at the end of life and bereavement support.

Palliative care can be introduced at any point throughout a child's life; it is completely individual. Some children may require palliative care from birth; others only as their condition deteriorates. Families may also vary as to whether they wish to pursue treatments aimed to cure or significantly prolong life. In practice, palliative care should be offered from diagnosis of a life-shortening condition or from recognition that curative treatment for a life-threatening condition is not an option. However, each situation is different and care should be tailored to the child.

The Together for Short Lives Charter  was developed with families and sets out 10 key things that children and families should expect from their local children's palliative care services. Based on the underlying principles of dignity and respect the Charter is a key reference to help understand what children's palliative care should strive to look like: trying to ensure that all children and families receive appropriate palliative care underpins all the work that Together for Short Lives undertakes.

Supporting better care

Together for Short Lives is committed to ensuring that children with life-limiting or life-threatening conditions receive the best palliative care and support they can. Children's palliative care is provided by a wide range of professionals and services, and we provide information and resources to both families and professionals to help them navigate the system and achieve the best outcomes for children they can. Our website contains a host of information, and you can also contact our helpline for information.

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What is Children's Palliative Care - Together for Short Lives

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Children's palliative care is about promoting the best possible quality of life and care for every child with a life-limiting or life-threatening condition and their family. Giving families real choice has been key to this approach: a choice of place of care; a choice of place of death; and a choice of emotional and bereavement support.

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Within the website is links to national guidance the team at Helen and Douglas House have contributed towards.

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Helen & Douglas House is the world’s first children’s hospice and continues to inspire the global children's hospice movement. As well as delivering specialists clinical services and respite, we have contributed significantly to the development of Paediatric Palliative Care and we are delighted to share this work to help other healthcare professionals to ensure children and families receive the best possible care.

No matter how much you’re able to give, you can be sure you’ll be making a big difference to terminally ill babies, children, and young people.

Donate

Help your hospice by doing some local fundraising and having great fun! There are so many things you could do to make a difference.

Fundraising

Give a little, win a lot by playing the Local Hospice Lottery in support of Helen & Douglas House. Up to £25,000 up for grabs.

Lottery

Gifts in Wills are crucial to us. Without them, we wouldn’t be able to help as many terminally ill babies, children, and young people.

Gift In Will

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Healthcare Professionals - Helen and Douglas House

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Helen & Douglas House is the world's first children's hospice and continues to inspire the...

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Dr Charlotte Holland discusses, symptom management for palliative oncology patients

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2022 APPM study day 9th and 10th June 2022 Alternative medication options for MST granules and buccal diamorphine May 2022

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Guidelines & Resources | Association for Paediatric Palliative Medicine

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2022 APPM study day 9th and 10th June 2022 Alternative medication options for MST granules and buccal diamorphine May 2022 Our site uses cookies. For more information, see our cookie policy. Accept cookies and close

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EBMT Educational eGvHD App

EBMT Educational SOS-VOD App

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This login space is for Content Editors only. There is currently no member login for the site. The EBMT will alert all members when member login is established.

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The European Society for Blood and Marrow Transplantation 

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The European Society for Blood and Marrow Transplantation 

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The website has a range of education resources including, e learning, webinars and handobooks

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The EBMT's departments offer a range of courses, events, online tools and collaboration opportunities to EBMT members and other actors involved in Blood and Marrow Transplantation (BMT) and cellular therapy and related fields. We also publish the top international reference handbooks on Haematopoietic Stem Cell Transplantation and Cellular Therapy for clinicians, researchers and nurses.

Educational Resources

Become a member

E-learning

Webinars

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The EBMT's departments offer a range of courses, events, online tools and collaboration opportunities to EBMT members and other actors involved in Blood and Marrow Transplantation (BMT) and cellular therapy and related fields. We also publish the top international reference handbooks on Haematopoietic Stem Cell Transplantation and Cellular Therapy for clinicians, researchers and nurses.

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E Learning - Introduction to blood cancers

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E Learning - Introduction to blood cancers

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Designed for nurses. To access the e learning you will need to set up a free account

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Because together we can be the generation to beat blood cancer

Blood Cancer UK is the trading name of Bloodwise, 111 George Street, Edinburgh EH2 4JN. A company limited by guarantee 738089 (registered in England and Wales). Registered charity 216032 (England and Wales) SCO37529 (Scotland) © 2022

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Blood Cancer UK is the trading name of Bloodwise, 111 George Street, Edinburgh EH2 4JN. A company limited by guarantee 738089 (registered in England and Wales). Registered charity 216032 (England and Wales) SCO37529 (Scotland) © 2022

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Blood cancer is a term that's used to describe many different types of cancer that can affect your blood, bone marrow or lymphatic system. It happens when something goes wrong with the development of your blood cells.

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Blood cancer is a term that's used to describe many different types of cancer that can affect your blood, bone marrow or lymphatic system. It happens when something goes wrong with the development of your blood cells.

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For young adults with leukaemia, lymphoma or any type of blood cancer: your guide to treatment, side effects, coping with emotions, friends and work or studying. Watch young people share their experiences and tips on how to get through it. And find out what you need to know about being young and having blood cancer.

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Blood Cancer UK | Blood cancer and young adults

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For young adults with leukaemia, lymphoma or any type of blood cancer: your guide to treatment, side effects, coping with emotions, friends and work or studying. Watch young people share their experiences and tips on how to get through it. And find out what you need to know about being young and having blood cancer.

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Signs and symptoms of tumours

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Although brain tumours are rare, if you or a loved one are experiencing two or more of the signs and symptoms it's important that you speak to your doctor to rule out a brain tumour.

Faster diagnosis leads to quicker treatments, so you're always better safe than tumour.

Know the signs and symptoms

Choose an age group for a full list of the signs and symptoms

Guidance for healthcare professionals

Explore our materials designed to help healthcare professionals recognise the common signs and symptoms that could indicate a brain tumour in children and young people under the age of 18.

We're working on producing further materials to support healthcare professionals. Please get in touch if you'd like us to let you know about future updates.

01252 749990 - [email protected]

Knowing the signs and symptoms of a brain tumour can lead to a faster diagnosis, which could reduce the impact of a brain tumour.

That's why we need your help to spread our campaign far and wide, so everyone knows they're better safe than tumour!

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If you are experiencing two or more of the signs and symptoms, it's important that you are better safe than tumour.

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Aftercure: a guide for teenage and young adult survivors of childhood cancer has been written by cancer experts to help answer some of the questions you might have, and explain why you may still need follow up care.

Edited by Dr Helen Jenkinson, Consultant Paediatric Oncologist and late effects specialist, on behalf of the CCLG Late Effects Group, 'Aftercure' is available from your late effects clinic, or to download or order free of charge from our website.

Aftercure is accompanied by a number of specific late effects factsheets to help you understand more about potential late effects of your treatment.
Download 'Aftercure' Order your free copy

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Aftercure: a guide for teenage and young adult survivors of childhood cancer has been written by cancer experts to help answer some of the questions you might have, and explain why you may still need follow up care.

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Our Aftercure factsheets provide information about specific late effects and can be downloaded below.

The factsheets are written to accompany our booklet 'Aftercure: A guide for teenage and young adult survivors of childhood cancer'. They are written, and regularly updated and reviewed, by our expert CCLG Late Effects Group. New factsheets will be added to this page as they become available.

Order free printed copies of Aftercure factsheets

Download factsheets

Bleomycin treatment (lungs)

Breast cancer risk

Heart health

Health of a single kidney

Healthy Living

Lung health

Osteonecrosis (avascular necrosis, AVN) (bones)

Osteoporosis (bones)

Osteoradionecrosis (bones)

Previous (2008) factsheets

The CCLG Late Effects Group is in the process of updating the following factsheets. They are currently only available as downloads.

Bone marrow transplant (effects of treatment)

Dental care

Endocrine - effects on growth and development

Endoprostheses - metal bone replacements

Eye problems

Fertility in men

Fertility in women

Hair loss

Hearing problems

Kidneys & bladders

The effects of radiation on bone and soft tissues

The effects of radiation on the brain

Reducing the risk of second cancers

Splenectomy - living with no spleen

Thyroid gland

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research with teenagers and young adults to improve their experience and outcome after a cancer diagnosis

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Research with teenagers and young adults to improve their experience and outcome after a cancer diagnosis.

Involving young people

Involving young people is an essential part of the BRIGHTLIGHT programme

Our research

We collaborate with teenage and young adult (TYA) teams and researchers across the UK

Resources

We work with teenage and young adult (TYA) teams and health professionals across the NHS

BRIGHTLIGHT was developed by young people for young people

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Research with teenagers and young adults to improve their experience and outcome after a cancer diagnosis.

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e learning module with self test quiz

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Coventry University in association with, and supported by Teenage Cancer Trust have designed this e-learning Webapp to help those new to working with Teenagers and Young Adults (TYA) with Cancer understand the key principles of care for addressing their unique needs. It also provides underpinning knowledge of teenage and young adulthood in general so that the learner can appreciate the impact of a cancer diagnosis and its treatment at this age and stage of life.

Aims

This eLearning Webapp aims to promote Teenage/Young Adult Cancer Care within the context of the whole cancer care experience.

Learning Outcomes

The intended learning outcomes are that on completion of this eLearning Webapp the student should be able to:

Describe the physical and psychosocial changes that occur during 'normal' adolescent development

Describe the most common cancers that occur for teenagers and young adults

Describe cancer treatment types and recognise how cancer and its treatments may impact the teenager/young adult with cancer

Acknowledge age specific issues related to communicating with teenagers/young adults with cancer, their families and peers

Recognise specific professional issues when dealing with this patient group such as professional boundaries, legal and ethical considerations

Recognise factors influencing survivorship and or end of life treatment for teenagers and young adults

Working your way through the Webapp

The content is spread out over sections and has been written by experts in the field of caring for Teenagers/Young Adults with Cancer. It is purposefully written in a way that conveys the basic principles of care for this patient group rather than defining or describing specialist knowledge.

Meet Simon and Sumita

To help the learner understand the impact of cancer on a Teenager or Young Adult we would like to introduce you to Simon, aged 14, and Sumita aged 21. Both of these young people have cancer and have blogged throughout their cancer experience. These blogs are available for you to read in full and you will be signposted to aspects of their blog that link to various sections that help you make sense of what the cancer experience can be like for Teenagers and Young Adult. You can switch between the blogs and the content quite easily.

Please note that while these characters are fictional, the experiences presented are drawn from a diverse collection of case studies and you may find some of the blogs emotional as they reflect the reality of cancer for some young people.

Assessment of learning

This eLearning Webapp does not assess clinical competence.

A self test quiz is available at the end of the eLearning Webapp. Upon successful completion of the quiz, the user can download a certificate of completion.

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Coventry University in association with, and supported by Teenage Cancer Trust have designed this e-learning Webapp to help those new to working with Teenagers and Young Adults (TYA) with Cancer understand the key principles of care for addressing their unique needs.

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TYAC - Teenagers and Young Adults with Cancer's website

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Welcome to the online home of the TYAC, the Teenagers and Young Adults with Cancer's website.

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Help and support

Our cancer units

Information about cancer

About our cancer information

Written by cancer experts, reviewed by young people with cancer.

PIF TICK approved - the only UK quality mark for trustworthy health information.

20 years of cancer information publishing experience.

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specialist cancer units built-in hospitals across the UK

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London to Brighton Cycle Ride 2022

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Stories from young people with cancer

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We're the only UK charity providing care and support for every young person facing cancer. We've got your back.

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Videos

Testicular Tissue Cryopreservation video playlist

Will I be abe to have children after my treatment?

Testes and testicular tissue

Testes (also called testicles) are part of the male reproductive system.

When a boy is born they usually have two testes which contain 'sperm stem cells'. Before puberty, these stem cells are inactive (dormant).

Once a boy reaches puberty these cells, along with their supporting cells, will usually start to produce sperm and the hormone testosterone. Tissue containing sperm stem cells from the testicles can be cryopreserved and stored for future use.

Collection and storage

We usually collect testicular tissue during a short surgical operation under general anaesthetic which we arrange before treatment starts if possible.

During the operation, the surgeon removes a wedge-shaped section of tissue (biopsy) containing sperm stem cells. The tissue is transported immediately to the Oxford Cell and Tissue Biobank (OCTB) in Oxford.

There we carefully preserve the tissue and freeze it using a specialised cryopreservation process. We then safely store the tissue at ultra-low temperatures (around -170°C).

Future use

Testicular tissue cryopreservation programmes are well-established and have been running in a number of centres worldwide for over ten years.

Storage of testicular tissue containing sperm stem cells offers the potential for fertility restoration but is not a guarantee of viable sperm or a resultant successful pregnancy.

None of the patients with stored tissue have yet reached an age when they wish to start a family, so there are no published reports on the use of testicular tissue in humans to date.

Various techniques for use of the tissue have been developed including tissue or sperm stem cell re-implantation and in vitro maturation of tissue to produce sperm.

However, the way that stored testicular tissue could be used in the future may change and progress with new advances and research.

We will discuss all techniques fully when a patient wishes to use their stored tissue to start a family.

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Copyright (c) 2022 Oxford University Hospitals NHS Trust

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Testes (also called testicles) are part of the male reproductive system. When a boy is born they usually have two testes which contain 'sperm stem cells'. Before puberty, these stem cells are inactive (dormant). Once a boy reaches puberty these cells, along with their supporting cells, will usually start to produce sperm and the hormone testosterone.