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Only 10 to 20 children are diagnose each year in the US

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Most newborns don't live past the age of 2 if not treated or diagnosed.

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Currently there is no cure for ADA.

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The main source of treatment is from blood transplants. They can have a red blood cell transplant or have a blood forming stem cells from the bone marrow of a healthy sibling.

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Most diagnosises happen within the first 6 months of life. If they start to develope symptoms or are suspected to have it can have blood or gene tests as well as screening.

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Symptoms include pnemonia, diarrhea, skin rashes, and slowed growth/ development.

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ADA is a mutation on the 20th Chromosome that causes it not to make ADA protein. This protein is neccisary to break down a toxic substamce called deoxyadenosine.

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ADA is an inherited disorder that damages the immune system.