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I think this is a great advancement in technology and care delivery for babies with HLHS. Cardiac infants that have previously required constant hospital stays and visits can now return home with families. I think the advancment gives hope to families with critically ill infants to lead a more normal life with the reassurance of continued monitoring and easily accessible resorces when needed.

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McGonigle, D., & Mastrian, K. G. (2018). Nursing informatics and the foundation of knowledge (4th edition).  Burlington, MA: Jones & Bartlett.

Ray, S. (2016). Children's Mercy app brings doctors home, virtually, with babies born with heart disease. Retrieved from https://blogs.microsoft.com/transform/feature/childrens-mercy-app-brings-doctors-home-virtually-with-babies-born-with-heart-disease/#sm.0001wbobk15t0dv3z941mbds9870t

Telehealth Resource Centers. (2016). A framework for defining telehealth [pdf]. Retrieved from https://www.telehealthresourcecenter.org/

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The Cardiac High Acuity Monitoring Program (CHAMP) is an innovative form of telemedicine that allows families to return home with their child sooner than has ever previously been possible (Ray, 2016). The application is advanced in the area of telemedicine since it incorporates three different domains of telehealth medicine: live videoconferencing, store-and forward capabilties, and remote patient monitoring capabilities (Telehealth Resources Center, 2016). The app allows for post-operative cardiac infants to be discharged from the hospital to home, but still recieve close monitoring.

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"Shirali and his team are working on algorithms that could use particular combinations of things like weight, saturation change and heartrate, for example, to help identify problems and improve the treatment plan." -Susanna Ray

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Dr. Girish Shirali, Cardiology, Richard Stroup, Informatics Director, and Children's Mercy Kansas City partnered with Microsoft to create the app and implement the technology

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Following corrective surgery for HLHS, families are discharged home with a Microsoft Tablet. Patients are still considered to be very high acuity and are at high risk for complications and decompensation. Multiple times a day the family inputs the patient's vital signs into the app. Data is then stored and analyzed in the cloud. The app allows for the care team to be instantly alerted when data is inputed and if there are abnormal findings. The app also  allows for video assessments and video conferencing with the care team as needed.

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Mercy Hospital Southwest Birthing Center

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Children’s Mercy app brings doctors home, virtually, with babies born with heart disease

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As a parent of a newborn with rare disease, monitoring for subtle health changes is critical, if not lifesaving. See how Microsoft technology brings to life the vision of Dr. Girish Shirali, creating a system where nurses and doctors can be brought home, virtually, even from hundreds of miles away.

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Cardiac High Acuity Monitoring Program (CHAMP) 

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Cardiac High Acuity Monitoring Program (CHAMP) 

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Hypoplastic Left Heart Syndrome (HLHS) is a congenital heart disease that requires several surgeries after birth. As many as 25% of babies don't live to make their second surgery.
Dr. Shirali in coordination with Children's Mercy Kansas City have created an app that allows at home monitoring of these high-risk patients

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Reliance on technology for changes in patient assessment.

Program dependent on the parents/caregivers' engagement in the child care for data input and compliance. Programs reliant on individual data entry leave room for error (McGonigle & Mastrian, 2016).

Ability to perform physical exam and listen to breath/cardiac sounds limited. This remains one of the biggest drawbacks with telemedicine in general (McGonigle & Mastrian, 2016).

There is an obvious learning curve for assessment skills via video/teleconference.

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Data easy to enter by families.

Allows for providers to see changes in patient vitals/assessment remotely.

Video option for providers to visually assess changes in patient's assessment real time. This has been shown to be advantageous in rural areas and critical access areas and allows families to not have to maintain residence close to a hospital (McGonigle & Mastrian, 2016)

"I'm concerned" button that parents can use to alert a nurse

Increased analysis of data to notify providers of potential/impending risk for decline (Ray, 2106).

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"More than 80 percent of the hospitals in the United States that treat babies with HLHS have requested CHAMP devices for their patients. Seattle Children's Hospital is the team's first beta site for the app, which deployed in January"      -Susanna Ray, Microsoft