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- CDC. (2019, December 05). Facts about Down Syndrome. Retrieved from https://www.cdc.gov/ncbddd/birthdefects/downsyndrome.html
- What is Down Syndrome?: National Down Syndrome Society. Retrieved September 28, 2020, from https://www.ndss.org/about-down-syndrome/down-syndrome/
- Touch-type Read & Spell. (2020, March 02). Modifications for students with Down syndrome. Retrieved from https://www.readandspell.com/us/modifications-for-students-with-Down-syndrome
- Managing Behavior. Retrieved September 28, 2020, from https://www.ndss.org/resources/managing-behavior/

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This is a great resource to national connect families with children with Down Syndrome. It shares a lot of information and events.

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Donate

NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities. Your support helps make that vision a reality.

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Human Rights Organization for Individuals with Down syndrome | NDSS

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NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities. Your support helps make that vision a reality.

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This is a great resource to be able to get information to families whether you are a new parent, moving to a new area, and events to connect other people and families.

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empower...connect...support

Mission Statement
To empower, connect, and support the lifespan of individuals with Down syndrome, their families, and the community through outreach, advocacy, and education in North Carolina.

Vision
North Carolina Down Syndrome Alliance is an effective, compassionate, and comprehensive resource on Down syndrome throughout North Carolina. NCDSA envisions a culture in which all people with Down syndrome are empowered to achieve their full potential and live healthy, productive lives as valued citizens within the fabric of society.

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empower...connect...support Mission Statement To empower, connect, and support the lifespan of individuals with Down syndrome, their families, and the community through outreach, advocacy, and education in North Carolina. Vision North Carolina Down Syndrome Alliance is an effective, compassionate, and comprehensive resource on Down syndrome throughout North Carolina.

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This is a great place for parents of children with Down Syndrome who are in the Pitt County Public School system to see what is happening.

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PCS Technology Fee due September 15

The annual Technology Fee is due on September 15, 2020. Please either pay the $25 fee in full or make your first $5 payment by September 15. Anyone who has not made a payment by September 15 will be opting out of device coverage for this school year and will have to pay the full cost of any needed repairs or replacement should the device become damaged.

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Exceptional Children / Resources for Parents

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PCS Technology Fee due September 15 The annual Technology Fee is due on September 15, 2020. Please either pay the $25 fee in full or make your first $5 payment by September 15.

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This a place where if teachers locally need to find a therapy center for a student in their class needs to go.

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Start children off on the way they should go,

and even when they are old they will not turn from it.

-Proverbs 22:6

Here you will find a list of useful links for parents:
LendEDU https://lendedu.com/blog/paying-for-college-for-people-with-disabilities/Children's Equipment and Medical Services Funding Resources Exceptional Community Baseball League-Greenville, NC
Digital Resources for Students with Autism https://teach.com/online-ed/psychology-degrees/aba-digital-autism-resources/Home Playroom Design for Children with Autism http://productdiggers.com/autism-playroom/Switch Accessible Apps for iPads https://enablingdevices.com/wp-content/uploads/2018/09/Switch-Accessible-Apps-2018.pdf Apps for Individuals on the Autism Spectrum https://enablingdevices.com/wp-content/uploads/2018/09/Apps-for-Individuals-on-the-Autism-Spectrum-2018.pdf Cerebral Palsy Group https://cerebralpalsygroup.com/treatment/therapy/speech-therapy/http://myecbl.com/
www.nc.eastersealsucp.com Aquaventure Aquatic Center
It takes a village to raise a child.
-African Proverb

Here you will find a list of community resources in and around Pitt County:
(252) 931-8081 Pitt County Community Schools and Recreation Department
214A Beacon Dr

Winterville, NC 28590
(252) 902-1975 https://www.greenvillenc.gov/government/recreation-parks/programs-and-activities Sports for Persons with Disabilities - Greenville Parks and Recreation https://www.nchpad.org/Directories/Programs/8583/Sports~for~Persons~with~Disabilities~-~Greenville~Parks~and~Recreation Hope Farms
4561 County Home Rd.

Greenville, NC 27858
(252) 531-6606 Dolly Parton Imagination Library - free monthly book delivery birth - 5 yo www.imaginationlibrary.com BCPS https://www.bcps-autism.com/
872 Briley Rd

Greenville, NC 27834
252-751-0518 S.M.E.G. Family Mental Health https://sites.google.com/smegfmh.com/smegfmh/
3851 Dunhagan Road Ste 102

Greenville, NC 27858
252-364-8972 Child Links/ Martin-Pitt Partnership for Children- Toy library and other resources http://www.mppfc.org/
610A Old Tar Village Road

Winterville, NC 28590
252-758-8885 Rocking Horse Ranch for therapeutic horse riding http://www.rhrnc.com Exceptional Community Baseball League http://myecbl.com Support Team for Adaptive Recreation (STAR)- Adapted sports for children with special needs https://star-recreation.org Eastern North Carolina AMBUCS- Adapted trykes for children with special needs http://www.encambucs.com Sarah Stein-Wolf MA LPC
111B Eastbrook Drive
252-493-6492
Greenville, NC 27858
www.sarahsteinwolfLPC.com Katie Holler- Autism Resource Specialist with the NC Autism Society 252-756-1316
Play Therapist/Licensed Professional Counselor
Murphrey Equine Therapy Center
Email: sarahsteinwolf@hushmail.com

Email: kholler@autismsociety-nc.org

Equine Therapy Riding

252-714-8763 (Bob)

252-367-1986 (Angie)

4473 Pleasant Plain Rd.
www.facebook.com/murphreyquarterhorsesayden/
Ayden, NC 28513

Email: murphreyequinecenter19@gmail.com

Tell me and I forget.
Teach me and I remember.
Involve me and I learn.
-Chinese Proverb

Here you will find a list of useful links for therapists:

Speech

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This is a great resource for North Carolina teachers to get accuarte information, resources, and materials to help them best teach children with Down Syndrome.

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This is a great resource that offers information and advice about education and development for child with Down Syndrome.

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The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.

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Wandering/Running off
- Have a plan written into IEP, including roles in event of child wandering. Have visual supports like stop signs on and near doors and encourage asking permission to leave the classroom.

Stubbornness
- Communication frustration or lack of understanding may be root of the triggered behavior.

Obsessive/ Compulsive Behaviors
- most commonly seen in younger children. The frequency and intensity is often greater and may lead to very rigid manner behaviors. Talking the child through the behaviors should help.

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- People with down syndrome are becoming more and more integrated into everyday society such as in school, work, social, and recreational activities. Every child is different and what they are capable of and should have different adaptions and accommodations.
- It is most common that children with down syndrome are placed in the education system where they learn alongside their general education peers. There are many benefits to this, but the teacher may need to modify certain exercises to get the maximum benefit out of the material.
- Teachers may want to change assignments and/or the delivery of the material. Some adjustments may be straightforward, such as extending time limits or giving them a copy of the notes, or reducing how long a paper has to be. Others may need more help learning and needs more help of a teachers assistant or through special support sessions at a certain time during the day.
- Ensure learning is multi- sensory and includes lots of visuals and examples.
-Help them stay focused, feel comforable, develop relationships with teachers and peers, stay organized, encourage, and motivate.

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Not every child with Down Syndrome has other birth defects or health problems, but more common health problems associated with Down Syndrome are:
-Hearing loss
-Sleep apnea
-Ear infections
-Eye diseases
-Heart Defects (present at birth)

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There are two tests that can be done during pregnancy to detect Down Syndrome. Screening tests and diagnosis tests. Screening tests are done and is a combination of testing the about of substances in the mothers blood and an ultrasound. During the ultrasound the technition looks to see if there is extra fluid behind the baby's neck, which could indicate a genetic problem. Then a diagnostic test is done if the screening test comes back positive to confirm the Down Syndrome diagnosis. Diagnostic Tests include chorionic villus sampling (CVS), which examines material from the placenta, amniocentesis, which examines amniotic fluid, or percutaneous umbilical blood sampling (PUBS), which examines blood from the umbilical cord.

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-Researches know that the extra chromosome is what causes Down Syndrome, but they are not sure why Down Syndrome occurs.
-Women who are 35 years or older when they are pregnant with a child are at a greater risk of having a child with Down Syndrome.

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Down Syndrome is the most common chromosomal condition disgosed in the United States. 6,000 babies are born with Down Syndrome each year. That is 1 in every 700 babies.

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Flattened Face

Almond Shaped Eyes

Short Neck

Small Ears

Tiny white spots on iris of the eye

Small hands and feet

Single line across palm

Poor muscle tone

Loose Joints

Shorter in height

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Down Syndrome (Trisomy 21) is a condition when a child is born with an extra copy of the 21 chromosome. This extra chromosome will change how baby's body and brain develop, which cause physical and mental challenges for the baby.