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What does creating power of attorney involve?

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What does creating power of attorney involve?

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Is there equal support available for all conditions?

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Is there equal support available for all conditions?

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British Red Cross can provide rental equipment. After assessment by community OT. If brought by the individual with the condition there may be a cost, however if order by a health care professional it will be loaned from British Red Cross.

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Examples of broad coordination approaches :
Teamwork
Care management
Médication management
Health information technology

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Do all conditions require the same input?

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Do all conditions require the same input?

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Coordination of care is define as the deliberate organization of patient care activities between two or more participants (including the patient) involved in a patient's care to facilitate the appropriate delivery of health care services.

It is very important to have greater collaboration among healthcare professionals in the hospital and in the community.

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What sort of conditions are we talking about?

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What sort of conditions are we talking about?

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Community

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Planning for end of life

Identifying decision makers (creating power of attorney)
Identifying goals of care
Consider concerns
Resuscitation plan
Choosing where to die
Legal will
Practical and emotional support
Discuss Physical and emotional changes
Treatment you want or done want

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A life limiting illness is a condition which will shorten a individuals life, which comes with complex needs, as the condition progresses, different teams and levels of support will be required.

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Support for Wife

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·       Fearnley, 2012, states that “However, the needs of children who are living amidst parental life-threatening illness are not, as yet, so clearly recognised or acknowledged”. The findings highlighted the importance of age appropriate information sharing with the children and the significant role professionals have in facilitating conversations either directly or through supporting the parents to hold these 'difficult' discussions.

·       Out of my research, I found there is a lot of support for families when the child has life-threatening illness, but the other way around, it is limited.

·       http://www.mghpact.org/assets/media/documents/MGH-Cancer-Educator-Toolkit.pdf - This is Parenting at a Challenging Time (PACT), for children, parents and educators there is a tool kit for children with a parent suffering from a life limiting condition. They have educators that support, encourage, identify what may affect the child’s development, and provide guidance for the child and parent.

·       Inheritance of Hope, they offer a resource for parents with life-threatening conditions. This includes further links for more help, support and advice but also, books, websites and workshops families can visit for further information. https://inheritanceofhope.org/images/resources_for%20parents_with_a_life-threatening_illness.pdf

·       https://inheritanceofhope.org/images/resources_for%20parents_with_a_life-threatening_illness.pdf Provided by Lowenstein, this is a document for parents to talk to children about their illness, how to tell them, what to say and what not to say. Very useful information, it includes different life stages of children.

·       Case reviews show how family therapy can help families cope in such situations, particularly when there are disagreements, divorced parents, barriers to communication, interference and feelings of powerlessness and despair. This was carried out by Family therapy and life-threatening illness in children or parents. Dora Black, David Wood. First Published April 1, 1989 https://journals.sagepub.com/doi/abs/10.1177/026921638900300205?journalCode=pmja

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- Help the Hospices
- Finance Allowances such as carers benefits, help with taxes, disability allowance

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What does this mean?
Who will be involved?

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Mum
Children
Family

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What have they got?
What do they need?
How do you get equipment?
Is there a cost?

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Community Nurses/Advanced practitioners - what role do they play?

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Community Nurses/Advanced practitioners - what role do they play?

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What support is there, what advice they have been given

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What support is there, what advice they have been given

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You can post questions on here
Add links to material you have found
Add text boxes with details of information you know about or have found
You can add link lines between posts on this page

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You are part of a team working with Brendon, a 37 year old man with an advanced life limiting condition. He is being nursed at home and needs a lot of help with his personal care. He is married to Shona and they have two children, Aiden 8 years and Enya, 3 years.

Brendon is keen to stay out of hospital but is worried about Shona taking on too much and the children being affected by the home situation.