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SO MANY! But one of my favorites: Dr. Lujan said it was his favorite conference and the BEST conference! 

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SO MANY! But one of my favorites: Dr. Lujan said it was his favorite conference and the BEST conference! 

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A lot of our community are wanting to get more involved!

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A lot of our community are wanting to get more involved!

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All of the participants I talked to at the conference are extremely vested in our Community. Lots of projects in the pipeline

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We really ARE growing our community!!!!!!!!!!

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We really ARE growing our community!!!!!!!!!!

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SOOO many with families and everyone at the conference!

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SOOO many with families and everyone at the conference!

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We exceeded our 100K SAL fundraising goal! GO TEAM!

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We exceeded our 100K SAL fundraising goal! GO TEAM!

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Accommodating last minute Conference requests

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Accommodating last minute Conference requests

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Other Rare Orgs look up to us and want to learn from us!!

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Other Rare Orgs look up to us and want to learn from us!!

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All conference vendors confirmed (AV, childcare, posters, social media, Chris Holder)

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All conference vendors confirmed (AV, childcare, posters, social media, Chris Holder)

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Encourage fundraisers to post online and email friends/family!

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Encourage fundraisers to post online and email friends/family!

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We can connect 22Q TANGO2 Patients with Donna (Thanks Deena!)

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We can connect 22Q TANGO2 Patients with Donna (Thanks Deena!)

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Poster Abstracts are Published & Online!!

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Poster Abstracts are Published & Online!!

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https://journals.sagepub.com/doi/10.1177/26330040261451039

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everyone is doing GREAT! <3 :) LET'S GO TEAM!

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everyone is doing GREAT! <3 :) LET'S GO TEAM!

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Shine a Light registration and fundraising push

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Shine a Light registration and fundraising push

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Group accomplishment: Registration numbers are up for conference! YAY!

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Group accomplishment: Registration numbers are up for conference! YAY!

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T2RF TDD Pathways Research Grant - $15k for early learners

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New family that registered for conference!

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New family that registered for conference!

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1) Virtual Reg

2) Program/Agenda

3) Poster printing

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Recently published on TDD he and his colleagues are from China.....donated $250 to shine a light

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We appreciate your financial support. Your gift is important to us and helps support critical opportunities for students and faculty alike, including lectures, travel support, and any number of educational events that augment the classroom experience. Click here to learn more about giving.

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Now you can easily track who's doing what!!

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Our email stat are excellent in all categories!

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Our email stat are excellent in all categories!

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Helping the Spanish Speakers team set up their fundraising page

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Helping the Spanish Speakers team set up their fundraising page

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A great resource is: Disability Language Guide

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A great resource is: Disability Language Guide

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Disability language style guide | Walter Cronkite School of Journalism and Mass Communication

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Access the Spanish language translation of this guide here.

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Targeted asks to register for our Shine a Light campaign!

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Targeted asks to register for our Shine a Light campaign!

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New families that are attending the conference!

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New families that are attending the conference!

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Montclair Univ - Dr. Bose & Nutrition Team

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Montclair Univ - Dr. Bose & Nutrition Team

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Zhi-Yi Shu - Master Thesis presentation (TDD, Nutrition & symptom correlation)

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Fingers crossed!!

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Andrew (Andy) Wiese (BCM psych doc) super interested in TDD

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Andrew (Andy) Wiese (BCM psych doc) super interested in TDD

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He'll be a part of the new PCORI if we get funded.

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Ron Bartak's (FARA) story similar to T2RF's

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Ron Bartak's (FARA) story similar to T2RF's

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He'll be at the TANGO2 conference...don't forget to say hello :)

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Chillin like a villain! Hero highlight/OOO next week.

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Chillin like a villain! Hero highlight/OOO next week.

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designed a postcard for past SAL fundraisers!

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designed a postcard for past SAL fundraisers!

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Helping my sister sign up to fundraise for SAL!

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Helping my sister sign up to fundraise for SAL!

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Successful Cycle 6 Submittable submissions & building out a new mechanism (T2RF Voices in Research & Clinical Care Travel Grant)!

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Successful Cycle 6 Submittable submissions & building out a new mechanism (T2RF Voices in Research & Clinical Care Travel Grant)!

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Pushing attendance, travel grant, abstract and emerging researcher submissions for the Family Conference (deadlines quickly approaching)

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Pushing attendance, travel grant, abstract and emerging researcher submissions for the Family Conference (deadlines quickly approaching)

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We can stream the Family conference!! (Excited this will be a game changer)

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We can stream the Family conference!! (Excited this will be a game changer)

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More registrants for our biggest campaign of the year! 

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More registrants for our biggest campaign of the year! 

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Did a presentation for FasterCures/Milken Institute Community of Practice - Expertise

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Did a presentation for FasterCures/Milken Institute Community of Practice - Expertise

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People are really excited about the conference!

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People are really excited about the conference!

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Agu/Georgia....super nice & appreciative of T2RF support

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Agu/Georgia....super nice & appreciative of T2RF support

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Engaging our community in Research is like pulling teeth...need ideas

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Engaging our community in Research is like pulling teeth...need ideas

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YES! Go team on launch two websites & the annual report!

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YES! Go team on launch two websites & the annual report!

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Any SAL site feedback! Also Hero Highlight ideas?

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Any SAL site feedback! Also Hero Highlight ideas?

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Nothing rn, surprisingly...this is a period of calm before the storm

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Nothing rn, surprisingly...this is a period of calm before the storm

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SAL and Conference launching and Annual report! GO TEAM!!!

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SAL and Conference launching and Annual report! GO TEAM!!!

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Grant Reviewer COIs in Submittable/JotForm Surveys

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Grant Reviewer COIs in Submittable/JotForm Surveys

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Helping Rebekah Rowe with her SAL FB cover pic :)

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Helping Rebekah Rowe with her SAL FB cover pic :)

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Let's get Rare Disease Month/Day/Shine a Light on TANGO2 energy up! (Facebook cover, registration, videos submitted)

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Let's get Rare Disease Month/Day/Shine a Light on TANGO2 energy up! (Facebook cover, registration, videos submitted)

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Let's get the conference site up & annual report done!

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Let's get the conference site up & annual report done!

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Year-end final numbers are in - LOOKING AMAZING!

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Year-end final numbers are in - LOOKING AMAZING!

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Our YouTube views this year were 249% higher than last year!

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Our YouTube views this year were 249% higher than last year!

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We nearly doubled our year-end fundraising goal!!

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We nearly doubled our year-end fundraising goal!!

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Just feeling very appreciative of our team! We are accomplishing so much!

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Just feeling very appreciative of our team! We are accomplishing so much!

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Feeling super appreciated and lucky to be a part of this team! Everyone is doing great <3

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Feeling super appreciated and lucky to be a part of this team! Everyone is doing great <3

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Forward, post, email, share, like, comment on any year-end giving/Innovation Fund Campaign posts

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Forward, post, email, share, like, comment on any year-end giving/Innovation Fund Campaign posts

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TDD acute care guideline work group leads

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TDD acute care guideline work group leads

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New Shine a Light Ambassador! Brynlee!!!

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New Shine a Light Ambassador! Brynlee!!!

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Awesome Research Symposium - Thanks Team :)

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Awesome Research Symposium - Thanks Team :)

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Year-end stuff - budget, annual report, Innovation Fund, Innovation Summit!

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Year-end stuff - budget, annual report, Innovation Fund, Innovation Summit!

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There's pharmacogenomics straight to consumer testing

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There's pharmacogenomics straight to consumer testing

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Making me a manager in the shared drives that need moved <3 

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Making me a manager in the shared drives that need moved <3 

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Banquet - a lot of things that made a difference! (room layout, cadence of "ask", etc.)

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Banquet - a lot of things that made a difference! (room layout, cadence of "ask", etc.)

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Everything went smoothly for the Banquet using Raisely!

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Everything went smoothly for the Banquet using Raisely!