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Narrative History Writing by Ravindu and Supun

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Narrative History Writing by Ravindu and Supun

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Susi was from a middle class family who went through some hardship on events of 1983, but her parents were able to support her up to AL education. She was doing AL's when she met Kamal who was at that time a computer engineer student, he was the single child in family rather than Sussi who was only girl with four brothers, They got married at the end of year 1988.
After two years their first child Ravindu was born, After a year, in 1991, Ravindu was diagnosed with hemophilia a condition which affected his joints and resulting recurrent bleeding in his joints. Three factor VII injections course per month were prescribed by doctors.
Medical expenditure for their sons treatment left them financially unstable so they decided to not to have another child for sometime, In 1995 Kamal got a job opportunity in Saudi Arabia, also he was able to visit his family frequently. Then their financial status got stabled.
Then in June of 1997 an unexcepted conception happened. It was a worry but nonetheless hopes were lit. There was a 50% chance of baby been a female, An Ultra sound scan was done and results said it is female fetes, family was billeted. April of 1998 Manju was born, a normal baby girl.
On 10th of November 2002 Manju had a fall and developed a swelling in her elbow. She was hospitalized but Susi wasn't able to visit her at hospital as there was no way to leave Ravindu along because of his still prevailing conditions. In the mean time Manju has developed severe joint swelling.
Sussi have realized that this might also can be a similar symptom to Ravindu's ,So she immediately called hospital and informed the medical personnel about Manju's brother's condition, Doctors ran quick scans to assess the condition and mother's suspicion came right because Manju was diagnosed with same disorder. She was also put under a intensive injection course for a month.
And this particular event got doctors thinking that does this disease have a genetic fingerprint in it. Researches were launched to find out the truth.

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In 1988 Kamal and Susi married each other. Kamal was a computer engineer and was 32 years old, and he was the only child in his family so he had been carrying plenty of responsibilities since he was a teen. Susi was educated up to AL and was not employed. She was 24 years when she got married. Also Susi has 4 brothers with no medical illness.

After two years, in 1990 Ravindu was born. When Ravindu was a 1 year old baby, doctors diagnosed that he has Haemophilia. Haemophilia is a mostly inherited genetic disorder that impairs the body's ability to make blood clots, a process needed to stop bleeding. This results in people bleeding for a longer time after an injury, easy bruising, and an increased risk of bleeding inside joints or the brain.

In his 2nd or 3rd year he had recurrent bleeding to his joints and started three factor V111 injections per month. 5 years after the birth of Ravindu, Kamal and Susi had to avoid pregnancy. This was made because of the financial crisis they went through at that time.

In 1995 Kamal went to Saudi and started working there. He was earning adequate money and was able to visit his family quite often.

2 years later the family was in a deep sorrow as they got to know about the unexpected conception for the second child. At that time they were hoping for the chance of 50% of getting a baby girl. They were hoping for this because, a baby girl could only be a vector of Haemophilia or a healthy child.

Their dream was fulfilled by the ultra sound scan which reported a female fetus.

Another year later they got a baby boy named Manju, and was reported as a normal child, but still 50% chance to a haemophilic child.

After 3 years, Manju had fallen and because of that he developed swelling in his elbow. Mother Susi was unable to go to the hospital as there was no way to keep Ravindu alone, because injuries to Ravindu could be fatal to him. With time Manju has developed severe joint swelling. Then only Susi realized the truth that both of their boys are heamophilic

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Narrative History Writing by Medini and Kameliya

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Narrative History Writing by Medini and Kameliya

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1988-Susi got married to Kamal at that time she was 24 and Kamal 32. She educated up to ALs but not employed has 4 brothers all normal. Kamal is a computer engineer and the only son of the family

1990-Susi gave birth to her first baby boy Ravindu

1991- Ravindu 1 year old, he was diagonised with hemophillia

1992-93- While plying Ravindu had fallen off from a chair and got injured his joints.Susi found there was a recurrent bleeding to his joints. Immediately Ravindu was taken to the hospital.After thoroughly examined by doctors they prescribed to take 3 factor 8 injections per month.

1990-1995- Kamal had to work in Saudi because he needed more money for his son's treatment. He had a habbit of visiting his family frequently.

1997 June- Unexpectedly Susi got conceived again, but the couple was not happy with the news. Because there was only a 50% chance of the baby been female.

1997 August-The couple was contempted after the ultra sound scan reported it as a female fetus.

1998 April- Suprisingly they were blessed with the baby boy Manju, with a 50% risk of having hemophillia.

2012/11/10 Yesterday-Manju is 3 years old and he had fallen from the steps and devoloped swelling in his elbow yesterday. As Kamal ia working in Saudi Susi is the incharge of the house. and Ravindu also under the treatment. so Susi was unable to take Manju to the hospital. But his pain increased gradually with time. Now Manju has also devoloped a sever joint swelling . Susi has reallised Manju has the symptoms of haemophillia . She got panicked and immediately took him to the hospital. After examining thoroughly the doctor came to a conclution thst this is not haemophillia but his major blood vesseles and nerves which are passing through the elbow got damaged badly. So he immediately need a surgery. He underwent the surgery and got fully recovered.

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Narrative History Writing by Khaizan and Kavippiriyah 

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Narrative History Writing by Khaizan and Kavippiriyah 

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In 1988, Susi, who was 24 years old at the time, married Kamal, who was 32 years old. Susi was educated up to A/L but was not employed. She has 4 brothers who are all-normal in terms of medical conditions. Kamal was a computer engineer. He was the only child in the family. Ravindu was born in 1990. In 1991, the following year, the one-year old Ravindu was diagnosed to have Haemophilia, a rare condition that occurs in about 1 of every 5000 male births. Haemophilia is a X chromosome-linked genetic disorder that is caused by mutations in the factor VIII and factor IX genes. Both factors take part in the intrinsic pathway of blood coagulation. Over the next two years, Ravindu started having recurrent bleeding into his joints and therefore had to be administered with three Factor VIII injections per month. During 1990-1995, the couple had decided to avoid further pregnancy as they started having financial problems due to this. In 1995, Kamal went to work in Saudi Arabia. He frequently visited the family upon getting enough money.

June of 1997 marked the unexpected conception of the second child and the couple was worried. However, there was still a 50% chance of the baby being a female. In August, happy news arrived when the ultrasound scan reported it as a female fetus. In April of the year 1998, Manju was born. He was a normal baby boy but surprisingly, a boy! And yet, the chance of being normal was 50%! Because Susi was a carrier for haemophilia, and it was possible for the baby to have either inherited it or not.

On November 9th,2001, yesterday, 3-year old Manju had a fall and started developing a swelling in his elbow. His mother was unable to take him to hospital as there was no way she could leave Ravindu alone, because any injury could end up being fatal to him. Today, Manju has developed severe joint swelling and Susi has come to realize that he too has haemophilia.

Kamal and Susi are worried sick because both their children are victims of Haemophilia. They have lost all hopes of having another child because of this, and their financial situation. Kamal has a job with decent wages already. Susi has decided to take up self-employment or a job she can do from home that would fit her qualifications, in order to pay the medical bills. Haemophilia is sometimes referred to as “the Royal disease” because several members of European royalty have had this disease. Even now, there are many like Kamal and Susi, who live among us with silent pain and unheard voices.

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Manju, a 3 year old child diagnosed with haemophilia - By Kirushikan & Khajenthinie

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Manju, a 3 year old child diagnosed with haemophilia - By Kirushikan & Khajenthinie

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Manju, a three year old boy diagnosed with haemophilia is presented to the hematology clinic for follow-up after a recent hospitalisation after severe knee swelling. The patient didn't report any earlier symptoms on haemophilia. The patient's family history is note worthy
Mother Susi (normal) and father  Kamal (normal) got married at the age 24 and 32 respectively. Mother Susi has four brothers who are not effected by haemophilia (normal). Father Kamal is the only child in his family . In 1990 Ravindu their first son was born. Ravidu was diagnosed having haemophilia at the age of three after having knee swelling , excessive bleeding and has to take three factor VIII injections per month. Mother was only educated upto A/l and is unemployed father is a mechanical engineer . Because of financial problems and to go further with  treatment Kamal has to work abroad in Saudi but he visited his family frequently. They had decided against having another child since there is a risk the child may also have  haemophilia . Unexpectedly Susi conceived with a child. The ultra sound reports stated the fœtus a female which ment the baby won't be having haemophilia but unfortunately the ultra sound reports deceived them. The baby was a boy(Manju). Manju was considered a normal boy since he didn't seemed to have any symptoms on haemophilia. Chances of Manju being normal was 50%. After the fall which happened on 2012/11/10 Manju is suffering from swelling knee and severe bleeding. Inital laboratory test results clarifies that Manju is suffering from haemophilia. Manju is now awaiting further treatment

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Narrative History Writing by Teshan & Kiruthika

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Narrative History Writing by Teshan & Kiruthika

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A 3 year old child named Lahiru Manjus Perera has been admitted into the Colombo Central Hospital yesterday afternoon due to swelling in his elbow and has been diagnosed of hemophilia by doing required tests and inspections after the medical details given by the child’s mother Susi Manjula Perera, are taken into consideration. Dr.A.Samaranayaka,in charge of the ward 55 has decided to dig out the medical records regarding the child’s family.

1991 – Mr.Ravindu Akalanka Perera,3 year old child has been admitted into General Hospital Kurunagala. Symptoms were blood in his urine and stool. The case was given to Dr.Ariyadasa for inspection. After preliminary caring was done the child was tested several times and was diagnosed with hemophilia, a genitical disorder. Therefore, doctor asked for the history of his parents.

Childs mother is Mrs.Susila Manjula Perera,born in kurunagala,a 28 years old women has educated upto A/Ls and currently isn’t employed. She has 4 brothers who haven't diagnosed with any medical problems.
Child’s father is Mr.Kamal Nishnatha Perera,born in kurunagala,a 36 years old man, who is employed as a computer engineer. Only child in his family.
Mr and Mrs Perera got married in 1988.
Mr.Ravindu Perera was born in 1990 in Kurunagala General Hospital as a healthy baby without and complications.
in further questioning it revealed that Father’s side has hemophilia genes in the previous generations.

In 1992, Ravindu Akalanka Perera has felt the recurrent bleeding to his joints. He takes three factor VIII injections per months. Took medications till 1993.

Kamal Nishnatha  Perera and Susila Manjula have been avoiding their further pregnancy because they were having financial problems. In 1995 Kamal has gone to work in Saudi. He has been visiting the family frequently. He is getting enough money

In 1997 june, an unexpected conception occurred, their second child was causing them a worry. The doctors predicted a 50% chance of the baby being female. If it so they won’t be hemophilia consequences.
1997 August The ultra sound scan report showed that they were having a female fetus.
However in 1998 April The second baby bornt. A normal baby boy. They named him Lahiru Manju Perera. Manju had a 50% chance of being normal. But parents were instructed to come to clinics every 3 months. There are reports of coming to the clinics in Kurunagala General Hospital till  1999.

Family moved to Colombo in 1999.

Yesterday 2002.11.10 Mr.Lahiru Manjus Perera was admitted.Today manju has developed severe joint swelling. Medications and treatments will continue till Doctor in charge says otherwise.

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Narrative History writing:- Kasthury and Rasuni

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Narrative History writing:- Kasthury and Rasuni

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1988 - Susi and Kamal got married.Then Susi was twenty four years old.She was educated up to  A/L.Therefore she couldn't find a job.She has four brothers.All of them are healthy people.Kamal is thirty two years old.He is a computer engineer.He is the only child in his family.
1990 - Their first child Ravindu is born.He is a boy.
1991 - When Ravindu is three years old, he is diagnosed with hemophilia.
1992-1993 - Ravindu has recurrent bleeding in his joints and he has pain and tiredness in his joints.It often affects the knees, elbows and ankles.So he is treated with factor 8 injections monthly.
1999-1995 - They try to avoid further pregnancy because of having financial problems.
1995 - Kamal goes to work in Saudi & earns enough money.He occasionally visits his family.
1997 August : There was an unexpected conception for the second child. Ultra sound Scan reported as Female foetus.

1998 April: Manju was born. He's a  normal Baby boy. But  there's still a chance for haemophilia.

2012/11/10 - Manju ( 3 years) had a fall and develop swelling in his elbow 2 months back. At the start they didn't pay due concern. They took it normal as there was no bleeding. For past two weeks Manju is having a back pain in the mid-thoracic region. The pain was intermittent, worse at night, and relieved by ibuprofen, which susi bought herself. Ravindu has been going to pre school for past 3 months and is a very active and competitive child.He is also feeling intermittent dull central epigastric pain. His appetite is normal, he has no nausea or vomiting and he has not lost weight. His bowel habit is normal and unchanged. There is no relevant past or family history. There was slight relief at first, but after 1 month the pain became more frequent and severe. Despite the progressive symptoms susi went on a 2-week holiday to Kandy, (along with her children) which had been booked long before. During the second week susi remarked that Manju's eyes had become slightly yellow, and a few days later she noticed that his urine had become dark and his stools pale. On return from holiday he was referred to a consultant.

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1988- Susi (24) and Kamal (32) two young individuals got married. Susi was unemployed and had education only up to ALs. She had 4 healthy brothers. But Kamal was a computer engineer in profession who was the only child in his family.

1990- Their first baby boy was born, they named him Ravindu.

1991- Ravindu was diagnosed with Hemophilia

1992 - 1993- Ravindu (the patient) shows recurrent bleeding to his joints, skin and bleeding of the mouth and gums. When he was getting his MMR vaccine bleeding occurred.
So he was subjected to have 3 Factor-VIII injections per month.

1990-1995- The couple decides to avoid another pregnancy because they were having financial problems.

1995 – Kamal goes for a new job in Saudi Arabia. But unlike most people he frequently visits his family. He got paid well there.

1997-June - Unfortunately Susi got pregnant again, this unexpected conception has a chance of 50% of being a Girl, If it is a boy he would be in risk of having hemophilia just like his elder brother.

1997 - August – Ultra sound scan shows it’s a female fetus, couple is delighted.

1998 - April – But after delivery turns out it’s a boy, they name him Manju. He has a risk chance of having hemophilia 50% and being normal 50%.

2001/11/10 - Today - Manju who is 3yrs now ,had a fall at home and after few minutes he developed a swelling in his elbow. Kamal rushed him to the hospital, and he had to care for Manju while Susi stayed at home. At night that day Manju developed severe joint swelling and pain. That laid Susi realize that Manju is suffering from Hemophilia. I gave the same medicine as his elder brother.

But this time Manju’s condition was severe so he had to admit in the hospital for 1 month.

But as Manju is still small he had to looked after by someone at the hospital, but that would lead to Kamal to leave his job so Susi decides to put Ravindu in a day care and she looked after Manju in the hospital while Kamal resigned from his job in Saudi and he found a temporary job in a press as a graphic designer. But this job was in comparison to his foreign job was less paid one, so they couldn’t afford the cost of living in their current apartment, so they decided to rent a small house in suburbs. This small house was very far from the city so they had to use public transportation every day. Kamal would put Ravindu in the school in the morning and accompany Susi to the hospital to tend to Manju. Then at evening he would get them back home. This was their everyday routine.

I can see their life was hard right now, their faces were so uncheerful and miserable in those few months even after Manju got released from hospital.

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Narrative History - by Johan and Piyumini

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Narrative History - by Johan and Piyumini

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1988- Kamal and Susi got married. Kamal is an 32 year old computer engineer. He is the only child in his family and he is healthy. Susi educated up to A/L so that she couldn't find any job for her . She has four brothers all of them including her are healthy.

1990-  Their first baby boy Ravindu is born.

1991- When Ravindu is one he is diagnosed with a disease called haemophilia.

1992 - 1993-  Ravindu has frequent bleeding in his joints so that he is medicated with three factor VIII injections .

1990-1995- The family face some financial problems. so they avoid further pregnancy.

1995 - Kamal get some promotions in his job and go to Saudi . He earns a lot their so that money is enough for them to run a family.

1997-june -  Unexpected conception for 2nd child. They wish a girl baby because it can reduce the chance for haemophilia.

1997 august - Ultra sound scan reports its a girl. so they feel very happy.

1998 april  - Manju their second child  is born , but he is a boy .  They are in shock because the chance for him to have haemophilia is 50% . So Susi frequently do check up for him .

2002 - Susi get a job invitation in a financial company but she  rejected it because of Ravindu's situation.

2010- Manju become a famous football player in his club and starts to earn through it. There are no symptoms for heamophilia .

2012/11/10 - Manju had a fall in a match and he develop a swelling in his right elbow yesterday . Susi was unable to come to hospital as there was no way to keep Ravindu along. Susi realize that the severe injury is due to Haemophilia and Manju should undergo the same medication as Ravindu. But the doctor clearly said that the swelling was caused by ligament tear and their is no need for such medications.

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Narrative History - by Randika & Bhagya 

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Narrative History - by Randika & Bhagya 

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1980 -  Adam and Lilith were married ; Adam at 26 and Lilith at 25. None of them had a past of illnesses. But Adam ’s father had diabetes. And Lilith ’s mother was a chain smoker

1983 -  Asmodeus was born

1984 -  unfortunately Lilith’s mother wasn’t aware of the connection between passive smoke exposure and asthma. So asmodeus was diagnosed with asthma , breathing secondhand smoke at home.

1985 -  Asmodeus was prescribed to have daily medications that he had to take throughout the day and when his symptoms flare up, an inhaler had to be used repeatedly throughout the next 48 hours.

1986 - Adam was diagnosed with diabetes type 2

Because of the serious family trauma Lilith was frustrated and over stressed and couldn’t attend the needs of Adam or Asmodeus .

1988 -  after a series of fights and miscommunications Adam and Lilith were divorced

And the ownership of the young boy was taken by Lilith

1990 -  Adam married Eve , a 30 year old autistic woman who owned an apple farm.

1992 -  they gave birth to twins ; Kane and Abel

1993 - Lilth was unable to get over her marraige & was diagnosed with severe depression. She was given adequate medication & was recommended to weekly counselling. Because of Lilth's condition Asmodeus was given to his grandmother to raise.

1994 - Asmodeus's asthema symptoms decreased considerably since Lilth' s mother has stopped smoking.

1995 - At the age of 3 Adam's son Kane was diagnosed with autism & was recommended to adequate therapy.

1996 - Influenced by both mother & brother, Abel also developed mild introvert habits. He was recommended to have more social interactivity.

1997 - There was no improvement on Adam's diabetes symptoms. He was prescribed to have insulin injection.

1999 - Kane's autism symptoms decreased with continuous therapy, but Eve's condition worsened. Because of constant pressure from her children's stituation she developed severe communication problems. Her medication dosage was increased and was advised against having anymore children.

2000 - Lilth's mother developed a severe cough. After series of tests she was diagnosed with late stage lung cancer & was recommended to do radiotherapy.

2001 - Lilth's mother was unable to continue the treatment due to financial difficulties. She died on 17 April 2001.

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Narrative History - by Harindu & Sachini

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Narrative History - by Harindu & Sachini

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1988 - Susi (24) and Kamal (32) got married. Susi was educated up to GCE A/Levels. She's unemployed and has 4 brothers - all with normal health. Kamal is a computer engineer and an only child in his family.

1990 - Ravindu is born.

1991 -Ravindu (1 yr) is diagnosed with haemophilia.

1992-1993 - Ravindu has recurrent bleeding in his joints. He is treated with 3 Factor VIII injections per month.

1990-1995 - Further pregnancies are avoided by the couple due to financial problems.

1995 - Kamal goes to work in Saudi Arabia. He frequently visits his family and earns enough money from his new job.

1997 (June) - Unexpected conception occurs. There's a 50% chance of conceiving a female baby.

1997 (August) - The ultrasound scan reports a female fetus. The parents consider this as happy news.

1998 (April) -  A normal male baby-Manju-is born. The sex of the baby was either misreported or changed during the pregnancy period. While the birth of a male baby was unexpected, the parents are still enthusiastic about their child. The probability of him not developing any hemophilic complications in the future is 50%.

1999 - Manju was diagnosed with 'hemophilia A', which is the same condition as Ravindu.

2000 - Ravindu (9 yr) develops swelling in his knees due to a fall he received while playing sports. He received an immediate treatment of Factor VIII  injections until his condition was stabilized.

2000 (August) - Third conception occurs.

2000 (October) - An ultrasound scan reports a female fetus. The parents are not happy about this news as they are struggling financially.

2001/11/10 (Today) - Manju (3 yr) had a fall and developed swelling in his elbow yesterday. His mother was unable to come to the hospital as there was no way to bring Raving along with her. Now Manju has developed severe joint swelling. Susi has realized that Manju's condition is precarious and that he requires more intensive treatment. She has inquired about all possible treatment options that can be pursued in order to improve Manju's condition.