# data[].attributes.headline
SUPPORT GROUPS FOR FAMILIES WITH CD CHILDREN

# data[].attributes.subject
SUPPORT GROUPS FOR FAMILIES WITH CD CHILDREN

# data[].attributes.body
https://rarediseases.org/rare-diseases/canavan-disease/
http://www.canavanfoundation.org/home
http://ulf.org/canavan-disease/

# data[].attributes.attachment_link.title
Orren and Seth:  Parents of a child with Canavan Disease

# data[].attributes.attachment_link.description
Orren and Seth found out they were carriers of Canavan disease when their second child, Morgan, was diagnosed at the age of 15 months. Orren and Seth talk about the impact of losing their daughter to Canavan Disease at the age of 7-1/2 and how it led them to be proponents of early and complete carrier screening for prospective parents.

# data[].attributes.body
Two carriers who have a child together have a one-in-four chance with each child in which both genes carry the mutation and the enzyme is not produced, leading to the disease. There is a two-in-four chance of passing one mutated gene and a one-in-four chance that the child will have two fully functioning genes and be neither a carrier or be affected by the disease.

# data[].attributes.body
https://www.ncbi.nlm.nih.gov/pubmed/12108830

# data[].attributes.body
The disease is named for Myrtelle May Canavan who first discovered the disorder in 1931. She was one of the first female pathologists and is best known for her description of Canavan disease
In 1993 Dr. Rueben Matalon discovered the gene that causes Canavan from tissues provided by several other Canavan families. This discovery led to carrier screening and prenatal testing for the disease

# data[].attributes.body
A small slideshow to help give you more info on canavan disease

# data[].attributes.body
ACY2 deficiency aminoacylase 2 deficiency Aspa deficiency aspartoacylase deficiency

# data[].attributes.body
Sadly there is no cure or treatment as of yet. But doctor are still trying to find one through gene therapy.

# data[].attributes.attachment_link.title
What is CANAVAN DISEASE? What does CANAVAN DISEASE mean? CANAVAN DISEASE meaning & explanation

# data[].attributes.attachment_link.description
What is CANAVAN DISEASE? What does CANAVAN DISEASE mean? CANAVAN DISEASE meaning - CANAVAN DISEASE definition - CANAVAN DISEASE explanation. Source: Wikipedia.org article, adapted under https://creativecommons.org/licenses/by-sa/3.0/ license. Canavan disease, also called Canavan-van Bogaert-Bertrand disease, is an autosomal recessive degenerative disorder that causes progressive damage to nerve cells in the brain, and is one of the most common degenerative cerebral diseases of infancy.

# data[].attributes.body
Lost of motor skills, turning over, sitting upwards without support, bigger head.

# data[].attributes.body
https://ghr.nlm.nih.gov/condition/canavan-disease
https://www.ntsad.org/index.php/canavan/history
https://cfmedicine.nlm.nih.gov/physicians/biography_54.html
http://www.canavanfoundation.org/home

# data[].attributes.body
Feeding and swallowing difficulties, seizures, and sleep disturbances

# data[].attributes.body
3 to 5 months till noticeable, but live as long as we do

# data[].attributes.body
CANAVAN disease is an autosomial ressesive degenerative disorder that damages nerve cells in the brain. Most commonly seen during infancy. Canavan causes brain antrophy.