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Does anyone have any experience getting PT in school for toe walking?

We cant get the school to address my 9 year olds toe walking to the extent that he is now knock kneed, has ankle and knee issues...he walks more on his toes than his heels. He is in OP therapy but only for 1 hour a week. He's entering into some serious long term complications from toe walking--I have been asking about the toe walking since he was 2 years old! No one will take ownership and help treat him. PT is inconsistent they havent had one available since August except 3 sessions (over 4 months).

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Ex of Vision Board I used for my kids -Alyssa :)

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Do we just call the CAO and ask for supports coordination? BC we had a case manager and they suck. Essentially they did nothing. Then everything shut down. I haent heard from her in months since the pandemic, but i dont know whats available--thats why i asked for her but she offered nothing.

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Good morning. I just wanted to share an amazing place called Leg Up Farms. It was started because a parent just like us could not find the services he needed for his daughter. They are currently open in  Manchester, PA in York County, but they are in the planning stages and raising funds to open a location in Franklin County. The thing that is so great about Leg Up Farms is that they have everything under one roof! Some of the services they have are Speech, Feeding Therapy, Social Groups, OT, Behavior Health, Horse Therapy and Aquatic Therapy. It has been a blessing to my son to have his therapists working together to not only support him, but to support us a family unit….it’s been a complete game changer! They go beyond the the educational side of things and approach the whole life of the child and family supporting them. I cannot say enough about what they do! They also have a local farm store called Leg Up Farm Market that uses the funds to have job training called Able Life.

Tara Poe

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I'm hearing from advocates and inclusion experts (and it's certainly my own experience) that hearing officers and courts are generally reluctant to weigh in on issues of LRE and "appropriateness" of program or placement. Instead, due process and federal cases are most often won on procedural grounds. So it is crucial to know the safeguards and take good notes throughout each step of the process. - Betsy

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https://coggle.it/

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Coggle is online software for creating and sharing mindmaps and flowcharts. It works online in your browser: there's nothing to download or install. Log in to start diagramming!

Whether you're taking notes, brainstorming, planning, or doing something awesomely creative, it is super simple to visualise your ideas with Coggle. Share with as many friends or colleagues as you like. Changes you make will show up instantly in their browser, wherever they are in the world

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The clear way to share complex information. Coggle is a collaborative mind-mapping tool that helps you make sense of complex things. Create unlimited mind maps and easily share them with friends and colleagues.

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Autism Rec is a great organzation and they have a social group for all ages that meets on Sat. They also have events thru out the year to support families challenged by Autism.

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Does anyone have any input or advice as it relates to Extended School Year and having those conversations with the IEP team? As the deadline is coming up, I want to see if there is anything specific that we should be thinking about, etc. Thanks so much!

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Just wanted to share that Autism Rec is a wonderful organization that provides a variety of services. That have a social support group that meets on Saturdays. It is run by a speech therapist.

The University of Penn has offers dance, swimming and tennis lessons, free of charge to youth diagnosed with ASD.

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Hi Peal Cohort,
I was just wondering does anybody have a few different diagnoses for their child. Which one do you prioritize?

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Hi Folks!
just wanted to alert folks on the family committee under the philadelphia system of care @ the department of behavioral health. it is a great place to get help and support yourself and family. Melodie Jackson is the family specialist and she can be reached at 267-602-2294.