# data[].attributes.headline
Some parents need the label to begin the process of understanding and managing the child differently (AED)

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Some parents need the label to begin the process of understanding and managing the child differently (AED)

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Parents are searching for clear and concise information- an absence of which leads to delayed help seeking and diagnosis. Often ADHD is only diagnosed when seeking help for other issues such as Dyslexia

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Parents are searching for clear and concise information- an absence of which leads to delayed help seeking and diagnosis. Often ADHD is only diagnosed when seeking help for other issues such as Dyslexia

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Diagnosis for ADHD is often not a primary diagnosis- children are flagged for reading issues- the ADHD diagnosis is made along another co-morbidity, or instead of the presenting issues.

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Diagnosis for ADHD is often not a primary diagnosis- children are flagged for reading issues- the ADHD diagnosis is made along another co-morbidity, or instead of the presenting issues.

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Parents need assistance in managing child’s behaviour, but there is also a need to build the family’s understanding of ADHD, beyond behavioural issues and prepare for the next stage of child management

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Parents need assistance in managing child’s behaviour, but there is also a need to build the family’s understanding of ADHD, beyond behavioural issues and prepare for the next stage of child management

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Parents need understanding and support from the community, a lack of which contributes to parental stress, and compromises the emotional and physical safety of the child.

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Parents need understanding and support from the community, a lack of which contributes to parental stress, and compromises the emotional and physical safety of the child.

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Parents sought diagnosis only after seeing the similarities in behaviour between themselves and their children.

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Parents sought diagnosis only after seeing the similarities in behaviour between themselves and their children.

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Parents expressed frustration with the wastage of time – time taken to get an appointment, then the time taken to get a diagnosis, wait for results after seeing the doctor and doing tests, and then the trial and error method of finding a therapy that actually works.

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Parents expressed frustration with the wastage of time – time taken to get an appointment, then the time taken to get a diagnosis, wait for results after seeing the doctor and doing tests, and then the trial and error method of finding a therapy that actually works.

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Parents need help coming to terms with the diagnosis and recalibrating their expectations so as to limit negative impact on the child.

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Parents need help coming to terms with the diagnosis and recalibrating their expectations so as to limit negative impact on the child.

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Fear of going to public health due to records being accessible

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Fear of going to public health due to records being accessible

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How do you get medical services in an efficient way- waiting times, referral times, test result timings

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How do you get medical services in an efficient way- waiting times, referral times, test result timings

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Recognition and identification of ADHD is inconsistent across service sectors (health, social services, education)- with obvious disruptive behaviour in boys getting attention, whereas girls lack of focus and distractedness not being identified till much later, or mostly by higher income/ higher families

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Recognition and identification of ADHD is inconsistent across service sectors (health, social services, education)- with obvious disruptive behaviour in boys getting attention, whereas girls lack of focus and distractedness not being identified till much later, or mostly by higher income/ higher families

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Lack of support and guidance for parents- not enough information is being given at the time of diagnosis, especially about long-term management and prognosis

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Lack of support and guidance for parents- not enough information is being given at the time of diagnosis, especially about long-term management and prognosis

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 Most of the diagnosis happens in primary school- with more people involved in primary school. (However executive dysfunction only kicks in later as work increases)

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 Most of the diagnosis happens in primary school- with more people involved in primary school. (However executive dysfunction only kicks in later as work increases)

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Not going to diagnose, and preferring to self-diagnose because of the expenses involved

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Not going to diagnose, and preferring to self-diagnose because of the expenses involved

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Sense of loss of time as lack of a clear diagnosis at younger age means time lost when more targeted therapy could have been provided

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Sense of loss of time as lack of a clear diagnosis at younger age means time lost when more targeted therapy could have been provided

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The information/remarks that a parent receives at the time of diagnosis or early years influences how the parent perceives the condition and the management of the child

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The information/remarks that a parent receives at the time of diagnosis or early years influences how the parent perceives the condition and the management of the child

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Improvement in parents marital relationship once a diagnosis was made and understood

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Improvement in parents marital relationship once a diagnosis was made and understood

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 In families with intergenerational ADHD, the behaviour is normalised, and seeking treatment is questioned and considered unnecessary.

# data[].attributes.subject
 In families with intergenerational ADHD, the behaviour is normalised, and seeking treatment is questioned and considered unnecessary.

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How do you get medical services in an efficient way- waiting times, referral times, test result timings

# data[].attributes.subject
How do you get medical services in an efficient way- waiting times, referral times, test result timings

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 members of the group who were diagnosed as children had a lot of unresolved issues regarding their experience as a child/young adult with ADHD (both inside and outside of the home) and this has led to some strong negative feelings which then can be further exacerbated by the influence of the parents in their lives into adulthood.

# data[].attributes.subject
 members of the group who were diagnosed as children had a lot of unresolved issues regarding their experience as a child/young adult with ADHD (both inside and outside of the home) and this has led to some strong negative feelings which then can be further exacerbated by the influence of the parents in their lives into adulthood.

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For Dyslexia and ADHD, there are large subsidies once the diagnosis is confirmed. However, there is nothing similar for ADHD

# data[].attributes.subject
For Dyslexia and ADHD, there are large subsidies once the diagnosis is confirmed. However, there is nothing similar for ADHD

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Polyclinic- one participant reported recently going through the polyclinic system where the doctor refused to give a referral for ADHD but was willing to give one for anxiety. The appointment made through the polyclinic took too long and the participant chose to go the private route instead

# data[].attributes.subject
Polyclinic- one participant reported recently going through the polyclinic system where the doctor refused to give a referral for ADHD but was willing to give one for anxiety. The appointment made through the polyclinic took too long and the participant chose to go the private route instead