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Providing Grief and Bereavement Support in Aged Care ELDAC Webinar

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Providing Grief and Bereavement Support in Aged Care ELDAC Webinar

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This expert-led webinar will provide individuals working in aged care with an overview of how to support people experiencing grief and bereavement.

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ELDAC Webinar - Providing Grief and Bereavement Support in Aged Care

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Providing grief and bereavement support that aligns with the spiritual, cultural, and psychosocial needs of older people, as outlined in the Strengthened Aged Care Quality Standards, is essential. 

This expert-led webinar will provide individuals working in aged care with an overview of how to support people experiencing grief and bereavement.

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This is Grief is a gentle guide for individuals and families navigating loss.

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Introducing our latest resource “This is Grief”

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We are very excited to share with you our new grief resource for adults and families. Ever since the release of our children’s book, What is Grief?, we have been asked if we would make a book for adults. This is Grief is a gentle guide for individuals and families navigating loss. It is informed

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LGBTI and Dementia - Understanding Changes in Behaviour

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Introducing our latest resource “This is Grief”

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We are very excited to share with you our new grief resource for adults and families. Ever since the release of our children’s book, What is Grief?, we have been asked if we would make a book for adults. This is Grief is a gentle guide for individuals and families navigating loss. It is informed

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Dementia Respite Education and Mentoring link.

Supporting you to support people living with dementia

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Last updated: Mon, 29 Jan 2024 15:00:00 +1100

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Dementia Respite Education and Mentoring (DREAM) | The Wicking Dementia Centre | UTAS

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Phrasing suggestions and considerations from renowned palliative care Physician, Dr Kathryn Mannix.

This PDF is a direct extract from her book: "Listen. How to find the words for tender conversations.". Harper Collins, 2021 . https://www.kathrynmannix.com/books/listen/#

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A succinct factsheet covering 10 critical laws that govern clinical practice and decision making in Aged Care.

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ELLC-Top 10 End of Life Laws in Aged Care_final

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This factsheet explains the law on substitute decision-making.

This is a crucial concept to grasp for those working in Aged Care. As a person ages, they may lose their ability to make decisions about health care or medical treatment. When this happens, these decisions will need to be made by someone else. That person is commonly referred to as a substitute decision-maker.

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Who can complete an Advance Care Directive?

What should I do if a family tries to override an Advance Care Directive?

Want to know the answer to these questions and more? Watch this short video by ELLC on 7 common questions about Advance Care Directives in Aged Care.

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End of Life Law - Advance Care Directives

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An Advance Care Directive can be a useful tool for people to communicate instructions about future health care decisions. The factsheet in this section explains the law on Advance Care Directives.

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If you have any suggestions to help us improve it, please contact us at pepa@qut.edu.au

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We'd love some feedback about this Padlet! Choose the option that best describes your experience...

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It's great - I use it often to find resources.

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I've had a quick look - not sure if it's helpful for me.

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It's confusing / there are too many resources

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Propmts for End of Life Planning (PELP) Framework

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The Prompts for End-of-Life Planning (PELP) Framework guides proactive, quality end-of-life care across all care settings.

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Showing up for grief program — Death Literacy Institute

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‘Showing up for Grief’ is a 3-hour education and learning workshop for community members, and it encourages and promotes a compassionate response to loss based on the best evidence.

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A wonderful animation that describes empathy beautifully

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Discussing Choices - Indigenous Advance Care Plans - A Learning Resource

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The Dying Process - Palliative Care Australia

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Promoting quality palliative care since 1991

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Stop & watch (Learning Disability Matters)

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Stop & watch (Learning Disability Matters)

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Assessment tools and forms - University of Wollongong – UOW

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PCOC’s model relies on the use of five tools. These five tools help assess the characteristics and needs of patients. All of the tools are validated. They perform well in terms of their measurement properties. They perform well within the clinical settings. They are easy to use as part of routine care. Each tool has been used with hundreds of thousands of patients over the last decade.

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A way to summarise the overall level of fitness or frailty of an older adult.

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The Clinical Frailty Scale (CFS) was introduced in the second clinical examination of the Canadian Study of Health and Aging (CSHA) as a way to summarize the overall level of fitness or frailty of an older adult after they had been evaluated by an experienced clinician (Rockwood et al., 2005).

Although introduced as a means of summarizing a multidimensional assessment in an epidemiological setting, the CFS quickly evolved for clinical use, and has been widely taken up as a judgement-based tool to screen for frailty and to broadly stratify degrees of fitness and frailty. It is not a questionnaire, but a way to summarize information from a clinical encounter with an older person, in a context in which it is useful to screen for and roughly quantify an individual's overall health status.

The highest grade of the CFS (level 7) as published in 2005, incorporated both severe frailty and terminal illness. Later, it became evident that we needed to distinguish between identifiable groups who were otherwise lumped together in the original scale - severely frail, very severely frail and terminally ill - as clinically distinct groups who required distinctive care plans. Therefore, in 2007 the CFS was expanded from a 7-point scale to the present 9-point scale, and it has been used extensively in that format. We published on the predictive validity of the 9-point CFS in 2020 (Pulok et al., 2020).

In 2020 the CFS was further revised (version 2.0) with minor clarifying edits to the level descriptions and their corresponding labels. Most notably, CFS level 2 changed from "Well" to "Fit", level 4 from "Vulnerable" to "Living with Very Mild Frailty", and levels 5-8 were restated as "Living with..." mild, moderate, severe, and very severe frailty, respectively (Rockwood & Theou, 2020).

Please refer to the CFS Guidance and Training section of this website for more information and resources about using the Clinical Frailty Scale. For novice CFS raters, we developed a classification tree to assist with CFS scoring.

References

Rockwood K, Song X, MacKnight C, Bergman H, Hogan DB, McDowell I, Mitnitski A. A global clinical measure of fitness and frailty in elderly people. CMAJ. 2005;173(5):489-495.

Pulok MH, Theou O, van der Valk AM, Rockwood K. The role of illness acuity on the association between frailty and mortality in emergency department patients referred to internal medicine. Age Ageing. 2020;49(6):1071-1079.

Rockwood K, Theou O. Using the Clinical Frailty Scale in Allocating Scarce Health Care Resources. Can Geriatr J. 2020:23(3):210-215.

Permission for Use

To guard against copyright infringement or unlicensed commercial use, we ask all potential users to complete a Permission for Use Agreement. Agreements are reviewed by the Industry Liaison Office at Dalhousie University to determine whether a license agreement is required. Requests for non-commercial educational, clinical and research use, as well as for reprint usually do not require a license agreement.

As a result of its worldwide uptake, the Clinical Frailty Scale is now available in a number of languages (see CFS Translations).

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The Clinical Frailty Scale (CFS) was introduced in the second clinical examination of the Canadian Study of Health and Aging (CSHA) as a way to summarize the overall level of fitness or frailty of an older adult after they had been evaluated by an experienced clinician (Rockwood et al., 2005).

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Spotting signs of deterioration and taking action early.

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Click on this link to request to join the PEPA/IPEPA Community of Practice group on LinkedIn.

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Login to LinkedIn to keep in touch with people you know, share ideas, and build your career.

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Education on implementing the PA-COP tools for nurses and clinical managers

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PACOP Fundamentals | University of Wollongong - Australia

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Are you passionate about improving palliative and end of life care for residents and their families/carers - than this course is for you!

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Body. Mind. Spirit. People. Place. Planet. Research is showing us how our health and happiness can be boosted by doing certain things on a day-to-day basis. The Wheel of Well-being is your guide to some of them. Start WoWing yourself now.

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palliative care aged care; australia; advance care planning; assessment tools

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palliaged is your source of evidence-based palliative care practice information, tools, & resources for aged care in Australia.

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Topic

Introduction to palliative care for aged care

Content

The palliAGED Introduction Modules for Aged Care provide a gateway to training and understanding in palliative care including symptoms and care issues.

The collection of 10 modules includes:

Introduction to palliative care

Self-care

Person-centred care

Talking about dying

Recognising deterioration

Palliative care case conferences

End-of-Life care pathways

Pain management

Symptom management

Care Issues.

Target audience

Nurses new to palliative care and/or aged care. Careworkers in aged care may also find some of these modules useful.

Depth

Beginner

Time to complete

Allow approximately 30 minutes for Module 1. Allow approximately 15 minutes per module for all the other modules.

Authors

CareSearch/palliAGED team, Flinders University

Comments

The modules do not have to be completed in a certain order.

These modules are based on the palliAGED Practice Tip Sheets for Nurses. A companion manual for these modules is also available. This provides communication tips and more detailed information about selected tools and processes referred to in the modules.

You can also download interactive versions of SPICT and SPICT-4ALL. These can be completed online or printed to complete by hand. There are also reflection questions within the modules.

Each module includes a voluntary survey to monitor the quality of this resource and to assist with further development of content to meet identified needs. This data may be used for research purposes.

Registration required

No

Payment required

No

Student support

No

Certificate

Yes a participation certificate is available for printing on completion

Country of origin

Australia

Web Address
https://www.palliaged.com.au/Practice-Centre/For-Nurses/palliAGED-Introduction-Modules
For further information

Dr Raechel Damarell
Senior Research Fellow
palliAGED, Flinders University
t: 08 7221 8887
e: raechel.damarell@flinders.edu.au

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palliaged introduction modules for aged care

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palliAGED Introduction Modules for Aged Care

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palliAGED Introduction Modules for Aged Care

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Watch the video below independently and then answer the questions in your breakout group.

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Introduction to Spiritual Care in Aged Care & the National Guidelines

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Strengthened Quality Standards | Aged Care Quality and Safety Commission

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The Stronger Standards, Better Aged Care Program looks ahead to the forthcoming strengthened Aged Care Quality Standards.

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IPEPA has a range of learning resources to support the development of palliative care capabilities for the Aboriginal and Torres Strait Islander health workforce, and to enhance the capacity of the non-Indigenous workforce to provide culturally-responsive palliative care for Aboriginal and Torres Strait Islander peoples.

IPEPA learning resources have been developed through co-design and community engagement to provide education that meets the specific learning needs of Aboriginal and Torres Strait Islander Health Professionals in the context of palliative care.

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IPEPA has a range of learning resources to support the development of palliative care capabilities for the Aboriginal and Torres Strait Islander health workforce, and to enhance the capacity of the non-Indigenous workforce to provide culturally-responsive palliative care for Aboriginal and Torres Strait Islander peoples.

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An older person may grieve due to a decline in physical, mental or cognitive health. It is also important to acknowledge that a resident's family members might start to grieve before their death. Healthdirect has a webpage on understanding anticipatory grief. CareSearch provides an overview about abnormal grief. The Agency for Clinical Innovation has an educational video on bereavement. PalliAGED offers a variety of resources to learn more about grief, loss and bereavement. There are links to a guide for assessing bereavement and support, and a tool to distinguish between depression and grief.

What is Prolonged Grief Disorder?

"Intense and persistent symptoms of distress following the death of a family member or friend. Significant mental and physical health problems may be present, for example, insomnia, depression, cardiac problems, substance misuse, cancer, suicide, depressed immune function and work and social impairment. Also known as complicated grief."
Palliative Care Australia
Palliative Care Australia has an Understanding Grief Brochure (pdf 1004kb) which explains grief and the grieving process and gives suggestions for managing grief and helping others through their grief

Grief Australia offers education for the wider community to improve grief and bereavement knowledge. Education and training programs are offered as seminars, workshops, courses, conferences, webinars and customised training that meet the specific needs of organisations and agencies. You can find more information on bereavement support.

Also the Grief Australia website has available the Bereavement Support Standards for Specialist Palliative Care Services that was designed for use by professionals to support all carers and people going through bereavement who have an increased risk of developing prolonged or complicated grief or have current psychosocial and/or spiritual distress. This set of set of bereavement support standards was developed in collaboration with the Victorian Government Department of Health and the Centre for Palliative Care.

palliAGED has downloadable Practice Tips on grief and loss among older people, families and residents for Nurses (pdf 245kb) and Careworkers. (pdf 440kb)

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An older person may grieve due to a decline in physical, mental or cognitive health. It is also important to acknowledge that a resident's family members might start to grieve before their death.

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ELDAC Toolkits are a collection of information, resources and tools around a particular topic or practice area. They can help users to develop a plan and organise their efforts to follow evidence-based recommendations or practices.

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This training program for medical practitioners and students, nurses and allied and other health professionals focuses on the law relating to end of life decision-making. There are 13 modules:

The role of law in end of life care

Capacity and consent to medical treatment

Withholding and withdrawing life-sustaining treatment

Advance Care Planning and Advance Care Directives

Substitute decision-making for medical treatment

Legal protection for administering pain and symptom relief

Children and end of life decision-making

Futile or non-beneficial treatment

Emergency treatment for adults

Managing conflict

Voluntary assisted dying

Aboriginal and/or Torres Strait Islander peoples and end of life law

Inclusive end of life decision-making for diverse populations

To begin, please select your discipline from the courses below, and enrol in that course. If you are not a medical practitioner, medical student, nurse or allied health professional we recommend you select the Medical practitioners and students course. Please note you only need to complete one of these courses to complete the End of Life Law for Clinicians training.

To access modules relevant to your discipline, select from the options below.

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This training program for medical practitioners and students, nurses and allied and other health professionals focuses on the law relating to end of life decision-making.

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After the death of someone with dementia

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After the death of someone with dementia

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ELDAC video

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Aged Care | Self Care | Phoenix Australia

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Introducing the PEPA Aged Care program - providing individualised, palliative care education across a range of aged care settings. Contact us at www.pepaeducation.com to find out more.

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PEPA Aged Care Placement Course (LMS shortcut)

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PEPA Aged Care Placement Course (LMS shortcut)

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Click here to return to your LMS course at any time to review your learning and complete activites.

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Promoting a safe work place - encouraging self care at work

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Promoting a safe work place - encouraging self care at work

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During your work day implement 60 second stress busters - poster for display

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De-scalation in emergency behavioral responses

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De-scalation in emergency behavioral responses

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Dementia Practice Webinar Series - De-escalation of severe responsive behaviours

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Communication strategies when caring for someone living with dementia

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Communication strategies when caring for someone living with dementia

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It's a basic human need to be able to express yourself and be understood by other people.

But for people with dementia, communication can become harder. They might:

have trouble finding words, or say a related one instead of the one they mean

speak fluently but not make sense

have difficulty expressing their emotions

find reading and writing harder

ignore conversations or respond inappropriately

get frustrated with themselves and the people around them.

If someone you care about who lives with dementia is struggling with their communication, encourage them to seek professional support early. This includes having their hearing and sight checked, and possibly getting support from a speech therapist.

These are some tips and strategies to help you talk and connect with someone with dementia.

Tips for talking

A caring and positive attitude when speaking to a person with dementia can make a big difference. They may not always understand what is being said, but we still show our feelings through our body language, tone and actions.

Here are some ways you can help support your friend or family member when you're talking with them.

Showing respect and understanding

Include the person in conversations. Speak directly to them, not just to the people around them.

Don't assume what they can or can't understand.

Use their name when you're talking to them.

Be interested and ask questions.

Actively listen to what they're saying. Put down your phone and try to ignore your mental to-do list.

Provide validation by accepting what they say. For example, if they think their kids are coming home from school, respond to their statement without contradicting them.

Speaking

Speak calmly and clearly.

Use short sentences and share one idea at a time.

Allow time for the person to understand and respond.

Use names and relationships.

Draw simple pictures if you're explaining something.

Ask simple, direct questions. Try yes/no questions, or offer just a few choices.

Using body language

Creating the right environment

Things to avoid

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Tips and strategies to help you communicate with someone with dementia.

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A great mnemonic to remember for compassionate communication

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Providing Care in Aged Care

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The Education on the Run training videos were made possible through funding from the South Australian and Commonwealth Governments under the Comprehensive Palliative Care in Aged Care Project.

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The Education on the Run training videos were made possible through funding from the South Australian and Commonwealth Governments under the Comprehensive Palliative Care in Aged Care Project.

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These communication cards support the wellbeing of Aboriginal and Torres Strait Islander people living with dementia.

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Topic

Using the NIKI T34™ syringe pump

Content

Online learning module to promote skills, knowledge, and competency in safely setting up, commencing, and providing necessary documentation for NIKI T34™ syringe pump (2nd and 3rd edition) infusions.

Depth

Intermediate to advanced

Target Audience

Health professionals

Time to Complete

30 minutes

Authors

PallConsult a Qld government funded program, www.pallconsult.com.au

Comments

Package includes: Online learning module, a handbook and illustrated guide, plus three videos on essential elements and a competency checklist

Registration Required

No

Payment Required

No

Student support

No

Certificate

Yes

Country of Origin

Australia

Web Address

https://www.caresearch.com.au/​eolcareracf/tabid/4596/Default.aspx

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PallConsult Queensland - NIKI T34™ syringe pump

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Online learning module to promote skills, knowledge, and competency in safely setting up, commencing, and providing necessary documentation for NIKI T34™ syringe pump (2nd and 3rd edition) infusions.

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Link to Online Training

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Welcome to LGBTIQ+ Health Australia's e-learning site.

We currently have four categories of courses available.

Silver Rainbow - For ageing and aged care worker.

MindOut - For mental health and suicide prevention workers.

Qlife - Training for Qlife peers and partners only.
LGBTIQ+ Inclusive Palliative Care
You can explore the introductory information about each course. You can currently self-enrol in Champions: Introduction to LGBTIQ+ Mental Health and Suicide Prevention by selecting the course and following the steps.

If you would like to access another one of these courses for yourself and/or a group of staff, please email education@lgbtiqhealth.org.au

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Welcome to LGBTIQ+ Health Australia's e-learning site. We currently have four categories of courses available. Silver Rainbow - For ageing and aged care worker. MindOut - For mental health and suicide prevention workers. Qlife - Training for Qlife peers and partners only. LGBTIQ+ Inclusive Palliative Care You can explore the introductory information about each course.

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Dr Kathryn Mannix - the process of dying

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This webpage discusses the laws on VAD both in Australia and internationally, and their intersection with palliative care and medical treatment decision-making.

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Publications

Katrine Del Villar, Ben White, Eliana Close et al, 'Voluntary Assisted Dying by Practitioner Administration Is Not Suicide: A Way Past the Commonwealth Criminal Code?' (2022) 29(1) Journal of Law and Medicine 29-141.

Ben White, Lindy Willmott, Katrine Del Villar et al, 'Who is eligible for voluntary assisted dying? Nine medical conditions assessed against five legal frameworks' (2022) 45(1) University of New South Wales Law Journal 401-444.

Marcus Sellars, Ben White, Patsy Yates et al, ' Medical practitioners' views and experiences of being involved in assisted dying in Victoria, Australia A qualitative interview study among participating doctors' (2022) Social Science & Medicine 292.

Ben White, Eliana Close, Lindy Willmott et al, 'Comparative and critical analysis of key eligibility criteria for voluntary assisted dying under five legal frameworks' (2021) 44(4) University of New South Wales Law Journal 1663-1700.

Lindy Willmott and Ben White, ' The Challenging Path to Voluntary Assisted Dying Law Reform in Australia: Victoria as a Successful Case Study' in White, Ben White & Lindy Willmott (eds), International Perspectives on End-of-Life Law Reform: Politics, Persuasion and Persistence (Cambridge, United Kingdom, 2021) 84-112.

Moira O'Connor, Charlene Martin, Lindy Willmott, et al, 'Australian Health Professionals' Attitudes toward Voluntary Assisted Dying: A Cross-Sectional Survey' (2021) 10(11) Social Sciences.

Eliana Close, Katrine Del Villar, Lindy Willmott et al, 'Voluntary assisted dying and telehealth: Commonwealth carriage service laws are putting clinicians at risk' (2021) 215(9) Medical Journal of Australia 406-409.

Eliana Close, Lindy Willmott and Ben White, 'Regulating voluntary assisted dying practice: A policy analysis from Victoria, Australia' (2021) 125(11) Health Policy 1455-1474.

Sarah Philippkowski, Moira O'Connor, Maarten C Eisma et al, ' Does Voluntary Assisted Dying Cause Public Stigma for the Bereaved? A Vignette-Based Experiment' (2021) 19(5) Palliative and Supportive Care 558-562.

Jessica Young, Janine Winters, Jeanne Snelling et al, 'The End of Life Choice Act: a proposed implementation and research agenda' (2021) 134(1544) New Zealand Medical Journal 145-158.

Ben White and Lindy Willmott, Voluntary assisted dying research: a policy briefing. Australian Centre for Health Law Research, Queensland University of Technology, 2021.

Lindy Willmott, Katrine Del Villar, and Ben White, 'Voluntary assisted dying in Victoria, Australia: A values-based critique' in Sue Westwood (ed), Regulating the End of Life: Death Rights (Routledge, 2021) 55-73.

Lindy Willmott, Ben White, Marcus Sellars and Patsy Yates, 'Participating doctors' perspectives on the regulation of voluntary assisted dying in Victoria: a qualitative study' (2021) Medical Journal of Australia.

Rosalind McDougall, Ben White, Danielle Ko et al, ' Junior doctors and conscientious objection to voluntary assisted dying: ethical complexity in practice' (2021) Journal of Medical Ethics.

Jodhi Rutherford, Lindy Willmott and Ben White, 'What the Doctor Would Prescribe: Physician Experiences of Providing Voluntary Assisted Dying in Australia' (2021) Omega: Journal of Death and Dying.

Lindy Willmott, Ben White, Rachel Feeney et al, 'I ntentional hastening of death through medication: A case series analysis of Victorian deaths prior to the Voluntary Assisted Dying Act 2017' (2021) 51(10) Internal Medicine Journal 1650-1656.

Ben White, Lindy Willmott, Eliana Close et al, 'Legislative Options to Address Institutional Objections to Voluntary Assisted Dying in Australia' (2021) 3 University of New South Wales Law Journal Forum 1-19.

Jayne Hewitt, Ben White, Ben, Katrine Del Villar et al, ' Voluntary assisted dying in Victoria: Why knowing the law matters to nurses' (2021) 28(2) Nursing Ethics 221-229.

Ben White, Lindy Willmott, Marcus Sellars, Patsy Yates. ' Prospective oversight and approval of assisted dying cases in Victoria, Australia: a qualitative study of doctors' perspectives' (2021) BMJ Supportive and Palliative Care.

Ben White, Lindy Willmott, Eliana Close et al. ' Development of voluntary assisted dying training in Victoria, Australia: A model for consideration'. (2021) 36(3) Journal of Palliative Care 162-167.

Jodhi Rutherford, Lindy Willmott and Ben White. ' Physician attitudes to voluntary assisted dying: a scoping review'. (2021) 11(2) BMJ Supportive and Palliative Care 200-208.

Alex Holmes, Peter Lange, Cameron Stewart et al, 'Can depressed patients make a decision to request voluntary assisted dying?' (2021) 51(10) Internal Medicine Journal 1713-1716.

Katrine Del Villar, Eliana Close, Rachel Hews, et al. ' Voluntary assisted dying and the legality of using a telephone or internet service: The impact of Commonwealth 'Carriage Service' offences'. (2020) Monash University Law Review. (In Press)

Jodhi Rutherford, 'Conscientious participants and the ethical dimensions of physician support for legalised voluntary assisted dying' (2020) Journal of Medical Ethics.

Jodhi Rutherford, 'Doctors and the Voluntary Assisted Dying Act 2017 (Vic): Knowledge and General Perspectives' (2020) 27(4) Journal of Law and Medicine 952-966.

Ben White et al, 'Assisted dying and evidence-based law-making: A critical analysis of an article's role in New Zealand's referendum' (2020) 133(1520) New Zealand Medical Journal 83-90.

Ben White, Katrine Del Villar, Eliana Close and Lindy Willmott, 'Does the Voluntary Assisted Dying Act 2017 (Vic) Reflect Its Stated Policy Goals?' (2020) 43(2) University of New South Wales Law Journal.

Andrew McGee, 'Voluntary assisted dying: should conscientious objection be unconditional?' (2020) 50 Journal of Pharmacy Research and Practice 117-121.

Katrine Del Villar, Lindy Willmott and Ben White, 'Suicides, Assisted Suicides and 'Mercy Killings': Would Voluntary Assisted Dying Prevent these 'Bad Deaths'?' (2020) 46(2) Monash University Law Review.

Lindy Willmott et al, 'Restricting conversations about voluntary assisted dying: Implications for clinical practice' (2020) 10(1) BMJ Supportive and Palliative Care 105.

Ben White and Lindy Willmott, 'A Model Voluntary Assisted Dying Bill' (2019) 7(2) Griffith Journal of Law and Human Dignity 1.

Ben White and Lindy Willmott, 'Evidence-based law-making on voluntary assisted dying' (2019) Australian Health Review 1.

Bregie Onwuteaka-Philipsen, Lindy Willmott and Ben White, 'Regulating voluntary assisted dying in Australia: Some insights from the Netherlands' (2019) 211(10) Medical Journal of Australia 438.

Ben White, Lindy Willmott and Eliana Close, ' Victoria's voluntary assisted dying law: Clinical implementation as the next challenge' (2019) 210(5) Medical Journal of Australia 207.

Ben White and Lindy Willmott, Voluntary Assisted Dying Bill 2019 (Unpublished, 2019).

Carmelle Peisah, Linda Sheahan and Ben White, ' The biggest decision of them all - death and assisted dying: capacity assessments and undue influence screening' (2019) 49(6) Internal Medicine Journal 792.

Andrew McGee et al, ' Informing the euthanasia debate: Perceptions of Australian politicians' (2018) 41(4) University of New South Wales Law Journal 1368.

Ben White and Lindy Willmott, ' Future of assisted dying reform in Australia' (2018) Australian Health Review 616.

Cameron Stewart, 'Euthanasia, Suicide and Assisted Dying' in Ben White, Fiona McDonald and Lindy Willmott (eds), Health Law in Australia (Law Book Co, 3rd ed, 2018) 526.

Lindy Willmott and Ben White, ' Assisted dying in Australia: A values-based model for reform' in Ian Freckleton and Kerry Petersen (eds), Tensions and Traumas in Health Law (Federation Press, 2017) 479.

Andrew McGee and Franklin Miller, ' Advice and care for patients who die by voluntarily stopping eating and drinking is not assisted suicide' (2017) 15(222) BMC Medicine 1.

Lindy Willmott et al, '(Failed) Voluntary Euthanasia Law Reform in Australia: Two Decades of Trends, Models and Politics' (2016) 39(1) University of New South Wales Law Journal 1.

Neera Bhatia, Ben White and Luc Daliens, 'How should Australia respond to media-publicised developments on euthanasia in Belgium?' (2016) 23(4) Journal of Law and Medicine 835.

Ben White, Lindy Willmott and Julian Savulescu, 'Voluntary palliated starvation: A lawful and ethical way to die?' (2014) 22(2) Journal of Law and Medicine 376.

Bob Douglas, Lindy Willmott and Ben White, T he right to choose an assisted death: Time for legislation? (Report, January 2013).

Ben White and Lindy Willmott, 'How should Australia regulate voluntary euthanasia and assisted suicide?' (2012) 20(2) Journal of Law and Medicine 410.

Jocelyn Downie and Ben White, ' Prosecutorial discretion in assisted dying in Canada: A proposal for charging guidelines' (2012) 6(2) McGill Journal of Law and Health 113.

Ben White and Jocelyn Downie, 'Prosecutorial guidelines for voluntary euthanasia and assisted suicide: Autonomy, public confidence and high quality decision-making' (2012) 36(2) Melbourne University Law Review 656.

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Publications Katrine Del Villar, Ben White, Eliana Close et al, 'Voluntary Assisted Dying by Practitioner Administration Is Not Suicide: A Way Past the Commonwealth Criminal Code?' (2022) 29(1) Journal of Law and Medicine 29-141. Ben White, Lindy Willmott, Katrine Del Villar et al, 'Who is eligible for voluntary assisted dying?

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Principles

Subcutaneous administration of medicines is a safe and practical way of administering medicines to people in the terminal phase. Continuous subcutaneous infusions often contain a mixture of medicines, e.g. opioid plus antiemetic.

A syringe driver is a battery driven device that delivers medicines continuously.

The dose of each medicine should be individualised, and separate PRN doses prescribed for breakthrough symptoms.

Incompatibilities (e.g. precipitation, particle formulation, chemical inactivation) can occur between medicines and also with diluents used to make up the infusion. The incompatibility may be undetectable by visual inspection. In most cases sterile water as the diluent for subcutaneous infusions is preferred over sodium chloride 0.9%.

For advice on diluents, administration and the compatibility of combinations of medicines within a syringe, contact your local hospice or hospital medicines information centre.

For some carers it is possible, with training, to administer intermittent subcutaneous bolus doses of medicines to the dying, in the absence of a nurse. The nurse inserts a line attached to a bung subcutaneously and the carer uses this line to deliver the medicine, when symptoms are exacerbated.

The caring@home Project has been funded to develop and roll out a standardised resource kit to support nurses in the carer training role. It provides resources applicable Australia-wide for community service providers, health care professionals and carers to support carers to help manage breakthrough symptoms safely using subcutaneous medicines.

Prescribing guidance

palliAGEDgp smartphone application (available as an app or as online content)

Useful information

Brisbane South Palliative Care Collaborative

Safer Care Victoria

Therapeutic Guidelines: Palliative Care (subscription required)

Remember

Use more than one syringe driver if there are compatibility problems and alternative routes are unsuitable.

Medicines with long half-lives (e.g. dexamethasone or clonazepam) may be administered separately as a subcutaneous bolus, reducing the likelihood of compatibility problems.

Be practical - confirm the maximum volume that the syringe driver can handle.

Training the carer to administer bolus subcutaneous doses of medicines results in improved symptom management as well as being perceived as a privileged role by many carers.

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Subcutaneous administration of medicines is a safe and practical way of administering medicines to people with palliative needs. Continuous subcutaneous infusions often contain a mixture of medicines, e.g. opioid plus antiemetic(s).

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The SPICT helps us to look for people who are less well with one or more health problems.

These people need more help and care now, and a plan for care in the future

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Face to Face Counselling or TELEHEALTH Australia Wide

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The Wellbeing Clinic for Older Adults provides face-to-face counselling to older adults living in residential aged care settings in Melbourne, Victoria and when possible, in other parts of Australia.

A major focus of counselling involves finding creative ways to engage with older adults, their families and aged care staff to help them cope with life transitions, loss, grief, physical health problems and mental health difficulties.

About our face-to-face counselling service

Counselling sessions are held face-to-face with the client on site at residential aged care facilities. Our counsellors are provisionally registered psychologists, social work interns and postgraduate counselling students, who are supervised by experienced practitioners.

They are available to provide you emotional support, listen attentively to the issues you are facing and assist you to address problems, worries or stress. Our counsellors can meet with you regularly to support you over the next few months.

Our counselling approach

Normative

We assume that many of the issues and problems faced by residential aged care clients arise due to changes in life circumstances, family relationships and living arrangement. Such issues do not necessarily indicate mental illnesses or cognitive deterioration.

Systemic

We assume that counselling is effective when it involves the client's system; we try to involve family and staff in supporting interventions for aged care residents. This approach emphasises the importance of a strong therapeutic relationship between the counsellor and client, with the involvement of family members, carers and facility staff.

Our range of interventions

Cognitive-behavioural therapy

This therapy is an exploration of clients' beliefs, behaviours and situations. It encourages clients to consider different ways of thinking and behaving in order to improve outcomes.

It also helps clients actively seek solutions to current problems and explores activities that are enjoyable and meaningful for the person as a way to address isolation, lethargy, loneliness and depressive symptoms.

Reminiscence and narrative therapies

These therapies involve discussions about the past in order to help clients remember important memories, reach an understanding about past events and clarify values. These therapies can culminate in a digital story or life book to highlight key autobiographical aspects of the client's life.

Supportive therapy

This therapy involves validation and rich listening techniques to help clients feel understood and appreciated. It appreciates the uniqueness of client's identity and life and can empower clients to reflect more deeply about their life, to claim more agency and control in their lives, and to arrive and unique insights about ways to address current problems.

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The Wellbeing Clinic for Older Adults provides face-to-face counselling to older adults living in residential aged care settings in Melbourne, Victoria and when possible, in other parts of Australia. A major focus of counselling involves finding creative ways to engage with older adults, their families and aged care staff to help them cope with life transitions, loss, grief, physical health problems and mental health difficulties.

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Caring at home project

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Order your palliative care clinic box from caring@home project via this order form.

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The Patient Dignity Inventory (PDI) is designed to measure various sources of dignity-related distress among patients nearing the end of life. The 25-items of the PDI derive from a model of dignity in the terminally ill. See below to view the PDI.

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Palliative Care 11 Tips: LGBTIQ+ Health Australia

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Palliative Care 11 Tips: LGBTIQ+ Health Australia

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Palliative Care 11 tips Poster

Tips for health professionals that lead to more inclusive palliative care for LGBTIQ+ people.

Palliative Care week 2021 was a time to reflect and learn more about what palliative care is and why it is important.

LGBTIQ+ Health Australia will be shared tips for health professionals that lead to more inclusive palliative care for LGBTIQ+ people.
Access poster

ABOUT LGBTIQ+ Health Australia LGBTIQ+ Health Australia, (formerly the National LGBTI Health Alliance), is the national peak health organisation in Australia for organisations and individuals that provide health-related programs, services and research focused on lesbian, gay, bisexual, transgender, intersex and queer people and other sexuality, gender and bodily diverse (LGBTIQ+) people and communities. Dropping the "+" from our name only occurs within digital formats that do not allow mathematical symbols, such as within our domain name, handles and hashtags.

ACKNOWLEDGEMENT OF COUNTRY LGBTIQ+ Health Australia acknowledges the Traditional Owners of country throughout Australia, their diversity, histories and knowledge and their continuing connections to land and community. We pay our respects to all Australian Indigenous Peoples and their cultures, and to Elders of past, present and future generations.

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Tips for health professionals that lead to more inclusive palliative care for LGBTIQ+ people. Palliative Care week 2021 was a time to reflect and learn more about what palliative care is and why it is important. LGBTIQ+ Health Australia will be shared tips for health professionals that lead to more inclusive palliative care for LGBTIQ+ people.

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Culturally-Inclusive Aged Care Practice Guides

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Culturally-Inclusive Aged Care Practice Guides

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Practice Guides set out key considerations, actions and resources that can support aged care providers to deliver inclusive services to people from culturally and linguistically diverse backgrounds. While the Inclusive Service Standards provide a framework for aged care providers to embed a systemic and holistic approach so that their services are welcoming, safe and accessible for everyone, the Practice Guides are intended to be used by managers and staff and inform direct service provision. It is vital that aged care services take into account and address cultural and linguistic need of individual consumers.

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Practice Guides set out key considerations, actions and resources that can support aged care providers to deliver inclusive services to people from culturally and linguistically diverse backgrounds.

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You can ask for what you need from aged care services

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You can ask for what you need from aged care services

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You can ask for what you need from Aged Care Services | English

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Palliative Care for CALD communities

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You can use 'end of life and palliative care' services to help you and your family as you approach the end of your life. You can receive care in hospital or in your home. There are palliative care services that can help you and your family according to your cultural or religious beliefs.

The 2011 Australian Census of Population and Housing shows that Victorians come from more than 200 countries, speak 260 languages other than English at home, and follow some 130 religious faiths. Over a quarter of Victorians were born overseas and nearly half were either born overseas or have a parent born overseas.

You may be from a culturally and linguistically diverse background, or be a refugee or asylum seeker, but you contribute enormously to Victoria's economic strength and social resilience.

Your community may have unique views, understandings and traditions about the end of life and loss, grief and bereavement. Healthcare workers come from a variety of different cultures and can provide care that is culturally appropriate for you.

Information in languages other than English

End of life and palliative care information in numerous languages is available on the . Languages include , , , , , , , , , , and and many more.

Topics include family and carer information, the last days of life, advance care planning and helping people with a life-limiting illness to live well.

Audio podcasts that you can listen to are available in numerous languages from the podcast library at .

Further information is also available from the .

Victoria's end of life and palliative care framework

A summary of Victoria's end of life and palliative care framework is available in , , , , , , , , and .

Further information is also available from the .

More Information

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Palliative care for culturally and linguistically diverse communities

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You can use 'end of life and palliative care' services to help you and your family as you approach the end of your life. You can receive care in hospital or in your home. There are palliative care services that can help you and your family according to your cultural or religious beliefs.

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CALD Assist™ offers a simple and dynamic way for health care workers to communicate with patients from Culturally and Linguistically Diverse (CALD) backgrounds when an interpreter is not available.

Featuring phrases commonly used during basic care interactions translated and recorded in 10 common languages (plus English), CALD Assist™ facilitates basic care interactions to support patient care.

CALD Assist™ was developed by Western Health in partnership with the Commonwealth Scientific and Industrial Research Organisation (CSIRO) with support from Better Care Victoria, and with previous support from the Victorian Government Technology Innovation Fund.

The award winning CALD Assist™ app now includes COVID-19 screening questions to facilitate communication in COVID-19 Testing Clinics and screening of health service visitors and outpatients.

10 common languages: Arabic, Cantonese, Croatian, Greek, Italian, Macedonian, Mandarin, Serbian, Spanish and Vietnamese plus English

Over 200 phrases commonly used during basic care interactions translated and audio recorded

Phrases grouped into seven clinical specialties including Dietetics, Occupational Therapy, Physiotherapy, Podiatry, Speech Pathology, Nursing and COVID-19

Images and video to enhance communication between health care workers and their patients

Answer options to enable patients to respond to simple questions

Developed in collaboration with nursing staff, allied health clinicians, infectious diseases specialists, interpreters and patients

Now available for use on Apple and Android devices, including smartphones

To access CALD Assist, simply download for from the Apple App Store or Google Play.

For further information please contact [email protected]

EVALUATION TRIAL RESULTS

A 3 ½ month evaluation trial was conducted across 4 inpatient wards at Sunshine, Footscray and Williamstown Hospitals during 2017. Results from this trial include:

Interactions with patients from non-English speaking backgrounds were rated as more successful when the CALD Assist app was used by staff.

With use of the CALD Assist app, staff report of 'confidence' in patient's understanding increased.

The level of staff frustration was rated lower when the CALD Assist app was used to communicate with patients from non-English speaking backgrounds.

The majority of staff and patient participants believe the CALD Assist app is useful to communicate with patients from non-English speaking background.

Staff and patients were positive about using the CALD Assist app, and its functionality.

FREQUENTLY ASKED QUESTIONS

Does CALD Assist replace interpreter use?
No. CALD Assist is designed to assist communication during basic care interactions only, when it is not possible or practical to have an interpreter present.

How do I know that the phrases in CALD Assist are accurate?
All phrases in CALD Assist have been translated and independently checked by professional translators. Interpreters at Western Health have then also checked all phrases to ensure that they are accurate.

How do I download CALD Assist to my tablet or smartphone?
CALD Assist can be downloaded via the Apple App Store or Google Play for free.

Can CALD Assist be used on my smartphone?
Yes. CALD Assist may be used on either a smartphone or tablet device. A tablet device may be more appropriate to use with patients who are visually impaired

2018 iAwards Victoria Merit Certificate (Public Sector and Government)

2018 iAwards Pitchfest winner

2017 The Health Roundtable Innovations Award 'Improving the Continuum of Care'

2015 Health Informatics Society Australia, Branko Cesnik Award for Best Academic/Scientific paper

2015 Gold 'Improving health equality and closing the gap', Victorian Public Healthcare Awards

REFERENCES
Freyne, Jill; Bradford, Dana; Pocock, Courtney; Silvera, David; Harrap, Karen; Brinkmann, Sally. Developing digital facilitation of assessments in the absence of an interpreter: participatory design and feasibility evaluation with allied health groups. JMIR formative research. 2018; 2(1):e1.

Silvera, David; Pocock, Courtney; Bradford, Dana; Donnell, Andrea; Harrap, Karen; Freyne, Jill; et al. CALD Assist - Nursing: Improving Communication in the Absence of Interpreters. Journal of Clinical Nursing. 2018; 27(21-22):4168-4178.

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CALD Assist™ offers a simple and dynamic way for health care workers to communicate with patients from Culturally and Linguistically Diverse (CALD) backgrounds when an interpreter is not available. Featuring phrases commonly used during basic care interactions translated and recorded in 10 common languages (plus English), CALD Assist™ facilitates basic care interactions to support patient care.

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Healing Foundation: Working with Stolen Generations

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Healing Foundation: Working with Stolen Generations

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New resources for GP, dental and aged care services

GPs, dentists and aged care staff will be better placed to support Stolen Generations survivors following the launch of new resources by The Healing Foundation. The resources were launched recently by the Minister for Indigenous Australians, The Hon Ken Wyatt AM MP at Parliament House in Canberra.

The Stolen Generations Factsheets were developed in collaboration with Stolen Generations survivors and peak bodies including the Royal Australian College of General Practitioners, the Australian Dental Association, Aged & Community Services Australia and the Aged Care Industry Association.

Interacting with aged care staff, GPs, dentists and other services is often difficult for Stolen Generations survivors, as everyday events can trigger the original trauma of forced removal, particularly if a situation brings back the lack of control Stolen Generations survivors experienced when they were taken from their families.

These Factsheets provide practical tips, tailored for GPs, dentists and aged care workers in providing support to Stolen Generations survivors.

Fact sheets for hospitals, allied health professionals and disability services are in development.

Read the media release here

"The fact sheets mean that we do not have to repeatedly tell our stories, or have to explain ourselves or be questioned why to be able to get the care we need."

- Ian Hamm, Stolen Generations Reference Group member

Download the fact sheets here

Trauma-aware, healing-informed practice

Trauma-aware, healing-informed practice is a strength-based approach to healing that is guided by a shared understanding of, and responsiveness to, the impacts of trauma. It prioritises cultural, spiritual, physical, psychological, and emotional safety but does not avoid addressing issues of high importance that are likely to be sensitive and triggering of trauma responses. Service providers need to be highly skilled in managing the likely effects of potentially triggering conversations and in working towards empowering people who access their services through upskilling and increasing understanding. Working in ways that there is no risk for 'no further harm'.

Download the snapshots here

"This new resource provides essential context and useful tools to assist GPs to identify and understand the impacts of trauma for their patients. These are principles of good clinical practice, which is beneficial for all patients."

- Associate Professor Peter O'Mara, The Royal Australian College of General Practitioners

READ: This new report outlines key findings from the Kerriri Healing Forum. We acknowledge the representatives from... https://t.co/jLbVz0u6no

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Message: Aboriginal and Torres Strait Islander people should be aware that this website may contain images, voices and names of people who have passed away.

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The Healing Foundation is currently updating this website with new data from the Make Healing Happen report. Please see the
full report for the most up-to-date data.

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Working with Stolen Generations | Healing Foundation

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GPs, dentists and aged care staff will be better placed to support Stolen Generations survivors following the launch of new resources by The Healing Foundation. The resources were launched recently by the Minister for Indigenous Australians, The Hon Ken Wyatt AM MP at Parliament House in Canberra.

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Artist: Wanda Flanagan (Clinical Yarning Project)

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The Western Australian Centre for Rural Health would like to acknowledge the Traditional Owners of the land where we work. We pay our respects to Elders past, present and emerging and we celebrate their stories and culture.

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Australian Centre for Grief and Bereavement

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Australian Centre for Grief and Bereavement

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Grief Australia: Australian Centre for Grief and Bereavement

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We are a leading voice on grief in Australia, providing evidence-informed counselling, training, and research to collectively strengthen the nation's response to grief.

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Improved UI and app content for about us and calculator screen.

PalliMEDS is a free app to support the clinical knowledge of health professionals who prescribe palliative care medicines or care for people at their end of life.

This easy-to-search mobile reference tool pulls together prescribing information for medicines endorsed by the Australian & New Zealand Society of Palliative Medicine and associated recommendations from Australian Therapeutic Guidelines on palliative care.

Search by symptom or medicine, view dosing considerations, access useful resources, and quickly see which medicines are TGA-approved and PBS listed.

Separate sections on medicine management at the end of life, use of off-label medicines, medico- legal issues, and carer support are also included.

The palliMEDS app is a collaboration between NPS MedicineWise and the caring@home team. It is part of an Australian Government funded project called caring@home.

1. Opioid Calculator includes a wider range of opioid medicines and administration routes
2. Colour-coding of administration routes throughout the Opioid Calculator
3. Minor updates to clinical information and State/Territory contacts
4. Colour changes to meet accessibility guidelines

Clear and concise

Very helpful app and easy to use. Palliative care is a challenging area of medicine and this information is clear and concise. Well done.

Opioid calculator

Hi there, I really like the new opioid calculator and conversion to other opioids. It's easier to use than the EviQ opioid conversion calculator (online).
The only recommendation I would make would be to allow the addition of a dose reduction (25% or 50%) when changing to a different opioid.

Thanks

The developer, C9 Pty. Ltd., indicated that the app's privacy practices may include handling of data as described below. For more information, see the developer's privacy policy.

Data Not Collected

The developer does not collect any data from this app.

Privacy practices may vary, for example, based on the features you use or your age. Learn More

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‎PalliMEDS is a free app to support the clinical knowledge of health professionals who prescribe palliative care medicines or care for people at their end of life. This easy-to-search mobile reference tool pulls together prescribing information for medicines endorsed by the Australian & New Zealand...

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Meaningful Ageing Australia is pleased to announce the release of the National Guidelines for Spiritual Care in Aged Care. The Guidelines are based on the principles of a whole-of-organisation approach, valuing relational care, affirming that spiritual care is everyone's business, and that spiritual care is about growth and flourishing. The Guidelines put forward five domains of spiritual care, with ten outcomes under each domain:
1. Organisational leadership and alignment
2. Relationships and connectedness
3. Identifying and meeting spiritual needs
4. Ethical context of spiritual care
5. Enabling spiritual expression

Below are the documents that were created as part of the National Guidelines for Spiritual Care in Aged Care project. You are free to download, use and share these documents as needed. Meaningful Ageing Australia offers a support and education service to members who would like assistance with implementation. Contact our office for more information: admin@meaningfulage.org.au or (03) 8387 2274. Our membership application form is here.

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National Guidelines for Spiritual Care in Aged Care documents - Meaningful Ageing Australia

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Meaningful Ageing Australia is pleased to announce the release of the National Guidelines for Spiritual Care in Aged Care. The Guidelines are based on the principles of a whole-of-organisation approach, valuing relational care, affirming that spiritual care is everyone's business, and that spiritual care is about growth and flourishing.

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Power of music - creating meaning and connectedness - Spiritual Care

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Bailarina con Alzheimer baila El Lago de los Cisnes - Música para Despertar

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Kind ways to improve personal care- especially at the end of life

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Dermalux Soft Towel Lotion - Bed Bath System

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The End-of-Life Directions for Aged Care (ELDAC) project aims to improve the care of older Australians. Health professionals and aged care workers can access information, guidance, and resources to support palliative care and advance care planning for older people and their families.

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A project available in South Australia to support people living with dementia offering palliative approach to care

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The Nightingale Program is a palliative model of care, provided by specialist nurses and an Occupational Therapist throughout South Australia for advanced dementia care.

It's available free of charge and provides strategies and advice to support people living with advanced dementia, their families and care providers, with a focus on promoting choice, well-being and forward planning.

The program supports people living at home, in residential aged care and community settings.

How we help
Offering a specialist nurse as the single point of contact, we can develop care strategies to enable people living with dementia to:

Stay at home longer and maximise their independence.

Promote quality of life and positive relationships.

Have a voice in their future care options and decision making.

Avoid unnecessary presentations to acute hospital settings.

Have clinical advice including co-morbidity management, pain management, delirium and palliation.

This service is funded by  The Rosemary Foundation for Memory Support  and  Country SA PHN.
Download the Nightingale Program brochure
How to access the Nightingale Program

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Dementia-specific palliative care support The Nightingale Program is a palliative model of care, provided by specialist nurses and an Occupational Therapist throughout South Australia for advanced dementia care. It's available free of charge and provides strategies and advice to support people living with advanced dementia, their families and care providers, with a focus on promoting choice, well-being and forward planning.

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Dementia Hot Line - 24 hours 7 days a week

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The National Dementia Helpline is a free telephone service that provides information and advice to:

people living with dementia

people concerned about changes to memory and thinking

people living with Mild Cognitive Impairment (MCI)

family, friends and carers of people living with dementia

people who work in health and aged care

In addition to sharing information and advice, the team can also:

provide emotional support and guidance

connect you to Dementia Australia and community support services and programs

discuss government support, including My Aged Care, National Disability Insurance Scheme (NDIS), Carer Gateway and Dementia Behaviour Management Advisory Service (DBMAS)

How to access the National Dementia Helpline

Free call: 1800 100 500
Webchat: dementia.org.au/helpline/webchat
Email: helpline@dementia.org.au

The National Dementia Helpline operates 24 hours a day, seven days a week, 365 days a year.

If you require the assistance of an interpreter, please call the Translating and Interpreting Service on 131 450.

If you are deaf or have a hearing or speech impairment, please call the National Relay Service on 133 677.

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The National Dementia Helpline is a free telephone service that provides information and advice to: people living with dementia people concerned about changes to memory and thinking people living with Mild Cognitive Impairment (MCI) family, friends and carers of people living with dementia people who work in health and aged

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Self-care Room for tips to improve your self care in the palliative care environment

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The End-of-Life Directions for Aged Care (ELDAC) project aims to improve the care of older Australians. Health professionals and aged care workers can access information, guidance, and resources to support palliative care and advance care planning for older people and their families.

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Palliative Care Australia's (PCA) Discussion Starter series and Card packs have been developed to reach into communities to normalise early conversations about the end-of-life, rather than waiting until more time-critical or medical-focused discussions need to occur. The resources have been developed to help Australians work out what's right for them if they were to become very sick or at the end of their lives.

While the design, order of sections and some of the information may have been adapted or updated across resources, they all can be used to get you started in this important discussion.

PCA thanks The Conversation Project and the Institute for Healthcare Improvement in Boston, MA, USA. Their Conversation Starter Kit is in many ways the inspiration for the original 2015 Discussion Starter. PCA also respectfully acknowledges that the Dying to Talk Discussion Cards was guided by Coda Alliance's Go Wish card game developed with the Archstone Foundation.

This Discussion Starter and card pack has been developed for Aboriginal and/or Torres Strait Islander peoples and their community, and...

The What Matters Most for Older Australians Discussion Starter and card pack has been developed for older people using aged...

This Discussion Starter and card pack has been developed by Palliative Care Australia (PCA), and trialled in collaboration with the...

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Palliative Care Australia's (PCA) Discussion Starter series and Card packs have been developed to reach into communities to normalise early conversations about the end-of-life, rather than waiting until more time-critical or medical-focused discussions need to occur. The resources have been developed to help Australians work out what's right for them if they were to become very sick or at the end of their lives.

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CareSearch palliative care knowledge network

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CareSearch palliative care knowledge network provides access to evidence and tools for health professionals and information about death and dying for the whole community.

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The palliAGED apps provide nurses and GPs with easy and convenient access to information to help them care for people approaching the end of their life.

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The palliAGED apps provide nurses and GPs with easy and convenient access to information to help them care for people approaching the end of their life. Timely access to palliative care information can support the clinical care being provided. An online-offline capacity means they can use the apps anywhere in Australia. As the app is web-based, it can be updated as new evidence and resources are released.

palliAGEDgp

This smartphone app supports GPs who are caring for older palliative patients living at home or in residential care. As most deaths are expected, death can be planned for and the required care delivered in a pre-emptive fashion. General practitioners (GPs) have a central role in planning and providing for that care.

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Advance care planning involves planning for your future health care. It enables you to make some decisions now about the health care you would or would not like to receive if you were to become seriously ill and unable to communicate your preferences or make treatment decisions.

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ELDAC End of Life Law Toolkit

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The Legal Toolkit provides practical information about the law at end of life for the aged care sector. It contains useful resources on end of life legal issues commonly encountered in aged care to help you to know the law and to support your practice.

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PalliAGED provide self-care tools for care workers, nurses nurses and medical staff.

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What we know

Caring for people who are dying can cause stress and lead to burnout. Recognising that caring for older people generally includes caring for people who may die is an important first step in managing this stress. Developing self-awareness and setting up self-care strategies can protect against burnout. It can be helpful to debrief with work colleagues.

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self-care strategies for aged care workers.

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Caring for people who are dying can cause stress and lead to burnout. Recognising that caring for older people generally includes caring for people who may die is an important first step in managing this stress. Developing self-awareness and setting up self-care strategies can protect against burnout.

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Welcome to Self-Care Matters (Aged Care), a Palliative Care Australia (PCA) resource, which aims to support all aged care workers in residential facilities or community settings.

Aged care workers play an essential role in our society, which is to care for the loved ones of thousands of Australians. The nature of aged care work can generate a substantial amount of stress, which can affect mental health and lead to fatigue or depression.

As an aged care worker, you may already be experiencing this reality. You may even have realised by now that to take the best care possible of others you also need to take care of yourself.

Background

The Self-Care Matters (Aged Care) resource was developed to assist all aged care workers in residential facilities or community settings with practising self-care to support the quality and sustainability of the care they provide to older Australians.

While it builds from the general Self-Care Matters resource developed by PCA, this version explores self-care within the important context of aged care, where palliative and end-of-life care are increasingly vital, and gives voice to the unique perspectives of experienced aged care providers.

PCA has created the Self-Care Matters resource in collaboration with self-care expert Dr Jason Mills, a nurse academic with a clinical background in palliative care and mental health. This resource aims to support you - whatever your role in aged care - to prevent burnout and build resilience.

Content

The resource includes five informational videos, as well as a self-care planning tool (PDF) that can be completed electronically (and printed), or printed and completed in hardcopy. A sixth video is also provided, exploring in detail, the process and experience of developing a self-care plan.

Watch these videos to learn more about why self-care matters within the important context of aged care. Following the videos, you will find more information regarding the Self-Care Planning Tool: Self-Care Matters (PDF file).

A Guide to using the Self-Care Matters (Aged Care) Resource can be downloaded here (PDF file).
Video 1: Self-Care Advice for Aged Care Workers
This video provides self-care advice from aged care workers-to aged care workers
Video 2: The challenges of working in aged care
This video explores some of the common challenges faced by aged care workers.
Video 3: Navigating difficult conversations
This video describes aged care workers' experience and strategies for navigating difficult conversations.
Video 4: Using a self-care plan
This video shares aged care workers' perspectives on the benefits of using a self-care plan.
Video 5: Putting self-care into practice
This video explores aged care workers' examples of and perspectives on putting self-care into practice
Video 6: Developing a self-care plan
This video features an interview-style discussion between two people experienced in aged care-Jason, a Registered Nurse and Marg, a Nurse Practitioner-which took place shortly after Marg developed her own personalised self-care plan, using the Self-Care Matters Planning tool (shown below).
Would you like to create your own personalised self-care plan, or reflect on the self-care planning process?
You might wish to download and use the Self-Care Matters planning tool, which is designed to assist you in reflecting on, and planning for, your self-care. The Self-Care Matters planning tool provides a template for the systematic planning of self-care that is both comprehensive and tailored to changing personal circumstances/professional settings. It can be completed either electronically or in hardcopy.

If you need some guidance, you can also watch Dr Mills and palliative care nurse practitioner and PCA clinical advisor Kate Reed demonstrate here how to create an effective self-care plan, and answer some frequently asked questions about the planning tool.

Would you like to try a mindful breathing exercise, body scan, or self-compassion meditation?

The audio clips below were developed to guide the practice of mindfulness, relaxation, and self-compassion to support the use of physical and inner self-care strategies.

Tip: While the first exercise (Mindful Breathing) is short and flexible for personal use in public settings, it is recommended that the Body Scan and Self-compassion guided meditations are best undertaken in a private place as they are intended for private use at home.
Mindful Breathing (Guided Exercise) - approximately 7 minutes
A brief mindful breathing exercise you can learn and use anywhere to help ground yourself in the present moment. Includes 'box breathing'.
Mindful Body Scan (Guided Relaxation) - approximately 15 minutes
A guided mediation (visualisation) to assist with physical and mental relaxation.
Mindful Self-compassion for self-care (Guided Meditation) - approx. 24mins
A guided meditation to support self-care, self-compassion, and more broadly, compassion for others.

Acknowledgements

The Palliative Care Australia Self-Care Matters resource was developed for Palliative Care Australia by Incite Positive Education and Research Consulting. Palliative Care Australia is funded by the Australian Government.

Requests for permission to reproduce any part of this resource should be sought in writing from Palliative Care Australia at pca@palliativecare.org.au.

About Dr Jason Mills, Managing Director, Incite Positive Education and Research Consulting

Dr Mills has developed Self-Care Matters for PCA reflecting his passion and commitment to promoting self-care awareness and education, particularly for those working in palliative care. His research training and education includes a PhD from the University of Sydney (Self-care, Self-compassion and Compassion for Others), and further postgraduate qualifications at the University of Melbourne (Positive Education). He is a certified compassion educator, having studied and trained to teach the internationally recognised Compassion Cultivation Training (CCT) program at the Stanford University Medical School's Centre for Compassion and Altruism Research and Education (CCARE). As Editor-in-Chief for the international journal Progress in Palliative Care, Dr Mills holds a keen interest in this growing field of research and practice, drawing widely from the scientific literature to develop this Self-Care Matters resource.

Additional resources

Further Support

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Promoting quality palliative care since 1991

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PaCE Aged Care is a resource directory of education resources specifically produced for aged care. It is a mobile-responsive web-based app. The app helps you find learning and teaching resources that support the development of specific palliative care capabilities for your aged care team. The directory includes information about learning approaches and modes of delivery for each resource. PaCE Aged Care is free to use, and all learning resources are free to access.

PACE Aged Care is a comprehensive resource. It houses almost 200 resources that National Palliative Care Projects have developed. The selected resources are high quality and well-developed. You can see a resource, its learning outcomes, duration, certifications, capabilities, filters, and keyword tags in one place. The resource is then one click away.

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PACE Aged Care in an online directory of palliative care education options suitable for aged care.

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ELDAC Common Clinical Tools Package of Evidence Based Tools

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ELDAC Common Clinical Tools Package of Evidence Based Tools

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Recognise End of Life and Assess for Palliative Care Needs - 12 Tools that can be used when providing care for older people at the end of life.

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Symptom Assessment Scale

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Palliative Aged Care Outcomes Program - PCOC-SAS for Care Staff | University of Wollongong - Australia

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Are you passionate about improving palliative and end of life care for residents and their families/carers - than this course is for you!

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Palliative care microlearning modules for the health and aged care workforce

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For a record of the PalliBytes (and other) modules you have completed: