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Working in Home Care? Click on this tile to access the PEPA Home Care Padlet.

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The palliAGED Introduction Modules for Aged Care provide a gateway to training and understanding in palliative care.

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Topic

Introduction to palliative care for aged care

Content

The palliAGED Introduction Modules for Aged Care provide a gateway to training and understanding in palliative care including symptoms and care issues.

The collection of 10 modules includes:

1. Introduction to palliative care

2. Self-care

3. Person-centred care

4. Talking about dying

5. Recognising deterioration

6. Palliative care case conferences

7. End-of-Life care pathways

8. Pain management

9. Symptom management

10. Care Issues.

Target audience

Nurses new to palliative care and/or aged care. Careworkers in aged care may also find some of these modules useful.

Depth

Beginner

Time to complete

Allow approximately 30 minutes for Module 1. Allow approximately 15 minutes per module for all the other modules.

Authors

CareSearch/palliAGED team, Flinders University

Comments

The modules do not have to be completed in a certain order.

These modules are based on the palliAGED Practice Tip Sheets for Nurses. A companion manual for these modules is also available. This provides communication tips and more detailed information about selected tools and processes referred to in the modules.

You can also download interactive versions of SPICT and SPICT-4ALL. These can be completed online or printed to complete by hand. There are also reflection questions within the modules.

Each module includes a voluntary survey to monitor the quality of this resource and to assist with further development of content to meet identified needs. This data may be used for research purposes.

Registration required

No

Payment required

No

Student support

No

Certificate

Yes a participation certificate is available for printing on completion

Country of origin

Australia

Web Address
https://www.palliaged.com.au/Practice-Centre/For-Nurses/palliAGED-Introduction-Modules
For further information

Dr Raechel Damarell
Senior Research Fellow
palliAGED, Flinders University
t: 08 7221 8887
e: raechel.damarell@flinders.edu.au

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palliaged introduction modules for aged care

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palliAGED Introduction Modules for Aged Care

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palliAGED Introduction Modules for Aged Care

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Typical Illness Trajectories. Three typical illness trajectories and their pattern of deterioration are outlined on this page.

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Responding to deterioration in people with dementia ensures:

Signs of deterioration are identified early and addressed.

Timely management of symptoms.

Complications may be prevented.

What does deterioration in people with dementia look like?

Deterioration refers to signs that the health of the person with dementia is declining. In late dementia, symptoms significantly worsen, impacting memory, communication, and physical abilities. Recognising deterioration can be challenging due to the gradual progression of the disease. This can sometimes make it difficult to identify when palliative care is needed.

Typical Illness Trajectories

People will experience different illness trajectories depending on the primary diagnosis and presence of other diseases (co-morbidities). Three typical illness trajectories for people with progressive chronic illness are described and illustrated in the figure below. [1, 2]
Trajectory 1: Cancer (short decline)
For these individuals there is a steady progression with a slight decline in physical health over months to years. Evident decline occurs in the end-of-life phase, which includes increasing symptoms, rapid decline in weight and functional status in the last weeks or months of life. [1, 2]
Trajectory 2: Organ failure (intermediate with acute episodes)
These individuals have non-malignant, life-limiting illness with organ failure. There is decline in function over years with long-term limitations, often life-threatening episodes requiring hospital treatment, followed by further deterioration. During this trajectory there may be episodes of improvement only for function to decline again. Death can seem sudden and may occur at any time along the gradual decline in function. [1, 2]
Trajectory 3: Frailty or dementia (gradual dwindling)
People living with dementia have a long and varied disease progression for up to 6-8 years. This includes early impairment of memory, reduced decision-making and communication capacity. Frailty is a syndrome of general physiological decline that often lacks a specific diagnosis. In this trajectory, the last year of life is characterised by a steady slow decline in overall function. If dementia and frailty occur together decline is more rapid. [1, 2] The relationship between frailty and dementia highlights the need for early intervention and monitoring both frality and cognitive function. [3]
Typical illness trajectories and palliative care phases towards the end of life
Reproduced with permission from: The Royal Australian College of General Practitioners. RACGP aged care clinical guide (Silver Book). 5th edition. East Melbourne, Vic: RACGP, 2019, 2020. Available at www.racgp.org.au/silverbook

Ask a family member or carer if there has been a change in the person's condition.

The person in late-stage dementia may:

lose recognition of familiar people

gradually lose the ability to perform daily tasks

experience incontinence

be affected by other conditions like stroke or arthritis

struggle to understand conversations and surroundings

lose the ability to talk

call out occasionally

forget how to eat or drink, and have trouble swallowing

experience weight loss

become bed or chairfast. [4]

Despite these challenges, the person with dementia can continue to show emotions and sensory experiences.

For people with dementia, it is necessary to identify and respond appropriately to deterioration, which may be from their primary diagnosis or because of other disease or events.

It is important to distinguish between deterioration that is due to treatable versus untreatable causes. Treatable causes are situations such as an acute or medical emergency that may warrant review and treatment. For instance, a urinary tract infection can be treated. Untreatable or irreversible causes could be due to disease progression.

Good clinical assessment and consultation with other team members (e.g. GP, Nurse Practitioner, Neurologist, Psychogeriatrician) is critical. If needed, external experts, such as specialist palliative care or dementia advisory services should be contacted for assistance. Family and carers should also be contacted when a person is deteriorating.

A sudden deterioration, such as acute confusion, may indicate delirium characterised by inattention and disturbance in cognition that develops over a short period of time and tends to fluctuate. Delirium is potentially preventable and treatable. However, major barriers, including under-recognition, are an issue. [5] It is advised to use a recognised tool, such as the 4AT (273kb pdf).

The Supportive and Palliative Care Indicators Tool (SPICTTM) (184kb pdf)or SPICT-4ALLTM (186kb pdf) can be used during routine care evaluations and following an unplanned hospitalisation. It may indicate a change in an older person's condition that warrants a review of care needs.

The SPICTTM includes specific clinical indicators for dementia/frailty:

Unable to dress, walk or eat without help.

Eating and drinking less, difficulty with swallowing.

Urinary and faecal incontinence.

Not able to communicate by speaking; little social interaction.

Frequent falls, fractured femur.

Recurrent febrile episodes or infections, aspiration pneumonia.

Visit the SPICTTM website for user guidelines and further information.

The Stop and Watch Early Warning Tool (481kb pdf) can be used by care workers to spot signs of deterioration in people. The tool can be used in situations of increased concerns when team members notice that something isn't quite right.

Other clinical tools are available for symptom assesment in the section on Assess Palliative Care Needs of the ELDAC Dementia Toolkit.

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For people with dementia it is important to identify and respond appropriately to deterioration of the person which may be from their primary diagnosis or as a result of other disease or events.

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A gentle guide on grief for individuals and families. Free to download or available in soft cover at a small cost.

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This is Grief is a gentle guide for individuals and families navigating loss. Ever since the release of our children’s book, “What is Grief?”, we have been asked if we would make a book for adults. Palliative Care Tasmania has worked hard to create a new grief resource for adults and families.

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As part of your Reverse PEPA Aged Care experience, you will need to create an account with PEPA. This short video will explain how to do this.

Your PEPA account gives you ongoing access to further learning opportunities

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If you have any suggestions to help us improve it, please contact us at pepa@qut.edu.au

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We'd love some feedback about this Padlet! Choose the option that best describes your experience...

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It's great - I use it often to find resources.

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I've had a quick look - not sure if it's helpful for me.

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It's confusing / there are too many resources

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palliative care aged care; australia; advance care planning; assessment tools

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palliaged is your source of evidence-based palliative care practice information, tools, & resources for aged care in Australia.

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ELDAC Common Clinical Tools Package of Evidence Based Tools

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ELDAC Common Clinical Tools Package of Evidence Based Tools

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Recognise End of Life and Assess for Palliative Care Needs - 12 Tools that can be used when providing care for older people at the end of life.

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Grief and bereavement are deeply personal experiences that affect aged care residents, their families and staff.

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Grief and bereavement are deeply personal experiences that affect aged care residents, their families and staff. Grief can stem from various sources, including declining health, loss of independence, or the death of loved ones. By providing compassionate support through clear communication, cultural understanding, and emotional and practical support you can improve overall wellbeing and help people cope with these profound challenges.

Grief can be overwhelming, and people may not always know how to ask for support. You can create a compassionate and open environment by:

Letting older people and families know they can approach you anytime without pressure to talk about their grief

Providing clear information about the dying process and what to expect

Offering presence and compassionate listening.

To help normalise the experience of grief and reduce feelings of isolation you can:

Recognise that grief is individual and shaped by culture, spirituality, and past experiences.

Reassure individuals with statements like, 'It's normal to feel a loss and to be sad. What would be most helpful to you now?'

Validate emotions without rushing the grieving process, allowing people to move through their grief at their own pace.

While grief is a normal process, some individuals may struggle to cope and require additional support. You can help by:

Reporting concerns to the care team if grief remains intense or unchanging for more than six months

Being mindful of colleagues coping with deaths in their care and offer support through conversation or peer debriefing

Helping connect a grieving person with appropriate resources, such as counselling services or peer support groups, when needed.

What I can learn

The palliAGED Practice Tip Sheets give helpful guidance on supporting older people with loss, grief, and bereavement near the end of life. There is a version for nurses as well as one for careworkers.

Staff who work closely with older people can also experience grief and loss. For more information, see the Tip Sheet for Grief and Loss among Staff for nurses as well as one for careworkers.

To develop your communication skills for grief conversations:

What to say to family when a resident dies

You can also develop your knowledge by:

What I can give

If an older person, their family or carers wishes to learn more about loss, grief or bereavement, these resources may help:

What I can suggest

A structured approach to grief support ensures consistency in care, provides clear guidance for staff, and helps families and residents prepare for loss. You can:

Embed a structured approach to grief support, including referral pathways and staff responsibilities

Develop a grief starter pack to give to older people and families to prepare for loss and bereavement

Create a list of community support networks or counselling services that older people and families can access.

Providing spaces and staff time to honour those who have died can foster healing and strengthen community bonds. Your team might:

Implement bereavement rituals such as memorial gatherings, tribute walls, or remembrance events to acknowledge loss and create a sense of continuity.

Designate quiet areas or reflection gardens where people can privately process grief, including culturally appropriate mourning spaces.

Encourage storytelling and shared memories through life review sessions or memory books to celebrate lives and preserve legacies.

Grief is part of care. To support staff to continue to provide compassionate care while managing their own emotional well-being:

Offer debriefing and peer support opportunities

Acknowledge and validate staff grief responses through formal and informal support and end-of-life care training

Provide clear guidance on time off and funeral attendance.

A workplace culture that acknowledges grief helps staff manage emotional challenges and maintain professional resilience. You might:

Offer training on empathetic communication, including cultural sensitivity in grief discussions

Embed grief and bereavement information and support resources into staff induction programs alongside awareness of the importance of self-care

Introduce meaningful rituals such as guards of honour or sacred pauses to honour those who have passed and provide moments for team reflection.

Page updated 30 July 2026

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Grief and bereavement affect residents, families, and staff in aged care. Compassionate, culturally-sensitive support improves wellbeing and helps people navigate loss and emotional pain.

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Introducing the PEPA Aged Care program - providing individualised, palliative care education across a range of aged care settings. Contact us at www.pepaeducation.com to find out more.

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Residential aged care will be the last home for most older people who enter this setting of care in Australia. This means that grief and bereavement support for older people is core business in residential aged care.

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An older person may grieve due to a decline in physical, mental or cognitive health. It is also important to acknowledge that a resident's family members might start to grieve before their death. Healthdirect has a webpage on understanding anticipatory grief. CareSearch provides an overview about abnormal grief. The Agency for Clinical Innovation has an educational video on bereavement. PalliAGED offers a variety of resources to learn more about grief, loss and bereavement. There are links to a guide for assessing bereavement and support, and a tool to distinguish between depression and grief.

What is Prolonged Grief Disorder?

"Intense and persistent symptoms of distress following the death of a family member or friend. Significant mental and physical health problems may be present, for example, insomnia, depression, cardiac problems, substance misuse, cancer, suicide, depressed immune function and work and social impairment. Also known as complicated grief."
Palliative Care Australia
Palliative Care Australia has an Understanding Grief Brochure (pdf 1004kb) which explains grief and the grieving process and gives suggestions for managing grief and helping others through their grief

Grief Australia offers education for the wider community to improve grief and bereavement knowledge. Education and training programs are offered as seminars, workshops, courses, conferences, webinars and customised training that meet the specific needs of organisations and agencies. You can find more information on bereavement support.

Also the Grief Australia website has available the Bereavement Support Standards for Specialist Palliative Care Services that was designed for use by professionals to support all carers and people going through bereavement who have an increased risk of developing prolonged or complicated grief or have current psychosocial and/or spiritual distress. This set of set of bereavement support standards was developed in collaboration with the Victorian Government Department of Health and the Centre for Palliative Care.

palliAGED has downloadable Practice Tips on grief and loss among older people, families and residents for Nurses (pdf 245kb) and Careworkers. (pdf 440kb)

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An older person may grieve due to a decline in physical, mental or cognitive health. It is also important to acknowledge that a resident's family members might start to grieve before their death.

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Provides information and guidance to support palliative care and advance care planning for people living with dementia and their families.

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The End-of-Life Directions for Aged Care (ELDAC) project aims to improve the care of older Australians. Health professionals and aged care workers can access information, guidance, and resources to support palliative care and advance care planning for older people and their families.

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IPEPA has a range of learning resources to support the development of palliative care capabilities for the Aboriginal and Torres Strait Islander health workforce, and to enhance the capacity of the non-Indigenous workforce to provide culturally-responsive palliative care for Aboriginal and Torres Strait Islander peoples.

IPEPA learning resources have been developed through co-design and community engagement to provide education that meets the specific learning needs of Aboriginal and Torres Strait Islander Health Professionals in the context of palliative care.

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IPEPA has a range of learning resources to support the development of palliative care capabilities for the Aboriginal and Torres Strait Islander health workforce, and to enhance the capacity of the non-Indigenous workforce to provide culturally-responsive palliative care for Aboriginal and Torres Strait Islander peoples.

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ELDAC Toolkits are a collection of information, resources and tools around a particular topic or practice area. They can help users to develop a plan and organise their efforts to follow evidence-based recommendations or practices.

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ELDAC video

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Aged Care | Self Care | Phoenix Australia

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PACOP Symptom Assessment Scale online course.

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Palliative Aged Care Outcomes Program - PCOC-SAS for Care Staff | University of Wollongong - Australia

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Are you passionate about improving palliative and end of life care for residents and their families/carers - than this course is for you!

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The purpose of this sunflower is to support the provision of person centred care for hospitalised older persons

with cognitive impairment or dementia. It can be completed with the person, their family, carers or both.

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Grief Australia - Australia's peak body on grief and bereavement.

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Grief Australia: Australian Centre for Grief and Bereavement

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We are a leading voice on grief in Australia, providing evidence-informed counselling, training, and research to collectively strengthen the nation's response to grief.

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Palliative care microlearning modules for the health and aged care workforce

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For a record of the PalliBytes (and other) modules you have completed:

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Peak body for Advance Care Planning in Australia. Here you can find links to resources, webinars and training modules on Advance Care Planning

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Advance care planning involves planning for your future health care. It enables you to make some decisions now about the health care you would or would not like to receive if you were to become seriously ill and unable to communicate your preferences or make treatment decisions.

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Click on this link to request to join the PEPA/IPEPA Community of Practice group on LinkedIn.

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Login to LinkedIn to keep in touch with people you know, share ideas, and build your career.

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PACOP provides a nationally standardised assessment framework and a clinical response protocol to guide the delivery of best-practice palliative care in residential aged care settings.

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Skip to Content

PACOP Assessment Framework

PACOP provides a nationally standardised assessment framework and a clinical response protocol to guide the delivery of best-practice palliative care in residential aged care settings.

PACOP, a framework co-designed with participating residential aged care homes, is a solution that meets the aged care sector's clinical care delivery, governance, and quality improvement needs. Aged care providers can participate in PACOP without any prerequisite for assessing readiness or minimum achievement against the star ratings, standards of care, or National Quality Indicator program. The best part? PACOP is freely available to ALL Australian residential aged care homes with no costs for implementation, education or quality improvement resources.

The PACOP Program has two components: the Profile Collection and the Outcomes Program. The Profile Collection provides assessment tools that support early recognition of deterioration, identifying changing care needs, and the need to commence palliative or end-of-life care. The Outcomes Collection provides assessment tools and a clinical protocol to monitor and respond to palliative and end-of-life care needs.

PACOP Identifying Palliative Care Needs

A flowchart of the PACOP assessment and response framework demonstrates the program's clinical implementation.
Download the PACOP Identifying Palliative Care Needs Flowchart

PACOP Framework Benefits

The PACOP framework brings a host of benefits, including;

Improved care planning ensures consistency and equitable access to palliative and end-of-life care for residents and families.

Introduction of a common language with multidisciplinary care teams and health care providers through validated clinical assessment tools.

Assessment information informs plans for continuous improvement and evidence achievements over time.

PACOP Profile & Outcomes Collection

PACOP Profile Collection

The Profile Collection provides assessments that support the recognition of deterioration, changing care needs, and the need to commence palliative or end-of-life care.

The profile assessment is completed on admission and at a three-month minimum to assess resident care needs routinely and inform routine care planning. It supports anticipatory care planning.

The Deteriorating Resident Tool is completed at any point in time when the resident, family or care teams voice concerns or changes in a resident's baseline. The DRT supports providers to respond to deterioration rapidly and escalate care needs appropriately.
Download the Profile Assessment Suite

PACOP Outcomes Collection

The Outcomes Collection provides assessments and a clinical protocol guiding routine monitoring and delivery of palliative and end-of-life care needs.

Symptom monitoring occurs daily by care staff for residents with identified palliative or end-of-life care needs, followed by a weekly or daily full clinical assessment by the registered nurse as indicated by assessed care needs.

Embedding the clinical protocol provides a language and process for monitoring the outcomes of care delivered and measures the outcomes of palliative and end-of-life care plans.

The Outcomes Collection evidences palliative and end-of-life care delivery and aligns with the incoming Strengthened Standards of Care.
Download the Outcomes Assessment Suite

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PACOP for clinicians - University of Wollongong - UOW

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Skip to Content PACOP Assessment Framework PACOP provides a nationally standardised assessment framework and a clinical response protocol to guide the delivery of best-practice palliative care in residential aged care settings. PACOP, a framework co-designed with participating residential aged care homes, is a solution that meets the aged care sector's clinical care delivery, governance, and quality improvement needs.

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Go here for Advance Care Planning discussion starter resources.

On this website, you can download and order the:

"What matters most for older Australians" discussion starter cards, booklet and facilitators' guide.

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Palliative Care Australia's (PCA) Discussion Starter series and Card packs have been developed to reach into communities to normalise early conversations about the end-of-life, rather than waiting until more time-critical or medical-focused discussions need to occur. The resources have been developed to help Australians work out what's right for them if they were to become very sick or at the end of their lives.

While the design, order of sections and some of the information may have been adapted or updated across resources, they all can be used to get you started in this important discussion.

PCA thanks The Conversation Project and the Institute for Healthcare Improvement in Boston, MA, USA. Their Conversation Starter Kit is in many ways the inspiration for the original 2015 Discussion Starter. PCA also respectfully acknowledges that the Dying to Talk Discussion Cards was guided by Coda Alliance's Go Wish card game developed with the Archstone Foundation.

This Discussion Starter and card pack has been developed for Aboriginal and/or Torres Strait Islander peoples and their community, and...

The What Matters Most for Older Australians Discussion Starter and card pack has been developed for older people using aged...

This Discussion Starter and card pack has been developed by Palliative Care Australia (PCA), and trialled in collaboration with the...

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Palliative Care Australia's (PCA) Discussion Starter series and Card packs have been developed to reach into communities to normalise early conversations about the end-of-life, rather than waiting until more time-critical or medical-focused discussions need to occur. The resources have been developed to help Australians work out what's right for them if they were to become very sick or at the end of their lives.

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PaCE Aged Care is a resource directory of education resources specifically produced for aged care. It is a mobile-responsive web-based app. The app helps you find learning and teaching resources that support the development of specific palliative care capabilities for your aged care team. The directory includes information about learning approaches and modes of delivery for each resource. PaCE Aged Care is free to use, and all learning resources are free to access.

PACE Aged Care is a comprehensive resource. It houses almost 200 resources that National Palliative Care Projects have developed. The selected resources are high quality and well-developed. You can see a resource, its learning outcomes, duration, certifications, capabilities, filters, and keyword tags in one place. The resource is then one click away.

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PACE Aged Care in an online directory of palliative care education options suitable for aged care.

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NURSE Mnemonic - Responding to Emotional Cues

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NURSE Mnemonic - Responding to Emotional Cues

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A great mnemonic to remember for compassionate communication

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Palliative Care evidence and tools for health professionals and information about death and dying for the whole community.

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CareSearch palliative care knowledge network

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CareSearch palliative care knowledge network provides access to evidence and tools for health professionals and information about death and dying for the whole community.

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Education Videos for Aged Care Workers

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The Education on the Run training videos were made possible through funding from the South Australian and Commonwealth Governments under the Comprehensive Palliative Care in Aged Care Project.

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The Education on the Run training videos were made possible through funding from the South Australian and Commonwealth Governments under the Comprehensive Palliative Care in Aged Care Project.

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The palliAGED apps provide nurses and GPs with easy and convenient access to information to help them care for people approaching the end of their life.

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This app provides evidence-based guidance of prescribing medicines for common terminal symptoms. It contains an opioid calculator for conversions.

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palliMEDS app
2023 version now available
The palliMEDS app supports primary care prescribers to provide optimal symptom management to their patients in the community.

palliMEDS has prescribing information about palliative care medicines identified by clinicians across Australia [PDF 804.98 KB] as the most useful to manage common symptoms in home-based palliative care patients in the last few weeks of life.

The prescriber can search by symptom or medicine, use the opioid calculator for conversions, read dosing considerations and symptom and medicine information, and look up TGA-PBS listings.

Available from:

caring@home app
2025 version now available
Our caring@home app is for health professionals supporting families and carers who are managing symptoms of a home-based palliative care patient.

It's designed to make it easier for people to get quality end-of-life care and die at home if they choose to.

It has resources for carers, health professionals and clinical services from the Community Palliative Care Resources Box and the standard caring@home resources.

Selected carer resources have also been translated into 9 other languages, including training videos.

You can read, download or print resources, including syringe labels.

The app can be used offline for more rural and remote areas once you've downloaded any resources you want to use.

Available from:

caring@home Indigenous app

Our caring@home Indigenous app supports health professionals providing home-based palliative care to Aboriginal and Torres Strait Islander peoples.

You can read, download or print the suite of tailored, best practice and culturally safe resources for clinical services and health professionals. You can also use them to teach families and carers how to use subcutaneous medicines.

The app can be used offline for more rural and remote areas once you've downloaded any resources you want to use.

Available from:

Apple and the Apple logo are trademarks of Apple Inc., registered in the U.S. and other countries. App Store is a service mark of Apple Inc.
Google Play and the Google Play logo are trademarks of Google LLC.

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Mobile apps to support health professionals to assist families and carers in managing the complexities of palliative care and end-of-life care at home.

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Palliative Care Australia: Self-Care Matters Videos and Resource

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Palliative Care Australia: Self-Care Matters Videos and Resource

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Welcome to Self-Care Matters (Aged Care), a Palliative Care Australia (PCA) resource, which aims to support all aged care workers in residential facilities or community settings.

Aged care workers play an essential role in our society, which is to care for the loved ones of thousands of Australians. The nature of aged care work can generate a substantial amount of stress, which can affect mental health and lead to fatigue or depression.

As an aged care worker, you may already be experiencing this reality. You may even have realised by now that to take the best care possible of others you also need to take care of yourself.

Background

The Self-Care Matters (Aged Care) resource was developed to assist all aged care workers in residential facilities or community settings with practising self-care to support the quality and sustainability of the care they provide to older Australians.

While it builds from the general Self-Care Matters resource developed by PCA, this version explores self-care within the important context of aged care, where palliative and end-of-life care are increasingly vital, and gives voice to the unique perspectives of experienced aged care providers.

PCA has created the Self-Care Matters resource in collaboration with self-care expert Dr Jason Mills, a nurse academic with a clinical background in palliative care and mental health. This resource aims to support you - whatever your role in aged care - to prevent burnout and build resilience.

Content

The resource includes five informational videos, as well as a self-care planning tool (PDF) that can be completed electronically (and printed), or printed and completed in hardcopy. A sixth video is also provided, exploring in detail, the process and experience of developing a self-care plan.

Watch these videos to learn more about why self-care matters within the important context of aged care. Following the videos, you will find more information regarding the Self-Care Planning Tool: Self-Care Matters (PDF file).

A Guide to using the Self-Care Matters (Aged Care) Resource can be downloaded here (PDF file).
Video 1: Self-Care Advice for Aged Care Workers
This video provides self-care advice from aged care workers-to aged care workers
Video 2: The challenges of working in aged care
This video explores some of the common challenges faced by aged care workers.
Video 3: Navigating difficult conversations
This video describes aged care workers' experience and strategies for navigating difficult conversations.
Video 4: Using a self-care plan
This video shares aged care workers' perspectives on the benefits of using a self-care plan.
Video 5: Putting self-care into practice
This video explores aged care workers' examples of and perspectives on putting self-care into practice
Video 6: Developing a self-care plan
This video features an interview-style discussion between two people experienced in aged care-Jason, a Registered Nurse and Marg, a Nurse Practitioner-which took place shortly after Marg developed her own personalised self-care plan, using the Self-Care Matters Planning tool (shown below).
Would you like to create your own personalised self-care plan, or reflect on the self-care planning process?
You might wish to download and use the Self-Care Matters planning tool, which is designed to assist you in reflecting on, and planning for, your self-care. The Self-Care Matters planning tool provides a template for the systematic planning of self-care that is both comprehensive and tailored to changing personal circumstances/professional settings. It can be completed either electronically or in hardcopy.

If you need some guidance, you can also watch Dr Mills and palliative care nurse practitioner and PCA clinical advisor Kate Reed demonstrate here how to create an effective self-care plan, and answer some frequently asked questions about the planning tool.

Would you like to try a mindful breathing exercise, body scan, or self-compassion meditation?

The audio clips below were developed to guide the practice of mindfulness, relaxation, and self-compassion to support the use of physical and inner self-care strategies.

Tip: While the first exercise (Mindful Breathing) is short and flexible for personal use in public settings, it is recommended that the Body Scan and Self-compassion guided meditations are best undertaken in a private place as they are intended for private use at home.
Mindful Breathing (Guided Exercise) - approximately 7 minutes
A brief mindful breathing exercise you can learn and use anywhere to help ground yourself in the present moment. Includes 'box breathing'.
Mindful Body Scan (Guided Relaxation) - approximately 15 minutes
A guided mediation (visualisation) to assist with physical and mental relaxation.
Mindful Self-compassion for self-care (Guided Meditation) - approx. 24mins
A guided meditation to support self-care, self-compassion, and more broadly, compassion for others.

Acknowledgements

The Palliative Care Australia Self-Care Matters resource was developed for Palliative Care Australia by Incite Positive Education and Research Consulting. Palliative Care Australia is funded by the Australian Government.

Requests for permission to reproduce any part of this resource should be sought in writing from Palliative Care Australia at pca@palliativecare.org.au.

About Dr Jason Mills, Managing Director, Incite Positive Education and Research Consulting

Dr Mills has developed Self-Care Matters for PCA reflecting his passion and commitment to promoting self-care awareness and education, particularly for those working in palliative care. His research training and education includes a PhD from the University of Sydney (Self-care, Self-compassion and Compassion for Others), and further postgraduate qualifications at the University of Melbourne (Positive Education). He is a certified compassion educator, having studied and trained to teach the internationally recognised Compassion Cultivation Training (CCT) program at the Stanford University Medical School's Centre for Compassion and Altruism Research and Education (CCARE). As Editor-in-Chief for the international journal Progress in Palliative Care, Dr Mills holds a keen interest in this growing field of research and practice, drawing widely from the scientific literature to develop this Self-Care Matters resource.

Additional resources

Further Support

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Promoting quality palliative care since 1991

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Self-care Room for tips to improve your self care in the palliative care environment

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A place for aged care workers, with resources to discover and explore, to use now or when needed, to download and share.

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The End-of-Life Directions for Aged Care (ELDAC) project aims to improve the care of older Australians. Health professionals and aged care workers can access information, guidance, and resources to support palliative care and advance care planning for older people and their families.

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ELDAC End of Life Law Toolkit

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The Legal Toolkit provides practical information about the law at end of life for the aged care sector. It contains useful resources on end of life legal issues commonly encountered in aged care to help you to know the law and to support your practice.

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Dementia Respite Education and Mentoring link.

Supporting you to support people living with dementia

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Terms & Conditions
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Last updated: Mon, 29 Jan 2024 15:00:00 +1100

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Dementia Respite Education and Mentoring (DREAM) | The Wicking Dementia Centre | UTAS

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These communication cards support the wellbeing of Aboriginal and Torres Strait Islander people living with dementia.

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Dementia Helpline - 24 hours 7 days a week

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The National Dementia Helpline is a free telephone service that provides information and advice to:

people living with dementia

people concerned about changes to memory and thinking

people living with Mild Cognitive Impairment (MCI)

family, friends and carers of people living with dementia

people who work in health and aged care

In addition to sharing information and advice, the team can also:

provide emotional support and guidance

connect you to Dementia Australia and community support services and programs

discuss government support, including My Aged Care, National Disability Insurance Scheme (NDIS), Carer Gateway and Dementia Behaviour Management Advisory Service (DBMAS)

How to access the National Dementia Helpline

Free call: 1800 100 500
Webchat: dementia.org.au/helpline/webchat
Email: helpline@dementia.org.au

The National Dementia Helpline operates 24 hours a day, seven days a week, 365 days a year.

If you require the assistance of an interpreter, please call the Translating and Interpreting Service on 131 450.

If you are deaf or have a hearing or speech impairment, please call the National Relay Service on 133 677.

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The National Dementia Helpline is a free telephone service that provides information and advice to: people living with dementia people concerned about changes to memory and thinking people living with Mild Cognitive Impairment (MCI) family, friends and carers of people living with dementia people who work in health and aged

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When Someone Dies in Residential Aged care - Grief and Loss for Families

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When Someone Dies in Residential Aged care - Grief and Loss for Families

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Booklet on grief and loss (an palliative care) in the residential aged care setting

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This webpage discusses the laws on VAD both in Australia and internationally, and their intersection with palliative care and medical treatment decision-making.

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Publications

Katrine Del Villar, Ben White, Eliana Close et al, 'Voluntary Assisted Dying by Practitioner Administration Is Not Suicide: A Way Past the Commonwealth Criminal Code?' (2022) 29(1) Journal of Law and Medicine 29-141.

Ben White, Lindy Willmott, Katrine Del Villar et al, 'Who is eligible for voluntary assisted dying? Nine medical conditions assessed against five legal frameworks' (2022) 45(1) University of New South Wales Law Journal 401-444.

Marcus Sellars, Ben White, Patsy Yates et al, ' Medical practitioners' views and experiences of being involved in assisted dying in Victoria, Australia A qualitative interview study among participating doctors' (2022) Social Science & Medicine 292.

Ben White, Eliana Close, Lindy Willmott et al, 'Comparative and critical analysis of key eligibility criteria for voluntary assisted dying under five legal frameworks' (2021) 44(4) University of New South Wales Law Journal 1663-1700.

Lindy Willmott and Ben White, ' The Challenging Path to Voluntary Assisted Dying Law Reform in Australia: Victoria as a Successful Case Study' in White, Ben White & Lindy Willmott (eds), International Perspectives on End-of-Life Law Reform: Politics, Persuasion and Persistence (Cambridge, United Kingdom, 2021) 84-112.

Moira O'Connor, Charlene Martin, Lindy Willmott, et al, 'Australian Health Professionals' Attitudes toward Voluntary Assisted Dying: A Cross-Sectional Survey' (2021) 10(11) Social Sciences.

Eliana Close, Katrine Del Villar, Lindy Willmott et al, 'Voluntary assisted dying and telehealth: Commonwealth carriage service laws are putting clinicians at risk' (2021) 215(9) Medical Journal of Australia 406-409.

Eliana Close, Lindy Willmott and Ben White, 'Regulating voluntary assisted dying practice: A policy analysis from Victoria, Australia' (2021) 125(11) Health Policy 1455-1474.

Sarah Philippkowski, Moira O'Connor, Maarten C Eisma et al, ' Does Voluntary Assisted Dying Cause Public Stigma for the Bereaved? A Vignette-Based Experiment' (2021) 19(5) Palliative and Supportive Care 558-562.

Jessica Young, Janine Winters, Jeanne Snelling et al, 'The End of Life Choice Act: a proposed implementation and research agenda' (2021) 134(1544) New Zealand Medical Journal 145-158.

Ben White and Lindy Willmott, Voluntary assisted dying research: a policy briefing. Australian Centre for Health Law Research, Queensland University of Technology, 2021.

Lindy Willmott, Katrine Del Villar, and Ben White, 'Voluntary assisted dying in Victoria, Australia: A values-based critique' in Sue Westwood (ed), Regulating the End of Life: Death Rights (Routledge, 2021) 55-73.

Lindy Willmott, Ben White, Marcus Sellars and Patsy Yates, 'Participating doctors' perspectives on the regulation of voluntary assisted dying in Victoria: a qualitative study' (2021) Medical Journal of Australia.

Rosalind McDougall, Ben White, Danielle Ko et al, ' Junior doctors and conscientious objection to voluntary assisted dying: ethical complexity in practice' (2021) Journal of Medical Ethics.

Jodhi Rutherford, Lindy Willmott and Ben White, 'What the Doctor Would Prescribe: Physician Experiences of Providing Voluntary Assisted Dying in Australia' (2021) Omega: Journal of Death and Dying.

Lindy Willmott, Ben White, Rachel Feeney et al, 'I ntentional hastening of death through medication: A case series analysis of Victorian deaths prior to the Voluntary Assisted Dying Act 2017' (2021) 51(10) Internal Medicine Journal 1650-1656.

Ben White, Lindy Willmott, Eliana Close et al, 'Legislative Options to Address Institutional Objections to Voluntary Assisted Dying in Australia' (2021) 3 University of New South Wales Law Journal Forum 1-19.

Jayne Hewitt, Ben White, Ben, Katrine Del Villar et al, ' Voluntary assisted dying in Victoria: Why knowing the law matters to nurses' (2021) 28(2) Nursing Ethics 221-229.

Ben White, Lindy Willmott, Marcus Sellars, Patsy Yates. ' Prospective oversight and approval of assisted dying cases in Victoria, Australia: a qualitative study of doctors' perspectives' (2021) BMJ Supportive and Palliative Care.

Ben White, Lindy Willmott, Eliana Close et al. ' Development of voluntary assisted dying training in Victoria, Australia: A model for consideration'. (2021) 36(3) Journal of Palliative Care 162-167.

Jodhi Rutherford, Lindy Willmott and Ben White. ' Physician attitudes to voluntary assisted dying: a scoping review'. (2021) 11(2) BMJ Supportive and Palliative Care 200-208.

Alex Holmes, Peter Lange, Cameron Stewart et al, 'Can depressed patients make a decision to request voluntary assisted dying?' (2021) 51(10) Internal Medicine Journal 1713-1716.

Katrine Del Villar, Eliana Close, Rachel Hews, et al. ' Voluntary assisted dying and the legality of using a telephone or internet service: The impact of Commonwealth 'Carriage Service' offences'. (2020) Monash University Law Review. (In Press)

Jodhi Rutherford, 'Conscientious participants and the ethical dimensions of physician support for legalised voluntary assisted dying' (2020) Journal of Medical Ethics.

Jodhi Rutherford, 'Doctors and the Voluntary Assisted Dying Act 2017 (Vic): Knowledge and General Perspectives' (2020) 27(4) Journal of Law and Medicine 952-966.

Ben White et al, 'Assisted dying and evidence-based law-making: A critical analysis of an article's role in New Zealand's referendum' (2020) 133(1520) New Zealand Medical Journal 83-90.

Ben White, Katrine Del Villar, Eliana Close and Lindy Willmott, 'Does the Voluntary Assisted Dying Act 2017 (Vic) Reflect Its Stated Policy Goals?' (2020) 43(2) University of New South Wales Law Journal.

Andrew McGee, 'Voluntary assisted dying: should conscientious objection be unconditional?' (2020) 50 Journal of Pharmacy Research and Practice 117-121.

Katrine Del Villar, Lindy Willmott and Ben White, 'Suicides, Assisted Suicides and 'Mercy Killings': Would Voluntary Assisted Dying Prevent these 'Bad Deaths'?' (2020) 46(2) Monash University Law Review.

Lindy Willmott et al, 'Restricting conversations about voluntary assisted dying: Implications for clinical practice' (2020) 10(1) BMJ Supportive and Palliative Care 105.

Ben White and Lindy Willmott, 'A Model Voluntary Assisted Dying Bill' (2019) 7(2) Griffith Journal of Law and Human Dignity 1.

Ben White and Lindy Willmott, 'Evidence-based law-making on voluntary assisted dying' (2019) Australian Health Review 1.

Bregie Onwuteaka-Philipsen, Lindy Willmott and Ben White, 'Regulating voluntary assisted dying in Australia: Some insights from the Netherlands' (2019) 211(10) Medical Journal of Australia 438.

Ben White, Lindy Willmott and Eliana Close, ' Victoria's voluntary assisted dying law: Clinical implementation as the next challenge' (2019) 210(5) Medical Journal of Australia 207.

Ben White and Lindy Willmott, Voluntary Assisted Dying Bill 2019 (Unpublished, 2019).

Carmelle Peisah, Linda Sheahan and Ben White, ' The biggest decision of them all - death and assisted dying: capacity assessments and undue influence screening' (2019) 49(6) Internal Medicine Journal 792.

Andrew McGee et al, ' Informing the euthanasia debate: Perceptions of Australian politicians' (2018) 41(4) University of New South Wales Law Journal 1368.

Ben White and Lindy Willmott, ' Future of assisted dying reform in Australia' (2018) Australian Health Review 616.

Cameron Stewart, 'Euthanasia, Suicide and Assisted Dying' in Ben White, Fiona McDonald and Lindy Willmott (eds), Health Law in Australia (Law Book Co, 3rd ed, 2018) 526.

Lindy Willmott and Ben White, ' Assisted dying in Australia: A values-based model for reform' in Ian Freckleton and Kerry Petersen (eds), Tensions and Traumas in Health Law (Federation Press, 2017) 479.

Andrew McGee and Franklin Miller, ' Advice and care for patients who die by voluntarily stopping eating and drinking is not assisted suicide' (2017) 15(222) BMC Medicine 1.

Lindy Willmott et al, '(Failed) Voluntary Euthanasia Law Reform in Australia: Two Decades of Trends, Models and Politics' (2016) 39(1) University of New South Wales Law Journal 1.

Neera Bhatia, Ben White and Luc Daliens, 'How should Australia respond to media-publicised developments on euthanasia in Belgium?' (2016) 23(4) Journal of Law and Medicine 835.

Ben White, Lindy Willmott and Julian Savulescu, 'Voluntary palliated starvation: A lawful and ethical way to die?' (2014) 22(2) Journal of Law and Medicine 376.

Bob Douglas, Lindy Willmott and Ben White, T he right to choose an assisted death: Time for legislation? (Report, January 2013).

Ben White and Lindy Willmott, 'How should Australia regulate voluntary euthanasia and assisted suicide?' (2012) 20(2) Journal of Law and Medicine 410.

Jocelyn Downie and Ben White, ' Prosecutorial discretion in assisted dying in Canada: A proposal for charging guidelines' (2012) 6(2) McGill Journal of Law and Health 113.

Ben White and Jocelyn Downie, 'Prosecutorial guidelines for voluntary euthanasia and assisted suicide: Autonomy, public confidence and high quality decision-making' (2012) 36(2) Melbourne University Law Review 656.

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Publications Katrine Del Villar, Ben White, Eliana Close et al, 'Voluntary Assisted Dying by Practitioner Administration Is Not Suicide: A Way Past the Commonwealth Criminal Code?' (2022) 29(1) Journal of Law and Medicine 29-141. Ben White, Lindy Willmott, Katrine Del Villar et al, 'Who is eligible for voluntary assisted dying?

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Artist: Wanda Flanagan (Clinical Yarning Project)

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The Western Australian Centre for Rural Health would like to acknowledge the Traditional Owners of the land where we work. We pay our respects to Elders past, present and emerging and we celebrate their stories and culture.

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Healing Foundation Aged Care Resources - Working with Stolen Generations

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Healing Foundation Aged Care Resources - Working with Stolen Generations

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The Healing Foundation works with Stolen Generations organisations, Aboriginal community-controlled organisations (ACCOs), universities and governments to improve health, social and emotional wellbeing outcomes for Stolen Generations survivors and descendants.

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The Healing Foundation provides expert guidance on working with Stolen Generations survivors. Our advice is developed in partnership with survivors and underpinned by a trauma-informed and culturally safe approach.

Download the fact sheets:

The costs of disadvantage

Research has shown that Stolen Generations survivors experience a significantly higher burden of health and economic disadvantage than other Indigenous Australians, as a direct result of their forced removal.* Survivors represent 'a gap within the gap' and are among some of our most vulnerable people.

Australian Institute of Health and Welfare data* commissioned by The Healing Foundation showed that, compared to other Aboriginal and Torres Strait Islander people of the same age, Stolen Generations survivors aged 50 and over were:

1.8 times as likely not to be the owner of a home

1.7 times as likely to have experienced discrimination due to being Indigenous

1.6 times as likely to live in a household that could not raise $2,000 in an emergency

1.5 times as likely to have experienced actual or threatened physical violence

1.4 times as likely to have a severe or profound disability

1.4 times as likely to report poor mental health.

Disadvantages in aged care services

Stolen Generations survivors risk being disproportionately disadvantaged by the Support at Home co-contributions effective from 1 November 2025 as part of the new Aged Care Act. Data shows survivors overwhelmingly rely on the lower end services that will attract the highest level of co-contribution under Support at Home.

The Healing Foundation the Interim First Nations Aged Care Commissioner's call for appropriate safety net mechanisms for older Aboriginal and Torres Strait Islander people within the . Without this, aged care co-contributions risk exacerbating the current disparity in access rates that all levels of government are working together to overcome through the National Agreement on Closing the Gap.

Learn more about how these changes will affect Aboriginal and Torres Strait Islander Elders:

Through our research we build evidence-based policy and program expertise to ensure that survivors age with dignity. We elevate the voices of Stolen Generations survivors through various policy groups, forums and research partnerships, including:

The Coalition of Peaks, National Closing the Gap Agreement

Social and Emotional Wellbeing Policy Partnership

National Indigenous Health Leadership Alliance

Close the Gap Campaign Steering Committee

First Nations Aged Care Governance Group

National Centre for Action on Child Sexual Abuse

NIAA Indigenous Expert Group

Find and Connect First Nations Reference Group

Historical Frontier Violence Steering Committee

Data sources:
*AIHW 2018-2019

**Australian Institute of Health and Welfare 2021. Aboriginal and Torres Strait Islander Stolen Generations aged 50 and over: updated analyses for 2018-19. Cat. no. IHW 257. Canberra: AIHW

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Learn about health and aged care priorities for Stolen Generations survivors and the need for culturally safe, trauma-aware services.

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CALD Assist is a free app downloadable from Apple App store and Google play Store, which can assist clinicians communicate with people with limited English proficiency.

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CALD Assist is a free app downloadable from Apple App store and Google play Store, which can assist clinicians communicate with people with limited English proficiency. Developed by Western Health in partnership with CSIRO, CALD Assist does not replace professional interpreters, but can assist overcome basic language barriers when interpreters are not available.

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The Patient Dignity Inventory (PDI) is designed to measure various sources of dignity-related distress among patients nearing the end of life.

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The Patient Dignity Inventory (PDI) is designed to measure various sources of dignity-related distress among patients nearing the end of life. The 25-items of the PDI derive from a model of dignity in the terminally ill. See below to view the PDI.

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Palliative care – emotional, spiritual and cultural care

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Palliative care – emotional, spiritual and cultural care

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Palliative care – emotional, spiritual and cultural care

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Palliative care – emotional, spiritual and cultural care

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Some people prefer having palliative care at home because of the familiar environment, feeling of independence and close access to family, friends and the local community.

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Culturally-Inclusive Aged Care Practice Guides

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Culturally-Inclusive Aged Care Practice Guides

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Practice Guides set out key considerations, actions and resources that can support aged care providers to deliver inclusive services to people from culturally and linguistically diverse backgrounds.

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Culturally Inclusive Aged Care Practice Guides

Practice Guides set out key considerations, actions and resources that can support aged care providers to deliver inclusive services to people from culturally and linguistically diverse backgrounds. While the Inclusive Service Standards provide a framework for aged care providers to embed a systemic and holistic approach so that their services are welcoming, safe and accessible for everyone, the Practice Guides are intended to be used by managers and staff and inform direct service provision. It is vital that aged care services take into account and address cultural and linguistic need of individual consumers.

To access the Practice Guides, you must complete a short online form. Once registered, you can download the PDFs below.

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Practice guides | Centre for Cultural Diversity in Ageing

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Supporting aged care providers to address the needs of older people from culturally and linguistically diverse backgrounds

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Palliative Care 11 Tips: LGBTIQ+ Health Australia

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Palliative Care 11 Tips: LGBTIQ+ Health Australia

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This poster provides healthcare professionals and healthcare services with key steps that lead to inclusive palliative care for people who are LGBTIQ+. These steps are supported by existing research both from Australia and Internationally.

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Palliative Care 11 tips Poster

Tips for health professionals that lead to more inclusive palliative care for LGBTIQ+ people.

Palliative Care week 2021 was a time to reflect and learn more about what palliative care is and why it is important.

LGBTIQ+ Health Australia will be shared tips for health professionals that lead to more inclusive palliative care for LGBTIQ+ people.
Access poster

ABOUT LGBTIQ+ Health Australia LGBTIQ+ Health Australia, (formerly the National LGBTI Health Alliance), is the national peak health organisation in Australia for organisations and individuals that provide health-related programs, services and research focused on lesbian, gay, bisexual, transgender, intersex and queer people and other sexuality, gender and bodily diverse (LGBTIQ+) people and communities. Dropping the "+" from our name only occurs within digital formats that do not allow mathematical symbols, such as within our domain name, handles and hashtags.

ACKNOWLEDGEMENT OF COUNTRY LGBTIQ+ Health Australia acknowledges the Traditional Owners of country throughout Australia, their diversity, histories and knowledge and their continuing connections to land and community. We pay our respects to all Australian Indigenous Peoples and their cultures, and to Elders of past, present and future generations.

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Tips for health professionals that lead to more inclusive palliative care for LGBTIQ+ people. Palliative Care week 2021 was a time to reflect and learn more about what palliative care is and why it is important. LGBTIQ+ Health Australia will be shared tips for health professionals that lead to more inclusive palliative care for LGBTIQ+ people.

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The Community Palliative Care Resources Box is a free package that supports quality and timely palliative care for home-based patients.

Health professionals can use the resources to teach families and carers to help manage practical care and symptoms (including safely managing subcutaneous medicines) at home

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PEPA Aged Care Placement Course (LMS shortcut)

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PEPA Aged Care Placement Course (LMS shortcut)

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Click here to return to your LMS course at any time to review your learning and complete activites.

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Syringe drivers are small, battery-operated devices that deliver a continuous flow of medication under the skin. They are commonly used in palliative care to manage pain, nausea, agitation, and other symptoms when oral medication is no longer an option.

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Syringe drivers are small, battery-operated devices that deliver a continuous flow of medication under the skin. They are commonly used in palliative care to manage pain, nausea, agitation, and other symptoms when oral medication is no longer an option. By ensuring correct use and monitoring, you can help maintain comfort and dignity for people nearing the end of life.

People may not always mention if there is a problem with their syringe driver, so look for signs such as:

Redness, swelling, or leakage at the infusion site

Increased pain, nausea, or agitation despite medication

Device alarms or malfunctions.

A simple check-in can help ensure comfort. Try asking:

Is the medication helping with your symptoms?

Are you experiencing any discomfort or concerns?

Would you like me to check anything for you?

If you suspect a problem with a syringe driver:

Discuss concerns with the care team to determine next steps

Document issues in the person's care notes for continuity of care

Alert the GP or palliative care team, if needed, for assessment and adjustments.

Medication adjustments may not always be needed. Simple strategies might help, such as:

Checking the infusion site for irritation or discomfort and correct positioning of the device for uninterrupted delivery

Asking the person if they need an extra dose of PRN medication for symptom relief

Providing reassurance and comfort measures for emotional and physical wellbeing.

What I can learn

Complete the following learning modules on syringe drivers:

Read about Syringe drivers in palliative care by Marie Curie (UK).

What I can give

If a person, carer, or family needs information on syringe drivers, these resources may help:

What I can suggest

Raise awareness within your care team that syringe drivers are commonly used in palliative care to manage symptoms when oral medications are not an option.

Advocate for clear guidelines and staff education on syringe driver use, ensuring all team members are confident in setup, monitoring, removal, cleaning, and troubleshooting.

Recommend regular reviews of syringe driver use in aged care, ensuring adherence to best practice and identifying areas for improvement. This includes:

Adhering to regular cleaning and maintenance of the device as per the manufacturer's instructions

Following the organisation's policy and procedures around their use

Providing home-based carers with guidance and support on managing syringe drivers and who to contact if issues arise.

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Syringe drivers provide continuous symptom relief in palliative care when oral medications are not suitable. Monitoring use helps ensure comfort, safety, and dignity at the end of life.

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De-scalation in emergency behavioral responses

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De-scalation in emergency behavioral responses

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Dementia Practice Webinar Series - De-escalation of severe responsive behaviours

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Dementia Practice Webinar Series - De-escalation of severe responsive behaviours

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This learning package aims to enable health professionals to develop the skills and knowledge required to safely set up, commence, and provide the necessary documentation for the NIKI T34™, T34™, and BodyGuard™ T syringe pump, and ultimately demonstrate competency in their use.

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NIKI T34, T34 and BodyGuard T syringe pumps

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This learning package has been developed for health professionals to develop skills and knowledge and ultimately demonstrate competency in safely setting up, commencing and providing necessary documentation for the NIKI T34TM, T34TM and BodyGuardTM T syringe pump.

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Meaningful Aging Australia is the peak body for spiritual care.

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National Guidelines for Spiritual Care in Aged Care documents - Meaningful Ageing Australia

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Meaningful Ageing Australia is pleased to announce the release of the National Guidelines for Spiritual Care in Aged Care. The Guidelines are based on the principles of a whole-of-organisation approach, valuing relational care, affirming that spiritual care is everyone's business, and that spiritual care is about growth and flourishing. The Guidelines put forward five domains of spiritual care, with ten outcomes under each domain:
1. Organisational leadership and alignment
2. Relationships and connectedness
3. Identifying and meeting spiritual needs
4. Ethical context of spiritual care
5. Enabling spiritual expression

Below are the documents that were created as part of the National Guidelines for Spiritual Care in Aged Care project. You are free to download, use and share these documents as needed. Meaningful Ageing Australia offers a support and education service to members who would like assistance with implementation. Contact our office for more information: admin@meaningfulage.org.au or (03) 8387 2274. Our membership application form is here.

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National Guidelines for Spiritual Care in Aged Care documents - Meaningful Ageing Australia

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Meaningful Ageing Australia is pleased to announce the release of the National Guidelines for Spiritual Care in Aged Care. The Guidelines are based on the principles of a whole-of-organisation approach, valuing relational care, affirming that spiritual care is everyone's business, and that spiritual care is about growth and flourishing.

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Dr Kathryn Mannix - the process of dying

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Residential Aged Care - End of Life Care Pathway 

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Residential Aged Care - End of Life Care Pathway 

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QLD residential end of life care pathway - a template 'end of life careplan' for use in residential aged care

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Video demonstrating bed bathing for someone who is confined to bed.

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Dermalux Soft Towel Lotion - Bed Bath System

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Communication strategies when caring for someone living with dementia.

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It's a basic human need to be able to express yourself and be understood by other people.

But for people with dementia, communication can become harder. They might:

have trouble finding words, or say a related one instead of the one they mean

speak fluently but not make sense

have difficulty expressing their emotions

find reading and writing harder

ignore conversations or respond inappropriately

get frustrated with themselves and the people around them.

If someone you care about who lives with dementia is struggling with their communication, encourage them to seek professional support early. This includes having their hearing and sight checked, and possibly getting support from a speech therapist.

These are some tips and strategies to help you talk and connect with someone with dementia.

Tips for talking

A caring and positive attitude when speaking to a person with dementia can make a big difference. They may not always understand what is being said, but we still show our feelings through our body language, tone and actions.

Here are some ways you can help support your friend or family member when you're talking with them.

Showing respect and understanding

Include the person in conversations. Speak directly to them, not just to the people around them.

Don't assume what they can or can't understand.

Use their name when you're talking to them.

Be interested and ask questions.

Actively listen to what they're saying. Put down your phone and try to ignore your mental to-do list.

Provide validation by accepting what they say. For example, if they think their kids are coming home from school, respond to their statement without contradicting them.

Speaking

Speak calmly and clearly.

Use short sentences and share one idea at a time.

Allow time for the person to understand and respond.

Use names and relationships.

Draw simple pictures if you're explaining something.

Ask simple, direct questions. Try yes/no questions, or offer just a few choices.

Using body language

Creating the right environment

Things to avoid

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Tips and strategies to help you communicate with someone with dementia.

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Power of music - creating meaning and connectedness - Spiritual Care

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Bailarina con Alzheimer baila El Lago de los Cisnes - Música para Despertar

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Promoting a safe workplace - encouraging self-care at work

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Promoting a safe workplace - encouraging self-care at work

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During your workday, implement 60-second stress busters - a poster for display

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Swinburne Wellbeing Clinic for Older Adults

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Swinburne Wellbeing Clinic for Older Adults

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Face to Face Counselling or TELEHEALTH Australia Wide

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The Wellbeing Clinic for Older Adults provides face-to-face counselling to older adults living in residential aged care settings in Melbourne, Victoria and when possible, in other parts of Australia.

A major focus of counselling involves finding creative ways to engage with older adults, their families and aged care staff to help them cope with life transitions, loss, grief, physical health problems and mental health difficulties.

About our face-to-face counselling service

Counselling sessions are held face-to-face with the client on site at residential aged care facilities. Our counsellors are provisionally registered psychologists, social work interns and postgraduate counselling students, who are supervised by experienced practitioners.

They are available to provide you emotional support, listen attentively to the issues you are facing and assist you to address problems, worries or stress. Our counsellors can meet with you regularly to support you over the next few months.

Our counselling approach

Normative

We assume that many of the issues and problems faced by residential aged care clients arise due to changes in life circumstances, family relationships and living arrangement. Such issues do not necessarily indicate mental illnesses or cognitive deterioration.

Systemic

We assume that counselling is effective when it involves the client's system; we try to involve family and staff in supporting interventions for aged care residents. This approach emphasises the importance of a strong therapeutic relationship between the counsellor and client, with the involvement of family members, carers and facility staff.

Our range of interventions

Cognitive-behavioural therapy

This therapy is an exploration of clients' beliefs, behaviours and situations. It encourages clients to consider different ways of thinking and behaving in order to improve outcomes.

It also helps clients actively seek solutions to current problems and explores activities that are enjoyable and meaningful for the person as a way to address isolation, lethargy, loneliness and depressive symptoms.

Reminiscence and narrative therapies

These therapies involve discussions about the past in order to help clients remember important memories, reach an understanding about past events and clarify values. These therapies can culminate in a digital story or life book to highlight key autobiographical aspects of the client's life.

Supportive therapy

This therapy involves validation and rich listening techniques to help clients feel understood and appreciated. It appreciates the uniqueness of client's identity and life and can empower clients to reflect more deeply about their life, to claim more agency and control in their lives, and to arrive and unique insights about ways to address current problems.

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The Wellbeing Clinic for Older Adults provides face-to-face counselling to older adults living in residential aged care settings in Melbourne, Victoria and when possible, in other parts of Australia. A major focus of counselling involves finding creative ways to engage with older adults, their families and aged care staff to help them cope with life transitions, loss, grief, physical health problems and mental health difficulties.

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Strengthened Quality Standards | Aged Care Quality and Safety Commission

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The Stronger Standards, Better Aged Care Program looks ahead to the forthcoming strengthened Aged Care Quality Standards.

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Watch the video below independently and then answer the questions in your breakout group.

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Introduction to Spiritual Care in Aged Care & the National Guidelines

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Core modules on palliative and end of life law for health care professionals and different care settings.

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This training program for medical practitioners and students, nurses and allied and other health professionals focuses on the law relating to end of life decision-making. There are 13 modules:

The role of law in end of life care

Capacity and consent to medical treatment

Withholding and withdrawing life-sustaining treatment

Advance Care Planning and Advance Care Directives

Substitute decision-making for medical treatment

Legal protection for administering pain and symptom relief

Children and end of life decision-making

Futile or non-beneficial treatment

Emergency treatment for adults

Managing conflict

Voluntary assisted dying

Aboriginal and/or Torres Strait Islander peoples and end of life law

Inclusive end of life decision-making for diverse populations

To begin, please select your discipline from the courses below, and enrol in that course. If you are not a medical practitioner, medical student, nurse or allied health professional we recommend you select the Medical practitioners and students course. Please note you only need to complete one of these courses to complete the End of Life Law for Clinicians training.

To access modules relevant to your discipline, select from the options below.

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This training program for medical practitioners and students, nurses and allied and other health professionals focuses on the law relating to end of life decision-making.

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Silver Rainbow - Ageing & Aged Care Training

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Welcome to LGBTIQ+ Health Australia's e-learning site.

We currently have four categories of courses available.

Silver Rainbow - For ageing and aged care worker.

MindOut - For mental health and suicide prevention workers.

Qlife - Training for Qlife peers and partners only.
LGBTIQ+ Inclusive Palliative Care
You can explore the introductory information about each course. You can currently self-enrol in Champions: Introduction to LGBTIQ+ Mental Health and Suicide Prevention by selecting the course and following the steps.

If you would like to access another one of these courses for yourself and/or a group of staff, please email education@lgbtiqhealth.org.au

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Welcome to LGBTIQ+ Health Australia's e-learning site. We currently have four categories of courses available. Silver Rainbow - For ageing and aged care worker. MindOut - For mental health and suicide prevention workers. Qlife - Training for Qlife peers and partners only. LGBTIQ+ Inclusive Palliative Care You can explore the introductory information about each course.

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PREPARED Mnemonic for Compassionate Conversations about the Last Days of Life

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PREPARED Mnemonic for Compassionate Conversations about the Last Days of Life

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A way to summarise the overall level of fitness or frailty of an older adult.

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The Clinical Frailty Scale (CFS) was introduced in the second clinical examination of the Canadian Study of Health and Aging (CSHA) as a way to summarize the overall level of fitness or frailty of an older adult after they had been evaluated by an experienced clinician (Rockwood et al., 2005).

Although introduced as a means of summarizing a multidimensional assessment in an epidemiological setting, the CFS quickly evolved for clinical use, and has been widely taken up as a judgement-based tool to screen for frailty and to broadly stratify degrees of fitness and frailty. It is not a questionnaire, but a way to summarize information from a clinical encounter with an older person, in a context in which it is useful to screen for and roughly quantify an individual's overall health status.

The highest grade of the CFS (level 7) as published in 2005, incorporated both severe frailty and terminal illness. Later, it became evident that we needed to distinguish between identifiable groups who were otherwise lumped together in the original scale - severely frail, very severely frail and terminally ill - as clinically distinct groups who required distinctive care plans. Therefore, in 2007 the CFS was expanded from a 7-point scale to the present 9-point scale, and it has been used extensively in that format. We published on the predictive validity of the 9-point CFS in 2020 (Pulok et al., 2020).

In 2020 the CFS was further revised (version 2.0) with minor clarifying edits to the level descriptions and their corresponding labels. Most notably, CFS level 2 changed from "Well" to "Fit", level 4 from "Vulnerable" to "Living with Very Mild Frailty", and levels 5-8 were restated as "Living with..." mild, moderate, severe, and very severe frailty, respectively (Rockwood & Theou, 2020).

Please refer to the CFS Guidance and Training section of this website for more information and resources about using the Clinical Frailty Scale. For novice CFS raters, we developed a classification tree to assist with CFS scoring.

References

Rockwood K, Song X, MacKnight C, Bergman H, Hogan DB, McDowell I, Mitnitski A. A global clinical measure of fitness and frailty in elderly people. CMAJ. 2005;173(5):489-495.

Pulok MH, Theou O, van der Valk AM, Rockwood K. The role of illness acuity on the association between frailty and mortality in emergency department patients referred to internal medicine. Age Ageing. 2020;49(6):1071-1079.

Rockwood K, Theou O. Using the Clinical Frailty Scale in Allocating Scarce Health Care Resources. Can Geriatr J. 2020:23(3):210-215.

Permission for Use

To guard against copyright infringement or unlicensed commercial use, we ask all potential users to complete a Permission for Use Agreement. Agreements are reviewed by the Industry Liaison Office at Dalhousie University to determine whether a license agreement is required. Requests for non-commercial educational, clinical and research use, as well as for reprint usually do not require a license agreement.

As a result of its worldwide uptake, the Clinical Frailty Scale is now available in a number of languages (see CFS Translations).

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The Clinical Frailty Scale (CFS) was introduced in the second clinical examination of the Canadian Study of Health and Aging (CSHA) as a way to summarize the overall level of fitness or frailty of an older adult after they had been evaluated by an experienced clinician (Rockwood et al., 2005).

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The Dying Process - Palliative Care Australia

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Promoting quality palliative care since 1991

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Discussing choices - Indigenous Advance Care Plans 

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Discussing choices - Indigenous Advance Care Plans 

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Discussing Choices - Indigenous Advance Care Plans - A Learning Resource.

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Discussing Choices - Indigenous Advance Care Plans - A Learning Resource

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The SPICT helps us to look for people who are less well with one or more health problems.

These people need more help and care now, and a plan for care in the future.

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An animation that describes how we can build connection through empathy.

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Grief Literacy Resources - showing up for grief 

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Grief Literacy Resources - showing up for grief 

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‘Showing up for Grief’ is a 3-hour education and learning workshop for community members, and it encourages and promotes a compassionate response to loss based on the best evidence.

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Showing up for grief program — Death Literacy Institute

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‘Showing up for Grief’ is a 3-hour education and learning workshop for community members, and it encourages and promotes a compassionate response to loss based on the best evidence.

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Prompts for End-of-Life Planning (PELP) Framework

The PELP Framework provides health professionals with a guide of planning prompts to support high-quality end-of-life care across all care settings.

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The Prompts for End-of-Life Planning (PELP) Framework guides proactive, quality end-of-life care across all care settings.

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Who can complete an Advance Care Directive?

What should I do if a family tries to override an Advance Care Directive?

Want to know the answer to these questions and more? Watch this short video by ELLC on 7 common questions about Advance Care Directives in Aged Care.

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End of Life Law - Advance Care Directives

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An Advance Care Directive can be a useful tool for people to communicate instructions about future health care decisions. The factsheet in this section explains the law on Advance Care Directives.

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This factsheet explains the law on substitute decision-making.

This is a crucial concept to grasp for those working in Aged Care. As a person ages, they may lose their ability to make decisions about health care or medical treatment. When this happens, these decisions will need to be made by someone else. That person is commonly referred to as a substitute decision-maker.

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A succinct factsheet covering 10 critical laws that govern clinical practice and decision making in Aged Care.

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ELLC-Top 10 End of Life Laws in Aged Care_final

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Phrasing suggestions and considerations from renowned palliative care Physician, Dr Kathryn Mannix.

This PDF is a direct extract from her book: "Listen. How to find the words for tender conversations.". Harper Collins, 2021 . https://www.kathrynmannix.com/books/listen/#

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This booklet has been developed for aged care staff who are caring for lesbian, gay, bisexual, transgender and intersex (LGBTI) people. It aims to provide an understanding of some of the issues LGBTI people may have faced at different times in their lives and how this may impact on changes in behaviour if the person develops dementia.

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Providing Grief and Bereavement Support in Aged Care ELDAC Webinar

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Providing Grief and Bereavement Support in Aged Care ELDAC Webinar

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This expert-led webinar will provide individuals working in aged care with an overview of how to support people experiencing grief and bereavement.

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ELDAC Webinar - Providing Grief and Bereavement Support in Aged Care

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Providing grief and bereavement support that aligns with the spiritual, cultural, and psychosocial needs of older people, as outlined in the Strengthened Aged Care Quality Standards, is essential. 

This expert-led webinar will provide individuals working in aged care with an overview of how to support people experiencing grief and bereavement.

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My Health Record - Uploading an Advance Care Plan

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My Health Record - Uploading an Advance Care Plan

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Make your wishes known when you cannot speak for yourself: upload your advance care planning documents to your My Health Record.

By adding an advance care planning document to your record, your wishes can be safely and securely accessed if they were ever needed in a medical emergency.

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Learn about how to add an advance care planning document to your record as well as information about goals of care.

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Tip 1: If you cannot see the "create account" screen text fully on your mobile phone - tip your screen horizontally (you may have to activate this in your mobile phone settings)

Tip 2: Use your email as your username and write down your password

Tip 3: Check the spam or junk folder for the email to confirm your account

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Once your account is created open pepaeducation.com Log into (ONLINE LEARNING in the top right hand corner of the screen) your PEPA account and navigate to PEPA on the dashboard (main screen)

Open PEPA aged care placements (green tile under Western Australia)

Self enrol using this enrolment key

Enrolment key #ENROLAC-2025

Complete registration form and PRE Placement survey at step 2

Your done !!!!

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The Unspoken Impacts Of Dementia

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Workforce wellbeing refers to the physical, social, and psychological health of employees, shaped by their work environment, tasks, and time spent at work.

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Workforce wellbeing in aged care is crucial for reducing burnout and promoting job satisfaction. Supportive practices focus on recognition, training, and a positive work environment.

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Palliative Care in the Terminal Stage of Dementia

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Palliative Care in the Terminal Stage of Dementia

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Resource for families and friends on grief after the death of a loved one with dementia

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Losing someone you love to dementia is heartbreaking, but there is support for you and your grief.

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Each Tipsheet highlights a key care issue and offers practical information to support good care. By recognising needs early and understanding what to do, nurses can help maintain an older person’s comfort, dignity, and quality of life.

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You can ask for what you need from aged care services

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You can ask for what you need from aged care services

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You can ask for what you need from Aged Care Services | English

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Education on implementing the PA-COP tools for nurses and clinical managers

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PACOP Fundamentals | University of Wollongong - Australia

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Are you passionate about improving palliative and end of life care for residents and their families/carers - than this course is for you!

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ELDAC (End of Life Directions for Aged Care) provides information, guidance, and resources for all aged care staff to support palliative care and advance care planning.

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End of Life Direction for Aged Care - ELDAC

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ELDAC provides information, guidance, and resources to health professionals and aged care workers to support palliative care and advance care planning to improve the care of older Australians.

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Each Tip Sheet highlights a different care issue and provides information to support the provision and improvement of care. Through recognition of needs and awareness of what might be done, care providers can actively support the older person’s quality of life and sense of dignity.

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It’s all too easy to be extremely tough on ourselves; we need to get better at self-compassion. This is an exercise from The School of Life on offering compassion to ourselves.

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Are you an educator looking to spread and scale your palliative care learnings?

Check out the Educator Hub for a suite of resources to support your learning and teaching practice in palliative care

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The PCC4U Project Team hosts interactive webinars to provide opportunities for Educators who are implementing PCC4U learning resources, to network, share information, participate in a variety of learning and teaching strategies, and hear others talk about their implementation experience.

This online module aims to support educators who are teaching palliative care to understand the range of PCC4U learning and teaching resources that are available and how they can be used; and g ain awareness of learning and teaching strategies to support palliative care education.

This simulation guide is based on teachings of simulation experts from around the world and is designed for both novice simulation facilitators who see the potential for simulation in their learning space, through to facilitators who want to ensure that they are using safe simulation practices.

On completion of this eLearning guide you will be able to:

Identify key concepts essential for developing simulation scenarios

Describe and apply elements necessary for the safe delivery of simulation

Identify elements essential for effective debriefing.

Resources for Educators on using the PCC4U Enrolled Nurse Toolkit (Version 2 & 3)

Resources for Educators on using the PCC4U Care Worker Toolkit.

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collaborative home: educator community hub

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The PCC4U Project Team hosts interactive webinars to provide opportunities for Educators who are implementing PCC4U learning resources, to network, share information, participate in a variety of learning and teaching strategies, and hear others talk about their implementation experience.

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A project available in South Australia to support people living with dementia offering palliative approach to care

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The Nightingale Program is a palliative model of care, provided by specialist nurses and an Occupational Therapist throughout South Australia for advanced dementia care.

It's available free of charge and provides strategies and advice to support people living with advanced dementia, their families and care providers, with a focus on promoting choice, well-being and forward planning.

The program supports people living at home, in residential aged care and community settings.

How we help
Offering a specialist nurse as the single point of contact, we can develop care strategies to enable people living with dementia to:

Stay at home longer and maximise their independence.

Promote quality of life and positive relationships.

Have a voice in their future care options and decision making.

Avoid unnecessary presentations to acute hospital settings.

Have clinical advice including co-morbidity management, pain management, delirium and palliation.

This service is funded by  The Rosemary Foundation for Memory Support  and  Country SA PHN.
Download the Nightingale Program brochure
How to access the Nightingale Program

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Dementia-specific palliative care support The Nightingale Program is a palliative model of care, provided by specialist nurses and an Occupational Therapist throughout South Australia for advanced dementia care. It's available free of charge and provides strategies and advice to support people living with advanced dementia, their families and care providers, with a focus on promoting choice, well-being and forward planning.

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The Abbey Pain Scale is used to detect pain in elderly residents with dementia and an inability to communicate verbally. It is a 6-item, 3-point scale tool.

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The caring@home Indigenous app supports health professionals providing home-based palliative care to Aboriginal and Torres Strait Islander peoples.

The app can be used offline in more rural and remote areas once you’ve downloaded any resources you want to use.

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Residential Aged Care -  Medical Goals of Care (Vic template)

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Residential Aged Care -  Medical Goals of Care (Vic template)

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The Residential Aged Care Goals of Care (Medical Treatment Orders) document is a Medical Treatment Plan.

It is completed by a Doctor. In the community, this might be a General Practitioner or a visiting Medical Specialist from a treating hospital or community program.

The RACF Goals of Care form can be a way to bring together the Advance Care Planning with the information that is now available about the Resident’s health condition.