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John's Campaign

John's Campaign is a campaign that aims to remove restrictions on family carers supporting relatives with dementia in hospitals. The campaign's main message is that family carers should be able to be with the people they care for, and that their knowledge and love should not be disconnected.

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The Lister Hospital (part of East and North Hertfordshire NHS Trust) offers Carer Passports, as do many other welcoming hospitals and trusts

Find your hospital or home's pledge to support John's Campaign on our Participants page.
We know that families come in all varieties. They're not always genetically related and sometimes it is a close friend who matters most. We believe that individuals are their own best judges who is essential for their emotional or practical well-being. We think that, wherever possible, they should be asked and their wishes respected.

Legally carers are people who provide personal care, support and assistance to another individual who is in need of support due to disability, medical condition, including terminal or chronic illness, mental illness or is frail and aged.

Our campaign can apply to anyone with a special need and is therefore in line with Equality legislation as well as human-kindness and common sense.

We believe that carers should not just be 'allowed' but should be welcomed. They are the experts in the person for whom they care and best outcomes are likely when they work in partnership with the medical or social professionals. Often they have legal duties such as power of attorney or court of protections deputy. They can observe and advocate: communicate, remember, explain and reassure.

However family carers often have other responsibilities. They have a right but not a duty to continue to care.

John's Campaign applies to all hospital settings (acute, community, mental health). We have come to realise that its principles must extend to all other caring institutions where people are living away from those closest to them.

Over 1500 institutions have pledged support in the time since the campaign was founded in November 2014 by Nicci Gerrard and Julia Jones.

The current coronavirus pandemic has tested their commitment beyond anything they or we could ever have imagined. Thank you to all who still honour your Carers Welcome pledge.

John's Campaign is not a tick box exercise: it's an attitude of mind which respects the rights and choices of the person who needs care and values the essential input of the informal carer (or family member) as well as the expertise of the professional. Everyone has a part to play in this.

The campaign's name honours Dr John Gerrard, who was a doctor and a business man, and diagnosed with Alzheimers in his mid seventies. It was a slow decline, that sped up when he was ill or upset, for ten years. Then, at the start of February 2014, he went into hospital. He had infected leg ulcers which weren't responding to antibiotics. The hospital had a norovirus outbreak which meant visitors weren't allowed at all. He was there for five weeks.

John went in strong, mobile, smiling, able to tell stories about his past, to work in his garden and help with things round the house. He was able to feed himself, to keep clean, to have a good kind of daily life. He came out skeletal, immobile, incoherent, requiring 24-hour care and barely knowing those around him.

His family are sure that if he had not spent that time alone, without them, he would not have descended into such a state of deep delirium. Having someone with you - someone who you love, who you know, whose face you know (be they your carer, your family, your friend, your lover) - helps keep you tied to reality, to life, to sanity.

John died in November 2014. His story, however, is still repeated. Far too many people die cut off from the people who care for them. Far too many places have dangerously over-restrictive policies (both predating and during the present pandemic) preventing people from being with people who need them.

In the wake of his death, John's daughter, Nicci Gerrard, cofounded John's Campaign with Julia Jones, whose mother, June, also lived well with dementia (both Alzheimer's and vascular) for many years before her death in 2018. John's Campaign is June's Campaign, is Everyone's Campaign, for none of us should be blocked from our best, most special friends, family or carers.

John's Campaign tries to give people a voice - to share information, experiences or enthusiasm. Our blog page is at the heart of this though you will also find personal experience on the experiences page and plenty of information via articles and resources. We have a public Facebook page and a care home and support group for care home managers as well as relatives. Interacting on Twitter is also very important to us. Blog posts are shared via Twitter and Facebook. If you have something you'd like to write about please contact julia@johnscampaign.org.uk.

The posts include the 'Why I Love My Job' series, which celebrates working in health and social care So far this series has featured activity facilitators, carers (both family and professional), carers liaison officers, chefs, directors, managers and nurses. Use this to share your personal enthusiasm for your work, whether paid or voluntary.

My Visiting Plan, a form through which patients with dementia (with assistance of family/carers as necessary) can express their wishes regarding visitors: Who do you want to visit, who don't you want to visit, when do you want them to visit and when do you want to rest?

Along the way, we've built up a collection of resources. These are shared on this site for assistance and inspiration, and are of a number of types: banners; carer awareness training, badges, charters, definitions, handbooks, information, passports; evaluations; family rooms; recliners; support packs; welcome posters...

Everything we host here can be used by you, but please give acknowledgement where appropriate.

Over 1500 hospitals and homes (and some others, such as ambulance trusts, clinical commissioning participants, domiciliary care companies, hospices and primary care providers) have pledged to support our principles of inclusion. We believe that people, particularly those with dementia, other mental illnesses, or otherwise in need of care, should not be separated from those important to them by protocols and systems that are harmful and wrong.

Many other influental individuals and organisations have expressed their support and partnered with us, a list of some of them is shown on our Partners page.

We are unrepayably indebted to all those who have helped us and carried the torch of change, of civil liberties, of common sense, of human rights.

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Find your hospital or home's pledge to support John's Campaign on our Participants page. We know that families come in all varieties. They're not always genetically related and sometimes it is a close friend who matters most. We believe that individuals are their own best judges who is essential for their emotional or practical well-being.

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The purpose and outcomes of the Dementia Hospital Charter is to improve the experience of people living with Dementia who are admitted to hospital.

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Dementia & Meaningful Engagement Summer Theme Pack

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Dementia Friendly Gwent Padlet Link

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Dementia clinics - In partnership with Nationwide Fairer Futures

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Dementia clinics - In partnership with Nationwide Fairer Futures

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Tuesday 10th – Thursday 12th February 2026.

The link below is to the Dementia UK website and contains further details about the service and to book an appointment.

In partnership with Nationwide Building Society - Dementia UK

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Following a successful pilot in 2025, we are pleased to share we will be delivering a further 3 Experiential sessions throughout 2026.

Places are limited, please send all requests to abb.pcctdementia@wales.nhs.uk

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Befrienders

End of Life Companions

Dementia Companions

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Listen to the Trailer Here 👇

Spotify - Dementia Friendly | Podcast on Spotify

YouTube - Dementia Care in Gwent Trailer

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We are delighted to announce that the Dementia Bitesize Video Library is now live!

This resource provides recordings of our Dementia Bitesize sessions, making it easier for staff who are unable to attend the weekly interactive sessions to stay informed and up to date.

How to Access:

Visit Bitesize Video Library .

You can also access the Videos by visiting the Dementia Pulse page, the videos are stored under ‘Good Work Learning and Development’ tab.

Browse the available sessions and watch at your convenience.

These videos are designed to support your learning and enhance dementia care practices across our services.

If you have any questions or need assistance, please contact abb.pcctdementia@wales.nhs.uk.

Thank you for your continued commitment to improving dementia care.

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An Alzheimer’s Society

guide to talking about

dementia

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Cwtsh is the name we use for the Integrated Wellbeing Networks in the Caerphilly County Borough area.

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Being creative is vital to our wellbeing and, indeed, health.

CWTSH is a creative wellbeing network comprising partners based primarily by partners in the Caerphilly County Borough area and supported financially and logistically by Caerphilly CBC Arts Development, Aneurin Bevan Integrated Wellbeing Networks (Caerphilly), Head 4 Arts and Fusion. We have also just received financial support from the Arts Council of Wales.

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Our aim is to develop and support creative activities that sustain and enhance wellbeing in our communities, working with our communities.

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CWTSH Lockdown Programme 2021

During the autumn 2020, Cwtsh partners ran out a very successful series of online events and activities to support wellbeing in our communities through our Cwtsh Festival to coincide with and support World Mental Health Day.

We then did so again during the Late 2020 October/November lockdown, which again proved successful.

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Unfortunately, we once again find ourselves in a lockdown situation as we enter 2021. To support wellbeing in our communities, we have again come together to put a series of regular events and activities.

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BOOK FOR FREE!

The latest timetable is below. and you can book for free at our Facebook sit
www.facebook.com/cwtshcymru

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Being creative is vital to our wellbeing and, indeed, health. CWTSH is a creative wellbeing network comprising partners based primarily by partners in the Caerphilly County Borough area and supported financially and logistically by Caerphilly CBC Arts Development, Aneurin Bevan Integrated Wellbeing Networks (Caerphilly), Head 4 Arts and Fusion.

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Monmouthshire - Support that's local to you

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Monmouthshire - Support that's local to you

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Support that’s local to you - Monmouthshire

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Support that is local to you in monmouthshire

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Connecting you to the assets in your community.

Supporting you, your neighbours and community to keep well, stay active and connect with others.

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Your Newport - Your Newport, Your Wellbeing

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Find support, services and activities to enhance your health and wellbeing and connect you to your local community assets.

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Connecting you to your community.

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Connect Torfaen - Connecting you to your community.

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The community platform where you can meet friends, make connections and share information.

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Blaenau Gwent In this Together - Wellbeing Services

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Blaenau Gwent In this Together - Wellbeing Services

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Please email info@bginthistogether.co.uk

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Accessibility Statement

bginthistogether.co.uk

30 November 2023

Compliance status

We firmly believe that the internet should be available and accessible to anyone, and are committed to providing a website that is accessible to the widest possible audience, regardless of circumstance and ability.

To fulfill this, we aim to adhere as strictly as possible to the World Wide Web Consortium's (W3C) Web Content Accessibility Guidelines 2.1 (WCAG 2.1) at the AA level. These guidelines explain how to make web content accessible to people with a wide array of disabilities. Complying with those guidelines helps us ensure that the website is accessible to all people: blind people, people with motor impairments, visual impairment, cognitive disabilities, and more.

This website utilizes various technologies that are meant to make it as accessible as possible at all times. We utilize an accessibility interface that allows persons with specific disabilities to adjust the website's UI (user interface) and design it to their personal needs.

Additionally, the website utilizes an AI-based application that runs in the background and optimizes its accessibility level constantly. This application remediates the website's HTML, adapts Its functionality and behavior for screen-readers used by the blind users, and for keyboard functions used by individuals with motor impairments.

If you've found a malfunction or have ideas for improvement, we'll be happy to hear from you. You can reach out to the website's operators by using the following email

Screen-reader and keyboard navigation

Our website implements the ARIA attributes (Accessible Rich Internet Applications) technique, alongside various different behavioral changes, to ensure blind users visiting with screen-readers are able to read, comprehend, and enjoy the website's functions. As soon as a user with a screen-reader enters your site, they immediately receive a prompt to enter the Screen-Reader Profile so they can browse and operate your site effectively. Here's how our website covers some of the most important screen-reader requirements, alongside console screenshots of code examples:

1. Screen-reader optimization: we run a background process that learns the website's components from top to bottom, to ensure ongoing compliance even when updating the website. In this process, we provide screen-readers with meaningful data using the ARIA set of attributes. For example, we provide accurate form labels; descriptions for actionable icons (social media icons, search icons, cart icons, etc.); validation guidance for form inputs; element roles such as buttons, menus, modal dialogues (popups), and others. Additionally, the background process scans all of the website's images and provides an accurate and meaningful image-object-recognition-based description as an ALT (alternate text) tag for images that are not described. It will also extract texts that are embedded within the image, using an OCR (optical character recognition) technology. To turn on screen-reader adjustments at any time, users need only to press the Alt+1 keyboard combination. Screen-reader users also get automatic announcements to turn the Screen-reader mode on as soon as they enter the website.

These adjustments are compatible with all popular screen readers, including JAWS and NVDA.

2. Keyboard navigation optimization: The background process also adjusts the website's HTML, and adds various behaviors using JavaScript code to make the website operable by the keyboard. This includes the ability to navigate the website using the Tab and Shift+Tab keys, operate dropdowns with the arrow keys, close them with Esc, trigger buttons and links using the Enter key, navigate between radio and checkbox elements using the arrow keys, and fill them in with the Spacebar or Enter key.Additionally, keyboard users will find quick-navigation and content-skip menus, available at any time by clicking Alt+1, or as the first elements of the site while navigating with the keyboard. The background process also handles triggered popups by moving the keyboard focus towards them as soon as they appear, and not allow the focus drift outside of it.

Users can also use shortcuts such as "M" (menus), "H" (headings), "F" (forms), "B" (buttons), and "G" (graphics) to jump to specific elements.

Disability profiles supported in our website

Epilepsy Safe Mode: this profile enables people with epilepsy to use the website safely by eliminating the risk of seizures that result from flashing or blinking animations and risky color combinations.

Visually Impaired Mode: this mode adjusts the website for the convenience of users with visual impairments such as Degrading Eyesight, Tunnel Vision, Cataract, Glaucoma, and others.

Cognitive Disability Mode: this mode provides different assistive options to help users with cognitive impairments such as Dyslexia, Autism, CVA, and others, to focus on the essential elements of the website more easily.

ADHD Friendly Mode: this mode helps users with ADHD and Neurodevelopmental disorders to read, browse, and focus on the main website elements more easily while significantly reducing distractions.

Blindness Mode: this mode configures the website to be compatible with screen-readers such as JAWS, NVDA, VoiceOver, and TalkBack. A screen-reader is software for blind users that is installed on a computer and smartphone, and websites must be compatible with it.

Keyboard Navigation Profile (Motor-Impaired): this profile enables motor-impaired persons to operate the website using the keyboard Tab, Shift+Tab, and the Enter keys. Users can also use shortcuts such as "M" (menus), "H" (headings), "F" (forms), "B" (buttons), and "G" (graphics) to jump to specific elements.

Additional UI, design, and readability adjustments

1. Font adjustments - users, can increase and decrease its size, change its family (type), adjust the spacing, alignment, line height, and more.

2. Color adjustments - users can select various color contrast profiles such as light, dark, inverted, and monochrome. Additionally, users can swap color schemes of titles, texts, and backgrounds, with over 7 different coloring options.

3. Animations - epileptic users can stop all running animations with the click of a button. Animations controlled by the interface include videos, GIFs, and CSS flashing transitions.

4. Content highlighting - users can choose to emphasize important elements such as links and titles. They can also choose to highlight focused or hovered elements only.

5. Audio muting - users with hearing devices may experience headaches or other issues due to automatic audio playing. This option lets users mute the entire website instantly.

6. Cognitive disorders - we utilize a search engine that is linked to Wikipedia and Wiktionary, allowing people with cognitive disorders to decipher meanings of phrases, initials, slang, and others.

7. Additional functions - we provide users the option to change cursor color and size, use a printing mode, enable a virtual keyboard, and many other functions.

Browser and assistive technology compatibility

We aim to support the widest array of browsers and assistive technologies as possible, so our users can choose the best fitting tools for them, with as few limitations as possible. Therefore, we have worked very hard to be able to support all major systems that comprise over 95% of the user market share including Google Chrome, Mozilla Firefox, Apple Safari, Opera and Microsoft Edge, JAWS and NVDA (screen readers), both for Windows and for MAC users.

Notes, comments, and feedback

Despite our very best efforts to allow anybody to adjust the website to their needs, there may still be pages or sections that are not fully accessible, are in the process of becoming accessible, or are lacking an adequate technological solution to make them accessible. Still, we are continually improving our accessibility, adding, updating and improving its options and features, and developing and adopting new technologies. All this is meant to reach the optimal level of accessibility, following technological advancements. For any assistance, please reach out to

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Blaenau Gwent In This Together - Wellbeing services in Blaenau Gwent

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BG In This Together is an interactive map for Blaenau Gwent that provides information on a range of wellbeing services and activities across the county.

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For the streaming option which is directly from our website the password is SingaSong (this is case sensitive). You can log into our website by clicking on the following link

Pre-recorded singing sessions - Forget-me-not Chorus (forgetmenotchorus.com)

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Dementia changes lives.
And so do charities like ours.

We’re Forget-me-not Chorus - a charity bringing the joy of singing to people living with dementia, and those who support them.

Our community: Supporting everyone living with dementia

Are you looking for a group to support you as you face the challenges of dementia? Join our community in person…
Or meet up with us online

Learn more

In care homes: Bring uplifting singing sessions into your care home

Our specially trained music leaders can make your care home come alive with song. Join a pre-recorded singing session, a zoom session or find out about a visit to your care home

Learn more

Supporting people with dementia through the power of song

For over 10 years, Forget-me-not Chorus has been organising joy-filled singing sessions for people with all forms of dementia, as well as the families, friends and professional staff looking after them. Today, over 1000 people – from millennials to centenarians – participate in our singing sessions every week, pan Wales and now further afield too.

Learn more

A welcome break from the daily routine

Dementia can be both isolating, debilitating, exhausting and stressful. Music – and especially singing – offers a respite from the relentless routine. Wherever we meet, whether you’re on Zoom or in the room, you’ll find joy, laughter & song.

So take a breath, and find your voice again!

More than a simple singalong

Led by a team of professional musicians, our sessions use music to communicate, to encourage engagement and interaction. It’s about more than simply singing old songs, or bringing back memories.

We regularly team-up with professional artists to create original works to share with the wider community, which foster a sense of worth and achievement.

So express yourself in song, and lift your spirits!

“FMNC has provided a place and time where we both can sing, laugh and interact with others in a safe and friendly environment. The sessions are led by people who show enthusiasm, warmth and joy in all that they do.”

Mark and Julie

Intergenerational Project

We are thrilled to have linked Llandough Primary School with Nazareth House Care Home, Cardiff and Machen Primary School with Cartref, Lakeside for a very special intergenerational project 'Across The Years'.

Over the past few months, primary school pupils and residents have been writing postcards to each other, and meeting on Zoom to sing songs of friendship with repertoire spanning 70 years of the Queen’s reign.

View Project

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Forget-me-not Chorus | Bringing the joy of singing to people living with dementia

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Forget-me-not Chorus is a charity that organises joy-filled singing sessions for people with dementia, as well as for families, friends and professional staff.

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'This is Me' document to capture important information about our patients - this information can be used to personalise engagement and tailor activities to likes and interests.

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Mental Capacity Act Information and Documents

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abb.mentalcapacityact.wales.nhs.uk

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Attached is a short animation that emphasises the significance of obtaining valid consent from our patients for any treatment, examination, or clinical procedure, in line with the All-Wales Consent to Examination and Treatment Improvement Programme.

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For more information about Intergenerational Partnerships please contact

abb.intergenerationalpractice@wales.nhs.uk

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Patient Experience and feedback (CIVICA)

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Patient Experience and feedback (CIVICA)

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Your Views are Important to Us - Aneurin Bevan University Health Board

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abb.grace@wales.nhs.uk

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ABB.PALS@wales.nhs.uk

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carershospitalhub@ageconnectstorfaen.org

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Dementia & Meaningful Engagement Winter Theme Pack

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If you have any questions or would like to express early interest, please don’t hesitate to get in touch abb.pcctdementia@wales.nhs.uk.

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Older Persons Nutrition -Lunch and Learn Sessions

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Older Persons Nutrition -Lunch and Learn Sessions

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Hayley.Lavery@wales.nhs.uk

01633 740144

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Food and Nutrition in Community & Care Settings

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Food and Nutrition in Community & Care Settings

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If you are interested in scheduling in-house training for staff, please get in touch with Hayley via email or telephone.

01633 740144

Hayley.Lavery@wales.nhs.uk

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Toolkit for Supporting Someone with Dementia 

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Toolkit for Supporting Someone with Dementia 

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A Toolkit for Supporting Someone with Dementia. This accredited course is available to anybody who would find it useful and will be delivered online to allow for flexible studying.

Dementia affects many families and after the initial diagnosis, families need to change their caring responsibilities. This short course works through the main issues encountered by many families with practical advice and an assessment that can be used with your loved one. This illness affects people differently and wading through mounds of information can be very demoralising. The course is delivered through mini presentations and the tasks can be worked through at your own pace. Learners will be guided by qualified professionals and learn from the stories of those who have been through the process.

The course fee is only £70 however we offer a Fee Waver Scheme that is currently available to individuals in Wales who would not otherwise have access to higher education including paid and unpaid carers.

For further information about the course and to book, go to: Current Courses  : Lifelong Learning , Aberystwyth University

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Welcome to the Memory Assessment Service webpage. We support adults living within the Aneurin Bevan Health Board area who are experiencing changes to their memory and a dementia or cognitive impairment is suspected. Diagnosing dementia accurately helps to ensure that people can access the treatment, support and advice they need to stay well and live independently for as long as possible. The service aims to provide:

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Scan to access meaningful resources

Wordsearches

Dot to Dot

Colouring pages

Special Events activities

Volunteering - Home

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Newport area Community Groups & support 

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Newport area Community Groups & support 

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For more information contact Newport Carers’ Forum

NCF.carersdropin@gmail.com or call 07395 007685

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If you would like a copy or require anymore information, please contact the MECS team by contacting

abb.oamhdementiaservices@wales.nhs.uk or telephoning 01495 768627

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gwentcarershub@adferiad.org

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enquiries@hospiceofthevalleys.com

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Carers short Break Project - Torfaen & Blaenau Gwent 

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Carers short Break Project - Torfaen & Blaenau Gwent 

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Achieve excellence in dementia care | Care Fit for VIPS

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dementiasupportgwent@alzheimers.org.uk

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Symbolised resources to support People living with Dementia and their families

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Dementia Friendly Project with Bob’s Brainwaves | Widgit

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Symbolised resources to support dementia patients and their families.

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Music for Joy - Dementia Friendly Music Therapy 

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Music for Joy - Dementia Friendly Music Therapy 

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https://www.facebook.com/musicforjoy

https://www.instagram.com/_musicforjoy/

www.musicforjoy.co.uk

https://www.ticketsource.co.uk/music-for-joy

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Here are some simple, failure free activity suggestions

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dementiasupportgwent@alzheimers.org.uk

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06.09.24 Final Draft ME poster with QR LOGO UPDATED correct welsh

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Focus on abilities (not under or over challenging).

Focus on ‘doing’ and enjoyment, and sense of ‘purposefulness’ not the product or outcome.

Links to the person (roles and interests/identity).

Ask family to bring in familiar/comfort objects.

Sensory - touch, taste, smell, feel, increases the stimulation and benefits of the activity.

Reminiscence-based activities and interactions are beneficial (link to personal history/interests).

Physical activity is evidenced as beneficial.

Music-based activities also evidenced as beneficial.

Social and intergenerational opportunities are important.

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Based on evidence and research, the Patient bedside boards, when completed with the required information, can improve the delivery of care, promote person centred care and improve patient and carer experience.

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Staff Briefing for Pen Holders and Pens  - PBB

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Meaningful Engagement Leaflet - English & Welsh Amended

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link to ABUHB Pulse Dementia page

Dementia

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Link to ABUHB Pulse Meaningful Engagement page

Meaningful Engagement and Activities

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Do you provide unpaid care and support? 

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Do you provide unpaid care and support? 

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For most of our roles, volunteers need to be 16 years or over. Some roles require volunteers to be 18 and over. You do not need any particular skills or experience. The most important qualities are kindness, compassion, a commitment to supporting people, families and staff, and generally a passion towards improving peoples wellbeing.

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abb.oamhdementiaservices@wales.nhs.uk

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Dementia & Meaningful Engagement Activity Pack - Winter Edition  ❄️

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Dementia & Meaningful Engagement Activity Pack - Winter Edition  ❄️

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We are delighted to announce the launch of our Dementia & Meaningful Engagement Activity Packs!

These resource packs have been developed to facilitate the delivery of meaningful engagement, ensuring accessibility across all areas.

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Integrated Wellbeing Networks improve and strengthen wellbeing by connecting and enhancing community assets for people to build relationships and find the things that matter to them.

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WHAT ARE INTEGRATED WELLBEING NETWORKS?​