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Indian Association of Muscular Dystrophy (IAMD) - Helping individuals defeat Muscular Dystrophy in India since 1992

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❝ The world of medical science has made a lot of progress with the help of research and innovation as well as state-of-the-art technology and equipment But some diseases, even today, remain a big challenge for us. The treatment and care of the patients with muscular dystrophy requires a great sense of service. Manav Mandir has become a new ray of hope for such patients.❞

Prime Minister Narendra Modi

('Mann Ki Baat' address, 27 November 2022)

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India's Best Treatment Center for "Muscular Dystrophy"

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IAMD is Helping Treatment For Muscular Dystrophy in India. 5,000+ Patients were Treated. via our activity, yoga, and therapies. India's Best "Muscular Dystrophy" Treatment Center in Solan,

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Indian Association of Muscular Dystrophy (IAMD) - Helping individuals defeat Muscular Dystrophy in India since 1992

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Muscular Dystrophy refers to progressive neuromuscular genetic disorders where the muscles gradually lose their strength leading to complete immobility and dependence on others for everyday activities. Muscular Dystrophy can occur at any age and can affect more than one sibling in a family.

In India, more than 4000 children are born with Muscular Dystrophy (MD) each year. There are primarily 9 types of Muscular Dystrophy with varying levels of progression and symptoms.

Get a diagnosis

Read more about how to recognise signs of Muscular Dystrophy, how to get a diagnosis and what is involved.

What is Muscular Dystrophy?

Read more about what Muscular Dystrophy is, types of Muscular Dystrophy and what kind of symptoms they present.

Current research and clinical trials

Read more about current research, types of therapies being explored and trialled

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Muscular Dystrophy - Indian Association of Muscular Dystrophy (IAMD)

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Muscular Dystrophy refers to progressive neuromuscular genetic disorders where the muscles gradually lose their strength leading to complete immobility and dependence on others for everyday activities. Muscular Dystrophy can occur at any age and can affect more than one sibling in a family. In India, more than 4000 children are born with Muscular Dystrophy (MD) each year.

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Indian Association of Muscular Dystrophy (IAMD) - Helping individuals defeat Muscular Dystrophy in India since 1992

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The quality of life for an individual affected by Muscular Dystrophy can be significantly improved with early recognition and diagnosis.

The first step is talking to your primary care doctor if you notice signs of muscle weakness - such as clumsiness or falling - in yourself or your child. Your doctor will start with a physical exam.

Have you noticed any of these symptoms?

The first step is to take note of symptoms in yourself or your child. Have you noticed:

Having difficulty climbing stairs?

Muscle pain?

Get easily tired?

Appear to have wasted/smaller/weaker muscles?

Trouble running or jumping?

Waddling gait? (If you are unsure what that is, watch this video)

Large calf muscles?

Muscles are pain and/or stiff?

Delayed physical growth? (compared to others of similar age)

Difficulty standing up from a sitting or lying position?

If you have noticed any of these symptoms in yourself or your child, please get in touch with IAMD on 01792-292037 / 92180 98999 or 92180 88880 (Mon ~ Sat 10:00 AM to 6:00 PM)

Muscular Dystrophy is a genetic condition usually (but not always) inherited from one or both parents. It can also skip family generations. Hence the doctor will ask you about your family history and if anyone was diagnosed with Muscular Dystrophy previous and the category.

You may also be required to undergo a number of tests such as:

Blood enzyme tests

Check for higher-than-normal creatine kinase (CK) levels, which may reveal inflammation or the death of muscle fibers. Creatine kinase is an enzyme that's released into the bloodstream when muscle fibers are deteriorating.

Electromyography

Test to measure electrical activity generated by muscle cells when they are activated by a nerve impulse. In people with Muscular Dystrophy, the muscles do not respond well to electrical stimulation.

Nerve conduction tests

Test to measure how well electrical impulses travel through a nerve. a slower electrical response can be a sign of Muscular Dystrophy

Neurological tests

Tests to measure reflexes and exercise assessment to evaluate the strength and respiratory function

Muscle biopsy

A small sample of muscle is removed for examination (under anesthesia). The sample is then inspected under a microscope and aids in determining the specific Muscular Dystrophy you or your child may have.In many cases the presenting symptoms, family history and muscle biopsy results can determine the specific Muscular Dystrophy.

Genetic (DNA) testing

This may be done alongside a muscle biopsy and aids in determining the specific mutation causing the Muscular Dystrophy. This is usually done by inspecting DNA from either from a Blood sample, cheek swab, skin biopsy or may be taken from the musle biopsy.

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Get a diagnosis - Indian Association of Muscular Dystrophy (IAMD)

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Do I or my child have Muscular Dystrophy? The quality of life for an individual affected by Muscular Dystrophy can be significantly improved with early recognition and diagnosis.

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Indian Association of Muscular Dystrophy (IAMD) - Helping individuals defeat Muscular Dystrophy in India since 1992

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The source of the muscle weakness within the body differs too. For example, Muscular Dystrophy is primarily a disease of muscle, often caused by the lack of an important structural protein and as a result, the muscles are fragile and easily damaged. In other types of Muscular Dystrophy such as Facioscapulohumeral Muscular Dystrophy (FSHD) the genetic change results in the production of a substance that is toxic to muscle.

For some other neuromuscular conditions the muscle weakness originates in the nerves that control the muscles. For example, amyotrophic lateral sclerosis (ALS) and spinal muscular atrophy (SMA) affect the motor neurons in the spinal cord. Others, such as Charcot-Marie-Tooth disease affect the peripheral nerves which carry signals from the spinal cord to the limbs. A structure called the 'neuromuscular junction' that connects the nerves to the muscles is affected in some conditions, for example myasthenia gravis.

Each neuromuscular condition causes a characteristic pattern of muscle weakness: it could be just the legs or the muscles around the eyes and throat. The most severe conditions affect all the muscles of the body, including the heart and the muscles used for breathing. In most cases intelligence is not affected. Some conditions such as myotonic dystrophy affect many parts of the body as well as the muscles. This results in very diverse care needs depending on the condition and the stage of progression. Often the management of symptoms is complex requiring input from a wide variety of health care professionals.

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What is Muscular Dystrophy? - Indian Association of Muscular Dystrophy (IAMD)

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What is Muscular Dystrophy? Muscular Dystrophy refers to a progressive neuromuscular genetic disorder where the muscles gradually lose their strength leading to complete immobility and dependence on others for everyday activities. At what age does Muscular Dystrophy occur? Muscular Dystrophy can occur at any age. Sometimes it affects more than one sibling in a family.