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pauline@paulinefindlay.com

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I've been recently diagnosed with Endometriosis and Adenomyosis, and for added spice a cyst on my left ovary.

I've had terrible period pain for most my adult life but since Covid it has increasing year-by-year gotten worse. In the last year it's been impossible to stay on top of my running. I lose a week to fatigue and pain.

Why did I create this Padlet page? I wanted somewhere I could store all my research in one place. And I also thought maybe it would be useful for other women in the future who find themselves like me searching for answers.

I'm based in Australia so most of my content will lean Australian but I will include content I find from other places. I've added NHS UK content and American.

I hope you find this page and it helps you in some small way on your health journey.

I'm not a medical practitioner, so please make sure you check with your health professional to answer any questions that you might have after you find this content.

I'm sharing my research in one place and making it public incase it can help other women.

If you have any great sources please let me know and I'll added them to the page.

Endo Warriors...May the force be with you on your journey back to great health and a pain free life.

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The one thing about endo that has made me really mad is that there is no acceptable level of pain. By that I mean, as women we have no idea what is the right level of pain and what's not. Rarely are we asked to rate our pain on a level of 1 to 10. Mostly we are told it's normal and take some pain relief.

What's not normal is sitting on the sofa or bed for a couple of days in so much pain you need a water bottle or hand warmers (yes they great for pain relief buy them at outdoor shops) or my little zapper as I call it to ease the pain. Works like a tens machine on your tummy.

None of this pain is normal or should be normalise. If you read this and are in pain for days, you may have something more than just period pain. Push for more examination into your pain.

I'm over 50 (that sounds old!) and have put up with pain most of my life. Heavy bleeding (little jelly fish) and fatigue that stops me each month for at a least three days or more.

Let's talk more about endo and adenomyosis and normalise it. We need to know it's not normal to be in this much pain. Tell everyone you know that the pain is not to be accepted. Get second or third opinions if you must but get out of pain. Life is too short!

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World Health Organisation on what endometriosis is...

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World Health Organisation on what endometriosis is...

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Endometriosis is a disease in which tissue similar to the lining of the uterus grows outside the uterus. It can cause severe pain in the pelvis and make it harder to get pregnant. Endometriosis can start at a person’s first menstrual period and last until menopause.

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I've found this website very helpful. Look at the resources pages. Also it was set up by someone who has been a specialist in endo for over 20 years.

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Endometriosis Australia is a nationally accredited charity that raises awareness, educates and funds research for endometriosis.

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I've found this website to be really useful.

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What is endometriosis? | Endometriosis UK

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Endometriosis can cause severe pain and is commonly linked with infertility. Learn more about the risk factors and symptoms, and how to treat endometriosis.

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Endometriosis occurs when tissue similar to that found in the lining of the uterus, known as the endometrium, grows outside the uterus.

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Everyone will have different symptoms at different times and not all the symptoms all of the time.

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Pelvis or lower abdomen pain is the most common characteristic of endometriosis, but some women may notice no symptoms at all. Learn the signs that indicate a need for diagnostic tests.

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March is Endometriosis awareness month. Endometriosis is the second most common gynaecological condition. It is estimated that around 1.5 - 2 million women in the UK have endometriosis.
It is a condition that occurs when the tissue that typically lines the inside of the uterus (known as the endometrium) grows outside of it, attaching to organs such as the ovaries, Fallopian tubes, and even the bladder or bowel. This tissue can thicken, break down and bleed, causing inflammation, scarring, and pain.
The most common symptom of endometriosis is pelvic pain that can be severe, sharp or dull, and may occur during menstruation, ovulation, or intercourse. Other symptoms can include fatigue, painful bowel movements or urination, bloating, and infertility.
Endometriosis can affect any woman of reproductive age, but some factors may increase the risk of developing the condition, including a family history of endometriosis, early onset of menstruation, frequent periods, and low body weight. Diagnosis and Treatment
Recent research shows that there is now an average of 7.5 years between women first seeing a doctor about their symptoms and receiving a firm diagnosis, as symptoms can be similar to other conditions. The best form of diagnosis is a laparoscopic surgery, where a small camera is inserted through a small incision in the abdomen to view and biopsy the endometrial tissue. Other methods of diagnosis include pelvic exams, ultrasounds, and MRI scans.
There is no cure for endometriosis, but several treatment options can help manage the symptoms such as: Surgery
Hormone treatment Pain management
Nutrition
Exercise Nutrition
Eating a nutrient-dense, well-balanced diet can help to ease the inflammation and pain caused by endometriosis. Foods rich in fibre such as fruits, vegetables, legumes, and whole grains.
Iron rich foods, such as dark leafy greens, broccoli, beans, fortified grains, nuts, and seeds.
Foods rich in essential fatty acids, like salmon, sardines, herring, trout, walnuts, chia, and flax seeds.
Antioxidant-rich foods such as oranges, berries, dark chocolate, spinach, and beetroot. Our Over The Moon Tea contains select herbs that have been used traditionally for millennia to soothe cramps, swollen tummies, bring calm and relaxation and support a regular cycle. Their natural benefits come with delicious flavours, to create a hug in a mug.We’ve selected whole leaves and flowers, to blend a soothing cuppa. With whole leaf raspberry leaf, chamomile flowers, ginkgo, spearmint, dandelion root and rose petals. Each targeted to support your body, and offer you support when you need it. Exercise
Exercise may help with the management of endometriosis, too. This is because exercise can reduce estrogen levels and release “feel-good” hormones.
In addition to conventional methods of treatment, relaxation techniques may be beneficial, such as: meditation
yoga
acupuncture
massage Endometriosis is a chronic and debilitating condition that affects millions of women worldwide. If you experience any symptoms of endometriosis, it is essential to speak with your GP to receive a proper diagnosis and treatment plan.
Endometriosis UK is a registered charity set up to support, offer advice and raise awareness and the impact of endometriosis on women’s lives. With the right treatment and support, it is possible to manage the symptoms of endometriosis and improve your quality of life. Teas to support your monthly cycle

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If you come across this Padlet page and want to add information to it for your location get in touch. pauline@paulinefindlay.com or DM me on instagram @paulinevfindlay

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Pelvic Health Physiotherapist - Who knew!

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Pelvic Health Physiotherapist - Who knew!

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I just like carrots!

I didn't even know this was a thing till I did some research and spoke to a friend. Go look up them in your location. They might be a great place to start if no one else is taking you seriously.

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Sharing our stories helps others find help.

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A young woman’s endometriosis story | Continence Health Australia (formerly the Continence Foundation of Australia)

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I am 27 years old and wanted to share my story in the hope that it would help others who are going through a similar experience.I was born in India and moved to Australia with my family when I was three. I have always had debilitating period pain. Mum always said that I needed to put up with it, as it had been the same for her. I could never use a tampon as it was too painful. When I was 15, I remember a GP suggesting I should go on the oral contraceptive pill, but Mum said I wasn’t sexually active, so I didn’t need contraception.

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Bending over like this for days is not normal ladies get help.

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Two types of problems can occur when endometriosis is present. These are:

​It is possible that you can have endometriosis and not have either of these problems. If endometriosis is present and it is not causing pain or problems with fertility, it does not need to be treated, though your doctor may recommend monitoring with clinical examinations (such as a pelvic examination when you have your routine Pap smear) or occasionally ultrasound and other tests if they are thought to be appropriate.

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Endometriosis Symptoms - Endometriosis Australia

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Endometriosis symptoms can cause fatigue, pain that stops you on or around your period, pain on or around ovulation, and more.

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London Pain Clinic

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5 Signs of Endometriosis a Woman Must Never Ignore

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Countless women suffer endometriosis symptoms for years, & sadly, they have no idea of the damage they inflicting on their health.

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Symptoms explained from British NHS. Also explains next steps.

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Endometriosis is a condition where tissue similar to the lining of the womb grows in other places, such as the ovaries and fallopian tubes.
Endometriosis can affect women of any age, including teenagers.

It's a long-term condition that can have a significant impact on your life, but there are treatments that can help.

Symptoms of endometriosis

The symptoms of endometriosis can vary. Some women are badly affected, while others might not have any noticeable symptoms.

Some common symptoms of endometriosis are:

pain in your lower tummy or back (pelvic pain) - usually worse during your period

period pain that stops you doing your normal activities

pain during or after sex

pain when peeing or pooing during your period

feeling sick, constipation, diarrhoea, or blood in your pee or poo during your period

difficulty getting pregnant

You may also have heavy periods. You might use lots of pads or tampons, or you may bleed through to your clothes.

For some women, endometriosis can have a big impact on their life and may sometimes lead to depression.

When to see a GP

See a GP if you have symptoms of endometriosis, especially if they're having a big impact on your life.

It may help to write down your symptoms before seeing a doctor.

Endometriosis UK has a pain and symptoms diary (PDF, 238kb) you can use.

It can be difficult to diagnose endometriosis because the symptoms can vary considerably, and many other conditions can cause similar symptoms.

A GP will ask about your symptoms and may ask to examine your tummy and vagina.

They may recommend treatments if they think you have endometriosis.

If these do not help, they might refer you to a specialist called a gynaecologist for some further tests, such as an ultrasound scan, MRI or laparoscopy.

A laparoscopy is where a surgeon passes a thin tube through a small cut in your tummy so they can see any patches of endometriosis tissue.

This is the only way to be certain you have endometriosis.

Treatments for endometriosis

There's currently no cure for endometriosis, but there are treatments that can help ease the symptoms.

Treatments include:

Your doctor will discuss the options with you. Sometimes they may suggest not starting treatment immediately, to see if your symptoms improve on their own.

Further problems caused by endometriosis

One of the main complications of endometriosis is difficulty getting pregnant or not being able to get pregnant at all (infertility).

Surgery to remove endometriosis tissue can help improve your chances of getting pregnant, although there's no guarantee that you'll be able to get pregnant after treatment.

Surgery for endometriosis can also sometimes cause further problems, such as infections, bleeding or damage to affected organs.

If surgery is recommended for you, talk to your surgeon about the possible risks.
Find out more about the complications of endometriosis

Living with endometriosis

Endometriosis can be a difficult condition to deal with, both physically and emotionally.

As well as support from your doctor, you may find it helpful to contact a support group, such as Endometriosis UK, for information and advice.

In addition to detailed information about endometriosis, Endometriosis UK has a directory of local support groups, a helpline on 0808 808 2227, webchat, and an online community on HealthUnlocked for women affected by the condition.

Causes of endometriosis

The cause of endometriosis is not known.

Several theories have been suggested, including:

genetics - the condition tends to run in families and affects people of certain ethnic groups more than others

a problem with the immune system, the body's natural defence against illness and infection

endometrium cells spreading through the body in the bloodstream or lymphatic system, a series of tubes and glands that form part of the immune system

But none of these theories fully explain why endometriosis happens.

It's likely the condition is caused by a combination of different factors.

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Find out about endometriosis, a common condition where tissue similar to the lining of the womb grows in other places, such as the ovaries and fallopian tubes.

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The evil twin sister to Endo. I got this too! Lucky me. I'll put links in this column of the articles I find on my research journey.

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Clinics in Australia getting government support

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Australian Government Department of Health and Aged Care

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The Albanese Labor Government is delivering Australia's first Endometriosis and Pelvic Pain Clinics across all states and territories.

The 20 Clinics will provide expert, multidisciplinary services and care for women with endometriosis and pelvic pain.

Endometriosis affects at least 1 in 9 Australian women and can have an extensive, devastating impact on the daily lives of sufferers. With those suffering waiting on average of seven years before diagnosis.

Pelvic pain can be similarly complex and debilitating, with the impact being felt beyond individuals as it is estimated to cost the Australian economy $6 billion a year.

The Government has increased the commitment from 16 to 20 clinics, making specialised, multidisciplinary care available to more women across Australia with at least one clinic in every state and territory and a mix of regional and metropolitan locations.

The Clinics will each receive more than $700,000 over four years, to support hiring specialised staff, including nurse practitioners and allied health professionals, investment in equipment or fit-outs such as pelvic physiotherapy areas, as well as resources, training and development.

Working in existing general practice, the clinics will strengthen what is often the first point of contact in the health system to reduce diagnostic delays and promote early access to multi-disciplinary intervention, care and treatment.

As well as directly helping patients, the clinics will raise awareness of endometriosis and pelvic pain, build professional knowledge and skills in this area, and improve access to information and care pathways.

Patients will be able to access the clinics by booking an appointment at one of the 20 attached clinics.

The Clinics are part of the Albanese Government's $58.3 million package for endometriosis and pelvic pain, announced in the 2022-23 Budget.
Quotes attributable to Assistant Minister for Health and Aged Care

Ged Kearney MP
"Too many women suffer for years with what we know can be debilitating conditions. They deserve to have their concerns be taken seriously with better access to specialised care.

"These Clinics are about providing women with an accessible front door to the care that they need. Gathering expertise under one roof, fostering that knowledge to improve diagnosis and services, having referral pathways in place - these are all crucial elements to getting the support that women need right.

"The recognition of endometriosis and pelvic pain as serious conditions has been a long and hard-fought battle from fierce advocates in the sector and in our communities. I want to say to those people - thank you and we're listening.

"We are a government that is committed to improving women's health and this is a crucial step forward for part of the population that has too long been dismissed."

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Australia's first endometriosis and pelvic pain clinics now available nationally

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The Albanese Labor Government is delivering Australia's first Endometriosis and Pelvic Pain Clinics across all states and territories.

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Read the government press release.

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The Government is delivering Australia's first Endometriosis and Pelvic Pain Clinics across all states and territories.
The Clinics will provide expert, multidisciplinary services and care for women with endometriosis and pelvic pain.

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Specialist Endometriosis Clinics - Endometriosis Australia

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The Government is delivering Australia's first specialist endometriosis clinics across all states and territories.

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Australian Government Department of Health and Aged Care

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Endometriosis and pelvic pain clinics have been established across Australia. These clinics work to reduce diagnosis timeframes and provide better care and pain management for those suffering from endometriosis and pelvic pain.

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Endo Australia explains treatment options

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Endo Australia explains treatment options

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You need to work out what is best for you.

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Management and treatment - Endometriosis Australia

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There are three kinds of treatments for endometriosis - medical treatments, surgical treatments, and complementary treatments.

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Endometriosis Australia provides a comprehensive collection of Endometriosis Resources to educate, support, and empower individuals affected by the condition. Our free downloadable materials include fact sheets, guides, workplace toolkits, and educational posters designed to raise awareness and improve understanding.

Whether you're a student, healthcare professional, or employer, our resources help promote informed conversations and better support for those living with endometriosis.

Share these materials at community events, workplaces, and schools to spread awareness. Visit our Endometriosis Downloads and Resources below to access and share valuable information that makes a real impact in the fight against endometriosis.

Our collection includes fact sheets, guides, flyers, and posters designed to:

Learn and Empower: Understand endometriosis and its management.

Share Key Information: Distribute helpful resources to others.

Engage and Educate: Use clear visuals to simplify complex topics and foster community involvement.

Where to Use Endometriosis Downloads and Resources

Download and Share

Help us make an impact!

For more details, visit our FAQs page.

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Endometriosis downloads and resources - Endometriosis Australia

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Explore downloads and resources: fact sheets, guides, and educational materials for valuable information on endometriosis management.

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Jean Hailes for Women's Health

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Transcript

My name's Tegan, I'm 28 years old, I'm a teacher, and I was recently diagnosed with endometriosis.

My earliest memory is probably when I was about 15 years old, my monthly routine basically was, I was waking up very early in the morning, anywhere between 1am and 4am and it was like clockwork every single month. I'd wake up, I'd feel little bits of pains, pains would start getting more sharp and intense. When I was in that pain I knew that the pain couldn't really get much worse and it was stopping me from doing things, it was stopping me from walking, it was really uncomfortable. But as soon as you passed that cycle and you stop feeling that pain, you start to second guess yourself and think, was I really in as much pain as I thought, was I being dramatic, was I hormonal, was I bunging it on? And you would start to second guess yourself even though it happened to me for probably around 14 years. I still second guess myself, and even now, I'm starting to second guess myself, even though I know I've got endometriosis, I know there's a chance that it's grown back, I still second guess myself as soon as the pain has passed.

So for about 14 years, I've been feeling this way, having the same symptoms every single month. When I was younger, the doctors would kind of say, it's normal, and when you're so young, and you're so fragile-looking as well, because I was such a petite person, Mum always said, they just thought I had no pain threshold, even though Mum thought my pain threshold was through the roof.

So it wasn't 'til I was about 27 that I mentioned it to a doctor and they said, oh well let's just try one more painkiller, and then we'll go from there. I also had two ultrasounds to see if I had cysts, because my mum has polycystic ovaries, so I had two ultrasounds in two years before I got the referral to go and see a gynaecologist suspecting of endometriosis.

Two years ago, it started to affect my work, so at lunch time, because I would be holding the pain in the best I could, and while I was feeling lightheaded and just really struggling with the pain, I would get through the morning session of teaching, and then at lunch time I would walk into my communal kind of staffroom. We have PLT rooms, so it's just the people in our year level that's sitting there, and I would lie on the floor with a heat pack, have my pain killers, and I would just curl up and I would sit there and I wouldn't always cry because sometimes when you're in so much pain you can't cry. And then there was one day which was probably the worst day ever, as soon as that lunch bell rang, and my kids were out of the classroom I burst out into tears and I went straight over to the office and I said, "I can barely walk, I am in severe pain." And they got me to sit down in the office and they were all looking at me like I was dying basically. They hadn't seen it that bad before. And we actually had to call my mum to come and get me, because my legs were shaking so much from pain that I could not drive, could not walk.

So then I, you know, went and saw the gynaecologist and I gave her all my symptoms, and she said she would be more stunned if when they did laparoscopy they didn't find endometriosis. So, then she booked me in for my surgery only a couple weeks later and I remember lying on the... on the bed, they were about to wheel me in for my surgery and I started crying and I thought it was because I don't like needles and I don't like things like that. But when I really thought about it deeper, I was crying because I was so scared they weren't going to find anything and there'd be no reason whatsoever for me to be in that much amount of pain and maybe I'm not as tough as I think I am when it comes to pain, and I was second guessing myself that whole time that I was lying there. And then my gynaecologist came in and she said to me, it was really bad, it was everywhere.

We don't say we would like to have children, because we know the reality is quite low for that to happen. But we would like to have a child and I'd like to have that option. After having a year with the Mirena, knowing that I didn't have to be in excruciating pain every month, I have said to myself, I'm not going to do this for a long time, I'm not going to wait two, three, five years. It's already hard enough for people to fall pregnant these days, let alone falling pregnant with endometriosis.

So knowing all of that and knowing my family history with struggling to fall pregnant, I'm not going to give myself very long, I've given myself, you know, a set window time frame, and then I'll be going to the doctor and looking at deciding to have some intervention and if that doesn't work, going to the more extreme types of intervention. Because I don't know how long I can put up with this for, and especially if the pain's going to keep coming back as quickly as it has, I don't want to.

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Transcript My name's Tegan, I'm 28 years old, I'm a teacher, and I was recently diagnosed with endometriosis. My earliest memory is probably when I was...

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Epworth Australian website

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How do you describe pain to someone who can't feel yours? Katrina can't escape her endometriosis pain - it's agonising, all-consuming, and defined her life. But health professionals and those close to her thought it was all in her head.
Katrina received her interstitial cystitis (bladder pain syndrome) diagnosis almost 20 years ago. Except this wasn't the reason for her pain-and the misdiagnosis might have cost her many more years of it.

Growing up, Katrina thought her period pain and bowel problems were normal. At 23 years old, she started experiencing extreme pain in her bladder and went to a urologist for help. It took around five minutes of talking about her symptoms to be told she probably had interstitial cystitis. The specialist confirmed this with a cystoscopy.

Looking back on what she knows now, she wishes she asked for a second opinion. But she was young. She understandably placed her trust in the hands of a health professional.

This diagnosis began a cycle of excruciating pain that trips to doctors and urologists couldn't work out.

'No doctor ever questioned that [diagnosis] or suggested doing any further investigation,' Katrina says.

'My quality of life just got worse and worse and worse to the point where, at the age of 32, I was pretty much in bed for a couple of years on all sorts of opiates. Always trying to seek out alternative medicine and improve myself, but I just couldn't get any better, and I always ended up in the emergency department.'

Then came some hope. At 34, she started feeling well enough to focus on eating better and 'pumping endorphins' through exercise to help with the pain. She was able to maintain a full-time job again for the first time since her early 20s.

Katrina finally felt like she was back on track. So, when the pain came back with a vengeance, it was harder to deal with than before. She became very unwell, experiencing significant mental distress and weight loss.

'I couldn't eat. I couldn't do anything. Just crying, constantly in pain, agony-like pure agony.'

At 38, she remembers sitting in the urologist's office, unable to stop shaking. She felt like her pain was being ignored by everyone-those close to her and health professionals. The visit ended with her admission to a psychiatric hospital. During her stay they didn't investigate the source of the pain and tried to take her off the medication she needed to manage it.

After returning home, she continued experiencing significant depression. But Katrina didn't let this stop her from searching for answers. She contacted a new urogynaecologist she found online with positive reviews.

In a significant turn of events, she went from a psychiatric facility to a hospital. The urogynaecologist decided to investigate further and performed a laparoscopy and cystoscopy.

'He woke me up, and he said, "you don't have interstitial cystitis. You've got severe endometriosis, and it's everywhere",' Katrina says. It was on her bowel, cervix, bladder-everywhere.

Katrina's voice is strong and sharp. She's fed up with the medical treatment she's received over the years after being 'let down by so many people'.

'I spent traumatic time in psychiatric hospitals when I was in pure agony. Probably the worst place to be.'

At 41, she's already rebuilt her life many times over. She's had to dig deep to find the courage to start again-something that most people won't ever have to do.

'It takes so much energy to rebuild your life after you've been sick in bed... and it's just tiring. And I was tired of fighting for a life that was probably always going to be in pain.'
It has been three years since Katrina's first laparoscopy. Her second surgery was six months later.

'To this day, my quality of life is not acceptable. I am managing work because I'm working from home, which is good. I do love my job, but it's very difficult for me. I am still in chronic pain.'

A pain clinic has told her that she's 'high functioning' because she's working. A label that makes her feel like her determination and hard work to stay afloat is being ignored.

'I'm not high functioning. I'm crying in bed. I'm crying in the bath. I can't go out with friends,' Katrina says. 'The chronic pain services that are available are simply not resourced adequately to help.'

Endometriosis also affects her bladder function, causing urinary urgency (a sudden need to empty the bladder). She feels alone in this, having spoken to only one other person with the same combination of symptoms.

'The problem for me is that as my bladder fills up, I get in more and more pain. Most days, I'm going to the toilet every half an hour and that is incredibly debilitating.

'I'm in tears sometimes on the road desperately needing to find a public toilet and don't know where one is. I don't want to be in that situation. I'd rather avoid that. And the best way to avoid that is not to leave the house. I live on my own, so that's not really great.'

Pain medication taken helps her get to the gym, where she knows there's a toilet available. She sticks to her routine of cardio and weights because she knows the pain will be even worse if she doesn't. From there, hot baths and resting in bed help her manage her pain. The fatigue from the chronic pain is hugely disrupting to her life.

Katrina relies on her pain routine to get through the day-but she desperately feels there is a need for further research in endometriosis. She wants to see more shared knowledge between specialists in how to treat a patient and acknowledgment of how the disease impacts quality of life.

'If this was your daughter, would you accept that she has to live like this?' Katrina questions.

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Learn how Katrina had to fight to make her family and health professionals understand that her chronic pain caused by endometriosis was not 'in her head'.

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Endometriosis | Jean Hailes for Women’s Health

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Read about causes, symptoms, diagnosis and ways to manage and treat endometriosis including lifestyle, medications, hormone therapy and surgeries.

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Alana Healthcare: Gynaecology Clinic - Female Gynaecologists Sydney

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Sydney’s first all-female group obstetric practice, world-recognised gynaecological clinical & surgical expertise, physiotherapy and naturopathy services. Get in touch now.

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Alana Healthcare - Endo specific - Sydney

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Alana Healthcare - Endo specific - Sydney

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Endometriosis Gynaecologist Sydney | Endometriosis Surgeon Australia

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About Alana Healthcare | Alana Healthcare

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At Alana, we understand that women with gynaecological concerns are looking for a compassionate, understanding and informative approach to their issues - basically the best gynaecological care possible.

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Recommended a lot in Australia. He is the founder of Endometriosis Australia.

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Adenomyosis - Diagnose & Treatment | Alana Healthcare

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The symptoms of adenomyosis are similar to that of endometriosis, with period pain, non-period pain and abnormal bleeding all potentially occurring…

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Recommended by a friend. Nice to find a woman.

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Dr Shamitha Kathurusinghe | Gynaecologist Laparascopic Surgeon

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Dr Shamitha Kathurusinghe is a leading Gynaecologist & Expert Laparoscopic Surgeon in Melbourne. Contact her today.

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Melbourne clinic recommended by a friend. Lots of women consultants.

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Melbourne's Leading Gynaecology & Endometriosis Clinic

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Expertise, Empathy, Excellence. We are experts in general gynaecology, minimally invasive robotic surgery and endometriosis care.

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Adenomyosis Australia | Advice | Support & Information

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Adenomyosis is a condition where endometrial tissue grows in the wall of the uterus. We discuss signs, facts, solutions and offer support.

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Endometriosis Australia is a nationally accredited charity that raises awareness, educates and funds research for endometriosis.

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The Endometriosis Foundation is a U.K. based charity dedicated to raising awareness, educating, informing and supporting people with Endometriosis.

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Endometriosis Fight ENDO Foundation Australia | Improving the Quality of Life for Australian Women

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The Fight ENDO Foundation Australia is a nationally recognised organisation that is at the forefront of the battle against endometriosis. We are proud to be the voice and lifeline of Australian women who suffer from endometriosis, and we raise funding for medical research by increasing awareness and generating support from the local community.

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Adenomyosis Australia | Advice | Support & Information

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Adenomyosis is a condition where endometrial tissue grows in the wall of the uterus. We discuss signs, facts, solutions and offer support.

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Endometriosis affects 1 in 6 people in Queensland and 1 in 7 nationally. By participating in our letterbox drop initiative, you'll help QENDO connect more people with essential, free support services, including our 24/7 helpline, webinars, peer support groups, and other resources.
Every 6th Letterbox Could Change Someone's Life. Together, let's make a difference-one flyer at a time.

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Endometriosis affects 1 in 6 people in Queensland and 1 in 7 nationally. By participating in our letterbox drop initiative, you'll help QENDO connect more people with essential, free support services, including our 24/7 helpline, webinars, peer support groups, and other resources. Every 6th Letterbox Could Change Someone's Life.

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Endometriosis : Causes - Symptoms - Diagnosis - and Treatment

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When Barden found out she had endometriosis, she said she was grateful to get a diagnosis. "In my gut, I knew," she said. "I said, 'once we figure out the underlying cause, I will get pregnant.'"

The lack of obvious symptoms can cloud diagnosis, lead to fertility problems.

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Endometriosis Foundation of America | a 501(c)3 Tax-exempt, Tax-deductible Organization

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The World Endometriosis Research Foundation (WERF) is the global charity that fosters research into endometriosis to improve knowledge and treatment(s) of a disease which affects an estimated 176 million women and girls worldwide.

WERF unites researchers in worldwide collaboration, and is currently working with 54 centres in 16 countries.

Through global collaboration WERF is working towards a future where millions of women are not going to have their lives compromised by endometriosis. WERF's vision is:

- a day where no woman is crippled by endometriosis or unable to have children due to the disease.

- a day where endometriosis can be prevented.

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Discover Adventure is the leading tour operator for charity fundraising challenges in the UK and abroad.

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Below are podcasts I've found interesting

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Below are podcasts I've found interesting

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Please message me if you have some suggestions

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Living with Endo Podcast

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Living With Endo Podcast - Endometriosis Australia

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The Living with Endo podcast, hosted by the amazing Ellie Angel-Mobbs, is all about education and creating awareness for endo.

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5 Podcasts About Endometriosis to Listen to Right Now

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Explore informative and empowering podcasts about endometriosis, featuring real stories, medical insights, coping strategies, and more. Find support and valuable information to navigate life with this chronic condition.

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Podcast: Endometriosis and Pregnancy Experiences | Australian Birth Stories

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On the Australian Birth Stories Podcast – discover episodes on the theme of endometriosis where mothers share their experience of endometriosis and pregnancy.

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Endometriosis Treatment Center of America

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The Healthy Woman Show is your podcast source for everything women's health. Our podcast was inspired from the patients who we have see's in our offices who str

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10 Best Endometriosis Podcasts You Must Follow in 2025

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Best Endometriosis Podcasts to Listen to ⋅ 1. In Sixteen Years of Endometriosis ⋅ 2. Not Defined by Endo ⋅ 3. Heal Endometriosis Naturally Podcast ⋅ 4. The Cycle. Endometriosis Podcast

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SBS is an Australian broadcaster

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While many of us have heard of endometriosis, few people know much about this disease that impacts roughly ten per cent of all women. Endometriosis can be a stubborn, frustrating and painful chronic condition with a wide variety of symptoms. It can have severe impacts on health and wellbeing. But...

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Hormonal changes and endometriosis: busting myths and seeking help | The Dr Louise Newson Podcast

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Joining Dr Louise Newson on the podcast this week is Jen Moore, a campaigner dedicated to raising awareness of endometriosis and adenomyosis.Jen started expe…

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Podcasts Explore all things endometriosis education from the leading experts in the world combined with the patient voice. It is time to end myths and misconceptions and move endometriosis forward combining both the patient and practitioner voices to change the narrative. More Listening Options

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This article is more than 1 year old

This article is more than 1 year old

Tue 22 Aug 2023 11.00 EDT Last modified on Tue 22 Aug 2023 16.20 EDT

Millions suffer from endometriosis - where tissue similar to the lining of the uterus grows in other parts of the body - and yet the disease still remains largely a mystery.

But that could be about to change.

Gabrielle Jackson, associate news editor for audio and visual at Guardian Australia, and the author of Pain and Prejudice, speaks to Jane Lee about why despair is turning to hope in the endometriosis community.

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Are we on the cusp of a breakthrough on endometriosis? - podcast

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Gabrielle Jackson speaks to Jane Lee about why despair is turning to hope in the endometriosis community

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Living with Endometriosis | The Women’s Podcast

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Hosted by Kathy Sheridan & Róisín Ingle

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Heal Endometriosis naturally

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What is endometriosis? | Endometriosis UK

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Find out about endometriosis, including what the symptoms are, what tests you might need and treatments that can help.

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Endometriosis : Causes - Symptoms - Diagnosis - and Treatment

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When Barden found out she had endometriosis, she said she was grateful to get a diagnosis. "In my gut, I knew," she said. "I said, 'once we figure out the underlying cause, I will get pregnant.'"

The lack of obvious symptoms can cloud diagnosis, lead to fertility problems.

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Endometriosis Foundation of America | a 501(c)3 Tax-exempt, Tax-deductible Organization

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Homepage - European Endometriosis League

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Homepage - European Endometriosis League

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Endometriosis is a disease in which tissue similar to the lining of the uterus grows outside the uterus. It can cause severe pain in the pelvis and make it harder to get pregnant. Endometriosis can start at a person’s first menstrual period and last until menopause.

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Adenomyosis is a condition that affects your uterus and can cause heavy, painful periods. Read about adenomyosis symptoms, diagnosis and treatment.

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Adenomyosis occurs when endometrial tissue (tissue that lines the uterus) grows into the wall of the uterus. It can cause very heavy menstrual bleeding, which may lead to anemia. Learn more about adenomyosis symptoms and treatments.

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Adenomyosis is a condition where cells similar to those that line the uterus are also in the muscle wall of your uterus. Studies suggest that about one in…

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Find out about adenomyosis, including symptoms, what to do if you think you have it and how it’s treated.

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Adenomyosis Australia | Advice | Support & Information

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Adenomyosis is a condition where endometrial tissue grows in the wall of the uterus. We discuss signs, facts, solutions and offer support.

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Welcome to Adenomyosis Advice Association, we hope you find the support and information you require.

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Understanding Adenomyosis

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Adenomyosis: A word too few people know - Endometriosis Australia

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My name is Olivia-Jane Gaskell. I am a 41 year-old mum of two daughters, a wife to an amazing and very supportive husband and I am 6 months post-op from having a hysterectomy due to my recent diagnosis of Adenomyosis in September 2020. I have always suffered from painful and very heavy periods which progressively […]

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Endometriosis & Adenomyosis Endometriosis is a chronic gynaecological condition affecting millions of women worldwide, including a significant number in Australia. It occurs when tissue similar to the lining inside the uterus, known as the endometrium, starts to grow outside the uterine cavity. This misplaced tissue can be found on the ovaries, fallopian tubes, outer surface […]

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ADENOMYOSIS - Brisbane Centre for Endometriosis

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What is adenomyosis? It is a condition in which the inner lining of the uterus (the endometrium) bursts through the uterus’s muscle wall, resulting in miscarriage or stillbirth (the myometrium). An adenomyosis patient may suffer from cramps during menstruation, lower abdominal pressure, bloating before menstrual periods, and heavy periods due to the condition. The condition […]

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If endometriosis doesn't get the attention it deserves, then adenomyosis (or "adeno" for short) might just be its even lesser-known cousin. Affecting 20% to 35% of women, it's an all too common condition that's just as commonly missed or misdiagnosed.

What is adenomyosis?

Adenomyosis is a condition that occurs when the tissue that usually lines the uterus (endometrial tissue) invades the muscular wall of the uterus. Unlike endometriosis, where this tissue grows outside the uterus, adenomyosis stays within but causes its own set of challenges.

The misplaced tissue behaves as it normally would during your cycle-thickening, breaking down, and bleeding. But because it's trapped in the muscle, this can lead to intense pain, heavy periods, and an enlarged uterus.

While adenomyosis and endometriosis sound similar, and women with adenomyosis often have both, they're different conditions. Adenomyosis is more about the tissue infiltrating the uterus wall, while endometriosis involves tissue growing outside the uterus entirely.

Despite its similarities to endometriosis, adenomyosis tends to fly under the radar, making diagnosis and treatment even more tricky.-but

Adenomyosis symptoms​

Adenomyosis of the uterus can cause a range of symptoms, some of which are similar to other gynecological conditions. Here are some of the most common ones:

Dysmenorrhea (painful periods): This is the most common symptom of adenomyosis, with studies suggesting that more than 80% of women with the condition experience significant period pain.

Chronic pelvic pain: Many women with adenomyosis experience ongoing pelvic discomfort, which can worsen during their period.

Dyspareunia (painful sex): Pain during sex is a common issue for women with adenomyosis.

Heavy menstrual bleeding: Most women with adenomyosis find that their periods are also much heavier than usual, with about 75% experiencing this symptom.

Abdominal distension or bloating: The thickening of the uterine wall can cause a swollen, bloated feeling in the abdomen.

Infertility issues: Although not as common, some women with adenomyosis may face challenges with fertility.

Anemia: Due to heavy menstrual bleeding, anemia can develop, leading to fatigue and other related symptoms.

How do I know if I have adenomyosis?

Adenomyosis is sometimes referred to as a "silent disease" because despite its many symptoms, many people go years without realising they have it. Some women don't show any obvious signs, while others are stuck thinking painful periods are just "part of being a woman."

It's all too easy for adenomyosis to be brushed off or misdiagnosed, with patients often being told their pain is "normal" or mistaken for other issues like fibroids or endometriosis. If something doesn't feel right or your pelvic or period pain goes beyond what's typical, don't let it slide. You deserve to know what's really going on with your body.

Adenomyosis diagnosis

Diagnosing adenomyosis can be tricky since its symptoms can overlap with conditions like endometriosis, fibroids, and period pain. To get an accurate diagnosis, doctors typically rely on a combination of your symptoms, physical exams, and imaging tests.

Medical history and symptoms: Your doctor will start by asking about your symptoms, like pain, heavy bleeding, and any past menstrual issues. They'll also ask about related symptoms such as pelvic discomfort or bloating to help build a clearer picture of what's going on.

Physical exam: During a pelvic exam, your doctor may check for an enlarged or tender uterus. This is common with adenomyosis, as the tissue growing into the uterine muscle can make the uterus feel bigger or more sensitive.

The physical exam can be external (feeling outside of the vagina) or internal, where the doctor may feel for an enlarged or tender uterus. Remember that you have the right to ask questions, request clarification, and decide what feels right for you-always advocate for your own comfort and health. Your body, your choice.

Imaging tests: The best way to diagnose adenomyosis is through imaging, such as:

Ultrasound: This test uses sound waves to create an image of your uterus and can sometimes show changes in the uterus' structure caused by adenomyosis.

MRI (Magnetic Resonance Imaging): MRI provides a more detailed image and can help doctors get a clearer picture of the uterus, especially if your symptoms are more severe or if there are other conditions, like fibroids, to consider.

Biopsy (uncommon): In some cases, a biopsy may be recommended, where a small tissue sample from the uterus is taken for analysis. However, this is less common since imaging tests usually provide enough information for a diagnosis.

What causes adenomyosis?

Other uterine conditions: Adenomyosis rarely appears by itself-it often appears alongside fibroids and endometriosis, creating a perfect storm of pelvic problems.

Studies suggest that fibroids (or leiomyomas) and adenomyosis can coexist in the same uterus in up to 57% of cases. What's worse, women dealing with both conditions are more likely to experience pelvic pain, and report more severe symptoms like painful periods (dysmenorrhea), pain during sex (dyspareunia), and non-cyclic pelvic pain compared to women with fibroids alone.

Adenomyosis and endometriosis are also found together frequently, though it's hard for doctors to pinpoint exactly how often. Studies suggest that anywhere between 20% to 80% of women with endometriosis also have adenomyosis.

Age: Adenomyosis is most commonly diagnosed in women between the ages of 35 and 50, particularly those who have gone through or are nearing menopause. This is likely due to hormonal changes that happen as women age.

Childbirth history: Women who have had children are more likely to develop adenomyosis. The exact reason isn't fully understood, but some believe that the process of childbirth (especially vaginal delivery) may cause changes in the uterus that make it more vulnerable to adenomyosis later in life.

Hormonal factors: Since adenomyosis is influenced by hormones, especially oestrogen (a hormone involved in regulating the menstrual cycle), women with high levels of oestrogen may have a higher risk. This is why adenomyosis is often seen in women who have had many years of periods or have conditions that affect hormone levels.

Previous uterine surgery: If you've had any surgery on your uterus, such as a C-section or a fibroid removal, you may be at a higher risk of developing adenomyosis. These procedures can cause scarring or changes to the uterine lining, which might contribute to the condition.

Genetics:There's some suggestion that adenomyosis may run in families, but the evidence is still unclear. It's thought to be a condition influenced by various factors rather than strictly genetic.

Anyone can develop adenomyosis, but some risk factors may make it a little more likely. Understanding these can help you assess your risk, but remember-having one or more of these factors doesn't mean it's a sure thing.

Adenomyosis treatment

Treating adenomyosis isn't a one-size-fits-all situation, but the good news is, there are plenty of options to help manage the symptoms. While hysterectomy is the only guaranteed cure, many other treatments can make a world of difference.

Here's how adenomyosis is typically treated:

Pain relievers (NSAIDs): ibuprofen can take the edge off pain and inflammation.

Hormonal treatments: Birth control pills, hormonal IUDs (like Mirena), or progesterone treatments can help balance your cycle and ease both the bleeding and pain.

GnRH agonists: These temporarily hit the "pause" button on menstruation by lowering oestrogen, giving some relief from heavy periods and cramping.

Tranexamic acid: These can be a helpful option for reducing heavy bleeding during your period.

1. Adenomyosis medication

Endometrial ablation: This procedure removes the lining of your uterus, reducing heavy periods. It's not a cure, though, and isn't recommended if you're planning on having children.

Uterine artery embolisation (UAE): This technique cuts off blood flow to the adenomyosis-affected areas, helping shrink them and reduce symptoms.

2. Minimally Invasive Procedures

Hysterectomy (removal of the uterus): This is the only definitive cure for adenomyosis - but is usually the last resort, especially if you're not ready to part with your uterus.

3. Hysterectomy for adenomyosis

Dietary modifications: Adopting an anti-inflammatory diet, packed with whole foods can help calm some adenomyosis symptoms. Cutting back on caffeine, sugar, and processed foods might also help with bloating and fatigue.

Exercise: Regular physical activity can do wonders for reducing pain and boosting your mood (endorphins can have a bigger impact than you might think).

4. Lifestyle Changes

Acupuncture: Acupuncture is commonly reported as a helpful treatment for managing adenomyosis symptoms, with some patients claiming significant relief. However, scientific evidence supporting its effectiveness is limited.

Herbal supplements: Turmeric, ginger, and evening primrose oil are known for their anti-inflammatory powers. Just be sure to check with your doctor before exploring herbal remedies.

5. Alternative Treatments

At Hazel, we provide comprehensive adenomyosis care tailored to your unique situation. Our women's health doctors are dedicated to helping you find a personalised treatment plan that works best for you and your symptoms. Whether you're seeking advice, support, or treatment options, we're here to guide you every step of the way.

Adenomyosis and fertility

Adenomyosis can affect fertility, but the good news is not every woman with the condition will face challenges getting pregnant.

The impact on fertility can vary depending on how severe the adenomyosis is and other individual health factors. Some women may not experience any issues, while others might need additional support.

Does adenomyosis affect fertility?

Adenomyosis can make it harder to get pregnant for a few reasons: it can distort the uterus, making it harder for an embryo to implant and hormonal imbalances, especially involving estrogen, can affect ovulation.

The condition also causes inflammation in the uterus, which can impact egg quality and the function of the fallopian tubes and ovaries. Plus, adenomyosis is sometimes linked to fibroids, which can block tubes or alter the shape of the uterus, further complicating fertility.

Can you get pregnant with adenomyosis?

Yes, many women with adenomyosis can still get pregnant, though it might take a little longer or require extra support. The likelihood of pregnancy depends on the severity of adenomyosis, your age, and any other health factors.

If you're finding it difficult to conceive, a fertility specialist can help create a plan tailored to your needs, helping you navigate both adenomyosis and your overall reproductive health with the best approach.

Adenomyosis in a nutshell

Adenomyosis can be a challenging condition to live with, but with the right treatment and support, it's absolutely manageable. While the journey to diagnosis can sometimes be long and frustrating, once you understand what's going on, you and your healthcare provider can create a plan that works for you.

Whether it's through medications, lifestyle changes, or even surgical options, there are many ways to reduce the pain and discomfort that come with adenomyosis. It's all about finding the right combination of treatments that fit your life, needs, and goals.

And remember, you're not alone-many women are dealing with adenomyosis and finding ways to feel better despite the challenges. Our Hazel team is here to support you in finding a diagnosis and managing the symptoms.

Adenomyosis FAQ

Adenomyosis vs. Endometriosis: What's the Difference?

Adenomyosis and endometriosis are often confused because both involve the lining of the uterus, but they affect the body in different ways - one is an unwanted houseguest, the other is a wanderer.

Adenomyosis occurs when the endometrial tissue, which normally lines the uterus, grows into the muscular wall of the uterus. Endometriosis, however, happens when similar tissue grows outside the uterus-on the ovaries, fallopian tubes, or other areas of the pelvis.

What is Adenomyosis belly?

Adenomyosis belly"-yep, it's a thing. As the condition causes the tissue inside the uterus to grow into the muscle, the uterus may enlarge, which can lead to an abdominal feeling of fullness or puffiness, especially around your period. This can make your stomach look a bit swollen, almost like you're a few months pregnant​. Fortunately, adenomyosis belly isn't dangerous in itself and various treatments can help manage symptoms.

What does a thickened uterine lining mean?

Been told you have a thickened uterus but not sure what that means? A thickened uterus is when the lining inside becomes thicker than usual, often due to hormonal changes, adenomyosis, or fibroids. In adenomyosis, the lining grows into the uterine muscle, leading to both thickening and uterine enlargement. While this isn't always a serious issue, it may cause symptoms like heavy bleeding or pain.

Should I be worried about an enlarged uterus?

An enlarged uterus can happen with conditions like adenomyosis or fibroids. While it's not always a cause for concern, it can lead to discomfort, heavy bleeding, or pelvic pain. If you're experiencing these symptoms or notice changes in your body, it's a good idea to check in with your doctor. They can run tests like ultrasounds to understand what's going on and guide you to the best treatment options. Worried about your symptoms? Don't hesitate to reach out to our doctors at Hazel-your health matters.

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Adenomyosis Treatment Australia | Consult Adenomyosis Specialist

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When endometrial tissue grows into the uterus wall, you need an adenomyosis specialist to diagnose it. Support for adenomyosis treatment via telehealth

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The ‘bad cousin’ of endometriosis that impacts even more women

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Adenomyosis is a painful condition that impacts even more woman than endometriosis, but experts say there…

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Endometriosis WA - EndometriosisWA advocates and supports individuals affected by endometriosis

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EndometriosisWA advocates and supports individuals affected by endometriosis

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I feel sorry for my uterus when I see the picture of normal uterus to one with adenomyosis. :(

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Adenomyosis is a condition where cells from the lining of the uterus (the endometrium) are found within the muscle layer of the uterus (the myometrium). It is found in approximately 1 in 10 women of reproductive age and is most common in women aged 40- 55 who have had children.

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The Evil Twin of Endometriosis: Adenomyosis — by Hazel

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Discover adenomyosis, understand symptoms, learn the differences between endometriosis and adenomyosis, and explore treatments, including medicinal cannabis.

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news.com.au — Australia’s leading news site

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Ultrasound leads to unexpected diagnosis

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“I finally have an answer for you,” my doctor said as I settle in a chair in her tiny office.

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news.com.au — Australia’s leading news site

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Ultrasound leads to unexpected diagnosis

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“I finally have an answer for you,” my doctor said as I settle in a chair in her tiny office.

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What is the Best Diet for Adenomyosis? | The Dietologist

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Wondering what is the best diet for managing the symptoms of adenomyosis? This is becoming an increasingly common topic amongst our community over on Instagram (@endo.dietitian) as we continue to learn more about adenomyosis, and with that, what foods to eat and what to avoid. Although there is a huge lack of research on the topic (if you thought endometriosis and diet research was lacking, wait till you see adenomyosis and diet!), I’m sure Dr. Google has given you the impression that the only way to settle the symptoms is by going gluten-free, dairy-free, sugar-free, alcohol-free and basically fun-free.

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Nutrition for Adenomyosis - Dietary Tips and Advice

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Although information on diet for adenomyosis is not well-researched or documented, here are some top tips on how to manage them. Read more here.

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The Best and Worst Foods for an Anti-Inflammatory Endometriosis Diet

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Endometriosis pain can be severe, but the right diet could help soothe those symptoms. Learn what a dietitian says about foods you should eat — and skip — if you have endometriosis.

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In recent years, growing attention has been given to the impact of diet and lifestyle on various health conditions. One such condition, adenomyosis, can significantly benefit from this holistic approach. Adenomyosis is a complex gynecological condition that can cause debilitating symptoms for many women. This blog post aims to provide a comprehensive guide on how diet and lifestyle changes can play a significant role in managing this condition.

Understanding Adenomyosis

Adenomyosis is a condition where the cells that normally line the uterus grow into its muscular wall. This can lead to an enlarged uterus, heavy or prolonged menstrual bleeding, pain during intercourse, and lower abdominal pressure. The exact cause remains unknown, but it's clear that managing the symptoms is vital for affected women to lead comfortable lives.

Role of Diet in Managing Adenomyosis

Eating a balanced diet can significantly influence the severity and progression of adenomyosis. Some dietary guidelines that can help manage this condition include:

Avoid inflammatory foods

Foods known to cause inflammation include:

Processed foods: These are often high in unhealthy fats and added sugars, which can increase inflammation.

Sugary drinks: Regular intake can cause a spike in blood sugar and insulin levels, leading to inflammation.

Foods high in trans fats: These not only promote inflammation but also contribute to several other health issues.

Increase intake of anti-inflammatory foods

Nutrient-dense foods can help reduce inflammation. These include:

Fruits and vegetables: They're rich in antioxidants and have strong anti-inflammatory properties.

Lean proteins: Foods like fish, turkey, and chicken can help maintain muscle mass and reduce inflammation.

Whole grains: They're packed with fiber, which can help manage your weight and reduce inflammation.

Omega-3 fatty acids: Found in fatty fish, flaxseeds, and walnuts, omega-3s are known for their anti-inflammatory properties.

Stay hydrated

Adequate hydration is essential for overall health and can also aid in managing adenomyosis symptoms.
A proper diet can help manage the symptoms of adenomyosis
Role of Lifestyle in Managing Adenomyosis

Adopting certain lifestyle changes can also play a crucial role in managing adenomyosis:

Regular Physical Activity

Regular exercise can help maintain a healthy weight, which can reduce the severity of adenomyosis symptoms. This can be as simple as daily walking, swimming, or yoga.

Stress Management

High stress levels can exacerbate symptoms. Therefore, incorporating stress-reducing activities like mindfulness practices, meditation, or yoga into your routine can be beneficial.

Adequate Sleep

Quality sleep is essential for the body's healing process and can help manage pain and inflammation associated with adenomyosis.

Limit Alcohol and Caffeine

Both alcohol and caffeine can affect your hormone balance and potentially worsen adenomyosis symptoms. Reducing intake can be beneficial.

Avoid Smoking
Physical activity can help manage adenomyosis symptoms
Smoking can increase the risk of many health issues, including adenomyosis. If you're a smoker, consider seeking help to quit.

Expert Advice and Recommendations

Managing adenomyosis through diet and lifestyle changes requires professional guidance for optimal results. Here's what health experts generally advise:

Medical Consultation

Always consult with your healthcare provider before making any significant changes to your diet or lifestyle. A doctor can assess your health condition, consider your specific symptoms and medical history, and provide personalized advice.

Nutritionist or Dietitian's Guidance

A professional dietitian or nutritionist can help create a dietary plan tailored to your needs. They can advise on specific foods to include or avoid, portion sizes, and meal planning strategies based on your overall health, lifestyle, and adenomyosis symptoms.

Physical Activity Recommendations

A physiotherapist or fitness professional can guide you on the types and amounts of physical activity that can benefit your condition without causing harm. They can recommend exercises that can help manage pain, improve overall fitness, and contribute to better health outcomes.

Mental Health Support

Managing adenomyosis can be stressful and emotionally challenging. Psychologists or counselors can provide techniques for stress management, coping mechanisms, and overall emotional support. This is especially important as chronic stress can exacerbate physical symptoms.

Interventional Radiologist Consultation

Interventional radiologists can offer non-surgical treatments for adenomyosis, such as uterine artery embolization. This procedure reduces blood flow to the adenomyosis, helping to alleviate symptoms. Discussing this and other potential treatment options with an interventional radiologist can provide additional avenues for managing the condition.

Holistic Therapies

Some practitioners may suggest complementary therapies, like acupuncture, yoga, or massage, which can help manage symptoms and improve overall well-being. Always ensure these therapies are undertaken under professional supervision.

As always, while diet and lifestyle changes can significantly help manage symptoms, they are not standalone treatments for adenomyosis. They should complement a comprehensive treatment plan that may include medications, hormonal therapy, and in some cases, surgical interventions. Adenomyosis can be a complex condition to manage, but with the right guidance and a multi-faceted approach, it's possible to lead a comfortable and healthy life.

In conclusion, managing adenomyosis can be a comprehensive process involving diet, lifestyle, and medical interventions. It's essential to remember that everyone's journey with adenomyosis is unique, and what works best for one person may not work as well for another. Therefore, a personalized approach is key.

If you're seeking professional advice, consider visiting Dr. Shaun Quigley at Northern Beaches Interventional Radiology. As an experienced interventional radiologist, Dr. Quigley can provide further insights into treating and managing adenomyosis, ensuring you're on the right track towards improved health and wellbeing.

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The Role of Diet and Lifestyle in Managing Adenomyosis

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Discover how diet, lifestyle, and interventional radiology can manage adenomyosis. Get expert advice and practical tips for improved well-being.

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Diet Chart For Adenomyosis Patient, Adenomyosis Diet chart | Lybrate.

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Diet chart for Adenomyosis patient and a healthy life. Find balanced diet chart for Adenomyosis Patient, Learn more about Adenomyosis Diet chart from the experts at Lybrate.

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Do’s and dont’s for women with adenomyosis

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Have you been diagnosed with adenomyosis? Here are simple guidelines to manage symptoms, prevent complications, and keep your quality of life in check.

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Endometriosis Diet: Foods to Eat and Avoid | Nurture Gynaecology

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Discover the ultimate guide to managing endometriosis. Learn about the best foods to eat and avoid to alleviate symptoms and improve your overall well-being.

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Endometriosis Diet: Foods to Eat and Foods to Avoid

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Endometriosis is a condition where the tissue that’s typically found on the inside of your uterus grows on the outside of it. Certain foods may increase your risk for endometriosis, while others may help ease symptoms if you already have the condition. Learn how your diet can help.

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Endometriosis Diet & Lifestyle | Eve Health

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In this blog we look at ways of managing your endometriosis through diet, lifestyle, and natural therapies.

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Endometriosis diet: What foods to eat and what to avoid

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The relationship between a person’s diet and symptoms of endometriosis are still being investigated. However, including more fruits, vegetables, and omega-3 in the diet may help prevent endometriosis or worsening symptoms. A person should avoid caffeine and alcohol. Learn more about which foods to eat and avoid here.

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Diet and lifestyle | The Endo Foundation

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Endometriosis can influence your bodily needs, from your hormones to your skin; your energy levels to your mental health, your eating habits, to how well your body digests, absorbs, and uses food.

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Endometriosis Treatment Center of America

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Can Diet Improve Endometriosis Symptoms? - ETCOA

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Do you want to improve your symptoms with an endometriosis diet? Read on to find out how to manage this painful condition with food.

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Have you been visiting Dr. Google only to find a world of conflicting information regarding nutrition for endometriosis? If you are an endometriosis warrior we are sure that you have had many people telling you what to eat and what to avoid!

The million-dollar question here is "what is the best diet for endometriosis"?

If only it were as simple as that!

Let's break down the different popular endometriosis diets, and as always, present the research behind them! So together, you can work out what the best next step is for you!
Before getting started, if you are wondering what endometriosis is, take a look at our first blog posts on this topic: endometriosis 1 and endometriosis 2.
Let's get into it!

Psst... want the shortcut? Apply to work with us one-on-one and have a customised endometriosis friendly nutrition plan for you with an expert dietitian & nutritionist here at The Dietologist.

The Mediterranean Diet for Endometriosis

If you have followed The Dietologist for a while you would have seen us rave about the Mediterranean diet .... A LOT!

Firstly, it is by no means a "diet", instead a way of eating, and a way of life, really! It is meant to be flexible and delicious (take my unbiased very Greek opinion).

Based on what is traditionally eaten in Mediterannean countries, like Italy, Greece and Spain, it incorporates a meal pattern rich in fresh fruit and vegetables (hello, antioxidants), wholegrains, nuts and seeds, legumes and beans and of course extra virgin olive oil and fish! Red meat, poultry and dairy foods are encouraged in smaller amounts, however you can see that nothing is off limits.

Some preliminary research suggests that the Mediterranean diet can assist women with endo in pain reduction with periods and intercourse, as well as passing bowel movements ( Wnzl, Ott and Huber, 2011).

This dietary pattern is also recommended for heart disease prevention and has been shown to be beneficial for fertility, so we can only see benefits here!

Bonus, the Mediterranean dietary pattern is supportive of mental health too according to recent Australian research ( Jacka et al., 2017), and is consistently on the best dietary patterns of the year lists

The Gluten-Free Diet for Endometriosis

Heard this one before?

Going gluten-free is one of the most widely circulated "diets" that endometriosis warriors hear they should follow! It is thought that a gluten free diet has the potential to affect inflammation and hormones (both of which are associated with endometriosis) ( Olsen, 2020).

Gluten is the protein found in wheat, barley and rye, and in those with coeliac disease, these proteins trigger an immune response which ultimately damages the small intestine and affects absorption of nutrients.

One study saw that 75% of participants with endometriosis experienced a reduction in period pain, pain with intercourse and pelvic pain when cutting gluten from their diet for one year ( Marziali et al., 2012). Now, we don't know the exact mechanisms yet, however we do know that a gluten free diet contains fewer FODMAPs, particularly fructans from wheat. And with higher rates of irritable bowel syndrome (IBS), perhaps it is FODMAP reduction that's helping your symptoms?

To date, we have no idea of knowing for sure!
Discover More about Endometriosis and Nutrition with our 60-minute Masterclass!

The Low FODMAP Diet for Endometriosis

If you haven't heard of the low FODMAP diet before, it was developed by researchers at Monash University in Melbourne, Australia. It is a therapeutic and temporary dietary protocol for irritable bowel syndrome (IBS) sufferers. It can help by reducing the load of carbohydrates that you are malabsorbing (i.e. not absorbing), which can contribute to excessive gas or wind, bloating, diarrhoea, constipation and abdominal pains.

To learn more about the FODMAP diet, check out another one of our blogs here.

Research tells us that those with endometriosis are 2.5 times more likely to be diagnosed with IBS - great!

Studies also report that the rate of co-occurrence of endometriosis and IBS is somewhere between 36% to 52% ( Seaman et al., 2008 and Moore et al., 2017).

There are different theories as to why this is the case, from shared or overlapping symptoms of abdominal pain, to a mutual promotion effect with inflammation (i.e., one making the other worse and vice versa) or both promoting visceral hypersensitivity. An exciting study by Moore et al (2017) did show that of a sample of New Zealand women with both IBS and endometriosis, 72% reported a 50% improvement in bowel symptoms after just 4 weeks using the low FODMAP diet!

Now it is very important that you do not start a low FODMAP diet without a supportive and knowledgeable dietitian who gets both IBS and endometriosis management strategies. This is a limiting diet (only temporarily) and therefore your individual circumstance must always be taken into account beforehand

Dairy Free Diet For Endometriosis

If you have heard that you should go gluten free, then it is likely that you have also heard about going dairy free! This dietary pattern (or restriction we should say) is very common amongst the endometriosis community and definitely something we get asked in clinic.

We have established that women with endometriosis are 2.5 times more likely to have IBS, or IBS-like symptoms. This also includes a higher risk of lactose intolerance ( Baron et al., 2011). Despite popular belief, lactose intolerance does NOT mean you have to say goodbye to dairy forever, in fact most people can tolerate some amount of yogurt and hard cheese due to the lactose load being reduced!

There has been no research to date that dairy causes inflammation, in fact we actually see that the combination of calcium and vitamin D (found in our dairy foods) has an anti-inflammatory effect, this one of our four pillars that are important for dietary management of endometriosis.

Soy Free Diet for Endometriosis

Soy seems like the absolute worst thing you could include your diet when it comes to endometriosis because of the phytoestrogens (also known as plant-based estrogens) that are concentrated in soy-containing foods like tofu, tempeh, soy milk, edamame beans.

Why?

Endometriosis is an estrogen-related condition, so by default, the assumption is that more estrogen coming in from your diet must be bad?

But that isn't necessarily the case! Soy foods may actually compete with higher circulating levels of estrogen and as it has a weaker hormonal effect, it may be potentially helpful for endometriosis management!

Everyone is different with this, but it isn't a black and white elimination, that's for sure!

Find out more about soy and endometriosis here

Vegan or Plant-Based Diet for Endometriosis

Last but not least we have a vegan or plant-based diet. A vegan diet follows strict no animal consumption rules. The words "plant-based" however, seem to mean different things to different people.

Some associate it with a vegan diet, whereas others suggest it means their diet is majority plant foods, with only a small amount of animal foods. Either way, these dietary patterns support a wide intake of fruit, vegetables, lentils and legumes, and meat alternatives such as tofu and tempeh.

Generally speaking, plant-based or vegan diets are rich in antioxidants due to the wide variety of colourful fruit and vegetables consumed. This, similar to a Mediterranean diet, can assist with lowering inflammation and in turn pain management in women with endometriosis. Additionally, these dietary patterns are generally lower in saturated fat, this is also known to have an anti-inflammatory effect!

However, when following strict no-animal food policies, it is important that specific nutrients like vitamin B12 or marine-based omega-3 fatty acids are replaced through either consumption of fortified foods or supplementation.

Always consult a dietitian before starting any form of supplementation.

As you can see, a variety of different dietary patterns exist for the management of endometriosis, meaning that there is no clear diet that "everyone" should follow! Want to learn A LOT more about the dietary management of endometriosis and whether any of these dietary patterns will work for you? I have you covered!
Need help with building an anti-inflammatory diet that suits your needs for endometriosis to support conception and throughout pregnancy? Check out our power-hour on-demand online Anti-Inflammatory Eating for Endometriosis masterclass, eGuide and meal plan designed for those with endometriosis by an expert endometriosis dietitian & nutritionist!

Available to start NOW for just $75 AUD (with $10 being donated to the Pelvic Pain Foundation of Australia). Can't wait to see you there!

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What is the best diet for endometriosis?

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Have you been visiting Dr. Google only to find a world of conflicting information regarding nutrition for endometriosis? If you are an endometriosis warrior we are sure that you have had many people telling you what to eat and what to avoid! If only it were as simple as that!

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Can changing your diet relieve endometriosis symptoms?

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This long-term condition can have a significant impact on people’s lives, but could dietary changes ease symptoms?

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Finding food freedom with endometriosis - Endometriosis Australia

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Having endometriosis doesn’t mean that you have to give up freedom around food. But it can be more of a journey to get there.

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Chinese Medicine Melbourne

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Lifestyle and Diet Tips for Endometriosis | Quiescence Chinese Medicine

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March is Endometriosis Awareness Month, a time dedicated to shedding light on this often misunderstood condition. Here at Quiescence, we are committed to helping individuals with endometriosis live their best life. We use acupuncture, herbal medicine and lifestyle changes to help reduce and manage the often debilitating pain that endometriosis can cause. These are some of our favourite lifestyle and diet tips to help you better manage endometriosis (endo) and painful periods.