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I always get stressed when not at home as I often need the toilet. I no longer travel far as this is too much of a worry. Ibs makes me so fatigued too. It’s such a battle every day.

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Not everyone has diarrhea with IBS, some suffer with constipation, unless stressed, then yup, it's the runs. What this video doesn't mention is the pain, exhauation, nausea, vomiting, loud tummy noises, wind, haemorrhoids etc. that are also awful and accompany IBS. My Dr sent me for tests and he had IBS himself and he said he wished more people realised that this condition is not a trivial condition, it can really impact your life.

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I am basically a hermit. I don't leave the house, only for hospital appointments or doctors. If I have to go out I have to know where the toilets are or I don't go. As soon as I eat I need the toilet. It's gone on so long I no longer have the mental energy to get up and go out. I no longer have a life as such.

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We hear from people everyday who have been living with IBS for many years in isolation and feelings of shame. The IBS Network, is the national charity which supports people living with this condition, understands their day to day challenges, and is there for them long-term to help them learn to live better with IBS. Contact us: www.theibsnetwork.org

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That there are toilets. I can't do holiday excursions anymore as I don't know if there will toilets. Though I managed a boat trip recently but researched it on trip advisor and found that there were toilets on the boat and and the places we stopped off.

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That there are toilets. I can't do holiday excursions anymore as I don't know if there will toilets. Though I managed a boat trip recently but researched it on trip advisor and found that there were toilets on the boat and and the places we stopped off.

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Being comfortable with someone enough to share my tummy troubles and to use someone else's toilet if the need arises.

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Being comfortable with someone enough to share my tummy troubles and to use someone else's toilet if the need arises.

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Knowing where the nearest (comfortable & soundproofed) toilets are- just as a security blanket, I don't always need to go. But Costa is a no,no - they is usually only 1 shared toilet.

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Knowing where the nearest (comfortable & soundproofed) toilets are- just as a security blanket, I don't always need to go. But Costa is a no,no - they is usually only 1 shared toilet.

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In this day and age, it is reasonable to expect people to pay w/ contactless, avoiding the need to carry spare change

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Access to clean and private toilets. Nothing worse that feeling people can hear or smell you if you're having a bad day. 

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Access to clean and private toilets. Nothing worse that feeling people can hear or smell you if you're having a bad day. 

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I'm still adjusting but not being in one place for very long, making sure I can walk around or nip off if I'm feeling uncomfortable. I haven't told many people yet so it's still new.

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I'm still adjusting but not being in one place for very long, making sure I can walk around or nip off if I'm feeling uncomfortable. I haven't told many people yet so it's still new.

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If I'm out and about, having a toilet on hand, and now I've started taking a small loo spray with me just in case.

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If I'm out and about, having a toilet on hand, and now I've started taking a small loo spray with me just in case.

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That fact that I work from home so I don't have to worry about being uncomfortable around colleagues, and I can use the toilet in my own home.

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That fact that I work from home so I don't have to worry about being uncomfortable around colleagues, and I can use the toilet in my own home.

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How much it impacts socialising... Feeling bloated all the time... Not being in control and feeling anxious about consuming food. I try and follow a FODMAP diet but there's always something lurking when you eat out (garlic!)

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Less stigma around saying you have IBS. I'm pretty open about it but people do find it 'distasteful' to talk about. It's hard in restaurants having to signal no gluten / no garlic and onion without explaining it's not an allergy...

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Definitely toilet access – and having less shame about having to pop into a cafe/pub

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Train stations and public venues need to remove charges to use the toilet!

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Train stations and public venues need to remove charges to use the toilet!

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It's unfair to have to pay to use the toilet when you have no choice, and it's humiliating having to beg for access when you don't have change on you - even more common after the pandemic.

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I can't eat garlic or onion because of my IBS, and I'm also vegan, so I need to be actively involved in deciding where to eat because many places won't have anything I can eat. I hate it when others decide where to go without asking me because I often just end up with chips and maybe a side salad if I'm lucky. I really appreciate it when people call up in advance for me because it's so embarrassing having to explain my difficult needs and I can tell that the chefs aren't happy about it.

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I hate it so much when shops and cafes say that toilets are for customers only. Public toilets are closing across the country and are rarely open nowadays outside of working hours which makes it very difficult to go out around town with friends.

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I feel more comfortable if I am in control so I always like to drive in case I need to go to the toilet on a journey. I manage my work diary and give myself time after meals to use the toilet. I am careful what I eat during the day if I am going to be out. I plan what I eat the night before, depending on my day's plans. I have a mental map of public toilets and i even have an app which tells me where the nearest toilet is. IBS affects my mental health and sometimes I get so anxious leaving the house that I cancel my plans. I always go straight home after a meal out and rarely eat at friend's houses as i am on a restrictive diet. Going on holiday is stressful these days as not knowing where to go to the toilet and finding it hard to dine out all cause me anxiety.

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I feel more comfortable if I am in control so I always like to drive in case I need to go to the toilet on a journey. I manage my work diary and give myself time after meals to use the toilet. I am careful what I eat during the day if I am going to be out. I plan what I eat the night before, depending on my day's plans. I have a mental map of public toilets and i even have an app which tells me where the nearest toilet is. IBS affects my mental health and sometimes I get so anxious leaving the house that I cancel my plans. I always go straight home after a meal out and rarely eat at friend's houses as i am on a restrictive diet. Going on holiday is stressful these days as not knowing where to go to the toilet and finding it hard to dine out all cause me anxiety.