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Something to look forward to

Gifts and experiences for young people and their families

Includes restaurant trips, hotel stays and even festival tickets

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Something To Look Forward – For cancer patients, their families and carers

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Free Gifts and Experiences for people financially affected by cancer A charity website for people with cancer, and their families, to access a variety of gifts and experiences that are generously donated by companies and individuals. Find anything from restaurant meals, hotel stays, beauty

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Teens Unite

On Treatment support

Attend the ward on a monthly basis for peer support activities

Off Treatment support

Residential trips for young people

Trips and events

Sibling support groups

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Our vision of building the first retreat in England for young people fighting cancer is coming to life. Plans have now been submitted to build The House of Teens Unite on a rural, countryside plot in Hertfordshire. Those in their teens and early 20's will come together to take part in our regular activities and residential stays, so they don't have to face their battle alone.

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teens :) unite fighting cancer | nobody likes the ‘c’ word’

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Teens :) Unite Fighting Cancer | Nobody likes the 'C' word'

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Our vision of building the first retreat in England for young people fighting cancer is coming to life. Plans have now been submitted to build The House of Teens Unite on a rural, countryside plot in Hertfordshire.

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Maggie's

Practical and social support

On site at the hospital and you can visit whenever.

Can help with financial and benefits advice and wellbeing

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A space for everyone who has cancer – and everyone who loves them. Just come in to Maggie’s in Cambridge for expert cancer support, information and more.

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Young Lives vs Cancer

Young Lives vs Cancer Specialist Social Workers are here to help you get the emotional and practical support you need throughout treatment.  We can support you in hospital or at home with:

•            Handling the day-to-day challenges that come with your diagnosis

•            Emotional support for you and your family

•            Money worries and accessing welfare advice, including understanding your benefits entitlement

•            Questions about work or your education

•            Managing housing difficulties or challenging family situations

You can contact the Young Lives vs Cancer team directly, or you can ask another professional who’s supporting you to contact them on your behalf.

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Your go-to place for everything you might need when you’re a young person diagnosed with cancer, or if your child has cancer.

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Ellen MacArthur Cancer Trust

Free sailing trips for young people post treatment on the Isle of Wight

Apply via your YSC or Clinical Nurse Specialist- They will let you know when applications go out!

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Only after treatment ends can a young person start rebuilding their life from the devastation of cancer. Our trips inspire young people to believe in a brighter future as they start to re-establish their place in the world.

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Move against cancer

8 week online fitness programme for young people during and after cancer

1:1 personal training for personalised fitness goals

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A free 8-week one-to-one online support programme for 13-30 year olds living with & beyond cancer.

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Shine cancer support

Offers support for those in their 20s and 30s after treatment

In person meet ups as well as lots of online resources about getting back to work, family life etc

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Little Princess Trust

Real hair wigs for young people up to the age of 24

You can refer yourself or ask one of the TYA team to do it for you!

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We aim to make the process of receiving a free, real hair wig
as straightforward as possible. We're here to help all those
aged up to 24 who have lost their hair due to cancer treatment or other conditions. A wig can be requested by yourself, a parent, a guardian or by the hospital.
Request a Wig

Step 1

When you contact us we will ask for some basic information, such as the name and age of the child or young person and some contact details.

Step 2

We will identify a Little Princess Trust accredited wig fitter in the area nearest to you , and will pass on your contact details. Rest assured that we value your privacy and will never share your information, except with those involved in fitting your wig.

Step 3

We will provide you with details of the wig fitter, so that you can contact them directly to arrange an appointment at your convenience. If a salon visit isn't possible, a hospital or home visit, or even a virtual service, can be arranged.

Step 4

Together with the wig fitter, you will choose the most suitable wig from our own beautiful wig range. Your wig will be fitted and styled to your individual needs. More than one appointment may be needed. The entire service is provided free of charge with all costs covered by us.

Why choose an LPT Wig?

Who do we provide wigs for?

We provide real hair wigs, free of charge, to children and young people up to the age of 24 who have lost their own hair through cancer treatment or other hair loss conditions.

We work closely with a trusted network of accredited wig fitters and will connect you with the most appropriate one located nearest to you.

They will help you to choose a wig which is the closest match as possible to your natural hair.

As it is made from real hair, the wig can be cut, curled, or straightened to recreate your individual look.

Why choose an LPT wig?

The Little Princess Trust wigs are hand-made from hair generously donated to us by our kind supporters.

Our wigs are of exceptional quality and have been professionally designed for a natural appearance.

We have an excellent choice of colour to help find the closest match to your natural hair colour.

We have a wide range of sizes, specifically designed for children and young people for perfect fit and comfort, giving confidence and security. As part of our service, each wig is cut and styled by a specialist wig fitter to create a personalised look.

Our wigs are hand knotted with a lace front to give the appearance of a natural hairline, and can be parted any way you choose.

If you would like us to contact you regarding a request for a wig, please fill in your details below.

How to wash your wig

Cleaning

Prior to washing, remove all knots and tangles, paying special attention to the nape area. Wash your wig in lukewarm water and apply a specialist wig shampoo or a shampoo that is paraben and sulphate free.

Smooth the shampoo evenly through the hair. Turn your wig inside out and very gently rub the cap to clean. Rinse in lukewarm water. Do not rub or agitate the hair.

Conditioning

Always use conditioner suitable for human hair wigs. Avoiding the root area, gently smooth the conditioner through the hair in a downwards motion. Rinse in lukewarm water. Do not rub or agitate the hair.
Drying
Gently blot excess water with a towel. Please do not wring or twist. Gently shake the wig and, ideally, allow it to dry naturally.

If blow drying the hair, turn the wig inside out and gently dry the base of the wig before drying the lengths of the hair. Always use a medium heat.

Brushing

Please take care when brushing to avoid damaging the cap. Don't over brush the wig as it may cause the hair to shed.

How long does a wig last?

If your wig is worn on a regular basis we would expect it to last around 6-12 months, if looked after correctly.

How often do I need to wash my wig?

This depends on how often you wear your wig and your lifestyle.
It needs to be less often than your own hair as it doesn't produce natural oils so only wash when needed. You can see how to wash your wig above or by clicking here.

Can I sleep in my wig?

Sleeping in your wig will decrease the length of time your wig will last and increase maintenance.

Can I swim in my wig?

We would not recommend swimming in your wig as pool chemicals can affect the base and the condition of the hair.

Will my wig fall off?

Our wigs have been specifically designed for children and young people in a wide range of sizes for a perfect fit and comfort.
If fitted and worn correctly it should feel secure and will not fall off.

Can I curl/straighten my real hair wig?

Yes. We recommend you use an appliance with a heat control and set at no more than 170 degrees. Higher heats and frequent heat styling will decrease the condition and longevity of your wig. We would recommend you use a heat protector spray to help protect your wig from heat damage.

Can I use styling products?

Yes you can use products but this may result in your wig needing to be washed more frequently. See question 2 about how to wash your wig. You can use a little serum if your wig feels dry.

Can I tie my wig back?

Yes. We recommend you use soft hair bobbles to reduce hair damage. Be gentle with your wig, brush carefully. Avoid metal pins or anything that will damage the cap.

When requesting a free, real hair wig from The Little Princess Trust, we may ask you to measure your head.

Please watch our 'How To Measure Your Head' video for support and guidance.

Where are our wig fitters?

We have a trusted network of wig fitters spread right across the UK and Ireland.

The map opposite shows the cities, towns and villages where our wig fitters are based.
Contact us and we can give you the exact locations before we help to arrange an appointment at an address near you.
We can also arrange wig fittings at hospitals or at your home. So wherever you may be in the UK and Ireland, please know that our wigs are available through our free service.

Simply call us on 01432 760060 or email wigs@littleprincesses.org.uk to find out more.

The MBE for voluntary groups was awarded to The Little Princess Trust by Her Majesty Queen Elizabeth.

The Little Princess Trust

The Hannah Tarplee Building
22-25 Berrington Street
Hereford
Herefordshire
HR4 0BJ

Registered Charity No. 1176160

Get in Touch

If you need to contact The Little Princess Trust you can find our details here.
Get in Touch

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Request A Wig from the Little Princess Trust

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We aim to make the process of receiving a free, real hair wig as straightforward as possible. We're here to help all those aged up to 24 who have lost their hair due to cancer treatment or other conditions. A wig can be requested by yourself, a parent, a guardian or by the hospital.

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REACT Physio

On site at Addenbrookes, provides specialist physio for those experiencing side effects from a cancer diagnosis

Referrals made by a member of the TYA team

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Rehabilitation and Exercise during Addenbrooke’s Cancer Treatment (REACT)

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REACT is the name of our Cambridge University Hospitals Cancer Rehabilitation Programme, where we provide specialist rehabilitation and therapy to our patients who are experiencing neurological and musculoskeletal side effects directly from their cancer or the treatment of their cancer.

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Battle Cancer programme

Fully funded 12 week personal training sessions for people post treatment to encourage strength training

Supported gyms in London, Norwich and Hertford

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About the Battle Cancer Program | Battle Cancer Program

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Cancer Navigator Service

Part of the cancer support team at Addenbrookes

Typically for support and advice for over 25s but can be used by anyone

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Our cancer navigators are here to help you if you have cancer. They are part of the CUH Cancer Support Service. If you get care and treatment from us, you can use their service.

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Teenage Cancer Trust

Support the ward and the staff on the ward (Youth Support Coordinator, Clinical Nurse Specialist)

Lots of information about what its like to be a young person with cancer, symptom management, life after cancer

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Here you'll find information and support for young people and families affected by cancer. There's also advice and resources to help you with things like mental health, nutrition, exercise, staying creative and keeping busy - especially during these difficult times.

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Information about cancer | Teenage Cancer Trust

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Here you'll find information and support for young people and families affected by cancer. There's also advice and resources to help you with things like mental health, nutrition, exercise, staying creative and keeping busy - especially during these difficult times.

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OUTpatients

Charity supporting LGBTQ-IA individuals facing a cancer diagnosis

Run peer support groups in person and online

Inform hospitals on how to provide patient centred care for LGBTQ-IA people

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OUTpatients is the UK's Only LGBTIQ+ Cancer Charity. Proudly Led by and for LGBTIQ+ People Affected by Cancer. We Work Hard to Support & Advocate for our Community.

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Trekstock

Offer support both in person and online for those in their 20s and 30s for life after cancer

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Whatever type of cancer, whatever stage you've been diagnosed at, find people just like you in our thriving community.

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Coping with Menopause - Support & Signposting

Menopause and Cancer - Tips for Coping

Breast Cancer Awareness Month - Resources and Signposting

Nine tips for navigating awkward conversations around cancer

Supporting your adult child through cancer

Navigating Friendships and Cancer

Breaking down barriers to exercise - what you need to know

Exercising with cancer: from patient to cancer exercise specialist

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How Trekstock's early menopause support changed the game

What it's like to be menopausal at 24

Benefits of exercise during cancer treatment

Trekstock Support: All the ways Trekstock can help you

The good, the bad and the ugly of social media and cancer

Navigating body image and cancer

Exploring the emotional impact of cancer and fertility

Coping with cancer and infertility

From textbooks to treatment: Navigating education challenges alongside cancer

Talking to your employer about cancer

How community support makes all the difference

Cancer ghosting - and other impacts on friendships

Navigating physical changes caused by cancer

Cancer's impact on your mental wellbeing

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Whatever type of cancer, whatever stage you've been diagnosed at, find people just like you in our thriving community.

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The big C

Charity in the Norfolk area for support and guidance

Offer in person meet ups and peer support groups as well as counselling and wellbeing sessions

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Our teen and young adult group (TYA) is a group of local young people that meet professionals from Big C and the Norfolk & Norwich University Hospital, to gain peer, emotional and practical support. The group meets once a month, sometimes online and other times in person, enjoying a wide variety of activities.

If you would like to find out more about the teen and young adult group, please fill out the form below, call 0800 0927640 or email support@big-c.co.uk.

Date

2nd Wednesday of the month

Where

In person and on Zoom

Tell me more...

Activities and outings include bowling, baking, arts and crafts, and yoga.

The group is facilitated by staff at Big C and supported by consultants and nurses from the Norfolk & Norwich Hospital and Teenage Cancer Trust. The team at Big C help arrange the activities and outings and are there if you need extra 1:1 support and access to all Big C services.

"When you have cancer, you feel alone, because no one your age seems to understand what you're going through. Going to TYA makes me feel like a weight has been lifted off my shoulders. I can be myself, we have fun, we talk, and I feel really supported"
BIANCA, TYA MEMBER

If you would like to come along to a TYA session, get in touch below to find out more.

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We've helped people like Louise

Following a routine mammogram screening, Louise was told that a lump was found in her breast, resulting in a breast cancer diagnosis in August 2019. This is her story...

We can help you work through the maze of cancer information.

At our centres across the region, we offer support to anyone affected by cancer.

We are a local, people-first charity providing outstanding cancer support.

Let's keep in touch

Subscribe to our mailing list to receive news and updates from Big C.

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Our teen and young adult group is a group of local young people that meet professionals from Big C and the NNUH once a month.

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Mind over cancer

Mental health support for anyone with a cancer diagnosis up to 29 years old

Counselling also available for families of a young person

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Gift Aid does not cost you a penny more, but can add an additional 25p to every £1 you donate. When Mind Over Cancer receives a donation from a UK taxpayer, we're entitled to claim an amount of tax (calculated at the basic rate of income tax in that year) paid on that donation. Once you have given your permission for us to do this on your behalf, there is no need for you to do anything else.

All that is required is that you must be a taxpayer and that would have paid or will pay sufficient Income and/or Capital Gains Tax to cover all the Gift Aid claimed on all your donations in that tax year. Please note that it is your responsibility to pay any difference.

The amount of tax we claim will be 25% of the total value of your donations in that tax year. Furthermore, if you are a higher taxpayer, you are also entitled to claim the difference between the basic rate which we will claim and the amount of tax you have actually paid. For further details on how you can do this, please contact your tax office. If your tax situation changes and your gifts will no longer be eligible for the Gift Aid scheme please contact us and we will amend your record accordingly.

Take me to my donation "

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Mind Over Cancer - We're here when you are ready to talk

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Gift Aid does not cost you a penny more, but can add an additional 25p to every £1 you donate. When Mind Over Cancer receives a donation from a UK taxpayer, we're entitled to claim an amount of tax (calculated at the basic rate of income tax in that year) paid on that donation.

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Youth Cancer Trust

Free holidays in Dorset for people on treatment and after

This includes meals, refreshments and activities!

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Meet people like you! Youth Cancer Trust provides support and free activity holidays for young people (aged 14 to 30) diagnosed and living with cancer or any malignant disease, from anywhere in the UK and the Irish Republic, or who are patients of any UK hospital.

Holidays are also available for young people who have been in remission for up to five years or who are living with the late effects of having had cancer as a teenager or young adult. If you have any queries about our services, please telephone 01202 763591.

Groups of 8 are made up of similar ages and groups can also be made up of friends you made in hospital. We are open all year round and are based at Tracy Ann House in Bournemouth, Dorset.

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Meet people like you! Youth Cancer Trust provides support and free activity holidays for young people (aged 14 to 30) diagnosed and living with cancer or any malignant disease, from anywhere in the UK and the Irish Republic, or who are patients of any UK hospital.

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Free kicks foundation

Football related trips and experiences for young people

Typically mascot experiences for under 14s and hospitality packages for overs, but no age limit on either

Applied for via Young Lives

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The Free Kicks Foundation is a Nationwide charity whose aim is to provide football-related activities for ill, bereaved and disadvantaged children, giving them a day to remember with their favourite football club.

Featured Kicks

Since the charity launched in 2007, we've made it possible for over 1000 amazing young people to attend matches and meet their favourite teams, often experiencing the day as a Team Mascot. We call these days out "Kicks". Here's a few examples of our work:

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Since the charity launched in 2007, we’ve made it possible for over 1000 amazing young people to attend matches and meet their favourite teams, often experiencing the day as a Team Mascot. We call these days out “Kicks”. Here’s a few examples of our work:

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Look good feel better

On the ward workshops to learn how to look after your skin and how to use your makeup whilst on treatment

For all genders, some sessions are focussed on make up whilst others are about skincare or grooming

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Changing faces

Online forum and support groups for people with a visible difference on their face or upper body

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Services For People With Disfigurements | Changing Faces

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Learn about Skin Camouflage and our other specialist wellbeing services, including our support line, Online Community and one-to-one sessions.

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Lymphoma Action

Online and in person support groups for people of all ages with Lymphoma

Sections on the website for relatives, life post cancer, or on maintenance.

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Thank you for your support.

Time to dust off your Christmas accessories and show you support for people affected by lymphoma.

The Blood Cancer Alliance (BCA) hosted a roundtable on unmet needs of ethnic minority patients in blood cancer.

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We are the UK's only charity dedicated to lymphoma, the fifth most common cancer. We've been providing expert information and support for over 30 years, helping thousands of people. We are here for you, however you are affected by lymphoma.

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Sarcoma UK

Dedicated practical support for young people living with sarcoma and their relatives

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We provide support and information for all types of sarcoma cancer; bone cancer, soft tissue cancer and GIST. Call our Support Line for help and advice 0808 801 0401.

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Young Tongues

Virtual support group for individuals with tongue cancer

Global charity but have country specific virtual groups and forums

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The brain tumour charity

Support for those living with a brain tumour

How to manage side effects, financial guidance and a free counselling service

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Living with a brain tumour can mean there may be areas of your life you have to think about which you have not considered before.

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Whole Genome Sequencing (WGS)

WGS can help to understand:

Why you have developed the cancer, Which treatments may work best, If you are at risk of other cancers

You can choose to have this test or not, and it should be offered to you soon after diagnosis

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Patient information and documentation for whole genome sequencing tests.

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Five things I wish I'd known about early menopause

Written by a young person about their experience of early menopause following treatment

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Five things I wish I’d known about early menopause | Teenage Cancer Trust

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Find out about treatment and early menopause, and the different ways that it could affect you and your health.

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Cancer treatment and menopause

A guide to menopause for young people following treatment for cancer

Includes details on how to recognise the signs, manage symptoms, and advocate for your body

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TRANS: CRIBING

Considerations for safe and inclusive care for transgender and non-binary patients

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Check out our resource on the safe and inclusive prescribing of anti-cancer therapies for transgender and non-binary patients

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TYA Services in Ipswich

Information about the support available for those having treatment in Ipswich

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Ipswich Cancer Wellbeing & Information Centre

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TYA — Ipswich Cancer Wellbeing & Information Centre

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We provide support, advice and information for patients and their carers living with, and beyond, cancer.

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A guide to radiotherapy

Information on what to expect when having radiotherapy as part of your treatment

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When your brother or sister has cancer

Informative and factual information about how to look after yourself/ a sibling when the family faces a cancer diagnosis

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Teens Unite- Family support

Events and peer support groups for parents, siblings and family members to help with the challenges of supporting someone with cancer

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Has your child or sibling experienced cancer? ​ We’re here for you, too. Connect with other parents and siblings who, like you, are navigating the challenges of supporting a loved one with cancer.e’re here for young people who have been diagnosed with cancer, and their families. We’ll provide your child with the support they need during and after cancer. In just a few simple steps your child could register with Teens Unite, if they haven’t already.

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My brother or sister has cancer

How to look after yourself when your sibling has a cancer diagnosis

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What do I do?

Life is not going to feel normal right now. It's only natural to have lots of questions and emotions. You will want to help your brother or sister but you will be going through some tough emotions yourself. Your parents might have less time for you while also asking you to take on more responsibility. Life is going to be different. There is no right or wrong way to get through this but some of the tips below might help.

Learn about cancer and treatment

Doing some research and finding out about the type of cancer and treatment your brother or sister is facing can help you both. It will mean you will know a bit more about what to expect and what your sibling is going through. It could help to know what the side effects might be. For example, if they are having chemo, they may lose their hair, feel tired and their mood may change.

There is plenty of information out there on different types of cancer and treatment. Make sure you use the resources on our website or sites like Teenage Cancer Trust, Cancer Research UK or Macmillan. You can also ask the doctors to suggest trusted websites.

Look after yourself

While it is great to be there for your sibling you need to look after yourself too. Watching someone you love go through cancer can be scary and tough. You may feel like you have an extra weight on your shoulders as well as your own emotions. It's important you have someone who will listen to how you're feeling. Plan times to see your own friends and make sure you talk about how you are feeling. Remember the people caring for your brother or sister will also be there for you.

Be proactive

Being proactive can help you and your family during this difficult time. Finding out more about your sibling's treatment, when it is and what the side effects are could help you plan. You might be able to help with lifts to the hospital, household chores like walking the dog or cooking food. If you're younger, you can keep your sibling company if they are at home. Ask your parents how you can help.

What is my risk of getting cancer?

Some cancers run in families. While this might mean you have a higher chance of getting cancer it does not always mean you will get it.
The risk of getting breast, bowel or ovarian cancers is higher if close relatives have had them. Some cancers like cervical cancer and lung cancer are less likely to be genetic.
Talk to your sibling's care team if you are worried.

How is my life going to change?

Things are going to be very different right now as you and your family cope with your sibling's cancer diagnosis. If you all live under one roof, you can expect some changes. One of your parents might spend lots of time with your sibling, staying with them during treatment or giving up work to care for them. You'll all be coping with your own emotions and stress levels might be high. The main thing is to work as a team.

Stress on your parents or guardians

Your parents might seem distracted. They might be stressed about things which do not seem important to you like keeping the house clean or work. They might also seem sadder and angrier than usual. They might be feeling very overwhelmed and you might feel pushed aside.
Think about how you could work together as a team. Are there any practical tasks you can do to take the pressure off your parents? Can you sit with your brother or sister to keep them company?
The main thing to remember is none of this is your fault. Your family members might seem angrier than usual but they are not angry with you.

Emotions

You will probably be feeling lots of emotions you have never experienced before. Worry, fear and jealousy are all normal emotions. Hiding how you feel to keep the peace will only make things harder. Find someone who can support your needs - whether that's a friend, partner or family member. It's important to take care of yourself and keep talking about what's going on.
It's normal to feel sad or low - and you should not feel guilty or selfish. Telling your brother or sister how you feel can help you both open up and bring you closer.

Struggling with school

Concentrating at school while your brother or sister has cancer will not be easy. You may feel worried about them and you could be tired if you are doing more at home.
You might not feel like doing school work is important when your sibling is so unwell.
The most important thing is to tell your teachers what is happening and how you feel. They might be able to help come up with a plan to help keep you on track, like reasonable adjustments for exams, or access to a counsellor.

Will they be able to stay at home while they have treatment?

Whether or not your sibling can stay at home will depend on their care plan. If your brother or sister is treated in their local hospital and can go in and out for treatment, life might carry on fairly normally day-to-day.
The chances are they will need to stay in hospital for periods of time. They will probably go to a specialist treatment centre for young people. These are often far away so they might have to make long trips, or stay nearby.

How to come to terms with it

We know you siblings get a raw deal. You have to cope with the changes going on all around you while carrying on with 'normal' life when everything feels anything but normal. The best thing you can do is make sure you keep talking about what's going on for you. The better you're able to take care of yourself, the more energy you will have to help your brother or sister. Being in a good headspace will let you be there for them in a way that sometimes only siblings can be for each other.

How can I help?

There are plenty of things you can do to help after your brother or sister's diagnosis. Finding out about their cancer and treatment can help you understand what they are going through. It might also make them feel more at ease if they want to talk about things. Be there for them if they want to open up or need you to help with practical things. Your parents will be grateful for your help too.

Be there for them

Your sibling may not want to talk about things but knowing you are there and ready will be a great comfort to them. You will need to be patient as their treatment may be making them feel tired and could affect their mood. You can also be there for them in practical ways like helping them keep in touch with friends, getting them food or going to appointments with them.

Help parents more with chores

Your parents are going to be distracted and struggling to keep on top of daily chores. You could offer to help around the house. You could sort the dinner or do some cleaning. You could ask if there are any tasks they need doing like putting the bins out or posting letters. Any little thing you can do will help. Your parents may not get a chance to say it but they will be very grateful.

Be the link between your sibling and their friends

It's important your sibling stays in touch with friends if they are unable to go to school or college. You could remind your brother or sister to invite friends over or you could arrange something if they are well enough to have people visit. You could encourage their friends to message them, or you could help your sibling to video call. We have some other tips here.

The big questions

You will have lots of questions about your sibling's cancer, what it means and how to cope. You will be experiencing some big emotions, too. Do not be afraid to ask for help and guidance, whether it's from your parents, other family members or friends.

What should I say to my sibling?

It can be tricky to know what to say to your sibling but the thing they will probably like the most is just spending time with you. Ask them if there's anything you can do and be patient with them. You can also tell them what you've been up to help them take their mind off it. Just let them know you are there and try to do the things you would usually do with them if possible.

Is my brother or sister going to die?

This is probably going to be your biggest fear. You might not even want to go there yet - and that is totally fine. The likelihood is your brother or sister will be okay. Most types of cancer are treatable and 87% survive young people's cancers according to Cancer Research UK.
The best thing you can do is speak to their care team. They will know better than anyone how things are going.

Have my parents forgotten I exist?

No - but you might feel like they have sometimes. Your parents won't mean to ignore you but their attention and focus is likely to be on your sibling right now.
Emotionally they're dealing with a lot, too. Lots of parents cope by going into 'survival mode' which means focusing all their energy on your sibling's treatment and the next steps. They'll also be under stress to keep everything together. Bills still need paying, the washing still needs doing, life carries on and it's really hard.
Try to be patient with your parents but at the same time, be honest. If you explain to them how you're feeling, it's more likely you'll get the reassurance you need. You might be able to come up with ways to help each other and work more as a team to get through this together.

Why do I feel jealous?

It's not surprising if you feel jealous. It might feel like your brother or sister is more important than you. You might understand why they need extra attention but that does not always make it easier.
Because of everything going on, parents often just run out of brain space. This means they could forget about things that matter to you, or have less time to focus on your life. It can be really hard if you feel like you are missing out. Try to get attention and support from friends or other family. Do not feel bad about venting or asking for help - you still have your own life to live.

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Info and advice on coping together when your brother or sister has cancer. You can play a valuable role and get the support you need to cope, too.

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TransPlus (UCAT)

Can self refer if you live with cancer or have a history of cancer where you feel it interacts with your gender-affirming care.

Specialist MDT that will discuss how they can support your specific needs whilst undergoing treatment or after

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Virtual clinic appointments to review both gender and cancer care

The option to include all the professionals involved in your care as part of a multidisciplinary team (MDT) discussion

Review of available evidence related to treatment decisions.

Letter of recommendations

Signposting to other important services such as therapy, psychosexual counselling, and fertility preservation.

You will also have the option to participate in research to help improve cancer care for the trans and non-binary community.

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UK Cancer and Transition Service - Transplus

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Virtual clinic appointments to review both gender and cancer care The option to include all the professionals involved in your care as part of a multidisciplinary team (MDT) discussion Review of available evidence related to treatment decisions. Letter of recommendations Signposting to other important services such as therapy, psychosexual counselling, and fertility preservation.

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Cancer support podcast

Episode discussing the unique challenges of young people living with cancer

More local information to Ipswich but also talks more broadly

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Episode 10: TYA – Teenage and Young Adult Cancer Support - Cancer Support Suffolk

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Ep 10: TYA – Teenage and Young Adult Cancer Support
April 15th, 2025
Welcome to the Cancer Support Suffolk podcast.
Host: Mark Murphy MBE
Guests: Dan Jolly (TYA Nurse Specialist, Ipswich Hospital), Julie Finbow Humphrey (Ipswich Cancer Wellbeing & Information Centre), and Jack Frere In this powerful episode, Mark Murphy

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CCLG Website

Lots of publications about different treatments, symptoms and diagnosis

Able to navigate the website for children or for Teenagers and Young Adults

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CCLG - The Children & Young People's Cancer Association

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Our publications are free and available as digital downloads or as physical booklets and factsheets.

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Radiotherapy UK

General information about radiotherapy treatment

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Your Diagnosis

Leaflet written by young people for Teenage Cancer Trust about what to expect following your diagnosis

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Your Guide to cancer

A longer book/ resource about most of the things you can expect following diagnosis

Information about treatment, hospital stays, relationships and life after cancer

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Sex with Cancer

Frequently asked questions about maintaining relationships and having sex whilst on treatment and after

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Sex with Cancer is an online shop, an artwork and a public campaign exploring how people living with and beyond cancer can take agency over their own health and wellbeing. Watch the video below to find out more...

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What if cancer patients got together to open a sex shop? Products, artworks and peer-led advice around illness and intimacy

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Motability Scheme

Check if you are eligible for help with purchasing a car, or help with adaptations to your current car

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Allowances and rates | Motability Scheme

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You need to receive a qualifying mobility allowance to be eligible to join the Scheme. Learn about DLA, PIP and other allowances.

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Late Effects

Explains life after treatment and how to manage symptoms, follow up appointments and key information post cancer

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Young Minds

Non cancer specific support for young people with guidance on a number of mental health questions

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YoungMinds | Mental Health Charity For Children And Young People

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YoungMinds are a mental health charity for children, young people and their parents, making sure all young people can get the mental health support they need.

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Proton Beam Therapy

What is proton beam therapy and how to plan for your treatment

Side effects of treatment and how to cope

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Proton beam therapy is not suitable for everyone. It can be used to treat children, teenagers, young adults and some adults (see below).

Proton beam therapy may be given on its own or in combination with other treatments. For example, it may be given with surgery, standard radiotherapy and chemotherapy.

Proton beam therapy is still quite a new treatment in the UK. Research is needed to find out more about its long-term benefits and side effects, and to compare it with standard treatments.

It is also important to remember that when treating most types of cancer, standard radiotherapy is a very effective and safe treatment. Standard radiotherapy can cause side effects, but they usually get better when the treatment has finished.

Your healthcare team will give you more information if proton beam therapy is suitable for you. It may be given as part of a clinical trial. We have more information about clinical trials.

Children, teenagers and young adults

Proton beam therapy may be used to treat children, teenagers and young adults. It can be better for these groups than standard radiotherapy, because it:

reduces the risk of damage to developing or growing cells

can help reduce the risk of long-term effects on normal cells, such as to the brain or bones.

It is used to treat most tumours that need curative radiotherapy in young people. Examples include:

brain tumours

types of soft tissue sarcoma, such as rhabdomyosarcoma

types of primary bone cancer, such Ewing's sarcoma

some types of cancers in the pelvic area

some types of cancers in the head and neck area.

Adults

Proton beam therapy can also be used to treat adults with cancers:

that can be difficult to treat because of where they are in the body

that are in a position where the side effects of standard radiotherapy would cause serious problems

where there is a high risk of late side effects from standard treatments

that do not respond well to standard radiotherapy and would need a very high dose of treatment to be effective.

It can also be used to treat cancers that are close to important structures. These can include:

cancers affecting the base of the skull

cancers affecting the spine

some types of cancers in the pelvis

some types of head and neck cancers

Low-dose proton beam therapy is also commonly used to treat cancers affecting the eye, such as ocular melanoma.

Proton beam therapy may sometimes be used to treat other cancers.

Before you start your treatment, it needs to be planned. This is to make sure the proton beam therapy:

is aimed precisely at the cancer

causes the least possible damage to nearby normal cells.

Proton beam therapy is planned for each person by a clinical oncologist and a specialist proton beam therapy team.

It is important to tell the hospital staff about any medications and allergies you have. If you take painkillers, they may advise you to take them before your planning and treatment. This can make you more comfortable.

You will spend around 3 to 5 days at the proton centre having the tests you need to plan your treatment. You will then go home until the treatment plan is ready. This can take 3 to 4 weeks. When it is ready you will return to the centre to start your treatment. If you live far away, you may need to stay at the proton centre until you finish your treatment. The centre will provide accommodation.

Radiotherapy masks and moulds

You may need to have a radiotherapy mask or mould made before planning starts. This is to help you stay still and in the correct position during your proton beam therapy.

Masks keep your head and neck area still. They are often used for planning and treatment to the brain, head and neck or upper chest area. Sometimes they are called thermoplastic shells or immobilisation devices.

Moulds are used to keep a leg, arm or other body part still during planning and treatment. Your doctors will tell you more about this if you need one.

We have more information about radiotherapy masks.

Imaging and planning

You usually start planning by having a CT scan. You may also have an MRI scan.

These scans build up a detailed picture of the area to be treated. A clinical oncologis t will mark on the scans the area to be treated and healthy tissue to try and avoid. A physicist then plans your treatment with your clinical oncologist. A computer uses the information from the scans to make an individual plan for your treatment.

This makes sure the proton beam therapy is precisely targeted at the cancer which helps reduce the risk of side effects. This plan is checked by members of the radiotherapy team to make sure it is safe.

Skin markings

You may have markings made on your skin. These help the radiographers position you for treatment.

Usually, tiny permanent markings are made in the same way as a tattoo. The marks are the size of a pinpoint. It can be a little uncomfortable while they are being made. But it makes sure the treatment is directed accurately. If you have a mould or radiotherapy mask, the marks may be made on this.

These marks will only be made with your permission. If you are worried about them or already have a tattoo in the treatment area, tell your radiographer. They can discuss this with you.

Making someone pregnant

It may also be important that you do not make someone pregnant during treatment, and for a few months after it has finished. You can ask your doctors for more information about this.

Fertility

Your ability to get pregnant or make someone pregnant is called fertility. If this is important to you, talk to your doctor or nurse before you start treatment.

We have more information about fertility for men and women.

Positioning you for treatment

Before your treatment, the radiographers help you on to the treatment couch and position you carefully. They also adjust the height and position of the couch. It is important you are comfortable, as you have to lie as still as possible during the treatment. Tell the radiographers if you are not comfortable.

Young children who are having proton beam therapy may have a general anaesthetic to help them lie still during each treatment. The anaesthetic only lasts for a short time. They may also have an anaesthetic if they are very anxious. Sometimes a play specialist comes to the treatment session to help them keep calm and still.

Before each treatment, you have a CT scan or x-rays in the treatment room. This makes sure you are in the correct position.

When you are in the correct position, the radiographers leave the room and you start your treatment. There is a camera, so they can see you from outside the room. There is also an intercom, so you can talk to them if you need to during your treatment.

You may have more CT or MRI scans during your course of treatment. This is to make sure the treatment is always accurately aimed at the cancer. The radiographers will tell you if you need to have more scans.

During treatment

Proton beam therapy machines have a part called the gantry. This moves around you to give the treatment from different angles. Or sometimes the treatment couch moves around and the machine stays still.

The movements are controlled by the radiographers from outside the room. The radiotherapy machine does not touch you. The treatment itself is painless.

When your treatment session has finished, the radiographers will come and help you off the treatment couch. It is important to wait until they tell you it is okay to move. You can usually go home when the treatment is finished.

Proton beam therapy does not make you radioactive. It is safe to be with other people, including children, throughout your treatment.

Proton beam therapy may cause fewer side effects than standard radiotherapy. This is because normal cells are exposed to less radiation. The possible side effects will depend on:

the area of your body being treated and what structures are close by

the amount of proton beam therapy you have

other treatments you are having, such as chemotherapy.

Below are some of the side effects of proton beam therapy. Not everyone will get side effects. It is difficult to know exactly how you will react to treatment. Your team will explain what to expect. Always tell them if you have side effects during or after proton beam therapy. They can give advice and support to help you cope.

General side effects

Side effects usually develop over time. They can include the following:

Tiredness - you may feel tired during treatment and for a few weeks after the treatment has finished.

Skin reactions - your skin may darken, become red, dry or itchy. Sometimes the skin can blister or peel. Skin reactions can be worse with proton beam therapy than with standard radiotherapy.

Hair loss - you may lose hair in the area being treated.

These side effects are usually mild and get better a few weeks after treatment has finished.

Most types of radiotherapy cause side effects that develop during treatment and slowly improve after treatment has finished. But sometimes side effects do not go away, or they start months or years after treatment has ended. These side effects are called:

long-term effects - if they begin during treatment, or shortly after treatment has ended, and do not go away

late effects - if they begin months or even years later, as a delayed response to treatment.

The possible late effects of proton beam therapy depend on the area of the body that is treated. Your cancer doctor, specialist nurse or radiographer can give you more information.

Children may get different late effects to adults. This is because they are still growing. Children and teenagers are more likely than adults to develop late effects after proton beam therapy.

At the moment, proton beam therapy is only used to treat a few types of cancer. We only know about some of the potential late effects of treatment for these cancers.

More research is needed to find out if proton beam therapy causes late effects when used to treat other types of cancer. If you are worried about the risk of late effects, talk to your cancer doctor or specialist nurse.

Proton beam therapy may cause fewer side effects for some cancers, but we do not know if it is better than standard radiotherapy or other treatments. Proton beam therapy has only been used to treat a few different types of cancer in the UK.

More research is needed before we know if proton beam therapy is as good as, or better than, standard radiotherapy or other treatments.

Possible benefits

The benefits of proton beam therapy include:

It can be used to treat cancers that are close to important parts of the body. These cancers can be difficult to treat with standard radiotherapy.

It may cause fewer side effects than standard radiotherapy. This is because there is less damage to normal cells.

It may be possible to give higher doses of treatment, without increasing side effects.

It may help reduce the risk of developing long-term or late side effects.

It may help reduce the risk of developing a second cancer.

Disadvantages

Disadvantages of proton beam therapy include:

Your cancer doctor or specialist nurse will talk to you about your treatment options. If proton beam therapy is suitable for you they will talk to you about the possible benefits and disadvantages. This will help you decide whether to have proton beam therapy or another type of treatment.

This information has been written, revised and edited by Macmillan Cancer Support's Cancer Information Development team. It has been reviewed by expert medical and health professionals and people living with cancer. It has been approved by Senior Medical Editor, Dr David Gilligan, Consultant Clinical Oncologist.

Our cancer information has been awarded the PIF TICK. Created by the Patient Information Forum, this quality mark shows we meet PIF's 10 criteria for trustworthy health information.

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Proton beam therapy - Macmillan Cancer Support

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Proton beam therapy is not suitable for everyone. It can be used to treat children, teenagers, young adults and some adults (see below). Proton beam therapy may be given on its own or in combination with other treatments. For example, it may be given with surgery, standard radiotherapy and chemotherapy.

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Spirituality and Cancer

Navigating spirituality in a time of questioning and uncertainty

How to connect with your spirituality instead of religion

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The information on this page will help you to find out more about spirituality and cancer, including recognising spiritual needs, ways to help you cope practically and emotionally, and where to find additional support.

Having cancer can make us to think about the bigger things in life, and this may include searching for meaning, questioning or being angry.

You may be looking for spiritual support. This can be from family and friends, your local community, a hospital chaplain or other religious leader. Other activities which offer a way of connecting with your spirituality include music, nature, poetry, art, meditation and mindfulness.

Living with cancer can sometimes raise big questions, and we may rely on a number of coping strategies. Whilst formal religion has declined over recent years many people still turn to spiritual support at a time of crisis.

Put simply, religion is an organised set of beliefs and practices a group of people follow, based on divinity and faith. There are many different religions. Meanwhile, spirituality is the sense of being part of something greater than ourselves, giving meaning and purpose in our lives.

Many people have spiritual needs that are influenced by personal values, beliefs and relationships. You may find you have questions, be angry with, or draw closer to a faith or spiritual support system. This could be particularly with end of life issues, but can influence any part of living with cancer.

Nurses and doctors, especially in cancer and palliative care, (but in caring situations generally) aim to be sensitive to spiritual needs and distress. Some of the focus may be about practical issues around your religion and beliefs. Religion can be a very personal topic, and so if it is important to you, please let your healthcare teams know.

Sometimes part of general psychological distress, anxiety and depression can be due to spiritual questions and a search for meaning. Here are some ways to recognise spiritual needs, and how to address them:-

Finding ways to cope spiritually

If your faith is important to youor you would like to draw closer to the religious part of spirituality, you could visit your local church or religious centre. Being part of something organised and spiritually uplifting can help with building your resilience and coping abilities at a time of crisis.

You can connect with your spirituality through the arts, meditation, nature, personal reflection and talking with others. You may find exploring new hobbies, finding ways to express yourself, and connecting with others helps give meaning and purpose.

Practice or develop new skills that help with relaxation, mindfulness, and creative therapies. Visit your local Maggie's centre, for example, and find out what is available, in terms of relaxation, therapies, support and a sense of community. Finding inner peace and tranquillity may help transcend physical and emotional problems - and ease spiritual tension.

Talk with someone who can identify your spiritual needs. You may have big questions or be struggling with 'why me?' and 'why now? This may be through your place of worship, the hospital chaplain, or religious leader. They can sometimes be the questions that people raise with their healthcare team, or when they visit somewhere like Maggie's. Talking about the big issues can help make ease the distress and anger you may feel.

Recognise that the thoughts, feelings and emotions you're experiencing are likely to be a mixture of psychological and spiritual issues - and that the sources of support you access for one, can often overlap. Talking about them with people who understand can help you feel heard and less isolated.

Many people with cancer, when asked about what is important to them, said that family and friends gave their life meaning. Making time for those close to you, and valuing quality time with people you love, can often seem more important when living with cancer.

When to seek further help

If you're finding that thoughts, feelings and emotions are making you worried, and low in mood - talk to someone. The issues you face may have a spiritual component, but your doctor will be able to recognise what is normal for you - and whether you are becoming depressed or need further help.

If you're angry, or are struggling with your faith and spirituality, it can help to talk with a local chaplain, church or religious leader. Hospital and hospice chaplains recognise spiritual distress, and aim to listen, whichever faith they belong to.

Visit your local Maggie's and talk with others who will understand that you are struggling - recognising that cancer has raised big questions for you. It may be that psychological support and the classes and workshops available can help you cope with the issues you're facing.

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The information on this page will help you to find out more about spirituality and cancer, including recognising spiritual needs, ways to help you cope practically and emotionally, and where to find additional support. Having cancer can make us to think about the bigger things in life, and this may include searching for meaning, questioning or being angry.

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Chaplaincy at Addenbrookes

Available to visit you on the ward to chat about anything, this doesn't have to be faith related

Multifaith area in the main concourse available for patients and relatives to sit alone or chat with a member of their team

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Our chaplains work alongside patients, staff and relatives within the whole hospital community and for a variety of reasons.

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It's on the ball

Testicular cancer charity based in Norfolk

Provide goodie bags to patients and can put you in contact with other Testicular Cancer patients to talk about shared experiences if you wish

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Blood Cancer UK

Leukaemia and other blood cancers

Info guides on coping with treatment, FAQs, and how to manage work or education

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Blood Cancer UK | Blood cancer and young adults

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A guide for young adults about diagnosis, treatment and side effects of blood cancer, including emotional support and how to manage at work and when studying.

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Partner Support

Online support groups for your partner or plus one to talk to others in the same boat about their experiences of your diagnosis

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If your partner is in their 20s, 30s or 40s and has had a diagnosis of incurable, stage 4 or chronic cancer, this programme could be for you.

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TYA Safe sex guide

Written by C9 doctors and nurses answering commonly asked questions about safe sex on treatment

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The Ella Dawson Foundation

Online support groups for people aged 18-30 with a cancer diagnosis

Information on how to access mental health support, exercise programmes, food and nutrition advice and much more!

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Reg. Charity 1197112.

Ella Dawson Foundation

© The Ella Dawson Foundation Copyright 2022, All Rights Reserved.

The Ella Dawson Foundation is a registered charity: 1197112 (England and Wales).

The Art Studio, 3 Delves Moor, Huddersfield, HD7 5TY

Tel: 07733 104198

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Reg. Charity 1197112. Ella Dawson Foundation © The Ella Dawson Foundation Copyright 2022, All Rights Reserved. The Ella Dawson Foundation is a registered charity: 1197112 (England and Wales). The Art Studio, 3 Delves Moor, Huddersfield, HD7 5TY Tel: 07733 104198

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The Ella Dawson Foundation

Online support groups for people aged 18-30 with a cancer diagnosis

Information on how to access mental health support, exercise programmes, food and nutrition advice and much more!

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What can movement do for you?

What is it and how can it help me?

We're not talking about headstands, impossible arm balancing or power performance yoga. We're talking about a deeply nourishing practice to help you navigate your way through your cancer journey.

This includes:

gentle nourishing yoga

functional movement

breath awareness

self-massage

guided relaxation

During and after treatment, it's hard to predict how you are going to feel from one day to another. Feeling completely depleted and weary to the bone one day and full of energy and superhuman the next.

For the days when fatigue is the challenge then a super gentle practice done in bed or sat in a chair can be deeply nourishing and relaxing. And for the days when you have the energy but you're struggling to find inner strength, then we can start to find it on the outside by adding strength building into your yoga practice. Once you feel that strength in your body, you may start to feel it in your heart and mind, too.

Ella Dawson Foundation

© The Ella Dawson Foundation Copyright 2022, All Rights Reserved.

The Ella Dawson Foundation is a registered charity: 1204154 (England and Wales).

Tel: 07418 613885

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How you move will change throughout your cancer journey and that's okay, we're here to guide you through it all. Exercise and yoga programmes and groups for young adults living with and beyond cancer.

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The Cancer Wellbeing service

Information about the wellbeing service available for patients in Peterborough

In person service offering workshops, exercise classes, art therapy and more

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Cancer Care map

Website to help find cancer support services near you

Can be filtered by area, cancer type and your age to find the most relevant support

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Lasting Memories

Weekend breaks, concerts, sport events and lots of other trips and experiences for young people and their families in Cambridgeshire, Bedfordshire or Hertfordshire.

You can apply for these yourselves or a family member can apply on your behalf.

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Memorable Days and Respite breaks for families affected by Cancer

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Need a break from the stress and worry of a cancer treatment or the affects of treatment? We facilitate and fund Memorable Days and short breaks for you and your loved ones. Apply Now!

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Breast Cancer Now

Support groups on and offline for young people with breast cancer

Run residentials and one day events for just young people, or some for any age

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If you’re a younger woman with breast cancer, you’re not alone. Young Women Together is a space to meet women who understand and get tailored support.

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Alike App

App for chatting to other cancer patients and has the option to arrange meet ups as a group or 1-1.

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We've created the world's first not-for-profit digital peer support network designed around the specific needs of cancer patients and survivors.

Simple, accessible tech that values authentic connection over social clout.

This space is for us, the cancer community. It's so we can find and connect with others who have been there, done that, and worn the unflattering hospital gown. Wherever you're at in your cancer journey, the Alike app is here for you... So hop in.

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We've created the world's first digital peer support network, designed around the specific needs of cancer patients. This space was built specifically for you, and developed by listening to the cancer community and embracing new technologies.

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Bone Cancer Research

Support for people affected by primary bone cancer

Host meet ups- The next one is in Cambridge on 4th October 2025.

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We are a supportive network for people affected by primary bone cancer; bringing people together, sharing stories that inspire hope, and signposting people to specialist support.

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Who can help on the ward?

Introduction to some of the faces and services you will meet on C9

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Ovarian Cancer

Information and guidance about ovarian cancers

Section for younger women and booklet about coping with the psychosocial affects of ovarian cancer

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Home | Ovarian Cancer Action

The best care, treatment, and chance of living their life to the fullest. Discover the vital research we're working on to do this and how you can join us in our mission to prevent ovarian cancer, catch it early and treat it effectively.

Ovarian cancer symptoms

Ovarian cancer has four main symptoms. You can use our diary to keep a record of the symptoms you are experiencing to take with you. This will help your GP make a speedier diagnosis.

Find out more

Patient Hub

The Patient Hub provides information and advice that will help guide you from your diagnosis, through to treatment and beyond. It features information about how ovarian cancer is treated, advice for younger women, where to go for more support and advice, and more.

BRCA & Lynch Hub

Our genes are the instructions that spell out how to make proteins, which are the building blocks of our body. They are an instruction manual that defines how our bodies work.

Genetic mutations can increase your risk of developing certain cancers.

Find out more

Keep in touch

Join our newsletter, be the first to read our equality reports and stay up-to-date with the latest news and information from Ovarian Cancer Action.

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Home | Ovarian Cancer Action The best care, treatment, and chance of living their life to the fullest. Discover the vital research we're working on to do this and how you can join us in our mission to prevent ovarian cancer, catch it early and treat it effectively.

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CML Support

Support services for Young People and adults diagnosed with Chronic Myeloid Leukaemia

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Diagnosis is a scary time, before your journey starts and these amazing drugs take effect. There is outdated, inaccurate information on the web. CML support was the place where I found a community of fellow patients, good information and advice, together with accurate helpful guidance and knowledge.

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Diagnosis is a scary time, before your journey starts and these amazing drugs take effect. There is outdated, inaccurate information on the web. CML support was the place where I found a community of fellow patients, good information and advice, together with accurate helpful guidance and knowledge.