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National Breastfeeding Helpline - Helpline

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BAPM - Helping you communicate with neonatal staff 

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BAPM - Helping you communicate with neonatal staff 

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British Association of Perinatal Medicine

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Families | British Association of Perinatal Medicine

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Support for parents, carers and families spending time in the neonatal unit.

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Family Integrated Care (FICare) is a model of care for babies born premature or sick, which promotes a culture of partnership between parents and carers and healthcare professionals working to care for babies on the neonatal unit.

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A Mission. A Movement. A Brand for Breastfeeding Mothers.

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For those on Labour Ward & Ward 20.

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Storing breastmilk after discharge - Breastfeeding Network advice. 

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Storing breastmilk after discharge - Breastfeeding Network advice. 

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Advice after discharge.

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Family Integrated Care In the NICU, infants are physically separated from their parents and this often has an impact on the physical, psychological, emotional health of both the parents and the infants. Family Centered Care is an approach to planning and delivery of health care that encourages greater parent involvement in their infants care.

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Once you have established breastfeeding.

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Milk Donor Kerry's Story

Baby Eleanor was diagnosed with a rare heart condition at birth. Read the amazing story about how Kerry donated her surplus expressed milk to the Hearts Milk Bank.
READ KERRY & ELEANOR'S STORY

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Milk donors | The Hearts Milk Bank - Human Milk Foundation

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The HMF can help Milk Donors with all of the information that they need, find out more about eligibility, how to donate breastmilk, screening & FAQs

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Find below a range of useful resources for parents on infant feeding and relationship building, as well as information on overcoming common breastfeeding challenges.

There are various mother support groups which offer infant feeding support:

Find more useful organisations.

Breastfeeding is the healthiest way to feed your baby. If you decide not to breastfeed or to stop breastfeeding, it is possible to restart. Giving infant formula to a breastfed baby will reduce your milk supply. You do not need to eat any special foods while breastfeeding, but it is a good idea for you, just like everyone else, to eat a healthy diet.

Resources to support you

Below is a selection of resources to support you with feeding, caring, and building a close and loving relationship with your baby.

Overcoming breastfeeding problems

You may find whilst trying to establish breastfeeding that you run into problems. Whilst these can be debilitating and painful, thankfully the most common ones can be solved relatively quickly and easily - given the right support.

Unfortunately, support is often not available or, what is worse, mothers are told that problems such as engorgement and sore nipples are a normal part of breastfeeding. This is not true.

Below you can read about how different problems develop, how to spot them at a early stage, and how to solve them by yourself or with the support of a health professional.

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Support for parents - Baby Friendly Initiative

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Resources and information for parents to support with feeding and developing close and loving relationships with their baby.

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The Breastfeeding Network | Independent Breastfeeding Support

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The Breastfeeding Network (BfN) is an independent source of support and information for breastfeeding women and others.

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A free parents and baby group for those who have spent time on the neonatal unit. This is run by our amazing Neonatal Outreach Team.

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A short video demonstration to help you hand express.

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This video guides mothers on how to hand express and talks about the times when hand expression might be useful.

See the Breastfeeding Network website for FAQs and a leaflet all about expressing and storing breastmilk.

Problems viewing this video? Contact us.

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Hand expression video - Baby Friendly Initiative

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This video guides you through how to hand express, and talks about the times when hand expression might be useful for you.

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Help me quit!

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Help Me Quit | Stop Smoking Services In Wales

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Start your quit journey, with Help Me Quit free NHS support. Contact us today for a smoke free tomorrow.

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How to sterilise using the Ardo easy clean microwave bags.  

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How to sterilise using the Ardo easy clean microwave bags.  

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Click this link and scroll down to video. Please ask a member of the team for a demonstration and advice around sterilising feeding equipment whilst on the unit.

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Ardo Easy Clean Microwave Bag is ideal for sterilising pump sets, bottles, breastshells. Small and lightweight, they are ideal for either using at home or out & about.Easy Clean Microwave Bags - Compact and lightweight, the Ardo Easy Clean microwave b

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How to assemble Medela's Symphony pump set with PersonalFit PLUS | Medela | How-To Use

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Going home from the neonatal unit | Bliss

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You may have a lot to think about when you go home from the neonatal unit with your premature or sick baby. Find out more about preparing to go home, and what support is avaliable.

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Once you are discharged from Labour Ward or Ward 20 - Get your free meal vouchers from reception or ask the nurse caring for your baby.

Dad or birth partner is able to get a meal voucher at any time.

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Most car accidents happen close to home. Child car seats can keep your child safe. But not every seat fits every car. And if a seat is fiddly to use, you may be tempted not bother with it on short journeys. Here are our top tips for choosing the best car seat for your child.

There are two different types of car seat:

Group (0-III) is based on the weight and physical development of the child.

Age ranges are given too, but these are just for guidance.

i-Size is based on the child's height and seats provide protection from side impacts.

They fit all i-Size-ready cars and some ISOFIX cars.

As not all i-Size seats fit ISOFIX cars, we advise checking if the seat is approved for your car before you buy one.

It's safest for babies to travel rear-facing for as long as possible.

Rear-facing seats are either:

Group 0+ (Group 0 seats are no longer readily available)

i-Size.

Don't be tempted to move a baby to a forward-facing seat just because their feet are pressing against the rear seat of your car.

It's best to wait until they reach the weight limit or the crown of their head reaches the top of the baby seat.

Always travel with your baby in the back seat if you can.

If it's essential for them to be in the front seat, the passenger airbag must be switched off - if the airbag activates in a crash it will harm your baby.

Remember, child car seats aren't intended to be places for babies to sleep when you're not travelling, so move them to a moses basket or cot as soon as you can.

When your baby has outgrown their baby car seat they can be moved to a child seat that can be forward-facing or rear-facing.

Some seats are designed to be changed from rear-facing baby seats to forward-facing toddler/child seats when your child is 15 months.

Others, sometimes known as extended rear-facing seats, can be used rear-facing until your child is 105cm tall, about 4 years old.

Rear-facing seats can offer high levels of protection for your child's neck, especially in a head on collision, so the longer they travel in a rear-facing seat the safer they should be in a crash.

More advice on extended rear-facing seats can be found at www.childcarseats.org.uk/media/1022/extended-rearward-facing-child-car-seats.pdf

It's safest to keep your child in a car seat with an integral harness for as long as possible. Only move your child to a booster seat when their eye-line is above the back of the child seat or the weight limit is reached.

Most booster seats 'grow' with your child.

Booster seats suitable for children who weigh between 15kg and 36kg are:

A high-backed booster seat offers the best protection for your child, providing side protection and support.

Remember, adult seat belts don't sit on children's bodies in the right places and can injure them in a car accident.

Buying second-hand car seats is not recommended.

They may have been damaged in an accident, but you won't necessarily be able to tell by looking at them.

If you do use a second-hand car seat, try to make sure you know its history and read the manufacturer's instructions. Check nothing's damaged and no parts are missing.

Not every seat will fit properly in every car. Try the seat in your car before you buy it, or check the returns policy.

Make sure the seat can be fitted exactly to the manufacturer's instructions.

The seat should be secure. If it wobbles, it is either wrongly fitted or not suitable for your car.

If your car has ISOFIX attachments, consider buying an ISOFIX seat.

Try to find a seat that's quick and easy to fit into your car. If it's awkward, it may be tempting to not bother with it on short journeys.

It's vital you use your child car seat on every journey - most accidents happen within a short distance of home.

Make sure the seat you buy fits on the back seat as this is safer for your child.

The law applies to cars, vans and other goods vehicles.

You must always use a child restraint appropriate for the child's age, height and weight, whether the child is travelling in the front or rear of the vehicle.

If an appropriate restraint is not available, it's illegal for a child to travel in the vehicle.

The only exception is in a taxi if the correct child restraint isn't available.

An adult seat belt must be worn if fitted.

Find out about cycle safety and teaching road safety.

Download the Department for Transport's booklet on seat belts and child restraints.

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Child safety in the car - a guide to child car seats Most car accidents happen close to home. Child car seats can keep your child safe. But not every seat fits every car. And if a seat is fiddly to use, you may be tempted not bother with it on short journeys.

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Premature baby welfare advice charity

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Hello

Welcome to The Smallest Things, a registered charity promoting the good health of premature babies and their families. We're really glad you found us. Whether you're a parent or family member looking for support, an employer wanting to help your staff, or a health professional looking for information, you're in the right place.

Following its #NotMatLeave campaign, The Smallest Things was delighted when the government announced in March 2020 that parents of babies admitted to neonatal care would receive paid time off work.

Plans for 2022/23 were recently made public and once again the government has failed to include neonatal leave. This is despite Prime Minister Boris Johnson assuring us in November 2021 that legislation would be brought forward ''one way or another''.

Neonatal families have been forgotten and continue to be kept apart by work and financial pressures at a time they need to be together most.

About us
The Smallest Things exists because we don't believe there's enough understanding of the unique needs of families of premature babies.
Going home from the hospital is far from the end of the journey through neonatal care. Many babies have longer-term needs and lots of parents struggle mentally, practically and financially following the trauma of NICU. We're here for them.

From signing the petition to extend parental leave to making a donation or hosting a picnic, there are lots of ways you can support The Smallest Things...

Fundraise for us
Fancy getting your trainers on and running 10K? Or perhaps coffee and cake are more your thing? There are lots of ways to raise money for The Smallest Things and we'll support you every step of the way.

Ask your employer
In February 2018, with no sign of new legislation on the cards, we launched our Employer with Heart charter, asking businesses to extend parental leave for staff who have babies born early. Has your workplace signed up to our charter yet?

Make a donation
We're a tiny charity run entirely by volunteers so every penny really does count. Your donations help us to raise awareness, carry out research, host events, consult with government officials and launch schemes such as our 'preemie proud' red book stickers.

Sign the petition
More than 350,000 people have signed our petition asking Kelly Tolhurst MP and government colleagues to recognise the significant and unique needs of families with children born prematurely and to extend statutory leave accordingly. Is your name on the list?

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The Smallest Things exists because we don't believe there's enough understanding of the unique needs of families of premature babies. Going home from the hospital is far from the end of the journey through neonatal care. Many babies have longer-term needs and lots of parents struggle mentally, practically and financially following the trauma of NICU.

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How to give a baby CPR - Resuscitation Council UK

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How to give a baby CPR - Resuscitation Council UK

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How to give a baby CPR - Resuscitation Council UK

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When you first use the breast pump - it is advised for you to use the "initiate" setting - otherwise known as the colostrum setting. Use this until you milk comes in.

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How to Start Symphony PLUS® Initiate Program

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A free app for babies under 6 months to support you in when to reach out to a health professional when your baby is unwell.

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If you’re worried your baby is unwell, our free Baby Check app helps you decide whether they need to see a health professional or not…

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Use this setting when your milk has "come in". A rough guide is when you pump 3 lots of 20mls.

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How to Start the Symphony PLUS® Maintain Program

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We link closely with health visitors throughout your baby's stay in NICU and will inform them when your baby is discharged so that they can visit you at home shortly after discharge.

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Rydym yn croesawu gohebiaeth a galwadau ffôn yn y Gymraeg neu'r Saesneg. Atebir gohebiaeth Gymraeg yn y Gymraeg, ac ni fydd hyn yn arwain at oedi. Mae'r dudalen hon ar gael yn Gymraeg drwy bwyso'r botwm ar y dde ar frig y dudalen.

We welcome correspondence and telephone calls in Welsh or English. Welsh language correspondence will be replied to in Welsh, and this will not lead to a delay. This page is available in Welsh by clicking 'Cymraeg' at the top right of this page.

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Rydym yn croesawu gohebiaeth a galwadau ffôn yn y Gymraeg neu'r Saesneg. Atebir gohebiaeth Gymraeg yn y Gymraeg, ac ni fydd hyn yn arwain at oedi. Mae'r dudalen hon ar gael yn Gymraeg drwy bwyso'r botwm ar y dde ar frig y dudalen. We welcome correspondence and telephone calls in Welsh or English.

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The safest cot is a clear cot

The safest cot for a baby is a clear cot. That means removing anything that isn't essential. Babies need just two items in their cot:

It's important to remove anything that isn't essential because items such as toys, blankets and bumpers could cover their face and obstruct their breathing.

When preparing your baby's sleep space, remember:

No pillows or duvets

No cot bumpers

No soft toys or comforters

No weighted or bulky bedding

No products designed to keep your baby in one sleeping position, such as wedges or straps

No pods or nests, rolled up towels or anything soft placed on top of the mattress.

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Safer sleep overview - The Lullaby Trust

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An easy guide to practicing safer sleep for your baby and reducing the risk of sudden infant death syndrome (SIDS, or cot death).

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A guide on buying safer sleep essentials

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A guide on buying safer sleep essentials

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Parenting & Family support

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Parenting and Family Support - Family Lives (Parentline Plus) | Family Lives

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Parenting and family support from Family Lives (formerly Parentline Plus) through our website, helpline 0808 800 2222, email service at askus@familylives.org.uk, live chat and local services.

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How to put together and use the Ardo Breast pump 

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How to put together and use the Ardo Breast pump 

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IBCLC, Ilayda shows us how to use the Ardo Calypso Double breast pump!

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Getting the right size is really important. If you are experiencing discomfort please reach out to a member of the nursing team to help. You want to ensure the nipple is moving back and fore freely with limited areola (skin around the nipple) being suctioned in. We have a variety of sizes to suit your need.

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Medela Breast Shield: Choose the right size | Medela | How-To Use

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If you require a different size flange on the Ardo pump

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If you require a different size flange on the Ardo pump

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Safe storage of breastmilk when you are on the neonatal unit

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Safe storage of breastmilk when you are on the neonatal unit

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Until your baby is ready to feed orally they will receive milk via a feeding tube. With training and support we can help you learn to tube feed your baby - ask a member of staff about this.

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What is tube feeding?

During tube feeding, breast milk or formula is given through a tube passed into your baby's nose or mouth to their stomach. Types of tube feeding include the following:

Nasogastric tube feeding (also called an NG tube) - This is when a baby is fed through a small soft tube, which is placed in the nose and runs down the back of the throat, through the food pipe (oesophagus) and into the stomach.

Orogastric tube feeding - This is when a baby is fed through a small soft tube, which is placed in the mouth and runs down the back of the throat, through the food pipe (oesophagus) and into the stomach.

Babies who are very premature or sick may need to be fed using parenteral nutrition (PN) at first.

Why does my baby need to be fed using tube feeding?

Tube feeding is often used to feed premature and sick babies as they can be too small and sick to breastfeed or bottle feed at first. Babies born premature or sick have a low supply of energy and nutrients, so it is important that they are able to have small nutritional feeds often, without lowering their energy levels.

In babies born premature, the coordination of sucking, swallowing and breathing needed for effective feeding is usually not fully established until about 32 to 34 weeks' gestation (although this is different for different babies). Babies born at term and sick may also take longer to co-ordinate feeding. Tube feeding will help your baby receive enough nutrition to grow and develop.

Can I be involved in caring for my baby if they are being tube fed?

Yes, you can. Staff on the neonatal unit will encourage you to be as involved as possible in the care of your baby on the neonatal unit. If you feel comfortable doing so, they should show you and your partner how to give tube feeds. Staff on the neonatal unit will explain how tube feeding works and will teach you how to:

Check the tube is in the correct position before feeding

Prepare the milk and fill the syringe that is connected to the feeding tube

Position your baby correctly for tube feeds

Give the milk slowly to support comfortable digestion

Know what to look for during a feed.

This can feel quite scary at first, but with practice you should gain confidence. You will have the time to give the milk very slowly which helps your baby to digest more comfortably.

If your baby is well enough to come out of the incubator, you and your partner can also practice skin-to-skin contact with your baby while they are tube feeding. Skin-to-skin contact has lots of benefits for you and your baby, and helps parents to feel closer to their baby and more confident in caring for them.

When can my baby stop tube feeding?

In time, you may notice your baby demonstrating feeding cues during a tube feed. For example, they may open and close their mouth, put out their tongue or suck their fingers during a tube feed. This shows that they might be ready to practise breastfeeding or bottle feeding.

If you are planning to breastfeed and your baby is well enough to come out of the incubator, giving them lots of opportunities to be close to the breast may help them to learn to breastfeed. During a tube feed may be a good time to do this. When they are more mature and interested enough, some babies will start licking milk and in time practice sucking. As your baby starts to take more breast and bottle feeds, they will not need as many top-ups of milk from the feeding tube. This will depend on your baby's energy levels and their ability to coordinate sucking, swallowing and breathing.

Some parents have concerns about their baby changing from tube feeding to breastfeeding, as it is more difficult to measure how much milk their baby is having. Your baby will show signs that they are receiving enough milk, such as feeding cues and wet and dirty nappies. The healthcare team supporting you will monitor your baby's feeding and will manage any top-ups that might be needed. Talk to a member of staff on your unit if you have any concerns.

What will happen if my baby needs to go home from the neonatal unit with a feeding tube?

If your baby is going home with a feeding tube, a member of unit staff will show you how to feed and care for the tube yourself. It may be you or your community neonatal nurse who will replace the tube when you go home. This will depend on your baby's needs, your preferences, and the support the unit provides.

Support will always be available if you do not feel comfortable with replacing the tube yourself. If you have any questions or concerns, talk to the unit staff.

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Your baby may be fed using tube feeding while on the neonatal unit. Find out why this might be and information about caring for your baby while they are being tube fed.

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My baby isn't ready to feed yet - what can I do to prepare?

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A Research project on breastfeeding expectations - Denmark 2020

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The Milky Way Project - The breastfeeding Journey in NICU 

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The Milky Way Project - The breastfeeding Journey in NICU 

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Click and watch this video for some tips on getting your baby to latch effectively.

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In this video, a breastfeeding counsellor helps a mother with her positioning and attachment whilst breastfeeding.

Key to achieving the Baby Friendly standards is a workforce able to support mothers to breastfeed effectively. This video provides some guidance on this.

You can see more of the 'From Bump to Breastfeeding' DVD on the Best Beginnings website.

Video not working? Contact us

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Positioning and attachment video - Baby Friendly Initiativ

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In this video, a breastfeeding counsellor helps a mother with her positioning and attachment whilst breastfeeding. Watch to learn more.

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Singleton NICU Breastfeeding Score chart

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Singleton NICU Breastfeeding Score chart

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When establishing breastfeeding - this chart will help guide you and a member of the team with top up's.

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A guide to bottle feeding & making up formula - UNICEF & Better Health Start for Life.

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Useful recourse for non biased information around infant milk

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Infant milks for parents & carers — First Steps Nutrition Trust

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First Steps Nutrition Trust is a charity which provides clear, evidence-based and independent information and support for good nutrition from pre-conception to five years of age.

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Breastfeeding Support

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Breastfeeding and coronavirus
Getting breastfeeding started

Life with a new baby

Common Concerns

Milk Supply and Combi-Feeding

Milk Expression and Storage

Family Foods

Working and separation

Breastfeeding an older baby

Can I breastfeed if...?

Other Topics

Breastfeeding Today (LLLI)
Information & stories
article index
Please note: The breastfeeding information on this website has been put together by La Leche League Leaders, who are accredited by La Leche League to provide breastfeeding information. Please note that Leaders have a wide knowledge and experience of breastfeeding but are not medically trained. If you have a medical query, or are concerned about your health or the health of your child please consult your doctor.

Information, references and links on this website are taken from La Leche League resources, unless stated otherwise. Please note that La Leche League GB does not endorse information from outside sources, extra information is provided for you to consider.

Information supplied is not intended as advice. You are in the best position to make a decision as to how the information offered will affect you and your baby.

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There are a range of ways LLLGB can offer you support with breastfeeding, by telephone, in writing, or using our online information and printed materials. If the blue "chat now" button is showing, then you can also use our online chat service to have an instant conversation with one of our breastfeeding counsellors.

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Here at Breastfeeding Twins and Triplets UK we will answer all of these questions and more. We will try to put your mind at rest whilst being honest about journey on which you are about to embark. Breastfeeding more than one baby is challenging, but it is definitely possible and a lot of mums go on to have a really enjoyable experience.

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https://t.co/JYkPKiHN0n pic.twitter.com/WJS3KcBnYa
— Singleton NICU (@SingletonNICU) April 10, 2024

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Skin-to-skin contact - Baby Friendly Initiative

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Skin-to-skin contact is important for babies and mothers to develop close, loving parent-infant relationships and to initiate breastfeeding.

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Connect with you baby - Screen Free - Ei-SMART 

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Connect with you baby - Screen Free - Ei-SMART 

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A free app so we can share with you photos and videos of your baby when they are in NICU

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Our cards of courage are handmade by a handful of our talented nurses, each card represents a milestone in your babies' journey. Please ask a member of our team about them!

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EI-SMART

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Use our free age-appropriate play leaflets to support your child or patients' development - available in multiple languages. Access our free podcasts, publications, posters and articles to learn more about EiSMART in practice.

Learn more about the EiSMART approach in our video

Learn more about the EiSMART approach in this video, where Anna Basu and team discuss their paper, 'Early intervention programmes for infants at high risk of atypical neurodevelopmental outcome'.

PLAY VIDEO

Free Resources To Support High Risk Infants

Our Leaflets

Read Our Publications

Early intervention programs for infants at high risk of atypical neurodevelopmental outcome

A presentation of the EiSMART framework published in Developmental Medicine & Child Neurology.

LISTEN TO PODCAST

support us

Give high risk infants the best start in life by supporting EiSMART
SUPPORT US

join our mailing list

Receive the latest newsletters, updates and resources from EiSMART
JOIN NOW

get in touch

We would love to answer any questions you may have about EiSMART
CONTACT US

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Building A Brighter Future For High Risk Infants: EiSMART is a transdisciplinary approach to early intervention for infants at risk of developmental delays.

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Click here for weaning advice

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This information is about introducing your premature baby to more solid foods, and the steps you can follow as your baby moves from milk to eventually only eating solids. This is called weaning.

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Wait for Green - Singleton NICU Bottle feeding readiness & Skill score 

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Wait for Green - Singleton NICU Bottle feeding readiness & Skill score 

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Use this with the support from a member of staff to understand more about bottle feeding your baby whilst on NICU.

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Bottle Feeding Readiness & Skill Score - FINAL 2026 Edit

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This leaflet explains the conditions screened for and how the sample is taken.

This information is available in large print and Braille. Please ask your midwife or health visitor.

This animation gives you information on the bloodspot screening test that you will be offered for your baby once they are born. It shows how the test is taken and explains the conditions being screened for.

Published April 2022, Version 10

You will be offered a bloodspot screening test for your newborn baby for nine rare but serious conditions. The sample for this test is usually taken five days after your baby is born. This leaflet explains the conditions screened for and how the sample is taken. If you have any more questions, please talk to your midwife.

Contents

― Why should I have my baby screened?
― What are newborn babies screened for?
― Will screening for these conditions show up anything else?
― Who will take the bloodspot sample?
― How will the bloodspot sample be taken?
― Are repeat blood samples ever needed?
― Screening is recommended
― How will I hear about the results?
― What happens to your baby's bloodspot screening card after screening?
― Using your information

Newborn bloodspot screening identifies babies who may have rare but serious conditions

Most babies screened will not have any of the conditions. However, for the small number that do, newborn bloodspot screening means that these babies can receive early specialist care and treatment

Early treatment can improve their health and prevent severe disability or even death

If a baby has a 'suspected' screening result for any of the conditions, they will need further tests to confirm that they have the condition

The test is safe and there is no known harm to your baby associated with having the test

In Wales all babies are offered screening for the following conditions:

Inherited metabolic disorders:

Medium-chain acyl-CoA dehydrogenase deficiency (MCADD)

Phenylketonuria (PKU)

Maple syrup urine disease (MSUD)

Isovaleric acidaemia (IVA)

Glutaric aciduria type 1 (GA1)

Homocystinuria (HCU)

Congenital hypothyroidism (CHT)

Cystic fibrosis (CF)

Sickle cell disorders (SCD)

Inherited metabolic disorders

Babies with these rare inherited disorders cannot process certain substances in their food. Without treatment, babies with these disorders will have serious long-term health problems and for some of the disorders babies can become suddenly and seriously ill.

Newborn screening means that babies who have one of these disorders can be identified early and have the right diet and treatment and specialist care to prevent health problems from developing.

It is very important to let your healthcare professional know if you have a family history of any of these metabolic disorders.

Babies are offered screening for the following six inherited metabolic disorders (IMDs):

Medium-chain acyl-CoA dehydrogenase deficiency (MCADD)

Babies with MCADD have problems breaking down fats to make energy for their body. If babies are not screened and have this disorder, the diagnosis may only be made when they become suddenly and seriously unwell. Three or four babies in Wales are born with MCADD each year.

Babies with PKU cannot break down an amino acid called phenylalanine. Amino acids are 'building blocks' of protein and we get protein from certain foods. If untreated, babies with PKU will develop
a serious permanent mental disability. Newborn screening means that babies can be identified and treated with a special diet to prevent this disability. Three or four babies in Wales are born with PKU each year.

Babies with MSUD, IVA, GA1 or HCU cannot break down certain amino acids that are contained in the protein we eat, in the usual way. This leads to harmful levels of certain amino acids and other harmful chemicals in the blood. These are rare disorders and it is expected that one or two babies in Wales will be born with one of these disorders each year.

Congenital hypothyroidism (CHT)

Babies with congenital hypothyroidism do not
have enough of the hormone thyroxine. Without this hormone, they do not grow properly and can develop a serious, permanent, physical and mental disability.

Approximately 18 babies in Wales are born with CHT each year.

Newborn bloodspot screening means that babies with CHT can be identified and treated early with thyroxine tablets. This treatment will prevent serious disability and allow the baby to develop normally. If babies are not screened and are later found to have CHT, it may be too late to prevent them becoming seriously disabled.

Cystic fibrosis (CF)

This inherited condition affects digestion and the ability of the lungs to work properly. Babies with CF have problems digesting food and may not gain weight well. They are also more likely to have frequent chest infections.

Between 12 and 14 babies in Wales are born with CF each year.

Newborn bloodspot screening means that babies with CF can be identified and treated early with a high-energy diet, medicines and physiotherapy. Early treatment is thought to help children with CF live longer, healthier lives. If babies are not screened for CF and they do have the condition, they can be tested later, but parents may have an anxious and uncertain time before CF is diagnosed.

Sickle cell disorders (SCD)

These are inherited disorders that affect the red blood cells. If a baby has a sickle cell disorder,
their red blood cells can change to a sickle shape and become stuck in the small blood vessels. This causes pain and damage to the baby's body, serious infection, or even death.

Three or four babies in Wales are born with a sickle cell disorder each year.

Newborn bloodspot screening means that babies with SCD can be identified, and receive early treatment, including immunisations and antibiotics. This, along with information and support for parents, will help prevent serious illness and allow the child to live a longer and healthier life.

Occasionally, other medical conditions might be identified through these screening tests. Screening may identify babies who are genetic carriers of the conditions tested or of other unusual red blood-cell disorders.

Screening for cystic fibrosis (CF) includes testing some babies for the most common gene changes that cause CF. This means screening may identify some babies who are likely to be genetic carriers of CF. These babies may need further testing to find out if they are a healthy carrier or have CF. Carriers of CF are healthy, and will not be affected by the disease.

Newborn bloodspot screening is carried out five days after your baby's birth. Occasionally this may be later than five days. The sample is usually taken by the midwife in your home, or in the hospital.

Other health professionals, who have been trained to carry out newborn bloodspot screening, may take the sample.

The midwife will prick your baby's heel using a special device to collect four drops of blood onto a newborn bloodspot screening card. Collecting these bloodspots usually takes a few minutes. The card is sent to the Newborn Screening Laboratory in Cardiff for testing. The midwife will write your baby's details on the card to identify them.

The heel prick may be uncomfortable and your baby may cry.
You can help by:

making sure your baby is warm and comfortable, and

cuddling your baby and giving them a feed.

Occasionally the midwife or health visitor will contact you and ask to take a second blood sample from your baby's heel.

This may be because:

there was not enough blood collected

the information recorded on the bloodspot card was incomplete

the result was unclear

your baby was born early, or

your baby had a blood transfusion before the test.

Your midwife or health visitor will explain the reason to you. It is important that if a repeat test is needed it is done promptly so that all the tests have been completed within the early weeks of life.

Screening your baby for all the conditions discussed is recommended by the NHS.

The midwife will make sure that you have the opportunity to ask any questions that you have after reading this leaflet, and at least 24 hours before the sample is taken.

Before taking the bloodspot sample, the midwife will provide another opportunity to discuss the screening, and answer any questions you may have. You will be asked for your consent (permission) for your baby to have newborn bloodspot screening.

If you do not want your baby screened for any or all of these conditions, please let your midwife know. Please note that screening for the six inherited metabolic disorders is carried out as one test. This means that it is not possible to have your baby screened for only some of the inherited metabolic disorders.

The midwife will record any conditions you don't want screening for on your baby's newborn bloodspot screening card. You will be asked to sign the screening card to confirm this. Your GP and health visitor will be told.

If you change your mind and want your baby to have newborn bloodspot screening in the future, please let your health visitor know. They will make arrangements for this to be carried out. Newborn bloodspot screening is offered to all babies up to one year of age. However, screening for cystic fibrosis is only offered up to eight weeks of age because the test becomes unreliable after this time.

All your decisions will be recorded in your maternity record and in your baby's personal child health record (often referred to as their 'red book').

If you have any concerns about your baby's screening, please discuss them with your midwife, health visitor or GP.

Most babies will have 'not suspected' results, which mean that they probably do not have any of the conditions screened for. These results will be sent to you in a letter within six weeks of the sample being taken. Your health visitor will discuss the results with you and answer any questions you may have.

If your baby's screening result shows that they may have congenital hypothyroidism or an inherited metabolic disorder, you will usually be contacted in person or by phone before your baby is three weeks old. You will be told about the tests that will be needed to make the diagnosis. You will also be given an appointment to see a specialist.

If your baby's screening result shows that they may have cystic fibrosis, you will usually be contacted in person before your baby is four weeks old. You will be told about the tests that will be needed to make the diagnosis, and will be given an appointment to see a specialist.

If your baby is thought to have a sickle cell disorder you will usually be contacted before your baby is six weeks old. You will be told about the tests that will be needed to make the diagnosis, and will be given an appointment to see a specialist.

The timing for receiving the screening results given above relies on the newborn bloodspot screening tests being carried out five days after birth.

If you move home while you are waiting for the results of your baby's screening test, please tell your midwife or health visitor your new address.
The purpose of screening is to identify babies more likely to have these conditions. Screening is not 100% accurate.

Sometimes, a baby with a 'suspected' screening result may, after having further tests, be found not to be affected by the condition.

In other cases, a baby with a 'not suspected' screening result may later be found to have the condition. This only happens rarely.

After screening, the section of the bloodspot card that has the written details of your baby is separated and destroyed. The section with the bloodspots is identified by a barcode number unique to both the card and your baby. This section will be stored securely for at least five years and may be used:

to check the result

to carry out other tests recommended by your doctor

to improve the screening programme, or

for research to help improve the health of babies and their families in the UK.

This research will not identify your baby, and you will not be contacted. There are strict laws that govern the use of the bloodspots and legally we have to keep to these.

In the future, researchers may want to invite you or your child to take part in research that has been agreed by the Screening Division of Public Health Wales. This will only be for research projects that have been approved by a Medical Research Ethics Committee and the researchers will need to get your permission to be involved. If you do not want to be invited to take part in research, please let your midwife know and this information will be recorded on the bloodspot card.

For us to contact you as part of the programme, we will need to handle some of your and your baby's personal information. If you need more information about this, you can:

We also keep personal details to make sure that the standard of our service is as high as possible. This includes checking your baby's records if your baby is found to have a condition after having a screening test which showed a 'not suspected' result.

We only ever publish information as statistics and we never publish personal details. We pass on your personal information to health professionals or organisations that need it, including your GP, health visitor and consultant paediatrician. These professionals must protect the personal information in the same way as we do.

All our paper and computer records are stored and processed securely, away from public access.

If you would like to tell us about your experience of newborn bloodspot screening, please click here.

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Newborn Bloodspot Screening - Information for parents

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This leaflet explains the conditions screened for and how the sample is taken. This information is available in large print and Braille. Please ask your midwife or health visitor. This animation gives you information on the bloodspot screening test that you will be offered for your baby once they are born.

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A full list of the routine vaccinations offered on the NHS and when they should be given.

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You can translate information on this page using Google translate at the top of this webpage and selecting your language.

Please note Google translate is a machine automated translation tool. Find out more about Google translate in our accessibility information.

What is Respiratory Syncytial Virus (RSV)?

RSV is a common virus that causes cold-like symptoms. It is very contagious and passes easily between people through hand contact or in droplets produced by coughing and sneezing.

It's known to infect almost all children by the age of two, and often parents will not know that the colds and sniffles their baby is experiencing are caused by RSV.

What are the signs and symptoms of RSV?

In the early stages, RSV symptoms are similar to a common cold (runny or blocked nose, cough, sneezing and high temperature).

Symptoms usually last between one and three weeks. If the lungs are affected, one or more of the following symptoms will develop or get worse:

A cough that gets worse

Wheezing - a whistling sound when breathing out

Difficulty or distress when breathing

Reduction in feeding and drinking because of breathing difficulties.

RSV can lead to bronchiolitis and viral pneumonia, which can be serious conditions.

RSV can cause critical illness in babies born premature or sick, and those with underlying medical conditions such as chronic lung disease (also known as bronchopulmonary dysplasia, or BPD) congenital heart disease, and other conditions affecting the immune system.

If the lungs become affected it can lead to breathing difficulties and may require hospital treatment. Risk of severe infection and hospitalisation decreases as your baby gets older.

When is RSV likely to be a problem for my baby?

If your baby was born prematurely, is prone to lung infections or was born with a congenital heart problem, they could be at greater risk of becoming seriously ill if infected with RSV.

Like other seasonal coughs, colds and flu, RSV is usually most prevalent in the UK between October and March each year.

Through the coronavirus (COVID-19) pandemic, restrictions in social contact meant that cases of RSV were reduced.

Since people began mixing again, there has been an increase in cases ahead of the usual seasonal trend, from June, mainly in children aged under five.

How can RSV infections be prevented in premature and sick babies?

A monthly antibody injection (palivizumab) has proved effective at protecting against severe infection and reducing hospitalisation.

It is recommended by the Joint Committee on Vaccination and Immunisation (JCVI) for children under two years who are considered to be high-risk.

This includes some babies born premature or sick with chronic lung disease or congenital heart problems, and those known to have a weakened immune system.

This injection must be given once a month over the RSV season, and healthcare professionals will give up to seven doses.

Because of the coronavirus (COVID-19) pandemic, more babies are eligible to receive the jab. This includes most babies who have been discharged from hospital on oxygen in the last nine months.

Since RSV infections are on the rise out of the usual seasonal cycle, you can speak with your GP or neonatal staff to understand whether preventative antibody treatment might be available for your child.

If your baby is in the neonatal unit, staff may arrange for RSV immunisations to take place before they are discharged from hospital.

Even with palivizumab treatment, your baby could become infected with RSV, but they are less likely to to need to be treated in hospital.

Is there a vaccine for RSV?

Currently injections of preventative antibodies in the form of palivizumab are the best protection against severe infection.

Several vaccines that create longer-lasting immunity are in the late stages of clinical trials.

The World Health Organization (WHO) expects one to be available within a few years.

Can I reduce the risk of my baby getting RSV?

RSV is very contagious and passes easily between people via droplets from the nose or mouth. It can survive on surfaces for up to 24 hours.

Practice good hygiene by washing hands regularly, discourage adults and children with cold-like symptoms from handling, kissing and cuddling your baby, and try to reduce your baby's exposure to crowds and public transport.

Previous infection does not provide immunity, meaning that your child can get RSV again even if they've had it before.

RSV is more likely to spread where there are groups of young children, for example in nurseries, playgroups and schools, and in babies with preschool-age siblings.

Exclusive breastfeeding reduces the risk of severe infection and hospitalisation with RSV. If you would like to breastfeed and need support, speak with healthcare professionals who will be able to help.

If your baby is in the neonatal unit and you are not able to breastfeed them, you may want to express your milk.

This can be fed to your baby through a tube into their tummy, giving them the benefits of breast milk. Visit our pages on feeding for more information.

Smoking or allowing others to smoke near your baby increases their risk of hospitalisation with RSV.

The NHS runs free stop smoking services that can support you or members of your household to quit smoking.

My child is older than two. Are they still at risk of RSV?

The risk of hospitalisation due to an RSV infection is greatest in the first few months of life. Being infected again is common and can occur at any age, but symptoms are usually less severe.

If you are concerned, speak with a GP, neonatal staff or another healthcare professional, such as a health visitor or community nurse.

They will be able to tell you if your child is in the at-risk category and therefore qualifies for preventative treatment.

When to seek help from a hospital

Babies who show any of the following symptoms should be taken to hospital immediately:

Apnoea (pauses in breathing, particularly during sleep)

Infant appears to be seriously unwell

Severe respiratory problems (such as grunting), a marked chest recession (where the chest seems to sink inwards), or a respiratory rate of over 60 breaths per minute

Central cyanosis (blue or purple discolouration of the skin due to lack of oxygen).

What are the possible hospital treatments for RSV?

If your baby needs to stay in hospital due to an RSV infection, they will be monitored closely. They may be given oxygen support, fluids directly into their veins (IV fluids) and assistance with breathing.

What are the long-term effects of RSV?

Wheezing that keeps returning, asthma, and other problems with breathing have been seen in children who had hospital treatment for RSV.

Some studies have also shown that children who had a severe RSV infection may be more likely to develop sensitivities to allergens such as pollen or dust mites.

Where can I get more help and support for RSV?

In the first instance, always speak with a healthcare professional such as your neonatal team, your consultant, your GP, health visitor, or community nurse.

If your baby is in the neonatal unit, staff may arrange for RSV immunisations to take place before they are discharged from hospital.

You can also dial 111 or use these out-of-hours services:

NHS 111 England

NHS 111 Wales

NHS 24 (Scotland)

Dial 999 immediately if you think your baby might be seriously unwell.

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Respiratory syncytial virus (RSV) | Bliss

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You can translate information on this page using Google translate at the top of this webpage and selecting your language. Please note Google translate is a machine automated translation tool. Find out more about Google translate in our accessibility information.

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Many extremely preterm babies will develop some degree of retinopathy of prematurity (ROP) with the majority of cases never progressing beyond mild disease, resolving spontaneously without treatment. However, a small proportion develop potentially severe ROP which can be detected through retinal screening. If untreated, severe disease can result in serious vision impairment and consequently all babies at risk of sight-threatening ROP should be screened on time.

About the guideline

This guideline is an update of the 2008 UK Screening and Treatment of Retinopathy of Prematurity, which was originally developed by RCPCH, RCOphth, BAPM and Bliss. It was reviewed in 2013 and subsequently updated in 2022. It will next be reviewed in 2027.

For the 2022 update, the topics were reviewed and are presented separately:

Screening of ROP: RCPCH updated this topic, including:

These can all be downloaded below.

Treatment of ROP: RCOphth has updated this topic, including:

The full guideline

The executive summary

The information leaflet for parents and guardians

These are on the RCOphth website.

The RCPCH guideline is NICE accredited and developed in accordance with our guideline development process manual, Setting standards for development of clinical guidelines in paediatrics and child health (2020).

You can get permission to reuse RCPCH published content quickly and easily.

Summary of changes to guideline on screening of ROP

The guideline takes into account the significant changes in both the clinical and organisational aspects of neonatal care that have taken place over the previous 14 years.

Screening criteria: The gestational age criterion for screening has been reduced from 32 weeks to 31 weeks as based on more recent published evidence. The birthweight criterion of less than 1501g has not changed. It is estimated that this will lead to a reduction in the number of babies needing screening of about 13%.

Timing of first examination: Precise timing of the first examination is stated.

Preparation for screening: Greater detail is included related to the preparation for screening, including consent, comfort care and pain relief during the screening examination. Our information leaflet for parents and carers has been fully revised.

Follow up examinations: When necessary, the importance of attending follow-up examinations is emphasised. The need for appropriate resuscitation equipment and trained staff is stated for outpatient examinations.

Referral to treatment: Details of when to refer for treatment are specified.

Record keeping and communications with others: There is emphasis throughout the guideline on record keeping and communication both with parents/carers and between professionals as well as the role of a ROP service coordinator.

Updated tools: A new algorithm for observations and a screening record form are included.

Comprehensive appendices: These give full details of the guideline scope, methodology and development.

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Screening of retinopathy of prematurity (ROP) - clinical guideline

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ROP is one of the few causes of childhood visual disability that is largely preventable. This evidence-based guideline has been updated by RCPCH in collaboration with Royal College of Ophthalmologists (RCOphth) and British Association of Perinatal Medicine (BAPM) in March 2022.

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Ethnic Minorities & Youth Support Team

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Ethnic Minorities and Youth Support Team Wales

Supporting Ethnic Minority People across Wales

Ethnic Minorities & Youth Support Team was set up in 2005 by a group of ethnic minority young people in Swansea. It aimed to fill a gap in provision for young BME people aged 11-25 by providing a targeted, culturally sensitive and holistic support service to meet their needs.

Since then, EYST has expanded its mission and vision to also meet the needs of BME young people, families and individuals including refugees and asylum-seekers living in Wales

About EYST

Our Achievements

Since our establishment we are proud to have had many highlights and achievements including 'Most Admired Organisation' at the WCVA Third Sector Awards Cymru and Best Youth Group in the CWVYS Getting Together awards

View our Achievements

Our Projects

Our aim is to support BME young people to reach their full potential through a holistic, targeted and culturally sensitive youth programme including qualified youth workers, innovative youth activities and a youth and community centre.

View our Projects

Keep up to date with
our monthly activities

Grateful acknowledgement of our funders & supporters

EYST is an award-winning and unique organisation set up in 2005 by and for BME people living in Wales.

Registered Charity No: 1152486

Company No: 06709767

info@eyst.org.uk
01792 466980

Copyright © 2023 Ethnic Minorities & Youth Support Team. All rights reserved.

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EYST - Ethnic Minorities and Youth Support Team Wales - Supporting BME people living in Wales.

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Ethnic Minorities and Youth Support Team Wales Ethnic Minorities & Youth Support Team was set up in 2005 by a group of ethnic minority young people in Swansea. It aimed to fill a gap in provision for young BME people aged 11-25 by providing a targeted, culturally sensitive and holistic support service to meet their needs.

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We’re Mind, the mental health charity | Mind

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We're Mind, the mental health charity. We're here to make sure no one has to face a mental health problem alone.

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You're not alone, find out what emotional and practical support is available to you here.

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Was your baby born on or after 6th April 2025 - Have they received 7 days or more of neonatal care? You may be entitled to paid leave.

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Statutory Maternity Leave and Pay is meant to help mothers take time off work when they have a baby. If you are eligible, Statutory Maternity Pay is available for 39 weeks.

You apply through your employer and, if you qualify, you receive it through your wage packet. The payment will be taxed, just like income.

If you're not sure whether you want to go back to work, you can still ask for Statutory Maternity Pay.

You do not have to pay it back if you do not return to work and it is the legal minimum amount your employer has to pay. Your employer may offer additional maternity benefits.

Who can claim

You are only entitled to Statutory Maternity Leave and Pay if you are an employee.

You qualify for Statutory Maternity Leave if you give your employer the correct notice. It does not matter how long you have been in your current job or how much you earn.

If you do not qualify for Statutory Maternity Leave, for example because you are self-employed or on a zero hours contract, you must still stop work for 2 weeks after giving birth (4 weeks if you work in a factory).

If your baby is born early (premature) your maternity leave will start straight away.

Whether you qualify for Statutory Maternity Pay depends on how long you have been in your current job. If your wages are low and do not reach the minimum level, you might not qualify.

You can still get Statutory Maternity Leave and Pay if your baby:

is born premature

is stillborn from your 24th week of pregnancy

dies after being born.

If you can't get Statutory Maternity Pay, you still might qualify for Maternity Allowance (see below).

You can get more information from your employer's human resources department or your local trade union.

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If you've had a baby born premature or sick, take a look at our information for families on parental leave and pay.

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Family Fund deliver grants for families raising a disabled or seriously ill child or young people on a low income across the UK

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If you are struggling to feed your family please speak in confidence to a member of the health care team. We can speak with your health visitor to arrange a food bank voucher.

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How you can support us

There's a clear way forward, and we can all help.

Civil society, employers, businesses and all levels of government - acting together with people who've needed a food bank, individuals and communities - will drive this change.

We won't stop until everybody has enough money for the essentials, and the distribution of emergency food can end for good. Together we are thousands and counting. Together we cannot be ignored.
We're ending hunger together. Will you stand with us?

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What we do: Ending hunger together | Trussell

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Find out how we work with a UK network of food banks in our community, plus our volunteers and supporters to end hunger in the UK.

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MoneyHelper joins up money and pensions guidance to make it quicker and easier to find the right help. MoneyHelper brings together the support and services of three government-backed financial guidance providers: the Money Advice Service, the Pensions Advisory Service and Pension Wise.

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Free and impartial help with money, backed by the government | MoneyHelper

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MoneyHelper: free and impartial help with money and pensions. Formerly Money Advice Service, The Pension Advisory Service and Pension Wise.

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Helen Extence Clinical Director and Lead Specialist Speech and Language Therapist

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Twin, Triplet & More support

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Twins Trust - We support twins, triplets and more...

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Supporting you through every milestone of your journey with twins, triplets or more. From being pregnant with twins, triplets or quads through to parenting twins, triplets or quads, we are here for you.

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Spiritual Care & Chaplaincy support in Singleton Hospital. 

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Spiritual Care & Chaplaincy support in Singleton Hospital. 

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Live Fear Free Helpline : Welsh Women’s Aid

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Support for Male victims of Domestic Abuse or domestic violence in Wales

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Support for Male victims of Domestic Abuse or domestic violence in Wales

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Domestic violence or abuse can happen to anyone. Find out how to recognise the signs and where to get help.
If you're worried someone might see you have visited this page, the Women's Aid website tells you how to cover your tracks online.

Domestic violence, also called domestic abuse, includes physical, emotional and sexual abuse in couple relationships or between family members.

Domestic violence can happen against anyone, and anybody can be an abuser.

Getting help and support for domestic violence

You do not have to wait for an emergency situation to find help. If domestic abuse is happening to you, it's important to tell someone and remember you're not alone.

Other ways to get support:

You can also email for support. It is important that you specify when and if it is safe to respond and to which email address:

The Survivor's Handbook from the charity Women's Aid is free and provides information for women on a wide range of issues, such as housing, money, helping your children, and your legal rights.

If you are worried that you are abusive, you can contact the free Respect helpline on 0808 802 4040.

Signs of domestic violence and abuse

There are different kinds of abuse, but it's always about having power and control over you.

If you answer yes to any of the following questions, you might be in an abusive relationship or experiencing domestic abuse.

Emotional abuse

Does your partner or someone you live with ever:

belittle you, or put you down?

blame you for the abuse or arguments?

deny that abuse is happening, or downplay it?

isolate you from your family and friends?

stop you going to college or work?

make unreasonable demands for your attention?

accuse you of flirting or having affairs?

tell you what to wear, who to see, where to go, and what to think?

control your money, or not give you enough to buy food or other essential things?

monitor your social media profiles, share photos or videos of you without your consent or use GPS locators to know where you are?

Threats and intimidation

Does your partner or someone you live with ever:

threaten to hurt or kill you?

destroy things that belong to you?

stand over you, invade your personal space?

threaten to kill themselves or the children?

read your emails, texts or letters?

harass or follow you?

Physical abuse

The person abusing you may hurt you in a number of ways.

Does your partner or someone you live with ever:

slap, hit or punch you?

push or shove you?

bite or kick you?

burn you?

choke you or hold you down?

throw things?

Sexual abuse

Sexual abuse can happen to anyone.

Does your partner or someone you live with ever:

touch you in a way you do not want to be touched?

make unwanted sexual demands?

hurt you during sex?

pressure you to have unsafe sex - for example, not using a condom?

pressure you to have sex?

If anyone has sex with you when you do not want to, this is rape. It is still rape if that person is your partner.

Have you ever felt afraid of your partner?

Have you ever changed your behaviour because you're afraid of what your partner might do?

If you think you may be in an abusive relationship, there are lots of people who can help you.

Domestic violence and abuse against women often starts during pregnancy. If the relationship is already abusive, it can get worse.

Find out more about domestic abuse in pregnancy.

If you decide to leave

The first step in escaping an abusive situation is realising that you're not alone and it's not your fault.

Before you go, try to get advice from an organisation such as:

If you're considering leaving, be careful who you tell. It's important the person abusing you does not know where you're going.

Women's Aid has useful information about making a safety plan that applies to both women and men, including advice if you decide to leave.

Helping a friend if they're being abused

If you're worried a friend is being abused, let them know you've noticed something is wrong.

They might not be ready to talk, but try to find quiet times when they can talk if they choose to.

If someone confides in you that they're suffering domestic abuse:

listen, and take care not to blame them

acknowledge it takes strength to talk to someone about experiencing abuse

give them time to talk, but do not push them to talk if they do not want to

acknowledge they're in a frightening and difficult situation

tell them nobody deserves to be threatened or beaten, despite what the abuser has said

support them as a friend, encourage them to express their feelings, and allow them to make their own decisions

do not tell them to leave the relationship or leave home if they're not ready - that's their decision

ask if they have suffered physical harm and if they have, offer to go with them to a hospital or GP

help them report the assault to the police if they choose to

be ready to provide information about organisations that offer help for people experiencing domestic abuse

Video: domestic violence

In this video, 2 women describe their experiences of domestic abuse.

Sexual assault

Anyone who has been sexually assaulted can get confidential help, treatment and support at a sexual assault referral centre.
Read more about getting help after rape and sexual assault Find your nearest sexual assault referral centre

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Getting help for domestic violence and abuse

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Find out about the signs of domestic violence and abuse, and where to get help. Domestic violence and abuse can happen against women and against men, and anyone can be an abuser.

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We are the UKs leading charity for autistic people and their families. Since 1962, we have been providing support, guidance and advice, as well as campaigning for improved rights, services and opportunities to help create a society that works for autistic people.

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Helpful Organisations

There are a wide range of organisations who provide tailored support for families of premature or sick babies.

LGBTQIA+ support

Find below organisations who provide support and advice, specifically for the LGBTQIA+ community:

Stonewall have some great information on parenting rights, including parental responsibility, family leave and pay, adopting, fostering, co-parenting, fertility treatment and surrogacy.

Switchboard LGBT+ Helpline provides a listening service for LGBT+ people over the phone, via email and online chat. It can provide you with contact details of an LGBT-friendly therapist.

Imaan is a charity that supports lesbian, gay, bisexual, trans, queer or questioning (LGBTQ) Muslims, providing an online forum where people can share experiences and ask for help.

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With over 90,000 babies born premature or sick and admitted to neonatal care every year in the UK, many families are touched by a neonatal experience. However, many LGBTQIA+ parents feel underrepresented in the neonatal support available.

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Supporting ethnic minorities

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BAWSO support people from Black and Ethnic Minority backgrounds who are affected by domestic abuse and other forms of abuse, including Female Genital Mutilation, Forced Marriage, Human Trafficking & Prostitution.

BAWSO currently runs 25 projects supporting over 6,000 people every year in Wales through the provision of purpose built refuges, safe houses, and an extensive Outreach & Resettlement Programme and Floating Support Programme. We provide support, advice and information from our offices in Cardiff, Merthyr Tydfil, Newport, Swansea and Wrexham.

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Bawso provides support to black minority ethnic communities and individuals in Wales affected by abuse, violence and exploitation. Free helpline: 0800 7318147

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Get advice on benefits, including what you’re entitled to and how to claim.

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Singleton Neonatal Unit - Family & Friends Feedback 

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Singleton Neonatal Unit - Family & Friends Feedback 

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Have your say to improve care.

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Does your baby need to be transferred to another hospital? Click here to find out more about the Cymru Inter-Hospital Acute Neonatal Transfer Service.

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Home-Start is a local community network of trained volunteers and expert support helping families with young children through their challenging times. We are there for parents when they need us the most because childhood can't wait.

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Our History

Founded on 30 October 2009, The Leon Heart Fund was created as a means of supporting the children and families who attend the Cardiac wards at University Hospital of Wales in Cardiff and the Special Care Baby Unit at Singleton Hospital, Swansea.

Our mission is to provide small grants to help parents with hospital expenses for the Paediatric Cardiology Department at University Hospital of Wales and assist in placing small pieces of medical equipment in the home for children with complex needs when the NHS is unable to provide funding. We also provide small grants to support small local charities. We are planning to support the new Special Care Baby Unit at Singleton Hospital, Swansea.

Leon's Quiet Room was also recently opened at University Hospital of Wales.

Leon's Story

L eon Montanari was born with a condition that meant he needed a heart transplant at the very young age of 10 months old but despite having to spend a lot of time in and out of hospital during his life, he was a happy, typically mischievous boy with a generous nature.

D espite advances in the care of transplant patients, Leon passed away in 2009 aged 13 and his mum, Julie, wanted to do something that would serve as a fitting memorial to him whilst also giving recognition to the excellent care given to him by the medical and nursing staff in the Paediatric Cardiology Department, University Hospital of Wales.

The Team

Patrons

Duncan Pow (Actor)

Duncan Jones (The Ospreys and Wales international)

Enzo Maccarinelli (Professional Boxer)

Dan Baker

Natalie Ann Holborow

Secretary

Chair

Treasurer

Trustees

John Davies (Senior Pharmacist Manager)

David Thomas (Clinical Lead, Welsh Ambulance)

Phil Daley

Nadine Thomas

Retired:

David Lewis (Neath Port Talbot Councillor for Alltwen).

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Founded on 30 October 2009, The Leon Heart Fund was created as a means of supporting the children and families who attend the Cardiac wards at University Hospital of Wales in Cardiff and the Special Care Baby Unit at Singleton Hospital, Swansea.