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JuWe is picked up by his trusted adult around 2pm on T/Th

Trusted adult will carry him out, pack things into his stroller.

Back pack

Chewies

Lunchbox (tube, 2 big syringes, 2 little syringes, bottle)

Wet bag

Bandanas

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Enjoys all the light up toys (keep fast moving or flashing lights away)

Enjoys cause and effect toys

sensory toys: tiles, sequin board

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JuWe is currently utilizing diapers. When he needs to be changed, take him to the bathroom and narrate the process to him.

1. "Im going to lay you down."

2. "shorts off"

3. "Diaper off"

4. "It's going to be cold! I'm going to wipe."

5. "Diaper on"

6. "Shorts on"

7. "All done! Thank you for your help!"

*May benefit from 2nd support in bathroom when changing on table for safety, can move quite a bit.

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JuWe has a g-tube. He is fed once a day at Indie, usually around 12pm or when most other learners are having their food. It can vary based on what is sent to school.

If it is two syringes and a bottle* current

1. Shake liquid in bottle, Fill one syringe up with liquid in bottle to 60ml.

2. Attach small feeding tube to port slightly above and to the side of the belly button.

1. Line the black line on tube to the black line on port, push till it clicks, twist tubes to lock into place.

3. Screw syringe to the attached feeding tube, unclamp white clamp on tube and push syringe contents quickly.

1. Flush tube with small water syringe

4. Fill second syringe with 60 ml

1. Flush tube.

5. Wait 20 minutes

6. Complete process with rest of the liquid in the bottle.

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JuWe is brought into Indie by trusted adult usually between 9-10am. He will either be carried in or pushed in his stroller. He benefits from support guiding him into the studio or wherever the class may be. His things will be put by his cubby.

stroller

AAC device (stand is by cubbies)

wet bag

extra bandanas and chewies

lunchbox

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Loving, affectionate

Happy

Explorative/curious

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Nonspeaking individual who uses multimodal communication including:

AAC (see post below)

Gestures -

Reaching

Leaning

Turning away

Pushing

Pulling

Proxemics -

Moves toward preferred things (e.g. objects, people, locations)

Moves away from undesired things (e.g. objects, people, locations)

Vocalizations -

Grunts & groans

Cries & whimpers

Laughter

Facial Expressions -

Smiles

Frowns

Furrowed eyebrows

Eye Gaze -

Referent glances to people and objects

Body Movements -

Leg kicks

Wiggling arms

Full body wiggles

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JuWe greatly benefits from being greeted by a preferred/trusted Indie adult at the door.

Once he feels comfortable, he generally walks in.

Arrives with the following materials:

Monogrammed Backpack

AAC Device in Black Bag

Red Lunchbox w/ Water Bottle + Bag

Extra neck bandanna's/clothes in striped bag which lives in backpack

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The floors can be a bit slippery, and to best accommodate JuWe's safety please ensure that socks are removed before he enters the classroom. He is still very mobile when he's barefoot! :)

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JuWe is G-Tube fed and does NOT feed at Indie, rather he receives water through a G-Tube (above belly button; generally between 1p-2p) via gravity bag.

Requires assistance from 2 Indie Adults

Instructions:

1. Fill bag with contents of bottle and shut purple cap on bag

2. Unclamp white clamp on end of tube that goes into body

3. Insert Tube into UPPER ABDOMINAL TUBE (above belly button) by opening portal on body and inserting tube by lining up black lines on tube and portal, pushing and turning tube to lock it into place

4. Slide purple slider on tube, up and Bag should start to drip

5. KEEP BAG ELEVATED

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JuWe currently utilizes diapers, Pampers Cruisers (Bluey edition).

JuWe benefits greatly from having the assistance of two Indie Adults while changing.

One Indie Member changes JuWe while he lays on the changing bench, while another teammate talks JuWe through the steps of what is occurring (such as, "First we pull the diapers down, then we wipe, afterwards we put on a fresh diaper and pull it up. Finally we pull up our pants.")

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JuWe greatly benefits from 1:1 instruction with a trusted Indie Adult while learning and/or being introduced to new or already existing material.

JuWe greatly benefits from utilizing/strengthening his interest areas while learning, such as counting with Pooh, ABCs with Disney characters, standing on sensory tiles as we spell his name, etc.

Interest areas are:

Winnie the Pooh

Snow White

Disney

Playdough

Sensory Tiles

JuWe also greatly benefits from utilizing a chewy or a pacifier while exploring the classroom scene.

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Prior to JuWe’s departure, prepare his backpack for dismissal by placing AAC device back into black carrier and ultimately into backpack, ensure used neck bandannas are placed in striped garment bag, (and place garment bag into back pack), pack up water set up into red lunchbox and place lunch box in backpack.

All chewies, bandannas, and pacifiers go home via backpack.

Once JuWe spots his trusted home adult, you may open the door to dismiss him.

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JuWe has an affinity for all things Disney, primarily Winnie The Pooh and Snow White.

Greatly enjoys cause and effect toys (such as light-up/interactive toys), physical touch from trusted adults, and walking over to the vibration plate (DO NOT TURN ON).

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JuWe greatly benefits from being given a timer (Countdown Timer w/ Duck image) when transitioning rooms, such as moving from classroom to Sensory Room and/or bathroom.

In regards to the Bathroom, enjoys/benefits from being presented with the “Bathroom Button”, pushing the button and then walking with an Indie Adult to the bathroom.

Greatly benefits from a bathroom break prior to entering the Sensory Room.

Greatly benefits from having hand held while traveling to and from different rooms, while trusted Indie Adult communicates orally what is occurring.

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1. Number recognition + Sequencing (1-10;11-20)

2. Letter Sequencing/Alphabet Recognition (A-Z)

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AAC Information:

Tobii Dynavox - TD Pilot

Eye gaze & direct select access methods

Eye gaze seems to be preferred

Grid Size: 6x5 (some hidden buttons)

High contrast page set for CVI

Personalized pages for:

Regulating videos: TV & Movies

Preferred books: Reading

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Pair spoken language with gestures and visuals to support comprehension

Keep AAC on and positioned accessibly throughout the session

Model language on JuWe’s AAC system without placing demands or expectations

Use first-person language to narrate JuWe’s experience (e.g., “I’m going to the bathroom,” “This video makes me feel happy!,” “Let’s get a new toy!”)

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JuWe would benefit from direct speech/language therapy to support

expanding multimodal communication (AAC, gestures, etc.)

increasing vocabulary

increasing communication intents

Parents have informed team that JuWe receives speech/language therapy from outside provider but that they are also interested in him receiving direct supports at indie

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indep moves through the room via walking

bears weight mostly on toes and occasionally leans his trunk in his preferred direction of motion but is stable

no stumbles or near LOB noted unless environmental (ie socks on slippery floor)

indep navigates around clutter on floor

prefers to lean on stable surfaces or have one leg propped up when still (one knee on higher surface with opposite foot flat on floor)

often opts for a w-sit pattern for play on floor for stability

BATHROOM: most supported when lying down on mat after observed difficulty with maintaining balance for standing changes.

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Parents have expressed interest in receiving direct services through Indie.

JuWe would benefit from direct physical therapy to support

standing balance for tasks such as dressing & changing

core and trunk strength for stability in motion without having to rely on momentum

building endurance for increased mobility with minimal fatigue

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The following tools and strategies have been observed to help JuWe regulate, feel safe, and cope with distress or overstimulation.

Preferred Songs/Videos on AAC Device
Located under the “TV Movies – Video” section (per parent report)

Assisted Chair
Using a supportive or familiar chair to feel grounded and calm.

Pacifier
Offers oral soothing and comfort, especially during transitions or overstimulating environments.

Cuddling a Preferred Adult
Physical closeness with a trusted adult helps JuWe feel secure and co-regulated.

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likes knocking and throwing items

will mouth items first, benefits from close monitoring.

likes to explore with mouth, hands and feet