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How to Develop a Phenomenological Model of Disability by Kristian Martiny 

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How to Develop a Phenomenological Model of Disability by Kristian Martiny 

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This is a great article to read if one is interested in discovering alternatives to the both the medical model of disability and the social model. Of course no single model is always correct all of the time; we ought never to cling to dogma. Each model has its truths and its flaws. I am drawn to the phenomenological model for philosophical reasons and hope to implement a phenomenological approach in my teaching practice. This article provides a concise overview of the current prevailing models of disability and also analyzes the short comings in prior phenomenological approaches to disability.

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NOTE: If you are unable to access the Library's subscribed databases from home because your account has expired or any other patron problem, please call the Hayward Campus circulation desk at 510-885-3612 during regular business hours. Please be informed that privileges will be granted to you as soon as it has been verified that you are a currently enrolled student, staff or faculty.

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Human Rights Watch Article on Disability in Brazil.

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Human Rights Watch Article on Disability in Brazil.

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This article disucusses the widespread practice of institutionalizing and segregating people with disabilities - think Willowbrook. I am familiar with Brazil, my wife is Brazillian and I've spent a fair amount of time there with my extended Brazilian step family. However, I don't know much about how people with disabilities are treated there. Brazil can be a brutal place, but, on the other hand politically and culturally it aspires to a sort of humble humanism that is quite foreign here in the U.S. Brazil did ratify the international Convention on the Rights of Persons with Disabilities (CRPD). This article reveals that many people with disabilities are placed into a form of harsh permanent life long incarceration. The reason for this is poverty - Families who can't afford to take care of their disabled family members check them into one of these institutions, where they are cloistered and forgotten.

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(Rio de Janeiro) - Thousands of children and adults with disabilities in Brazil are needlessly confined to institutions, where they may face neglect and abuse, Human Rights Watch said in a report released today. Brazil should make it a priority to provide support for people with disabilities to live independently and in their communities, rather than in institutions.

The 83-page report, " 'They Stay until They Die': A Lifetime of Isolation and Neglect in Institutions for People with Disabilities in Brazil," found that many people with disabilities enter institutions as children and remain there for their entire lives. Most of these institutions visited by Human Rights Watch researchers did not provide for more than people's basic needs, such as food and hygiene, with scarce contact with the community and little opportunity for personal development. Some residents are tied to their beds and given sedatives to control them.

"Many people with disabilities in Brazil are locked away in institutions in abysmal conditions, with no control over their lives," said Carlos Ríos-Espinosa, senior disability rights researcher at Human Rights Watch and author of the report. "The government of Brazil should make sure that people with disabilities have the support they need to live in the community just like everyone else."

This report is based on 171 interviews with people with disabilities, including 10 children, as well as family members, institution staff, experts on disability rights, and authorities from all levels of government, as well as visits to 19 institutions in the states of Rio de Janeiro, São Paulo, Bahia, and the Federal District.

Many institutions have a detention-center like atmosphere, Human Rights Watch found. Some have bars on their doors and windows. Conditions are often inhumane, with dozens of people crammed into rooms filled with beds packed tightly together. Most adults and children with disabilities in the institutions visited had few, if any, personal items. In some cases, the residents shared clothes, and in one institution even toothbrushes. Many people were confined to their beds or rooms around the clock.

Most children with disabilities in institutions received very limited education - or none. Research has shown that children's physical, intellectual, and emotional development can be damaged by the absence of a one-to-one relationship with a caregiver. Most children in institutions Human Rights Watch visited have a living parent but over time often lose contact with their families.

"Too often children with disabilities end up in Brazil's institutions because families struggle to take care of them without resources and adequate community services," Ríos-Espinosa said. "All children have the right to grow up in a family, and government resources should support families and children, not tear them apart."

In Brazil, judges determine the placement of a child in an institution in exceptional cases when the child is at risk of abandonment, neglect, or violence, and there are no alternative solutions. But children with disabilities end up staying in institutions much longer than the legal limit of 18 months, often indefinitely. Although Brazil has foster care and adoption, these options should be developed further, Human Rights Watch said.

Human Rights Watch found numerous cases in which people with disabilities had been living in institutions all their lives, among them a 70-year-old man with an intellectual disability who had lived there since he was 5.

Many adults in institutions are deprived of their liberty in violation of Brazil's obligations under international law because a guardian has placed them there, without their consent, and they have no right to contest their institutionalization. At the request of a relative or an institution director, courts can strip people with disabilities of their legal capacity, or the right to make decisions for themselves. A guardian then makes all decisions for the person, including in some cases to place them in an institution. Once there, they can't leave unless the guardian agrees.

Most people in institutions are not allowed to make even everyday choices such as what and when to eat, who to socialize with, what television program to watch, or whether to go out and participate in a leisure activity.

Carolina [not her real name], 50, suffered a spine injury because of domestic violence that left her with a permanent physical disability. Her sons then placed her in an institution near Brasília. She described her life: "This place is very bad, it is like a prison. I don't want to stay here. I'm obliged to be here. My sons don't want to support me at home. I never go outside. I would like to go out, away from here. It's my dream. When you come like this [with a disability], it's over."

In one institution in Salvador, an 18-year-old man with a progressive disability that gradually weakened the muscles in his legs had difficulty leaving the room he shared with another person. He did not have a wheelchair and moving on his own was extremely painful. Although the institution was just 200 meters from the sea, he was unable to go to the beach and said that his dream was to "see the sea."

Many institution managers said they did not have adequate staff to provide individualized attention to residents, including children. Most institutions in Brazil are privately run. Nearly 70 percent have partnerships with municipal governments, according to the Ministry of Social Development response to the Human Rights Watch findings.

Under the international Convention on the Rights of Persons with Disabilities (CRPD), which Brazil has ratified, governments must respect the inherent dignity of people with disabilities by acknowledging them as people on an equal basis with others. This includes ensuring that people with disabilities can live independently in the community and not segregated and confined in institutions. Under the treaty, governments must also prevent discrimination and abuse against people with disabilities and remove barriers that prevent their full inclusion in society. All children, including children with disabilities, have a right to grow up in a family. No child should be separated from their parents because of a disability or poverty.

"Institutionalizing people with disabilities is dehumanizing," Ríos-Espinosa said. "There is an entrenched belief that at least some people with disabilities need to live in institutions, but that simply isn't true. Shutting people with disabilities away in institutions is one of the worst forms of exclusion and discrimination."

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Brazil: People With Disabilities Confined in Terrible Conditions

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Thousands of children and adults with disabilities in Brazil are needlessly confined to institutions, where they may face neglect and abuse. Brazil should make it a priority to provide support for people with disabilities to live independently and in their communities, rather than in institutions.

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What Contemporary Models of Disability Miss: The Case for a Phenomenological Hermeneutic Analysis by Chandra Kavanagh

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What Contemporary Models of Disability Miss: The Case for a Phenomenological Hermeneutic Analysis by Chandra Kavanagh

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The field of phenomenological disability studies is small. However, in just the short span of this assignment, I have encountered a number of well written and thoughtful treatments of phenomenological disability models, this essay is one of them. Kavanagh is expert at analyzing the tendency in all prior disability models to "predetermine" disability. She argues for a phenomenological approach because it foregrounds the need to strip away assumptions regarding disability, thus giving us a refreshed, unencumbered understanding of the phenomena/person at hand.

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NOTE: If you are unable to access the Library’s subscribed databases from home because your account has expired or any other patron problem, please call the Hayward Campus circulation desk at 510-885-3612 during regular business hours. Please be informed that privileges will be granted to you as soo…

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Border Crossings: The Technologies of Disability and Desire by Margit Shildrick

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Border Crossings: The Technologies of Disability and Desire by Margit Shildrick

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This article is not about disability in the way we study it as  special educators. It is an article about Critical Disabilities Studies (CDS) itself and the theory debates within that sub-genre of cultural studies. The style is very much a typical critical theory/cultural studies article focused on debates within CDS. The prose is dense and peppered with references to Derrida and Deleuze. It refers to disability from a highly abstract perspective, focusing on academic discourse around prothesis and disability. I am only a lukewarm fan of critical theory/cultural studies discourse (despite having spent years studying it), but nevertheless came away from this article with a better understanding of CDS.

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Border Crossings: The Technologies of Disability and Desire from Culture - Theory - Disability: Encounters between Disability Studies and Cultural Studies on JSTOR

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Margrit Shildrick, Border Crossings:, Culture - Theory - Disability, pp. 137-170

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The New York Times article, "How Educators Secretly Remove Students With Disabilities From School," sheds light on a distressing issue within the education system. It exposes the unethical practice of pushing students with disabilities out of schools, denying them their right to equal education. The article also highlights the complex challenge educators face in maintaining discipline while ensuring inclusivity, a problem we all face as teachers. Obviously the districts in question have decided on an illegal and ill advised solution to a difficult problem..

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How Educators Secretly Remove Students With Disabilities From School

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Known as informal removals, the tactics are “off-the-book” suspensions often in violation of federal civil rights protections for those with disabilities.

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Critique of the German apprenticeship system with regards to people with disabilites.

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Critique of the German apprenticeship system with regards to people with disabilites.

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This 10 minute report profiles Katrin Langensiepen. She is a fairly well know German politician and disability activist who also has a disability. She represents the Green Party at the European Parliament. Langensiepen is fighting for reform of German "Werkstaetten" system.  The Werkstaetten system exploits the disabled by paying them about $1.50 an hour to work mostly in factory settings helping with assemblies of German industrial parts.

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Kritik an Werkstätten für Menschen mit Behinderungen: »Es ist ein Dumpinglohn-System« | DER SPIEGEL

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"The Reason I Jump" is a remarkable and eye-opening book written by a young autistic author. Higashida invites readers into his world and provides a unique perspective on the challenges and joys of living with autism. This book serves as a bridge of understanding, offering insight into the minds of non-speaking autistic individuals, promoting empathy and acceptance.

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A story never before told and a memoir to help change our understanding of the world around us, 13-year-old Naoki Higashida’s astonishing, empathetic book takes us into the mind of a boy with severe autism. With an introduction by David Mitchell, author of the global phenomenon, Cloud Atlas, and tra…

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"The Ugly Laws" by Susan Schweik is a meticulously researched examination of the historical discrimination faced by disabled individuals in the U.S.  This is an extremely interesting book. Full disclosure - I have only found the time to read the first chapter, but hope to read more soon. Schweik delves deep into the origins and enforcement of the so-called "ugly laws" that targeted and marginalized people with visible disabilities. Through personal narratives and structural analysis, she sheds light on the intersection of disability, beauty standards, and social exclusion. Compelling read for anyone interested in the history of disability in the U.S.

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The murky history behind municipal laws criminalizing disabilityIn the late-nineteenth and early-twentieth centuries, municipal laws targeting “unsightly beggars” sprang up in cities across America. Seeming to criminalize disability and thus offering a visceral example of discrimination, these “ugly…

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Podcast that addresses the question - What is it like to be a war refugee or otherwise forced to flee your home country with a disability?

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Podcast that addresses the question - What is it like to be a war refugee or otherwise forced to flee your home country with a disability?

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This Deutsche Welle Podcast is a three way dialogue between the DW moderator and Ulrike Lessig (Representative of the international relief organization "Be an Angel") and Rainer Delgado who represents the German Union for people with vision impairment. This is a deceptively large and complex topic. This podcast touched on some surface features of the issue. The discussion focused primarily on practical issues with regards to helping the blind and people in wheel chairs who are trapped in refugee camps.

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Dass unter den über 60 Millionen Geflüchteten weltweit auch Menschen mit Behinderung sind, damit müsste man eigentlich rechnen. Doch es fehlt an medizinischer Versorgung, Menschen, die sich kümmern und barrierefreien Unterkünften.

Sein Land verlassen zu müssen und wo anders neu anzufangen ist schon schlimm genug. Doch wie geht das, wenn man eine Einschränkung hat? Wie findet sich ein blinder Mensch in einer fremden Umgebung zurecht, wenn er beispielsweise die Sprache nicht spricht? Und gibt es eigentlich Flüchtlingsunterkünfte, die rollstuhlgerecht sind?

In "Echt Behindert!" geht es dieses Mal um Menschen mit Behinderung auf der Flucht. Wir sprechen mit Ulrike Lessig vom Verein "Be an Angel e.V.", der sich seit 2015 für Geflüchtete einsetzt, und mit Rainer Delgado vom Deutschen Blinden- und Sehbehindertenverband (DBSV), der blinde und sehbehinderte Menschen aus der Ukraine in Deutschland unterbringt.

Beide erzählen von ihrer Arbeit, berichten von den Nöten der Menschen, denen sie helfen und sagen, was ihre Organisationen jetzt am meisten brauchen.

Wer spenden möchte oder Hilfe anbieten, kann sich wenden an: www.dbsv.org/ukraine und https://beanangel.direct/spenden/

Einen Überblick auch zu anderen Hilfsorganisationen und Projekten gibt es bei der Aktion Mensch unter https://www.aktion-mensch.de/ukraine?utm_medium=am.de_&utm_source=startseite_ukraine

Wir freuen uns über Feedback, Lob, Kritik und Meinungen.

Mail an: echt.behindert@dw.com

- Das Transkript der Sendung gibt es hier: https://www.dw.com/de/auf-der-flucht-transkript/a-61607638

- Podcast "Echt behindert!" im RSS Feed: https://rss.dw.com/mediarss/podcast_echt-behindert

- Podcast "Echt behindert!" auf Apple Podcasts: https://podcasts.apple.com/us/podcast/44-menschen-mit-behinderung-auf-der-flucht/id1527249899?i=1000558947803

- Podcast "Echt behindert!" auf Spotify: https://open.spotify.com/episode/37QO3IdtfpfdwdK1ovmOJZ?si=VXpPXP7ZTkO_taU1I2xmzw

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44. Menschen mit Behinderung auf der Flucht - DW - 28.04.2022

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Dass unter den über 60 Millionen Geflüchteten weltweit auch Menschen mit Behinderung sind, damit müsste man eigentlich rechnen. Doch es fehlt an medizinischer Versorgung, Menschen, die sich kümmern und barrierefreien Unterkünften.

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This is a regular political analysis/talk show on one of the most widely viewed TV stations in Germany. The topic is the sorry state of German education. The moderators debate the reasons for Germany's low test scores and falling behind other top performing European countries. They want to know; how do we keep our economy strong when the education system is in decline? General education is the main focus, but the commenters also discuss Special Education. The theme of a failing education system is a common trope in Germany. Compared to the U.S. the German education system is relatively strong, well funded and effective. Germans really love to worry about the terrible state of their education system, which is almost amusing, if you glance around world at other educational systems.

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Stark-Watzinger: Warum Deutschland bei Bildung hinterherhinkt | Markus Lanz vom 16. November 2022

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Universal Design for Learning: Theory and Practice

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Universal Design for Learning: Theory and Practice

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"Universal Design for Learning: Theory and Practice" is the "bible" of UDL. It traces the origins and history of UDL. It is meant to be a resource for educators and instructional designers seeking to create inclusive and engaging learning environments. It provides a comprehensive overview of the principles and practical implementation of (UDL). The authors reveal a marked fetishization of technology and a lack of critical self-reflection with regards to their own privileged position in the American education system. UDL is not nearly as "revolutionary" as its authors seem to believe.

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k - Keyboard shortcut list (this dialog) + t - Show Table of Contents + h - Show Highlights and Notes dialog + - Show Display settings + - Show Reading tools settings + a - Start/stop Read-aloud space - Pause Read-aloud (while reading) + f - Focus search input

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This film (docudrama) offers a glimpse into the lives of non-speaking autistic individuals. It combines personal narratives, and poetic imagery to create a unique exploration of the autistic experience. For me this film highlights the importance of understanding and accepting neurodiversity. It helps shed some light on the lived experience of autism.

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Podcast about the function and mission of the German Disability Council.

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Podcast about the function and mission of the German Disability Council.

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This podcast is a wide ranging discussion touching on the various political, public and educational functions of the German Disability Council. The council's primary mission is to advocate for the advancement of people with disabilities in Germany and to a lesser degree abroad. It is a political organization with local offices throughout Germany. (Perhaps a bit like our federal Disability Services Department.) Recently the council has been involved in helping people with disabilities flee the war in Ukraine. The dialogue also touches on Germany's participation in the Global G7 inclusion summit.

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Der Gesetzentwurf zur Triage, Barrierefreiheit im Wohnungsbau oder die Auswirkung der Energiekrise auf behinderte Menschen. Das sind Themen, die der Deutsche Behindertenrat regelmäßig bei der Politik platziert.

Behinderte Menschen und Menschen mit chronischen Erkrankungen haben sehr oft dieselben Interessen. Ob es nun um Nachteilsausgleich geht oder darum, dass man in der Gesellschaft überhaupt wahrgenommen wird. Es gibt zwar inzwischen Gesetze, die unsere Interessen stärken, doch "Recht haben" und "Recht bekommen" sind immer noch zwei verschiedene Sachen. Von selbst geschehen Teilhabe und Inklusion einfach nicht. In Echt Behindert! geht es diesmal um Lobbyarbeit, darum, was man tun kann, um Aufmerksamkeit zu erzeugen, Respekt einzufordern und Rechte durchzusetzen. Ein Bündnis, das dies seit über 20 Jahren tut, ist der Deutsche Behindertenrat. Er wurde 1999 gegründet und versteht sich als Aktionsbündnis, das die Interessen behinderter Menschen politisch durchsetzen will. Der Behindertenrat vereint die verschiedensten Gruppen von Sozialverbänden über Selbsthilfeorganisationen bis zu unabhängigen Behindertenverbänden.

In "Echt behindert!" sprechen wir mit Michaela Engelmeier. Sie ist Vorstandsvorsitzende des SoVD, des Sozialverbands Deutschland und derzeitige Sprecherratsvorsitzende des Deutschen Behindertenrats. Außerdem sprechen wir mit Anieke Fimmen, Referentin für Behindertenpolitik in der Abteilung Sozialpolitik des SoVD.

Mehr Informationen zum Deutschen Behindertenrat gibt es hier: https://www.deutscher-behindertenrat.de/

Wir freuen uns über Feedback, Lob, Kritik und Meinungen.

Mail an: echt.behindert@dw.com
Das Transkript der Sendung gibt es hier. Podcast "Echt behindert!" im RSS Feed Podcast "Echt behindert!" auf Apple Podcasts Podcast "Echt behindert!" auf Spotify

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56. Wie funktioniert der Deutsche Behindertenrat? - DW - 20.10.2022

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Der Gesetzentwurf zur Triage, Barrierefreiheit im Wohnungsbau oder die Auswirkung der Energiekrise auf behinderte Menschen. Das sind Themen, die der Deutsche Behindertenrat regelmäßig bei der Politik platziert. Behinderte Menschen und Menschen mit chronischen Erkrankungen haben sehr oft dieselben Interessen. Ob es nun um Nachteilsausgleich geht oder darum, dass man in der Gesellschaft überhaupt wahrgenommen wird.

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Article discussing the state of inclusion in the German education system.

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Article discussing the state of inclusion in the German education system.

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The article "Wie steht es um die Inklusion in der Schule?" (How is Inclusion in Schools?) on Ledienmedian.de examines the state of inclusion in German schools. It provides a summary of the legal structures surrounding inclusion.  It discusses the 2009 UN Convention on the Rights of Persons with Disabilities - the foundation for inclusion in German Education. It discusses the problem of a shortage of properly prepared teachers for disabled students. It also discusses political debates in Germany around inclusion.

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Wie steht es um die Inklusion in der Schule?

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Wie inklusiv ist das Schulsystem? Andrea Schöne fasst politische Entwicklungen zusammen und zeigt Eindrücke vom Kongress des mittendrin e.V.

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"System Crasher" is an intense German drama that delves into the chaotic world of a young girl named Benni, who is deemed a "system crasher" (sprenger actuallly translates to jumper - not crasher) due to her uncontrollable behavior. Benni has extreme oppositional defiance disorder, is deeply traumatized and is close to losing her position in the German foster system. The film portrays her struggles with the German system and her desire for love and stability. Helena Zengel's performance as Benni is a tour de force.