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Supporting Vaccinations For Children With SEND (SEND Section)

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Supporting Vaccinations For Children With SEND (SEND Section)

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Supporting Vaccinations For Children With SEND

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Supporting Vaccinations For Children With SEND

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Babies cry, you can cope When babies cry it can be stressful and overwhelming. Help is out there and all you need to do is ask. Latest news Testimonials

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Swapping Medication Brands (Medication Support)

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Swapping Medication Brands (Medication Support)

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Camp Simcha

Supporting Families Across the Community

Our vision is that no Jewish family, anywhere in the UK, with a child affected by serious illness should have to suffer without our support. Our mission is to provide bespoke, unconditional, practical and emotional support to Jewish families where there is serious childhood illness. We bring hope and joy by providing powerful, positive experiences.

Family members receive our support each year

Annually we need to raise c£3million to provide all our essential services

The number of different conditions we support

Hours of family liaison officer support

Get Involved

Get the latest news about how we're making a difference for seriously ill children and their families

Sign up to our email newsletter

How we use your information

From time to time, we may contact you by email, phone and post to keep you updated on our work and ways you can support us. You can change the way you hear from us at any time by emailing us at office@campsimcha.org.uk or calling us on 020 8202 9297. To help us to work more efficiently, we may analyse your information to make sure you receive the most relevant communications. This may include using publicly available information. You can ask us to stop this at any time, by contacting us using the above details. You can read more about how we use your information in our privacy policy.

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Camp Simcha's practical, therapeutic and emotional support is a lifeline to families with a seriously ill child.

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Access to Work: get support if you have a disability or health condition

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Get help at work, including an Access to Work grant, if you have a disability or health condition - eligibility, how to apply.

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In this section you can find out all about the Equality Act, what it is and how it protects you.

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For straightforward guidance on how to comply with the health and safety law, go to The basics for your business.

The Health and Safety at Work etc Act 1974 is the primary piece of legislation covering occupational health and safety in Great Britain. It's sometimes referred to as HSWA, the HSW Act, the 1974 Act or HASAWA.

It sets out the general duties which:

employers have towards employees and members of the public

employees have to themselves and to each other

certain self-employed have towards themselves and others

You can read the Health and Safety at Work etc Act 1974 in full on legislation.gov.uk.

You can find out about health and safety law in our guide Health and safety at work: criminal and civil law.

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Contains links to various pieces of legislation, as well as the Health and Safety at Work etc Act 1974

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Work, employment and epilepsy | Epilepsy Society

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Having epilepsy does not necessarily stop someone from doing the job they want, but there are some…

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The Hidden Disabilities Sunflower is a discreet sign that the wearer has a hidden disability and may need additional support

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Ketogenic Diet Introduction Video For Kids

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Ketogenic Diet Introduction Video For Kids

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Child Accident and Prevention Parents Safety Guide

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Child Accident and Prevention Parents Safety Guide

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Child Accident Prevention Trust Parents Pack

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Welcome to Spring Lane School, a Bury-based Pupil Referral Unit offering tailored education and support for young people.

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It is an honour and a privilege to be able to welcome you to our amazing new special school Brookhaven. Everything we do at Brookhaven is underpinned by our vision, values and ethos: We believe that all children should have the opportunity to be successful, whatever their starting point. We pledge an unswerving commitment to improve, accelerate and enable ambitious life goals for all students. We aim “To be unique by design, and awesome by outcome”.

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Our aim?

It's quite simple really. We want you to get the support you need to achieve a good night's sleep.

Sometimes you may feel you have little or no control over your sleep but we're here to make sure you get access to accurate, relevant information so you can
make informed choices about your sleep, but also the tools to help you put it into practice.

Together we will empower you to make changes to your own sleep patterns, putting you at the centre of discussions around your sleep needs.

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Advice and information for teens and young people, with top tips to help you if you are struggling with your sleep.

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Expert advice and tailor-made sleep plans to support your child if you live in Manchester, Cheshire or Merseyside and have a child who is autistic or is on the pathway

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Find Sexual Health Advice & Clinics Near You | HCRG

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Sexual Health & STI Clinics in and near Bury | HCRG Care Group

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HCRG Care Group provide sexual health services in Bury and Radcliffe. Free & confidential sexual health services. Walk in or book an appointment.

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Are you between 14 and 25? You might be thinking about your future, like what to do after school or college and how to become independent. Here, you can find information to help you on your journey into adulthood. Education, training, and work - You'll find details about different courses, job opportunities, and volunteering.

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Having a seizure in a wheelchair - Epilepsy Action

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General advice about how to help someone who is having a seizure in a wheelchair. Most people will have their own individual care plan.

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HOPE for Epilepsy | Charity | Children with Epilepsy

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HOPE for Epilepsy is an award winning charity dedicated to supporting and connecting families and children that have been affected by Epilepsy.

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HOPE for Epilepsy | Charity | Children with Epilepsy

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HOPE for Epilepsy is an award winning charity dedicated to supporting and connecting families and children that have been affected by Epilepsy.

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The challenges are tough. So are we.

While there is no cure for LGS, there is a hopeful path forward. On this site, you will find useful information and resources - and most importantly, a community of support.

Find Support What is LGS?

We are dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.

LGS Learn From Every Patient Database

Help Us Find Better Treatments and Cures for LGS

Enroll in Phase 1 Now to Own Your LGS Loved One's Medical Records!
LEARN MORE

International LGS Awareness Day & Epilepsy Awareness Month

Help Raise Awareness of LGS this November!
LEARN MORE

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On this site, you will find useful information and resources about Lennox-Gastaut Syndrome - and most importantly, a community of support.

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Epilepsy Action - Lennox Gastaut Syndrome

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Epilepsy Action - Lennox Gastaut Syndrome

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Lennox-Gastaut syndrome - Epilepsy Action

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Lennox-Gastaut syndrome is a rare epilepsy syndrome that causes regular seizures and learning difficulties.

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Welcome to the Dravet Syndrome UK website. We are dedicated to improving the lives of those affected by Dravet Syndrome through support, education and medical research.

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Dravet syndrome is a rare form of epilepsy. Children can have different types of seizures, as well as learning and developmental problems.

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What is Dravet syndrome - Dravet Syndrome Foundation

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What is Dravet Syndrome? Dravet syndrome is a rare form of intractable epilepsy that begins in infancy and significantly impacts individuals throughout their lifetime.

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Medicines and Healthcare products Regulatory Agency

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Risk Minimisation Measures Required for Valproate Prescribing - Boys

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Risk Minimisation Measures Required for Valproate Prescribing - Boys

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Risk Minimisation Measures Required for Valproate Prescribing - Girls

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Risk Minimisation Measures Required for Valproate Prescribing - Girls

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Is Sodium Valproate Right For Me - Girls

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Is Sodium Valproate Right For Me - Girls

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For one-to-one support after an epilepsy death contact our support team today

We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.

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For one-to-one support after an epilepsy death contact our support team today We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.

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The Lullaby Trust raises awareness of sudden infant death syndrome (SIDS), provides expert advice on safer sleep for babies and offers emotional support for bereaved families

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Welcome to the Food Banks subcategory of the Financial Support In Bury page in The Bury Directory's Home, Housing & Money Support In Bury section.

Here, you can find access to free or subsidised meals and ingredients supplied by voluntary organisations and specialist companies in and around the Bury area.

If you require additional support or assistance with your day to day expenses and food bills due to the coronavirus crisis, take a look to see what help is available.

With resources ranging from free breakfasts and other meals for kids to food parcel deliveries and support services for vulnerable people, you'll find plenty of wonderful opportunities for help, advice and aid - whether you're looking on your own behalf or that of a loved one.

For information about wider financial assistance and advice, take a look at our main Financial Support In Bury page. Alternatively, for sheltered housing and supported living, you'll find all the information you require right .

If you are unable to find exactly what you are looking for, you could pay a visit to The Bury Directory's Housing Information, Support & Advice In Bury page. You can also contact the Directory using a straightforward online form . We'll respond as soon as possible with information and advice.

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Food Banks in Bury | Bury Food Banks | The Bury Directory

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Welcome to the Food Banks subcategory of the Financial Support In Bury page in The Bury Directory's Home, Housing & Money Support In Bury section. Here, you can find access to free or subsidised meals and ingredients supplied by voluntary organisations and specialist companies in and around the Bury area.

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At The Jolly Josh Centre we welcome children and young adults aged 0-19 who live with complex medical needs and physical disabilities. We are not just a Centre; we are a haven of safety, support, and inclusivity. Our mission is simple: to provide a nurturing environment where children, their parents, caregivers, and siblings can thrive […]

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Francis House Children’s Hospice provides a home from home where families receive professional care, support and friendship.

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Integrated & Community Services - Children’s Community Nursing Team Bury :: Northern Care Alliance

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Information about the Children’s Community Nursing Team Bury

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Supporting people across all ages to improve sleep, and provides sleep training to professionals in the health, social and corporate sectors.

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Lots of young children find it difficult to settle down to sleep and will wake up during the night.
For some people, this might not be a problem. But if you or your child are suffering from a lack of sleep, there are some simple things you can try.

Every child is different, so only do what you feel comfortable with and what you think will suit your child.

If your child will not go to bed

Decide what time you want your child to go to bed.

Start a "winding down" bedtime routine around 30 minutes before the time that your child usually falls asleep. Bring this forward by 5 to 10 minutes each week - or 15 minutes if your child is in the habit of going to bed very late - until you get to the bedtime you want. Read more about helping babies to sleep.

Set a limit on how much time you spend with your child when you put them to bed. For example, read only 1 story, then tuck your child in and say goodnight.

Give your child their favourite toy, dummy (if they use one) or comforter before settling into bed.

Leave a dim light on if necessary.

If your child gets up, keep taking them back to bed again with as little fuss as possible.

Try to be consistent.

You may have to repeat this routine for several nights.

Sleep tips for under-5s

Make sure you have a calming, predictable bedtime routine that happens at the same time and includes the same things every night.

If your child complains that they're hungry at night, try giving them a bowl of cereal and milk before bed (make sure you brush their teeth afterwards).

If your child is afraid of the dark, consider using a nightlight or leaving a landing light on.

Do not let your child look at laptops, tablets or phones in the 30 to 60 minutes before bed - the light from screens can interfere with sleep.

If your child wakes up during the night, be as boring as possible to avoid exciting them and leave lights off.

Avoid long naps in the afternoon.

Help your disabled child to sleep

Sometimes children with long-term illnesses or disabilities find it more difficult to sleep through the night. This can be challenging both for them and for you.

The charity Contact has more information about helping you and your child sleep.

Scope also has sleep advice for parents of disabled children.

Further support and advice

Talk to your health visitor if you need further advice. They may have other ideas or suggest you make an appointment at a children's sleep clinic, if there's one in your area.

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Ideas to cope with and manage sleep in young children, including if your child refuses to go to bed.

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Our vision

Our vision is that any parent or carer, wherever they are, has information on their child's medicines that they can trust.

What we offer

Our medicines information pages cover many of the medicines that are prescribed or recommended for children by health professionals. They answer frequent questions, such as how and when to give the medicine, what to do if you forget to give the medicine, and any possible side-effects.

You can also read information or watch our short videos about giving different types of medicines, including tablets, capsules, liquid medicine, inhalers, eye drops/ointment and ear drops.

Who are we?

Medicines for Children is a partnership programme of Royal College of Paediatrics and Child Health (RCPCH), Neonatal and Paediatric Pharmacists Group (NPPG) and WellChild. Read more about us and our work.

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Medicines For Children - We provide practical and reliable advice about giving medicine to your child

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Our vision is that any parent or carer, wherever they are, has information on their child's medicines that they can trust. Our medicines information pages cover many of the medicines that are prescribed or recommended for children by health professionals.

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Royal Manchester Childrens Hospital - Infantile Spasms

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Royal Manchester Childrens Hospital - Infantile Spasms

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Drug-Resistant Epilepsy Treatment for Children - VNS Therapy | LivaNova UK

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VNS Therapy has been shown to safely help children with drug-resistant epilepsy seizures. Learn about VNS Therapy™ and safety.

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Vagus nerve stimulation (VNS) therapy - Epilepsy Action

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Vagus nerve stimulation (VNS) therapy involves having a small device implanted under the skin to try help reduce your seizures.

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If we are missing anything which you would like to see on the page please comment below and we can look at getting this added.

Thankyou 📮🗳😊

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Like epileptic seizures, dissociative seizures are episodes of uncontrolled movements, sensations or behaviour. But unlike epileptic seizures, dissociative seizures are not caused by abnormal electrical activity in the brain.

Instead, it's thought they are a physical reaction to distressing triggers such as sensations, thoughts, emotions and difficult situations.

Some experts say dissociative seizures are the brain's way of 'shutting down' to protect itself from overwhelming distress.

What happens during a dissociative seizure varies from person to person. Some dissociative seizures look very similar to epileptic seizures, whilst others look more like fainting.

Someone having a dissociative seizure may fall to the floor and have shaking or jerking movements, bite their tongue and lose control of their bladder. Other people may go blank and stare, and not be able to respond to people around them.

About 1 in every 5 people referred to hospital for seizures are diagnosed with dissociative seizures. Many people are misdiagnosed with epilepsy at first and take epilepsy medicine for a number of years, before getting the correct diagnosis of dissociative seizures. Some people have both dissociative and epileptic seizures.

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Dissociative (non-epileptic) seizures - Epilepsy Action

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Like epileptic seizures, dissociative seizures are episodes of uncontrolled movements, sensations or behaviour. But unlike epileptic seizures, dissociative seizures are not caused by abnormal electrical activity in the brain. Instead, it's thought they are a physical reaction to distressing triggers such as sensations, thoughts, emotions and difficult situations.

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The Lily Foundation’s vision is a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure. Together we’re navigating the complexities of mitochondrial disease: today raising awareness of mito across the globe; tomorrow unlocking the cure through pioneering research; forever supporting the mito community and empowering everyone to make a difference.

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Ketogenic diet is having a huge impact on Jessica's quality of life. We can't emphasise enough that we have our little girl back, her energy levels have returned, she is much brighter and alert and is back to being the active little girl she was, playing with her football team and attending her dance classes once again.

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Ring 20 research and support - Ring20 Research and Support UK CIO

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Support for Families Click Here Information for Medics & Researchers Click Here Ring Chromosome 20 Syndrome Ring Chromosome 20 Syndrome or r(20) syndrome, is an ultra-rare disease the main symptoms being difficult to treat epilepsy, cognitive decline and behaviour disorder. Support for Families Click Here Information for Medics & Researchers Click Here Donate £10 Donate ...

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Information about aspects of encephalitis. Managed by the Encephalitis Society based in the UK.

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Christmas shop now open!

Gift ideas that will also raise money for us: a win-win situation!

As a parent of a child with a disability, it's important to plan for their future in the event that something happens to you. While it may be difficult to think about, making these plans now can help ensure that your children are taken care of and gives you peace of mind knowing that...

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Angelman Syndrome - UK Support, Education and Research Trust

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Family Conference 26-28 August 2022 Doubletree by Hilton Hotel, Coventry To book go to our Events Page or for more information contact Lisa Court.

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Katie Seeright and her daughter Adeline share how they navigate the challenges of Aicardi Syndrome. This rare genetic disorder has brought them unexpected hardships, but with the help of their community, they've found a sense of home and hope. Learn more about their journey and how awareness can foster inclusivity and support for affected families. Read [...]

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a volunteer-based, non-profit organization dedicated to raising research funds and awareness for Aicardi syndrome.

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Sturge Weber UK - Sturge Weber Syndrome Charity

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Sturge Weber UK - Sturge Weber Syndrome Charity - providing help and support to families & friends of people with this rare condition

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There are a number of different syndromes associated with epilepsy. Find out about epilepsy syndromes on this page

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Administration Guidelines - Evelina London

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Administration Guidelines - Evelina London

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Paraldehyde (rectal) for stopping seizures – Medicines For Children

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This leaflet is for parents and carers about how to use this medicine in children. Our information may differ from that provided by the manufacturers, because their information usually relates to adults. Read this leaflet carefully. Keep it somewhere safe so that you can read it again.

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This leaflet is for parents and carers about how to use this medicine in children. Our information may differ from that provided by the manufacturers, because their information usually relates to adults. Read this leaflet carefully. Keep it somewhere safe so that you can read it again.

Name of medicine

Diazepam for rectal administration

Why is it important for my child to take Diazepam?

Rectal diazepam is used to stop a seizure.

What is Diazepam available as?

Diazepam RecTubes: prefilled white rectal tube with nozzle, containing 2.5 mg, 5 mg or 10 mg diazepam as a liquid. Each RecTube is wrapped in foil.

Stesolid: prefilled yellow rectal tube with nozzle, containing 5 mg or 10 mg diazepam as a liquid. Each foil package contains four Stesolid tubes.

Desitin: prefilled white rectal tube with nozzle, containing 5 mg or 10 mg of diazepam as a liquid. Each Desitin tube is wrapped in foil. There are five Desitin tubes in a package.

These contain alcohol, speak to your doctor, epilepsy nurse or pharmacy if you are concerned.

When should I give Diazepam

You should give rectal diazepam if your child's seizure lasts more than 5 minutes. Follow these steps:

Note the time when the seizure starts.

Wait 5 minutes. The fit may stop on its own.

If the seizure has not slowed down or stopped, give one dose of diazepam.

Wait 5 minutes.

If the seizure has not slowed down or stopped, call for an ambulance.

How much should I give?

Your doctor will work out the amount of Diazepam (the dose) that is right for your child. The dose will be shown on the medicine label.

Make sure you know which dose your child has, and check that you have the right dose of rectal tube.

How should I give Diazepam?

RecTube, Stesolid or Desitin tube

Your epilepsy nurse should have given you the things you need to give the rectal diazepam. These should be kept together, somewhere close to hand. You will need:

the RecTubes®, Stesolid® or Desitin® tubes

disposable plastic gloves

Although it can be upsetting to see your child having a seizure, it is important that you stay calm and follow the instructions.
Prepare the diazepam

Tear open the foil pack of a RecTube®, Stesolid® or Desitin® tube.

Take off the cap at the end of the RecTube®. Remove the cap of the Stesolid® or Desitin® tube by turning it two or three times, without pulling.

Give the diazepam

If you have time, put on the plastic gloves, or wash your hands with soap and hot water.

Put your child into the recovery position (as you would normally during a seizure), lying on their side (this will help the diazepam to be absorbed). With a small child it may be easier to lay the child on their front or across your knees.

Hold one buttock gently to one side so that you can see the back passage.

Gently inset the nozzle (neck of the tube) of the applicator into the back passage, pointing it slightly downwards.

RecTube® nozzles and Desitin® tubes should be inserted halfway.

Stesolid® tubes have marks on the nozzle to guide you. For babies and children under 3 years old, the nozzle should be inserted up to the fi rst mark. For children aged 3 years and older, the whole nozzle should be inserted.

Empty the contents of the RecTube®, Stesolid® or Desitin® by squeezing it fi rmly between your index finger and thumb.

Keep the RecTube®, Stesolid® or Desitin® tube squeezed while you remove the nozzle from your child's back passage.

Hold your child's buttocks together for about a minute to make sure the diazepam doesn't leak out.

There may be a small amount of liquid left in the Stesolid® or Desitin® tube, but this does not matter. There should be no liquid left in the RecTube®.

Put the empty tube and gloves into your normal household waste.

When you get time, wash your hands thoroughly with soap and hot water.

What if my child is sick (vomits)?

You do not need to worry if your child is sick, as the medicine will still work.

What if I give too much?

If you think you may have given your child too much Diazepam, contact your doctor or local NHS services (111 in England and Scotland; 111 or 0845 4647 in parts of Wales) or take your child to hospital. Take the medicine container or packet with you, even if it is empty. This will be useful to the doctor. Have the packet with you if you telephone for advice.

Are there any possible side effects?

We use medicines to make our children better, but sometimes they have other effects that we don't want (side effects).

Side effects you must do something about

Other side-effects you need to know about

There may sometimes be other side effects that are not listed above. If you notice anything unusual and are concerned, contact your doctor. You can report any suspected side effects to a UK safety scheme at

Is there anything else I need to know about this medicine?

Your child should have their rectal diazepam with them at all times. Make sure that your child's teachers and anyone else who looks after them know about their medicine and when it should be given. If they are not able or willing to give the rectal diazepam themselves and your child has a seizure, they must phone an ambulance or take your child to hospital straight away. For older children, make sure their friends also know what to do if your child has a seizure when they are out together.

When you collect a new prescription, make sure you have the right size/dose tube, as they come in different doses.

Only give diazepam to your child. Never give it to anyone else, even if their condition appears to be the same, as this could do harm.

Make sure that the medicine you have at home has not reached the 'best before' or 'use by' date on the packaging.

RecTubes®, Stesolid® or Desitin® should not be kept for longer than 6 months once they have been taken out of the foil packaging.

Give old medicines to your pharmacist to dispose of.

Where should I keep this medicine?

Keep the medicine in a cupboard, away from heat and direct sunlight.

It does not need to be kept in the fridge.

Make sure that children cannot see or reach the medicine.

Keep the medicine in the container it came in.

Your child's doctor, pharmacist or nurse will be able to give you more information about Diazepam and about other medicines used to treat seizures.

Copyright disclaimer

Version [2]. © NPPG, RCPCH and WellChild, all rights reserved. Review by May 2018.

The primary source for the information in this leaflet is the British National Formulary for Children. For details on any other sources used for this leaflet, please contact us through our website, www.medicinesforchildren.org.uk.

We take great care to make sure that the information in this leaflet is correct and up-to-date. However, medicines can be used in different ways for different patients. It is important that you ask the advice of your doctor or pharmacist if you are not sure about something. This leaflet is about the use of these medicines in the UK, and may not apply to other countries. The Royal College of Paediatrics and Child Health (RCPCH), the Neonatal and Paediatric Pharmacists Group (NPPG), WellChild and the contributors and editors cannot be held responsible for the accuracy of information, omissions of information, or any actions that may be taken as a consequence of reading this leaflet.

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This leaflet is for parents and carers about how to use this medicine in children. Our information may differ from that provided by the manufacturers, because their information usually relates to adults. Read this leaflet carefully. Keep it somewhere safe so that you can read it again.

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What do I need to think about when claiming benefits for my epilepsy? | Epilepsy Society

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If you are applying for a benefit, you will need to complete a form about how your condition…

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Donations doubled in the Big Give Christmas Challenge

Simply support Shout's Big Give campaign by midday on 5 December, and your donation will be doubled!

Can you help us hit our match funding target of £50,000 and support a further 5,000 people this winter?

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Ways to cope with upsetting events in the news

If you're feeling overwhelmed, anxious or sad about what's going on in the news, know that you're definitely not alone. Here are some actions we can take to help us cope better through times like this.

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I think Shout saved my life tonight... no one has ever made me feel so safe, listened to and understood

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However you're feeling right now, you don't have to face it alone. We're here to support you with your mental health.

Take a look at our resources, information and support, find further help or reach out to one of our volunteers.

Resources for you

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Shout - UK's 24/7 Crisis Text Service for Mental Health Support

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Shout 85258 is the UK's first 24/7 text service for anyone in crisis. Get free, confidential mental health support anytime, anywhere. Text 'SHOUT' to 85258.

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The aim is to find out which type of epilepsy treatment women are taking while they are pregnant, and to collect information on the health of their babies after delivery.

By agreeing to register, your valuable contribution will help doctors give the best advice possible to you and to other women who are thinking of becoming pregnant.

To join the Register, click on 'Further information' above, or call our
Freephone Number: 0800 389 1248.

If you are interested in learning more about the UK Epilepsy and Pregnancy Register or would like to join the register, please click on the link below

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The UK Epilepsy and Pregnancy register is for helping pregnant epileptic women in the UK.

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This information is for you if you have epilepsy and are considering starting a family, or might be in the future

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From 1 September 2024, pregnant women can have a free vaccine in each pregnancy, to protect their babies against respiratory syncytial virus ( RSV).

RSV is a common virus which can cause a lung infection called bronchiolitis. In small babies this condition can make it hard to breathe and to feed. Most cases can be managed at home but around 20,000 infants are admitted to hospital with bronchiolitis each year in England. Infants with severe bronchiolitis may need intensive care and the infection can be fatal. RSV is more likely to be serious in very young babies, those born prematurely, and those with conditions that affect their heart, breathing or immune system.

Symptoms of RSV bronchiolitis

The symptoms of RSV bronchiolitis can include:

runny or blocked nose

breathing is difficult, fast or noisy (wheezing)

difficulty feeding

cough

fever

unsettled or difficult to comfort

tiredness or lethargy

RSV can also cause other conditions in young children such as a barking cough (croup) and a painful infection inside the ear (otitis media).

Ask for an urgent GP appointment or call 111 if your child has the following symptoms

your child has had a cold and it's getting worse

your child is feeding or eating much less than normal

your child has had a dry nappy for 12 hours or more, or shows other signs of dehydration

your baby is under 3 months and has a temperature of 38°C

your baby is older than 3 months and has a temperature of 39°C or higher

Call 999 or go to A&E

If your child seems seriously unwell, trust your own judgement.

You should act if:

your child is having difficulty breathing

you may notice grunting noises or their chest and tummy wall being sucked in between or just under their ribs

there are pauses when your child breathes

your child's skin, tongue or lips are blue

your child is floppy and will not wake up or stay awake

How RSV is spread

RSV infections can occur all year round but cases peak every winter.

RSV is highly infectious and spreads easily, particularly among children, through coughing and sneezing. Even with simple measures such as hand-washing and covering your mouth and nose when you sneeze, it is difficult to avoid spreading the infection within the family. The best way to protect your baby against RSV infection is for you to have the vaccine during pregnancy.

How the RSV protects your baby

The vaccine boosts your immune system to produce more antibodies against the virus. These antibodies then pass through the placenta to help protect your baby from the day they are born. RSV vaccination reduces the risk of severe bronchiolitis by 70% in the first 6 months of life. After this age your baby is at much lower risk of severe RSV.

Older children and adults can also get RSV infection, but the disease is more serious for small babies and people aged 75 and over.

The vaccine has been shown to reduce the chance of your baby suffering from severe RSV disease. Like all medicines, no vaccine is completely effective and some babies may still get RSV infection despite their mothers having the vaccine. However, for most babies born to vaccinated mums, any RSV infection should be less severe.

When you will be offered the RSV vaccine

You should be offered it around the time of your 28 week antenatal appointment. If you haven't heard by this stage, contact your maternity service or GP practice to make an appointment. Having the vaccine in week 28 or within a few weeks of this will help you build a good level of antibodies to pass on to your baby before birth. This will give your baby the best protection, including if they are born early.

You can still have the vaccine later in your pregnancy but it may be less effective. If it wasn't possible to have your vaccine earlier, it can be given right up until you have the baby. If you have it very late in pregnancy, it may still protect you from infection and reduce the risk of you spreading infection to your newborn baby.

You will be offered the RSV vaccine during every pregnancy

Having the vaccine during each pregnancy will offer your new baby the best protection from RSV.

The safety of RSV vaccination during pregnancy

The vaccine has been studied in clinical trials of almost 4,000 women and been given to many thousands of women in national programmes. Monitoring in the USA, where it has been given to over 100,000 women, has shown a good safety profile. In the main clinical trial, in the month after vaccination, there were slightly more premature babies in the vaccine group (2.1%) than the group that didn't have the vaccine (1.9%). This difference is most likely to be due to chance.

The vaccine has been approved by medicines regulators in the UK, Europe and USA on the basis of protection, quality and safety.

Babies at a higher risk of RSV infection

Some babies are at higher risk of RSV, such as those who are very premature, those with severe heart disease or those with weakened immunity. They may also be offered an antibody injection. This injection will provide additional protection on top of any antibodies they might get from their mother.

Having the RSV vaccine at the same time as other vaccines

It is important to have your vaccines at the right time in pregnancy

Whooping cough (pertussis) vaccine

The whooping cough vaccine is usually given earlier in pregnancy. Around the time of the mid pregnancy scan, usually 20 weeks.

Flu vaccine

Flu vaccine can be given at any stage of pregnancy. You should have it as soon as it becomes available to you.

When you are called up for your RSV vaccine, if you have not yet had your whooping cough or flu vaccines, then you should have them at the same time.

Side effects from the RSV vaccine

The vaccine is a single injection in your upper arm. Side effects are usually mild. These may include:

headache

muscle ache

soreness, redness or swelling at the site of the injection

You can report suspected side effects to the Medicines and Healthcare products Regulatory Agency (MHRA):

on the Yellow Card website

by calling the free phone line: 0800 731 6789 (9am to 5pm, Monday to Friday)

by downloading the Yellow Card App on iOS or Android

Further information

Speak to your midwife or GP practice for more information on the RSV vaccine and other vaccines you will be offered during your pregnancy.

Read the patient information leaflet for the RSV vaccine Abrysvo.

Read about the vaccines you should be offered during your pregnancy.

Read further information on vaccinations you will be offered when pregnant.

Read information about the RSV vaccination programme for older adults.

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A guide to RSV vaccination for pregnant women

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From 1 September 2024, pregnant women can have a free vaccine in each pregnancy, to protect their babies against respiratory syncytial virus ( RSV). RSV is a common virus which can cause a lung infection called bronchiolitis. In small babies this condition can make it hard to breathe and to feed.

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Keeping a seizure diary - Epilepsy Action

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Keeping a seizure diary can help you track and manage your epilepsy. This page gives advice and examples of apps and a free download.

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Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

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There are many reasons we encourage patients to bring their own supply of medications from home into hospital.

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Homepage - North Manchester General Hospital

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Just another Manchester University NHS Foundation Trust Sites site

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The Royal Oldham Hospital :: Northern Care Alliance

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Information and maps for travel to The Royal Oldham Hospital

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Homepage - Royal Manchester Children's Hospital

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We are the largest and busiest children's hospital in the UK with 371 paediatric beds. A further 60 neonatal cots also operate, within the same building, in the tertiary neonatal unit of Saint Mary's Hospital.

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Interactive 360° Virtual Map of Alder Hey - Alder Hey Children’s Hospital Trust

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Alder Hey has developed Europe’s largest 360° hospital virtual tour, designed specifically for children and their families. Developed using Matterport technology, it will help children and young people become more familiar with the hospital before appointments or procedures. It will also help to reduce anxiety and nerves associated with hospital visits. The cutting-edge experience, funded […]

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Photosensitive epilepsy - Epilepsy Action

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Information about photosensitive epilepsy, how you can test for it and how you can treat it

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Periods and catamenial epilepsy - Epilepsy Action

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This page explains the connections between epilepsy and your periods or menstrual cycle, including catamenial epilepsy.