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Questions from the Annual Conference Virtual Audience

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Questions from the Annual Conference Virtual Audience

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1. If there are ballot measures in 2024 that are similar to the ones we have seen recently (in Kansas and Michigan), what will NSGC do to support reproductive justice during that election?

2. How is lethal anomaly defined?

3. Is there potential for fines/criminal charges for a person traveling for abortion care, or for healthcare providers providing options for out of state care?

4. How is one deemed a citizen of a state before birth?

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The Anti- Choice unaccredited GC program has some NSGC resources on their website…has this been approved by NSGC?

https://www.uu.edu/programs/genetic-counseling/about/

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About the Genetic Counseling Program

Click for larger view - chart source

The primary role of a genetic counselor is to provide information regarding the results of genetic tests to patients, loved ones, or caregivers. Genetic tests are used primarily to inform diagnosis and treatment at the beginning of life and into childhood, for cancer screening, or for the analysis of other genetic diseases.

Genetic counselors excel at providing genetic information, and showing care and concern for their patients. They emphasize "non-directiveness"; not interjecting one's own values into a patient's decision making. Genetic counseling is one of the fastest growing occupations in the US.

Concern about the concept of 'non-directiveness'

"Counseling is not a value free enterprise. Therapeutic models are value laden. Counselors and clients are both emotionally invested in 'right living' issues. Since no therapy is value free, clients face the dilemma of finding a therapist with values similar to their own or having their values challenged. Therapists face the ethical issue of clarifying their own values and determining how to make them known."
- International Journal of Value-Based Management (1996) 1:29:43

While the idea of non-directiveness may be the goal, what is not said communicates value as much as what is said, and sometimes what is said is not value-free.

Pro-Life Genetic Counseling

This Genetic Counseling program will focus on:

Relationship and community within a Christian context, including prayer for and with the patients

Carefully and lovingly applying Scripture to each situation

An in-depth interpretation of the genetic data, including ambiguities, in ways that all patients can understand

Connecting patients with others in similar situations

Advocating for children born with non-traditional genetic profiles

Advocating for adoption in all of its Biblical forms

Applying Christian genetic counseling principles to patients making genetically-related decisions at any age, including decisions regarding reproduction or end of life issues

Providing continuing education on the latest data and advancements in the field through the academy and to the greater public

"I have seen a number of patients referred for specialty services outside Jackson and they have returned to me very upset as the provider did not share their worldview and thus made suggestions - even encouragement - to them to pursue pathways not consistent with the patient's faith perspectives. That is a sage comment you quoted in the goals document - counseling is certainly not a values free enterprise and this brings up myriad issues. I know first hand how much patients appreciate a provider who shares their belief system. There certainly is a need for well trained and well balanced faith based genetic counselors..."

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The primary role of a genetic counselor is to provide information regarding the results of genetic tests to patients, loved ones, or caregivers. Genetic tests are used primarily to inform diagnosis and treatment at the beginning of life and into childhood, for cancer screening, or for the analysis of other genetic diseases.

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I’m feeling powerless to make a difference in advocating for reproductive justice.  I was looking forward to attending AEC in person this year, but when the abortion ban was announced I decided to attend virtually. I could not in good conscience spend money in Tennessee. Will NSGC plan to schedule all future conferences in states that support reproductive freedom?

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Mentimeter Results in Spreadsheet Format

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Mentimeter Results in Spreadsheet Format

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Health Equity Guide for Non-Stigmatized and Bias-Free Language

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Health Equity Guide for Non-Stigmatized and Bias-Free Language

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Opportunities to expand our knowledge about reproductive justice and abortion advocacy

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https://www.wearedopo.com/

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In the South and need an abortion?
Give us a call at 844.44.ABORT (844.442.2678)
Our name may say New Orleans, but we partner with callers from across the Gulf South to connect them with the funding and resources they need to access legal abortion care. If you are traveling from Louisiana or the surrounding states for care in a state where abortion is legal, give us a call.

We provide compassionate support to affirm the dignity of people seeking abortion care.

¿En el Sur y se necesita cuidado de aborto?
Llámenos al 844.442.2678. Oprime 1 para nuestra Línea de Apoyo en Español.
Nuestro nombre puede decir Nueva Orleans, pero acompañamos a llamadorxs a tráves del Golfo Sur para conectarles con los fondos y recursos que necesitan para acceder el cuidado del aborto. Si usted vive en Luisiana o los estados cercanos, llámenos.

Proveemos de ayuda al acceso para el aborto legal. Para las personas que vivan en un estado donde el aborto no es legal podemos ayudar en el viaje y la ayuda para la obtención del aborto que usted necesita en un estado donde sea legal.

El Fondo de Aborto de Nueva Orleans ofrece apoyo compasivo que afirma la dignidad de las personas buscando el cuidado de aborto.

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Give us a call at 844.44.ABORT (844.442.2678) Our name may say New Orleans, but we partner with callers from across the Gulf South to connect them with the funding and resources they need to access legal abortion care. If you are traveling from Louisiana or the surrounding states for care in a state where abortion is legal, give us a call.

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© 2022 - National Society of Genetic Counselors (NSGC)

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As we think about ways to help our patients navigate abortion access and follow-up care, what resources are MISSING?

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We hope you utilize this space to continue the important conversation about reproductive justice and the genetic counseling profession. Please post questions, answers, resources, ideas, and anything that would help patients and providers navigate a post-Roe world.

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We were so lucky to have such an esteemed panel of experts at the 2022 Annual Conference!

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Mentimeter Results- One Word to Describe Current State of Reproductive Justice

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Mentimeter Results- One Word to Describe Current State of Reproductive Justice

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Information about the NSGC Ethics Advisory Group (EAG) and NSGC’s ethics consult request form.