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Sandy Bear Children's Bereavement Charity - YouTube

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Sandy Bear Childrens Bereavement Charity

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Sandy Bear is a charity supporting children and young people, and their families coping with the death of a parent or sibling.

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Top tips to help parents with life-limiting illness English

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Top tips to help parents with life-limiting illness Cymraeg

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Let us know what you think of our Padlet

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Take this survey powered by surveymonkey.com. Create your own surveys for free.

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Transport is available for patients in Wales needing to get to Non-Emergency appointments who have a specific medical need. Tel: 0300 123 2303Wales Ambulance Service Non-Emergency Patient Transport Service BSL & English Audio

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Non-Emergency Patient Transport Service (NEPTS)

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Non-Emergency Patient Transport Service (NEPTS)

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Wales Ambulance Service Non-Emergency Patient Transport Service BSL & English Audio

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Relaxation and breathing exercises | Maggie’s

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Relaxation and breathing exercises can help you to feel more in control and manage difficult emotions.

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An interactive, practical toolkit for all those living with Neuroendocrine Cancer

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Each year in the UK, approximately 6,000 individuals receive a diagnosis of neuroendocrine cancer. This type of cancer can affect people of any age or gender and may develop in various parts of the body. But what exactly is neuroendocrine cancer?

In this section, you'll discover comprehensive information, resources, and support for individuals and families impacted by this disease. From understanding symptoms to undergoing tests, exploring treatment options, receiving a diagnosis, and beyond, we aim to provide valuable guidance every step of the way.

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Each year in the UK, approximately 6,000 individuals receive a diagnosis of neuroendocrine cancer. This type of cancer can affect people of any age or gender and may develop in various parts of the body. But what exactly is neuroendocrine cancer? In this section, you'll discover comprehensive information, resources, and support for individuals and families impacted by this disease.

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South Wales local hospitals contact information

Morriston Hospital -

01792 702222

Withybush General Hospital -
01437 764 545
Glangwili General Hospital -
01267 235 151
Bronglais General Hospital -
01970 623 131

Prince Phillip Hospital -
01554 756 567

Neath Port Talbot Hospital -
01639 862 000

Prince Charles Hospital -
01685 721 721

Royal Glamorgan Hospital -
01443 443 443

University Hospital of Wales -
02920 747 747

Nevill Hall Hospital -
01873 732 732

Royal Gwent Hospital -
01633 234 234

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Cancer Treatment Alert Card (Triage line)

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Cancer Treatment Alert Card (Triage line)

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Swansea Bay patients:

01792 618829

Hywel Dda patients:

0300 304 7430

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"I direct all my patients to Maggie's. They not only get expert advice but they receive the support and understanding to assist them and their families when dealing with a cancer diagnosis. All my patients tell me how pleased they are that they took that step to visit Maggie's"

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"I direct all my patients to Maggie's. They not only get expert advice but they receive the support and understanding to assist them and their families when dealing with a cancer diagnosis. All my patients tell me how pleased they are that they took that step to visit Maggie's"

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Neuroendocrine tumours (NETs) - Macmillan Cancer Support

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Information on neuroendocrine tumours (NETs), including how they are diagnosed, treatments you might have, possible side effects and how to get support.

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People all over the UK host their own Coffee Morning and donations raised on the day are made to Macmillan.

A Coffee Morning can be whatever you want it to be. It could be at home, on your driveway, a hall or online, whatever suits you best. You can hold a garden get together and throw a barbeque, or treat your colleagues to some homemade bakes, or even get together with friends for a takeaway.

In 2023 Coffee Morning raised over £16 million and we hope to top that this year.

When is Macmillan's Coffee Morning?

The official date of Coffee Morning is Friday 27 September. This doesn't mean you can't host at other times of the year! You can host your coffee morning whenever suits you best.

How you can get involved

Whatever your reason to host, no reason is too big or too small. All you have to do is sign up to host a Coffee Morning and we'll send you a fundraising kit with top tips to get you started.

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The World's Biggest Coffee Morning for Macmillan Cancer Support

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Nothing stops a Macmillan Coffee Morning. Small or big, tea or coffee, socially distanced or on video call - Coffee Morning is whatever you make it.

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We're here to help everyone with cancer live life as fully as they can. Whether you need help paying bills, advice on benefits or treatment, or just want to chat, find out about the different ways we can help.

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We're here to help everyone with cancer live life as fully as they can. Whether you need help paying bills, advice on benefits or treatment, or just want to chat, find out about the different ways we can help.

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"You feel connected to so many people and part of a community"

"The atmosphere is just amazing. People are all there for a reason, usually to remember somebody or support somebody who's going through cancer. When you read the signs on people's backs it makes you feel connected to so many people and part of a community."
Viv, Race for Life Darlington 2022

"I'm excited to support Race for Life and play my part to fund research"

"It's thanks to advances in research and treatments that I'm here and can enjoy more special moments with my family and friends. I'm excited to support Race for Life and play my part to fund research today which I hope will also help beat cancer for future generations."
Carly, Race for Life at home 2020

"Race for Life was an inspiring, uplifting, memorable day"

"Race for Life was an inspiring, uplifting, memorable day surrounded by so many wonderful people each with their own story of how cancer has affected their lives. For me, having my best friend facing stage 4 cancer, the toughest fight of her life all I can do is support her and do what I can to make that journey less daunting and lonely. Race For Life brought people together and with Viv starting the race off, showed the support, care and compassion from the community - it was amazing!"
Tracy, Race for Life Darlington 2022

"I would like to do whatever I can to raise cancer awareness"

"I ran Race for Life in Guildford in August 2022 and raised £800. I will probably run it again next year. I would like to do whatever I can to raise awareness among men not to ignore symptoms, which I think is a tendency. I feel really lucky that although I tried to pretend nothing was wrong at first myself when I found a lump, I did go to the doctors two weeks later and got diagnosed and treated."
Ian, Race for Life Guildford

"I raised £450 and really enjoyed the experience."

"In 2020, I took part in a clinical trial to treat stage 4 colorectal cancer. By October 2021, I was in remission. During the trial I was well enough to do the Pretty Muddy Race for Life in Reading with my best friend. I raised £450, really enjoyed the experience and would have done it again this year had the date not clashed with a holiday I'd booked! I'll probably sign up to do it next year."

Natasha, Pretty Muddy® Reading, 2020

"We all got so muddy on a rainy day. I loved it."

"I had a goal of taking part in an obstacle race, but at the same time wanted to raise money and awareness for Cancer Research UK.  The race was really fun and made me feel really strong and full of energy when I finished it.  A lot of my friends, my dad and teachers also took part to support me, and we all got so muddy on a rainy day. I loved it."
Jasper, Pretty Muddy® Kids

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"You feel connected to so many people and part of a community" "The atmosphere is just amazing. People are all there for a reason, usually to remember somebody or support somebody who's going through cancer. When you read the signs on people's backs it makes you feel connected to so many people and part of a community."

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CISS: cancer information and support services

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CISS: cancer information and support services

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Home - Cancer Information & Support Services

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An Integrated Care Approach to Improve Well-Being in Cancer Patients

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An Integrated Care Approach to Improve Well-Being in Cancer Patients

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Treatment depends on the type of NET you have, where the tumour is, its size and whether it has spread (the stage).

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If you have cancer or you're close to someone who has, we can help. We bring treatment, emotional support and practical advice to where it matters the most; the heart of the community. Last year...

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Tenovus Cancer Care - giving help, hope, and a voice to everyone affected by cancer.

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Tenovus Cancer Care is a Wales-based charity giving help, hope, and a voice to everyone affected by cancer.

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Maggie’s can help you with financial stress if you or someone you love has cancer. Find out more about Benefits advice at Maggie’s.

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Support from your work

If you work for an employer and take time off sick, you may be able to get sick pay. Your employer should also make reasonable adjustments to help you do your job during and after cancer treatment.

If you are self-employed you will not get sick pay. But you can still apply for other benefits if you cannot work or if your income decreases.

Access to Work provides advice and practical support if you have a long-term health condition that affects the way you do your job. This might include help with extra costs caused by your health condition.

Visit Access to Work, or NiDirect if you live in Northern Ireland.

Universal Credit

Universal Credit (UC) is a benefit for people under State Pension age who are on a low income or out of work.

To claim UC, you must:

be aged 18 or over - or 16 or over in certain cases

not be in full-time education or training - unless exceptions apply, such as you get Personal Independence Payment and are not able to work due to ill-health

not have more than £16,000 in savings (between you and a partner if you have one)

accept an agreement called a claimant commitment.

Income tax refund

You may be able to get a tax refund if you give up work, or if your income decreases. It is also worth checking whether you are still paying the correct amount of tax if your situation changes.

Your employer may be able to organise this. You can also apply for a tax refund online or contact HM Revenue and Customs (HMRC) on 0300 200 3000.

Keeping a diary

Recording the problems you have every day in a diary can help you show how a disability or illness affects you, or that you have problems looking after yourself.

This may help you complete a claim form for benefits that support people with a disability or illness. You can also send it as supporting evidence along with your claim form. Other evidence could include reports or care plans from your GP, doctor, nurse, or other health professionals.

Disability Living Allowance for Adults

Disability Living Allowance (DLA) for adults has been replaced by Personal Independence Payment (PIP).

DLA for adults was a benefit for people aged under 65 who had problems walking, moving around outdoors safely, or looking after themselves. You may still be getting DLA for adults if you live in England, Scotland or Wales and claimed before June 2013.

Industrial Injuries Disablement Benefit

You can claim Industrial Injuries Disablement Benefit if you were employed in a job, or on an employment training scheme, that either:

caused you to have a disease

caused you to have an accident.

Help with toilet needs

The National Key Scheme (NKS) offers people with a disability (including cancer) access to public disabled toilets across the UK. You can buy a RADAR (Royal Association for Disability and Rehabilitation) key for £4.75 (including postage and packaging) from Disability Rights UK or call 020 3687 0790.

In Northern Ireland, these keys can be bought at any local council office.

The Macmillan toilet card

Cancer treatment can affect the way the bowel or bladder works. Macmillan can send you a free toilet card and key ring, which explain why you may need to access a toilet urgently while out in public. We have a general version, and one for people who are experiencing late side effects after pelvic radiotherapy. Visit be.macmillan.org.uk and search for 'toilet card' to order these free resources.

State Pension

The State Pension is a regular payment you can get from the government when you reach State Pension age.

The State Pension age for men and women is increasing in stages.

We have more information about pensions, including private pensions.

Pension Credit

Pension Credit is a benefit for people who have reached a certain age and have a low income. To get Pension Credit, you or your partner if you have one, must have reached State Pension age. Your partner means your husband, wife or civil partner (if you live with them), or someone else you live with as if you were married.

You may be able to get help with housing costs. This could include rent or mortgage payments, council tax and home adaptations.

Universal Credit and Housing Benefit

Universal Credit has replaced Housing Benefit in most circumstances. If you are making a new claim, or there is a change in your circumstances, you may need to apply for Universal Credit instead of Housing Benefit.

Housing Benefit may help you to pay your rent if you are on a low income

Help with council tax or rates mortgage interest and bills

There are other benefits, loans and grants available to help with the costs of housing.

Local council tax reduction schemes can help towards the cost of your council tax if you are on a low income. If you live in Northern Ireland, you may be able to apply for help to pay your rates bill.

If you own your home, you may be able to apply for a loan from the government to help pay your mortgage interest payments.

You may also be able to get help if you need to adapt, repair or improve your home. The help available depends on where you live in the UK.

Carer's Allowance and Carer's Credit

If you look after someone with a lot of care needs, you could be entitled to Carer's Allowance.

If you are entitled to Carer's Allowance, or the carers element of Universal Credit, you will not be affected by the benefit cap.

Carer's Credit helps prevent gaps in your National Insurance record if you have to stop working while you are caring for someone else.

Bereavement benefits

Bereavement benefits can be paid to someone whose husband, wife or civil partner has died.

If your partner died on or after 6 April 2017, you can make a claim for Bereavement Support Payment up to 3 months after their death.

To get Bereavement Support Payment, you must have been under State Pension age when your partner died.

Macmillan Cancer Support Line

The Macmillan Support Line offers confidential support to people living with cancer and their loved ones. If you need to talk, we'll listen.

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Benefits and financial support - Macmillan Cancer Support

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If you work for an employer and take time off sick, you may be able to get sick pay. Your employer should also make reasonable adjustments to help you do your job during and after cancer treatment. If you are self-employed you will not get sick pay.

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Homepage - Cancer Care Map

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An introduction to Cancer Care Map and all the new features

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You might have a number of tests to help diagnose a neuroendocrine tumour or to see how big the NET is and whether it has spread.

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Patient Age

For children under the age of 12 requiring a blood test, the paediatric department should be contacted directly to make an appointment. The blood test booking line does not book appointments for under 12s and these cannot be booked via the online booking system at any of the sites . See information regarding children's blood tests in the FAQ section below.

Restrictions for certain tests

The following tests must be performed at a specific site:

Quantiferon: Only available at Singleton, Morriston or NPTH Monday - Thursday mornings.

Cryoglobulins: Only available at Morriston

General information

Blood tests, clinically referred to as phlebotomy, have a wide range of uses and are one of the most common types of medical tests.

A blood test can be used to assess your general state of health, check if you have an infection, see how well certain organs such as the liver and kidneys are working and screen for certain genetic conditions.
You must have a blood form to book your appointment for a blood test
The quickest and easiest way to book is by using the link above to the online booking page.

If you can't book online you can telephone 01792 601807, Monday to Friday, between 9am and 4pm.

There will be a fixed number of appointments available for booked blood tests at each hospital site daily.

Please attend blood test appointments alone. Only children or those who are vulnerable may be accompanied into our hospitals due to Covid-19 restrictions. Please do not arrive in the department more than five minutes before your appointment.

Disabled access: For health and safety reasons we reserve the right to prioritise patients with mobility issues at our clinics.

If you require multiple blood tests at fixed intervals, or need to book a blood test more than four weeks in advance please contact our booking team on 01792 601807.

Please make every effort to attend booked blood test appointments. We keep a record of missed appointments.

Do not attend for a blood test if you have any of the following symptoms:

Temperature or fever in the last 48 hours

A new persistent cough in the last 48 hours

Loss or change to sense of smell or taste

If you live in the same house as someone who has developed the above symptoms or has had a positive COVID-19 test in the last 14 days.

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Blood tests: How to book and more information

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Patient Age For children under the age of 12 requiring a blood test, the paediatric department should be contacted directly to make an appointment. The blood test booking line does not book appointments for under 12s and these cannot be booked via the online booking system at any of the sites .

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Blood tests, sometimes referred to as phlebotomy, have a wide range of uses and are one of the most common types of medical tests. A blood test can be used to assess your general state of health or check if you have an…

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What is the Macmillan Deaf Cancer Support Project?

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What is the Macmillan Deaf Cancer Support Project?

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Macmillan Deaf Cancer Support Project Overview

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Reporting of side effects
If you get any side effects , talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the package leaflet.
You can also report side effects directly via the Yellow Card Scheme at www.mhra.gov.uk/yellowcard or search for MHRA Yellow Card in Google Play or Apple App Store.
Side effects should also be reported to Ipsen via email at pharmacovigilance.uk-ie@ipsen.com or phone 01753 627777.
By reporting side effects, you can help provide more information on the safety of this medicine.

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Reporting of side effectsIf you get any side effects , talk to your doctor, pharmacist or nurse. This includes any possible side effects not listed in the package leaflet.You can also report side effects directly via the Yellow Card Scheme at www.mhra.gov.uk/yellowcard or search for MHRA Yellow Card in Google Play or Apple App Store.Side...

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Loneliness and isolation - Macmillan Cancer Support

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If you have cancer, you may sometimes feel lonely and isolated. We have information about coping with loneliness and how you can ask for help.

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Find out what you can do to help cope with a diagnosis of a NET and its treatment, and the effect it can have on your life and relationships.

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Electronic Holistic Needs Assessment (EHNA)

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There are lots of different ways you can play your part typing really you just type your change and support Cancer Research UK. ​

From raising money, to pledging a gift in your Will, volunteering, or donating, all of us can support the research that will help beat cancer. ​

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There are lots of different ways you can play your part typing really you just type your change and support Cancer Research UK. ​ From raising money, to pledging a gift in your Will, volunteering, or donating, all of us can support the research that will help beat cancer. ​

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Neurodiversity and cancer: getting information and support

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Neurodiversity and cancer: getting information and support

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Living with cancer and neurodiversity can make some aspects of managing diagnosis and treatment challenging.

There is lots of support for people with cancer. Your healthcare team can give you information. They can answer your questions and you can tell them if you are worried about anything so they can help.

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Neurodiversity and cancer: getting information and support - Macmillan Cancer Support

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From managing treatment options to asking your healthcare team for extra support, this article shares practical advice for neurodivergent people living with cancer.

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Research has shown that exercise is safe, possible and helpful for many people with cancer.

What is physical activity?

Being physically active means any movement that uses your muscles and more energy than when you're resting. Being physically active doesn't have to mean joining a gym or an exercise class. It can also be walking to the shops, walking up the stairs, gardening or dancing.

There are two types of physical activity:

aerobic - this uses more oxygen and improves the way your heart (cardiovascular system) works, for example, running

anaerobic - which increases your muscle strength and mass, for example, weight training

Physical activity can also be of a:

moderate intensity - this is when the activity makes you feel warmer, and breathe faster, but you can still talk; for example, brisk walking, cycling, swimming, gardening or housework

vigorous intensity - this is an activity that raises your heart rate and makes you start to sweat and feel out of breath; for example, running, aerobics, netball, football and fast cycling

How active you are and what type of activity you can and want to do will depend on:

the type of cancer you have

your treatment and any side effects you hvae

how physically active you are already

what activities you enjoy

Why is being physically active important?

Research has shown that moderate and vigorous physical activity reduces the risk of cancers of the:

bowel (colon only)

breast - in women who have had their menopause (postmenopausal)

womb (endometrium)

Being physically active can also help to prevent being very overweight (obese). Research links obesity to a higher risk of getting 13 types of cancers.

Research suggests that just being less sedentary can help as well. So, if you work at the computer get up and move around regularly and when you're watching TV you could get up during advert breaks or between programmes.

There is also evidence that being more physically active can help to reduce the risk of some cancers coming back.

How being more physically active can help

There are very good reasons for being more physically active. It can improve your quality of life and help you feel better. Regular physical activity can reduce stress and give you more energy.

Research has shown that there is strong evidence that certain ways of being active can help people with cancer:

reduce anxiety

improve depression

reduce fatigue

improve quality of life during and after cancer treatment

prevent or improve lymphoedema (a type of swelling caused by treatment to lymph nodes)

improve general physical functioning

Guidelines

It is difficult to write exercise guidelines to cover everyone. Everyone is different in terms of how much exercise they can do. And there are many types of cancer and treatments. In general, if you have cancer, you should check with your doctor before starting any exercise.

International guidelines say that it is safe to be active during cancer treatment and after. Also, people with cancer should try to be active and get back to their normal activities as soon as possible.

The UK government and the World Cancer Research Fund (WCRF) have suggestions to help prevent cancer and other conditions. They say that all adults should try to do at least one of the following ways of exercising:

150 minutes of moderate intensity activity per week; for example, 30 minutes 5 times per week

75 minutes of vigorous activity per week

All adults should also try and build strength twice a week; for example, weight training or yoga.

Remember that everyone is different and exercise needs to be tailored to you. Take into account your fitness, diagnosis, and other factors that could affect safety.

When to avoid certain types of physical activity

People with certain types of cancer or having particular treatments might need to avoid some types of exercise. There are some situations where you need to take extra care.

Cancer affecting your bones

If you have cancer affecting your bones, you might be more at risk of a break or fracture. You must avoid putting too much strain on the affected bones. You could try swimming or exercising in water. The water supports your body weight, so the skeleton isn't stressed. Exercise such as yoga generally appears safe for everyone.

Low immunity

People with low immunity due to treatment should try to avoid exercising in public gyms. Ask your medical team when it is safe to start exercising in the gym with other people. This doesn't mean you can't be physically active in other ways.

Peripheral neuropathy

Some people have a loss of sensation, or feelings of pins and needles, in their hands and feet. This can be due to cancer treatments. It is called peripheral neuropathy. If you have this, it might be better to use a stationary bike than to do other types of weight bearing exercise.

After certain types of surgery

After certain types of surgery, you might have to wait before you can exercise like you used to. Talk to your doctor or specialist nurse for advice on what types of exercise you can do.

Getting started

It's fine to start being more active whether:

you have just been diagnosed

you're having treatment

you have recently finished

How much you do depends on how fit you are generally. You can start by making a few small changes. For example you could start by walking around your house or walking around the block or even getting off the bus one stop early.

If you aren't very physically active, you'll need to build up gradually. If you do too much one day, you might feel very tired and sore the next day. Don't feel that you always have to do more than yesterday. Some days you'll have more energy than others.

Start with short chunks (10 to 15 minutes) of gentle activity. Then gradually build up until you reach your target.

Try and stay active. You can break up periods of rest with activities around the house, for example, mowing the lawn or ironing.

Find activities that are enjoyable as you are more likely to stick to it. But try not to let past lack of activity put you off starting altogether. Gentle walking or swimming is fine for just about everyone. You can still build up day by day.

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Research has shown that exercise is safe, possible and helpful for many people with cancer. Find out why exercise is important and how it can help.

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OUTpatients is the UK's Only LGBTIQ+ Cancer Charity. Proudly Led by and for LGBTIQ+ People Affected by Cancer. We Work Hard to Support & Advocate for our Community.

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The Cinnamon Trust: the national charity for older people, the terminally ill and their pets

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The Cinnamon Trust: the national charity for older people, the terminally ill and their pets

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The National Charity for older people, the terminally ill and their pets

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Neath Port Talbot Adult’s and children’s single point of contact

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Neath Port Talbot Adult’s and children’s single point of contact

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(Text Relay / Typetalk users please use 18001 first followed by 01639 686802)

Residents can also access information about what support services are provided by community organisations through searching the online directory known as Dewis or by visiting their website.

Young people or parents who want information around what is available locally for young people can visit NPT Young People.

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Adult's and children's single point of contact

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Adult's and children's single point of contact

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What are Neuroendocrine tumours (NET's)?

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What are Neuroendocrine tumours (NET's)?

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Neuroendocrine tumours (NETs) are rare tumours that develop in cells of the neuroendocrine system. Find out more about what they are, the different types and its treatment.

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Neuroendocrine Carcinomas (NECs) are different to neuroendocrine tumours (NETs). The cancer cells look very abnormal and grow rapidly. Treatment is different.

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For patients living in West Wales, and sit within the Hywel Dda Health board, there is a local CNS team, who will also assist and support you in your cancer journey.

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Common Access Point for Health and Social Care (CAP) - Swansea

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Common Access Point for Health and Social Care (CAP) - Swansea

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Please note that we are currently experiencing an unprecedented volume of calls, but we will try and respond to your enquiry as soon as possible.
Our approach follows the principles of the Social Services and Wellbeing (Wales) Act 2014, which focuses on working with people, in partnership, to meet your needs and prevent things from escalating.

We call it the Common Access Point because it is a place that anyone can contact to access information and advice on health and social care.

Our Common Access Point team has Access and Information Assistants, who will talk to you about your situation and provide you with information, advice and signposting. The Access and Information Assistants can also put you in touch with community based services, such as local groups or charities. Often this may be all the help you need.

If we can't help with information, advice or signposting then the Access and Information Assistants may discuss your circumstances with our Multi-Disciplinary Team. Our Multi-Disciplinary Team (MDT) is made up of qualified social workers, an occupational therapist, a physiotherapist and other professionals. The Multi-Disciplinary Team will discuss your situation to see if they can offer any specialist advice or if they can help.

You can contact the Common Access Point for Health and Social care by telephone, by email (details below) or by completing an online form (if you are a health and social care professional, please do not contact us by phone or email, but use the online form).

Our opening hours are:

8.30am - 5.00pm Monday to Thursday

8.30am - 4.30pm Friday

If there is an emergency outside of these office hours please contact: Social Services Emergency Duty Team.

Further information

You can also find information and advice on social care and wellbeing pages or on the Dewis Cymru website (opens new window) .

District Nursing Single Point of Contact

The District Nursing Single Point of Contact provides a single point of contact into adult district nursing services, improving discharges from hospital, triaging and prioritising patient care, signposting patients to more appropriate services and giving appropriate nursing advice at the first point of contact. The Single Point of Contact number for referrals is 01792 343360.

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Common Access Point for Health and Social Care (CAP) - Swansea

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We aim to provide adults and their carers with the right support at the right time by the right person.

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Peptide receptor radionuclide therapy (PRRT)

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Peptide receptor radionuclide therapy (PRRT)

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We're delighted to announce the launch of our new helpline service, which aims to provide nutritional information and support to people living with cancer.

> How and when to get in touch
> Free posters and business cards

Both living with cancer and going through treatment can make food seem less appealing. Many people even lose their appetite altogether and experience side effects that can have a significant impact on their quality of life and ability to enjoy their food.

Our expert dietitians are here to help tackle issues such as:

Taste changes and appetite loss

Nausea and constipation

Weight loss, and how to maintain a healthy weight during treatment

The current evidence regarding nutrition and cancer, including myth-busting stories from the press and social media

Interactions between food and medications

Maintaining a healthy diet and making food as appealing as possible

Accessing further evidence-based information

Opening times

Our helpline is available on:

Tuesdays: 12pm-2pm

Thursdays: 6pm-8pm

Call: 0300 102 2523 / Email: helpline@wcrf.org

FREE from all mobile phones and landlines

At World Cancer Research Fund, we believe everyone who has been diagnosed with cancer should be able to access up-to-date and reliable information about the role of nutrition from diagnosis through to treatment and beyond.

That's why we've launched our helpline, staffed by oncology specialist dietitians, to provide this vital service.

Spread the word about our new helpline!

Download and print our free posters and business cards to help us reach people living with cancer.

Show your support and donate

We're aiming to reach over 1,100 patients within 12 months of using the helpline, so please consider donating today and help people with cancer get the vital support they need.

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Cancer and Nutrition Helpline - World Cancer Research Fund

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We're collaborating to launch a much-needed dietary support telephone helpline for anyone who has received a cancer diagnosis.

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In some situations you might need feeding through a tube when you have cancer.

Several types of tubes are used for enteral feeding:

Nasogastric (NG) tubes

Nasojejunal (NJ) tube

Jejunostomy tubes ( JEJ, PEJ, or RIJ tubes)

Percutaneous endoscopic gastrostomy tubes (PEG tube)

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In some situations you might need feeding through a tube when you have cancer.

You might have a feed:

through a tube into your stomach or small bowel (enteral nutrition)

into your bloodstream through a drip into your vein (parenteral nutrition)

When you might have it

You are likely to have tube feeding if you:

can't absorb nutrients very well from your gut (digestive system )

are very run down and severely malnourished before surgery

are malnourished before starting chemotherapy or radiotherapy

have problems with swallowing due to a cancer in the head or neck area

have holes (fistulas) or an abscess in the food pipe (oesophagus) or stomach

can't eat or drink as much after an operation or other types of treatment

have a severely sore mouth or throat after a stem cell or bone marrow transplant

Before treatment

Before your operation

Before a major operation, tube feeding might help if you are severely malnourished.

Doctors usually suggest extra high calorie, high protein drinks. You have these from 8 to 10 days before your operation. But they may suggest feeds through a tube into your stomach.

It will help you to recover afterwards if you can build yourself up before your operation. You may not gain weight, but your overall health will improve. This helps you heal faster and cope with the demands of a big operation.

Before chemotherapy or radiotherapy

In some situations, a tube feed into the stomach or bowel before chemotherapy or radiotherapy treatment may help you. It could help you put on weight and may improve your general health.

A tube feed is most likely to help you if you have a head and neck cancer. You might already be malnourished and have problems swallowing before you start treatment. There is no evidence that it makes cancer treatment work any better.

During and after treatment

You might need drip or tube feeding during or after your treatment if you can't eat or drink enough. Some treatments can make it difficult to swallow or can make your mouth and throat very sore.

If you have surgery to your digestive system, it can take some time before you can eat or drink normally. You might have a drip or tube feed to stop you becoming malnourished.

Advanced cancer

Tube or drip feeding might help you feel better if you have advanced cancer and can't eat. There is no real evidence that it would reverse cachexia .

Enteral nutrition

Enteral nutrition means you have a liquid feed through a tube into your stomach or small bowel. You might need to take all your food and drink this way. Or you may take some food by eating normally, and then have the rest as a liquid through the tube.

The feeds are specially prepared and different mixtures (formulas) are available. Your dietitian chooses the most appropriate one for you. This depends on your particular nutritional needs.

Enteral feeding is only for people whose stomach and intestines work as usual. This is because the feeds still go through the digestive system.

You can't have enteral feeding if you have:

When you might need it

You might need enteral feeding when:

you have swallowing problems

you have a sore mouth

there is a risk that food and fluid can go down the wrong way

you are unable to eat or drink enough

you are malnourished, or at risk of being malnourished

Side effects

Enteral feeding can sometimes have side effects. These include:

acid from your stomach coming back up (reflux) into the food pipe

vomiting

bloating

diarrhoea

constipation

You might need to have your feeds at a slower rate if this happens. It is common to start slowly and then build up the amount gradually. Your dietitian might also suggest other changes such as the type of feeding you are having or the temperature of the feed.

You may need extra fluids through a drip to prevent dehydration if you have diarrhoea.

Different types of tubes

Several types of tubes are used for enteral feeding:

To put a PEJ tube in you have an endoscopy. The surgeon puts a tube with a camera on the end through your mouth. The tube goes down your food pipe and into your stomach. This way, they can see where to place the PEJ tube. The surgeon then puts the jejunostomy tube through an opening in the tummy (abdomen) and into your jejunum. You have sedation for this procedure.

You may have a RIJ tube put in with the help of an x-ray (radiologically inserted jejunostomy) if you can't have an endoscopy. You might have this procedure under local anaesthetic . Or you might have sedation.

This diagram shows the position of a percutaneous endoscopic gastrostomy (PEG) feeding tube

A detailed diagram of a percutaneous endoscopic gastrostomy (PEG) feeding tube

Parenteral nutrition

Parenteral nutrition (PN) is when you have a feed into your bloodstream through a drip into a vein. The feeds don't go through your digestive system.

When you might need it

You are only likely to need PN feeding when your gut is not working. For example, if you:

have severe sickness

have severe problems with your stomach or small bowel (intestine), or if they have been removed

have severe nutritional problems before surgery and can't have enteral feeding

have a hole (fistula) in your stomach or oesophagus

are losing a lot of weight or not coping well with enteral feeding

How you have it

You have PN through a central line or a PICC line. A PICC line goes up a blood vessel in your arm and into a chest vein. Other types of central lines go into the chest and a major blood vessel. The end of the line sits on the outside of your chest. It is fixed in placed.

When it is not in use, a cap seals the central line. When you have your feed, a nurse removes the cap and connects the line to the drip containing your PN.

When all the feed has gone through, the nurse flushes the line. This is with either sterile salt water or an anti clotting solution. The nurse then seals the line again.

You usually have the line put in under local or general anaesthetic. A specially trained nurse or doctor does this procedure. There can be complications. Sometimes lines get infected or blocked and have to be taken out and replaced.

About PN feeds

The feeds used for PN are very complex. They are carefully made up in a sterile room each day by a pharmacist.

Doctors and dietitians tell the pharmacist about your specific nutritional needs each day. They will check you regularly while you have PN. You will need frequent blood tests to check that your blood is normal. These include your levels of minerals, sugar, salts and other substances.

PN can have side effects. These include a high blood sugar level, or they may affect the way your liver works.

Your doctor gradually reduces your PN feeds when it is time for you to stop having them.

Tube feeding at home

You might need to go on using tube feeding after you leave the hospital. This may feel frightening at first, but most people get used to it. Try not to worry about it. You will have support.

Your nurses will show you and your carers how to run the feeds before you leave the hospital. Most people have daily visits from a district nurse at first. These go on for as long as you need them. And your nurses give you the telephone numbers of people to contact if you need help.

You will also have regular follow up appointments to check on how you are getting on.

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You may need drip or tube feeding if you need extra nourishment as a result of weight loss or your treatment.

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County: Carmarthenshire

About the project

Carmarthenshire Carers Information Service provides an information and flexible outreach service across Carmarthenshire for adult carers of adults. It's purpose is to enable carers to develop the skills and confidence to care and to help them have a life of their own.

The support offered includes:

Information and Advice

Help to access a Carers Assessment

Signposting to other sources of support

Information about respite opportunities

Advocacy support

Emotional support

Carers Groups

Telephone & 1:1 support

Access to training opportunities

Carers Recognition card

Carers Emergency card

Carers events

Money Advice service

Email: carersincarms@adferiad.org
Tel: 01267 230791

Eligibility / Referral Process

Anyone supporting someone with a physical or mental health problem - Self-referral/professional referrals from GP's, CMHT and other Third Sector services.

Need support. Get in touch here

Interested in becoming a member?

We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. By clicking "Accept All", you consent to the use of ALL the cookies. However, you may visit "Cookie Settings" to provide a controlled consent.

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Carmarthenshire Carers Information Service provides an information and an outreach service for adult carers of adults.

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About the project

Carers are invited to register with PCISS to benefit from any or all of the following:

Carers Outreach Service:

Offering a wide range of information to carers on an individual basis, advising them on their rights and signposting them to other sources of support. A face-to-face appointment can be arranged in the community or at home. Support is also available for family and friends.

Carers Recognition Card:

A card identifying the carrier as an unpaid carer and giving them access to discounts, such as the Passport to Leisure Scheme which enables carers to use their local leisure centre at a reduced rate.

Carers Emergency Back-up Scheme:

Carers carry a small card with a 24hr contact number to identify that they are a carer and ensure that the person they care for is not left unattended in the event of an emergency.

Carers Drop-In Centre:

You are welcome to call into our office's for information.

Carers Gazette:

A quarterly newsletter containing information and articles of interest to unpaid carers.

Carers Events:

Providing a number of free events for carers throughout the year, including Carers Week in June and Carers Rights Day in November.

Carers Discharge Service:

Support for unpaid carers of inpatients in Pembrokeshire Hospitals. Support with conversations and input into patient's care and discharge planning. Providing information, signposting, and carer assessments.

Community Discharge Support:

Providing unpaid carers with community-based information, advice, signposting and referrals. Ensuring unpaid carers access support within the community to help maintain their own health and wellbeing as a carer.

Eligibility / Referral Process

All unpaid carers living in Pembrokeshire.

Open referral process, self-referrals welcome.

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Pembrokeshire Carers Information and Support Service (PCISS) - Adferiad

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Pembrokeshire Carers Information and Support Service supports unpaid carers in Pembrokeshire to access care-related information and advice.

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Cancer is a difficult topic to talk about. You might have doubts or concerns about talking to your kids about a cancer diagnosis. It is not easy to decide what or when to tell them.

The information on this page aims to help you talk to children about cancer. We use the term 'your child' and 'your cancer' on this page. But of course, the information is not only for parents. It is for anyone who is talking about cancer with a child.

Be as prepared as you can be - there are resources to support and help you

Take your time - you don't have to tell them everything at once

You can say "I don't know" to questions for which you don't know the answer

Reassure children that they will still be loved and cared for, whatever happens

Why does talking about cancer help children?

All adults want to protect children from the pain of knowing that someone they care about is ill. You might be struggling to cope with the diagnosis or prognosis. So you may not feel ready to have difficult conversations.

You might also be worried about how your child will react, and about how to answer their questions.

Being open and honest is almost always the best way with children. Remember that uncertainty or not knowing may be harder for them to cope with than the truth.

There are many benefits to being open with children:

Children pick up on things not being right, even if they haven't been told. They notice changes in atmosphere and routine. Not talking about what is happening can leave them worrying on their own.

Children have big imaginations and will fill in the gaps. Their fears about what is going on can be worse than the real situation. The uncertainty or not knowing might be harder to cope with than the truth.

Children might find out another way if friends and family know about the cancer. Keeping a big secret is stressful. It might be that they may feel that they can not trust you, or feel they are not included in the family.

What do children understand about cancer?

As children get older, they can usually understand more about illness and treatment. But it depends on the child. Age is only a general guide to what children understand.

Your child's understanding depends on how they think and learn. It also depends on their previous experience of illnesses such as cancer.

Very young children don't really understand about illness or cancer. But they can pick up on your feelings and will notice physical changes.

Preschool and young primary age children have a basic understanding of illness. They often worry that something they have done has caused the cancer. Or that the cancer is catching (contagious).

Older children have a better understanding of how the body works. They are beginning to understand that people can have serious illnesses.

Teenagers might understand in more detail about cells and body organs. But older children and teenagers can still have mistaken beliefs.

Talking to your children means you can find out if they have misunderstood anything. You can then offer them the correct information, reassurance and support.

How will my child react when I tell them?

You might feel worried about how your child will react to difficult news. Their reaction might depend on many factors including:

their age

their ability to understand, express and control their emotions (emotional maturity)

how they usually cope with difficult situations

their understanding and experience of illness and cancer

their relationship with you

Many children need reassuring regularly that your illness is not their fault. Whether they show it or not, children often feel in some way to blame. And they may feel guilty for a long time.

Young children may not be able to use words to say how they are feeling. They often express their feelings through play or their mood instead. So you might see a change in your child's behaviour. Naughty or unusual behaviour might be their way of showing how upset they are.

Your child might:

seem unsettled and more clingy than usual - for example, at bedtime and school or nursery drop offs

regress back to old behaviours such as thumb sucking, tantrums or bed wetting

appear more withdrawn than usual

develop new worries and fears such as being scared of the dark or dogs

be extra well behaved to mask how they are feeling

develop some physical symptoms such as headaches or stomach pains

have trouble sleeping or have nightmares

be curious and ask questions about your cancer in a way that might feel insensitive

show no reaction at all

Being a teenager can be a time of emotional ups and downs. Teenagers can feel confused and unsure about themselves. This can make the way they deal with a parent's illness very different from that of a younger child.

Although they might be more able to talk about their feelings than younger kids, they might be less forthcoming. Their reactions can be more intense than an adult's. It is very important that they have the time to grieve about the illness and be included in what is happening.

Teenagers can find it hard to cope with cancer in the family. Just when they want to get away and become independent, they feel that they ought to be at home. This can make them feel guilty too.

They might want lots of detail about your illness and ask many questions. But some young people may feel afraid to ask too much.

It can be difficult for teenagers to ask for support. They often prefer being with their friends than their family. So they might become distant from their family and talk to their friends instead. Or they may keep it all to themselves.

You might also see a change in your teenager's behaviour or mood. Your teenager might:

become angry, moody and depressed

pretend that they are coping very well - but actually they might feeling scared and lonely

regress and behave as if they were younger

seem more anxious and withdrawn

develop some physical symptoms such as headaches or stomach pains

seem like they do not care and act as if nothing is happening

When do I tell them?

Some people tell their children as soon as they are diagnosed. You might feel it is better to wait until you have all the test results back and know a bit more about the treatment plan.

There isn't always a right time. But keeping it secret can be stressful. It is likely that your children are aware something is wrong. So, it might be best not to delay telling them for too long.

It is hard to talk to children about things that are painful for you to discuss. You might need some time to cope with your own feelings and process what you have been told.

When you are ready to talk, remember, you don't have to tell them everything straight away. This conversation is just the starting point. You can tell them that you don't know everything yet. But you can reassure them that you will tell them more when you have that information.

Telling your children

Before you tell them

Be as prepared as you can be. You could:

talk to your doctor, nurse or counsellor before you speak to your children - they can help you prepare what to say and how to answer any questions your child might have

rehearse what you are going to say or write it down

say the words 'I have cancer' aloud to yourself so it is less of a shock when you say it to your children

have some resources or props with you - they may help you talk, or may simply make the first conversations less intense

Don't worry if it doesn't go as you planned. You don't know in advance how you or your child will react. This is just the first conversation in a process, and you will have opportunities to talk about it again.

You might feel worried that your child will ask "Are you going to die?". Thinking about your answer to this question in advance can help with your anxiety.

It is important not to dismiss this question as most children will be thinking it, even if they don't say it. But how you answer it will depend a bit on your situation. It is important that you avoid lying to your children.

If you, or someone close to your child is dying, they will probably need a lot of support. You can read more about supporting children in our section about dying with cancer.

Marie Curie provide information about talking to children when someone is going to die.

Choosing the right time and place

Tips:

Try to find a quiet time to talk to your child - it is best to avoid talking before going to school or before bedtime.

The weekends are good as there is time for them to process the news and come back to you with questions

Try to be on the same eye level as them, for example on the floor or sat beside them on the sofa. You can hold their hand or be physically close.

Some people find it helps to have the conversation whilst they are doing something else.

Make sure you tell them in a safe place for them, where they can be upset or angry if they need to be.

Who should be there?

If your kids are a similar age it can be a good idea to tell them together. If you do tell them separately, try to tell them as close together as possible.

If both parents live together, it might be best to both be there. This means both of you know what was discussed, and how much your child has understood.

You could ask someone to be with you who can support both you and the children. This should be someone your child trusts, for example a friend or relative. Or you could ask a nurse or counsellor to be there to help answer their questions.

If someone else tells the children, it might be good idea to be there so you know what was said. But if you prefer not to be there, you should do what is right for you.

What do I tell them?

It might help to ask your doctor, nurse or counsellor for advice about what to say.

Tips:

You don't have to tell them everything. Give them small pieces of news, gradually building up a picture of your illness.

You can find out what they know or ask them what they want to know. Try and explain any misunderstandings.

You can ask them if they have any questions - don't assume that they have the same concerns as you. Try and answer these but you can be honest and tell them you don't know some answers.

Try and keep the conversation about what is currently happening. You don't have to predict the future or what might happen.

You can explain to your children how this might affect their daily life and routines. For example, if you are in hospital, who will take them to school or be there when they come home.

It is important to use words that your child will understand. So what you say will depend on how old your child is. Young children only need a simple explanation. You might need to repeat this. For example:
"Mummy is sick and needs to have some medicine".
You might tell older children a bit more. You can be led by your child, and the amount they want to know. You can tell them the name of the cancer and where it is in your body. You can explain a little bit about what the treatment plan is, and how this will affect you. Remember that many children do not have any fear around the word 'cancer' and they are generally curious to learn about it.

But keep it simple and use clear language. There are some useful books and websites listed on the resources page. These might help you choose words to explain different terms about cancer.

Supporting your child

It doesn't matter if you cry or show them you are upset. In fact it can help them to see that its normal to cry and be honest about feelings.

Show your children that you love them by telling them and hugging them. And remind them that they will always be looked after.

Ask them what they are worried about.

You can reassure them that you will update them when you know anything else.

Practical ways to support your child

Try and stick to normal routines

Make sure they know and understand why any changes need to happen and how these changes will affect them. Keep boundaries in place for teenagers.

Include your children in family decisions

This will help them feel more in control.

Encourage some fun activities or special time

It can be good to write these down and stick them up. This can help if you are feeling weak and tired. Your child can look ahead to a fun time in the future when you are stronger.

Have a calendar or daily timetable

For example, the kids can see when you have hospital trips. This helps them understand the changes, give them a sense of control, and helps them manage their own expectations. Remember to add non-cancer related things.

This is somewhere your children can write down and then place their worries. You can ask your children if you are allowed to look at their worries.

This may help you find out if they have any worries or misunderstandings. Young children use a lot of role play to work out the world around them.

Dealing with separation anxiety

This can be very hard for some children. One suggestion is to have a special soft toy that you wrap in your tshirt for them to cuddle. Or have two soft toys, and you keep one and they keep the other. It forms a connection that can soothe them.

Have different ways of communicating

This is within your family and wider circle. For example you could have a chalk board, family discussions or a closed Facebook group.

Keep your child's school or childcare provider up to date

This will help them know what is happening. Talk to your child first, and ask them which member of staff they would like to know about what's going on at home. Remember some teenagers do not want anyone to know, as school can be seen as a safe place away from cancer. If this is the case, try and help them see that if, for example, homework is late, the school would understand if they know what is happening at home.

Direct your teenagers to reliable websites

This is for them to find cancer information (for example, Cancer Research UK or Macmillan). Remind them not everything they hear or read on unreliable websites is true.

More information

Maudsley Learning, part of the South London and Maudsley NHS Foundation Trust, has a set of cancer and mental wellbeing videos for people affected by cancer.

The videos have information and advice on what to do if a cancer diagnosis affects your mental health. They cover several topics, including breaking bad news, managing anxiety, common reactions to a diagnosis, and relationships.

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Cancer is a difficult topic to talk about. You might have doubts or concerns which stop you talking to your kids about a cancer diagnosis. It is not easy to decide what or when to tell them.

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Support for children during a parent's cancer diagnosis, treatment and beyond

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Support for children during a parent's cancer diagnosis, treatment and beyond

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Supporting Children and Young People through a Parent's Cancer

Diagnosis

Treatment

Recurrence

Loss

Beyond

Help make a difference. Become a Fundraiser.

Set yourself a challenge! Bake a difference, get your schools, college, work place, gym class involved and do a group fundraiser. Be as creative as you like. Use what you like to do and turn it into a fundraiser and get your networks involved. Organise a tea party, hold a ball, and take part in dress down Friday, so we can continue to support children during a parent's cancer treatment.

Find Out More

"The Trust supported my children's friend during their Mum's cancer. On our recent holiday, we got sponsored to build as many sandcastles as we could in an hour. Over £100 was raised to support other children"

2,300+

Over 2,300 children supported across the UK and Northern Ireland

101

Children from 101 different counties across the UK and NI have been supported by the Trust

4x

Children needing our support has quadrupled since we helped our first family back in January 2015

Support for
my children

Recently diagnosed and/or going through cancer treatment? Get support for your children here
Find Out More

The
Stuffing Station

Our stuff your own teddy shop, where all profit from teddy purchases goes back in the Trust.
Find Out More

Healthcare
Professionals

Information to refer a patient with children
Find Out More

Online Shop
Trust Branded Items for Sale

Show your love for Ozzy and all things Trust by purchasing our products & help raise vital funds to support children during a parent's cancer & beyond.

Featured Campaign
Osborne Trust
Ozzy's 8th Birthday

Our 8th year of supporting children will see us at the Trust adapt our current support programmes & enhance what we currently provide to now support children and young people during a parent's cancer diagnosis, treatment, recurrence, bereavement and beyond.

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Support for my children - The Osborne Trust

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Supporting Children and Young People through a Parent's Cancer Diagnosis Treatment Recurrence Loss Beyond Set yourself a challenge! Bake a difference, get your schools, college, work place, gym class involved and do a group fundraiser. Be as creative as you like. Use what you like to do and turn it into a fundraiser and get your networks involved.

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Sign up for a weekly phone call or visit from one of our trained Macmillan Buddies. Our volunteers are here to talk so you don’t have to face cancer alone.

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Companions provide the free emotional and practical support you want - at home, in hospital or over the phone.

Marie Curie Hospices help anyone with an illness they're likely to die from, and those close to them, receive the care and support they need.

Hospice care

Marie Curie Nurses, healthcare assistants and palliative specialists provide nursing care and emotional support in the comfort of your own home.

Hospice care at home

We're here to help with practical information and support on all aspects of life with terminal illness, dying and bereavement.

Information and support

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Free emotional and practical companionship for people at or approaching the end of life, and those close to them.

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If you have been diagnosed with cancer, you may be able to get free or discounted travel fares. You may also be able to get a Blue Badge to help with parking costs.

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If you have been diagnosed with cancer, you may be able to get free or discounted travel fares. You may also be able to get a Blue Badge to help with parking costs.

Travelling for medical appointments can be expensive if you are having regular treatment and tests. You may be able to get help with your travel costs. Or you may be able to claim back some of the money you spend when travelling for medical reasons.

Claiming a refund

If you must travel to and from hospital for treatment, you may be able to claim a refund under the Healthcare Travel Costs Scheme (HTCS). This can cover:

your bus or train fares

some petrol costs

taxi fares - in some situations.

If you need someone to travel with you to hospital for medical reasons, you may also be able to get a refund on their travel costs.

Who can claim?

You can claim a refund if you get one of the following benefits:

You can also claim a refund if:

you get, or are named on, a valid NHS tax credit exemption certificate

you have a low income - this means you can get help with travel costs as part of the NHS Low Income Scheme.

How can I claim?

You can usually get your refund at the hospital from the cashier's office. In some cases, you may be able to get an advance payment to help you attend your appointment. You should check before you travel.

You will need to bring the following things to the hospital:

Proof you are getting one of the qualifying benefits. For example, you could bring your benefit award letter, tax credit exemption card or certificate awarded under the NHS Low Income Scheme.

Proof of your travel costs, such as tickets or receipts.

Proof of your appointment, such as your appointment letter or card.

Some voluntary organisations have drivers who can take people to hospital and other places - for example, to the shops. Check at your local library or search online for details of voluntary organisations in your area.

Hospital parking

Hospital car-parking policies are different across the UK:

If you need help when travelling, there are services and schemes available. Some services are national and will be available to you, while others will be different based on where you live.

Services available across the UK

Regional transport services

Patient Transport Services are not available across the UK, but some hospitals offer them. They provide free transport to and from hospital for people with certain needs. This includes:

people who need special medical support during their journey

people who have difficulty walking

parents or guardians of children who are being transported.

A medical professional will need to refer you to any Patient Transport Service at your hospital.

Under this scheme, people from the Highlands and Islands in Scotland can claim a refund on their travel costs to hospital. But you must live or work in the former Highlands and Islands Development Board area. If you need to travel at least 30 miles from your home or more than 5 miles by water to hospital, you can get help with the travel costs.

You must pay £10 of any fare you are claiming unless you are getting certain income-related benefits. If you need someone to travel with you, you can also get help with their travel costs. A healthcare professional must confirm this is medically necessary for you. You should ask your GP or the cash office at the hospital for a claim form.

There are schemes offering discounts on taxi fares in some areas outside London. You can ask your local council or GP what help is available in your area.

If you have problems with moving around, you may be able to get a Blue Badge. This allows you to park in parking spaces closer to where you need to go. You can usually park for free:

on streets with parking meters or pay-and-display machines for as long as you need

in disabled parking bays on streets for as long as you need, unless a sign says there is a time limit

on single or double yellow lines for up to 3 hours, unless there is a no loading sign.

You may have to pay if you are using some private car parks, such as in hospitals or supermarkets. You need to check the signs in the car park.

You must continue to follow the usual parking rules. For example, you can still get a fine if you park somewhere that could put people in danger.

You automatically qualify for a Blue Badge if you have specific medical conditions or get certain benefits. These include the following:

Getting the higher mobility component of Disability Living Allowance (DLA).

Scoring 8 points or more in the 'moving around' area of your Personal Independence Payment (PIP) assessment.

Scoring 10 points in the 'planning and following a journey' area of your Personal Independence Payment assessment, due to psychological distress. This only applies if you live in England

Scoring 12 points in the 'planning and following a journey' area of your Personal Independence Payment assessment, due to psychological distress. This applies if you live in Scotland or Wales.

For the full list of criteria to automatically qualify for a blue badge, visit GOV.UK or speak to your local council.

If you do not automatically qualify, you can still get a Blue Badge in some situations. These include if you have long-term problems with walking or severe problems using both arms.

How to apply for a badge

Your healthcare professional or a welfare rights adviser may be able to help you fill out the application forms. A Blue Badge costs up to £10 in England, £20 in Scotland and £10 in Northern Ireland. It is free in Wales.

Blue Badges usually last up to 3 years. You must reapply before your current Blue Badge expires.

Special badge schemes

There are special badge schemes for people with restricted mobility who live, study or work in areas where the Blue Badge Scheme does not apply. For example, in London there is a:

green badge for Camden

red badge for the City of London

purple badge for Kensington and Chelsea

white badge for Westminster.

Visit Disabled Motoring UK's website for more information.

Tunnels bridges and toll roads

Blue Badge holders and other disabled people pay a reduced rate, or no fee, at some river crossings, bridges and tunnels. In most cases, you must apply in advance to get a discount. Toll discounts can change, so check before you travel.

Contact your local council for advice. If you live in Northern Ireland, call the Blue Badge Unit on 0300 200 7818.

London Congestion Charge and Ultra Low Emission Zone Charge

There is a charge of £15 a day to drive within central London at certain times. If you have a Blue Badge, you do not have to pay the charge. But you must make a one-off payment of £10 to register for this discount.

If you need to pay the Congestion Charge to get to a medical appointment, you may be able to claim this money back from the hospital. A healthcare professional, such as your cancer doctor or nurse, would need to confirm you are too ill to travel on public transport. Remember to keep your receipt for the Congestion Charge so you can claim your refund.

For more information, visit tfl.gov.uk or call 0343 222 1234. You can also use textphone 020 7649 9123.

To help improve air quality, an Ultra Low Emission Zone (ULEZ) runs all the time in central London. If your vehicle does not meet certain emissions standards, you must pay a daily charge to drive within this zone. This is £12.50 a day for most types of vehicles. It is payable on top of the Congestion Charge.

If you have a Blue Badge, you still need to pay the ULEZ Charge. There is an exception if your vehicle is registered with a disabled or disabled passenger vehicle tax class. This exception applies until 26 October 2025.

You may qualify for free road tax or a scheme that helps you buy or rent a car, scooter or powered wheelchair.

Road vehicle tax exemption

You may be able to get free road tax if you are disabled. You may qualify if you get any of the following:

If you get the mobility component of PIP at the standard rate, you may qualify for a 50% discount on your road tax.

For more information, call the DVLA vehicle tax service on 0300 123 4321, or visit GOV.UK. You can also speak to your local Post Office.

Motability Scheme

Under this scheme, you can get help to hire a new car, scooter or powered wheelchair instead of getting the cash benefit of:

Contact the Motability Scheme to apply.

Seat belts

If you cannot wear a seat belt for medical reasons, you can get a medical exemption certificate from your doctor. There are also aids and adaptations that make it easier for people with disabilities to wear a seat belt. For more information, speak to your doctor or contact Living Made Easy.

There are special rates for bus, coach and train travel for eligible older people and people with disabilities.

A bus pass gives you a reduced price, or often free travel, on local buses. You can apply for a bus pass if you:

have reached State Pension age in England

are aged over 60 in Scotland, Wales and Northern Ireland

are disabled and meet the eligibility requirements.

If you live in London, you can travel free on buses, tubes and other transport if you are aged 60 or over. This only applies to travel within London.

There may also be local support towards taxi costs.

How to apply for travel discounts

Contact your local council. You can also ask at your local bus or coach station.

The Disabled Person's Railcard gives people with mobility needs one-third off their rail fares. If you are travelling with another adult, they will also get the same discount.

A Senior Railcard allows people aged 60 or over to save one-third on rail fares. You can buy a Senior Railcard online at senior-railcard.co.uk, at a station ticket office, or by calling 0345 3000 250.

Call Translink on 028 9066 6630, or use textphone 18001 028 9066 6630.

People with mobility needs can get 50% off their bus and rail travel. To get this discount, you must apply for a travel card called a Half Fare SmartPass. A 60 Plus SmartPass allows people aged between 60 and 64 to travel free throughout Northern Ireland. A Senior SmartPass allows people aged 65 or over to travel free throughout the island of Ireland. Visit translink.co.uk.

To get an application form for a SmartPass, visit your local Translink bus or rail station, call 028 9066 6630, textphone 18001 028 9066 6630 or email smartpass@translink.co.uk.

For more information about reduced rail fares, you can check at your local train station or visit the National Rail. This website covers rail travel all over the UK.

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Transport and parking - Macmillan Cancer Support

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If you have been diagnosed with cancer, you may be able to get free or discounted travel fares. You may also be able to get a Blue Badge to help with parking costs.

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Upper GI Cancer Support (padlet.com)

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Neuroendocrine Cancer UK You Tube Channel

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Neuroendocrine Cancer UK You Tube Channel

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Welcome to Neuroendocrine Cancer UK's YouTube Channel. Neuroendocrine Cancer UK exists to address the unmet needs voiced by the Neuroendocrine Cancer community, to support patients and their loved ones with the physical and psychological burden of Neuroendocrine cancers.

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