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Somerset Parent Carer Forum CIC Ltd (not for profit) company no. 10227489

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Partnerships for Inclusion of Neurodiversity in Schools

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Over 60 primary schools in Somerset are involved in a project called PINS, which helps schools better support children with autism, ADHD, and other neurodiverse needs.

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Growing up autistic can often feel as though you have to become a chameleon in social situations, camouflaging yourself to fit in with a seemingly neurotypical world. Combining lived experience with scientific research and practical advice, this book is the essential guide to understanding why you mask and how to feel confident without one.

Focusing on diagnostic devices like the Camouflaging Autistic Traits Questionnaire (CAT-Q) to discover the situations in which you mask the most and why, alongside a range of techniques, from CBT, compassion based therapy, DBT, and mindfulness to relieve anxiety and reduce stress, this guide gives you all the tools and confidence you need to re-connect with yourself, the things you love and finally, take off your mask.

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Taking Off the Mask: Practical Exercises to Help Understand and Minimise the Effects of Autistic Camouflaging

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Buy Taking Off the Mask: Practical Exercises to Help Understand and Minimise the Effects of Autistic Camouflaging by Belcher, Hannah Louise (ISBN: 9781787755895) from Amazon's Book Store. Everyday low prices and free delivery on eligible orders.

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Highly structured and visual, the workbook is broken down into key sections such as 'Interests and focus', 'Masking', 'Emotions and energy levels' and 'My autistic identity statement' to create a personal passport and to develop a deeper understanding of what autism means to the young person as an individual. Content has been shaped by autistic advisors and contributors, with first-hand experiences of young people woven throughout. The workbook aims to encourage and build:

An understanding of what autism is

An understanding of what autism means to them (their autistic identity)

A positive sense of self

An acknowledgement of things that may be trickier

A pride in being autistic.

Having a positive understanding of your autistic identity is an indicator of higher self-esteem and wellbeing as an adult. This workbook supports the development of this and will be valuable for autistic children and young people aged 10+ and the adults working with them. It is designed to be used alongside the accompanying guide for most effective use, which provides further support for the lead adult and a platform for initiating important conversations.

For effective use, this workbook should be purchased alongside the guide. Both books can purchased together as a set, Autism, Identity and Me: A Practical Workbook and Professional Guide to Empower Autistic Children and Young People Aged 10+ , 9781032261027.

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Autism, Identity and Me: A Practical Workbook to Empower Autistic Children and Young People Aged 10+

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Buy Autism, Identity and Me: A Practical Workbook to Empower Autistic Children and Young People Aged 10+ 1 by Duffus, Rebecca (ISBN: 9781032396545) from Amazon's Book Store. Everyday low prices and free delivery on eligible orders.

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The Secrets of My Spectrum (Autism books by Callum Knight)

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Buy The Secrets of My Spectrum (Autism books by Callum Knight) by Knight, Callum (ISBN: 9781917514118) from Amazon’s Book Store. Everyday low prices and free delivery on eligible orders.

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BLUE PETER BOOK AWARDS BEST BOOK WITH FACTS 2022 - LONGLISTED

'I REALLY love it. Buy it for your kids, your parents, your grandparents. Mostly buy it for yourself'
THE OBSERVER CHILDREN'S BOOK OF THE MONTH - JULY 2021

*The beautiful true story of one girl's journey growing up autistic - and the challenges she faced in the 'normal' world*

Hi! My name is Abigail, and I'm autistic. But I didn't know I was autistic until I was an adult-sort-of-person*.

This is my true story of growing up in the confusing 'normal' world, all the while missing some Very Important Information about myself.

There'll be scary moments involving toilets and crowded trains, heart-warming tales of cats and pianos, and funny memories including my dad and a mysterious tub of ice cream. Along the way you'll also find some Very Crucial Information about autism.

If you've ever felt different, out of place, like you don't fit in . . . this book is for you.

*I've never really felt like an actual-adult-person, as you'll soon discover in this book...

THE BOOKSELLER BOOK OF THE MONTH - JULY 2021 Holly Smale, author of the Geek Girl series 'This book is what I needed as a kid! Empathetic, joyful and beautifully authentic. I loved it!' I'm not like the other children in my class . . . and that's an actual scientific FACT. 'Funny, fascinating . . . a rewarding and highly entertaining read' Guardian Told through the author's remarkable words, and just as remarkable illustrations, this is the book for those who've never felt quite right in the 'normal' world.

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Buy A Different Sort of Normal by Balfe, Abigail, Balfe, Abigail (ISBN: 9780241508794) from Amazon's Book Store. Everyday low prices and free delivery on eligible orders.

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This inspirational book written by neurodiverse author Louise Gooding challenges misconceptions and shows how neurodivergent brains work a little differently. Our brains are unique in the way they function, work, and think. Neurodiversity is still a relatively 'new' concept that can be tricky to understand, but this book is here to help!

- A positive, friendly look at neurodiverse brains that debunks myths and stereotypes.
- Informative, inclusive text is accompanied by colourful, modern illustrations.
- Accurate, understandable explanations of diagnoses that impact the brain, including each area of neurodiversity and what it can or does mean for anyone with that particular neurological difference.

Whether your child is neurodiverse or not, this book will inspire inquisitive young readers and show them that no two brains function in the same way and that everyone's differences should be celebrated. There really is no other book like it.

The font and colours used have been selected to accommodate a range of neurodiverse readers. Combining neurodiverse experiences with science, history, and brain-bursting facts, Wonderfully Wired Brains has something for everyone!

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Wonderfully Wired Brains: An Introduction to the World of Neurodiversity

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Buy Wonderfully Wired Brains: An Introduction to the World of Neurodiversity by Gooding, Louise, Burrows, Ruth (ISBN: 9780241568163) from Amazon's Book Store. Everyday low prices and free delivery on eligible orders.

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Corinna Laurie, Clinical Lead Occupational Therapist at the National Autistic Society and Director of Evolve Children's Therapy Services Ltd, gives some simple strategies to target sensory processing differences.
1. For the child who is overwhelmed by excessive noise, try offering them ear defenders, calming ear buds or allow then to use an MP3 player whilst concentrating.

2. For the child who becomes agitated by touch, allow them to stand at the front or back of the queue to avoid being bumped. Allow them to transition to the next lesson three minutes before others, to avoid corridor collisions.

3. For the child who finds it difficult to sit still, include regular movement breaks, try alternative seating, for example wobble cushions/stools to allow fidgety movement. Always have a variety of fiddle toys available to aid focus.

4. For the child who seeks hugs, try Lycra undergarments, rash vests and rugby base layers that are cheaply available from many sports outlets. Weighted lap pads and blow up canoe chairs are also useful.

5. For the child who finds black print on a white background difficult to read, change the paper to a buff colour and consider the font. This is less stressful on the eyes. Consider your presentation layout for PowerPoints too.

6. If a child is overwhelmed by smell, use a sweatband with a drop of oil, shampoo, or perfume/aftershave that they like. Allow the student to take this with them to mask the smell they find uncomfortable.

7. Food play should be encouraged for those children with a limited diet. There should be no pressure on the child and this should not be done at mealtimes. The aim is purely to reduce the fear of food.

8. The use of a quiet, calming room/space within the classrooms and at home are essential for calming. Use a pop-up tent, blanket over a table or under a cabin bed. Add bean-bags and other sensory equipment/toys.

9. For children who want to chew, offer alternatives like commercially available chew toys, crunchy bread sticks or carrot sticks. Drinks in a sport bottle also help those seeking oral input.

10. For children who dislike having their teeth brushed, try a vibrating toothbrush, Collis Curve toothbrush (this cleans all surfaces in one movement) and use unflavoured toothpaste such as Oranurse.

Further information
Laurie, C. (2022) Why is occupational therapy important for autistic children? Laurie, C. (2022) Sensory and Motor Strategies (3rd edition)

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Ten simple sensory strategies for autistic children

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Corinna Laurie sets out some strategies to support sensory processing

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Neurodivergence and Trauma: Supporting Executive Functioning in Children and Young People - Tree House Care

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Executive functions are the mental skills that help us plan, organise, focus, regulate emotions, and complete everyday tasks. For children who have experienced developmental trauma or who are neurodivergent, these skills can be harder to access, especially during moments of stress or change.

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To support the emotional wellbeing of their autistic learners, educational practitioners need to be aware of: Factors which can have an impact: both po ...

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In April 2023, my son had one of the worst meltdowns I could remember. He was screaming, running, crying, throwing himself on the ground, and was generally inconsolable. He struggled with emotional regulation at that moment.

See, his routine had been thrown off. But how do you help an autistic child regulate emotions in such a situation?

In my case, it was a simple solution. My son loves socks, and I had forgotten to put them on him after giving him his shower. When I brought up laundry to fold, he grabbed one of his socks from the basket, and I immediately knew what he wanted and how I could help him. After getting his socks on, he sat on the couch for about 30 minutes watching television until he was ready to put himself to bed.

In this case, socks were his emotional regulation. But finding the right way to regulate emotions can be challenging. Let's take a closer look.

What Is Emotional Regulation?

Cornell University defines emotional regulation as "a person's ability to effectively manage and respond to an emotional experience."

But it is so much more than just management and response. It can be as simple as putting on socks to something far more serious, requiring counseling and therapy. It can require coping strategies, or it can simply be exercising. There's no surefire way to regulate anyone's emotions when overwhelmed, but that can be especially true when parenting a child with autism.

Sensory overload can lead to emotional struggles for children on the autism spectrum. Loud noises make my younger son tizzy because they can be too much for him. Anxiety in social situations is an emotional trigger for my older son.

Autism Parenting Magazine has previously addressed emotional regulation skills in school settings. But how do you teach emotional regulation skills?

Importance Of Emotional Regulation Skills

Why is it essential for autistic children to have emotional regulation skills? The simple answer is it will make life easier for them. Developing emotional regulation skills can lead to fewer outbursts and less anxiety.

Situations often leading to anger, frustration, or meltdowns can be soothed with emotion regulation. But before children learn emotion regulation, they must understand what is causing both positive and negative emotions. Then, they can learn emotion regulation skills to help turn negative emotions into positive ones.

Ways To Assist Your Child With Emotional Regulation

Here are practical ways parents can help their child who is on the autism spectrum with emotional regulation.

1. Practice Deep Breathing Exercises

Breathing in through the nose and out through the mouth is a deep breathing exercise taught to help many people when they are upset, whether they be neurotypical or neurodiverse. I have used this method with my older son to help him regulate his emotions when he is overwhelmed.

2. Establish Zones of Regulation

Autism Parenting Magazine has covered these zones in the past. It's a system designed to help children with autism recognize when they need more regulation. It can be a color-coded system, an emotional levels chart, or a numerical system of zones to help the child identify where they are at. We used this with my son, who admitted during his 5th grade school year that on a scale of 1-5, he would wake up at four on school days because moving to Intermediate School was overwhelming for him.

3. Discuss Appropriate Reactions

Once your child understands which emotions fall into which zones, discuss with your child. You can talk about how your child wants to react and whether that is appropriate. Then, discuss the best ways to respond.

4. Model Appropriate Behavior

It's important not to overreact. If you want your child the regulate their emotions, you can't be overreacting emotionally. If you model these behaviors, you can help them cope and demonstrate how you handle these emotions, so they can see what to do.

5. Communicate Expectations Calmly

Much like modeling behaviors, children will emulate your communication examples. Explain what you expect from them calmly. They will be more likely to recognize the situation and implement emotional regulation.

6. Acknowledge Your Child's Feelings

If your child is frustrated, emotional regulation may only be possible once their feelings are acknowledged. They may want someone to know why they are frustrated, angry, or upset. Acknowledging your child's feelings will help them recognize the negative emotions and move forward.

7. Practice Calming Activities

Other self-regulation skills besides deep breathing exercises can help correct emotional dysregulation. My son required using a fidget spinner to help give him something to keep his mind and hands busy. He would also participate in something we called "the five senses," where he would use numbers and senses to calm down. This included "five things you can see, four things you can here" until he got down to one.

8. Prepare A Special Calming Place

This is easier said than done. At home, you can prepare a place that comforts your child and allows them to calm down. But this will only sometimes be the case if you are out in public. Still, have a comfortable place for your child to practice emotion regulation skills.

9. Use Counting Strategies

Sometimes, something as simple as counting can help regulate emotions. Your child may need to count cracks on a sidewalk or tiles in a ceiling or floor. For some kids, counting gets their minds off what's bothering them and leads to emotional regulation.

10. Take A Break

Sometimes people need to step away from a situation to calm down. This is especially true for children on the autism spectrum. They may need to walk away from a situation, either to their special calming place or somewhere else, just to be able to implement other self-regulation skills.

11. Exercise

From personal experience, exercise helps my son work through his emotional dysregulation. If your child likes to run or jump, encourage them to do that when they need emotional regulation. Exercise can go a long way in helping get emotions under control. It can also boost physical health.

12. Use Calm Down Kits

Find out what your child likes and what improves their mood, and create a kit with those items. Sometimes called a "calm down kit," this can engage their senses and encourage positive emotional reactions.

13. Solve Problems With Your Child

If emotional dysregulation is causing personal problems for them, parents should work with them to recognize and adjust their behaviors. My son sometimes struggled to make friends because his competitiveness made it challenging to accept a loss. We worked with him to understand that he won't always win and can't get angry if he loses fair and square.

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14. Find a Way To Boost a Child's Mood

Ask your children what they like and dislike. Learn what makes them happy and what makes them sad or angry. Emotional control and regulation are only possible if your child recognizes positive and negative feelings. Whatever can boost your child's mood, whether activities, music, or a television show, can go a long way toward emotional self-regulation.

15. Set Small Tasks

Some kids on the spectrum can become overwhelmed if something is too big, and emotion regulation can become difficult. My older son has this problem when asked to clean his room. If many tasks are required to complete the overall task, his emotional reactions become as big as the task at hand. But, if we set smaller tasks that are easier for him to understand, his emotional regulation skills kick in, and he can get his room clean.

16. Teach Self Reflection

This goes back to discussing appropriate reactions and modeling appropriate behaviors. The Child Mind Institute suggests that providing this non-judgmental feedback allows the kids to understand how to look at their behaviors and make better decisions.

17. Help Detect Emotional Triggers

Just like you need to find mood boosters to help your child's emotion regulation skills, you must also find the negative triggers that cause emotional dysregulation. This will help your child understand what's causing the complex emotions they are experiencing.

18. Practice Your Words

This one is a little tough for me since one of my children is nonverbal, but if you can get your child to use their words, it will go a long way for emotion regulation. This will allow them to communicate what's wrong. Even if your child is nonverbal like mine, you can still get them to use words through whatever form of communication they use. Whether through an electronic communication device, like an iPad or sign language, they can still use their words even if it isn't verbal.

19. Deep Pressure

We have used this with my older son when he is emotionally overwhelmed. A deep-pressure home provides a sense of safety and security that will allow for emotional regulation. This will only work if your child can allow for a deep pressure hug, but deep pressure and breathing exercises can lead to calm if they are.

20. Be Reassuring

In a moment of emotional dysregulation, your child may feel like their emotions are too much to overcome. This is when parents need to be reassuring these feelings will pass. Once the child's emotions are regulated, they will likely understand what was wrong and how you helped them. Still, at the moment, they can't control their feelings and need you to reassure them.

21. Have A Routine

Many children on the autism spectrum thrive with routine, but when that routine is thrown off, everything can become overwhelming. As I mentioned at the beginning, this can be as simple as someone not being there or not having an article of clothing. Routines are often a vital part of emotion regulation.

22. Offer Food Or Drink

While your child may not be overwhelmed because they are hungry or thirsty, offering a snack or drink can lead to emotion regulation. It will give them focus, and they may be hungry or thirsty on top of whatever bothers them. This is a tactic we've employed with my younger son, and it helps him.

23. Offer Choice

This one is, admittedly, a double-edged sword regarding emotion regulation. Choice can be a wonderful thing that allows the child to feel more in control of the situation, and that can help them recognize the issue. However, the choice can also be overwhelming and make things worse if it makes the child feel more frustrated. This is one where the parent needs to assess the situation before implementing it.

24. Take Child For Ride

Similarly to an exercise break, this one can work in the right situation. My younger son loves riding in the car. We learned it when my wife had COVID, and my son didn't understand why everyone in the house was separated. I couldn't take him inside anywhere, but a 10-minute drive did wonders for him, and I could take him home, where he would play in his room again. It continues to be a preferred choice for his emotional regulation.

25. Use First-Then Statements

With my younger son, it can be difficult to lead him to emotion regulation when his mind is focused on one thing. Using his iPad, we have started using first-then statements to relay that something must happen before he can get what he wants. My wife and I have seen a reduction in meltdowns connected to emotional dysregulation. It doesn't remove them altogether, but it leads to a level of understanding that helps him emotionally.

Conclusion

These are just some ways to help your child with emotional regulation skills. It can be challenging to get through to your child during dysregulation.

Their struggles may not seem like much to people on the outside, but to that child, they are the most significant issues in the world at that moment. Children need guidance for emotional regulation. Some will require assistance from parents, while the children can apply others after their parents teach them.

In the end, emotional regulation strategies go a long way in helping children manage difficult emotions, and that's what we all want for our children.
References:

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Emotional Regulation: 25 Ways to Help Your Autistic Child

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Emotional Regulation can be difficult for children on the autism spectrum. This article looks at 25 ways in which parents can help their children.

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How to make a self-soothe box Primary Young Minds

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Emoji's to help with conversations around feelings

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Emoji's to help with conversations around feelings

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NeuroConnect CIC - Supporting families, particularly neurodiverse and adoptive families, to build strong connections & healthy relationships, and improving family wellbeing.

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Pathological Demand Avoidance (PDA) and Autism: A Guide For Allies - Reframing Autism

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Everyone experiences ‘demand avoidance’ from time to time – that is, resisting the idea of doing something that has been […]

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PDA Society - Pathological Demand Avoidance

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The PDA Society created these ‘What helps?’ guides to provide helpful and practical information to make life easier for PDAers and those around them. If

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Resistance to demands is a characteristic experienced by and observed in some autistic people. It is sometimes labelled as Pathological Demand Avoidance (PDA), but there is debate about the evidence for and usefulness of this label.

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Create an account or log in to Instagram - Share what you’re into with the people who get you.

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Viv Dawes Autistic Advocate, lived experience support and resources for autistic burnout and other autism and ND issues. Online and face to face training sessions. Autistic burnout workbook to download and online consultations available to book

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"I talk about all things autism and mental health, while sharing stories of learning to navigate the world as a young autistic adult."

My name is Emily. I am a young autistic woman with ADHD. I talk about autism and mental health.

I've struggled with my mental health since the age of 13, which led to me being sectioned aged 16 on a children's mental health unit. I was diagnosed with autism just before my 17th birthday and ADHD at the age of 21. I began tweeting about my experiences shortly after my autism diagnosis, and discovered a whole online community of wonderful autistic people and...

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My name is Emily. I am a young autistic woman with ADHD. I talk about autism and mental health. I've struggled with my mental health since the age of 13, which led to me being sectioned aged 16 on a children's mental health unit.

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Dr Naomi Fisher is a clinical psychologist, author and speaker specialising in parenting, mental health issues in children, autism and trauma. She runs EMDR Basic Training and Refresher Day courses. Dr Abigail Fisher is an education psychologist specialising in Special Educational Needs (SEN), EHCPs, EOTAS. We create courses and webinars for parents and professionals.

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How Carefree works: affordable breaks for unpaid carers

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Discover how Carefree offers unpaid carers a well-deserved break in hotels across the UK for just £33. Learn how to sign up, request a break, and enjoy much-needed time off from caring duties. Find out how to get started today!

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(IPSEA) Independent Provider of Special Education Advice

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Children and young people with special educational needs and disabilities are entitled to support with their education. Follow the links below to find out more and to access our free guides, resources and template letters. If you’re not sure where to find the information you need, you can also use our website search function. If you can’t find the answer to your question, please visit our services page and consider contacting our helplines to speak with one of our advisers. Please note the law is different for children and young people detained in the criminal justice system. These guides and resources are for families in England.

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Welcome to our area of the website for families. Youll find information about how we can help you to support an autistic family member. You can read stories from other families and access support from our community and branches.

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Special Educational Needs and Disability Information, Advice and Support

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Autism Central for Parents and Carers | Autism Central

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Autism Central offers a wealth of resources for parents, carers and personal assistants of autistic people in England – from articles and learning materials to signposting you to services and support in your local area.

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Information on the services available for children and young people up to 25 years with special educational needs and/or disabilities (SEND) and how to access them

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schoolreadinglist.co.uk needs to review the security of your connection before proceeding.

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4 times as many boys are diagnosed autistic as girls. This is not an accurate picture.

Frequently, for many reasons, girls are diagnosed later (on average up to 6 years later), missed or misdiagnosed, causing long term mental health problems with too many girls feeling too anxious to attend school as a result.

Currently the assessment tools used to screen for autism are male-centric. We want to see tools in place that reflect multiple presentations and needs so that no child's need goes unrecognised or unsupported. We are currently pilot-validating the Internal Presentation of Autism Checklist that sits within our white paper Autism, Girls and Keeping it All Inside , so expect that to change soon. Our survey had 1123 responses in a week, so there are many people who feel strongly about having screening tools which feel representative. Our vision is for a system that enables autistic girls to thrive, to feel understood and to achieve the best educational outcomes.

Our aim is to raise awareness of autism in girls and others who present in an internal way with health, social care and educational professionals and to bring change. Not only to the way that autistic girls are assessed and subsequently supported but to the narrative, with updated and positive terminology used to describe autistic traits.

Our private Facebook group supports both autistic girls and women and their extended families, but there are many more who need our help. We are now a registered charity, fundraising to enable us to both fund projects which offer face to face support and campaign for real change.

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We are a small registered charity working to support, educate, and bring change. Here you will find lots of resources.

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creating A Safe Minecraft Community for Children with Autism

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creating A Safe Minecraft Community for Children with Autism

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The Children's Autism Outreach Team (CAOT) is part of Children and Young People's specialist service SEND & Inclusion support Somerset.

Children's Autism Outreach Team (CAOT) work with parents and carers and their child or young person with a diagnosis of autism aged 0-14 years (to 15 birthday).

CAOT provide home visits to help parents and carers with advice and strategies within the home, help with new skills to support their child and/or help with access to other suitable resources.

They also provide activities for children and young people that would otherwise be inaccessible for many families without support and advice. These include clubs for families and activities during every school holiday.

For families and carers who have a young person on the autism pathway aged 0 -14 years (15 birthday) they would be welcome to attend CAOT coffee mornings or CAOT activities to gain support from CAOT and other families and carers in the same situation.

Type of provision

Targeted - This is for people with special educational needs and disabilities and their families

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Welcome to Sensory Ladders for Self Regulation

where sensory integration, dialectical behaviour therapy and trauma-informed care collide

History

Since 2001, Sensory Ladders have been used to support adults, teens and children with sensory integration difficulties manage to create the right space, to do the right thing, to be in the right place and at the right time. (Person, Environment, Task/Occupation for optimal Performance)

Clinical Application

Sensory Ladders can be made for anyone of any age and any ability. For use at home, school and in hospital. Supporting people developing shared understanding. Supporting understanding. Helping parents, carers and teachers provide the right support at any one moment in time

Personalised

Uniquely individualised and personalised. Sensory Ladders are about building a shared narrative and understanding. They promote awareness of self-states and how to use sensory strategies for self-regulation. Promoting successful engagement and participation in everyday life.

Find a quiet place, use a humble pen.
Paul Simon

About Us

Kath Smith OT developed the first Sensory Action Plans while working with adults in a learning disability inpatient setting in 1998. In 2001 the first Sensory Ladder, a derivative was included in a care-plan, building on ideas from the Alert Program, a paediatric programme. Sensory Ladders were developed to support the practice of Ayres' Sensory Integration beyond paediatrics. This practice was in its infancy at this time. Now they are taught and used across the lifespan.

© Smith 2001 - 2021

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Welcome to Sensory Ladders for Self Regulation where sensory integration, dialectical behaviour therapy and trauma-informed care collide Learn more History Since 2001, Sensory Ladders have been used to support adults, teens and children with sensory integration difficulties manage to create the right space, to do the right thing, to be in the right place and...

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The Spoon Theory for Parents of Children with Special Needs

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Parents of children with special needs may seem superhuman, but we wake up each day with a limited amount of precious resources. Let me explain, using the Spoo

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Useful links for your reading

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New Autism Research Finds That Autistic Brains Are Differently Wired

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Neurodiversity advocates say that autistic brains are differently wired. New autism research finds that neuron density is different in two key areas of autistic brains.