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Introduction to Research Ethics - Week 1
Class discussion board
Avatar of Sarah Chan
Sarah Chan
 + 1
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2mo
 

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Hi Sarah and Sonja,
I would like to join all 3 sessions.
Thanks.
Chanh

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As we are having difficulties with the Blackboard Discussion Board, I have added this post here for tutorial sign-ups:
Tue 2 Oct, 13:00-13:50 Sydney Smith
Tue 9 Oct, 10:00-10:50 Doorway 4, G.16
Tue 23 Oct, 10:00-10:50 Doorway 4, G.16

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Hi,
I would like to attend the following sessions:
Tue 9 Oct, 10:00-10:50

Tue 23 Oct, 10:00-10:50

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Yesterday in the lecture I asked whether people would be interested in some sort of tutorial or discussion group, to extend our consideration of some of the issues and cases we are covering in the lectures. This could be anything from a timetabled face-to-face session, to a self-organised discussion group (I can provide readings and prompts), to an online discussion board. I'm interested in your ideas as to what would most enhance your learning experience -- let me know in comments below!

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Gender biases in research focus and research design have ethical implications.
Would it be fair to focus on a cancer than affects women disproportionately?

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It is the tension between societal values ... In as much as Public Health should consider things that affect the most people, Public Health efforts should also consider the people who have the most to gain from Public Health efforts (rare diseases).

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Public funding - maximise the utility of the money we have
But... the problem of rare diseases. How do we justify spending money on researching rare diseases?
Is the implication that we should only study common diseases?

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Scientific validity for data
Responsibility to do good science

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Shouldn’t let the funder’s feelings or push for significant results influence recruitment/methodology

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results could be very different in terms of the severity of the diagnosis (eg. breast cancer can often be removed vs. Leukaemia), therefore the patients reaction would very. So depends on what you want your research question to be.

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We considered whether not if someone wanted to focus on breast cancer they should change their experimental question. The effects of a breast cancer diagnosis or the effects of a cancer diagnosis?

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GDPR = general data protection regulation

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GDPR = general data protection regulation

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Would you not have to delete data via GDPR requirements?

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Consider the power dynamic between research and participant

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Self-determination

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Directing the participant to a counselor at the end of the interview could be a good idea

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Also talked about the significance of ONE research position in a pool of 75 . Will that one person’s testimony truly be THAT important?

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Agree a framework prior to the interview and having it agreed and communicated between participant and interviewer. Ensure participant understanding during process. i.e ability to stop when ever participant chooses

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Consider Address the study patient’s needs ... alleviating pain, giving them resource to address their concerns

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to others, public knowledge, other patients

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Talked about giving the participants the opportunity to take a break rather than discontinuing, as a compromise - this would balance the common good and the participant’s needs

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Being heard, having view represented can be a benefit

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We will use this board to share ideas during the class discussion. Feel free also to add comments or post questions at any time during the lecture.